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Website : www.indiancancersocietydelhi.in
Newsletter of the Indian Cancer Society, Delhi.
Issue 1: February, 2017
8
The Narcissus flower or Nargis in Hindi, Persian and Urdu poetry, represents the Beloved’s eye. It is also the symbol of hope eternal, for its shy presence perfumes the air of the darkest winter and hints of brighter times ahead. Cancer Survivors similarly are living symbols of hope and happiness.
Cancer Help Line : 26499572 Extn. 26, 9910516562
Editor : Beeta Mehta, Translation : Anjali Soni
Paper for this issue of Nargis is sponsored by “Ballarpur Industries Ltd.”
Dear Readers,
I read a quote by William James which says, "Believe that life is worth living and your belief will help create that fact". Isn't that true? how many examples do we see in our lives? How many people do we come across who prove that the mind is stronger than the body? That positivity DOES impact every sphere of our lives.
ICS celebrates Survivor's Day on the 2nd Saturday of February every year. As we slip into that month, we salute them and share some inspirational nuggets from them in this issue. They are a source of inspiration not only for people suffering from cancer, but others too. They have battled a dreaded disease and are still living a wonderful, active life. They show us that THERE IS LIFE AFTER CANCER.
ICS is a voluntary organisation. Our members get no bouquets for the work that they do, nor do they need them, but in this issue, I'd like to share the work that we're doing and the goals that we are aspiring to and the route we're taking to realise them.
This is the time for NEW YEAR RESOLUTIONS!! It is important to have challenging but realistic goals. In the euphoria of a new year starting we make wild and impossible resolutions which are broken on Day 3, if not earlier! It is impossible to live without having failed in something. Should the fear of failure stop us from doing anything? I think if we can maintain a balance in our lives, stay healthy, plan each day and take it as it comes, use our time effectively and remember that it is ok to fail - so long as we don't give up - we're on the right track.
So here's wishing you and your loved ones a wonderful balanced year ahead!
Good health and happiness always,
Beeta Mehta
Our Survivor Volunteers are in attendance at the following Clinics:
Mondays 10:30 a.m.- 12:30 p.m.Fridays 02:30 p.m.- 04:30 p.m.Co-ordinator : Beeta Mehta Mob.9810128439
Wednesday 02:00 p.m.- 04:00 p.m.Thursdays 02:00 p.m- 04:00 p.m.Saturdays 11:00 a.m.- 12:30 p.m.Co-ordinator : Mob.
Tuesdays 10:30 a.m.- 12:30 p.m.Thursdays 10:30 a.m.- 12:30 p.m.Co-ordinator : Rashmi Vohra Mob. 9871554777
Mondays 10:30 a.m.- 12:30 p.m.Fridays 10:30 a.m.- 12:30 p.m.Co-ordinator : Usha Ohri Mob. 9810366982
Mondays 10:30 a.m.- 12:30 p.m.Tuesdays 10:30 a.m.- 12:30 p.m.Tuesdays/Thursdays BCC 2.00 p.m. - 04.00 p.m.Coordinator : Kulvinder Lamba Mob. 9811570417
Tuesdays 10:30 a.m. - 1:30 p.m.Co-ordinator : Sangeeta Malhotra Mob. 9810016547
Mondays 10:30 a.m.- 12:30 p.m.Co-ordinator : Brig. S.C.Sharma Mob. 9810948658
Mondays 10:30 a.m.- 12:30 p.m.Tuesdays 10:30 a.m.- 12:30 p.m.Co-ordinator : Indra Jasuja Mob. 9958804370
Fridays 10:30 a.m.- 12:30 p.m.Co-ordinator : Kamal Srinivasan Mob. 9818486492
Fridays 10:30 a.m.- 12:30 p.m.Co-ordinator : Kiran Jaitley Mob. 9899273201
IRCH
AIIMS (Fifth Floor Breast Clinic)
Army R&R Hospital
Batra Hospital
Rajiv Gandhi Cancer Institute
B L Kapoor Memorial Hospital, Pusa Road
Fortis , NOIDA
Medicity, Gurgaon
Artemis, Gurgaon
Fortis , Gurgaon
Rekha Gulabani 9810862424
Cancer Detection Centre
Cancer Sahyog
Prashanti
No.42, Babar Road, New Delhi.Tel : 23716941
Indian Cancer Society, 86/1, Shahpur Jat, New Delhi - 110049Tel : 011-26499572, 26494907Email : [email protected]
“Diagnostic, Healing and Rehab Center”(An initiative of INDIAN CANCER SOCIETY for LALA DIWAN CHAND TRUST)11/70, Vikram Vihar, Lajpat Nagar IV, New Delhi - 110 024Tel : 011-41729393Email : [email protected]
Call for Volunteers
We need volunteers who can provide hope, courage and strength to newly diagnosed patients undergoing cancer treatment. If you are a cancer survivor in good health, please contact us.
Help a Cancer PatientYour donation will help a patient obtain expensive cancer drugs.Rs 1000/- will pay for fruit juice and biscuits for one day. This is given to patients four times a week.Please send your cheques to :Indian Cancer Society (Cancer Sahyog)86/1 Ground Floor, Shahpur Jat, New Delhi - 110049.Donations are exempt from Income Tax under section 80G of the IT Act 1961
Cancer InsuranceCancer treatment is expensive. Avail of Cancer Insurance for yourself and your family
For Details Contact :
INDIAN CANCER SOCIETY86/1 Ground Floor, Shahpur Jat, New Delhi - 110049.Tel : 011-26499572, Telefax : 26494907E-mail : [email protected] : www.indiancancersocietydelhi.in
25 years
of Cancer Sahyog
Editorial Inspiration
Donate l Volunteer
NO MORE“How is Vimla?” I asked“She is no more” He saidWith trembling voice tears unshed.No more I askedShock evaporated my sensibility.Doctors sàidWe came too late.There live so many vimlasunaware ignorant Let us unite and spread the wordCancer is not end of the world.All it needs is timely detectionAnd treatment.Ignorance is not blissKeep away the deadly kissGo in for periodic testsSo at all time bestWhen we ask How is VimlaThe answer comes with smilesShe is fine,ready to cover many more milesIn the journey called Life.
Neelmani Bhatia, a cancer survivor, a lover of animals, an author and a poet. She is a person of many talents, who did not let the disease get the better of her and now enjoys every day of her life with more verve and dedicates it to helping others stricken with cancer. She is a volunteer with ICS and donate all her sales from her book to charity.
Don’t Make Excuses, Make An Appointment
It Could Save Your Life
PAP SMEARHave you had a
done this year?
32
My name is Eicke Regul, I am a lawyer by profession, but nowadays work as a real estate developer in my hometown Bielefeld in north west Germany.
I just celebrated my 73rd birthday!
In 2002, I was diagnosed with thyroid gland cancer, and my thyroid glands were removed. Since then I am on regular medication. To stay fit, I ride my training bike at home or go on long bicycle rides outdoor 3 to 5 times a week.I walk as much as I can and prefer to take the stairs rather than elevators and walk rather than use a car!
My daughter is married into a Sikh family in New Delhi and her father in law, Mr Gurpreet Singh told me about Hemkund Sahib Gurudwara, situated 15,000 feet above sea level in the Himalayan Ranges in Uttrakhand. For the last 10 years, I have been hiking up there. The first time I did the trip out of curiosity - I wanted to see the Gurudwara, and to prove to myself that I could still manage such a strenuous hike at such a height.
Until now, I never really prepare for the hike, but generally like to lead a healthy lifestyle and keep my heart pumping. I watch my weight, nap in the afternoons. I still go to office every day and overall like to be active.
Since my first hike, I have been drawn back to Hemkunt Sahib every year, by the beautiful landscape, the many friendly fellow hikers and worshipers, but mainly to prove to myself that I can still do it!!.
Events
Annual SeminarOur Annual Seminar on "Improving the Quality of Life - the Role of Palliative Care" was held on 16th Oct 2016 at IIC. Prof Dr M C Mishra, Director AIIMs was the Chief Guest for the occasion.
Relay for Life
ICS Picnic
Christmas Celebrations at Prashanti
Relay for Life was held at Delhi Public School, Sector 45, Gurgaon on Monday, 28th November 2016. The inauguration of the event was by the release of balloons by cancer survivors and ICS volunteers including Mrs. Aditi Misra (Principal, DPS) and the teachers.
“Relay for Life” which is a part of Rise against Cancer had multiple activities in a relay form like- cyclothon, survivors celebration, school band performance, relay laps. Awareness workshop on Anti Tobacco which were delivered by Dr. Jyoti Wadhwa (Medanta) and Dr. Kabra (Fortis). Preventive Screening was conducted by ICS for parents and support staff.
Fun in the sun!! On the 14th December, ICS volunteers and workers let their hair down in the lawns in front of Prashanti, the Diognostic, Healing and Rehab Centre.
Christmas was cele-brated with games and laughter on the 20th December. 20 children and t he i r pa ren t s participated in the fun. Winter clothing given by Benetton India were distributed to them.
4 5
Our Services to Society
Festival of Hope
Detection and Financial Help
Mobile Detection Camps Pediatric Nutrition Programme
Research
We participated in Conferences / Consultations
ICS has done a tremendous job in preventive screening and treating cervical pre- cancers.
One such example is 66 year old Husyari Devi, who came to a preventive screening camp at Bindapur DDA Flats, Uttam Nagar. After her check up at the camp, where her reports were positive, she was very reluctant to get further tests, but after much persuasion by the Counsellor of that area, Mr Deshraj Singh Raghav, ICS members and her family she agreed to go ahead. She was admitted in RGCI and invasive carcinoma was confirmed.
ICS adopted the patient and provided financial support for her treatment. Husyari Devi is now home and ICS will continue her follow up over the next 2 years.
Under this ICS has so far supported 36 children, whereby, Protein Supplements are given to child patients undergoing chemotherapy in AIIMS Pediatric Ward & Chacha Nehru Bal Chikitsalaya. (CNBC)
This is in addition to Home Cooked food being supplied to around 20 children undergoing treatment at AIIMS/ IRCH every Tuesday. The children are engaged in art & craft & laughter therapy.
Our mobile van, Asha Kiran, with doctors and technicians on board is widely used for screening camps. In the last 6 months, 84 Camps have been held where 3389 people have been screened. Out of these 268 had pre cancerous symptoms.Recently a camp was held at Sri Guru Tegh Bahadur Khalsa College. University of Delhi.
A study undertaken by IIT student Aakash to photograph potentially malignant tumours of the mouth. The study was conducted on 134 cases by Dr Dipika Bumb & Dr Preet Dhillon (PHFI). This paper will be presented at the Oral Oncology Conference in Bangalore. (April 2017)
Other studies under preparation: Comparative Study of 250 NE women's health with counterparts in their home states.Prostrate Cancer Study- Demographics - lifestyle - & Symptoms that matter.
Global Health Strategies organized an International Consultation on Cervical Cancer & related issues on 16-18Oct 2016. ICS participated in strength and was presented with a silver salver in recognition of sustained excellence in Cancer Control.
ICS was invited to speak at an CII Intervention on Non Communicable Disease on 6th Oct 2016.
Mrs Jyotsna Govil chaired a session at the Head & Neck Oncology Conference organized by Dr Anil Thakar, AIIMS.
ICS was invited to participate in a PPP Consultation by Niti Ayog (former Planning Commission). We are in the Working Group on Cancer Screening.
Emotional Support
Medical Assistance
Awareness Talks
Our blue coated volunteers go to 10 hospitals in Delhi NCR Region and from the Apr 2016 -Jan 2017 have given counselling and emotional support to 6137 patients and their caregivers.
The total number of patients adopted in 2016- 2017 are 69.
In total 42 children have been treated under the NDTV Fortis Cancerthon Programme. We invite application for assistance to another 3 children.
ICS is a partner with NDTV and Fortis in a Cancerthon where money was collected and given for the treatment of children. The participating hospitals are from Delhi, Kolkata, Chennai & Bangalore.
Sharing 2 of the cases:
1) 5 year old Aniket Bag was diagnosed with a very aggressive type of brain tumour. He first underwent surgery and was then advised treatment with radiation and chemotherapy. Presently his disease is in remission and he is back to his normal life, has started attending school and participating in outdoor activities
2) Salomi Jenifer, a 61/2 year old was detected with Acute Lymphoblastic Leukamia (ALL) .She was categorized as high risk and underwent treatment as per high risk protocol. She has completed 14 months of chemotherapy, of which the first 9 months were intensive. She is currently on maintenance phase of chemotherapy and is doing well with twice weekly follow up.
In the last 4 months, 20 talks were held. Here is a glimpse of some of the places where they were held.
JD Institute of Fashion Technology Lady Shriram College
Nathupura Pahari Learning Centre, GurgaonAfflatus, ManesarOxford Book Store. The Pink Tea Conversation
Husyari Devi
Aniket Bag Salomi Jenifer
4th National NCD Summit 2016
COP 7 Conference
6 7
Brig S C SharmaICS was proud to have been invited to attend COP 7 - Conference of Parties 7.It brought together the WHO FCTC's 180 Parties, which included almost every country in the world as well as reg iona l economic in teg ra t ion organizations like the European Union, SEARO, Canadian, African etc.It was the first time that a COP meeting was being held in India. This signals a strong and generous commitment of the Govt of India to increase international co-operation and awareness of the WHO FCTC globally and especially in the WHO South East Asia Region. A 4 member team participated. It was a p u r e l y t e c h n i c a l a d v i s o r y o n international legislation, and a great learning experience for ICS.
Mrs Rekha Gulabani & Dr Priya Parmar attended the NGO Management Courses at SP Jain Management Institute, Mumbai, sponsored by Novartis. We thank Mr Prabhat Kumar Sinha for a valuable input in improving NGO functioning and hope that ICS reaps the benefit of this training.
ICS volunteers give talks on FM Gold 106.4 on the 1st and 3rd Friday of every month between 1.05 to 1.20 pm. Do listen in.
On the 4th Feb 2017, on the occasion of World Cancer Day, ICS conducted a workshop for blind children at the National Association for Blind, Sec 5 ,R KPuram. The volunteers had a very interactive session for the students/residents of hostel of NAB .The intelligence and agile minds surprised even the seasoned volunteers of many such school talks.
We hope that this beginning is a continued affair by getting awareness IEC material in Braille. This way we will be able to spread the important message to so many "able "citizens. Cancer does not discriminate class, caste, color or physical ability.
Talks on FM
World Cancer Day
WE ARE GRATEFUL TO:
We are getting a new Cancer Detection Van, Asha Deep, thanks to :
l Apollo Tyres who have donated for patient support of 50 patients in city hospitals & Artemis. Our sincere thanks to Shri Onkar Kanwar & Mrs Taru Kanwar for their great generosity.
l Exide for screening & Awareness.
l Mercer for screening, Breast Cancer Rehabilitation and for supporting us in all our endeavours.
l NDMC for allowing us to hold our Survivor's Day in Connaught Place.
l ONGC for screening.
l Dalmia Foundation for mammograms and Breast Cancer Rehabilitation.
l Pepsi for water and Lays wafers.
l Dabur for the juices.
l The Brahm Datt Foundation.
l Sitaram Jindal Foundation.
l Apollo Foundation.
l Mercer.
l EASACT (External Affairs Spouses Association Charitable Trust).
l AMEX.
l ONGC.
l Max Foundation.l Embassy of Mexico.
May Their Souls Rest in Peace2016-2017 has been a cruel year for ICS Delhi. We lost stalwarts like Mrs Sita Paintal, Dr Mehrotra and Mr O P Nayar last year.
This year, on 1st January, Comde VS Laroiya passed away. A pillar of ICS who led by personal example and whose ever smiling face and vibrant personality will be missed by all.
All of them were blessed to pass into Eternal Bliss peacefully and gently. Our finest tribute to them will be to carry on their selfless service and nobility of being in our own small way.
Volunteers who suffered loss of loved ones include Mrs Ashu Chawla & Dr Poonam Chandra who lost their Fathers. Mrs Sudesh Raheja & Mrs Kiran Jaitley who lost their life partners. We offer them our deepest condolences. May they find strength and Grace to bear their loss.
DATES TO REMEMBER
Survivor's DaySaturday 11 February 2017
at 2.30pmVenue : Palika Park (over Palika Parking), Connaught Place
Artistes Against Cancer 2017Sarod Maestro Amjad Ali KhanTuesday 14th March 2017 at 7 pmKamani AuditoriumOn the 4th Feb, the World Cancer Day, ICS volunteer, Rekha Gulabani, was
invited to Sanjay Orthopedic, Spine & Maternity Centre, Dehradun to speak about Breast Cancer and Preventive Oncology