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Nephrol:Nephrol: 1500 Nephrologists 1500 Nephrologists in a Professional Dialogue in a Professional Dialogue
Michele L. Hales
University of Alberta
Edmonton, AB CANADA
cyberNephrology: A New Opportunity for the ProfessioncyberNephrology: A New Opportunity for the ProfessionA Tutorial and Interactive Seminar A Tutorial and Interactive Seminar
November 24, 2000November 24, 2000 Bologna, ItalyBologna, Italy
Presented atPresented at
Source: http://www.isc.org/
Host Count Graph 1991 – 2000 Host Count Graph 1991 – 2000 (From July 2000)(From July 2000)
How Many Online?How Many Online?
Source: http://www.nua.ie
World Total 377.65 million
Africa 3.11 million
Asia/Pacific 89.68 million
Europe 105.89 million
Middle East 2.40 million
Canada & USA 161.31 million
Latin America 15.26 million
Internet Users Worldwide - September 2000 Nua Internet Surveys
E-mail Use Higher in Europe Than USE-mail Use Higher in Europe Than US
E-mail use in Europe higher than in the US France 64% UK 60.3% Germany 53.5%
US only 44%
Source: Oct. 13, 2000 NetValue
Daily E-mail OutputDaily E-mail Output
Globally- 10 billion e-mails sent daily by the end of
this year 35 billion e-mails estimated to be sent
every day by 2005
Western Europe- 511 billion annually in 2000 1.6 trillion annually by 2005!
Source: Oct. 12, 2000 IDC Research
Statistics Specific to ItalyStatistics Specific to Italy
12 million internet users in Italy
Up from 8.6 million a year ago
16 million predicted by September 2001
Majority of new users in 2000 were women
Source: Oct. 31, 2000 Between ICT Brokers
Women are driving the Italian Internet Boom!
A Brief History of NEPHROLA Brief History of NEPHROL
Created in October 1994
1st year membership was 355
Began as a moderated group
Legal problems/risk minimal
Birth to various offshoot groups
NEPHROL’s LayoutNEPHROL’s Layout
NEPHCNPT
NEPHJNL
NEPHNPPT
NEPHHIST
NEPHROL
NEPHM IN
NEPHCNPT Digest
NEPHJNL Digest
NEPHNPPT Digest
NEPHHIST Digest
NEPHROL Digest
NEPH…NEPH… E-mail Discussion GroupsE-mail Discussion Groups
NEPHROL - general nephrology, all subjects including renal pathology and transplantation
NEPHADMIN - for nephrology administrators
NEPHBSCI - nephrology basic science discussion
NEPHCNPT - discussions of individual clinical nephrology cases
NEPHDEVEL - discussion of humanitarian projects and ISN Sister Centres Program
NEPHINDIG - discussion of renal disease in indigenous peoples
NEPH…NEPH… E-mail Discussion GroupsE-mail Discussion Groups
NEPHJNL - nephrology/transplantation journal club
NEPHMIN - a stripped down version of NEPHROL-DIGEST with all repetition and North American specific content removed, designed for subscribers in developing countries
NEPHNPPT - discussions of individual renal biopsy cases
NEPHRONOL - Spanish - English discussion of nephrology subjects
NEPHHIST - history of renal medicine, ISN video legacy project interview transcripts
NEPH…NEPH… E-mail Discussion GroupsE-mail Discussion Groups
KFINT-L - discussion relating to the International Federation of Kidney Foundations
PDIAL - peritoneal dialysis
PedNeph - paediatric nephrology (for renal healthcare professionals)
Patient E-mail Discussion GroupsPatient E-mail Discussion Groups
NEPHKIDS – for parents with children with renal disease
KIDNEYDISEASE – for adult children with renal disease
IGAN – IgA nephropathy
NEPHROL Message TopicsNEPHROL Message Topics
CN: Clinical nephrologyHD: HemodialysisPD: Peritoneal dialysisHY: HypertensionTX: TransplantationNP: NephropathologyPH: PhysiologyIM: ImmunologyBI: BiochemistryCB: Cell BiologyAN: AnatomyET: Ethics
UC: Underdeveloped countriesDS: DisastersIP: Intellectual property, Internet
publishingTM: TelemedicineMT: Meeting announcementsWWW: World Wide Web resourcesCSN: Canadian Society of
NephrologyLATF: Latin American Task ForceJN: Jobs in NephrologyJP: Jobs in Renal PathologyJT: Jobs in TransplantationGEN: Messages of a general nature
likely to be of interest to all
NEPHROL StatisticsNEPHROL Statistics
Membership Total: 1443 Average Total Posts per Week:
65(Approx. 10 posts per day)
Top 5 Recent Topics:1)How to do renal biopsy?2)Management of cardiomyopathy.3)Renal biopsy in coumadinized patient.4)External cuff extrusion.5)How many nephrologists are enough?
An Internet discussion group like NEPHROL is at its best when debating important questions in the field of nephrology, the answers to which cannot be found in existing journals or books, and discussing uniquely challenging patients, with the ability to instantly consult 1500 nephrology professionals.
NEPHROL in GeneralNEPHROL in General
Subscription To Our GroupsSubscription To Our Groups
To subscribe to NEPHROL or any of the other groups send e-mail to:
with the message:subscribe nephrolsubscribe nephdevel etc.
Measurable OutcomesMeasurable Outcomes
Value of International On-line Discussion Groups -
Haiti mass poisoning- Nephrol discussion posted on HDCN- 60 minutes interview
Turkey Earthquake (ISN DRTF)Aug. 16, 1999 - Massive earthquake in Turkey,
DRTF deployed early; prevented many cases of ARF. Mortality among the 400+ dialyzed patients only 17% compared with the usual 50%.
Measurable Outcomes – Measurable Outcomes – Cont’dCont’d
Measurable Outcomes – Measurable Outcomes – Cont’dCont’d 1st Renal Internet Videoconferencing
Between Milan, Italy and Edmonton, ABDecember 9th, 1996
Sharing of Renal Pathology Images
Food for ThoughtFood for Thought
300% increase in regular Internet usage by physicians from 1997 to 1999
Primary use of the Internet by physicians:
- personal services
- educational purposes
- medical journal access
- communication with medical societies
63% of doctors use email daily 33% of them use email to communicate with patients
Source: Healtheon Corporation May 07/99
“Our research shows that a growing number of physicians are increasingly prepared to rely on the Internet as a primary means of obtaining clinical and medically related data and information.
Moreover, our survey results indicate that physicians also recognize the important role that online linkages can play in helping their office conduct clinical and administrative transactions much more efficiently.”
Mike Long, CEO of HealtheonJanuary 20, 1999
Web Based ForumsWeb Based Forums
A moderated bulletin board Open to the general pubic Free of charge 487 site registrants (May 2000)
AJKD Forum – www.ajkd.org
http://www.ajkd.org
ConclusionConclusion
E-mail at the moment is an ideal communication medium
The computer can save time
The Internet will be the major avenue for health communication in the next two years
The discussions stimulated on NEPHROL should increase your knowledge and help you improve patient outcomes
““We shall not cease from explorationWe shall not cease from explorationAnd the end of all our exploring And the end of all our exploring Will be to arrive where we started Will be to arrive where we started And know the place for the first time.”And know the place for the first time.”
-- -- Little GiddingLittle Gidding, , T. S. EliotT. S. Eliot
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