Participants

Rebecca Allen, PhD, ABPP

Professor, University of Alabama

Representing: American Psychological Association

Claire Ankuda, MD, MPH

Clinical Lecturer, Family Medicine, University of Michigan

Representing: Council of Academic Family Medicine

Naomi Aronoson, PhD

Executive Director, Technology Evaluation Center

Blue Cross and Blue Shield Association

Rebecca Aslakson, MD, PhD

Associate Professor, Anesthesiology and Critical Care Medicine and

Oncology, Johns Hopkins

Representing: American Society of Anesthesiologists

Tony Back, MD

Professor, Department of Medicine, Division of Oncology

University of Washington

Susan Beidler, PhD, MBE, CRNP, FAANP

Chair, Department of Nursing, Briar Cliff University

Representing: American Association of Nurse Practitioners

Tom Berger, PhD

Executive Director

Veterans Health Council

Amy Berman, RN

Senior Program Officer

John A. Hartford Foundation

Marie Bernard, MD

Deputy Director

National Institute on Aging

Rebecca Borgert, PharmD, BCOP

Clinical Solutions Pharmacist, Clinical Services

Magellan Rx Management

Representing: Academy of Managed Care Pharmacy

Kent Bressler

Patient Liaison, Kidney Advocacy Committee

National Kidney Foundation

Keysha Brooks-Coley

Director, Federal Relations, ACS Cancer Action Network

American Cancer Society

John Carney, MEd

President and Chief Executive Officer, Center for Practical Bioethics

Representing: Pain Action Alliance to Implement a National Strategy

Cleanne Cass, DO, FAAFP,FAAHPM

Director of Community Care and Education, Hospice of Dayton

Representing: American Osteopathic Association

James Cleary, MD

Associate Professor of Medicine, School of Medicine and Public Health

University of Wisconsin

Lewis Cohen, MD

Director of Renal Palliative Care

BayState Health

Meryl Comer

President, Geoffrey Beene Foundation Alzheimer's Initiative

Representing: USAgainstAlzheimer’s

Terrie Cowley

Representing: Chronic Pain Research Alliance

Mark Curtis, PMHCNS-BC, ACHPN, LMT

Representing: American Psychiatric Nurses Association

Patricia Czapp, MD, FAAFP

Chair, Clinical Integration, Anne Arundel Medical Center

Representing: American Academy of Family Physicians

Timothy Daaleman, DO, MPH

Professor, UNC Family Medicine

Representing: University of North Carolina Chapel Hill

Mark Dann

Federal Affairs Director, Compassion and Choices

Representing: Partnership to Improve Patient Care

Participants

Prioritizing Comparative

Effectiveness Research

Questions for Patient-

Centered Palliative Care

Delivery for Adult Patients

with Advanced Illnesses

and Their Caregivers: A

Stakeholder Workshop

March 7, 2016

DoubleTree Crystal City

300 Army Navy Drive

Arlington, VA

Adolfo Diaz

Director, Patient Services

National Parkinson Foundation

Rachel Dolhun, MD

Medical Communications

Michael J. Fox Foundation for Parkinson's Research

Sydney Dy, MD

Associate Professor, Health Policy and Management

Johns Hopkins Medical Institute

Christin Engelhardt

Director of Policy and Advocacy

National Coalition for Cancer Survivorship

Mary Ersek, PhD, RN, FAAN, FPCN

Director, VA National PROMISE Center

Veterans Health Administration

Sam Fazio, PhD

Director of Special Projects, Medical and Scientific Relations

Alzheimer's Association

Betty Ferrell, PhD

Director and Professor, Division of Nursing Research and Education,

Department of Population Sciences

City of Hope

Wendy Fox-Grage, MS, MPA

Senior Strategic Policy Advisor, AARP Public Policy Institute

AARP

Shelley Fuld Nasso

Chief Executive Officer

National Coalition for Cancer Survivorship

Charla Gautierre

Representing: American Chronic Pain Association

Kristin Kahle Wrobleski, PhD

Director, Global Patient Outcomes & Real World Evidence

Eli Lilly & Co.

Rita-Marie Geary

Representing: American Chronic Pain Association

Mark Gibbons

Director of Programs and Operations

Caregiver Action Network

Barbara Given, PhD

University Distinguished Professor

Michigan State University

Lee Goldberg

Project Director

Pew Charitable Trusts

Marian Grant, DNP, RN, CRNP

Director, Policy and Professional Engagement

Coalition to Transform Advanced Care

Scott Halpern, MD, PhD

Associate Professor of Medicine

University of Pennsylvania

Lesa-kaye Holtham

Government Grants Director

National Kidney Foundation

Gail Hunt

President and Chief Executive Officer

National Alliance for Caregiving

Christina Irving, LCSW

Lead Family Consultant

Family Caregiver Alliance

Renée Juhl, PharmD

Director, Global Health Economics and Outcomes Research

Mylan

Beth Kallmyer, MSW

Vice President, Constituent Services

Alzheimer's Association

Kathleen Kelly, MPA

Executive Director

Family Caregiver Alliance

Erin Kent, PhD

Epidemiologist & Program Director

National Cancer Institute

Benzi Kluger, MD

Department of Neurology

University of Colorado Denver

Katie Kopil, PhD

Senior Associate Director, Research Programs

Michael J. Fox Foundation for Parkinson's Research

Barbara Kornblau, JD

Representing: National Fibromyalgia & Chronic Pain Association

Maribeth Kowalski

Director, Medical Science Liaison

Purdue Pharma

Georganne Kuberski, RN, MSN

Health Insurance Specialist

Center for Medicare and Medicaid Innovation

Jean Kutner, MD, MSPH

Head, Division of General Internal Medicine

University of Colorado Denver

Eldrin Lewis, MD, MPH

Associate Professor of Medicine, Brigham & Women’s Hospital

Representing: American Heart Association

Cindy Leyland, EMBA

Director of Program Operations, Center for Practical Bioethics

Representing: Pain Action Alliance to Implement a National Strategy

Karl Lorenz, MD

Professor of Medicine, Palo Alto Veterans Affairs Medical

Stanford University

Teri Lowe

Leader Against Pain

Representing: National Fibromyalgia & Chronic Pain Association

Joanne Lynn, MD

Director, Center for Elder Care and Advanced Illness

Altarum Institute

Dan Matlock, MD, MPH

Associate Professor of Medicine

University of Colorado Denver

Marianne Matzo, PhD, APRN, GNP-BC, FPCN, FAAN

Director of Research

Hospice and Palliative Nurses Association

Bridget McCrate Protus, RPh, PharmD, MLIS, CGP, CDP

Director of Drug Information HospiScript, an Optum Company

Representing: American Pharmacists Association

Perry Meadows, MD, JD, MBA, FAAFP

Medical Director, Government Programs, Geisinger Health Plan

Representing: Alliance of Community Health Plans

Diane Meier, MD

Director, Center to Advance Palliative Care

Mount Sinai School of Medicine

Jeri Miller, PhD

Chief, End of Life Care and Palliative Research

National Institute of Nursing Research

R Sean Morrison, MD

Director, Lilian and Benjamin Hertzberg Palliative Care Institute and the National

Palliative Care Research Center

Mount Sinai School of Medicine

Christie North

Representing: Patients

Frances Norwood

Social Science Research Analyst

Center for Medicare and Medicaid Innovation

Lynne Padgett, PhD

Strategic Director, Hospital Systems, American Cancer Society

American Cancer Society

Christine Ritchie, MD, MSPH, FACP, FAAHPM

Harris Fishbon Distinguished Professor in Clinical Translational

Research and Aging, University of California San Francisco

Representing: American College of Physicians

Representing: American Academy of Hospice and Palliative Medicine

Sally Sachar

Chief Operating Officer; Director, GALAXY Patient and Caregiver

Powered Research Network

USAgainstAlzheimer’s

Melanie Simpson, PhD, RN-BC, OCN, CHPN, CPE

Pain Management Team Coordinator

the University of Kansas Hospital

Representing: American Society for Pain Management Nursing

Carol Spence, PhD

Vice President, Research and Quality

National Hospice and Palliative Care Organization

David Steinhorn, MD

Medical Director, Pediatric Palliative Care

Children’s National Medical Center

Representing: American Academy of Pediatrics

Angela Taylor

Director of Programs

Lewy Body Dementia Association

Jennifer Temel, MD

Clinical Director of Thoracic Oncology

Massachusetts General Hospital

Joan Teno, MD, MS

Professor of Health Services, Policy and Practice, Professor of

Medicine

Brown University

James Tulsky, MD

Chair, Department of Psychosocial Oncology and Palliative Care

Dana-Farber Cancer Institute

Kathleen Ujvari, MBA, MHSM

Policy Research Senior Analyst, AARP Public Policy Institute

AARP

Eugene Viscusi, MD

Director, Acute Pain Management, Thomas Jefferson University

Representing: American Society of Regional Anesthesia and Pain Medicine

Jamie Von Roenn, MD

Vice President of Education, Science and Professional Development

American Society of Clinical Oncology

Philip Wang, MD, DrPH

Director of Research

American Psychiatric Association

Lynne Warner Stevenson, MD

Director, Cardiomyopathy and Heart Failure Program, Brigham & Women’s Hospital

Representing: American Heart Association

Lisa Winstel,

Chief Operating Officer

Caregiver Action Network

Joan Zlotnik, PhD, ACSW

Senior Consultant

National Association of Social Workers

PCORI Board of Governors

Gail Hunt

President and Chief Executive Officer

National Alliance for Caregiving

PCORI Staff

Joe Selby, MD, MPH

Executive Director

Evelyn Whitlock, MD, MPH

Chief Science Officer

Jean Slutsky, PA, MSPH

Chief Engagement and Dissemination Officer and Program Director for

Communication and Dissemination Research

Hal Sox, MD

Director, Research Portfolio Development

Neeraj Arora, MS, PhD

Senior Program Officer, Improving Healthcare Systems

Chris Gayer, PhD

Program Officer, Communication & Dissemination Research

Steve Clauser, PhD, MPA

Program Director, Improving Healthcare Systems

Susan Hildebrandt, MA

Director, Stakeholder Engagement

Sue Sheridan, MBA, MIM, DHL

Director, Patient Engagement

Suzanne Schrandt, JD

Deputy Director, Patient Engagement

William Lawrence, MD, MS

Senior Program Officer, Communication & Dissemination Research

Michelle Johnston-Fleece, MPH

Engagement Officer, Patient Engagement

Roycelynn Mentor-Marcel, PhD, MPH

Merit Review Officer, Merit Review

Kelly Dunham, MPP

Program Manager, Science, Research Portfolio Development

Tasia Long, MHS

Program Associate, Improving Healthcare Systems

Sarah Chew

Program Assistant, Communication & Dissemination Research

Noah Mason

Program Assistant, Research Portfolio Development

Rachel Mosbacher

National Urban Fellow, Engagement Awards