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Patient and Public Involvement in Programme Development and Research at Maggie’s
Mandy McMahanPhD (Clinical Psychology)Maggie’s Dundee & [email protected]
Maggie’s: A foundation of patient & public involvement• Maggie Keswick Jencks & Charles Jencks
“Above all, what matters is
not to lose the joy of living in
the fear of dying”
www.maggiescentres.org
Maggie’s Programme of Support
Remains Well
Remission
Long Term Effects
DiagnosisPrimary
TreatmentRecurrence
Active and Advanced Disease
2nd and Subsequent Treatments
End of Life
Maggie's Support Programme
Quality assurance & Research
Programme development and evaluation
Getting Started
3-hour group workshop for patients & carers before or at beginning stages of treatment
Education & discussion about managing side effects, keeping physically active, nutrition and well-being
Where Now?
6-week post treatment programme
Personalised exercise & nutrition, stress management & well-being
Patient & Carer perceptions of barriers to participating in Maggie’s services
Programme Development
Getting Started & Where Now?
Partnership
Wellness Community & Lance Armstrong Foundation
Pilot
Frankly Speaking & Cancer Transitions
Evaluation & Feedback
Standard measures + participant feedback and comments
Integration & Development
Research: Identifying barriers to services & participation
Research: Identifying barriers to services & participation
Research: Identifying barriers
Research: Identifying barriers to services & participation
Research: Identifying barriers
Research: Identifying barriers