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In this issue Policy update 3 Decision Assist project 6 News 9 Employment opportuniƟes 12 Member updates 13 NSAP update 14 Sector News 15 EducaƟon 16 Conferences and events 17 Have a story? Email Claire@palliaƟvecare.org.au July 2010 NaƟonal PalliaƟve Care Projects Call for applicaƟons As announced by Federal Health Minister the Hon. Peter DuƩon MP during NaƟonal PalliaƟve Care Week, funding of up to $52 million is being provided by the Australian Government over three years from 201415 to 201617 under the Chronic Disease PrevenƟon and Service Improvement Fund (CDPSIF) for NaƟonal PalliaƟve Care Projects that focus on enhancing the quality of service delivery in the palliaƟve care sector. The objecƟve of the NaƟonal PalliaƟve Care Projects is to deliver naƟonally focused projects that improve palliaƟve care educaƟon and training of the health and aged care workforce, and idenƟfy quality improvements that can assist in improving the delivery of palliaƟve care services across Australia. From the President As hard as it may be to believe, we’re already 6 months into 2014. How the Ɵme has own by! The new nancial year brings with it a number of changes, in parƟcular a raŌ of changes to the aged care system. We’ve outlined some of the key points for you on page 2 of this ebulleƟn so please read on for more informaƟon. We were fortunate to have the Minister for Health, the Hon. Peter DuƩon MP, aƩend our Breakfast at Parliament during NaƟonal PalliaƟve Care Week. As well as ocially launching NaƟonal PalliaƟve Care Week, Minister DuƩon also announced $52 million of funding for the NaƟonal PalliaƟve Care Programs over three years, beginning in 2015. This gure represents an increase of 25% from the last triennium, which is most welcome, however it is not yet decided how these funds will be allocated. As you will read in our lead story, the Department of Health has called for tenders for the delivery of naƟonally focused projects, and organisaƟons already funded under the former NaƟonal PalliaƟve Care Program, like PCA, will also need to reapply for (read more on page 2) funding. This is something we will be working on during the coming weeks. Also coming up in July are a number of meeƟngs of key PCA commiƩees, including the Board and the NaƟonal Policy Advisory CommiƩee. Both of these groups have packed agendas and I look forward to bringing you updates from these meeƟngs in future ediƟons of the ebulleƟn. At the end of the month we will also be rolling out parts of the Decision Assist project. This is an exciƟng project which is focussed on improving care at the end of life for older Australians through a range of iniƟaƟves, including workshops for aged care staand GPs, a specialist palliaƟve care and advance care planning telephone advisory line, mobile technology and projects which create linkages between aged care, specialist palliaƟve care and GPs. See page 6 of this ebulleƟn for more informaƟon. Finally, I’ll leave you with this link to the NPS Medicine Wise website which has great informaƟon about how to beat cold and u, and keep workplaces healthy this winter. Professor Patsy Yates President Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au PCA ebulleƟn June 2014

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Page 1: Pca   palliative care australia- e-bulletin june 2014

In this issue Policy update 3

Decision Assist project 6

News 9

Employment opportuni es 12

Member updates 13

NSAP update 14

Sector News 15

Educa on 16

Conferences and events 17 Have a story? Email Claire@pallia vecare.org.au

July 2010

Na onal Pallia ve Care Projects

Call for applica ons As announced by Federal Health Minister the Hon. Peter Du on MP during Na onal Pallia ve Care Week, funding of up to $52 million is being provided by the Australian Government over three years from 2014‐15 to 2016‐17 under the Chronic Disease Preven on and Service Improvement Fund (CDPSIF) for Na onal Pallia ve Care Projects that focus on enhancing the quality of service delivery in the pallia ve care sector. The objec ve of the Na onal Pallia ve Care Projects is to deliver na onally focused projects that improve pallia ve care educa on and training of the health and aged care workforce, and iden fy quality improvements that can assist in improving the delivery of pallia ve care services across Australia.

From the President As hard as it may be to believe, we’re already 6 months into 2014. How the me has flown by! The new financial year brings with it a number of changes, in par cular a ra of changes to the aged care system. We’ve outlined some of the key points for you on page 2 of this ebulle n so please read on for more informa on.

We were fortunate to have the Minister for Health, the Hon. Peter Du on MP, a end our Breakfast at Parliament during Na onal Pallia ve Care Week. As well as officially launching Na onal Pallia ve Care Week, Minister Du on also announced $52 million of funding for the Na onal Pallia ve Care Programs over three years, beginning in 2015.

This figure represents an increase of 25% from the last triennium, which is most welcome, however it is not yet decided how these funds will be allocated.

As you will read in our lead story, the Department of Health has called for tenders for the delivery of na onally focused projects, and organisa ons already funded under the former Na onal Pallia ve Care Program, like PCA, will also need to reapply for

(read more on page 2)

funding. This is something we will be working on during the coming weeks.

Also coming up in July are a number of mee ngs of key PCA commi ees, including the Board and the Na onal Policy Advisory Commi ee. Both of these groups have packed agendas and I look forward to bringing you updates from these mee ngs in future edi ons of the ebulle n.

At the end of the month we will also be rolling out parts of the Decision Assist project. This is an exci ng project which is focussed on improving care at the end of life for older Australians through a range of ini a ves, including workshops for aged care staff and GPs, a specialist pallia ve care and advance care planning telephone advisory line, mobile technology and projects which create linkages between aged care, specialist pallia ve care and GPs. See page 6 of this ebulle n for more informa on.

Finally, I’ll leave you with this link to the NPS Medicine Wise website which has great informa on about how to beat cold and flu, and keep workplaces healthy this winter. Professor Patsy Yates President

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

PCA e‐bulle n June 2014

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Aged Care With around 3.5 million Australians needing some form of aged care by 2050, fundamental changes are needed now to ensure the aged care system is sustainable and puts control back into the hands of consumers. From July 1, a range of important changes to the aged care system come into effect:

More support for older people to stay independent and in their own home through the introduc on of more home care packages. By 2017, there will be 100,000 packages available na onally.

The dis nc on between high care and low care will be removed. This means that once you’re assessed, you can seek a place at any residen al aged care service that meets your needs. This change makes residen al aged care places simpler to find and more flexible to access.

Greater choice and flexibility in how people pay for accommoda on and services, whether it is a refundable accommoda on deposit, a daily accommoda on payment, or a combina on of both, with 28 days to decide how they would like to pay.

All residen al aged care providers are now required to publish the maximum amount they charge for accommoda on and extra services, giving older people and their families more choice and transparency in what providers charge.

New means tes ng arrangements come into effect to determine a person’s contribu on to the cost of their care and accommoda on, based on both their assets and income. Means tes ng also applies to home care.

There are new annual and life me caps in place on means tested care fees across both home and residen al care which limit the total cost an individual will spend on their care overall. There is a $25,000 annual cap on means tested care fees in residen al care, a $5,000 a year for part pensioners and $10,000 a year for self‐funded re rees cap for home care and a $60,000 life me cap on means tested care fees across both home and residen al care.

The Australian Government has called for tenders for the delivery of na onally focused projects rela ng to one or more of the following ac vi es:

Service provider skill development (frontline worker educa on and training)

Service quality improvement (in acute and community health se ngs)

Research and benchmarking (build and enhance capacity within the pallia ve care sector)

Advance care planning (strengthen understanding and uptake)

Knowledge building and awareness (improve sector knowledge and community awareness)

Improve collabora on and linkages between all Governments’ pallia ve care ac vi es

Collate and distribute pallia ve care informa on across the sector.

Exis ng recipients of funding under the former Na onal Pallia ve Care Program will need to tender for con nued funding beyond December 31, 2014. To register to download the Guidelines and Applica on Forms, go to the Department of Health website. Applica ons close at 2 pm AEST on Wednesday, August 6, 2014.

New financial year brings changes There are some important changes within the health and social services space to be aware of from July 1: Commonwealth Carelink Programme The Commonwealth Carelink Programme will cease on June 30, 2014.

As part of the aged care reforms, the My Aged Care website and na onal contact centre (1800 200 422) are now responsible for the provision of aged care informa on.

Carers ACT will con nue to provide a link to carer support services and assist carers to access short term and emergency respite un l June 30, 2015.

The ACT Commonwealth Respite and Carelink Centre can be contacted by calling 1800 052 222 during business hours and 1800 059 059 for emergency respite support outside standard business hours.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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People are being encouraged to start an early conversa on about what care op ons are available to them or a loved one, because this will help ensure older people get the support and care they need to keep them safe and living independently, or to find the residen al aged care se ng that’s right for them. The most important thing older people and their families can do is learn about the choices available, so they can plan and make the right decision. The My Aged Care gateway has been designed to help people navigate the aged care system and the new changes, including price comparisons. Contact the My Aged Care gateway on 1800 200 422 or visit www.myagedcare.gov.au AML Alliance closure As of June 30, the Australian Medicare Local Alliance closed its doors following the Federal Government’s decision to no longer fund a na onal body for the na on’s 61 Medicare Locals.

AML Alliance Chair, Dr Arn Sprogis said that while the decision was disappoin ng, a new era for primary health care was emerging with the introduc on of Primary Health Networks (PHNs) which will further cement the central role of organised primary health care in the overall health system. “As I look to the future, Medicare Locals and the people working within them are the regionally responsive and locally relevant agencies that are essen al and central to transla ng the Government’s vision for primary health care through the PHNs. The organisa onal and human capital, skills and innova on embedded in exis ng Medicare Locals is a cri cal component for a successful PHN roll out and AML Alliance has played a key role in making this possible. “Medicare Locals have demonstrated they have the people, the capacity and the track record to serve their communi es, PHNs should build on this great asset for the benefit of all,” he said. Some of AML Alliance’s func ons will transfer to the Department of Health. For further informa on regarding Medicare Locals na onally, please contact the Federal Health Department on (02) 6289 1555.

Update from Parliament Nick Champion MP, Member for Wakefield, had been appointed Shadow Parliamentary Secretary for Health. He replaces Amanda Rishworth MP, who has moved to take up the posi ons of Shadow Assistant Minister for Educa on and Shadow Assistant Minister for Higher Educa on.

NSW Senator Ursula Stephens presented a pe on in the Senate on Monday 23 June, seeking support for the construc on of a 10 bed hospice in Wagga Wagga. Click here for more informa on.

Australian Greens health spokesperson and former GP, Dr Richard Di Natale has tabled an exposure dra for na onal ‘dying with dignity’ legisla on in the Senate. The Bill will be considered by a Senate Inquiry. More informa on is available here.

PCA Update Policy

New Posi on Statement Pallia ve Care for Chronic and End‐Stage Kidney Disease. PCA and Kidney Health Australia have released a joint posi on statement: Pallia ve Care for Chronic and End Stage Kidney Disease. Pallia ve care is a valuable part of trea ng and suppor ng people with Chronic Kidney Disease (CKD) and End Stage Kidney Disease (ESKD). Pa ents with CKD and ESKD are amongst the most symptoma c of any chronic disease group, and despite technological and medical improvements, renal replacement therapy has its limita ons.

It is es mated that 5,000 new people present with ESKD annually. To view the statement, click here.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Report from the Na onal Medicines Symposium From PCA Policy Manager, Amanda Bresnan The 2014 Na onal Medicines Symposium (NMS) hosted by NPS MedicineWise was held in Brisbane on 21‐23 May. This year’s theme was 'Medicines in health: Shaping our future'.

The NMS is the pre‐eminent quality use of medicines symposium held in Australia. Held every two years, the scien fic program is designed to provide the latest in the medicines and health environment and is delivered by interna onal and na onal experts. Day 1 of the NMS opened with a challenge from Dr Jane e Randall, Chair, NPS MedicineWise to put consumers at the centre of strategies around medicines in health and the future shape of health care. A video presenta on Consumer Voices: my preferred future presented stories of people who live every day with medicines as a central part of their life. Key points from this presenta on were: Health professionals needing to listen to

consumer knowledge and understanding of their condi on.

Consumers being informed about what they need to be aware of as pa ents, carers, parents etc. when interac ng with the health system.

The difference a func oning Personally Controlled Electronic Health Record (PCEHR) will make to the lives of consumers.

Promo ng the need for regular health check‐ups, including for young people, to promote health awareness.

Having an engaged, commi ed and caring health workforce that is responsive to consumer need.

The day concluded with a panel of speakers examining the topic From here to there: the pathway to a healthy medicines future, where do we start? A key issue that was highlighted by all speakers was the importance of health literacy. Also, having a workable ehealth system and quality data, including consistency in how data is collected. Quality use of medicines was seen by all panellists as being important, par cularly in mes of restraint. It was noted that if all people who required medicines took them according to what was prescribed, then there would be savings.

Day 2 had a focus on sustainability and data, knowledge, ac on. Professor Ian Frazer AC spoke on the topic of Sustainability and innova on – can we

actually afford medicines? He noted that most of the medical research in Australia was funded by government and is driven by priority rather than need. Very li le research funding was directed towards the effec ve use of medicines and this was a concern given the current debate in Australia about the costs of the health system. He highlighted three topics we have a choice to debate in Australia. He noted that the longer people live, the less likely medicines are going to help people and the less likely people are also able to afford them, so we should be having a debate about preven ng illness in the first place.

Ann Johnson, Royal District Nursing Service (RDNS) presented findings related to training developed as part of the Workforce Innova on for Safe and Effec ve (WISE) Medicines Care Project, which was provided to community nurses to support a new and more sustainable model of care for community based medicines management. Nurses were introduced to a new electronic medicines care assessment tool, Medicines Care Pathway. This helped develop a care plan that promoted client enablement with medicines management, and provided guidance to nurses to assess clients’ suitability to be supported at home by community aids, under a registered nurse delega on and supervision model.

Day 3 had a focus on the implementa on experience, and ethics and decision making. Dr Vivian Lin, Director, Health Sector Development, World Health Organiza on (WHO), Philippines, presented on Medicines issues in the path to universal care in Asia Pacific.

Across the Western Pacific most countries have made a policy commitment to universal healthcare (UHC) and high income countries in the region have well established health systems that offer access to comprehensive health services with financial protec on. However, access to essen al medicines is one of the great challenges for most countries in moving towards UHC. Medicines account for a large por on of out‐of‐pocket costs in many countries, and substandard or fraudulent medicines are a problem in some countries.

While many governments implement their commitment to UHC by developing health financing systems in the first instance, access to essen al medicines is not always incorporated into that policy

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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process. For UHC to become a reality in countries in the Asia Pacific there must be a commitment to developing a health technology assessment system that links policies related to health financing and regula on of medicines. These policy measures must also be accompanied by systems to educate prescribers and dispensers as well as consumers on quality use of medicines. Dr Lisa Pont, University of Sydney presented on research Changes in medicine use at the end of life in residen al aged care. The background to this research was to find out about the pa erns of medica on use at the end of life, no ng that the expected goal of medica ons at the end of life changes from disease preven on to symptom management. To examine this, changes in the use of preventa ve and symptoma c medica ons were looked at for a group of elderly residen al aged care residents at the end of life. This was a retrospec ve study of 3876 residents in 26 residen al aged care facili es in the Sydney metropolitan area using pharmacy medica ons. Residents aged 65 years and over who died in the residen al aged care facility between June 2008 and June 2010 were included.

Of the 3,876 residents in the group, 554 (13.4%) died within the study period and were included in the analysis. There were differences in the use of symptoma c and preven ve medicines in the last year of life. Symptoma c medica ons use increased from 4.65 medica ons per resident 1 year before death to 5.18 at death, and preventa ve medica on use decreased from 1.96 to 1.40 medica ons. Symptoma c medica ons were also used for a longer me than preventa ve medica ons. The conclusions were that, as expected, medicines use for symptom management increased at the end of life. While there was a decrease in preven ve medicines, sugges ng there was some considera on of deprescribing in the residen al aged care se ng, the decrease was small and may not be clinically relevant.

For more informa on from the conference, visit the NPS website.

Spotlight on homelessness Vinnies CEO Sleepout PCA CEO Dr Yvonne Luxford joined over 100 business and community leaders for the Vinnies CEO Sleepout in Canberra on June 19. With nothing more than a beanie, three sheets of cardboard and a cup of soup, the CEOs experienced a small dose of what it is like to sleep rough for one night, something that is a reality for the more than 105,000 Australians who find themselves homeless each night of the year.

Reflec ng on the healthcare needs of people who are homeless, Dr Luxford said: “This is a very vulnerable group of people. They face the daily stress of having no money or home, and making decisions about whether or not they eat or look a er their healthcare. There are also o en complex issues related to mental illness or drug and alcohol use, which makes comprehending health informa on and regularly taking medica ons for other needs more difficult.”

Some of the common issues for people who are homeless and require pallia ve care relate to iden fying their needs and finding an adequate place to care for them. Having no fixed address makes it extremely difficult to make and keep appointments and manage health needs.

“We need to do much more to raise awareness of seldom discussed issues of homelessness, and pallia ve care for these vulnerable people is very much part of the debate,” Dr Luxford said.

You can read more on this story on ehospice by clicking here. Canberra par cipants raised over $350,000 on the evening, but there’s s ll an opportunity to support the CEO Sleepout fundraiser up to the end of August 2014.

Above (l‐r) Mar n Fisk, Menslink, Yvonne Luxford PCA, Frank Brassil, Vinnies President and Maryanne Gore, Project Ligh ng

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Decision Assist Project update It has been another busy month for the Decision Assist project teams and we are pleased to report that some key ini a ves are scheduled to be rolled out from mid July. Survey results Preliminary results from the online na onal survey of GPs, aged care providers and specialist pallia ve care services about the state of exis ng pallia ve care and advance care planning services, have underscored the need for a na onal advisory service to assist with end of life care. More than 1,000 responses to the survey from the aged care sector were received and hundreds more from GPs and specialist pallia ve care services. The survey found significant barriers to providing universal access to pallia ve care and advance care planning services around Australia. These included not having a specialist pallia ve care service in the local area, uncertainty about what services are available, insufficient funding and staff educa on in the aged care sector. The survey is part of a na onal environmental scan being conducted by Decision Assist. It showed that many aged care facili es and GPs would access a na onal telephone advisory service if one was available, par cularly if it was 24/7, with the majority seeking advice on issues such as symptom control and medica on advice. The survey found the biggest gaps in service provision among exis ng specialist pallia ve care services included the provision of social workers, followed by bereavement services, allied health workers, medical services, specialist nurses and suppor ng people at home. The na onal environmental scan of the pallia ve care and advance care planning sectors will help map the provision of services currently available and enable Decision Assist services to be er target areas of need.

Advisory telephone services Decision Assist’s Advance Care Planning advisory phone service is ready to commence taking calls, with the line setup and tes ng now complete scheduled . The service became opera onal on Tuesday 1 July 2014. The contact phone number for the service will be 1300 668 908 and specialist advance care planning staff will be available to take calls from 8am un l 8pm, 7 days per week. The phone line will be available for health professionals working with recipients of aged care services, either in a residen al care facility or within the community. This includes GPs, nurses, allied health professionals and personal care a endants. Callers to the line may request informa on about advance care planning processes, legisla on specific to their state or territory; advice about specific client/resident scenarios, facilita ng case conferencing or family mee ngs to discuss advance care planning, informa on about training, links to evidence based websites and resources or any other queries related to advance care planning, advance care direc ves and surrogate decision makers. Meanwhile, development of the pallia ve care phone line is also progressing well, with the Expression of Interest process to operate the phone line closing on 23 May. A total of five applica ons were received from specialist pallia ve care services around Australia. Pallia ve Care Australia will now convene an assessment panel to review the applica ons and select a suitable operator/s for the phone line, with the successful applicants to be no fied by mid July. The 24/7 service is expected to be opera onal by September 2014. This service will also only be available to GPs and aged care prac oners seeking informa on and advice about pallia ve care. This may include loca ng suitable care services and support, symptom management, medica on advice and psychosocial support. Aged Care Educa on and training The educa on and training components of the Decision Assist project are well advanced, with work almost complete on the development of the advance care planning and pallia ve care educa onal materials for residen al aged care facili es and community aged care services.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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The training includes online modules in advance care planning and the pallia ve approach. These online modules need to be completed before par cipants will be eligible to a end two days of interac ve, hands on workshops. These full day workshops will be delivered two months apart and will give par cipants the skills to implement advance care planning and a pallia ve approach within their organisa ons. The content of the educa onal material has been designed to target managers and clinicians. The training will be rolled out na onally, commencing in Victoria/Tasmania and Queensland in September followed by NSW/ ACT, South Australia/Northern Territory and Western Australia. Par cipants will soon be able to register online to par cipate in the training through the Decision Assist website, with access to the online learning modules commencing in early August. More than 350 Decision Assist workshops will be delivered na onally between July 2014 and December 2015. For further informa on contact the Aged Care Training Coordinators Sue Hegarty (03) 9496 6224 Diana Cooper at (03) 9496 6223 or agedcaretraining@aus n.org.au. GP Educa on and training Some 54 GPs and trainee GP members of General Prac ce Registrars Australia recently a ended a webinar on Decision Assist. The aim of the webinar was to improve the pallia ve care capacity of GPs by enabling par cipants to learn to apply a framework of care, based on prognos c trajectories, to iden fy the pallia ve care needs of aged pa ents. Research indicates that such a framework facilitates GPs to deliver the right care, in the right place, at the right me. Par cipants rated the webinar highly, repor ng

that it was relevant to clinical prac ce and improved their confidence in providing pallia ve care, which would ul mately improve outcomes for their pa ents.

Improving linkages The detailed Linkages Framework for Decision Assist will be finalised shortly. The framework aims to assist with crea ng and maintaining networks to provide op mum pallia ve care services, and includes prac cal guidance on seven specific linkage strategies. These include communica on pathways; formalised agreements; role descrip ons; mul disciplinary care; designated linkage workers;

shared con nuing professional development and con nuous improvement.

The Linkages project team has consulted with industry stakeholders to seek comments and feedback on the proposed Linkages Framework and its suppor ng resources. Interest was high and the variety of stakeholders covered all aspects of pallia ve care delivery. All comments and feedback have been considered and the final version of the framework will reflect the construc ve and prac cal nature of the comments.

Once the Framework and resources have been finalised, small grants of up to $80,000 over 18 months, will be available for projects that demonstrate the implementa on of one or more of the linkage strategies iden fied from the evidence review and consulta on ac vi es. Eligibility for the grants will include the collabora on of at least two organisa ons, one of which must be funded to provide Commonwealth home care or residen al aged care services and one of which must provide dedicated pallia ve care services.

For more informa on, contact Annie Parks on 07 3138 6262 or by email [email protected].

Conferences and events Associate Professor Jennifer Tieman will host a Decision Assist workshop at the 2014 ACSA Na onal Conference in Adelaide, from 7‐10 September 2014. The workshop will scope out the project fundamentals, discuss the challenges, the importance of the project, what it means for aged care providers, staff and residents on the ground and how workforce par cipants can get involved. The 30 minute presenta on will be followed by a Q&A session with Associate Professor Tieman. For more informa on about the workshop or the conference, visit the ACSA conference website www.acsaconference.org.au.

In the mean me, Professor Liz Reymond from the Australian and New Zealand Society of Pallia ve Medicine will present a workshop at the GP Conference and Exhibi on in Perth on 26 and 27 July 2014. GPs and GP trainees can register online at www.gpce.com.au.

Similar workshops are planned in Queensland, South Australia, NSW and Victoria over the coming months. For details about registra ons, email Karen Cooper from ANZSPM at [email protected].

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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ehospice

Pipped at the post for pres gious award Unfortunately ehospice narrowly missed out on receiving a Charity Award earlier this month, losing out to well‐deserving winner, UK children's cancer charity CLIC Sargent. ehospice had been short listed in the healthcare and medical research category of the pres gious awards, which recognise and reward organisa ons doing excep onal work in all areas of charitable ac vity. This in itself was a notable achievement for such a young project. We have already submi ed applica ons for a number of other programs, so hopefully it is not too long before our work is recognised with an award! New editor We’re very pleased to introduce Rob Gill as the new editor of ehospice Australia. Rob spent 25 years as a radio and television journalist, writer and editor in North Queensland and Australia’s last fron er, the Northern Territory. His move from Australia’s most tropical city, Darwin, to its most temperate, (and he uses the term loosely) Canberra, he says, has been achieved with minimum duress but maximum wardrobe (!). You can contact Rob with all of your ehospice story leads at: rob@pallia vecare.org.au or 02 6163 8412.

What you’ve missed this month on ehospice: DonateLife resources now available in many languages Australians from culturally and linguis cally diverse backgrounds now have access to a range of resources that will inform decisions about organ and ssue dona on.

Pippa Blackburn big winner in the West The Regional Pallia ve Care Senior Social Worker at South West Pallia ve Care Service in the WA Country Health Service, won the Rural and Remote Prac oner award.

Mee ng the needs of demen a pa ents in aged care Alzheimer’s NSW and Opal Aged Care launch a new educa onal partnership.

A Hospital Bed at Home; intensely personal insights from caregivers Dr Janene Carey’s book is a collec on of personal stories from family caregivers. End of life care in the home; please discuss Carers Australia launched a discussion paper Dying at home: Pa ent preference and the role of unpaid carers on the role of carers in providing end of life care in the home and iden fying the support they need.

Pu ng life into your days Smiling faces, a children’s choir, morning tea and Boo, the resident Labrador… what be er way to launch the Covenant Care day hospice in Canberra?

News Interna onal World Health Assembly decision In case you missed this important news, the World Health Assembly unanimously passed a landmark resolu on on pallia ve care at its mee ng in Geneva in late May. As previously reported in the ebulle n the resolu on, which was passed at the WHA’s Execu ve Board mee ng in January, outlines clear recommenda ons to improve access to and the availability of hospice and pallia ve care. These include ensuring pallia ve care is included in all na onal health policies and budgets, and in the curricula for health professionals. Vitally it also highlights the need for countries to ensure that there is an adequate supply of all essen al pallia ve care medicines for adults and children. Earlier this year, the Worldwide Pallia ve Care Alliance published the first Global Atlas on Pallia ve Care at the End of Life with the World Health Organiza on. This report highlighted that 42% of countries have low or no access to hospice and pallia ve care services and that only 20 countries have pallia ve care well integrated into the health system. Eighty percent of countries globally have low or very restricted access to strong pain medica ons which means that millions of people worldwide are living and dying in pain and distress with no or li le quality care.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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The resolu on is a historic moment for the millions of people worldwide living with and dying from life limi ng condi ons such as cancer, heart disease, HIV and mul ‐drug resistant TB. Dr Yvonne Luxford, CEO of Pallia ve Care Australia was part of the World Hospice and Pallia ve Care Alliance delega on to the World Health Assembly, and described it as a landmark decision unparalleled in its importance. ‘This is a hugely significant event, and is the first me that the World Health Assembly has considered a resolu on on pallia ve care. It confirms that all countries need to take pallia ve care seriously – it is not an op onal extra – and presents huge opportuni es for the advancement of quality care at the end of life for all.’ The full resolu on is available from the WHO website. Read PCA's media release here.

Above: Dr Yvonne Luxford addresses the World Health Assembly mee ng in Geneva

Interna onal Children's Pallia ve Care Network Do you have a story to share about the value of children's pallia ve care? In 2015, the Interna onal Children's Pallia ve Care Network will be celebra ng 10 years of being the only interna onal charity figh ng globally for the rights of children with a life limi ng illness. As part of their planned interna onal campaign, the ICPCN would like to gather together as many stories as possible which tell the story of children needing and receiving pallia ve care and how this has impacted posi vely on their quality of life.

The ICPCN is calling on all children, parents, siblings, family members and professionals who have an interes ng narra ve about the value of children's pallia ve care to get in touch with their stories. For more informa on visit the ICPCN website. Australia New chair for the Na onal E‐Health Transi on Authority Dr Steve Hambleton, immediate past president of the Australian Medical Associa on (AMA) has been appointed the new Chair of NEHTA.

He replaces David Gonski AC who has concluded his role as the Chair a er comple ng six years in office. Mr Gonski has served two consecu ve terms and in accordance with NEHTA’s cons tu on is not eligible for a third term. NEHTA CEO Peter Fleming said the clinical exper se and leadership Dr Hambleton brings to this role will be vital in ensuring that eHealth becomes widely adopted in clinical se ngs across Australia. For more informa on about NEHTA and ehealth ini a ves, visit the NEHTA website. Awards Galore! Queen's Birthday Honours List There were many people recognised for their commitment to pallia ve care in the Queen's Birthday Honours List. Re ring New South Wales Governor Professor Marie Bashir AC, patron of Pallia ve Care New South Wales, assumes the tle of Dame in the Order of Australia (AD), in part for her role in medicine, as an advocate for improved mental health for the young, marginalised and disadvantaged and through the promo on of collabora ve health programs. Brisbane based Professor Jeffrey Dunn received an AO for dis nguished service to medical administra on through his leadership of cancer control organisa ons, and for the promo on of innova ve and integrated cancer care programs. Molly Carlile, General Manager of Integrated Cancer Services at Aus n Health, known as the ‘Death Talker’ for her work in pallia ve care, was awarded an AM for her service to community health and to the performing arts.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Patricia Allen of Maitland received an OAM for her work in the Hunter Valley community, where she founded the Friends of Pallia ve Care Maitland in 1985. The Maitland Mercury carried the story. Cheryl Campbell of Gordonvale near Cairns also received an OAM for service to the community, including her work in pallia ve care. Others to receive OAMs were Sydney based Dr Yvonne McMaster, a long term pallia ve care advocate, for her service to community health, and Dr Natarajan Subbiah of Port Macquarie for service to rural and remote medicine as a general prac oner. NSW Australia’s first adolescent pallia ve care room within an acute treatment hospital was opened on June 26 at John Hunter Children’s Hospital in Newcastle. The new room is the only such facility available for teenagers in regional NSW and is the result of collabora on between the Nicholas Trust and Newcastle Permanent Charitable Founda on and Hunter New England Health. Read more on ehospice. Meanwhile in Sydney… Minister for Health, Jillian Skinner officially opened the Concord Centre for Pallia ve Care. The $9 million, 20‐bed unit features 16 single rooms and two double rooms, some with spectacular views over Yaralla Bay. There are also mee ng rooms, a shared dining area and courtyards to allow loved ones the space to enjoy private barbecue lunches and family gatherings. Take a minute to watch this short video about the centre here. Below: NSW Health Minister, Jillian Skinner (right) with staff specialist Ilona Cunningham at the Concord opening

South Australia Advance Care Direc ve ‐ A clear path to care The Advance Care Direc ves Act 2013 and changes to third party consent come into effect on July 1, 2014. Together these changes pave the way for a person centred approach to healthcare and decision making. The Act provides a clear decision making framework and new protec ons when clinicians find themselves in the difficult posi on of trying to determine what a pa ent in their care might want, at a me when their ability to make decisions is impaired. The Act simplifies future decision making by allowing people to put in place clear legal arrangements for future healthcare, residen al and other personal ma ers in a single Advance Care Direc ve (ACD) form. This form will replace the Enduring Power of Guardianship, Medical Power of A orney and An cipatory Direc on (however any of these exis ng forms will con nue to have legal effect post 1 July 2014). The ACD Form also allows individuals to appoint Subs tute Decision Makers (SDM) and /or to clearly document their wishes with respect to their future health care, living arrangements and personal ma ers. This informa on will make it easier for clinicians to make decisions that are fully informed and considerate of pa ent wishes, values and well being. Major changes also take place to the Consent to Medical Treatment and Pallia ve Care Act, iden fying those who can poten ally provide or refuse consent for health care for someone over 16 who may suffer impaired decision making capacity. There will be a clear legal hierarchy of decision makers when health professionals are seeking consent for healthcare and the pa ent does not have capacity to make their own decision. All decision makers must make a decision they believe the pa ent would have made, that is they must ‘stand in the pa ents’ shoes’. New protec ons come into play for health professionals for complying with an ACD in good faith and without negligence as well as when making decisions for a pa ent if ac ng in good faith and in emergencies if there is no me to contact a SDM or clarify wishes in an ACD. There will not be a requirement to provide treatment which is not considered to be of benefit to the pa ent. Health prac oners can now be more confident and

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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consistent in the process, and both the pa ent and health prac oner are protected. A range of educa on and training materials are available on the SA Health website to assist health prac oners understand the new Advance Care Direc ve legisla on and changes to third party consent. These include fact sheets, Frequently Asked Ques ons, a training video and other relevant resources. To view these please visit the SA Health website.

The Advance Care Direc ve Form and DIY Kit is available to the public from 1 July 2014, either in hard copy from Service SA or electronically from the Advance Care Direc ves website. Queensland Congratula ons… Go to Professor Janet Hardy who has been named as the Queensland recipient of the Royal Australasian College of Physicians 75th Anniversary Award for her pioneering pallia ve care research.

Professor Hardy, who has developed a wide por olio of clinical trials ranging from electroacupuncture to relieve nausea and the effect of steroids on sleep quality, said she was delighted to be recognised with the award because it helps raise the profile of pallia ve care research.

Read more here.

Quick links Healthcare in Australia 2012‐13: Five years of performance is COAG’s final report on the Na onal Healthcare Agreement. It states that overall, Australians enjoy good health and a high quality healthcare system. Areas of concern include obesity and chronic diseases like type 2 diabetes. Australia’s Health 2014 is AIHW’s biennial analysis of the health of Australians and their health system. Launched on June 25, it shows that Australia’s health system is facing sharply rising costs and a growing number of demands.

Media Picks Did you miss Tender? This funny and endearing documentary about the Port Kembla Community Centre and their quest to start a not for profit funeral service aired on ABC1 on June 22. It’s available on ABC iview here.

Barwon Health introduced Dignity Therapy into its Pallia ve Care Program around 18 months ago. Dignity Therapy involves recording structured interviews with pallia ve care pa ents which are then transcribed to create a 'legacy paper' for the pa ent to leave for loved ones.

This ar cle from the Geelong Adver ser tells Shannon Clegg's story ‐ a young mother diagnosed with bladder cancer who wanted to leave a gi for her daughter Isabella (above). Nurses, now more than ever, have a key role to play in providing holis c care for haematology pa ents and improving pallia ve care for relapsed transplant pa ents, writes Haematology and bone marrow transplant nurse Elise Bu on in Hospital and Healthcare Bulle n.

Death and dying are difficult issues to talk about at the best of mes. So what happens when you ask five young people for their opinions in front of a public audience of adults? Natasha Mitchell hosts this lively forum featuring children talking about their ideas on death and dying on ABC Life Ma ers. Listen now by clicking here

Planning for your death. In this ar cle from the West Australian, GP and former president of Pallia ve Care Australia Dr Sco Blackwell, talks about the importance of advance care planning and how balancing pa ent needs with family expecta ons is a delicate ma er for health professionals.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Employment Opportuni es

Ipswich Hospice Care Director of Hospice Services Ipswich ‐ Queensland Pallia ve Care In‐Pa ent Facility and

Bereavement Support Centre Well known, highly respected, independent

charity and service provider.

Purpose of the Role The Director of Hospice Services is responsible

for driving the strategic direc on of the organisa on and overseeing the day to day opera ons and financial management of Ipswich Hospice.

The role coordinates service ac vity and is responsible for risk, financial, human resource management and material resources required for the delivery effec ve care.

In addi on, there are clinical responsibili es including overall leadership of the seven bed in‐pa ent sec on and bereavement support service.

Ensuring financial sustainability of the organisa on will include aspects of business development, fundraising, events and grant management.

Team Leaders report to Director of Hospice. The Director of Hospice reports to the

Management Commi ee. The organisa on Ipswich Hospice is a non‐profit, community

owned and run facility which provides care for the terminally ill, their families and friends, and those members of the community who are bereaved.

The Hospice Team includes 50 staff, 200 volunteers, including a Management Commi ee.

Four year accredita on through ACHS un l 2018.

Private Hospital Licence and contract with DVA.

Recruitment and Selec on: Registered with the Australian Health

Prac oners Regulatory Unit – Registered Nurse.

Proven experience in senior management posi ons.

Sound understanding of NSQHS Standards and accredita on.

Extensive Human Resource, Risk, Quality and Clinical Governance Management.

Relevant Post Graduate Qualifica ons e.g. Pallia ve Care, Management, Work Health and Safety or Training and Assessment.

Salary Nego able. This posi on offers a unique opportunity to lead an outstanding service to the Ipswich Community. You will be well supported by both the Management Commi ee and dedicated, loyal staff and volunteers. Applica on is by submission of: Current resume Covering le er addressing the Key

Performance Areas of the Posi on Descrip on. (Le er should not exceed two pages). Posi on Descrip on and further informa on

can be found on the website . Submit to: [email protected] To obtain further informa on, in strictest confidence, please Contact Ros via email or phone 07 3812 0063.

Western District Health Service Clinical Consultant – Pallia ve Care Permanent Part Time ‐ 64hrs/fortnight An opportunity exists for a Clinical Consultant to work in pallia ve care.

The successful candidate will be a registered nurse with pallia ve care qualifica ons and/or considerable experience in this field.

Salary and condi ons for this employment opportunity is in accordance with the relevant awards. A current driver’s licence and a sa sfactory police check are required. To view the posi on descrip on or to apply for any role at WDHS, please visit our career’s page to submit your applica on.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Pallia ve Care WA State Conference—Friday 31 October We are pleased to advise that the date for abstract submissions for the Pallia ve Care WA Conference, “Transla ng evidence into prac ce: Connec ng the links” has been extended to Monday July 28, 2014. We par cularly welcome abstracts that link with the following conference subthemes: Pallia ve care for people in aged care Demen a Mee ng the needs of Aboriginal and Torres

Strait Islander people Mee ng the needs of people from Culturally

and Linguis cally Diverse Communi es Advance Care Planning Building capacity in the pallia ve care sector Increasing community awareness of pallia ve

care and death and dying The following presenta on formats are available: concurrent presenta ons of 20 minutes each concurrent workshops (45 minutes each) poster presenta ons Four keynote speakers are now confirmed ‐ Associate Professor Bill Silvester (Respec ng

Pa ent Choices, Aus n Health) Dr Geoff Mitchell (Professor of General Prac ce

and Pallia ve Care at the University of Queensland)

Professor Andrew Robinson (Co‐Director of the Wicking Demen a Research and Educa on Centre, University of Tasmania)

Associate Professor Dawn Bessarab, School of Health Sciences, Cur n University.

You can submit your abstract online and find out more informa on on the new conference website.

Are you registered for these other pallia ve care conferences?

We’re just a few weeks away from Pallia ve Care Victoria’s conference, July 31 —August 1. Visit the PCV website to register.

Pallia ve Care NSW is celebra ng 30 years in 2014 and with this historical reference point in mind, its conference program will focus on what we have learned about pallia ve care rom the past 3 decades, what’s bring achieved in the present and what does the future hold. Early bird registra on opens in August. Visit the conference website for further details.

Pallia ve Care Queensland and the Australian Pain Management Associa on are joining forces to bring you the 50 Shades of Pain conference December 3‐5 at the Southbank Ins tute of Technology, Brisbane. Visit the conference website for program informa on and to register.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

PCA member organisa on updates Palliative Care Australia’s membership comprises the eight state and territory palliative care organisations and the Australian and New Zealand Society of Palliative Medicine. These organisations created and share the vision, mission and aims of Palliative Care Australia and operate through a federated governance structure.

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Na onal Standards Assessment Program

Support for Carers Project This project has now come to an end, with the final Learning Session workshops held in March. The Services involved presented a synopsis of their project including the scope, key results, barriers, sustainability and how to move forward. Par cipa ng Services had spent the past year working towards the project objec ve: 'To improve the assessment, planning and delivery of support to meet the needs of carers of pallia ve care pa ents using a collabora ve improvement methodology'. Some of the strategies introduced by the Services include: Changing the process of iden fying the carer;

the next of kin is not necessarily the carer. Crea ng a standardised defini on within the

Service of what a carer is to assist the discussions.

Ensuring that paperwork was being completed to capture informa on about the carer. This included making changes to the paperwork where required to include the carer.

Crea ng prompts to iden fy any other significant decision makers.

Reviewing how the carers received informa on about their role.

Provision of resources. Either changing the way the current

documenta on of the carer assessment was completed or introducing a new validated tool, the Carer Support Needs Assessment tool (CSNAT) ,to support the assessment process.

Changing the ming of Allied Health involvement to be earlier in the admission process and commencing a Carer Support Plan on admission.

Improving collabora on with carer agencies. Placement of informa on for carer in home

files. Thirty‐five specialist pallia ve care services from across Australia completed the project, with representa on from each state and territory.

Sector News

Dying to Know Day – 8th August Dying to Know Day is an annual day of ac on dedicated to bringing to life conversa ons and community ac ons around death, dying and bereavement. The aims are to encourage people to develop their death literacy, make plans such as a will and advance care plan and share these wishes with their families, get informed about end of life and death care op ons such as dying at home, home and community led funerals and natural burial, and be be er equipped to support family and friends experiencing death, dying and bereavement. The Groundswell Project website has a list of ideas about how you can get involved in the day, as well as promo onal materials you can download. Visit www.dyingtoknowday.org. Cancer voices NSW Consumers making a difference to cancer research Did you know that people affected by cancer, ‘consumers,’ can now play an essen al part in the research process?

By sharing their experiences and insights directly with researchers, research is conducted in partnership with the people it is intended to benefit.

Cancer Council NSW, in collabora on with Cancer Voices NSW, is offering a free one‐day training course in Sydney on September 5 and 6 that will give par cipants the skills and knowledge needed to work directly with researchers.

Cancer Council NSW provides free transport and accommoda on for those coming from out of town, and within NSW.

Applica ons are open now, so please fill out an applica on form on the CCNSW website or contact Sam Thorp on 9334 1445 or [email protected] for details.

For more informa on about Cancer Voices’ Consumer Involvement in Research Program, visit www.cancervoices.org.au.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Na onal Pain Week: 21‐27 July Pain is Ageless This year's Na onal Pain Week will draw a en on to the indiscriminate nature of pain, with the theme: 'Pain is Ageless'. Dr Coralie Wales, President of Chronic Pain Australia, which hosts the event, says the theme is fundamental to improving understanding of chronic pain in the community. "Chronic pain cuts across disease states and is a fundamental human experience that is o en not spoken about or given the legi macy that allows people to seek help for their pain. There may be differences in the pain experience at different mes in our lives ‐ and different ways that people choose to cope with their pain," said Dr Wales. Watch out for the Big Red London Bus which will be cruising around Sydney – the Chronic Pain Australia crew will be on hand with free stuff, fact sheets and more. Jump on the bus and join us for the 'Rally for Pain' in Mar n Place, Sydney, on Thursday, July 24 . The event will include a Q&A panel comprising a number of experts on chronic pain, as well as Petrea King, founder of Quest for Life Founda on. On the NPW14 website you can find more informa on about Pain week, associated events and download a media kit and promo onal materials. Lung Founda on Quality of Life Checklist Lung Founda on Australia has developed an interac ve resource to assist people in determining if they currently have unmet needs in their healthcare. Launched as part of Na onal Pallia ve Care Week, the Quality of Life checklist has been developed to facilitate early suppor ve and pallia ve care discussion between doctors, pa ents, carers and their family. It also aims to reduce the s gma by describing what suppor ve and pallia ve care is, and what services provide this type of care. For more informa on or to complete the Quality of Life checklist visit the Lung Founda on website.

CareSearch New end of life resources Family carers support people through one the most difficult periods in their lives. They assist them with their physical, emo onal, social, cultural and spiritual needs. In turn, these carers need support throughout their loved one’s illness and during bereavement. To help carers iden fy and find that support, CareSearch is producing a set of informa on sheets that focus on carers and families. This month’s factsheet explores the ques on ‘Are you a carer?’. It helps carers to iden fy their situa on and learn where to find informa on and support. Each factsheet can be printed and given to family members, posted on no ceboards, included in pa ent resources, or emailed to other organisa ons or individuals. All of the upcoming carer informa on sheets are wri en in friendly, easy to understand language and provide straigh orward informa on about how to find support for their unique situa on. Each sheet will be available at www.caresearch.com.au and will be promoted through our newsle ers. We hope you pass them on to the family carers that you encounter day to day. CareSearch also recognises the wide role that nurses play in providing pallia ve care and has completely revised its Nurses Hub. Every page has been reviewed, updated, and rewri en with the guidance and support of an advisory group. Several pages of en rely new content have been added to the hub. Some of the topics that these pages cover include: Clinical assessment Clinical decision‐making Areas of prac ce – Hospital Nurse Prac oners Demys fying EBM, QI and research Don’t forget to visit the new Nurses Hub pages and rest assured that nurses who provide pallia ve care can freely access updated evidence based clinical informa on at any me of day or night.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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Educa on Queensland University of Technology Pallia ve Care Nursing in Various Contexts The QUT Con nuing Professional Educa on offering, Pallia ve Care Nursing in Various Contexts, will start on Monday, July 28, finishing Friday, November 14, 2014.

This is a course for generalist registered nurses wishing to learn more about pallia ve care. It has been developed by staff from Queensland Health’s Centre for Pallia ve Care Research and Educa on. The cost is $1,250 (GST included). For more informa on about course content or assessment, contact Dr Yvonne Osborne. For all registra on or payment queries, contact the Office of Con nuing Professional Educa on.s close at 5pm on Monday 14 July 2014. Australian Catholic University Study pallia ve care fully online The Pallia ve Care Specialty in the Graduate Cer ficate in Clinical Nursing is a four unit course that can be undertaken over one or two years. Two units are focused on clinical nursing aspects of pallia ve care, and the other two units have a strong anatomy, physiology, pathophysiology and pharmacology focus. Each unit aims to prepare students to provide holis c care in their chosen specialty and for more experienced students, to further extend their knowledge and understanding of the special clinical needs of pallia ve pa ents in their care. This includes exploring topics such as loss and grief, caring for people in pain, symptom management, end of life care, ethical issues and service delivery, pain medica on device management and complex therapeu cs in the specialty. This fully online specialty is available to students not employed in one of ACU’s partner health facili es, however students must be working in pallia ve care 0.5 EFT for a minimum of 5 days per fortnight or be able to nego ate supernumerary (temporary contracted) clinical prac ce in their chosen specialty. Students will also be required to have some clinical competencies signed off by a Senior Manager/Educator in the specialty prac ce unit for this course. Applica ons for mid‐year enrolment close on July 13, 2014. For further informa on contact: [email protected]

Clinical Guiding Principles for Sick Day Management of Adults with Type 1 and Type 2 Diabetes The Australian Diabetes Educators Associa on has released the Clinical Guiding Principles for Sick Day Management of Adults with Type 1 and Type 2 Diabetes. These guidelines will promote best prac ce in diabetes educa on for all health professionals including Endocrinologists, General Prac oners, Primary Health Care Nurses, diabetes educators, Die ans, Pharmacists and Exercise Physiologists. The clinical guiding principles will: Improve the lives of adults with type 1 and type

2 diabetes when they experience an intercurrent illness

Ar culate the roles and responsibili es of health care professionals, people with diabetes and their carers

Reduce the risk of acute deteriora on of glucose control resul ng from ineffec ve management of illness.

The publica on is now available on the ADEA website. 2014 World Ins tute of Pain Congress Free access to ar cles The World Ins tute of Pain (WIP) and Wiley have jointly composed a catalogue of ar cles from the journal, Pain Prac ce, related to the 2014 WIP Congress topics and speakers. We welcome you to take advantage of this ar cle library, arranged by topic, to broaden your knowledge on these important issues in the field. These ar cles will remain available to non‐members through the end of July. Members of WIP will, of course, enjoy con nuous access to these ar cles; If you are not a member, we invite you to consider joining our network of pain physicians. Pain Prac ce, the official journal of the World Ins tute of Pain, publishes interna onal mul disciplinary ar cles on pain and analgesia that provide its readership with up to date research, evalua on methods, and techniques for pain management.

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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7th Na onal MND Conference Together! Par cipa on, Partnerships, Progress Gold Coast, Queensland 8 September 2014 W: h p://www.mndaust.asn.au/Get‐informed/For‐

health‐professionals‐and‐service‐providers/Na onal‐

MND‐Conference‐2014.aspx

20th Interna onal Congress on Pallia ve Care Montréal, Canada 9 – 12 September 2014 E: [email protected] W:www.pal2014.com

ACORD 2014 Coolum, Queensland September 14‐20 2014 W: h p://www.acord.org.au/downloads/ACORD%202014%20FLYER.pdf

Diversity Therapy Australia (DTA) Na onal Conference Grand Chifley, Adelaide September 18‐20 2014 For sponsorship details click here For trade exhibitor informa on click here 2014 Na onal Diversional Therapy Australia Conference Adelaide, South Australia 19‐20 September 2014 W: h p://www.diversionaltherapy.org.au/Events/tabid/59/Default.aspx

Centre for Ageing and Pastoral Studies Conference University House, ANU, Canberra 30 September—2 October 2014 For more informa on click here T: (02) 6272 6205 E: [email protected]

World Hospice and Pallia ve Care Day Who cares? We do! 11 October 2014 W: www.worldday.org

Conferences and events

Cancer Nurses Society of Australia 17th Winter Congress Melbourne, Victoria July 24‐26 2014 W: h p://www.cnsawintercongress.com.au/ 20th Interna onal AIDS Conference Melbourne Conven on and Exhibi on Centre 20—25 July 2014 W: h p://www.aids2014.org/

Pallia ve Care Victoria Conference Bayview Eden Hotel, Melbourne 31 July—1 August 2014 W: h p://www.pallcarevic.asn.au/

6th Interna onal Conference on Pa ent and Family Centred Care Vancouver, Canada 6‐8 August 2014 W: h p://www.cvent.com/events/the‐6th‐interna onal‐conference‐on‐pa ent‐and‐family‐centered‐care/event‐summary‐31f718a720e546c7a48870ac806d46f0.aspx?RefID=IPFCC

Centre for Pallia ve Care 2nd Australian Pallia ve Care Research Colloquium Melbourne 7– 8 August 2014 w: h p://centreforpallcare.org/index.php/events/australian_pallia ve_care_research_colloquium/ Registra on opens 14 March 2014.

Interna onal Conference on End of Life: Law, Ethics, Policy and Prac ce 2014 Brisbane 13‐15 August 2014 w: h p://icelconference2014.com/

The Australian and New Zealand Society of Pallia ve Medicine Surfers Paradise Marrio Resort and Spa, Gold Coast 2 – 5 September 2014 W: www.anzspm.org.au/anzspm2014

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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12th Allied Professionals Forum The Forum is focused on prac ce and experience for health professionals in the care and support of people living with ALS/MND. Brussels, Belgium 4 December 2014 W: h p://www.alsmndalliance.org/alsmndmee ngs/

25th Interna onal Symposium on ALS/MND Brussels, Belgium 5‐7 December 2014 W: h p://www.mndassocia on.org/research/

Interna onal+Symposium

2015… 22nd Interna onal Conference of the Indian Associa on of Pallia ve Care—IAPCON 2015 Hyderabad, India 13‐15February 2015 W: h p://iapcon2015hyd.com/# 2015 Australian Pain Society 35th Annual Scien fic Mee ng ‐ Managing Pain: from Mechanism to Policy Brisbane Conven on Centre, QLD 15 ‐ 18 March 2015 W: h p://www.dcconferences.com.au/aps2015 2015 Asia Pacific Hospice Conference Taipei, Taiwan 30 April ‐ 3 May 2015 W: h p://www.2015aphc.org/ 14th World Congress of the European Associa on for Pallia ve Care—EAPC 2015 Copenhagen, Denmark 8‐10 May 2015 W: h p://www.eapc‐2015.org/ 10th Interna onal Symposium on Pediatric Pain Sea le, Washington USA 31 May – 4 June 2015 W: h p://www.ispp2015.com/

Send your conference and events lis ngs to pcainc@pallia vecare.org.au

LASA Na onal Congress Adelaide Conven on Centre 20‐22 October 2014 Australia’s premier networking event in age services Program and Registra on Live from 2 June 2014 W: www.lasacongress.asn.au Sponsorship and Exhibi on packages available. Contact LASA Events on 02 6230 1676 or [email protected]

Pallia ve Care NSW Conference Pallia ve and End of Life care: Making History 22—24 October 2014 W: h p://pallia vecarensw.org.au/site/

21st Hospice New Zealand Pallia ve Care Conference Reaching Out, Community Engagement 29‐31 October 2014 Wellington, New Zealand The call for abstracts is now open – closing 23 May. W: h p://www.hospice.org.nz/conference‐2014/conference‐2014 Pallia ve Care WA Conference Technology Park Func on Centre, Bentley 31 October 2014 W: h p://pallia vecarewa.asn.au/site/

Abstract submissions close on July 27.

World Congress of Gerontology and Geriatrics 3rd Interna onal Conference on Healthy Ageing in a Changing World 2014 17 – 19 November 2014 J. N. Tata Auditorium, Indian Ins tute of Science, Bengaluru, Karnataka W: www.geriatricsconference.com

Pallia ve Care Queensland Conference Fi y Shades of Pain 3—5 December 2014 W: h p://www.pallia vecareqld.org.au/ World Cancer Congress Melbourne Conven on and Exhibi on Centre 3—6 December 2014 W: h p://www.worldcancercongress.org/

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au

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NSW Pallia ve Care New South Wales PO Box 487 Strawberry Hills NSW 2012

t: +61 2 9206 2094 / 0403 669 491 f: +61 2 9281 0157 w: www.pallia vecarensw.org.au e: info@pallia vecarensw.org.au

QLD Pallia ve Care Queensland PO Box 13167 George Street QLD 4003

t: +61 7 3256 2486 / 1800 660 055 f: +61 7 3256 2671 w: www.pallia vecareqld.org.au e: enquiries@pallia vecareqld.org.au

VIC Pallia ve Care Victoria Suite 3C, Level 2, 182 Victoria Parade East Melbourne VIC 3002

t: +61 3 9662 9644 f: +61 3 9662 9722 w: www.pallcarevic.asn.au e: [email protected]

WA Pallia ve Care WA 15 Bedbrook Place Shenton Park WA 6008

t: 1300 551 704 f: 1300 551 704 w: www.pallia vecarewa.asn.au e: pcwainc@pallia vecareswa.asn.au

SA Pallia ve Care Council South Australia PO Box 435 Fullarton SA 5063

t: +61 8 8271 1643 f: +61 8 8271 7494 w: www.pallcare.asn.au e: [email protected]

TAS Tasmanian Associa on for Hospice and Pallia ve Care PO Box 834 Kingston TAS 7050

t: +61 3 6285 2514 f: +61 3 6239 6030 w: www.tas.pallia vecare.org.au e: [email protected]

ACT Pallia ve Care ACT PO Box 31 Campbell ACT 2612

t: +61 2 6273 9606 f: +61 2 6273 9590 w: www.pallcareact.org.au e: [email protected]

NT Pallia ve Care Northern Territory PO Box 4489 Alice Springs NT 0811

t: +61 8 8951 6762 w: www.nt.pallia vecare.org.au e: pcnt@pallia vecare.org.au

ANZSPM Australian and New Zealand Society of Pallia ve Medicine PO Box 7001 Watson ACT 2602

t: 0458 203 229 f: +61 3 8677 7619 w: www.anzspm.org.au e: execu [email protected]

Acknowledgement—Pallia ve Care Australia is a na onal pallia ve care project funded by the Australian Government Department of Health

Palliative Care Australia Inc. Level 1 | 21 Napier Close | Deakin ACT 2600 PO Box 24 | Deakin West | ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected]

Connect with Palliative Care Australia

Palliative Care Australia Inc. PO Box 24 Deakin West ACT 2600 t: +61 2 6232 4433 f: +61 2 6232 4434 e: [email protected] w: www.palliativecare.org.au