Nursingintheacutesettingstthomastalk2008

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    Haemoglobinopathy Nursingin the Acute Setting

    St Thomas

    London

    2008

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    Ethnic Demographics (2001 Census)

    Birmingham

    2.9%Mixed race

    0.63%Other ethnic heritage

    0.52%Chinese

    6.1%Black/black British

    19.5%British Asian

    70.4%White( inc Irish/other white)

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    Patient Demographics 2008

    14

    15

    TM

    (29)

    4

    9

    TI/ET

    (13)

    16

    15

    HbSThal

    (31)

    7997Female

    6081Male

    HbSC

    (139)

    HbSS

    (178)

    SCD

    (total

    no)

    Total number of registered patients -413

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    Sickle Cell and Thalassaemia

    Centre

    Inner city hospital

    Nurse led service-team of specialised nurses

    Day case centre and outreach to wards for

    inpatients

    Monday- Friday (9-5)

    Serve adult patients with disorder

    Planned and unplanned patient activity Screening remit

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    Ethos of Service

    Swift assessment for complications

    Appropriate analgesia plan

    Avoid escalation of pain/ curtail crisisProtocol led

    Education

    Support/advice

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    Acute Nursing Care

    Specialist nurses

    Continuing professional development

    Extended rolesSupportive and proactive medical team/

    management structure

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    Structure and ResponsibilityClinical Lead Nurse

    Development /policy

    Deputy Lead Nurse

    Service manager

    Junior Sister

    Staff Nurse Staff Nurse Staff Nurse

    Clinical PsychologistHaematologist

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    Thalassaemia

    Planned activity

    Blood transfusions and Chelation

    managementMultidisciplinary team inc psychologist

    Patient centred- flexibility

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    Thalassaemia

    Nurse to arrange date with patient and book BT

    X- match and FBC- 48 hours prior to BT

    Discuss chelation/ concordance

    Arrange/coordinate prescriptions as required

    Monitor concordance- weekly FBC/LFTs

    Education - chelation, central line care, thumb

    tacks, importance of drug monitoring

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    Chelation

    Rationale for Chelation

    Information about dose, frequency,

    storage and method of administration Importance of adherence

    Potential side effects

    When to seek help eg signs of infection Importance of attending for monitoring

    and at least 3 monthly medical review

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    Patients Experiences of

    Hospitalisation

    for sickle cell

    patients, positive

    experiences of

    hospital care are theexception

    mistrust

    controlstigmatisation

    neglect

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    Sickle Cell Disorder

    Largely unplanned activity except red cellexchange/ top up blood transfusions

    Nurse led assessment within protocols

    and operational policyEmergency admissionsDirect access

    Day case assessment and avoidance ofadmission to hospital

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    Assessment of Patient in Pain

    Pain characteristics

    Onset and duration of pain

    Site of painNature of pain

    Severity

    Precipitating factorsComplicated/uncomplicated

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    Complicated Crisis

    Fever/rigors->38c Tachycardia/palpitations (despite analgesia) Neurological symptoms (also ophthalmic concerns) Chest pain (other than bony pain) tachypnoeic-hypoxia

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    Evaluation

    Baseline observations- + pain score, pulseoximetry hourly and then 2 hourly

    Assess state of hydration

    Cannulate if required Full infection screen- MSU, sputum, blood

    cultures Routine bloods

    Use patient controlled analgesia where possible Prepare for admission

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    Complicated Crisis

    Once initial nurse assessment and

    treatment commenced

    Refer to medics for admission

    Arrange ambulance transfer to acute bed

    on site

    Nurses outreach daily to ward

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    Uncomplicated Crisis

    Baseline observations- + pain score,

    pulse oximetry hourly and then 2 hourly

    State of hydration

    Analgesic history in preceding 8 hours

    Use set protocols to administer analgesia

    hand held treatment cards

    Day case treatment- home

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    Handheld Treatment Card

    Defined treatmentprotocols

    Protocol applicable toSWBHT only

    Gatekeeper is the SCaTcentre

    Protocols reviewed every2 years

    Only for registered

    patients Must have annual med

    review

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    Analgesic Response

    Administer analgesia within 30 minutes- (mean10 mins)

    Reassess after 30 minutes and 1 hour

    Parenteral / oral analgesia Discharge home with appropriate oral analgesia GP summary within 24 hours Referral to community sickle nurses if required

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    Advice on Discharge

    Reassure

    Caution about driving

    How to take medication Fluid intake

    Support at home

    When to seek further help Inform of next OPA

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    Last Seven Years

    92%94%84%88%84%78%88%% Home

    43

    744

    1696

    Yr 6

    05/06

    400250150100Noregistered

    patients

    515554583713Admittedfrom D.C.

    628342463351165107DC pain

    14801568169617481344672Total DCactivity

    Yr 7

    06/07

    Yr 5

    04/05

    Yr 4

    03/04

    Yr 3

    02/03

    Yr 2

    01/02

    Yr 1

    00/01

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    Day Case Model- Does it work?

    2000- DC pain management accounted for90% of activity (5% of pt database)

    2008- 50/50 split with blood transfusion andpain management

    Majority of in-patient admissions are forcomplicated sickle cell crisis

    Anecdotal evidence shows appropriateadmissions for SCD

    Average no of bed days for SCS is 7-10d Patient safety- no deaths of any patient

    following DC

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    Service User Feedback (2008)

    Things valued by service users- expertise,

    warmth and support from nursing staff

    Outreach service valued highly

    Opening hours

    Quick and efficient pain service

    Flexibility of BT Liaison with primary care

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    Concern about privacy when being

    assessed

    Shortage of nursing staff

    Clinic appointments and waiting times

    Dcor

    Distance of other departments