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8/14/2019 Nursingintheacutesettingstthomastalk2008
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Haemoglobinopathy Nursingin the Acute Setting
St Thomas
London
2008
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Ethnic Demographics (2001 Census)
Birmingham
2.9%Mixed race
0.63%Other ethnic heritage
0.52%Chinese
6.1%Black/black British
19.5%British Asian
70.4%White( inc Irish/other white)
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Patient Demographics 2008
14
15
TM
(29)
4
9
TI/ET
(13)
16
15
HbSThal
(31)
7997Female
6081Male
HbSC
(139)
HbSS
(178)
SCD
(total
no)
Total number of registered patients -413
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Sickle Cell and Thalassaemia
Centre
Inner city hospital
Nurse led service-team of specialised nurses
Day case centre and outreach to wards for
inpatients
Monday- Friday (9-5)
Serve adult patients with disorder
Planned and unplanned patient activity Screening remit
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Ethos of Service
Swift assessment for complications
Appropriate analgesia plan
Avoid escalation of pain/ curtail crisisProtocol led
Education
Support/advice
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Acute Nursing Care
Specialist nurses
Continuing professional development
Extended rolesSupportive and proactive medical team/
management structure
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Structure and ResponsibilityClinical Lead Nurse
Development /policy
Deputy Lead Nurse
Service manager
Junior Sister
Staff Nurse Staff Nurse Staff Nurse
Clinical PsychologistHaematologist
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Thalassaemia
Planned activity
Blood transfusions and Chelation
managementMultidisciplinary team inc psychologist
Patient centred- flexibility
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Thalassaemia
Nurse to arrange date with patient and book BT
X- match and FBC- 48 hours prior to BT
Discuss chelation/ concordance
Arrange/coordinate prescriptions as required
Monitor concordance- weekly FBC/LFTs
Education - chelation, central line care, thumb
tacks, importance of drug monitoring
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Chelation
Rationale for Chelation
Information about dose, frequency,
storage and method of administration Importance of adherence
Potential side effects
When to seek help eg signs of infection Importance of attending for monitoring
and at least 3 monthly medical review
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Patients Experiences of
Hospitalisation
for sickle cell
patients, positive
experiences of
hospital care are theexception
mistrust
controlstigmatisation
neglect
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Sickle Cell Disorder
Largely unplanned activity except red cellexchange/ top up blood transfusions
Nurse led assessment within protocols
and operational policyEmergency admissionsDirect access
Day case assessment and avoidance ofadmission to hospital
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Assessment of Patient in Pain
Pain characteristics
Onset and duration of pain
Site of painNature of pain
Severity
Precipitating factorsComplicated/uncomplicated
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Complicated Crisis
Fever/rigors->38c Tachycardia/palpitations (despite analgesia) Neurological symptoms (also ophthalmic concerns) Chest pain (other than bony pain) tachypnoeic-hypoxia
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Evaluation
Baseline observations- + pain score, pulseoximetry hourly and then 2 hourly
Assess state of hydration
Cannulate if required Full infection screen- MSU, sputum, blood
cultures Routine bloods
Use patient controlled analgesia where possible Prepare for admission
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Complicated Crisis
Once initial nurse assessment and
treatment commenced
Refer to medics for admission
Arrange ambulance transfer to acute bed
on site
Nurses outreach daily to ward
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Uncomplicated Crisis
Baseline observations- + pain score,
pulse oximetry hourly and then 2 hourly
State of hydration
Analgesic history in preceding 8 hours
Use set protocols to administer analgesia
hand held treatment cards
Day case treatment- home
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Handheld Treatment Card
Defined treatmentprotocols
Protocol applicable toSWBHT only
Gatekeeper is the SCaTcentre
Protocols reviewed every2 years
Only for registered
patients Must have annual med
review
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Analgesic Response
Administer analgesia within 30 minutes- (mean10 mins)
Reassess after 30 minutes and 1 hour
Parenteral / oral analgesia Discharge home with appropriate oral analgesia GP summary within 24 hours Referral to community sickle nurses if required
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Advice on Discharge
Reassure
Caution about driving
How to take medication Fluid intake
Support at home
When to seek further help Inform of next OPA
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Last Seven Years
92%94%84%88%84%78%88%% Home
43
744
1696
Yr 6
05/06
400250150100Noregistered
patients
515554583713Admittedfrom D.C.
628342463351165107DC pain
14801568169617481344672Total DCactivity
Yr 7
06/07
Yr 5
04/05
Yr 4
03/04
Yr 3
02/03
Yr 2
01/02
Yr 1
00/01
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Day Case Model- Does it work?
2000- DC pain management accounted for90% of activity (5% of pt database)
2008- 50/50 split with blood transfusion andpain management
Majority of in-patient admissions are forcomplicated sickle cell crisis
Anecdotal evidence shows appropriateadmissions for SCD
Average no of bed days for SCS is 7-10d Patient safety- no deaths of any patient
following DC
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Service User Feedback (2008)
Things valued by service users- expertise,
warmth and support from nursing staff
Outreach service valued highly
Opening hours
Quick and efficient pain service
Flexibility of BT Liaison with primary care
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Concern about privacy when being
assessed
Shortage of nursing staff
Clinic appointments and waiting times
Dcor
Distance of other departments