25
REFERENCES

REFERENCES - Bubu.edu.eg/portal/uploads/discussed_thesis/11545874/11545874_R.pdf · References References ... By the McGraw-Hill Companies printed in ... (2004): Anemia and health-related

Embed Size (px)

Citation preview

REFERENCES

- 119 -

References

References

Aarabi B, Haghshenas M, Rakeii V. (1998): Visual failure caused by

suprasellar ematopoiesis in beta thalassemia: case report.

Neurosurgery.; 42:922–925.

Abdel Hameed TA. (2006): Cardiovascular complications of

hemodialysis in pediatrics. Master Thesis, Faculty of medicine,

Cairo University, pp. 5-21, 51-57, 75-79.

Abetz L, Baladi J, Jones P, et al. (2006): The impact of iron overload

and its treatment on quality of life: results from a literature

review. Health and Quality of Life Outcomes 2006, 4:73.

Abo-Shady MA and Shebl SS. (1990): Endocrine and exocrine

pancreatic function in children with beta thalassemia, Doctoral

thesis in pediatrics. Faculty of Medicine, Tanta University,

Egypt.; 378.

Alderfer MA and Kazak AE. (2006): Family issues when a child is on

treatment for cancer. In R. Brown (Ed.), Pediatric

hematology/oncology: A biopsychosocial approach (pp. 53–

74). New York: Oxford University Press.

Alfrey and Chanl. (2004): Chronic renal failure manifestation and

pathogenesis. In: Schrier R.W.(ed): Renal and electrolyte

Disorders, 7th edition., Boston Little Brown and Company.;

1132-1135.

Anees M, Bakri H, Masood M, et al. (2008): Depression in

hemodialysis patients. Pak J Med Sci.; 24(4): 560-565.

- 120 -

References

Angastiniotis M and Modell B. (1998): Global epidemiology of

hemoglobin disorders. Ann N Y Acad Sci.; 850:251-269.

Angelucci E and Baronciani D. (2008): Allogeneic stem cell

transplantation for thalassemia major. Haematologica.;

93(12):1780-1784.

Aris RM, Renner JB, Winders AD, et al. (1998): Increased rate of

fractures and severe kyphosis: sequelae of living into adulthood

with cystic fibrosis. Ann Int Med.;128(3): 186–193.

Armstrong FD. (2006): Neurodevelopment and chronic illness:

mechanisms of disease and treatment. Mental Retard Dev

Disab Res Rev.;12:168–173.

Arruda JA. (1981): Acidosis of renal failure. Semin Nephrol.; 1: 27-280.

Atiyeh BA, Dabbagh SS, Gruskin AB. (2001): Evaluation of renal

function during childhood. Pediatr Rev.;17:175–179

Bakr A, Amr M, Sarhan A, et al. (2007): Psychiatric disorders in

children with chronic renal failure. Pediatr Nephrol.;

22(1):128-31.

Bawden HN, Acott P, Carter J, et al. (2004): Neuropsychological

functioning in end-stage renal disease. Arch Dis

Child.;89(7):644-7.

Benz EJ. (2010): Disorder of hemoglobin. In: Longo D L, eds.

Harrison’s Hematology and Oncology, By the McGraw-Hill

Companies printed in china.; 8:84-90.

Beratis S. (1993): Psychosocial status in pre-adolescent children with

betathalassaemia. J. Psychosom. Res.; 37: 271–9.

- 121 -

References

Bocchetta A. (2005): Heterozygous beta-thalassaemia as a susceptibility

factor in mood disorders: Excessive prevalence in bipolar

patients. Clin. Pract. Epidemol. Ment. Health.; 1: 6.

Boncimino A, Bertaina A, Locatelli F. (2010): Cord blood

transplantation in patients with hemoglobinopathies. Transfus

Apher Sci.; 42(3):277-281.

Borgna-Pignatti C and Galanello R. (2009): Thalassemias and Related

Disorders: Quantitative Disorders of Hemoglobin Synthesis.

In: Wintrobe’s Clinical Hematology, 12th Edition.

Philadelphia: Lippincott Williams & Wilkins, USA,1084-1120.

Borgna-Pignatti C, Rugolotto S, De Stefano P, et al. (2004): Survival

and complications in patients with thalassemia major treated

with transfusion and deferoxamine. Haematologica.; 89:1187-

1193.

Bowlby J. (1973): Separation-anxiety and anger: attachment and loss.

vol 2. 1973; New York: Basic Books. p. 3-24.

Bresllau N. (1985): Psychiatric disorder in children physical disabilities.

J Am Acad Child Psychiatry 24:87-94.

Brouns R and De Deyn PP.(2004): Neurological complications in renal

failure: A review. Clin Neurosurg;107:1-16.

Brownbridge G and Fielding DM. (1994): Pychosocial adjustement and

adherence to dialysis treatment regimes . Pediatric Nepherol.;

8:744-9.

- 122 -

References

Burton HJ, Kline SA, Lindsay RM, et al. (1986): The relationship of

depression to survival in chronic renal failure. Psychosom

Med.; 48:261-9.

Cakaloz B, Cakaloz I, Polat A, et al. (2009): Psychopathology in

thalassemia major. Pediatr Int. 2009; 51(6):825-8

Cao A. (1988): Diagnosis of β-thalassemia intermedia at presentation.

Birth Defects: Origin Artic Series.; 23: 219–226.

Cappellini MD, Grespi E, Cassinerio E, et al. (2005): Coagulation and

splenectomy: an overview. Ann NY Acad Sci.; 1054. p.317-32.

Caro JJ, Ward A, Green TC, et al., (2002): Impact of thalassemia major

on patients and their families. Acta Haematol.; 107:150-157.

Cazzola M, Borgna-Pignatti C, Locatelli F, et al. (1997): A moderate

transfusion regimen may reduce iron loading in β-thalassemia

major without producing excessive expansion of

erythropoiesis. Transfusion.;37:135–140.

Chern JP, Su S, Lin KH, et al. (2006): Survival, mortality and

complications in patients with beta thalassemia major in

northern Taiwan. Pediatr Blood Cancer.; 45: 53-56.

Clemente C, Tsiantis J, Sadowski H. (2002): Psychopathology in

children from families with blood disorders: A cross-national

study. Eur. Child Adolesc. Psychiatry.; 11: 151–61.

Cohen A, Gayer R, Mizanin J. (1989): Long-term effect of

splenectomy on transfusion requirements in thalassemia major.

Am J Hematol.;30:254–256.

- 123 -

References

Craig S Wong, Bradley A Warady, Tarak Srivastava,(2008): Clinical

presentation and evaluation of chronic kidney disease in

children, Uptodate site version 16.3.

Craven AM, Hawley CM, McDonald SP, et al. (2007): Predictors of

renal recovery in Australian and New Zealand end-stage renal

failure patients treated with peritoneal dialysis. Perit Dial

Int. 27(2):184-91.

Crocker JFS, Acott PD, Carter JEJ, et al. (2002): Neuropsychological

outcome in children with acquired or congenital renal disease.

Pediatr Nephrol.;17:908–12.

Cukor D, Coplan J, Brown C. (2008): Anxiety disorders in adults

treated by hemodialysis; a single-center study. Am J Kidney

Dis; 52(1): 128-136.

Cunningham MJ and Sankaran VG. (2009): Disorder of hemoglobin:

Thalassemia. In: Stuart H.Orkin, David G. Nathan, eds. Nathan

and Oski,s: Hematology of infancy and childhood, 7th ed.

Philadelphia: Saunders Elsevier: Canada.;1015:1071.

Dawborn JK. (2000): Chronic renal failure. In: Judith A, Whit Worth

J.R and Laurance A.O (eds): Text book of renal disease, 2ed.

Chnichll Livingstone Edinburgh Company; 343.

De Sanctis V, Roos M, Gasser T, et al. (2006): Impact of long-term iron

chelation therapy on growth and endocrine functions in

thalassaemia. J Pediatr Endocrinol Metab., 19:471-480.

DeBaun MR. (2008): Hemoglobinopathies. In: kliegman R, Behrman

R, eds. Nelson textbook of pediatrics, 18th ed. Philadelphia:

WB Saunders, USA., 2033.

- 124 -

References

Diefenthaeler EC, Wagner MB, Poli-de-Figueiredo CE, et al. (2008):

Is depression a risk factor for mortality in chronic hemodialysis

patients? Rev. Bras. Psiquiatr; 30(2): 99-103

Diefenthaeler EC, Wagner MB, Poli-de-Figueiredo CE, et al. (2008):

Is depression a risk factor for mortality in chronic hemodialysis

patients? Rev. Bras. Psiquiatr; 30(2).

Economou M, Zafeiriou DI, Kontopoulos E, et al. (2006):

Neurophysiologic and intellectual evaluation of beta-

thalassemia patients. Brain Dev.; 28:14-18

Eiser C, Eiser JR, Town C et al. (1991): Discipline strategies and

parental perceptions of preschool children with asthma. Br J

Med Psychol.; 64:45-53.

El Nahas AM and Bello AK. (2005): Chronic kidney disease: The

global challenge. Lancet. 365:331-340.

El-Beshlawy A, Kaddah N, Moustafa A, et al. (2007): Screening for β-

thalassemia carriers in Egypt: Significance of the osmotic

fragility test. East Mediterr Health.; J. 13 (4):780–786.

El-Defrawi MH, Zeitoun AA, Abd El-Hamid OA. (2000): Behavioral

and cognitive functions in children with chronic illness in Port

Said, Egypt. J. Psychait.23:197-213.

Fadrowski JJ, Pierce CB, Cole SR, et al. (2008): Hemoglobin decline in

children with chronic kidney disease: baseline results from the

chronic kidney disease in children prospective cohort study.

Clin J Am Soc Nephrol; 3:457-62.

- 125 -

References

Fennell RS, Fennel EB, Carter RL, et al. (1990): Correlations between

performance on neuropsychological tests in children with

chronic renal failure. Child Nephrol Urol 10:199-204.

Ferris ME, Gipson DS, Kimmel PL, et al. (2006). Trends in treatment

and outcomes of survival of adolescents initiating end-stage

renal disease care in the United States of America. Pediatr

Nephrol.;21(7):1020–1026.

Fielding D and Brownbridge G.(1999): Factors related to psychosocial

adjustmentin children with end stage renal failure. Pediatric

Nephrol 13:766-770.

Fine RN, Alonso EM, Fischel JE, et al. (2004): Pediatric

transplantation of kidney, liver, and heart summary report.

Pediatr Transplant.; 8: 75-86.

Fitzgerald M and Beggs S (2001): The neurobiology of pain:

developmental aspects. Neuroscientist.;7(3): 246–257.

Flynn JT, Mitsnefes M, Pierce C, et al.(2008): Blood pressure in

children with chronic kidney disease: a report from the chronic

kidney disease in children study. Hypertension; 52:631.

Fogo AB and Racusen LC. (1999): The classification of renal allograft

pathology. Kid. Int.; 55(2): 713 – 23.

Foley RN, Parfrey PS, Sarnak MJ. (1998): Clinical epidemiology of

cardiovascular disease in chronic renal disease. Am J Kidney

Dis; 32:S112-9.

Friedman AL. (2006): The broader burden of end-stage renal disease on

children and their families. Kidney Int 70:1893-1894.

- 126 -

References

Fukuniski L and Kkudo H. (1995): Psychiatric problems of pediatric

end-stage renal failure. Gen Hosp Psychiatry. 17: 32-36.

Galanello R and Origa R. (2010): Beta-thalassemia. Orphanet J Rare

Dis.; 5:11.

Gardner W, Murphy M, Childs G, et al. (1999): The PSC-17: a brief

pediatric symptom checklist including psychosocial problem

subscales: a report from PROS and ASPN. Ambulatory Child

Health, 5: 225-236

Garralda ME, Jameson RA, Reynolds JM, et al. (1988): Psychiatric

adjustment in children with chronic renal failure. J. Child

Psychol. Psychiatry.; 29: 79–90.

Geary DF and Haka-Ikse K. (1989): Neurodevelopmental progress of

young children with chronic renal disease. Pediatrics.; 84:68–

72.

Geist R, Grdisa V, Otley A. (2003): Psychosocial issues in the child with

chronic condition. Best Practice & Research Clinical

Gastroenterology, 17(2): 141-152.

Gerson A, Hwang W, Fiorenza J, et al. (2004): Anemia and health-

related quality of life in adolescents with chronic kidney

disease. Am J Kidney Dis.; 44:1017-23.

Gerson AC, Butler R, Moxey-Mims M, et al. (2006): Neurocognitive

outcomes in children with chronic kidney disease: Current

findings and contemporary endeavors. Mental Retardation and

Developmental Disabilities.; 12: 208–215.

- 127 -

References

Giardina PJ and Forget BG. (2008): Thalassemia syndromes. In:

Hoffman R, Benz EJ, et al. eds. Hematology: Basic Principles

and Practice, 5th ed. Philadelphia: Churchill Livingstone.; 2108.

Gipson DS, Duquette PJ, Icard PF, et al. (2007): The central nervous

system in childhood chronic kidney disease. Pediatric

Nephrology.; 22:1703–1710.

Gledhill J, Rangel L, Garralda E. (2000): Surviving chronic medical

illness: Physical outcome in adult life. Arch Dis Child 83:104-

110.

Gortmaker SL, Walker DK, Weitzman M, et al. (1990): Chronic

conditions, socioeconomic risks and behavioral problems in

children and adolescents. Pediatrics.;85(3):267-76

Graham P (1991): Child psychiatry : A developmental approach (2nd

edn). Oxford University press, New York, pp 263-272.

Groothoff JW, Grootenhuis M, Dommerholt A, et al.(2002): Impaired

cognition and schooling in adults with end stage renal disease

since childhood. Arch Dis Child 87:380–385

Groothoff JW, Grootenhuis MA, Offringa M, et al. (2005): Social

consequences in adult life of end-stage renal disease in

childhood. J Pediatr 146:512–517

Guha P, Arun De, Malay Ghosal, (2009): Behavior profile of children

with nephritoc syndrome, Indian J Psychiatry, 51(2): 122-26.

Halfon N and Newacheck PW. (2010): Evolving notions of childhood

chronic illness. JAMA. 303:665–666.

- 128 -

References

Halterman JS, Kaczorowski JM, Aligne CA, et al. (2001): Iron

deficiency and cognitive achievement among school-age

children and adolescents ithe United States. Pediatrics

107:1381-1386.

Hankins JS, McCarville MB, Loeffler RB, et al. (2009): R2*magnetic

resonance imaging of the liver in patients with iron

overload. Blood.;113(20):4853-5..

Hanson MD and Chen E (2007): Socioeconomic status and substance

use behaviors in adolescents: the role of family resources

versus family social status. J Health Psychol.; 12(1):32–5.

Hershko C. (2006): Oral iron chelators: new opportunities and new

dilemmas. Haematologica.; 91:1307–1312.

Hochberg Z. (2002): Mechanisms of steroid impairment of growth.

Hormone Res.; 58(Suppl1):33–38.

Hoffbrand AV, Moss PAH, Pettit IE. (2006): Genetics disorder of

hemoglobin, In: Essential haematology, Fifth edition. Rotolito

Lombarda SpA, Italy.; 82-85.

Hogg RJ, Furth S, Lemley KV, et al. (2003): National Kidney

Foundation’s Kidney Disease outcomes Quality Initiative

clinical practice guidelines for chronic kidney disease in

children and adolescents: Evaluation, classification, and

stratification. Pediatrics, 111(6 Pt 1), 1416-1421.

Homer CJ, Kleinman LC, Goldman DA. (1998): Improving the quality

of care for children in health systems. Health Serv Res.;

33:1091-1109.

- 129 -

References

Hooper SR, Duquette PJ, Icard P, et al. (2009): Social – behavioural

functioning in pediatric chronic kidnet disease. Child care healt

Dev.; 35 (6):832-40.

Hulstijn-Dirkmaat GM, Damhuis IHW, Jetten MLJ, et al. (1995): The

cognitive development of preschool children treated for

chronic renal failure. Pediatric Neprhology.; 9:464–469.

Hung YT and Yang LY. (2006): Follow-up of linear growth of body

height in children with nephritic syndrome. J Microbiol

Immunol Infect.;39(5):422–425.

Jaiswal SP, Chitnis DS, Jain AK, et al. (2001): Prevalence of hepatitis

viruses among multi-transfused homogenous thalassaemia

patients. Hepatol Res.; 1:247–253.

Janse AJ, Uiterwaal CSPM, Genke RJBJ, et al. (2005): A difference in

perception of quality of life in chronically ill children was

found between parents and pediatricians. J Clin

Epidemiol.;58:495–502.

Jellinek MS, Little M, Murphy JM, et al. (1995): The pediatric

symptom checklist: Support for a role in a managed care

environment. Arch Pediatr Adolesc Med., 149: 740-746.

Jerry MB. (2004): Renal failure. In: Nelson Textbook Of Pediatrics,

Edited by: Pettrman R.E., Kligman R.M. and th Arvin A.M., 17

edition, Philadelphia, W.B. Saunders; pp: 1609 – 12.

Jessop DJ and Stien RE. (1989): Uncertainty and its relationship to the

psychological and social correlates of chronic illness in

children. Soc Sci Med., 20: 993.

- 130 -

References

Julia G, Luiza R, Elena G. (2000): Surviving chronic illness:

psychosocial outcome in adult life. Arch Dis Child.; 104-

10.

Juster RP, McEwen BS, Lupien SJ. (2010): Allostatic load biomarkers

of chronic stress and impact on health and cognition. Neurosc

Biobeh Rev.; 35:2–16.

K/DOQI (2005): Clinical practice guidelines for Bone metabolism and

disease in children with chronic kidney disease. Am J Kidney

Dis.; 46: S12.

Kanitkar Col M. (2009): Chronic Kidney Disease in Children: An Indian

Perspective.; 65: 45-49

Kattamis C and Ladis V. (1975): Hemoglobins F and A2 in Greek

patients with homozygous β and β/δβ thalassemia. In: Schmidt

RM, ed. Abnormal Haemoglobins and Thalassaemia:

Diagnostic Aspects. New York: Academic Press.; 209–228.

Knapp PK and Harris ES. (1998): Consultation-liaison in child

psychiatry: a review of the past 10 years. Part I: clinical

findings. J Am Acad Child Adolesc Psychiatry.; 37 (1): 17–25.

Kontoghiorghes GJ. (2006): Future chelation monotherapy and

combination therapy strategies in thalassemia and other

conditions. Comparison of deferiprone, Deferoxamine,

ICL670,GT-252, L1naii and Starch deferoxamine polymers

Hemoglobin.; 30(2):329-347

Kovacs M, Finkelstein R, Feinberg TL, et al. (1985): Initial Psychology

responses of their children. Diabetes Care.; 8: 568-575.

- 131 -

References

Kuizon BD and Salusky IB. (2003): Renal osteodystrophy . Pediatric J.

Of Nephrology. Lippincot Williams and Wilkins. USA Wolters

Company, 5th ed., P 1347-1366.

La Nasa G, Caocci G, Argiolu F, et al., (2006): Unrelated donor stem

cell transplantation in adult patients with thalassemia. Bone

Marrow Transplantation.; 36:971-975.

Lai WM. (2009): Quality of life in children with end-stage renal disease:

does treatment modality matter? Perit Dial Int. 29 Suppl

2:S190-1.

Lawry KW, Brouhard BH, Cunningham RJ. (1994): Cognitive

functioning and school performance in children with renal

failure. Pediatr Nephrol.; 8:326–9.

LeBlanc LA, Goldsmith T, Patel DR. (2003): Behavioral aspects of

chronic illness in children and adolescents. Pediatr Clin North

Am., 50: 859-878.

Levey AS, Eckardt KU, Tsukamoto Y, et al. (2005): Definition and

classification of chronic kidney disease: a position statement

from Kidney Disease: Improving Global Outcomes (KDIGO).

Kidney Int.; 67 (6):2089-100.

Louthrenoo O, Sittipreechacharn S, Thanarattanakorn P, et al. (2002):

Psychosocial problems in children with thalassemia and their

siblings. J Med Assoc Thai.; 85: 881-5.

Lucarelli G and Gaziev J. (2008): Advances in the allogeneic

transplantation for thalassemia. Blood Rev.; 22 (2): 53-63.

- 132 -

References

Machado RF and Gladwin MT.(2010): Pulmonary hypertension in

hemolytic disorders: pulmonary vascular disease: the global

perspective. Chest.; 137 6 Suppl:30S-38S.

Marin TJ, Chen E, Munch T, et al. (2009): Double exposure to acute

stress and chronic family stress is associated with immune

changes in children with asthma. Psychosom Med.; 71:378–

384.

Mattman A, Eintracht S, Mock T, et al. (2006) Estimating pediatric

glomerular filtration rates in the era of chronic kidney disease

staging. J Am Soc Nephrol.;17:487-96.

Mehta M, Bagga A, Pande P, et al. (1995): Behaviour problems in

nephrotic syndrome. Indian Pediatrics, 32; 1281-86.

Melody J. Cunningham, Vijay G. Sankaran, et al.(2009): Disorder of

hemoglobin: Thalassemia. In: Stuart H.Orkin, David G.

Nathan, eds. Nathan and Oski's: Hematology of infancy and

childhood, 7th ed. Philadelphia: Saunders Elsevier:

Canada.;1015:1071.

Messina G, Colombo E, Cassinerio E, et al.(2008): Psychosical aspects

and psychiatric disorders in young adult with thalassemia

major. Itern Emerg Med.;3(4):339-43.

Modell CB and Berdoukas VA. (1984): The Clinical approach to

thalassaemia. New York: Grune and Stratton.

Mokkink LB, van der Lee JH, Grootenhuis MA, et al. (2008): Defining

chronic diseases and health conditions in childhood (ages 0–18

years of age): National consensus in the Neatherlands. Eur J

Ped.; 167:1441–1447.

- 133 -

References

Mollaoglu M. (2006): Perceived social support, anxiety and self-care

among patients receiving hemodialysis. Dialysis and

Transplantation; 35: 144-155.

Monastero R, Monastero G, Ciaccio C, et al. (2000): Cognitive deficits

in beta-thalassemia major Acta Neurol Scand.; 102: 162-168.

Montes G and Halterman JS. (2008): Association of childhood autism

spectrum disorders and loss of family income.

Pediatrics.;121:821-6.

Morris CR and Vichinsky EP. (2010): Pulmonary hypertension in

thalassemia. Ann. N.Y. Acad. Sci.; 1202: 205–213.

Motoyama O, Hasegawa A, Ohara T, et al. (2005): A prospective trial

of steroid withdrawal after renal transplantation treated with

cyclosporine and mizoribine in children: results obtained

between 1990 and 2003. Pediatr Transplantation.;9(2):232–

238.

Mourad A, Nagwa Abdallah, Ahmed Ayad, et al. (1996): Psychological

disorder in Egyptian school children, highlights on medical and

physical risk factors, Med. J. Cairo Univ. 64(3):681-686.

NAPRTCS (2007): Annual Report, Rockville, MD, EMMES. Available

at https://web.emmes. Com /study/ped/ announce. htm.

(accessed on April 9, 2008).

National Child Traumatic Stress Network. (2005): Medical Events &

Traumatic Stress in Children and Families. Available at

http://www. nctsnet.org/nccts/nav.do?pid= typ_mt

- 134 -

References

Natterson JH and Knudson G. (1960): Observations concerning fear of

death in fatally ill children and their mothers. Psychosom

Med.; 22:456-65.

Newachek PW and Halfon N. (1998): Prevalence and impact of

disabling chronic conditions in childhood. Am J Pub Health.;

88(4):610–617.

Noeker M, Haverkamp-Krois A, Haverkamp F. (2005): Development

of mental health dysfunction in childhood epilepsy. Brain &

Development, 25: 5-16.

Nolan T and Pless IB. (1986): Emotional correlates and consequences

of birth defects. J Pediatr.;109:210-6.

Noordzij M, Korevaar JC, Boeschoten EW, et al. (2005): The Kidney

Disease Outcomes Quality Initiative (K/DOQI) Guideline for

Bone Metabolism and Disease in CKD: association with

mortality in dialysis patients. Am J Kidney Dis.; 46 (5): 925-32

Norman MZ. (2004): Renal osteodystrophy., In: Nelson W.E; Behrman

R.E., Kliegman R.M. and Aruim M.A.: Nelson Text Book OF

Pediatric, 17th (eds.). Sauders Company Phildelphia.; 1520-

1521.

Olivieri NF and Weatherall DJ. (2009): Clinical aspects of thalassemia

and related disorders. In: Steinberg MH, Forget BG, Higgs DR,

Weatherall DJ, eds. Disorder of Hemoglobin, 2nded. United

Kingdom: Cambridge University Press.; 17:357-400.

Ortaga DM and Levy MM (2002): facing the challenge of a changing

system: training child welfare workers in a privatized

environment, H Health Soc policy 15:177-187.

- 135 -

References

Osborne RH, De Abreu Lourenço R, Dalton A et al. (2007): Quality of

life related to oral versus subcutaneous iron chelation: a time

trade-off study. Value in Health.; 10: 451-456.

Pao M, Ballard ED, Raza H. (2007): Rosenstein D. Pediatric

psychosomatic medicine: an annotated bibliography.

Psychosomatics.; 48:195–204.

Pecorari L, Savelli A, Cuna CD, et al. (2008): The role of spelenectomy

in thalassemia major. An update. Acta Pediatrica

Mediterranea.; 24: 57

Pereira AA, Weiner DE, Scott T, et al. (2007): Subcortical cognitive

impairment in dialysis patients. Hemodial Int.; 11(3):309-14.

Perrin EC, Newacheck P, Pless B, et al. (1993): Issues involved in the

definition and classification of chronic health conditions.

Pediatrics.; 91:787-93.

Philip Lanzkowsky (2011): Hemoglobinopathies. In: Manual of

Pediatric Hrmatology and Oncology, Fifth Edition. Elsevier:

Academic Press, London.;231-245.

Phipps A and Turking D. (2001): Psychiatry in the renal unite.

Advances in psychiatric treatment. 7: 426-432.

Pivac N, Muck-Selar D, Barisic I, et al. (2001): Platelet serotonin

concentrationin dialysis patients with somatic symptoms of

depression. Life Sci 13:68:2423-2433.

Pless IB, Cripps HA, Davies JMC, et al. (1989): Chronic physical

illness in childhood: psychological and social effects in

adolescence and adult life. Dev Med Child Neurol.; 31:

746–755.

- 136 -

References

Pless IB. (1984): Clinical assessment :Physical and psychological

functioning .Pediatr Clinic North Am 30: 33-45.

Plumb MM and Holland J. (1981): Comparative studies of

psychological function in patients with advanced cancer. II-

Interview errated current and past psychological symptoms.

Psychosom Med 43:243–254

Pradhan PV, Shah H, Rao P, et al. (2003): Psychopathology and self-

esteem in chronic illness. Indian J. Pediatr. 70: 135–8.

Qvist E, Pihko H, Fagerudd P, et al. (2002): Neurodevelopmental

outcome in high-risk patients after renal transplantation in early

childhood. Pediatr Transplant., 6: 53-62.

Reed W, Walters M, Lubin BH. (2000): Collection of sibling donor cord

blood for children with thalassemia. J Pediatr Hematol Oncol.;

22(6):602-604.

Rees L and Mak RH.(2011): Nutrition and growth in children with

chronic kidney disease. Nat Rev Nephrol 2011; 7:615.

Resnick D. (2002): Diagnosis of bone and joint disorders, 4th ed. vol.3.

Philadelphia: Saunders.; 2167–76.

Reynolds JM, Garralda ME, Jameson RA, et al. (1988): How parents

and families cope with chronic renal failure. Arch Dis Child.;

63:821-6.

Rother RP, Bell L, Hillmen P, et al. (2005): The clinical squeal of

intravascular hemolysis and extracellular plasma hemoglobin:

A novel mechanism of human disease. JAMA.; 293:1653–

1662.

- 137 -

References

Rotundo A, Nevins TE, Lipton M, et al. (1982): Progressive

encephalopathy in children with chronic renal insufficiency.

Kidney Int.; 21:486–91.

Rund D and Rachmilewitz E. (2005): Beta-thalassemia. N Engl J Med.;

353(11):1135-1146.

Rustomjee S and Smith G. (1996): Consultation-liaison psychiatry to

renal medicine: work as inpatient unit. Aus N Z J psychiatry

30:229-237.

Saini A, Chandra J, Goswami U, et al. (2007): Case control study of

psychosocial morbidity in beta thalassemia major. J Pediatr.;

150:516-20.

Schulz R and Beach SR, (1999): Caregiving as a risk factor for

mortality: the Care giver health Effects Study. JAMA 282:

2215-2219.

Sebire G, Tabarki B, Saunders DE, et al. (2005): Cerebral venous

sinus thrombosis in children: risk factors, presentation,

diagnosis and outcome. Brain.; 128:477–489.

Seeherunvong W, Abitbol CL, Chandar J, et al. (2009): Vitamin D

insufficiency and deficiency in children with early chronic

kidney disease. J Pediatr.;154(6): 906-11.e1.

Segev A, Ben-Chitrit S, Orion Y, et al. (1999): Acute eosinophilic

interstitial nephritis and uveitis (TINU syndrome) associated

with granulomatous hepatitis. Clin Nephrol. 1999;51(5):310-3.

Seid M, Varni JW, Segall D et al. (2004): Health-related quality of life

as a predictor of pediatric healthcare costs: a two-year

prospective cohort analysis. Health and Quality of Life

Outcomes.; 2:48.

- 138 -

References

Seikaly MG, Ho PL, Emmett L, et al. (2003): Chronic renal

insufficiency in children: the 2001 Annual Report of the

NAPRTCS. Pediatr Nephrol. 18 (8): 796-804.

Shaheen FA and Al-Khader AA. Preventive strategies of renal failure in

the Arab world. Kidney Int Suppl. 2005; (98):S37-40.

Shaligram D, Girimaji SC, Chaturvedi SK. (2007): Psychological

problems and quality of life in children with thalassemia.

Indian J Pediatr.; 74:727-730.

Sherwood PR, Given CW, Given BA, et al.(2005): Care giver burden

and depressive symptoms:analysis of common outcomes in

caregivers of elderly patients. J Aging Health.; 17:125-147.

Slatopolsky E, Finch J, Denda M, et al. (1996): Phosphorus restriction

prevents parathyroid gland growth. High phosphorus directly

stimulates PTH secretion in vitro. J Clin Invest.; 97; 2534-

2540.

Slickers J, Duquette P, Hooper S, et al. (2007): Clinical predictors of

neuocognitive deficits in children with chronic kidney disease.

Pediatric Nephrology.; 22:565–572.

Soetjiningsih, (2004): Tumbuh kembang remaja dan permasalahannya.

1st edition. Jakarta: Sagung Seto.

Soetjiningsih. (2005): Tumbuh kembang anak dan remaja. 1st ed.

Jakarta: Sagung Seto.

Srivastava RN and Bagga A. (2005): Chronic renal failure. In Pediatric

Nephrology 4th edn. New Delhi :Jaypee brothers.

- 139 -

References

Stanton AL, Revenson T, Tennen H. (2007): Health psychology:

Psychological adjustment to chronic disease. Ann Rev Psych.;

58:565–592.

Stewart DA, Stein A, Forrest GC, et al. (1992): Pychosocial Adjustment

in siblings of children with chronic life threatening illness: a

research note. J child Psychol Psychi.; 33:779-84.

Stien RE. and Jessop DJ. (1989): What diagnosis does not tell us: The

case for a non categorical approach to chronic illness in

childhood. Soc Sci Med., 26: 769.

Stuber ML, Schneider S, Kassam-Adams N, et al. (2006): The medical

traumatic stress toolkit. CNS Spectrums.; 11: 137–142.

Stuber ML, Shemesh E, Saxe GN. (2003): Posttraumatic stress

responses in children with life-threatening illnesses. Child

Adolesc Psychiatr Clin N Am.;12:195–209.

Taher A, Abchee A, Zalouaa P, et al. (2002): Pulmonary

thromboembolism in beta-thalassemia intermedia; are we

aware of this complication?. Hemoglobin.; 26: 107–112.

Takeshita, K. (2010): Thalassemia Beta. Available at. http://

emedicine.medscape.com/article/206490-overview.

Tavormina JB, Kasthner LE, Slater PM. (1996): Chronically ill

children: A psychologicaly and emotionally devient

population. J Abn Child psychol., 4: 99-110.

Telfer P, Constantinidou G, Andreou P, et al. (2005): Christou S,

Modell B, Angastiniotis M: Quality of life in thalassemia. Ann

N Y Acad Sci.; 1054:273-282.

- 140 -

References

Thavorncharoensap M, Torcharus K, Nuchprayoon I, et al. (2010):

Factors affecting health-related quality of life in Thai children

with thalassemia. BMC Blood Disord.; 10:1.

Tonshoff B, Kiepe D, Ciarmatori S. (2005): Growth hormone/insulin-

like growth factor system in children with chronic renal failure.

Pediatr Nepphrol; 20:279-89.

Tsiantis J. (1990): Family reactions and relationships in thalassemia.

Ann N Y Acad Sci.; 612:451-61.

U.S. Renal Data System. USRDS (2007): Annual data report: Atlas of

chronic kidney disease and end stage renal disease in the

United States. National Institutes of health, National Institutes

of Diabetes and Digestives and Kidney Diseases, Bethesda,

MD.

Van Cleave J, Gortmaker SL, Perrin JM. (2010): Dynamics of obesity

and chronic health conditions among children and youth.

JAMA.; 303:623–630.

Van der Heijden BJ, van Dijk PCW, Verrier-Jones K, et al. (2004):

Renalreplacementtherapy in children: data from 12 registries in

Europe. Pediatr Nephrol;19:213.

van der Lee JH, Mokkink LB, Grootenhuis MA, et al. (2007):

Definitions and measurement of chronic health conditions in

childhood: a systematic review. JAMA.;287:2741–2751.

Van Dyck M and Proesmans W. (2004): Renoprotection by ACE

inhibitors after severe hemolytic uremic syndrome. Pediatr

Nephrol.;19:688-90.

- 141 -

References

Vernon D and Schulman J. (1966): Changes in children’s behavior

after hospitalization. Am J Dis Child.;3:581-93.

Vester U, Schaefer A, Kranz B, et al. (2005): Development of growth

and body mass index after pediatric renal transplantation.

Pediatr Transplantation.; 9(4):445–449.

Vogel and Motulsky (2002): Human Hemoglobin. In: George P. Patrinos

and Stylianos E. Antonarakis. Human genetics: problems and

approaches.; 365- 380.

Vogt BE and Avner ED. (2007): chronic renal failure. In: Behrman RE,

Kliegman RM. Jenson HB and Stanton BF Nelson, Text Book

of pediatrics, 18th edition: chapter 535. 2: P2210-2214.

Voskaridou E and Terpos E. (2004): New insights into the

pathophysiology and management of osteoporosis in patients

with beta thalassaemia. Br J Haematol.; 127(2):127–139.

Voss LD. (2001): Short normal stature and psychosocial disadvantage: a

critical review of the literature. J Pediatr Endocrinol

Metab.;14(6):701–711.

Warady BA, Alexander SR, Watkins S, et al. (1999): Optimal care of

the pediatric end-stage renal disease patient of dialysis. Am J

Kidney Dis.; 33(3): 557–583.

Warady BA, Belden B, Kohaut E. (1999): Neurodevelopmental

outcome of children initiating peritoneal dialysis in early

infancy. Pediatr Nephrol.; 13:759–65.

Ware RE. (2010): How I use hydroxyurea to treat young patients with

sickle cell anemia. Blood.;115(26):5300-5311.

- 142 -

References

Weatherall DJ and Clegg JB. (2001): The Thalassaemia Syndromes,

4th ed. Oxford: Blackwell Science.; 393–449.

Weatherall DJ. (2004): The thalassaemias: the role of molecular

genetics in an evolving global health problem. Am J Hum

Genet.; 74:385-392.

Wong H, Mylrea K, Feber J, et al. (2006): Prevalence of complications

in children with chronic kidney disease according to KDOQI.

Kidney Int.; 70: 585-90.

Wonke B. (1998): Bone disease in ß-thalassaemia major. Br J

Haematol.;103:897–901.

Wuhl E, Mehls O, Schaefer F. (2004): Antihypertensive and

antiproteinuric efficacy of ramipril in children with chronic

renal failure. Kidney Int.; 66: 768-76.

Yang JY and Yao Y. (2004): Analysis of 1268 patients with chronic

renal failure in childhooh: A part from 91 hospitals in China

from 1990 to 2002. Chinese Society of Pediatric Nephrology,

42(10),724-730.

Zervas A, Katopodi A, Protonotariou A, et al. (2002): Assessment of

thyroid function in two hundred patients with beta-thalassemia

major. Thyroid.;12:151-154.