Nevada Dual Sensory Impairment Project University of Nevada, Reno MaryAnn Demchak, Ph.D. Project Director Deafblindness: An Introduction

Nevada Dual Sensory Impairment ProjectUniversity of Nevada, Reno

MaryAnn Demchak, Ph.D.Project Director

Deafblindness: An Introduction

Contact Information

MaryAnn Demchak

Nevada Dual Sensory Impairment Project/299

University of Nevada, Reno

Reno, NV 89557

Toll-free: 1-877-621-5042

Email: [email protected]

Website: http://www.unr.edu/educ/ndsip/

mailto:[email protected]

http://www.unr.edu/educ/ndsip/

Purpose of this Presentation

Participants will understand:

• What deafblindness, or a dual sensory impairment, is

• The diverse nature of deafblindness

• Critical factors influencing the effects of deafblindness

• The challenges or impact of dual sensory impairments

What is Deafblindness?-- The Legal Definition

Deafblindness, or dual sensory impairment, refers to the concomitant hearing and visual impairments, the combination of which causes such severe communication and other developmental and education problems that the individual cannot be accommodated in programs solely for individuals who are deaf or blind (2004, IDEA)

The Diversity of “Deafblindness”

• Although “deafblind” implies a total absence of vision and hearing, this is not the case

• Most children who are deafblind have residual hearing and vision

• There is no single profile of a child who is deafblind

How Might Vision Be Impacted?

• Low vision (visual acuity of 20/70 to 20/200)

• Legally blind (visual acuity of 20/200 or less or field restriction of 20 degrees or less)

• Light perception only

• Totally blind

• Diagnosed progressive loss

• Cortical visual impairment

How Might Hearing Be Impacted?

• Mild loss (26-40 dB loss)

• Moderate (41-55 dB loss)

• Moderately severe (56-70 dB loss)

• Severe (71-90 dB loss)

• Profound (91+ dB loss)

• Diagnosed progressive loss

• Auditory neuropathy

Degree of Vision

Normal Vision

Low Vision(best corrected to 20/70)

Blind - legally,light perception, field loss, totally)

Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)

Deaf(severe to profound)

Progres-sive Loss

Auditory Neuro-pathy

Normal Vision



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired (HI)



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both


HI



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both


HI Depends on degree



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both



HI



Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both



HI


Visually impaired

(VI)


Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both



HI


Visually impaired

(VI)


VI

Progressive Loss

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)


VI

Progressive Loss

Depends on degree

CVI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)


VI

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB


VI

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB


VI

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB


VI

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss

Depends on degree

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss

Depends on degree DB

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss

Depends on degree DB DB

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss

Depends on degree DB DB DB

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss

Depends on degree DB DB DB DB

CVI VI

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss


CVI VI DB

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss


CVI VI DB DB

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss


CVI VI DB DB DB

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss


CVI VI DB DB DB DB

Degree of Hearing

Degree of Vision

Normal Hearing

Hard of Hearing

(mild-moderate)


Progres-sive Loss


Normal Vision

Normal for both

Hearing impaired

Hearing impaired

Depends on degree

Hearing impaired


Visually impaired

(VI)Identified as

DB DB DB DB


VI

DB DB DB DB

Progressive Loss


CVI VI DB DB DB DB

What Might You See & Hear

Simulations

DVD: Sensory Perspectives

(from SKI-HI)

Critical Factors that Influence the Impact of Deafblindness

• Age at onset of loss

• Accompanying disabilities

• Degree, type, and stability of vision and hearing loss



– Congenitally deafblind

– Adventitiously deafblind

– One sense congenitally impaired; other loss acquired






– Cognitive impairments

– Physical impairments

– Complex health care issues





– Progressive losses

Impact of Deafblindness on Development

• Limited access to information

• Movement

• Learning

• Emotional development

• Communication

– Receptive

– Expressive

Accessing Information

• Vision and hearing are our distance senses

• Even a mild loss can have a serious effect

• Hearing is our only sense that can “bend around corners”

• Vision takes in more information all at once than any other sense

• Fragmented or distorted information often acquired with a dual sensory loss

Movement

• Seeing objects and hearing sounds influences motivation to interact with the environment

• When vision and hearing impaired, motivation is diminished

Learning

• Incidental learningMore likely to require formal instruction on

“topics” others acquire incidentally

• Concept developmentAbstract concepts more difficult to learn

• Mental imageryChallenging to construct mental images of

simple objects

Emotional Development

• Bonding and attachment behaviors

• Sense of self and body image

• Motivation

• Perception of safety

• Isolation

Communication

• Early communication involves movement

• Infants gain experiences in using their actions to influence people and objects in their environments, form of early communication

• They may not understand their actions influenced those around them or caused something to happen

Communication

• They do not have the same opportunity to acquire symbols to represent their communication

• They do not have repetitive, meaningful exposure to incidental use of objects, pictures, sign language, speech

• May have difficulty finding communication partners

• May have difficulty finding common topic

Communication & “Problem” Behaviors

• “Problem” behaviors serve a purpose for the child

• All behavior can be communicative• Behavior does not have to be intentional to

be communicative• Behavior is influenced by events in the

setting• Understanding the message behind

“problem” behaviors can be difficult

It Is Important to Remember:

• Children who are deafblind--

Require thoughtful and unique educational approaches

Can participate in almost any activity

Communicate in a variety of ways

What if you are working with a child who is deafblind and would like assistance?

Contact the Nevada Dual Sensory Impairment Project

Information about the project

• How do you refer a child?

• What happens after a child is referred?

• What assistance can be provided?

• How does a family or service provider get assistance?

• Where is assistance provided?

• Is there a cost?

• What are the benefits?

Remember Who is Eligible for the Project

• Vision and hearing impairments• Can also have other disabilities:

–Cognitive impairments–Physical impairments–Complex health care needs–Speech / language / communication delays–Behavior disorders

• Most of the time do have other disabilities in addition to impairments in both vision and hearing

How to refer to the project?

• Complete a referral packet and fax or mail to MaryAnn

• Call MaryAnn and discuss referral over phone or request packet

• 1-877-621-5042

• [email protected]

mailto:[email protected]

Why refer to the project?

• Project newsletter & other TA documents (e.g., Tip sheets)

• Print or video resources

• Parent-to-parent network

• Family-to-family network and listserv (western states)

• Project sponsored trainings

• Help in finding resources

• Home and/or school visits

• Annual parent conference

What happens after referral?

• Referral packet reviewed• Potential phone calls for clarification on some

questions• Intro binders mailed to parent and service

provider:– TA request forms, all tip sheets, newsletter & more

• Introductory phone call and/ or visit

Questions

Documents

Nevada Dual Sensory Impairment Project University of Nevada, Reno MaryAnn Demchak, Ph.D. Project Director Deafblindness: An Introduction