Power of Science, Culture Power of Science, Culture and Literacy in Generating and Literacy in Generating

Knowledge and Influencing Knowledge and Influencing Behavior: Toward a Better Behavior: Toward a Better Understanding of Cancer Understanding of Cancer

Health DisparitiesHealth Disparities

Cancer Health Disparities Summit 2008: Eliminating Cancer Health Disparities Through Science, Training, and Community

Meade CD, MartinezMeade CD, Martinez--Tyson D, Menard J.Tyson D, Menard J.Moffitt Cancer Center, Tampa FLMoffitt Cancer Center, Tampa FL

Lets consider the intersection of culture and literacy

Culture and Literacy cut across the Continuum of Cancer Care

What is the Problem?What is the Problem?

The ProblemThe Problem:: Responding to communityResponding to community--membersmembers’’everyday health realities and providing meaningful and everyday health realities and providing meaningful and understandable information that understandable information that ““fits those realities.fits those realities.”” Hence,Hence,critical information gaps and training needs exist that take intcritical information gaps and training needs exist that take into o account culture and literacy for reaching diverse populations.account culture and literacy for reaching diverse populations.

Today:Today: Let me share a continuing education training Let me share a continuing education training program that: 1) fills a unique need for enhancing knowledge program that: 1) fills a unique need for enhancing knowledge and skills on promising practices and methodological issues and skills on promising practices and methodological issues on culture and literacy in cancer care.on culture and literacy in cancer care.

Culture gives meaning to health communication.

Health literacy must be understood and addressed in the context of culture and language.

Develop and test approaches to improve health communications that foster healing relationships.

Key Points Key Points from IOM reportfrom IOM report

WhatWhat’’s the Bottom Line?s the Bottom Line?Careful attentionCareful attention needs to be given to needs to be given to processes that enhance understandingprocesses that enhance understandingof information. This requires aof information. This requires areasonable match between the logic, reasonable match between the logic, language, and experience in the information language, and experience in the information with the personwith the person’’s logic, language, and experience. s logic, language, and experience. Simply put,Simply put, people need advice that makes sense people need advice that makes sense to them, is easily understood and fits from their cultural to them, is easily understood and fits from their cultural and situational perspectives, and literacy realities. and situational perspectives, and literacy realities.

Expected Conference Output

Application Application of of

InformationInformation

Supported by Centers for Disease ControlSupported by Centers for Disease Control#5H13DP42974#5H13DP42974

KnowledgeKnowledge NetworkingNetworking

Planning ProcessesLocal CommitteeNational Committee

CCL 2008 attendees(N=270)

3232 Faculty; Faculty; 77 77 ScholarshipsScholarships

Format/TopicsFormat/TopicsPrePre--ConferenceConference

CBPRCBPRNCINCI’’s Body and Souls Body and SoulBaFBaFáá BaFBaFáá Cultural Cultural DiversityDiversityCommunication Communication Across CulturesAcross CulturesQualitative Methods: Qualitative Methods: Beyond Focus GroupsBeyond Focus Groups

PlenaryPlenaryPartnering for Partnering for Better HealthBetter HealthHealth, Culture Health, Culture and Communityand CommunityShaping Practice Shaping Practice and Policyand Policy

Let’s begin in the Community:A Panel Discussion led by CNP

Partners

Marlene Rivera,Marlene Rivera, Jim West, Dao Moua Fang, Bessie Jim West, Dao Moua Fang, Bessie PippensPippens, , Sr. Sara Proctor, Peggy SherrySr. Sara Proctor, Peggy Sherry

Breakout Sessions/TopicsBreakout Sessions/TopicsMethods and MeasuresMethods and Measures

Health Literacy Measures: Perils & PitfallsHealth Literacy Measures: Perils & PitfallsQualitative Approaches to Evaluate Health DisparitiesQualitative Approaches to Evaluate Health DisparitiesGIS Methods for Mapping InequalitiesGIS Methods for Mapping InequalitiesCultural TailoringCultural Tailoring

Innovative Models and ProgramsInnovative Models and ProgramsBarbers Against Prostate CancerBarbers Against Prostate CancerTeaching Tobacco Education (Teaching Tobacco Education (oungoung adults in GED)adults in GED)Web Tools and Technologies for Teaching Health Web Tools and Technologies for Teaching Health Disparities and Forming Cancer CoalitionsDisparities and Forming Cancer Coalitions

Reaching AtReaching At--Risk and Vulnerable GroupsRisk and Vulnerable GroupsHealth Disparities among the ElderlyHealth Disparities among the ElderlyCancer Survivorship Programs among LatinasCancer Survivorship Programs among Latinas

PosterPosterTopics Topics (n=45)(n=45)

Partnering in a Colorectal Cancer Awareness, Education Partnering in a Colorectal Cancer Awareness, Education and Screening Campaign for the Pacific Islander Community and Screening Campaign for the Pacific Islander Community (R Peters(R Peters--Pak, A Pak, A SripipatanaSripipatana, M Wong, J Tran, K Pang, K Pang and S Park , M Wong, J Tran, K Pang, K Pang and S Park Tanjasiri)Tanjasiri)

Utilizing CBPR and Volunteer Community Health Advisors to Utilizing CBPR and Volunteer Community Health Advisors to develop Cancer Prevention Programs in African American develop Cancer Prevention Programs in African American Communities Communities (C. Hardy)(C. Hardy)

Addressing Health Disparities through Collaborations Addressing Health Disparities through Collaborations Between the National Cancer Institute, Cancer Information Between the National Cancer Institute, Cancer Information Service and an NCIService and an NCI--funded Community Network Program funded Community Network Program (M Cabrera, S Noel(M Cabrera, S Noel--Thomas, C Thomas, C SeabornSeaborn, C Meade, M Gonzalez) , C Meade, M Gonzalez)

Health Literacy and Cancer Communication with Alaskan Health Literacy and Cancer Communication with Alaskan Women: Lessons from the Alaskan Health Literacy Women: Lessons from the Alaskan Health Literacy Collaborative Collaborative (KL (KL MurpheyMurphey & RM Johnson)& RM Johnson)

Some activities

Accomplishments to DateAccomplishments to DateCreate biennial CE series to promote Create biennial CE series to promote application of knowledge and promising application of knowledge and promising practices for addressing health disparities.practices for addressing health disparities.Attract diverse interdisciplinary participants. Attract diverse interdisciplinary participants. Enhance partners collaborations and Enhance partners collaborations and networking especially with networking especially with TBCCNTBCCNcommunity partners and organizations that community partners and organizations that fuel cancer disparities agenda such as (e.g., fuel cancer disparities agenda such as (e.g., OMH, CDC, NCI OMH, CDC, NCI Florida Literacy Coalition).Florida Literacy Coalition).

Definition of SuccessDefinition of Success

ShortShort--term:term: Satisfying, acceptable, accessible Satisfying, acceptable, accessible and relevant information that has application to and relevant information that has application to research, clinical, education and outreach.research, clinical, education and outreach.

LongLong--term:term: Development and conduct of Development and conduct of relevant health interventions, outreach relevant health interventions, outreach programs, research programs and educational programs, research programs and educational messages. Plan followmessages. Plan follow--up among sample.up among sample.

Preliminary EvaluationPreliminary EvaluationHow confident are you that you will be able to use the skills and knowledge that was learned at this biennial conference?

80% very confident: 20% somewhat confidentHow useful did you find the information at this meeting?

83% Very useful; 17% somewhat usefulWould you recommend the CCL Conference to others?

100% YES

ChallengesChallengesTraining and educationTraining and education

Meeting the needs of diverse audiences (community Meeting the needs of diverse audiences (community and academic partners)and academic partners)

FinancialFinancialOngoing need for funding sources to support programOngoing need for funding sources to support program

System System Wider dissemination informationWider dissemination informationTransfer of model to other settingsTransfer of model to other settings

Unique Aspects of CCL?Unique Aspects of CCL?Novel forum for interdisciplinary exchange that Novel forum for interdisciplinary exchange that addresses intersection of culture and literacy in addresses intersection of culture and literacy in cancer care (community members are key).cancer care (community members are key).Fits well with current medical anthropological Fits well with current medical anthropological theory theory -- emphasizes importance of placing emphasizes importance of placing illness/health experiences and disease in illness/health experiences and disease in cultural, historical and social contexts.cultural, historical and social contexts.Focuses on CBPR approaches.Focuses on CBPR approaches.Uses multiple educational modes.Uses multiple educational modes.

We welcome your ideas and feedback

Come join us May 20-22, 2010

TBCCN TeamTBCCN TeamCathy D. MeadeCathy D. MeadeClement K. Clement K. GwedeGwede**Dinorah Dinorah MartinezMartinez--TysonTysonSusan Susan McMillanMcMillanMarlene RiveraMarlene RiveraTapan Tapan PadhyaPadhyaSusanVadaparamilSusanVadaparamilJiJi--Hyun LeeHyun LeeJanelleJanelle MenardMenard

Shalewa NoelShalewa Noel--ThomasThomasOutreach team Outreach team membersmembersJuan Luque *Juan Luque *Brian Rivers*Brian Rivers*

*pilot projects*pilot projects

Grant # U01 CA11462701Grant # U01 CA11462701

TBCCN PartnersTBCCN PartnersAdult Education Program of Adult Education Program of Hillsborough Comm. College Hillsborough Comm. College American Cancer Society American Cancer Society AHECAHECCancer Information Service Cancer Information Service Community Health Advocacy Community Health Advocacy Program (CHAP)Program (CHAP)Catholic Charities Mobile Catholic Charities Mobile Medical Services Medical Services Faces of Courage Faces of Courage Facing Our Risk of Cancer Facing Our Risk of Cancer Empowered (FORCE) Empowered (FORCE) FarmworkersFarmworkers Self Help, Inc. Self Help, Inc. Florida Prostate Cancer Florida Prostate Cancer Network Network Haitian American Alliance, Inc.Haitian American Alliance, Inc.

Hillsborough County HD Hillsborough County HD Hillsborough Organization Hillsborough Organization for Peace and Equality for Peace and Equality (HOPE) (HOPE) KomenKomen For the CureFor the CureLuna Luna UnidasUnidas porpor un Nuevo un Nuevo AmanecerAmanecer, Inc (LUNA), Inc (LUNA)Morton Plant Morton Plant MeaseMeaseHealthcare Systems Healthcare Systems Multicultural Resource Multicultural Resource Center Center Pinellas County HDPinellas County HDSuncoastSuncoast Community Community Health CentersHealth CentersTampa Community Health Tampa Community Health CentersCenters