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Pediatric Resource Management
Julie DawningPediatric Resource Manager
Brain Injury Association of WashingtonMay 3, 2012
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Today you will learn about…
• The Brain Injury Association of Washington• The Washington TBI Resource Center
– The Washington TBI Resource Line – Statewide Adult and Pediatric Resource
Management– The Pediatric Resource Management Program
• Outreach Activities• Exciting and Upcoming
– Pediatric Brain Injury
Support Groups– The Walk, Run & Roll
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The Brain Injury Association of Washington (BIAWA)
Proud to be 30!• Starting in 1982, with mostly volunteer
based support groups and resource line• Now in 2012, 14 professionals with
expanded statewide in-person services
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Prevention
Support
Education
Advocacy
Washington Traumatic Brain Injury Resource Center
• WA TBI Resource Line:– Statewide Toll Free Line 877-824-1766– 9am-5pm M-F– 115 Calls Per Week– 6,000 Calls Per Year
Offering Support, Information &
Referrals to individuals through
out the state affected by brain
injury or interested in learning
about brain injury4
Washington Traumatic Brain Injury Resource Center
• In-person Resource Management for adults and pediatric clients with brain injury, their families and caregivers
• Covering over 90% of the area where reported TBI occurs
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• Pediatric Resource Management began in 2011, as a pilot project of the Brain Injury Association of Washington in collaboration with Harborview Department of Pediatrics and Seattle Children’s Rehabilitation Services
• Made possible through
donations to the BIAWA and
support from the
Boeing Employee
Community Fund
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Washington Traumatic Brain Injury Resource Center
Examples of PRM Services
• Assistance with planning and teaming– Helping families identify their areas of need
• Next step planning and follow through• Medical follow up, Rehabilitation• Financial, Legal• Educational, Pre-vocational• Adjustment to the disability • Community reintegration• Behavioral, Social relationships
– Helping families identify professionals who can help• Our database has over 1100 resources (and adding) and if we don’t find
what you need there, we search for it
– Helping teams communicate• Attending team meetings• Making sure releases of information are on file as necessary
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Examples of PRM Services
• Assisting with navigating the medical system– Families frequently are discharged without understanding
• What treatment was provided in hospital• When they should next see the doctor• What red flags to watch for• What after-care they should give their child, including rehabilitation
– Non-English speaking families, even if given an interpreter at the hospital, have a harder time getting their questions answered
– Resource Managers may assist
with communication by attending
appointments, collecting records
and making calls
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Examples of PRM Services
• Accessing public assistance and financial aids– Helping families apply for DDD, SSI, food stamps, etc.
• Collecting educational and medical records• Helping non-English speaking families with the process
– Finding temporary financial aid for housing, utilities, etc.– Connecting families to free medical transportation, air/bus– Encouraging families to request charity care, payment plans – Setting up school supports like
free and reduced breakfast and
lunch, School Bell, special activity
funding, etc. – Referring the family to a lawyer
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Examples of PRM Services
• Assistance with reintegration into school – Advocating for physical and cognitive rest for concussions
and mild brain injuries• The brain requires more energy than usual to heal• The brain is less efficient in parsing out energy to the areas that are
being used• Energy previously devoted to cognitive tasks may be now used for
screening senses and planning motor tasks• Therefore, a healing brain tires more easily• Follow doctor’s orders for gradual return to
school and play• The extent of rest required can be
monitored by noting symptoms such as fatigue and headaches
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Examples of PRM Services
– Obtaining a 504 Plan• The 504 Plan is based on provisions in Section 504 of the
Federal Rehabilitation Act (1973)• In a school setting, a 504 Plan assures an individual with a
disability equal opportunity to access and benefit from the educational program
• Contact and meet with the
504 Plan Coordinator prior
to return to school• Create a plan that allows safe access
and educational benefit while honoring
the healing process
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Examples of PRM Services
– Some 504 Plan Ideas• Classroom accommodations
– Shortened day– Shortened assignments– Alternate testing formats– Sunglasses or billed cap– Early passing time– Alternate lunch environment– Preferential seating
• Services of specialists– School nurse– School counselor– OT, PT, SLP– Para-educator– Special Education transportation– Evacuation plan
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Examples of PRM Services
– Obtaining Special Education• Special Education is based on the Federal law: Individuals with
Disabilities Education Improvement Act (IDEA 2004) and the corresponding State laws
• The qualifying disability (TBI) must result in the student needing additional or different services to participate in and benefit from school
• The document that outlines services is an Individual Education Plan (IEP) • The goal of Special Education is to prepare the student for further
education, employment and independent living– 1) Make a referral in writing; include 504 referral– 2) 25 school days to decide to evaluate – 3) Parent signs consent form– 4) 35 school days to evaluate
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Examples of PRM Services
– Assisting with social skills and behavioral issues• Special Education is designed to address all areas of disability• This includes social/emotional/behavioral issues
– School counselors can assist by preparing classmates for the return of a student with a brain injury
– Some schools offer social skills curriculums taught in the classroom and practiced in small group settings
– Other options: lunch buddies, mentors,
alternative roles on sports teams» Church and community groups
– If social/emotional/behavioral issues are
getting in the way of the student’s benefiting
from their education, they may receive
Specially Designed Instruction (SDI) in
this area
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Examples of PRM Services
– Assisting with social skills and behavioral issues• For students with serious social/emotional/behavioral issues:
– Consultation with district behavioral specialists and specialists in brain injury
– Placement at specialty schools designed to support their specific needs
• Services available in the community– Individual and family counseling– Wrap around services– Professional social skills groups– Specialty camps
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Examples of PRM Services
– The importance of a Neuropsychological Evaluation or Discharge Report from a Rehabilitation Department• If an inpatient Rehabilitation Department has instructors,
they may have already assessed the student and created recommendations for return to school
• Make sure these specialists are part of the team• If no recommendations from
specialists in TBI are available,
request that the school district
pay for an Independent
Evaluation by a
neuropsychologist familiar with
brain injury
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To improve PRM services, if you have something to
share…• Personal examples of unmet needs• Names of professionals who helped you• Contact Julie at:• 206-897-6353• [email protected]
Outreach Activities
To increase public awareness and knowledge about brain injury, BIAWA:• Participates in Conferences and
other Community Events• Provides trainings • Website, Facebook,
Twitter, Billboards, Radio
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Exciting and UpcomingPediatric Brain Injury Support Groups• In collaboration with HeadStrong and
Seattle Children’s Hospital• Parent/caregiver group for sharing,
learning and support• Child/youth group for fun social activities
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Exciting and UpcomingThe Walk, Run & Roll• Magnuson Park, July 29, 2012, 8:00 AM• Register on-line or pick up a pamphlet at
the BIAWA booth
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ContactsWashington TBI Resource Center877-824-1766Brain Injury Association of Washington877-982-4292www.braininjurywa.orgwww.facebook.com/braininjurywa Julie Dawning Pediatric Resource [email protected]
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