Navigating Adulthood with a Disability Lessons Learned along the Journey

with Adults with Autism Presenters Katy Pelot MA LLPC

Kelly Blakeslee MA LLPC

Navigating Adulthood Lessons learned

Learning Objectives Participants will

Participants will identify how navigating independent living resources may be impacted by Autism Spectrum Disorders

Participants will obtain information regarding fostering special interests and splinter skills in the autism population

Participants will identify basic sensory and behavioral accommodations for adults with ASD

Why Adult Navigation The MiNavigator team at the Autism Alliance of Michigan has worked

closely with adults who also face specific challenges and dysregulation that can impact personal day to day lives professional and the trajectory of the future

Multiple systems Multiple disciplines Multiple and complex service optionsbeliefs Limited knowledge of whatrsquos needed and when

Autism Alliance of Michigan MiNavigator Team Structure

Insurance Specialist MS chwyn

C hief Progra m Officer

T Morris

PresidentC E O C Allen

Insura nce S pecia list MS chwyn

E duca tion S pecia list

B B rish

C linica l S pecia list J Ma tson

Adult S vs S pecia list

K Pelot

S a fety S pecia lists S S chuelke

M B oody

Progra m Assista nt K Nelson

Na viga tor R Hrisseh

Na viga tor S Va lente

Na viga tor E Tryson

Na viga tor L Ha mpton

MiNavigator Case Management

Incoming Calls Program Assistant

Incoming C a lls Progra m Assista nt

C a se E leva tion

DirectorC E OS ta te Dept

Prima ry Na viga tor

Prima ry Na viga tor S pecia list

◻ httpsyoutubevB gTrpcR w-Q

Navigating Adulthood Lessons learned

Learning Objectives Participants will

Participants will identify how navigating independent living resources may be impacted by Autism Spectrum Disorders

Participants will obtain information regarding fostering special interests and splinter skills in the autism population

Participants will identify basic sensory and behavioral accommodations for adults with ASD

Why Adult Navigation The MiNavigator team at the Autism Alliance of Michigan has worked

closely with adults who also face specific challenges and dysregulation that can impact personal day to day lives professional and the trajectory of the future

Multiple systems Multiple disciplines Multiple and complex service optionsbeliefs Limited knowledge of whatrsquos needed and when

Autism Alliance of Michigan MiNavigator Team Structure

Insurance Specialist MS chwyn

C hief Progra m Officer

T Morris

PresidentC E O C Allen

Insura nce S pecia list MS chwyn

E duca tion S pecia list

B B rish

C linica l S pecia list J Ma tson

Adult S vs S pecia list

K Pelot

S a fety S pecia lists S S chuelke

M B oody

Progra m Assista nt K Nelson

Na viga tor R Hrisseh

Na viga tor S Va lente

Na viga tor E Tryson

Na viga tor L Ha mpton

MiNavigator Case Management

Incoming Calls Program Assistant

Incoming C a lls Progra m Assista nt

C a se E leva tion

DirectorC E OS ta te Dept

Prima ry Na viga tor

Prima ry Na viga tor S pecia list

◻ httpsyoutubevB gTrpcR w-Q

Why Adult Navigation The MiNavigator team at the Autism Alliance of Michigan has worked

closely with adults who also face specific challenges and dysregulation that can impact personal day to day lives professional and the trajectory of the future

Multiple systems Multiple disciplines Multiple and complex service optionsbeliefs Limited knowledge of whatrsquos needed and when

Autism Alliance of Michigan MiNavigator Team Structure

Insurance Specialist MS chwyn

C hief Progra m Officer

T Morris

PresidentC E O C Allen

Insura nce S pecia list MS chwyn

E duca tion S pecia list

B B rish

C linica l S pecia list J Ma tson

Adult S vs S pecia list

K Pelot

S a fety S pecia lists S S chuelke

M B oody

Progra m Assista nt K Nelson

Na viga tor R Hrisseh

Na viga tor S Va lente

Na viga tor E Tryson

Na viga tor L Ha mpton

MiNavigator Case Management

Incoming Calls Program Assistant

Incoming C a lls Progra m Assista nt

C a se E leva tion

DirectorC E OS ta te Dept

Prima ry Na viga tor

Prima ry Na viga tor S pecia list

◻ httpsyoutubevB gTrpcR w-Q

Autism Alliance of Michigan MiNavigator Team Structure

Insurance Specialist MS chwyn

C hief Progra m Officer

T Morris

PresidentC E O C Allen

Insura nce S pecia list MS chwyn

E duca tion S pecia list

B B rish

C linica l S pecia list J Ma tson

Adult S vs S pecia list

K Pelot

S a fety S pecia lists S S chuelke

M B oody

Progra m Assista nt K Nelson

Na viga tor R Hrisseh

Na viga tor S Va lente

Na viga tor E Tryson

Na viga tor L Ha mpton

MiNavigator Case Management

Incoming Calls Program Assistant

Incoming C a lls Progra m Assista nt

C a se E leva tion

DirectorC E OS ta te Dept

Prima ry Na viga tor

Prima ry Na viga tor S pecia list

◻ httpsyoutubevB gTrpcR w-Q

MiNavigator Case Management

Incoming Calls Program Assistant

Incoming C a lls Progra m Assista nt

C a se E leva tion

DirectorC E OS ta te Dept

Prima ry Na viga tor

Prima ry Na viga tor S pecia list

◻ httpsyoutubevB gTrpcR w-Q

Navigating Adulthood What is Autism

Complex disorder of the brain characterized in varying degrees by

Difficulties in Social Communication Difficulties (verbal amp non-verbal)

Restricted amp Repetitive Patterns of Behavior

American Psychiatric Associationrsquos Diagnostic amp Statistical Manual of Mental Disorders is the main diagnostic reference used by mental health professionals and insurance providers in the United States

Previously Autism Spectrum Disorders were recognized as distinct subtypes

Autistic Disorder

Asperger Disorder

Pervasive Developmental Disorder- Not Otherwise Specified (PDD-NOS)

Childhood Disintegrative Disorder

With publication of the fifth edition of the DSM (DSM-5) all autism disorders were merged into one umbrella diagnosis called Autism Spectrum Disorder

Navigating Adulthood How is it diagnosed

No medical test currently available

Way of obtaining a diagnosis can vary

A typical evaluation involves a multidisciplinary team of clinicians including Physician Neurologist Psychiatrist Psychologist

Types of Assessments The Adult Asperger Assessment (AAA

includes the Autism-Spectrum Quotient [AQ]

and the Empathy Quotient [EQ])

The Autism Diagnostic Interview ndash Revised

(ADI-R)

The Autism Diagnostic Observation Schedule

ndash Generic (ADOS-G)

The Asperger Syndrome (and high-

functioning autism) Diagnostic Interview

(ASDI)

The Ritvo Autism Asperger Diagnostic Scale

ndash Revised (RAADS-R)

Navigating Adulthood NICE Guidelines Identification amp Assessment Consider assessment for possible autism when a person has

One or more of the following

persistent difficulties in social interaction

persistent difficulties in social communication

stereotypic (rigid and repetitive) behaviours resistance to change or restricted

interests

One or more of the following

o problems in obtaining or sustaining employment or education

o difficulties in initiating or sustaining social relationships

o previous or current contact with mental health or learning disability services

hi t f d l t l diti (i l di l i di biliti

Navigating Adulthood Diagnosis in Adults

Adults who notice the signs and symptoms of ASD should talk with a doctor and ask for a referral for an ASD evaluation

While testing for ASD in adults is still being refined adults can be referred to a psychologist or psychiatrist with ASD expertise

The expert will ask about concerns such as social interaction and communication challenges sensory issues repetitive behaviors and restricted interests

Information about the adultrsquos developmental history will help in making an accurate diagnosis so an ASD evaluation may include talking with parents or other family members

Navigating Adulthood Why the increased rate of diagnosis Changes in diagnostic practice associated

with more trained diagnosticians broadening of diagnostic criteria to include a spectrum of disorder in DSM V

The social and medical network supporting ASD has dramatically increased

Increased efforts at surveillance ndash combing through the community for hidden cases of autism

Clinicians are more knowledgeable of ASD so are better able to make the diagnosis even in subtle cases

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood How is it diagnosed

No medical test currently available

Way of obtaining a diagnosis can vary

A typical evaluation involves a multidisciplinary team of clinicians including Physician Neurologist Psychiatrist Psychologist

Types of Assessments The Adult Asperger Assessment (AAA

includes the Autism-Spectrum Quotient [AQ]

and the Empathy Quotient [EQ])

The Autism Diagnostic Interview ndash Revised

(ADI-R)

The Autism Diagnostic Observation Schedule

ndash Generic (ADOS-G)

The Asperger Syndrome (and high-

functioning autism) Diagnostic Interview

(ASDI)

The Ritvo Autism Asperger Diagnostic Scale

ndash Revised (RAADS-R)

Navigating Adulthood NICE Guidelines Identification amp Assessment Consider assessment for possible autism when a person has

One or more of the following

persistent difficulties in social interaction

persistent difficulties in social communication

stereotypic (rigid and repetitive) behaviours resistance to change or restricted

interests

One or more of the following

o problems in obtaining or sustaining employment or education

o difficulties in initiating or sustaining social relationships

o previous or current contact with mental health or learning disability services

hi t f d l t l diti (i l di l i di biliti

Navigating Adulthood Diagnosis in Adults

Adults who notice the signs and symptoms of ASD should talk with a doctor and ask for a referral for an ASD evaluation

While testing for ASD in adults is still being refined adults can be referred to a psychologist or psychiatrist with ASD expertise

The expert will ask about concerns such as social interaction and communication challenges sensory issues repetitive behaviors and restricted interests

Information about the adultrsquos developmental history will help in making an accurate diagnosis so an ASD evaluation may include talking with parents or other family members

Navigating Adulthood Why the increased rate of diagnosis Changes in diagnostic practice associated

with more trained diagnosticians broadening of diagnostic criteria to include a spectrum of disorder in DSM V

The social and medical network supporting ASD has dramatically increased

Increased efforts at surveillance ndash combing through the community for hidden cases of autism

Clinicians are more knowledgeable of ASD so are better able to make the diagnosis even in subtle cases

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood NICE Guidelines Identification amp Assessment Consider assessment for possible autism when a person has

One or more of the following

persistent difficulties in social interaction

persistent difficulties in social communication

stereotypic (rigid and repetitive) behaviours resistance to change or restricted

interests

One or more of the following

o problems in obtaining or sustaining employment or education

o difficulties in initiating or sustaining social relationships

o previous or current contact with mental health or learning disability services

hi t f d l t l diti (i l di l i di biliti

Navigating Adulthood Diagnosis in Adults

Adults who notice the signs and symptoms of ASD should talk with a doctor and ask for a referral for an ASD evaluation

While testing for ASD in adults is still being refined adults can be referred to a psychologist or psychiatrist with ASD expertise

The expert will ask about concerns such as social interaction and communication challenges sensory issues repetitive behaviors and restricted interests

Information about the adultrsquos developmental history will help in making an accurate diagnosis so an ASD evaluation may include talking with parents or other family members

Navigating Adulthood Why the increased rate of diagnosis Changes in diagnostic practice associated

with more trained diagnosticians broadening of diagnostic criteria to include a spectrum of disorder in DSM V

The social and medical network supporting ASD has dramatically increased

Increased efforts at surveillance ndash combing through the community for hidden cases of autism

Clinicians are more knowledgeable of ASD so are better able to make the diagnosis even in subtle cases

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood Diagnosis in Adults

Adults who notice the signs and symptoms of ASD should talk with a doctor and ask for a referral for an ASD evaluation

While testing for ASD in adults is still being refined adults can be referred to a psychologist or psychiatrist with ASD expertise

The expert will ask about concerns such as social interaction and communication challenges sensory issues repetitive behaviors and restricted interests

Information about the adultrsquos developmental history will help in making an accurate diagnosis so an ASD evaluation may include talking with parents or other family members

Navigating Adulthood Why the increased rate of diagnosis Changes in diagnostic practice associated

with more trained diagnosticians broadening of diagnostic criteria to include a spectrum of disorder in DSM V

The social and medical network supporting ASD has dramatically increased

Increased efforts at surveillance ndash combing through the community for hidden cases of autism

Clinicians are more knowledgeable of ASD so are better able to make the diagnosis even in subtle cases

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood Why the increased rate of diagnosis Changes in diagnostic practice associated

with more trained diagnosticians broadening of diagnostic criteria to include a spectrum of disorder in DSM V

The social and medical network supporting ASD has dramatically increased

Increased efforts at surveillance ndash combing through the community for hidden cases of autism

Clinicians are more knowledgeable of ASD so are better able to make the diagnosis even in subtle cases

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Penn State Study

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood LateMisdiagnosis

Aspergerrsquos syndrome was only added to the DSM-IV the handbook for diagnosing psychiatric disorders in 1994

It is not uncommon for adults to be misdiagnosed finally learning that they

were Autistic Some are diagnosed in early adulthood others as late as 60

Often these adults are mildly Autistic and in years before diagnosis of mild autism were common they were assumed to be eccentric or quirky

Misdiagnosed with other conditions most commonly with attention deficit intellectual disabilities or mental illnesses as diverse as obsessive-compulsive disorder to schizophrenia

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Navigating Adulthood Know the Facts

About 1 percent of the world population has autism spectrum disorder (CDC 2014) Prevalence in the United States is estimated at 1 in 68 births (CDC 2014) More than 35 million Americans live with an autism spectrum disorder (Buescher et al

2014) Autism services cost US citizens $236-262 billion annually (Buescher et al 2014) A majority of costs in the US are in adult services ndash $175-196 billion compared to $61-66 billion for children (Buescher et al 2014)

Prevalence of autism in US children increased by 1194 percent from 2000 (1 in 150) to 2010 (1 in 68) (CDC 2014) Autism is the fastest-growing developmental disability (CDC 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010 (Based on biennial numbers from the CDC)

Autism Speaks Study

Most expensive services Across all age groups the analysis identified the most expensive services

provided to many though certainly not all adults with autism These included

Community care (live-in) facilities at an average of $43867 per person per year

Day-care programs at an average of $11244 per person per year Out-of-home respite at $5268 per person per year Employment support at $4957 per person per year In-home respite at $3059 per person per year The researchers also estimated average state disability spending for children with autism at

approximately $10500 per child per year

Navigating Adulthood How is Autism Treated

Treatment for autism is generally includes behavioral educational and medical therapies involving a multidisciplinary team of professionals

Therapy should be evidenced-based individualized comprehensive structured and intensive focusing on developing or improving language communication and social interaction

Center-based or In-Home therapy options are available Therapies can include a wide range of tools services and

teaching strategies

Navigating Adulthood Evidence Based Therapies for ASD Established Interventions for Adults

Behavioral Interventional - ABA

Take into account Increased tendency for elevated anxiety about decision-making in people with

autism Greater risk of altered sensitivity and unpredictable responses to medication Environment for example whether it is suitably adapted for people with autism in

particular those with sensory sensitivities Presence and nature of sensory sensitivities and how these might impact on the

delivery of the therapy Importance of predictability clarity structure and routine for people with autism Nature of support needed to access therapy

Medical amp Mental Issues Associated with Autism Spectrum Disorder Seizure Disorder (Epilepsy) Genetic Disorders Gastrointestinal Problems Sleep Dysfunction Sensory Integration

Dysfunction Pica Bruxism Eczema

Coordination Disorder (fine and gross motor)

Feeding difficulties (sensory swallowing)

Attention Deficit Hyperactivity Disorder (ADHD)

Anxiety Disorder Aggression Self-injurious Behavior

Navigating Adulthood Core Features

Social and communication deficits Fixated interests Repetitive behaviors

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood How is Autism Treated

Treatment for autism is generally includes behavioral educational and medical therapies involving a multidisciplinary team of professionals

Therapy should be evidenced-based individualized comprehensive structured and intensive focusing on developing or improving language communication and social interaction

Center-based or In-Home therapy options are available Therapies can include a wide range of tools services and

teaching strategies

Navigating Adulthood Evidence Based Therapies for ASD Established Interventions for Adults

Behavioral Interventional - ABA

Take into account Increased tendency for elevated anxiety about decision-making in people with

autism Greater risk of altered sensitivity and unpredictable responses to medication Environment for example whether it is suitably adapted for people with autism in

particular those with sensory sensitivities Presence and nature of sensory sensitivities and how these might impact on the

delivery of the therapy Importance of predictability clarity structure and routine for people with autism Nature of support needed to access therapy

Medical amp Mental Issues Associated with Autism Spectrum Disorder Seizure Disorder (Epilepsy) Genetic Disorders Gastrointestinal Problems Sleep Dysfunction Sensory Integration

Dysfunction Pica Bruxism Eczema

Coordination Disorder (fine and gross motor)

Feeding difficulties (sensory swallowing)

Attention Deficit Hyperactivity Disorder (ADHD)

Anxiety Disorder Aggression Self-injurious Behavior

Navigating Adulthood Core Features

Social and communication deficits Fixated interests Repetitive behaviors

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Evidence Based Therapies for ASD Established Interventions for Adults

Behavioral Interventional - ABA

Take into account Increased tendency for elevated anxiety about decision-making in people with

autism Greater risk of altered sensitivity and unpredictable responses to medication Environment for example whether it is suitably adapted for people with autism in

particular those with sensory sensitivities Presence and nature of sensory sensitivities and how these might impact on the

delivery of the therapy Importance of predictability clarity structure and routine for people with autism Nature of support needed to access therapy

Medical amp Mental Issues Associated with Autism Spectrum Disorder Seizure Disorder (Epilepsy) Genetic Disorders Gastrointestinal Problems Sleep Dysfunction Sensory Integration

Dysfunction Pica Bruxism Eczema

Coordination Disorder (fine and gross motor)

Feeding difficulties (sensory swallowing)

Attention Deficit Hyperactivity Disorder (ADHD)

Anxiety Disorder Aggression Self-injurious Behavior

Navigating Adulthood Core Features

Social and communication deficits Fixated interests Repetitive behaviors

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Medical amp Mental Issues Associated with Autism Spectrum Disorder Seizure Disorder (Epilepsy) Genetic Disorders Gastrointestinal Problems Sleep Dysfunction Sensory Integration

Dysfunction Pica Bruxism Eczema

Coordination Disorder (fine and gross motor)

Feeding difficulties (sensory swallowing)

Attention Deficit Hyperactivity Disorder (ADHD)

Anxiety Disorder Aggression Self-injurious Behavior

Navigating Adulthood Core Features

Social and communication deficits Fixated interests Repetitive behaviors

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Core Features

Social and communication deficits Fixated interests Repetitive behaviors

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Independent Living

Hygiene meal preparation shopping (social anxiety crowds)

Social Interaction- family friendships relationships co-workers

Safety skills

social media online safety

sexual encounters

intersecting with the justice system-

competency assessments

Financialbudgeting

Transportation

Anxiety with driving (what is different for autism-able bodied people who have good vision but have high anxiety about driving)

Lack of public transportation routes - difficult to schedule pickup

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Barriers with Communication

Sending Nonverbal Messages Standing too close Speaking in monotone Not making eye contact

Interpreting Nonverbal Signals Realizing when someone is upset with them Understanding implied requests from supervisors Understanding jokes or sarcasm

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Clear vs Unclear Language

Abstract language and sarcasm can often be confusing for an individual with autism It is important to be aware of our own language and understand that what we say may be taken literally Using words such as ldquomayberdquo ldquousuallyrdquo ldquosometimesrdquo etc when

stating when events are taking place ldquoClass is on Wednesdayrdquo

Metaphors may be taken in a literal sense ldquoThat politician is a sly foxrdquo

Examples of phrases that could be taken literally ldquoKeep your chin uprdquo ldquoWhatrsquos uprdquo ldquoGet your foot in the doorrdquo ldquoWear your heart on your sleeverdquo ldquoPut my foot in my mouthrdquo

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Intimacy amp Dating Public versus private behavior Good touch vs bad touch Proper names of body parts Personal boundaries Signs of danger Abuse prevention Social skills and relationship building (case study) Dating skills Personal responsibility and values

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Sleep Disorders

Studies have found individuals with ASD experience more sleep problems than most with estimates of significant sleep disturbance reported in 40mdash80 of the population

Insufficient sleep can lead to chronic sleep deprivation for both the individual and the family or caregivers increasing the stress and decreasing daily function

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Sleep Disorders (cont)

Heightened sensory experiences sensitivity to light touch or sound

Sleep apnea Night terrors Seizures

Anxiety Insufficient physical activity Natural wakesleep cycles disturbances Abnormal melatonin regulation Gastroesophageal reflux

Research is increasingly pointing to underlying medical issues as a significant factor in sleep disruption associated with ASD including

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Medication

A doctor may use medication to treat some difficulties that are common with ASD With medication a person with ASD may have fewer problems with

Irritability Aggression Repetitive behavior Hyperactivity Attention problems Anxiety and depression

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Jeffrey Allen Ford

Americas 2016 Genius of the year- World Genius Directory

Author

Autism Advocate

linkhttpswwwyoutubecomwatchv=iFsRbMxp8dw

Navigating Adulthood Special Interests vs Splinter Skills

Individuals with autism may display Splinter Skills throughout life These type of skills allow the individual to have an ability to perform a specific task that does not generalize to other tasks

Example Dates trivia facts

Navigating Adulthood A Savant

The condition is rare but 1 in 10 autistic persons show some savant skills

Considering all the abilities in the human repertoire it is interesting that savant skills are usually found in 5 general categories

Music usually performance most often piano with perfect pitch composing in the absence of performing has been reported as has playing multiple instruments (as many as 20) (Case Study)

Art usually drawing painting or sculpting

Calendar calculating (curiously an obscure skill in most persons)

Mathematics including lightning calculating or the ability to compute prime numbers for example in the absence of other simple arithmetic abilities

Mechanical or spatial skills including the capacity to measure distances precisely without benefit of instruments the ability to construct complex models or structures with painstaking accuracy or the mastery of mapmaking and direction-finding

Savant in Art

Navigating Adulthood Basic Sensory

Sensory Exercise

Navigating Adulthood Behavioral Accommodations

The characteristic of someone with autism and affect his or her judgement and safety

Amount of personal space given (at least an arms length) Setting using visual supports (for example use labels with words or symbols

to provide visual cues about expected behaviour) Colour of walls and furnishings (avoid patterns and use low-arousal colours

such as cream) Lighting (reduce fluorescent lighting use blackout curtains or advise use of

dark glasses or increase natural light) Noise levels (reduce external sounds or advise use of earplugs or ear

defenders)

Non-Verbal Autism

Navigating Adulthood A Savant

The condition is rare but 1 in 10 autistic persons show some savant skills

Considering all the abilities in the human repertoire it is interesting that savant skills are usually found in 5 general categories

Music usually performance most often piano with perfect pitch composing in the absence of performing has been reported as has playing multiple instruments (as many as 20) (Case Study)

Art usually drawing painting or sculpting

Calendar calculating (curiously an obscure skill in most persons)

Mathematics including lightning calculating or the ability to compute prime numbers for example in the absence of other simple arithmetic abilities

Mechanical or spatial skills including the capacity to measure distances precisely without benefit of instruments the ability to construct complex models or structures with painstaking accuracy or the mastery of mapmaking and direction-finding

Savant in Art

Navigating Adulthood Basic Sensory

Sensory Exercise

Navigating Adulthood Behavioral Accommodations

The characteristic of someone with autism and affect his or her judgement and safety

Amount of personal space given (at least an arms length) Setting using visual supports (for example use labels with words or symbols

to provide visual cues about expected behaviour) Colour of walls and furnishings (avoid patterns and use low-arousal colours

such as cream) Lighting (reduce fluorescent lighting use blackout curtains or advise use of

dark glasses or increase natural light) Noise levels (reduce external sounds or advise use of earplugs or ear

defenders)

Non-Verbal Autism

Savant in Art

Navigating Adulthood Basic Sensory

Sensory Exercise

Navigating Adulthood Behavioral Accommodations

The characteristic of someone with autism and affect his or her judgement and safety

Amount of personal space given (at least an arms length) Setting using visual supports (for example use labels with words or symbols

to provide visual cues about expected behaviour) Colour of walls and furnishings (avoid patterns and use low-arousal colours

such as cream) Lighting (reduce fluorescent lighting use blackout curtains or advise use of

dark glasses or increase natural light) Noise levels (reduce external sounds or advise use of earplugs or ear

defenders)

Non-Verbal Autism

Navigating Adulthood Basic Sensory

Sensory Exercise

Navigating Adulthood Behavioral Accommodations

The characteristic of someone with autism and affect his or her judgement and safety

Amount of personal space given (at least an arms length) Setting using visual supports (for example use labels with words or symbols

to provide visual cues about expected behaviour) Colour of walls and furnishings (avoid patterns and use low-arousal colours

such as cream) Lighting (reduce fluorescent lighting use blackout curtains or advise use of

dark glasses or increase natural light) Noise levels (reduce external sounds or advise use of earplugs or ear

defenders)

Non-Verbal Autism

Navigating Adulthood Behavioral Accommodations

The characteristic of someone with autism and affect his or her judgement and safety

Amount of personal space given (at least an arms length) Setting using visual supports (for example use labels with words or symbols

to provide visual cues about expected behaviour) Colour of walls and furnishings (avoid patterns and use low-arousal colours

such as cream) Lighting (reduce fluorescent lighting use blackout curtains or advise use of

dark glasses or increase natural light) Noise levels (reduce external sounds or advise use of earplugs or ear

defenders)

Non-Verbal Autism

Non-Verbal Autism

Navigating Adulthood Co-Occurring (Mental amp Physical) Health

Other neurodevelopmental conditions (use formal assessment tools for learning

disabilities)

Mental disorders (for example schizophrenia depression or other mood disorders

and anxiety disorders in particular social anxiety disorder and obsessivendash

compulsive disorder)

Neurological disorders (for example epilepsy)

Physical disorders

Communication difficulties (for example speech and language problems and

selective mutism)

Sensory sensitivities

Navigating Adulthood Co-Occurring (Mental amp Physical) Health

Emotional Dysregulation When we are emotionally regulated we are best able to

learn and engage with others Neurological system in ASD doesnrsquot filter out excessive

stimulation hunger fatigue hotcold danger Increased vulnerability to discomfort anxiety confusion Decreased ability to cope

Navigating Adulthood Emotional Regulation

Emotional Regulation The automatic or intentional modification of a personrsquos emotional state that promotes adaptive or goal-directed behavior Strategies can be put in place to assist in an individualrsquos ability to remain emotionally regulated

Impaired ER can exacerbate problems with attention communication problem-solving and social interaction

If an adult with ASD does stop to think about the situation before reacting the tendency to be rigid and engage black-and-white thinking may still prevent a flexible and adaptive ER response

Characteristics of ASD that may contribute to emotion dysregulation

Navigating Adulthood Emotional Dysregulation

Just as autism looks different on everyone as does emotional dysregulation Spectrum of Dysregulation

Anxiety Sweaty Palms Canrsquot Focus

Itchy Sweater Irritated Pacing Heart Racing lsquoHangryrsquo Out of Sorts Highly Sensitive to Light Highly Sensitive to Sound Sensitive to Touch Fear

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Navigating Adulthood Co-Occurring (Mental amp Physical) Health

Emotional Dysregulation When we are emotionally regulated we are best able to

learn and engage with others Neurological system in ASD doesnrsquot filter out excessive

stimulation hunger fatigue hotcold danger Increased vulnerability to discomfort anxiety confusion Decreased ability to cope

Navigating Adulthood Emotional Regulation

Emotional Regulation The automatic or intentional modification of a personrsquos emotional state that promotes adaptive or goal-directed behavior Strategies can be put in place to assist in an individualrsquos ability to remain emotionally regulated

Impaired ER can exacerbate problems with attention communication problem-solving and social interaction

If an adult with ASD does stop to think about the situation before reacting the tendency to be rigid and engage black-and-white thinking may still prevent a flexible and adaptive ER response

Characteristics of ASD that may contribute to emotion dysregulation

Navigating Adulthood Emotional Dysregulation

Just as autism looks different on everyone as does emotional dysregulation Spectrum of Dysregulation

Anxiety Sweaty Palms Canrsquot Focus

Itchy Sweater Irritated Pacing Heart Racing lsquoHangryrsquo Out of Sorts Highly Sensitive to Light Highly Sensitive to Sound Sensitive to Touch Fear

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Navigating Adulthood Emotional Regulation

Emotional Regulation The automatic or intentional modification of a personrsquos emotional state that promotes adaptive or goal-directed behavior Strategies can be put in place to assist in an individualrsquos ability to remain emotionally regulated

Impaired ER can exacerbate problems with attention communication problem-solving and social interaction

If an adult with ASD does stop to think about the situation before reacting the tendency to be rigid and engage black-and-white thinking may still prevent a flexible and adaptive ER response

Characteristics of ASD that may contribute to emotion dysregulation

Navigating Adulthood Emotional Dysregulation

Just as autism looks different on everyone as does emotional dysregulation Spectrum of Dysregulation

Anxiety Sweaty Palms Canrsquot Focus

Itchy Sweater Irritated Pacing Heart Racing lsquoHangryrsquo Out of Sorts Highly Sensitive to Light Highly Sensitive to Sound Sensitive to Touch Fear

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Characteristics of ASD that may contribute to emotion dysregulation

Navigating Adulthood Emotional Dysregulation

Just as autism looks different on everyone as does emotional dysregulation Spectrum of Dysregulation

Anxiety Sweaty Palms Canrsquot Focus

Itchy Sweater Irritated Pacing Heart Racing lsquoHangryrsquo Out of Sorts Highly Sensitive to Light Highly Sensitive to Sound Sensitive to Touch Fear

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Navigating Adulthood Emotional Dysregulation

Just as autism looks different on everyone as does emotional dysregulation Spectrum of Dysregulation

Anxiety Sweaty Palms Canrsquot Focus

Itchy Sweater Irritated Pacing Heart Racing lsquoHangryrsquo Out of Sorts Highly Sensitive to Light Highly Sensitive to Sound Sensitive to Touch Fear

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Navigating Adulthood Self-Advocacy

Human Behavior Individuals with autism struggle to

change We need to understand them and

change our attitudes our listening and observation skills the types of support that we provide and what we do

There is no such thing as ldquoautistic behaviorrdquo

Itrsquos never too early to begin speaking up for yourself

Being able to ask for what you need Practice negotiating for yourself

(working with others to reach an agreement that will meet your needs)

Understanding your rights and responsibilities

Using the resources that are available to you

Being able to explain your disability either by the use of written words pictures or gestures

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

ldquoSelf-advocacy plays a vital role in nearly every aspect of lifehellipThe more self-aware people on the spectrum become the more they can be players in advocating for their own comfort happiness and well-beingrdquo

The Integrated Self-Advocacy Curriculum by Valerie Paradiz PhD

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Navigating Adulthood Pressing Questions

How do we as a society help this group of citizens achieve their rightful place as participating members of society and in so doing transition from an all too common status as dependency to engaged involved and ideally tax paying members of their communities

Where are we

Where do we want to go

How will we get there

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Resources

American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders5th ed Arlington VA American Psychiatric Association 2013

The ARC The Autistic Self Advocacy Network October 2 2012 httpautismnoworgarticlesautism-and-adult-diagnosisAssociation for Science in Autism Treatment (ASAT) wwwasatonlineorg

Autism spectrum disorder in adults diagnosis and management Clinical guideline [CG142] Published date June 2012 (NICE guideline CG128)

Autism Research Institute Sleep disorders in ASD 1967-2016 httpswwwautismcomindexphpsleeplessness_main

Baron-Cohen S Wheelwright S Robinson J et al (2005) The Adult Asperger Assessment (AAA) a diagnostic method Journal of Autism and Developmental Disorders 35 807ndash19

Child Adolesc Psychiatr Clin N Am 2014 Jan 23(1) 101016jchc201307002Published online 2013 Aug 30 doi 101016jchc201307002

Paul T Shattuck The Contribution of Diagnostic Substitution to the Growing Administrative Prevalence of Autism in US Special Education PEDIATRICS Vol 117 No 4 April 2006 pp 1028-1037

Gillberg C Gillberg C Rastam M et al (2001) The Asperger Syndrome (and high-functioning autism) Diagnostic Interview (ASDI) a preliminary study of a new structured clinical interview Autism 5 57ndash66

Resources (cont)

Leigh J Grosse S Cassady D Melnikow J Hertz-Picciotto I Spending by Californiarsquos Department of Developmental Services for Persons with Autism across Demographic and Expenditure Categories (2016)PLOS-One httpdxdoiorg101371journalpone0151970

Lord C Pickles A McLennan J et al (1997) Diagnosing autism analyses of data from the Autism Diagnostic Interview Journal of Autism and Developmental Disorders 27 501ndash17

Lord C Risi S Lambrecht L et al (2000) The Autism Diagnostic Observation Schedule ndash Generic a standard measure of social and communication deficits associated with the spectrum of autism Journal of Autism and Developmental Disorders 30 205ndash23

Mazefsky CA Herrington J Siegel M et al The Role of Emotion Regulation in Autism Spectrum Disorders J Am Acad Child Psychiatry 2013 in press

Polyak A Kubina R Girirajan S Comorbidity on the Diagnosis and Prevalence of Autism The Pennsylvania State University Am J Med Genet B Neuropsychiatr Genet 2015 Oct168(7)600-8 doi 101002ajmgb32338 Epub 2015 Jul 22

Resources (cont)

Ritvo RA Ritvo ER Guthrie D et al (2011) The Ritvo Autism Asperger Diagnostic Scale ndash Revised (RAADS-R) a scale used to assist the diagnosis of autism spectrum disorders in adults an international validation study Journal of Autism and Developmental Disorders 41 1076ndash89 httpswwwnimhnihgovhealthtopicsautism-spectrum-disorders-asdindexshtmlutm_source=rss_readersutm_medium=rssutm_campaign=rss_fullpart_145439

Treffert D Extraordinary People Understanding Savant Syndrome Omaha NE IUniversecom 2000 httpswwwwisconsinmedicalsocietyorg_WMSsavantpdfresourcesarticlessavant_articlepdf

U S Department of Health and Human Services National Institutes of Health National Institute of Mental Health (2015) NIMH Strategic Plan for Research (NIH Publication No 02-2650) Retrieved from httpswwwnimhnihgovhealthtopicsautism-spectrum-disorders-asdindexshtml