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JDRF BACKGROUNDER | 1
National Director, Leadership Giving
JDRF New York, NY
http://www.jdrf.org
Introduction
JDRF International, the world’s leading charitable funder of type 1 diabetes (T1D) research, was founded in
1970 by parents of children with type 1 diabetes — a disease that strikes people suddenly, makes them
insulin dependent for life, and carries the constant threat of devastating complications.
JDRF’s mission is to accelerate life-changing breakthroughs to cure, prevent, and treat T1D and its
complications. To accomplish this, JDRF has invested nearly $2 billion in research funding since its inception.
JDRF is an organization built on a grassroots model of
people connecting in their local communities,
collaborating regionally for efficiency and broader
fundraising impact, and uniting on a national stage to
pool resources, passion, and energy. JDRF collaborates
with academic institutions, policymakers, and
corporate and industry partners to develop and deliver
a pipeline of innovative therapies to people living with
T1D. Its staff and volunteers in nearly 80 Chapters
throughout the United States and its six international
Send Nominations or Cover Letter and Resume to:
Terri Rutter
617-262-1102
trutter@LLL
Search Director
Searches.com
JDRF BACKGROUNDER | 2
affiliates are dedicated to advocacy, community engagement, and a vision of a world without T1D.
What is type 1 diabetes?
Type 1 diabetes is an autoimmune disease that strikes both children and adults suddenly. It has nothing to
do with diet or lifestyle. There is nothing you can do to prevent it. And, at present, there is no cure.
In T1D, your pancreas stops producing insulin — a hormone the body needs to get energy from food. This
means a process your body does naturally and automatically becomes something that now requires your
daily attention and manual intervention. If you have T1D, you must constantly monitor your blood-sugar
level, inject or infuse insulin through a pump, and carefully balance these insulin doses with your eating and
activity throughout the day and night.
However, insulin is not a cure for diabetes. Even with the most vigilant disease management, a significant
portion of your day will be spent with either high or low blood-sugar levels. These fluctuations place people
with T1D at risk for potentially life-threatening hypoglycemic and hyperglycemic episodes, as well as
devastating long-term complications, such as kidney failure, heart attack, stroke, blindness, and
amputation. Learn more about T1D.
The Opportunity:
The National Director, Leadership Giving will join a team
of passionate, committed fundraisers who are driven to
end type 1 diabetes for good. This is an opportune time
to join JDRF as it embarks on a new strategy for raising
critical support for T1D research and to be part of an
organization that is recognized internationally for its
leadership in the fight to end this disease.
Position Overview – National Director, Leadership Giving
Reporting to the Vice President, Leadership Giving, the National Director, Leadership Giving is a senior major
gifts officer responsible for raising funds for the JDRF mission by creating deeper relationships with those
with a giving capacity of $100K+ and ensuring that all donors have a high quality, increasingly personalized
experience with JDRF and understand the impact of their giving.
JDRF BACKGROUNDER | 3
Role:
• Manage a portfolio of ~150-200 prospects/donors capable of making a $100K+ pledged or outright
gift based on a variety of criteria, including historical relationships, referral sources, and geography.
• Develop and execute strategies for each prospect to guide each through the identification,
qualification, cultivation, solicitation, and stewardship of these relationships in support of the
National Leadership Giving revenue goal.
• Help to develop a collaborative culture in which the donor’s experience is put first and foremost as
their exposure across the organization evolves and maximize their support, regardless of the
programs they are supporting or the level at which they are giving. This will be executed through the
Prospect Management Teams, which will include the expertise that all players bring to the table.
Responsibilities:
• Deliver on an annual personal revenue goal of $4-5M, in any of the three Leadership Giving revenue
streams (Primary, Fund A Cure $10K+, and T1D Fund), at least $3M of which is not budgeted at the
chapter level. Gifts secured by these individuals will accrue to the donor’s home chapter.
• Partner with Executive Director, Regional Director, Leadership Giving staff, and volunteer partners
across JDRF to ensure that thoughtful and comprehensive strategies are in place for all prospects
and donors in portfolio.
• Ensure ongoing revenue growth with strategic focus on retaining and upgrading donors while
building a robust pipeline of prospects.
• Identify new leadership giving prospects from various sources capable of gifts of $100K+.
• Achieve annual moves management activity goals of 120 face-to-face visits, 180 strategic moves, 48
solicitations, and 20 new lead qualifications.
• Participate in and support senior leadership chapter visits as dictated by their portfolio assignments.
This would include partnering with Prospect Research to ensure that briefing materials include all
information about their donors that is appropriate. May or may not include being present for the
actual event, dictated by prospects scheduled to attend. Would include responsibility for any post-
event follow up with their donors.
• Responsible for accurate and timely entry of all activities in CRM. This includes responsibility for all
fields as dictated by SOPs for ND CRM use.
• Develop and maintain a deep understanding of JDRF research and mission in order to articulate the
overall vision and strategic direction of JDRF while maintaining a strong grasp of $100K+ investment
initiatives.
JDRF BACKGROUNDER | 4
• Partner with National Manager of Donor Relations, Stewardship Department, and Marketing and
Communications in order to develop a meaningful individualized, year-round stewardship plan for
each donor.
• Support a donor-centric culture by encouraging staff to think beyond individual events and annual
budgets and consider long-term, strategic, donor-driven giving.
• Participate in quarterly review meeting with National Director of Planned Giving to identify Planned
Giving prospects for the Region (5% to 10% of portfolio).
• Create and implement Planned Giving strategy for those donors for whom this is the next logical
step in their philanthropic giving.
• Participate in Planned Giving incentive program.
• Perform all other responsibilities and projects as assigned by his/her immediate supervisor and
senior management.
Qualifications:
• Individual performer with a track record of $100K+ gift fundraising success.
• Collaborative professional who is comfortable with complex relationships that require partnership,
negotiation, consensus building, and compromise to reach organizational goals.
• Strong communication and interpersonal skills with the aptitude for persuasion.
• Results-driven with the talent for creative problem solving.
• Track record of working effectively with volunteers and staff through effective persuasion and
influencing techniques.
• Able to effectively apply moves management techniques and to utilize prospect research tools.
• Able to be effective, productive, and take initiative while working independently out of a home
office. Self-starter who requires little supervision.
• Strong organizational, managerial/mentoring, and leadership skills; able to quickly address conflicts
to achieve effective solutions.
• Able to effectively establish priorities and work in a fast-paced environment. Highly efficient in time
management and ability to meet deadlines under pressure.
• Superior active listening, observation, analytical, and problem recognition and solving skills.
• Trusted professional able to ensure that the confidentiality and security of all information under
his/her supervision is maintained.
• Excellent writing, presentation, and public speaking skills.
• Ability to travel at least 50% of the time, including overnight travel and weekends.
• Commitment to JDRF values: passionate, innovative, collaborative, respectful, trustworthy,
appreciative, and results oriented.
JDRF BACKGROUNDER | 5
Experience & Requirements:
• 10+ years of successful professional, individual, and foundation major gifts fundraising experience or
an equivalent combination of education and experience.
Education:
• Bachelor’s degree required. Advanced degree or CFRE preferred.
Development Overview
Under the leadership of Chief Development Officer Sandra Hijikata and Vice President, Leadership Giving
Patrick Reedy, the strategy for leadership fundraising is moving from an events-centered model to one
focused on raising major and principal gifts. Working in close collaboration with the National Directors, who
work closely with the Executive Directors of chapters across the country and internationally, the National
Directors, Leadership Giving cultivate relationships on the national level to drive giving.
Client Overview
JDRF is the leading global organization funding type 1 diabetes (T1D) research. JDRF’s goal is to
progressively remove the impact of T1D from people’s lives until we achieve a world without T1D. JDRF
collaborates with a wide spectrum of partners and is the only organization with the scientific resources,
regulatory influence, and a working plan to better treat, prevent, and eventually cure T1D.
Less Until None
JDRF is the only global organization with a strategic
plan to bring those living with T1D a continuous flow
of life-changing therapies and, ultimately, a cure for
the disease. JDRF’s highest priority remains funding
research to deliver a cure for T1D and its
complications. At the same time, JDRF is also
focused on developing better treatments that will
transform the way people with T1D treat the disease
today, in order to help them live healthier lives now and in the future. Finally, JDRF also seeks to prevent
T1D, to keep future generations from developing the disease.
JDRF BACKGROUNDER | 6
This is all part of JDRF’s promise of “less until none:” to progressively remove the impact of T1D from the
lives of those living with the disease until it is no longer a threat to them or their families.
Innovation and Collaboration
JDRF-funded research has led to many landmark advances in T1D science. JDRF is now in the exciting
position of taking that research knowledge and translating it into real therapies that will make life-changing
differences for those facing the daily challenges of T1D. Currently, JDRF is funding more than 50 human
clinical trials, several of which are in the advanced stages of clinical testing needed before FDA approvals
can be sought.
JDRF’s influence and leadership extends beyond funding
research. It strategically partners with industry,
governments, foundations, academia, healthcare
insurers, and clinicians to ensure that JDRF and its
partners are aligned and working toward a common goal
of a world without T1D.
JDRF’s advocacy efforts help support a variety of issues
that are critical to JDRF achieving its research objectives.
Its focus includes increased government funding for T1D
research and a regulatory environment that allows people with T1D to benefit from potential new therapies
and devices as quickly and safely as possible. Finally, JDRF’s outreach efforts provide practical support and
resources for people with T1D and their families every step of the way as they live with T1D.
Effective Operations
JDRF has always been dedicated to maintaining the highest levels of efficiency to ensure that time,
resources, and dollars can achieve the greatest possible impact on the lives of people with T1D. It has a solid
track record of funding research efficiently and effectively. Approximately 80% of what JDRF spends goes
directly to research and research-related education — among the highest percentages for charities
nationwide.
Inspiring Results
JDRF was created — and is still led — by people with a personal connection to T1D. Today, volunteers at
JDRF’s dozens of locations worldwide remain the driving force behind our activities. That provides an
unrelenting passion and commitment to work to remove the impact of T1D from people’s lives. Whether it’s
providing funding for a late-stage clinical trial, advocating faster regulatory approval of new devices, or
JDRF BACKGROUNDER | 7
partnering with a company on research that might
not otherwise receive funding, every decision JDRF
makes is driven by its commitment to achieving a
world without T1D.
JDRF has led the search for a cure for T1D since its
founding in 1970. In those days, people commonly
called the disease “juvenile diabetes” because it was
frequently diagnosed in, and strongly associated
with, young children. The organization began as the
Juvenile Diabetes Foundation. Later, to emphasize exactly how it planned to end the disease, a word was
added and the organization became the Juvenile Diabetes Research Foundation. Today, there are an equal
number of children and adults diagnosed every day — approximately 110 people per day. Thanks to better
therapies — which JDRF funding has been instrumental in developing and making available — people with
T1D live longer and stay healthier while they await the cure. A few years ago, the organization changed its
name to JDRF:
• To remove the misconception that T1D is only a childhood disease;
• To acknowledge that nearly 85% of people living with the disease are over age 18; and
• To reinforce its commitment to funding research that improves life for people at all ages and all
stages of the disease.
Research Funding:
JDRF is driving research across the entire scientific spectrum, from discovery in the laboratory to delivery of
new technologies and treatments to people with T1D. The full impact of JDRF’s research investment extends
well beyond its direct funding. Now more than ever, JDRF sees the value in leveraging partnerships with
academia, industry, and clinicians to ensure that the most promising research opportunities are funded and
accelerated. JDRF often provides early-stage funding to research projects, and the results of those projects
often lead to follow-on participation from many other entities — both other nonprofit funders and
corporations.
JDRF’s investments are supporting the development of next-generation therapies like artificial pancreas
technology, beta cell replacement, smart insulin that can turn on and off in response to blood sugar levels
and, ultimately, methods for curing and preventing T1D.
JDRF BACKGROUNDER | 8
• JDRF is the leading global organization funding T1D research with dozens of U.S. locations and six
international affiliates.
• Since inception, JDRF has contributed more than $2B to T1D research.
• JDRF is currently funding 50 human clinical trials of potential T1D therapies.
• Approximately 80% of JDRF expenditures directly support T1D research and research-related
education.
Location
New York, NY:
Background Checks:
Prior to submitting your resume for this position,
please read it over for accuracy. LLLS does verify academic credentials for its candidates, and our clients
frequently conduct background checks prior to finalizing an offer.
JDRF is headquartered in New York, NY, and has 80
chapters throughout the United States.
National Directors, Leadership Giving work from
their
home offices. This role is for the Northeast region, sosuccessful candidates will be located in this area.
JDRF BACKGROUNDER | 9
To learn more, call
Terri Rutter, Search Director at
617-262-1102
or send nominations or cover letter and resume to
All inquiries will be held in confidence.
Setting the Standard in Development Search
LOIS L. LINDAUER SEARCHES, LLC
420 Boylston Street, Suite 604, Boston, MA 02116
617.262.1102
www.LLLSearches.com
JDRF BACKGROUNDER | 10
Appendix
Leadership:
Derek K. Rapp
President & CEO
Derek Rapp is President and CEO of JDRF. Prior to be being appointed to this position
in 2014, he served as Vice Chair of the JDRF International Board of Directors.
Before taking the helm of JDRF, Derek Rapp was Mergers and Acquisitions Lead for Monsanto Company and
previously served 10 years as CEO of Divergence, Inc. a start-up biotechnology company. Rapp has been
involved with JDRF since his son, Turner, was diagnosed with the disease in 2004. He has served on the JDRF
IBOD since 2010. In addition to that role, he has served as Research Chair and as a member of the Research
Committee, the Lay Review Committee, the Strategic Alliances Committee, the Development Committee,
and the Advocacy Committee. His wife, Emily, was Board President for the Greater Missouri/Southern Illinois
Chapter of JDRF.
Sandra Hijikata
Chief Development Officer
Sandra Hijikata is the Chief Development Officer at JDRF, where she is responsible for
leadership of all fundraising strategies and chapter operations. Sandra joined JDRF
from the March of Dimes, where she was responsible for its revenue-generating
programs. Prior, Sandra spent 30 years at the American Heart Association and, earlier in her career, was with
the American Diabetes Association.
L. Patrick Reedy
Vice President
Patrick serves as the Vice President, Leadership Giving for JDRF. Prior to assuming
this role in January 2015, Patrick started with JDRF as the Executive Director of the
Illinois chapter in 2008. In 2011, he assumed the role of Regional Director for the
Upper Midwest region while retaining the role of Executive Director for the Illinois
chapter.
JDRF BACKGROUNDER | 11
Patrick has also held various fundraising positions over the course of his 20-year career in development at
several highly respected academic medical centers in the Chicago area, namely Ann & Robert H. Lurie
Children’s Hospital, NorthShore University HealthSystem, and the Rehabilitation Institute of Chicago. His
responsibilities have included major gifts, annual gifts, corporate gifts, board and volunteer management,
and campaign management.
6
LEADERSHIP GIVING
Leadership Giving Organizational Chart
Vice President
Executive Assistant
National Directors (4) and National
Director Principal Gifts (1)
National Director Prospect
Management
Prospect Researcher
National Director Donor Relations
Leadership Giving Directors (6)
National Director Planned Giving
Manager Planned Giving
National Manager Donor Relations
