Personal Health Records (PHR)

Personal Health Record (PHR) A Tool For Managing Your Health

Itara BarnesAmerican College of RheumatologyDept. of Quality, Registries &

Health Informatics

Personal Health Records (PHR)

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Personal Health Records (PHR)

What is a PHR?

• The PHR is a tool that you can use to collect, track and share past and current information about your health or the health of someone in your care.

Personal Health Records (PHR)

69% of primary care physicians said they send patient information to specialists upon referral

Recent Study Found:

Personal Health Records (PHR)

69% of primary care physicians said they send patient information to specialists upon referral

Only 35% of specialists said thatthey actually receive that

information.

Recent Study Found:

Personal Health Records (PHR)

Your PHR can make a difference

• The PHR can enable you to partner with your health care providers, or it can be a private reference used to keep your family informed about your health history.

Personal Health Records (PHR)

With your PHR you can:

• Knowledgably discuss your health with providers

• Provide information to new caregivers• Easily access your health information

while traveling• Access your information when doctor’s

office is closed

Personal Health Records (PHR)

With your PHR you can:

• Record your progress toward specific health-related goals

• Refer to physician instructions, prescriptions, allergies, medications, insurance claims

• Track appointments, vaccinations, and other wellness healthcare services

Personal Health Records (PHR)

A PHR is not a Medical Record

• Medical records contain information about your health compiled and maintained by each of your healthcare providers.

• A PHR is information about your health compiled and maintained by you.

• Privacy and confidentiality

Personal Health Records (PHR)

What is found in a PHR?• Diagnosis and problems• Medication and any allerigies• Medical history• Notes about your visit with your doctor• Laboratory results• Imaging reports• Summary of events• Family history (especially if anyone else has lupus)• Information that you feel is important to your health

Personal Health Records (PHR)

Starting your PHR

• Request copies of your health records• Some providers offer a plan for starting a PHR• It is not necessary to gather all information

at once • Try to gather information from as far back

in your treatment as possible

Personal Health Records (PHR)

Choosing a PHR provider

• Health care provider• Employer• Insurer• Tethered PHR system

Personal Health Records (PHR)

Personal Health Records (PHR)

Personal Health Records (PHR)

The website www.myPHR.com maintains a list of PHR vendors available in the marketplace.

Untethered online vendor

Personal Health Records (PHR)

Personal Health Records (PHR)

Personal Health Records (PHR)

Personal Health Records (PHR)

For more information visit:

www.thelupusinitiative.org

Personal Health Records (PHR)

The production of this video was supported by Grant MPCMP061013-04-02 from the Department of Health and Human Services Office of Public Health and Science (DHHS OPHS). Its contents are solely the responsibility of The Lupus Initiative and do not necessarily represent the official views of the DHHS OPHS.

Personal Health Records (PHR)

Your PHR and Lupus• Benefits to patients with lupus– Thorough medical history is particularly useful when

visiting multiple providers/specialists– Can assist you in tracking the causes of flares