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Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence Kelly Sparks, RN, BSN, CWOCN Capital Nursing Education

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Page 1: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Reducing the Stigma

Social and Emotional

Challenges of Living with

Incontinence

Kelly Sparks RN BSN CWOCN

Capital Nursing Education

Objectives

Discuss how ldquostigmaldquo relates to incontinent

patients

Discuss the prevalence of UI and fecal

incontinence

Briefly review the types of

incontinence

Understand the psychosocial effects of

incontinence

Explore the changes in the quality of life of

people with incontinence

Explore the methods of decreasing the stigma

related to incontinence

Understand the types of Stigma associated

with incontinence

1

2

3

4

5

6

7

copy 2019 All rights reserved 2

What is Stigma

A mark of disgrace associated with a particular circumstance

quality or person

Example ldquoThe stigma of having gone to prison will always be with meldquo

Synonyms shame disgrace dishonor

What does this mean to a person who is incontinent

Noun stigma Plural noun stigmas Plural noun stigmata

copy 2019 All rights reserved 3

Stigmatization

Stigma is fundamentally

a threat to onersquos

self-identity

Social phenomenon

Insiders (have the trait)

Outsiders (donrsquot have the trait)

copy 2019 All rights reserved 4

Stigma Associated with Incontinence

Individuals are stigmatized when they possess or

are thought to possess an attribute or

characteristic that conveys a social identity that is

devalued in a particular social context10

copy 2019 All rights reserved 5

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 2: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Objectives

Discuss how ldquostigmaldquo relates to incontinent

patients

Discuss the prevalence of UI and fecal

incontinence

Briefly review the types of

incontinence

Understand the psychosocial effects of

incontinence

Explore the changes in the quality of life of

people with incontinence

Explore the methods of decreasing the stigma

related to incontinence

Understand the types of Stigma associated

with incontinence

1

2

3

4

5

6

7

copy 2019 All rights reserved 2

What is Stigma

A mark of disgrace associated with a particular circumstance

quality or person

Example ldquoThe stigma of having gone to prison will always be with meldquo

Synonyms shame disgrace dishonor

What does this mean to a person who is incontinent

Noun stigma Plural noun stigmas Plural noun stigmata

copy 2019 All rights reserved 3

Stigmatization

Stigma is fundamentally

a threat to onersquos

self-identity

Social phenomenon

Insiders (have the trait)

Outsiders (donrsquot have the trait)

copy 2019 All rights reserved 4

Stigma Associated with Incontinence

Individuals are stigmatized when they possess or

are thought to possess an attribute or

characteristic that conveys a social identity that is

devalued in a particular social context10

copy 2019 All rights reserved 5

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 3: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

What is Stigma

A mark of disgrace associated with a particular circumstance

quality or person

Example ldquoThe stigma of having gone to prison will always be with meldquo

Synonyms shame disgrace dishonor

What does this mean to a person who is incontinent

Noun stigma Plural noun stigmas Plural noun stigmata

copy 2019 All rights reserved 3

Stigmatization

Stigma is fundamentally

a threat to onersquos

self-identity

Social phenomenon

Insiders (have the trait)

Outsiders (donrsquot have the trait)

copy 2019 All rights reserved 4

Stigma Associated with Incontinence

Individuals are stigmatized when they possess or

are thought to possess an attribute or

characteristic that conveys a social identity that is

devalued in a particular social context10

copy 2019 All rights reserved 5

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 4: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Stigmatization

Stigma is fundamentally

a threat to onersquos

self-identity

Social phenomenon

Insiders (have the trait)

Outsiders (donrsquot have the trait)

copy 2019 All rights reserved 4

Stigma Associated with Incontinence

Individuals are stigmatized when they possess or

are thought to possess an attribute or

characteristic that conveys a social identity that is

devalued in a particular social context10

copy 2019 All rights reserved 5

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 5: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Stigma Associated with Incontinence

Individuals are stigmatized when they possess or

are thought to possess an attribute or

characteristic that conveys a social identity that is

devalued in a particular social context10

copy 2019 All rights reserved 5

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 6: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Prevalence of Urinary Incontinence

minus About 17 of women over 18 years old have overactive bladder (OAB) and an estimated 122 million adults have

urge incontinence

minus One in five adults over 40 are affected by OAB or recurring symptoms of urgency and frequency

minus OAB and UI occur about twice as frequently in women as in men and become more prevalent with age

minus An estimated 17 million adults in the United States have daily UI and a further 33 million suffer from the

overlapping condition OAB

minus In women between the ages of 20 and 45 the prevalence of overactive bladder was found to be 368

minus Stress urinary incontinence the most prevalent form of incontinence among women affects an estimated 15

million adult women in the US

minus 29 of individuals ages 60-70 experience leakage when coughing sneezing or laughing compared to 17 of

men and women ages 30-39 A portion of these individuals also experience urge incontinence

minus Approximately 1 out of 3 women over the age of 45 ndash and 1 out of every 2 women over 65 ndash have stress urinary

incontinencesup1

copy 2019 All rights reserved 6

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 7: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Prevalence of Fecal Incontinence

minus The estimated prevalence of FI in noninstitutionalized US adults is

83 and consists of liquid stool in 62 solid stool in 16 and

mucus in 31

minus It occurs at least weekly in 27

minus Prevalence is similar in women (89) and men (77) and

increases with age from 26 in 20 to 29 year olds up to 153 in

participants aged 70 years and older

minus FI is not significantly associated with raceethnicity education

income or marital status after adjusting for age

minus Independent risk factors in women are advancing age loose or

watery stools more than 21 stools per week multiple chronic

illnesses and urinary incontinence

minus Independent risk factors in men are age loose or watery stools

poor self-rated health and urinary incontinencesup2

copy 2019 All rights reserved 7

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 8: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Types of Urinary Incontinence

Mixed incontinence

Overactive Bladder

Stress incontinence

Functional incontinence

Urge incontinence

Overflow incontinence

Total incontinence

copy 2019 All rights reserved 8

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 9: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Persistent Incontinence

Studies done by DevoreEE Minassian VAl and Grodstein F show that

older age white race and obesity were particularly strongly related to persistent UI

Sphincter weakness-following prostate

surgery in men or vaginal surgery in women

Pelvic prolapse

Nervous system impairment-MS Parkinsons

strokes spinal cord injury

Mental or psychological changes

Bladder Cancer

Pelvic muscle weakness

Enlarged prostate

Nerve or muscle damage after

radiation

Developmental problems of bladder

Pelvic prostate or rectal surgery

Bladder spasms

copy 2019 All rights reserved 9

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 10: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Transient Causes Acute Incontinence

D elirium

I nfection

A trophic vaginitis

P harmaceuticals

P sychological

E ndocrine disorder

R estricted mobility

S tool impaction

Inflammation of urinary tract

Stool impaction

Medication side effects

Polyuria

Psychological factors

copy 2019 All rights reserved 10

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 11: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Causes of Urinary Incontinence in Women

bull Stress incontinence Leakage when sneezing exercising or coughing

bull Side effects of medications

bull Certain foods

bull Weakened pelvic floor muscles

bull Pregnancy amp child birth

bull Aging

bull Severe constipation

bull Changes in the body from childbirth or surgery

copy 2019 All rights reserved 11

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 12: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Causes of Urinary Incontinence in Men

bull Its often a side effect after surgery for

minus Prostate cancer

minus Benign prostatic hypertrophy

bull It can be a symptom or a result of many different health conditions

minus Diabetes

minus Strokes

minus MS

minus Sometimes it can develop for less clear reasons such as an overactive bladder

copy 2019 All rights reserved 12

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 13: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Causes of Fecal Incontinence

The list of medical conditions that can cause bowel incontinence includes

bull Anorectal surgery

bull Diabetic peripheral neuropathy

bull Rectal inflammation

bull Forceps delivery

bull Reduced anal sensation

copy 2019 All rights reserved 13

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 14: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Perceived-Stigma Self-stigma Enacted-stigma

Three Types of Stigma

Fear and worry of being subjected to a

stigmatizing event

Directing prejudicial attitudes inwards

toward oneself

Episodes of discrimination based on a

stigmatizing attribute

copy 2019 All rights reserved 14

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 15: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Itrsquos a ldquoprivaterdquo matterhellip

bull We are socialized to understand that elimination of bodily

waste is a private matter and should be done in a tidy way

bull Failure to do so risks being stigmatized

copy 2019 All rights reserved 15

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 16: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Incontinent Patients

bull Perceived as ldquodifferentrdquo

bull Stereotyped as frail dependent incompetent or old

bull Threatens onersquos adult status

bull May be both embarrassed and shamed

bull Frequency urgency and nocturia are stigmatizing as they

are socially disruptive and indicate loss of control over

bodily functionssup1sup1

copy 2019 All rights reserved 16

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 17: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

The Six Stigma Dimensions

copy 2019 All rights reserved 17

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 18: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Available Questionnaires Concerning Stigmatization

Study by KSouthall J Tuazon etal

Goal of the study was to evaluate the efficacy of available questionnaires for assessing the outcomesof ldquocontinence difficultyrdquo interventions and to assess the selected questionnaires concerning aspectsof stigmatization

Literature search done yielding 194 references

11 questionnaires fit the inclusion criteria

6 of the 11 did not have any stigma content

The remaining five had very limited content regarding stigma

Conclusion Further studies are required to examine how the stigma associated with continencedifficulty impacts upon health care interventions

copy 2019 All rights reserved 18

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 19: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Psychosocial Issues

H umiliation

E mbarrassment

L oss of dignity

P sychological damage

L onely

E nclosed

S hame

S elf conscious

A ggravated

F rustrated

R estrained

A lone

I solated

D ependent

copy 2019 All rights reserved 19

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 20: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Effect on Incontinent Patientrsquos Self Esteem 7

bull Nearly one out of every five men over the age of 60 is dealing with male urinary incontinence

bull Most men will not even discuss UI with anybody

bull Men can feel very humiliated

bull A healthy active adult male can feel like an invalid

bull Fecal incontinent men will not tell anyone

bull Women do handle having incontinence better than most men

bull Women over 65 are used to wearing pads due to their periods in the past

bull Younger women have more of an issue with decreased self esteem

copy 2019 All rights reserved 20

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 21: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Quality of Life with Incontinence

UI and FI greatly diminish the quality of life Therefore it is important to

bull Diagnose the three main types of urinary incontinence correctly stress urge or mixed incontinence

bull Evaluate the impact of incontinence on quality of life

bull After a detailed history a bladder diary and questionnaires are the most useful tools with which to determine what

aspects of quality of life are most impaired (ie daily work-related recreational or sexual activities)

bull In general urgency and urge incontinence have a worse effect on quality of life than stress urinary incontinence

however fecal incontinence affects the quality of life considerably more

bull Measures of quality of life have become essential in developing management plans and in follow-up

copy 2019 All rights reserved 21

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 22: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Quality of Life Questionnaire (Fecal Incontinence)

Q 1 In general would you say your health is

1 [ ] Excellent

2 [ ] Very Good

3 [ ] Good

4 [ ] Fair

5 [ ] Poor

copy 2019 All rights reserved 22

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 23: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Quality of Life Questionnaire (Fecal Incontinence)

Q2 For each of the following items please indicate how

much of the time the issue is a concern for you due to

accidental bowel leakage (ABL)

If it is a concern for you for reasons other than accidental

bowel leakage then check the box under Not Applicable (NA)

copy 2019 All rights reserved 23

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 24: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Quality of Life Questionnaire (Fecal Incontinence)Q2 Due to accidental bowel leakage

Most of the time Some of the time A little of the time None of the time NA

a I am afraid to go out 1 2 3 4 [ ]

b I avoid visiting friends 1 2 3 4 [ ]

c I avoid staying overnight away from home 1 2 3 4 [ ]

d It is difficult for me to get out and do things like

going to a movie or to church

1 2 3 4 [ ]

e I cut down on how much I eat before I go out 1 2 3 4 [ ]

f Whenever I am away from home I try to stay near

a restroom as much as possible

1 2 3 4 [ ]

g It is important to plan my schedule

around my bowel pattern

1 2 3 4 [ ]

h I avoid traveling 1 2 3 4 [ ]

i I worry about not being able to get to the toilet

in time

1 2 3 4 [ ]

j I feel I have no control over my bowels 1 2 3 4 [ ]

k I canrsquot hold my bowel movement long enough to

get to the bathroom

1 2 3 4 [ ]

l I leak stool without even knowing it 1 2 3 4 [ ]

m I try to prevent bowel accidents by staying very

near a bathroom

1 2 3 4 [ ]

copy 2019 All rights reserved 24

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 25: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Quality of Life Questionnaire (Example 2)

1 If you were to spend the rest of your life with your urinary condition just theway it is now how would you feel about that

Delighted Pleased Mostly satisfied Mixed (about equally satisfied amp dissatisfied)

2 Over the past month how much of the time has any urinary problem keptyou from doing the kinds of things you would usually do

None of the time A little of the time Some of the time Most of the time All of the time

copy 2019 All rights reserved 25

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 26: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

A study was done by Coyne KS et al They examined theimpact of each type of UI on health related quality of life(HRQL)

bull 919 participants

bull 825 female

bull 854 Caucasian

bull Average age was 559 years

Coyne KS et al BJU Int 2003

copy 2019 All rights reserved 26

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 27: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

The Impact on Health-Related Quality of Life of Stress Urge

and Mixed Urinary Incontinence

Coyne KS et al BJU Int 2003

CONCLUSION of the study

Compared with stress incontinence respondents with urge

incontinence and mixed incontinence reported not only

significantly greater ratings of urinary urge intensity and

more incontinence episodes but also significantly worse

HRQL

These results are consistent with previous findings which

indicated a greater impact on HRQL for the urge component

of mixed incontinence than for the stress component

copy 2019 All rights reserved 27

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 28: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Overcoming the Stigma

Incontinence can be associated with a great deal of

embarrassment and shame

minus Due to the feeling of helplessness in hospital

minus Due to the lack of control over onersquos bladder in the

hospital or at home

There are a number of ways to help restore their sense of

independence

minus Educate both patients and the public

minus Recommend discreet products and simple exercises

minus Provide personal compassionate support

copy 2019 All rights reserved 28

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 29: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Educate Patients and the Public

Demystify the situation

Explain causes how the bladder should work and how

common it is

Empower the patient with

knowledge

Use a straightforward manner of

discussion

copy 2019 All rights reserved 29

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 30: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Recommend Discreet Products and Simple Exercises

Educate the patient on

the variety of affordable

incontinence products on

the market

When surgery is the best option explain the

current technology that is designed to provide

outstanding cure rates from simple procedures

There can be positive

results without having

surgery

Kegel exercises can be

beneficial for women

especially

copy 2019 All rights reserved 30

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 31: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Provide Personal Compassionate Support

Have empathy

throughout the

treatment process

with the additional

emotional support

Remember to consider

the quality-of-life

effects of urinary

incontinence rather

than just its medical

aspects

Some patients miss

work skip social

events and experience

sexual dysfunction

copy 2019 All rights reserved 31

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 32: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Example of Initial Assessment of Patient with UI

copy 2019 All rights reserved 32

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 33: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Goals for Treatment

Increase bladder

capacity

Improve ability to

suppress bladder

urgency and delay

voiding

Reduce urinary

frequency

Restore confidence in

bladder control

Reduce urinary

incontinence

copy 2019 All rights reserved 33

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 34: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Patient Education

bull Normal bladder function

bull Types of incontinence that relate to the patient

bull Normal pelvic floor musculature

bull Deviations as related to the patientrsquos condition

bull Exercises that may prove effective in re-educating thepatientrsquos pelvic floor

bull Dietary issues

bull Suppression techniques

bull Voiding protocol

bull Daily diary

bull Time allowed for questions

copy 2019 All rights reserved 34

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 35: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Plan

Return for further therapy

utilizing the biofeedback

equipment

Two weeks to practice exercises

and behavior modification

copy 2019 All rights reserved 35

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 36: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Behavior Modification

bull Dietary issues

minus Cut out caffeine completely

minus No fluids after 6pm

minus Drinking eight 8oz cups of plain water

bull Suppression techniques

minus Squeeze before you sneeze (stress)

minus Mind over bladder

minus Stop ndash quick flicks ndash walk to toilet

bull Voiding protocol

minus Every two hours

minus Finish wipe stand then go again (double voiding to empty)

bull Daily diary

minus Record each voiding

minus Record food and fluid

Time allowed for questions

copy 2019 All rights reserved 36

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 37: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Motivation Is Important

Imagine you are going to succeed

Aim to restore muscle strength and tone

Motivation is your most important tool

Devote time each day to exercise

Remember it will take time to regain control

You are the key to your success

Cheryl Aikey CURN 796

copy 2019 All rights reserved 37

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 38: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

Reinforcement and Encouragement

This does not define you You can succeedYou are not alone You can be helped

It does not change your

personalityPoint out any small milestone ie even one pad less per day

Continence Support Group

Others share stories

Share success

stories

copy 2019 All rights reserved 38

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 39: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

In a survey of 36000 Americans with incontinence

Jeter and Wagner reported that 17 described

their incontinence as a major problem with

important social implications15 but the rest

described it as a relatively minor problem with

limited impact on their respective lifestyles

copy 2019 All rights reserved 39

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 40: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

References

1 Assessing the stigma content of urinary incontinence intervention outcome measures Kenneth Southall 12 Joshua R Tuazon 3 Abdul H

Djokhdem 34 Eleanor A van den Heuvel 5 Walter Wittich 67 and Jeffrey W Jutai 34 First Published November 1 2017 Sage Journals

2 The National Association for Continence httpwwwnafcorg]wwwnafcorg Prevalence and incidence of UI

3 Sinclair AJ Ramsay IN The psychosocial impact of urinary incontinence in women The Obstetrician amp Gynecologist 201113143ndash148

4 Whitehead WE Borrud L Goode PS Meikle S Mueller ER Tuteja A Weidner A Weinstein M Ye W Pelvic Floor Disorders Network Fecal

incontinence in US adults epidemiology and risk factors Gastroenterology 2009 Aug 137(2) 512-7 517e 1-2 doi 101053jgastro

200904054 Epub 2009 May 4 httpswwwncbinlmnihgovpubmed19410574

5 Paul Riss Julia Kargl Department of Gynecology amp Obstetrics Landesklinikum Thermenrgion Moedling Sr Maria Restituta Gasse 12 A-2340

Moedling Austria Quality of Life and Urinary Incontinence in Women httpswwwncbinlmnihgovpubmed14616456 Published Online

December 10 2010

6 Coyne KS et al BJU Int 2003 The impact on health-related quality of life of stress urge and mixed urinary incontinence

PMID 14616456 [Indexed for MEDLINE]

copy 2019 All rights reserved 40

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 41: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

References Continued

7 Health-related quality of life (HRQoL) is a multi-dimensional concept that includes domains related to physical mental emotional and social

functioning It goes beyond direct measures of population health life expectancy and causes of death and focuses on the impact health status has

on quality of life httpswwwgooglecomsearchq=hrql

8 Rosacircngela Higa Maria de Moraes Lopes Carlos DrsquoAncona Male Incontinence A Critical Review of the Literature httpwwwscielobr

9 Weill Cornell Medical College James Buchanan Brady Foundation Department of Urology Overcoming the Stigma of Urinary Incontinence How

Doctors Can Empower Patients httpsurologyweillcornellorgovercoming-stigma-urinary-incontinence-how-doctors-can-empower-patients

10 httppatientreportedoutcomescafiles201404Fecal_Incontinence_Quality_of_Life_Paperpdf Todd H Rockwood PhD James M Church MDt

James W Fleshman MD Robert L Kane MD Constantinos Mavrantonis MD~ Alan G Thorson MDI t Steven D Wexner MDq[ Donna Bliss

RN PhD Ann C Loww MD

11 Crocker J Major B Steele C Social stigma In Gilbert DT Fiske ST Lindzey G (eds) The handbook of social psychology 4th ed New York NY

McGraw-Hill 1998 pp 504ndash553

12 Crocker J Garcia JA Chapter stigma and the social basis of the self a synthesis In Levin S van Laar C (eds) Stigma and group inequality social

psychological perspectives Mahwah NJ US Lawrence Erlbaum Associates Publishers 2006 pp 287ndash308

13 Herskovits EJ Mitteness LS Transgressions and sickness in old age J Aging Stud Fal 1994 8 327ndash340

copy 2019 All rights reserved 41

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 42: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

References

14 Elstad EA Taubenberger SP Botelho EM et al Beyond incontinence the stigma of other urinary symptoms J Adv Nurs 2010 66

2460ndash2470

15 Corrigan PW Watson AC The paradox of self-stigma and mental illness Clin Psychol 2002 9 35ndash53

16 Jeter KF Wagner DB Incontinence in the American home A survey of 36500 people J Am Geriatr Soc 199038379ndash83

copy 2019 All rights reserved 42

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 43: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

CE CONTACT HOUR

Healthcare Professionals CE Contact Hour

Provided by

Capital Nursing Education

California BRN Provider 16028

capitalnursingeducationgmailcom

CE contact hour will be issued via email directly from

Capital Nursing Education within 5-7 business days

Please be sure to check your spam folder

copy 2019 All rights reserved 43

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 44: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

JOIN THE SHIELD HEALTHCARE INCONTINENCE COMMUNITY

You can find more useful information

in our online communities at

shieldhealthcarecomincontinence

shieldhealthcarecomcaregivers

shieldhealthcarecomhealth_care_professionals

View past and upcoming webinars at

shieldhealthcarecomwebinars

copy 2019 All rights reserved 44

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 45: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

FREE EDUCATIONAL BOOKLET GUIDES

Patients Family amp Healthcare Professionals

Can Request Guides Online

SHIELDHEALTHCARECOMCOMMUNITY

copy 2019 All rights reserved 45

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 46: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

THIS SEMINAR IS AVAILABLE FOR

PRESENTATION IN YOUR AGENCY

FOR MORE INFORMATION OR TO ASK QUESTIONS

ABOUT THE PRESENTATION CONTACT

Shield HealthCare

marketingshieldhealthcarecom

Capital Nursing Education

capitalnursingeducationgmailcom

copy 2019 All rights reserved 46

QUESTIONS

Page 47: Reducing the Stigma: Social and Emotional Challenges of Living with Incontinence › community › wp-content › uploads › ... · 2019-04-23 · The Impact on Health-Related Quality

QUESTIONS