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National Center for the Dissemination of Disability Research
“Welcome to the New NCDDR”
May 31, 2006
2
NIDRR’s Long-Range Plan and Knowledge Translation ProgramArt Sherwood, PhDEllen Blasiotti
NCDDR Scope of WorkJohn D. Westbrook, PhD
NIDRR Researcher CollaboratorsNCDDR WebsiteJoann Starks
NCDDR Collaborating Partners: An Overview Frank Martin
3
NIDRR’s Long-Range Plan and Knowledge Translation Program
• Art Sherwood, PhD• Ellen Blasiotti
National Institute on Disability and Rehabilitation Research
U.S. DEPARTMENT OF EDUCATION
Policy
Practice
Behavior
System Capacity
NIDRR Logic Model: Planning for Research Outcomes
Eliminate disparities between people with disabilities and the general population in:
employment,
participation & community living
and
health and function.
Situation: Significant gaps exist in knowledge, skills, policy, and practice and system capacity that prevent people with disabilities from having equal access to opportunities for employment, health and function, and participation.
Long-term Outcome Arenas –
Changes in Overall
Conditions
Short Term Outcome Arenas – Advances in Understanding,
Knowledge, Skills, and Learning Systems via:
Intermediate Outcome Arenas
–Adoption and Use
of New Knowledge Leading to Changes/
improvements in:
Major Domains
of NIDRRResearch
Contextual Factors: Variable funding; scientific and technological advancements; societal attitudes; economic conditions; changing public policies; coordination and cooperation with other government entities.
Performance Assessment & Outcomes Evaluation
Intended Beneficiaries
Intermediate Beneficiaries
People with
disabilities& familymembers
•Researchers•Clinicians•Service providers•Educators•Policy experts•Federal & non-federal partners
•Industry reps & product
developers•Employers•Media•Consumer advocates•People with disabilities & family members
R&DC-B KT
Discoveries
Interventions, Products, Devices, & Environmental
Adaptations
Theories, Measures, &
Methods
05/05/05
5
National Center for the Dissemination of Disability Research
Scope of Work
John D. Westbrook, PhD
6
NCDDR Staff Members
Project Director: John D. Westbrook, PhD
Program Associate: Joann Starks
Program Associate: Frank Martin
Program Associate: Kathleen Murphy, PhD
Information Specialist: Lin Harris
Web Administrator: John Middleton
Web Production Artist: Magda Acuña
7
Highlights of NCDDR Scope of Work
Focusing on Services that Facilitate
• Building of capacity of NIDRR researchers to negotiate the knowledge translation (KT) process
• Increasing inclusion of NIDRR-sponsored research in systematic reviews
• Improving consumers' access to and use of disability and rehabilitation research
8
Implications of New KT Paradigm
Definition of KT
KT is defined as the exchange, synthesis, and ethically-sound application of knowledge — within a complex set of interactions among researchers and users — to accelerate the capture of the benefits of research through improved health, more effective services and products, and a strengthened health care system.
Adapted from the
Canadian Institutes of Health Research (CIHR)
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NCDDR Service Areas• Research Quality
• Development
• Dissemination
• Technical Assistance
• Utilization Effectiveness
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Research Quality Services
• Quality and Alignment of Research Design Research questions(s) and research design
(assessment) Type of new knowledge to be developed
• Standards of Evidence Implications for existing research efforts and
to-be-proposed work
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Research Quality Services (continued)
• Evidence-based Guidelines For use in conducting systematic reviews For use in clarifying roles, responsibilities,
targets of NIDRR researchers
• Research Registration and Reporting Inclusion in registries Change in reporting
• Low Cost/No Cost Modifications
12
Development Services
• Reporting Standards Research reports vs. journal articles CONSORT, STARD, QUORUM
• Disability Research Reporting Facilitator Web-based supports/guides
13
Dissemination Services
• Information Resources Increase awareness/understanding about KT
• Library of KT Resources and Strategies Web-based resources
• Accessing Systematic Reviews Search assistance
14
• Registry of NIDRR-Sponsored Research Heighten profile of NIDRR-supported
research results
• Online Instructional Modules Useful in planning or reviewing new
research designs
• Registry of Syntheses and Evidence-based Systematic Reviews Produced by NIDRR grantees
Dissemination Services (continued)
15
• Community of Practice on Research Quality
• Community of Practice on Outreach to Diverse Audiences
• FOCUS Publications
• Web Site
• Webcasts
Dissemination Services (continued)
16
Technical Assistance Services
• On-site technical assistance
• Off-site technical assistance
• Toll-free telephone
• Workshops
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• Proposal reviewer resources
Characteristics of research quality
Module
• Systematic review training Campbell Collaboration – electronic and
teleconference
Technical Assistance Services (continued)
18
Utilization Effectiveness Services
• Support for Conducting Systematic Reviews and Evidence-based Systems Direct assistance to those conducting
systematic reviews
• Evidence/Product Grading System Disclosure for public dissemination and
utilization
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• Consumer Resources Most effective communication and resource
systems
• Evidence-Based Technology Merging evidence-based information in
technology engineering and transfer
Utilization Effectiveness Services (continued)
20
• Knowledge Translation Planning Committee
• Standards and Research Review Board
Consensus Building Strategies with NIDRR Grantees
Joann Starks
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Southwest Educational Development Laboratory (SEDL)
Wesley Hoover, President and CEO
Disability Research To Practice Program
John D. Westbrook, Program Manager
National Center for the Dissemination of
Disability Research (NCDDR)
John D. Westbrook, Director
Task Force onSystematic Review
and Guidelines
Marcel Dijkers, Facilitator
Joann Starks, NCDDR Liaison
Task Force on Knowledge Translation andKnowledge Value Mapping
Juan Rogers, Facilitator
Frank Martin, NCDDR Liaison
Task Force onStandards of Evidence
and Methods
Mark Johnston, Facilitator
John Westbrook, NCDDR Liaison
NCDDR Standards and Research Review Board
John D. Westbrook, Facilitator
Knowledge Translation Planning Committee
John D. Westbrook, Facilitator
Community of Practice on Outreach to Diverse Audiences
Frank Martin, Facilitator
Community of Practice on Research Quality
Joann Starks, Facilitator
National Center for the Dissemination of Disability Research (NCDDR)Organizational Chart for Major Responsibilities
22
Knowledge Translation Planning Committee
• Will provide guidance to the NCDDR and NIDRR staff regarding supports and services to strengthen the quality of NIDRR’s KT Program.
• NCDDR staff will work closely with NIDRR-funded KDU and KT projects to incorporate their work into larger scale efforts in guideline production.
23
• To help in identifying needs
Suggesting transition resources and supports
Describing information dissemination and utilization conduits appropriate for the development of NIDRR’s KT Program
The KT Planning Committee will draft position statements:
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• John Westbrook, PhD, will serve as facilitator • Electronic discussion list exists • Committee will meet in person annually
• Committee will meet via teleconference monthly/ bimonthly
Logistics
25
Katherine BelknapABLEDATAORC Macro
Marianne Farkas, ScD, Innovative KDU for Disability and Professional Organizations and Stakeholders, Boston University/Sargent College
Mark X. Odum, National Rehabilitation Information Center (NARIC), HeiTech Services
Members of KT Planning Committee:
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Joe LaneRERC on Technology Transfer (T2RERC)University at Buffalo, The State University of New York
John H. Stone, PhD, Center for International Rehabilitation Research Information and Exchange (CIRRIE-2), University at Buffalo, The State University of New York
Members (continued)
27
Standards and Research Review Board
• Will provide guidance and review in establishing standards of evidence for research
• Uses a consensus-building approach to ensure the rigor and quality of standards as well as the buy-in necessary for their actual use.
28
Three Task Forces:
• Standards of Evidence and Methods
• Systematic Review and Guidelines
• Knowledge Translation and Knowledge Value Mapping
29
Logistics
• John Westbrook, PhD, will serve as facilitator
• Electronic discussion list will be established
• Board will meet in person annually
• Board will meet periodically via teleconference
30
Board Members include NIDRR-funded researchers representing:
• 3 RERCs
• 6 RRTCs
• 2 TBI Model Systems
• 1 each: SCI Model Systems, Burn Model Systems, Field Initiated Projects, Advanced Rehabilitation Training, and ADA/IT Centers
31
Members of the Standards and Research Review Board
Matthew H. Bakke, PhD, RERC on Hearing Enhancement, Gallaudet University
Marcel Dijkers, PhD, Mt. Sinai SCI Model System and a Longitudinal Study of Psychosocial Outcomes and Subjective Quality of Life Many Years After Traumatic Brain Injury; Mount Sinai School of Medicine
Charles Drum, PhD, Northwest ADA/IT Center (Disability Business Technical Assistance Center - Region X), Oregon Institute on Disability and Development, Oregon Health & Science University
Steve Gard, PhD, RERC on Prosthetics and Orthotics, Northwestern University
32
Members (continued)
Wayne A. Gordon, PhD, RTC on TBI Interventions and New York TBI Model System, Department of Rehabilitation Medicine, Mount Sinai School of Medicine
Allen W. Heinemann, PhD, ABPP, RRTC on Measuring Rehabilitation Outcomes and Effectiveness, Rehabilitation Institute of Chicago, Northwestern University
Mark V. Johnston, PhD, Advanced Rehabilitation Effectiveness Research Training Center on Outcomes and Intervention, and TBI National Data Center, Kessler Medical Rehabilitation Research & Education Corp.
33
Members (continued)
Dennis C. Lezotte, PhD, UCHSC Burn Model System Data Coordination Center (BMS/DCC), University of Colorado Health Sciences Center
Craig M. McDonald, MD, RRTC in Neuromuscular Diseases (RRTC/NMD), University of California-Davis
Dennis C. Moore, EdD, RRTC on Substance Abuse, Disability, and Employment, Substance Abuse Resources and Disability Issues (SARDI), Wright State University, School of Medicine
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Juan Rogers, PhD, Director, Research Value Mapping Program, Georgia Institute of Technology; RERCs on Mobile Wireless Technologies for Persons with Disabilities, Wheeled Mobility and Workplace Accommodations
Dave Vandergoot, PhD, RRTC on Improving Employment Outcomes, Hunter College of CUNY
Gregg C. Vanderheiden, PhD, RERC on Telecommunications Access, RERC on Universal Interface and Information Technology Access, University of Wisconsin-Madison, and
Glen W. White, PhD, RRTC on Full Participation in Independent Living, Schiefelbusch Institute for Life Span Studies, University of Kansas
Members (continued)
35
Task Force on
Standards of Evidence and Methods
Mark V. Johnston, PhD, FacilitatorJohn Westbrook, PhD, NCDDR Liaison
36
• Standards of quality for research addressing each of the three stages of knowledge development identified by NIDRR
• Standards of evidence for the systematic review of disability and rehabilitation research
The task force on standards of evidence and methods will develop and present to the Board draft consensus/position statements regarding:
37
Activity 1.1 Establish collaborative mechanisms for developing standards of evidence and other supports for developing evidence-based knowledge.
Activity 1.2: Identify existing standards of evidence and assess their applicability to NIDRR-sponsored research.
Activity 1.3: Facilitate the development and refinement of standards of evidence for NIDRR-sponsored research.
The task force on standards and methods will address:
38
Task Force on
Systematic Review and Guidelines
Marcel Dijkers, PhD, FacilitatorJoann Starks, NCDDR Liaison
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• Develop and present to the Board draft consensus/position statements regarding recommended strategies for conducting systematic reviews in disability and rehabilitation research
• Review examples and components of guidelines produced in disability-related areas in order to suggest structures and components for developing additional guidelines derived from disability and rehabilitation research.
The task force on systematic review and guidelines will:
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Activity 4.1: Facilitate the identification, development, and dissemination of guidelines for disability and rehabilitation practices and programs drawn from evidence produced through systematic reviews.
The task force on systematic review and guidelines will address:
41
Task Force on
Knowledge Translation and Knowledge Value Mapping
Juan Rogers, PhD, FacilitatorFrank Martin, NCDDR Liaison
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• KVM in relation to moving scientific evidence into policy and practice
• Use of the concept of knowledge value communities (KVC) in dissemination and utilization of systematic reviews
The task force on knowledge translation (KT) and knowledge value mapping (KVM) will develop and present to the Board draft consensus/position statements and recommendations regarding:
43
• Considerations of “driving” and “restraining” forces in moving NIDRR-sponsored research results into public policy
• Needs for evidence grading to be responsive to NIDRR’s desire to address end-users with limited scientific training
• Knowledge mapping standards appropriate for each of NIDRR’s targeted stages of knowledge development
44
NCDDR Web Site and Resource Highlights
Joann Starks
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www.ncddr.org
46
• Library of Knowledge Translation Resources and Strategies Multi-media Evidence-based materials NCDDR FOCUS/Updates
NCDDR will develop and maintain several Web-based resources and services:
47
• Registry of Systematic Reviews Searchable NIDRR researcher authorships Summaries, digests, reports also included
• Registry of NIDRR-Sponsored Research NIDRR Research Studies Searchable by relevant components: for
example: research questions, research design, sample characteristics
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• Evidence-based Registries and Databases Portal to variety of resources
• Communities of Practice Forums, Online meetings Teleconferences and Webcast events Archives
• Needs Sensing Activities and Reports Restricted access as needed Data gathering for specific audiences
49
• Research Report Facilitator Based on type of research design,
suggestion for report components/content
• Tools and Guides Research Instrumentation Guides and Guidelines
50
• Webcasts Calendar Archives
• Workshops Registration Archives
• Technical Assistance Services Request Online TA and Training Events
NCDDR Collaborating Partners: An Overview
Frank Martin
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Campbell Collaboration (C2)
• What is Campbell Collaboration?
• C2 Goals and Activities
• Anticipated Partnership Roles & Contribution Disability Research Collaborating Group Online training Onsite training Involve NIDRR researchers in Campbell reviews
• Key Personnel Brian Cobb, PhD Chad Nye, PhD
53
Cochrane Collaboration• What is Cochrane Collaboration?
• Cochrane Activities - Cochrane Library
• Anticipated Partnership Roles & Contribution
Disability & Rehabilitation Field Group
Involve NIDRR investigators in Cochrane reviews
Training for Health and Function research area
• Key Personnel Rob de Bie, PhD Kay Dickersin, PhD Lisa Bero, PhD
54
National Guideline Clearinghouse• Rationale for the NGC
• Role of Evidence-based Practice Guidelines
• Anticipated Partnership Roles & Contribution
Registry development
Expertise on KT and guideline development
• Key Personnel
Mary P. Nix
55
National Rehabilitation Information Center
• NARIC Structure and Function
• Anticipated Partnership Roles & Contribution
Evidence grading system for products
• Key Personnel
Mark Odum
56
Independent Living Research Utilization
• What is ILRU?
• ILRU and the Disability Community
• Anticipated Partnership Roles & Contribution
Webcasts
• Key Personnel
Lex Frieden
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RTC on Traumatic Brain Injury Interventions
• RTC’s Scope of Work
• Systematic Review Project
• Anticipated Partnership Roles & Contribution
Identify research design modifications
• Key Personnel
Wayne Gordon, PhD
58
Pimjai Sudsawad, PhD
• Mary E. Switzer Fellow
• Assistant Professor, University of Wisconsin, Madison
• Research Focus: Knowledge Utilization Process and Strategies
Social Validation Model
• Anticipated Partnership Roles & Contribution
Identify and test knowledge dissemination and utilization strategies
Effectiveness of plain language summaries
59
Ralf Schlosser, PhD
• Mary E. Switzer Fellow
• Associate Professor, Northeastern University, Boston
• Augmentative and Alternative Communication
Systematic review experience
Conceptual framework for systematic review
• Anticipated Partnership Roles & Contribution
Translating the EB on assistive/adaptive devices
Bridging the gap: Systematic reviews and rehabilitation engineering research