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WG 5 Rio September 2005 Marijke de Kleijn 1
National Institutefor Public Health andthe Environment
Washington Group on Disability Statistics:
extended sets
Marijke W. de Kleijn – de VrankrijkerWHO-FIC Collaborating Centre
The Netherlands
WG 5 Rio September 2005 Marijke de Kleijn 2
National Institutefor Public Health andthe Environment
Outline
• Objectives of WG and task of group 3• Purpose of short set and extended sets• Content of extended set 1 and 2 related to
short set• Content of proposed set 1• Testing questions related to proposed set 1 • Content of extended set 2
WG 5 Rio September 2005 Marijke de Kleijn 3
National Institutefor Public Health andthe Environment
WG objectives
• Develop a small set/s of general disability measures
• Recommend extended set/s of items to measure disability as components of population surveys
• Address methodological issues associated with disability measurement
WG 5 Rio September 2005 Marijke de Kleijn 4
National Institutefor Public Health andthe Environment
Purpose short set
• Purpose for international comparability of disability measures/data
• Highest priority given to assessing equalization of opportunities
• Partially fulfills purpose of monitoring limitations in functioning in the population
WG 5 Rio September 2005 Marijke de Kleijn 5
National Institutefor Public Health andthe Environment
Purpose extended sets
• Should be same as short set
• International comparability– Equalization of opportunities– Monitoring functioning and disability in population
• This means inclusion of all ICF components – Body function/structure, impairments– Activity, limitations– Participation, restrictions– Environmental factors, barriers/facilitators
WG 5 Rio September 2005 Marijke de Kleijn 6
National Institutefor Public Health andthe Environment
Short setResponse categories: No, some, a lot, cannot do at all
1) Do you have difficulty seeing even if wearing glasses?2) Do you have difficulty hearing even if using a hearing aid?3) Do you have difficulty walking or climbing steps?4) Do you have difficulty remembering or concentrating?5) Do you have difficulty with (self-care such as) washing all
over or dressing?6) Because of a physical, mental, or emotional health
condition, do you have difficulty communicating (for example understanding others or others understanding you?
WG 5 Rio September 2005 Marijke de Kleijn 7
National Institutefor Public Health andthe Environment
Content of extended sets
• Bangkok meeting:• Set 1:
– functions and basic activities – related to current 6 domains of short set +
additional functions and basic activities
• Set 2: – other activities, – participation and – environment
WG 5 Rio September 2005 Marijke de Kleijn 8
National Institutefor Public Health andthe Environment
Short sets vs extended setsICF component
Short set
Extended set 1
Extended set 2
Short set 2?
Body function
+ + - -
Body structure
+? +? - -
Activity +/- +/- +/- +/-
Partici-pation
- - + +
Environmental factors
- - + +
WG 5 Rio September 2005 Marijke de Kleijn 9
National Institutefor Public Health andthe Environment
Testing of short set
• Use of extended set(s)
• Recommended to use existing instruments = first extended set?
WG 5 Rio September 2005 Marijke de Kleijn 10
National Institutefor Public Health andthe Environment
First extended set
First proposal to group 3: • WHS-8
• WHO-DAS-12
WG 5 Rio September 2005 Marijke de Kleijn 11
National Institutefor Public Health andthe Environment
First extended set
• After comments from group members, proposal:
• WHS-17• WHO-DAS-12• Speech question• Total 30 questions
WG 5 Rio September 2005 Marijke de Kleijn 12
National Institutefor Public Health andthe Environment
WHS-17 items
• Sleep• Feeling sad• Anxiety• Seeing/recognizing a person• Seeing/recognizing object, reading• Hearing someone• Hearing conversation• Aches/pain• Bodily discomfort
WG 5 Rio September 2005 Marijke de Kleijn 13
National Institutefor Public Health andthe Environment
WHS-17 items (2)
• Shortness of breath at rest• Shortness of breath mild exercise• Coughing• Appearance deformed• Skin defects• Defecation• Urinating• Using hands/fingers
WG 5 Rio September 2005 Marijke de Kleijn 14
National Institutefor Public Health andthe Environment
WHO-DAS-12
• Concentrating doing• Emotially affected• Learning new tasks• Standing• Walking long distance• Washing whole body
WG 5 Rio September 2005 Marijke de Kleijn 15
National Institutefor Public Health andthe Environment
WHO-DAS-12 items (2)
• Getting dressed• Household responsibilities• Dealing with people• Friendship• Day-to-day activities (work/school)• Community activities
WG 5 Rio September 2005 Marijke de Kleijn 16
National Institutefor Public Health andthe Environment
UNESCAP pilot studies
• Pilot studies UNESCAP region• We have to use the experiences
from those pilots• Questionnaire including:
– WG short set– WHS-17– WHO-DAS-36– 4 questions on met/unmet needs for
assistance
WG 5 Rio September 2005 Marijke de Kleijn 17
National Institutefor Public Health andthe Environment
Testing short set
• Group 2 selected questions for testing the short set from:
• WHS• WHO-DAS• SF-36 mental component• Total 27 questions
WG 5 Rio September 2005 Marijke de Kleijn 18
National Institutefor Public Health andthe Environment
Items mapped to ICF
• Short set• WHS-8• WHS-17• WHO-DAS-12• Eurostat health module • Test questions
• Mapped to ICF see matrix
WG 5 Rio September 2005 Marijke de Kleijn 19
National Institutefor Public Health andthe Environment
Second extended set
Based on analysis of existing national survey questionnaires
• Common questions/areas and missing areas compared to ICF
• Next presentation Margie Schneider and Marijke de Kleijn
WG 5 Rio September 2005 Marijke de Kleijn 20
National Institutefor Public Health andthe Environment
Testing general set
• Testing general set 2005
• Including extended questions (which?)
WG 5 Rio September 2005 Marijke de Kleijn 21
National Institutefor Public Health andthe Environment
Dank voor uw aandacht
www.rivm.nl/who-fic
