Embed Size (px)
DESCRIPTION
Meet Gary Allen, the man living with progressive MS who underwent a trial treatment to halt his MS progression in Brisbane and has had some excellent preliminary results. This edition delves into the research as well as focusing on World MS Day, energy and MS, and our InfoLine celebrating 20 years of servicing the MS community.
Citation preview
MSLIFE.
pg. 06 Energy prices on the rise
pg. 08 2014 MS workshops
pg. 11 The role of MS Support Groups
pg. 17 Enerflex MS Brissie to the Bay is back
MS QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
AUTUMN 2014
QUEENSLANDRESEARCHQUEENSLAND RESEARchERS fIND PoTENTIAL TREATMENT foR PRoGRESSIvE MS
QUEENSLANDQUEENSLANDRESEARCHRESEARCHQUEENSLANDQUEENSLANDQUEENSLANDRESEARCH
QUESTIoNS foR oUR MANAGER of SPEcIALIST EDUcATIoN, TIM
Dear readers,
We hope you and your loved ones are settling in well to the new year. It’s always an exciting time of the year for MS Queensland as we head into our busiest period of fundraising events. We’ve already seen the MS Big Dinner Party, Gold Coast and Cairns MS Swimathons fly by, and now we’re preparing for our inaugural Mackay MS Swimathon, Rockhampton’s second MS Swimathon and of course our 24th annual Enerflex MS Brissie to the Bay bike ride on Sunday 22 June.
MS Life’s previous Editor, Melanie has just returned from a year working for the MS Society in the UK, bringing back with her a great international perspective on what’s happening with global research into cause and treatments for MS. But from here in our very own backyard let’s not forget Professor Pender’s recent research breakthrough that was published globally in the International Journal of Multiple Sclerosis and attracted a whirlwind of media attention across the state. Professor Pender’s work suggests that controlling infection with Epstein-Barr virus (EBV) – the most common cause of glandular fever – may be beneficial in treating secondary progressive MS.
This experimental treatment was trialled on one of our clients from Brisbane, Gary Allen, who has experienced significant clinical improvements since receiving the treatment nearly 12 months ago. Check out pages 12 to 15 for the full story on this exciting development. We’ll also keep you posted on any updates on Professor Pender’s work via our website.
As always, if you have any feedback about MS Life or have a story idea please get in touch by emailing us at [email protected]
cassie and Melanie Editors, MS Life
LETTER fRoM ThE EDIToRS
To make a donation to MS Queensland or for more information on what we do please email [email protected] or call 1800 287 367 or visit www.msqld.org.au
Acknowledgement: We wish to thank Professor Michael Pender, Gary Allen and MS Queensland CEO Lincoln Hopper for the use of their image on the cover of this publication. Photo by Aaron Tait Photography.
If you have an MS-related question to ask Tim, our Manager of Specialist Education that can be answered in the next MS Life, please email Tim at [email protected] before 14 April 2014.
TELL US WhAT YoU
THINK!Love MS Life or think it needs improvement? Due to increased postage costs and the way people access information, we are planning to introduce an electronic flipbook version of MS Life. Have your say on how you’d like to read MS Life by friday 2 May 2014. See the enclosed survey form for details.
www.msqld.org.au
www.twitter.com/msqldwww.facebook.com/msqld
youtube.com/user/MSAustraliaQwww.msqld.org.au
If you’d like to stay in touch with MS Queensland’s activities, events and physiotherapy programs please visit our:
MS Awareness Week 26 May - 4 June26 MAY 2010
worldMSday
JOIN THE GLOBAL MOVEMENT!Activities happening all
around the world!Find out how you can take part
Life at AnnerleyThe official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
that life offers.
she “
work properly again
waiting for the gift of a cure.
it won’t. I am praying that it won’t.
go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
Jenni Ambassador, National Panel Horse Judge and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
CCSVI DEBATE
Why MS organisations are proceeding with caution on new treatments
Kate finds her dream job
GIVING LIFE BACK
The ambitious program to provide integrated and dignified care
FOR THE CAUSE
Meet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
LIFEGiving life back
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
BREAKTHROUGH MS RESEARCH
Scientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MS Life MS Australia – QLD
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15
MS Research Australia provides you with the latest updates on MS research
The official launch
Jonathan Loraine and Bruce Milligan
MS LifeAutumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
Sharon and Sophia Ball with their puppy Millie
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
GIVING LIFE BACK
The ambitious program to provide integrated and dignified care
FOR THE CAUSE
regional services
LIFEQuestions
about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
ABN 56 731 473 412
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15
MS Research Australia provides you with the latest updates on MS research
MSLIFE.
MANOLI’S OUTLOOK ON LIFE
pg. 08 2013 MS Heroes announced
pg. 04 Exercising in winter
pg. 12 Hundreds of Queenslanders dive in for MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
WINTER 2013
HOW WE CELEBRATED MS AWARENESS MONTHThousands of Queenslanders helped ‘Kiss Goodbye to MS’
MSLIFE.ANNA’S POSITIVITY SHINES THROUGH
pg. 05 Annual Report now available
pg. 09 New after-hours program starts February
pg. 13 Save the date MS Brissie to the Bay 2014
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
SUMMER 2014
MSMSSUMMER 2014SUMMER 2014SUMMER 2014
The most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
The most comprehensive collection of information about MS worldwideThe most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLASMS ATLASMS AHIGHLIGHTS MS WORLDWRLDWRLD IDE
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
MSLIFE.
HANNAH’S HEROISMpg. 02 Attend our Annual Conference and AGM
pg. 04 MS Accommodation Strategy
pg. 07 Falls prevention and balance
pg. 14 DisabilityCare Australia update
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
SPRING 2013
An overview of the work into MS cause and prevention being funded by MS Research Australia
MS1204_MSLifeSpring13_Art04_ed.indd 1 9/09/13 2:41 PM
MSLIFE.
BRENDAN’S PHYSIO JOURNEY WITH MS
pg. 10 New after-hours program at Dutton Park Physio
pg. 21 What do you know about the NDIS?
pg. 19 Ann Langley’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
AUTUMN 2013
TAKING FUNDRAISING TO THE EXTREME
Help us Kiss Goodbye to MS this May JACKIE HELPS KISS
GOODBYE TO MS
pg. 6 Celebrating World MS Day 2012
pg. 8 Exercise key to your wellbeing
pg. 12 Jackie’s Kiss for MS
pg. 18 MS Heroes announced
RALLY HITS THE STREETS
RALLY HITS THE STREETS
WINTER 2012
Thousands gather to send a clear message to Government: we need an NDIS
Thousands gather to send a clear message to Government: we need an NDIS
MSLIFE.
ELEANOR’S WALK FOR MS
pg. 10 How ‘Jules’ lives positively with MS
pg. 11 Holistic health and MS
pg. 19 Self-advocacy. The road to success
pg. 20 What do you know about the NDIS?
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
SUMMER 2013
GLOBETROTTINGSTILL POSSIBLE LISA’S STORY
Lisa’s trip to Europe
MSLIFE.
REGINA FINDS MS HERO IN HER SON JACK
pg. 5 Facebook and Twitter explained
pg. 6 New Carbon Tax Concessions
pg. 10–11 Heartmoves for MS
pg. 16 Wendy’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
SPRING 2012
AQUATICEXERCISE FOR MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
How it can make a difference in managing MS symptoms
LOUISA ON A MISSION How a young mum won’t let MS hold her back
pg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
MS AWARENESS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
LIFEGiving life back
QUEENSLAND
26 MAY 2010worldMS
Autumn 2010
The official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
that life offers.
she “
work properly again
waiting for the gift of a cure.
it won’t. I am praying that it won’t.
go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
Jenni Ambassador, National Panel Horse Judge and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
FOR THE CAUSE
Meet the Queenslanders supporting MS research and regional services
PwMSQ
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
BREAKTHROUGH MS RESEARCH
Scientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15
MS Research Australia provides you with the latest updates on MS research
LIFEGiving life back
QUEENSLAND
Autumn 2010
The official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.
I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.
Just before Sophia’s fifth birthday (she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure.
I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it could worsen. Maybe through diligent management, it won’t. I am praying that it won’t.
When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
GIVING LIFE BACK
The ambitious program to provide integrated and dignified care
FOR THE CAUSE
regional services
LIFEQuestions
about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul PisasaleLocked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her
RESEARCH NEWS P15
MS Research Australia provides you with the latest
MSLIFE.
MANOLI’S OUTLOOK ON LIFE
announced
winter
pg. 12 Hundreds of Queenslanders dive in for MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
WINTER 2013
MSLIFE.ANNA’S POSITIVITY SHINES THROUGH
pg. 05 Annual Report now available
pg. 09 New after-hours program starts February
pg. 13 Save the date MS Brissie to the Bay 2014
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
SUMMER 2014
MSMSSUMMER 2014SUMMER 2014SUMMER 2014
The most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
The most comprehensive collection of information about MS worldwideThe most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLASMS ATLASMS AHIGHLIGHTS MS WORLDWRLDWRLD IDE
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
MSLIFE.
HANNAH’S HEROISMpg. 02 Attend our Annual Conference and AGM
pg. 04 MS Accommodation Strategy
pg. 07 Falls prevention and balance
pg. 14 DisabilityCare Australia update
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
SPRING 2013
An overview of the work into MS cause and prevention being funded by MS Research Australia
MS1204_MSLifeSpring13_Art04_ed.indd 1 9/09/13 2:41 PM
MSLIFE.
BRENDAN’S PHYSIO JOURNEY WITH MS
pg. 10 New after-hours program at Dutton Park Physio
pg. 21 What do you know about the NDIS?
pg. 19 Ann Langley’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
AUTUMN 2013
TAKING FUNDRAISING TO THE EXTREME
Help us Kiss Goodbye to MS this May
pg. 6 Celebrating World MS Day 2012
pg. 8 Exercise key to your wellbeing
pg. 12 Jackie’s Kiss for MS
WINTER 2012
Thousands gather to send a clear message to Government: we need an NDIS
MSLIFE.
ELEANOR’S WALK FOR MS
pg. 10 How ‘Jules’ lives positively with MS
pg. 11 Holistic health and MS
pg. 19 Self-advocacy. The road to success
pg. 20 What do you know about the NDIS?
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
SUMMER 2013
GLOBETROTTINGSTILL POSSIBLE LISA’S STORY
Lisa’s trip to Europe
MSLIFE.
REGINA FINDS MS HERO IN HER SON JACK
pg. 5 Facebook and Twitter explained
pg. 6 New Carbon Tax Concessions
pg. 10–11 Heartmoves for MS
pg. 16 Wendy’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
SPRING 2012
AQUATICEXERCISE FOR MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
How it can make a difference in managing MS symptoms
LOUISA ON A MISSION How a young mum won’t let MS hold her back
pg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
MS QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
The official launch
Jonathan Loraine and Bruce Milligan
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.
I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.
(she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure.
I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it
it won’t. I am praying that it won’t.
When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
Spring Edition 2009
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
dream job FOR THE CAUSE
Meet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
BREAKTHROUGH MS RESEARCH
Scientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MS Life MS Australia – QLD
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15
MS Research Australia provides you with the latest updates on MS research
MS Awareness Week 26 May - 4 June
LIFEGiving life back
QUEENSLAND
26 MAY 2010worldMSday
JOIN THE GLOBAL MOVEMENT!
Autumn 2010
Activities happening all around the world!
Find out how you can take part
Life at AnnerleyThe official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
LIFEGiving life back
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
BREAKTHROUGH MS RESEARCH
Scientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MSLIFE.
MANOLI’S OUTLOOK ON LIFE
pg. 08 2013 MS Heroes announced
pg. 04 Exercising in winter
pg. 12 Hundreds of Queenslanders dive in for MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
WINTER 2013
HOW WE CELEBRATED MS AWARENESS MONTHThousands of Queenslanders helped ‘Kiss Goodbye to MS’
MSSHINES THROUGH
pg. 05 Annual Report now available
pg. 09 New after-hours program starts February
pg. 13 Save the date MS Brissie to the Bay 2014
QUEENSLAND’S PREMIER MAGAZINE
SUMMER 2014
MSMSSUMMER 2014SUMMER 2014SUMMER 2014
The most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
The most comprehensive collection of information about MS worldwideThe most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLASMS ATLASMS AHIGHLIGHTS MS WORLDWRLDWRLD IDE
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
HANNAH’S HEROISMpg. 02 Attend our Annual Conference and AGM
pg. 04 MS Accommodation Strategy
pg. 07 Falls prevention and balance
pg. 14 DisabilityCare Australia update
An overview of the work into MS cause and prevention being funded by MS Research Australia
MS1204_MSLifeSpring13_Art04_ed.indd 1 9/09/13 2:41 PM
MSLIFE.
BRENDAN’S PHYSIO JOURNEY WITH MS
pg. 10 New after-hours program at Dutton Park Physio
pg. 21 What do you know about the NDIS?
pg. 19 Ann Langley’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
AUTUMN 2013
TAKING FUNDRAISING TO THE EXTREME
Help us Kiss Goodbye to MS this May
MSLIFE.WINTER 2012
JACKIE HELPS KISS GOODBYE TO MS
pg. 6 Celebrating World MS Day 2012
pg. 8 Exercise key to your wellbeing
pg. 12 Jackie’s Kiss for MS
pg. 18 MS Heroes announced
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
NDISRALLY HITS THE STREETS
NDISRALLY HITS THE STREETS
WINTER 2012
Thousands gather to send a clear message to Government: we need an NDIS
Thousands gather to send a clear message to Government: we need an NDIS
MSLIFE.
ELEANOR’S WALK FOR MS
pg. 10 How ‘Jules’ lives positively with MS
pg. 11 Holistic health and MS
pg. 19 Self-advocacy. The road to success
pg. 20 What do you know about the NDIS?
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
SUMMER 2013
GLOBETROTTINGSTILL POSSIBLE LISA’S STORY
Lisa’s trip to Europe
MSLIFE.
REGINA FINDS MS HERO IN HER SON JACK
pg. 5 Facebook and Twitter explained
pg. 6 New Carbon Tax Concessions
pg. 10–11 Heartmoves for MS
pg. 16 Wendy’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
SPRING 2012
AQUATICEXERCISE FOR MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
How it can make a difference in managing MS symptoms
LIFEGiving life back
QUEENSLAND
Autumn 2010
The official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.
Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.
I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse.
I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice.
MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.
I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.
(she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure.
I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it
it won’t. I am praying that it won’t.
When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLD
Spring 2010
FOR THE CAUSE
Meet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
BREAKTHROUGH MS RESEARCH
Scientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBS
Gilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul PisasaleLocked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
A GLOBAL MOVEMENT P3
How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5
State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10
Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15
MS Research Australia provides you with the latest updates on MS research
MS Awareness Week 26 May - 4 June
LIFEGiving life back
QUEENSLAND
26 MAY 2010worldMSday
JOIN THE GLOBAL MOVEMENT!
Autumn 2010
Activities happening all around the world!
Find out how you can take part
Life at AnnerleyThe official launch
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLD
Autumn 2011
WORLD MS DAY
How you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICAL
The link between exercise and quality of life for people with MS
BRISSIE TO THE BAY
Brisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
A new era of respite care in an idyllic setting on the Gold Coast
and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONS
In depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
LIFEGiving life back
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Life MS Australia – QLD
Spring 2011
MS gene discovery
® is the first oral
TREVOR FARRELL: GIVING LIFE BACK
We celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALE
Meet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland
Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLD
Summer 2011
COMEBACK KID
Geoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MS
TABLET TALK
A look at new oral treatments for MS that offer more options
LET’S CRUISE
Helen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALK
Over 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MSLIFE.
MANOLI’S OUTLOOK ON LIFE
pg. 08 2013 MS Heroes announced
pg. 04 Exercising in winter
pg. 12 Hundreds of Queenslanders dive in for MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
WINTER 2013
HOW WE CELEBRATED MS AWARENESS MONTHThousands of Queenslanders helped ‘Kiss Goodbye to MS’
MS
pg. 05 Annual Report now available
pg. 09
starts February
QUEENSLAND’S PREMIER MAGAZINE
SUMMER 2014
MSMSSUMMER 2014SUMMER 2014SUMMER 2014
The most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
The most comprehensive collection of information about MS worldwideThe most comprehensive collection of information about MS worldwide
THE LAUNCH OF
MS ATLASMS ATLASMS AHIGHLIGHTS MS WORLDWRLDWRLD IDE
THE LAUNCH OF
MS ATLAS HIGHLIGHTS MS WORLDWIDE
HANNAH’S HEROISMpg. 02 Attend our Annual Conference and AGM
pg. 04 MS Accommodation Strategy
pg. 07 Falls prevention and balance
pg. 14 DisabilityCare Australia update
SPRING 2013
MS1204_MSLifeSpring13_Art04_ed.indd 1 9/09/13 2:41 PM
MSLIFE.
BRENDAN’S PHYSIO JOURNEY WITH MS
pg. 10 New after-hours program at Dutton Park Physio
pg. 21 What do you know about the NDIS?
pg. 19 Ann Langley’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
AUTUMN 2013
TAKING FUNDRAISING TO THE EXTREME
Help us Kiss Goodbye to MS this May
LIFE.
JACKIE HELPS KISS GOODBYE TO MS
pg. 6 Celebrating World MS Day 2012
pg. 8 Exercise key to your wellbeing
pg. 12 Jackie’s Kiss for MS
pg. 18 MS Heroes announced
FOR PEOPLE LIVING WITH MS
RALLY HITS THE STREETS
RALLY HITS THE STREETS
WINTER 2012
Thousands gather to send a clear message to Government: we need an NDIS
Thousands gather to send a clear message to Government: we need an NDIS
MSLIFE.
ELEANOR’S WALK FOR MS
pg. 10 How ‘Jules’ lives positively with MS
pg. 11 Holistic health and MS
pg. 19 Self-advocacy. The road to success
pg. 20 What do you know about the NDIS?
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MSMSMS
SUMMER 2013
GLOBETROTTINGSTILL POSSIBLE LISA’S STORY
Lisa’s trip to Europe
MSLIFE.
REGINA FINDS MS HERO IN HER SON JACK
pg. 5 Facebook and Twitter explained
pg. 6 New Carbon Tax Concessions
pg. 10–11 Heartmoves for MS
pg. 16 Wendy’s contribution to MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
SPRING 2012
AQUATICEXERCISE FOR MS
AQUATICEXERCISE FOR MSHow it can make a difference in managing MS symptoms
How it can make a difference in managing MS symptoms
MSLIFE?
LOVE
think it nEEdS iMprOVEMEnt? Tell us what you think, and for your time, you’ll go into the draw to win one of two $50 WISH (Woolworths) gift cards. Send your feedback back to us by Friday 2 May 2014 using the enclosed Reply Paid envelope.
Queensland WWW.MSQLd.OrG.AU
1) What do you like the most about MS Life? tick one The cover story Positive stories from people with MS Regular columns (e.g. Questions with Tim) Info about fundraising events
2) What do you like the least about MS Life? tick one The cover story Positive stories from people with MS Regular columns (e.g. Questions with Tim) Info about fundraising events
3) What do you want to read more of in MS Life? tick more than one
Research Information resources Fundraising events Services we offer (e.g. physio/ info sessions/
self-management workshops) Stories from people with MS NDIS updates MS Support Groups
4) please tell us how you would like to read MS Life. tick one I would like to help MS Queensland save costs and want
to receive MS Life as an electronic flipbook by email only. I want to continue to receive MS Life in hard copy via
post.
Thanks for your feedback. Please return your form by Friday 2 May via email to [email protected] or using the enclosed Reply Paid envelope.
hAVE YOUr SAY!Queensland
MS LIFE – AU
TUM
N 2014
2
values in action
In my office there is a colour poster on the wall next to my computer screen that talks about MS Queensland’s organisational values of Respect, Hope, Commitment and Collaboration. I’m quite sure most workplaces have equally nice posters in lunchrooms and offices (and even as car bumper stickers) describing how great their business, company or organisation wants to become. Sadly, I’ve only seen a handful of workplaces actually live-up to their values, and in some cases I’ve even seen them acting the opposite!
I am excited however as I look up at the words that describe the four MS Queensland values in action: “…people really matter to us… we do our best… we never give up… the way to achieve great results is by working together,” I’m excited because I see people striving to make these words a reality by putting these values into action. Whether it’s with our clients, supporters, researchers or with each other, I witness staff and volunteers of MS Queensland doing their very best to live-out these values every day. Indeed our feature story with Professor Pender and Gary Allen is a perfect example of respect, hope, commitment and collaboration in action! We’re certainly not perfect, but as John W. Gardner once said “… our problem is not to find better values but to be faithful to those we profess.”
So as you read this edition of MS Life packed full of inspiring stories of people living positively with MS, potential breakthroughs in MS research and rewarding opportunities to get involved with MS Queensland, I sincerely hope you also see our values of Respect, Hope, Commitment and Collaboration in action in everything we do for people living with MS.
Best wishes,
Lincoln, CEO
AUTUMN 2014
covER SToRY PG 12Queensland researchers make potential MS breakthrough
CONTENTS
fRoM CEOthe coQueensland researchers make potential MS breakthrough
Lincoln Hopper, Gary Allen
and Professor Michael Pender
PAGE 2–3 Letter from the Editors From the CEO
PAGE 4–5 Warm up your winter and go red
PAGE 6–7 Energy update MS Heroes soon to be announced World MS Day nearly here Wellness Wednesdays Membership – join today!
PAGE 8–9 New MS workshops How Vernon lives positively with MS InfoLine celebrating 20 years!
PAGE 10–11 Client in focus Our clients have their say The role of support groups
PAGE 12–15 Queensland researchers find potential treatment for progressive MS
PAGE 16–17 Events that help people living with MS
PAGE 18–19 Share your Living Positively with MS story Self advocacy
PAGE 20–21 A day in the life of Glenn Did you know? Supporting physio students Advocacy with Natalie
PAGE 22–23 Questions with Tim – about Vitamin D MS resources MS support groups update
PAGE 24 Calendar of events
MS
LIFE
– A
UTU
MN
201
4
3
Page 8New MS workshops article resupplied in email.Page 10Client in focus, para 1 - change ‘in the Toowoomba region’ to ‘in Pittsworth’.Para 2 and 3 - change her daughters name from ‘Marjery’ to ‘Marjorie’.Our Clients Say article resupplied in email.
Kiss Goodbye to MS Ambassador Renee Steenstra, diagnosed with MS in 2011
MS LIFE – AU
TUM
N 2014
4
Do something outrageous! Last year, Megan Healey (a mum of three who lives with MS) drove her ride-on lawnmower from Melbourne to Sydney and raised over $50,000! What could you do to raise funds towards an MS cure?
Hold your own Kiss Goodbye to MS fundraising event and spread the word on social media. Visit www.KissGoodbyetoMS.org for inspiration and to find out about our Instagram competition, ‘A Photo Every Day in May.’
WARM UP YoURAND Go
REDWINTER
FOR MORE INFORMATION VISIT KISSGooDBYEToMS.oRG OR ‘LIKE’ THE FACEBOOK PAGE AT fAcEBooK.coM/KISSGooDBYEToMS
To hELP RAISE $800,000 foR MS RESEARch
Wear red lipstick (or anything red) and get sponsored to do so.
Already, many fundraisers have registered to Kiss Goodbye to MS this May and are planning all sorts of amazing activities to raise funds. One inspiring group of fundraisers are planning to walk over 300km across the UK, local schools are hosting wear red mufti days, sponsored
WhAT ARE YoU GoING To Do To KISS GooDBYE To MS ThIS MAY?
BUN
NIN
GS BBQS cAN YoU hELP?Bunnings
have chosen to help us Kiss Goodbye to MS this Mother’s
Day weekend. Last year, over $70,000 was raised, and we want to beat that this
year – but we need your help. If you would like to hold a Kiss Goodbye to MS BBQ or cake
stall at your local Bunnings, contact Zoe Chapman on 02 8484 1319 or
visit www.kissgoodbyetoms.org
runners are competing in fun-runs and lots more, so come and join in the fun and let’s Kiss Goodbye to MS!
Page 8New MS workshops article resupplied in email.Page 10Client in focus, para 1 - change ‘in the Toowoomba region’ to ‘in Pittsworth’.Para 2 and 3 - change her daughters name from ‘Marjery’ to ‘Marjorie’.Our Clients Say article resupplied in email.
MS
LIFE
– A
UTU
MN
201
4
5
MS HEROES
YES, THAT’S RIGHT, OUR MS HEROES AWARDS ARE BACK AND THE TOUGH JOB OF JUDGING IS NOW UNDERWAY.
MS Heroes is our recognition program that gives the MS community an opportunity to thank individual heroes in their lives, raise awareness of MS and join the global movement in the lead up to World MS Day.
We’d like to thank everyone that sent us an MS Heroes nomination this year. Find out who the winners are after World MS Day by staying in touch on our website www.msqld.org.au or our Facebook page.
If you have any questions about the MS Heroes program please contact our Awards Team on 07 3840 0825 or [email protected] We wish all of this year’s nominees the best of luck!
This year’s MS hero award categories included:
1. Young Person of the Year
2. Advocate/ Ambassador of the Year
3. Employer of the Year: based on the 2014 World MS Day theme ‘Access’
4. volunteer of the Year
5. carer of the Year
ARE BACK AND THE TOUGH JOBJUDGING IS NOW UNDERWAY. UNDERWAY. UNDERWAY
MS Heroes is our recognition program that gives the MS community an opportunity to thank individual heroes in their lives, raise awareness of MS and join the global movement in the lead up to World MS Day.
We’d like to thank everyone that sent us an MS Heroes nomination this year. Find out who the winners are after World MS Day by staying in touch on our website www.msqld.org.au or our Facebook page.
If you have any questions about the MS Heroes program please contact our Awards Team on 07 3840 0825
[email protected] We wish all of this year’s nominees the best of luck!
This year’s MS hero award categories included:
oung Person of the Year
Advocate/ Ambassador of the YearAdvocate/ Ambassador of the YearAdvocate/ Ambassador of the Y
Employer of the Year: Employer of the Year: Employer of the Ybased on the 2014 World MS Day theme ‘Access’
olunteer of the Yearolunteer of the Yearolunteer of the Y
arer of the Year
Pictured: 2013 Young Person of the Year Hannah Boag
SooN To BE
ANNOUNCED!IT HAS BEEN A LONG HOT SUMMER – PARTICULARLY FOR PEOPLE LIVING WITH MS.
With the considerable climb in energy prices last year, and prices increasing by another 13.6% from July this year, we need to keep up-to-date with the changing energy environment to make conscious changes that can positively influence our energy bill.
Most retailers have ‘energy plan’ information on their website to help you compare electricity and natural gas plans. Also worth checking out are DIY home energy checklists.
Energy concessions from the State Government are available for people with MS who hold a Pensioner Concession card or HealthCare card (including the specific Medical Cooling and Heating Electricity concession). A complete list of concessions can also be found at www.communities.qld.gov.au/communityservices or by calling the Department of Communities on 13 QGov (13 74 68). There are also rebates available from the Federal Government to eligible households across Australia including the Clean Energy Future Household Assistance Package Essential Medical Equipment Payment (e.g. for people living with MS; an air conditioner). For more information, visit www.humanservices.gov.au/customer/services/centrelink/essential-medical-equipment-payment
We would like to share in your understanding, awareness and interaction regarding energy. Please complete our survey at www.msqld.org.au/how-we-help-you/advocacy/energy and we’ll be sharing the results soon.
If you receive an unexpected bill or are having problems paying your energy bill, your electricity supplier is there to help. Contact your electricity supplier to explain your situation. If you would like more information on energy please contact Natalie Walsh, our Advocacy Manager on 07 3840 0823 or [email protected]
MS LIFE – AU
TUM
N 2014
6
THE REALITY IS THAT MORE THAN 2.5 MILLION PEOPLE ARE LIVING WITH MS GLOBALLY. MS IS ONE OF THE MOST COMMON NEUROLOGICAL CONDITIONS AMONGST YOUNG ADULTS IN THE NORTHERN HEMISPHERE.
World MS Day was launched five years ago by the MS International Federation (MSIF) with over 200 events in 67 countries. It is held each year on the last Wednesday in May to raise awareness about MS and to strengthen the network of people living with MS across the world.
This year, the date is Wednesday 28 May and the theme is ‘Access.’ The global campaign is to educate and inform
people across the world about the different types of access issues faced by people with MS. MSIF will
be sharing stories from people with MS about everything from access to treatments and
services to mobility and leisure.
You can read more about World MS Day and how you can get involved at www.worldmsday.org
NoT A MEMBER?JOIN TODAY!
Membership with us, which is just $33 a year, helps us to provide more information and education about MS and leading MS research. To become a member or renew your membership for the 2013–14 financial year please contact us at [email protected] or call 07 3840 0888.
On behalf of all Queenslanders living with MS, we look forward to your help in creating a future free from MS and its devastating impact.
World MS Day was launched five years ago by the MS International Federation (MSIF) with over 200 events in 67 countries. It is held each year on the last Wednesday in May to raise awareness about MS and to strengthen the network of people living with MS across the world.
This year, the date is Wednesday 28 May and the theme is ‘Access.’ The global campaign is to educate and inform
people across the world about the different types of access issues faced by people with MS. MSIF will
be sharing stories from people with MS about everything from access to treatments and
services to mobility and leisure.
You can read more about World MS Day and how you can get involved at www.worldmsday.org
Membership with us, which isprovide more information and education about MS and leading MS research. To become a member or renew your membership for the 2013–14 financial year please contact us at
On behalf of all Queenslanders living with MS, we look forward to your help in creating a future free from MS and its devastating impact.
T A MEMBER?Are you a member of the MS Queensland? Membership with us, which is just $33 a year, assists us in providing information and education about MS and leading edge MS research to find a cure for multiple sclerosis.
This includes the information you receive through publications such as MS Life, MS Insight and our Online Resource Centre on our website.We regularly receive very positive feedback about the information content of our flagship client-focused magazine, MS Life. We are committed to continuing to provide this valuable information resource to anyone who has an interest in MS and as such we do not restrict its circulation to MS Queensland members only. But this comes at a substantial cost and we need your support. It currently costs us $30,000 per year to produce and distribute MS Life and current membership subscriptions provide $12,000 per year – a significant shortfall each year.
So if you value the publications and services MS Queensland provides then please show your support by joining the Society today. For a fee of just $33 you can join us for a year, or you might consider becoming a Life Member for just $330 to avoid worrying about paying your membership ever again! The strength of MS Queensland is in its active and committed members and we would welcome your contribution to our vital work.As a financial member you’ll also have the opportunity to have your say on the exciting future plans of MS Queensland at the Annual General Meeting (AGM) in November.
To become a member, simply complete the form overleaf and return it to MS Queensland as soon as possible. On behalf of all Queenslanders living with MS, we look forward to your membership support for a world free from MS and its devastating impact.
Lincoln Hopper, CEO
HAVE YOUR SAY!Help support MS Queensland and it’s good work!
Lisa & Sandy tell... But It Doesn’t Have Us!”
Services to support you & taking control
LIFEGiving life back
QUEENSLAND
26 MAY 2010
worldMSday
JOIN THE GLOBAL MOVEMENT!
Autumn 2010
Activities happening all around the world!Find out how you can take part
Jonathan Loraine and Bruce Milligan
MS Life MS Australia – QLDAutumn 2011
WORLD MS DAYHow you can help the global campaign on employment and MS
GET PHYSICALThe link between exercise and quality of life for people with MS
AUTUMN 2012
How a young mum won’t let MS hold her backpg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
about MS this May
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse. I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice. MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
that life offers.
she “
work properly again
waiting for the gift of a cure. I am 41 now, lived with MS for over 12 years
it won’t. I am praying that it won’t.
go make lemonade!”
LIFE
Sharon and Sophia Ball with their puppy Millie
LIFEQueensland
THIS ISSUECEO’s Desk 2
Brissie to the Bay 3
Introducing Facebook 4
Portrait of Posterity 5
Work of Aart 6
Lynette Walks Again 7
Events 8
An 11 year old’s idea... 9
MS Readathon 10
Ambassadors Needed 11
Notice of AGM 12
Volume 3 Spring Edition, September 2008
New Record for brissie to the bay3800 CYCLIST PEDAL FOR A CURE!
Multiple Sclerosis Society of Queensland ABN 56 731 473 412286 Gladstone Road Dutton Park QLD 4102 Phone: 07 3840 0888 Fax: 07 3840 0813Locked Bag 370 Coorparoo DC QLD 4151 Email: [email protected] www.msaustralia.org.au/qld
Jenni Ambassador, National Panel Horse Judge and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONSIn depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLDSpring 2010
Kate finds her dream job
FOR THE CAUSEMeet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
LIFEQuestions
about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Australia – QLD
MS gene discovery
ORAL TREATMENT JOINS PBSGilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACKWe celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALEMeet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLDSummer 2011
COMEBACK KIDGeoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MSTABLET TALKA look at new oral treatments for MS that offer more options
LET’S CRUISEHelen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALKOver 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MS Life MS Australia – QLD
A GLOBAL MOVEMENT P3How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15MS Research Australia provides you with the latest updates on MS research
MS Life MS Australia – QLDWinter 2011
EMPLOYMENT AND MSSee how Queensland took part in World MS Day celebrations this year
MS AWARENESS WEEKRead about the lip smacking campaign that had everyone talking about MS
MS AND SESPwMS Josie Montano helps during Queensland’s floods and cyclones
LIFEQUEENSLAND
Autumn Edition 2009
Giving life back
Services to support you & taking control
around the world!Find out how you can take part
The official launch
MS Australia – QLDAutumn 2011
WORLD MS DAYHow you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICALThe link between exercise and quality of life for people with MS
BRISSIE TO THE BAYBrisbane’s biggest charity McKINNON HOUSE
LOUISA ON A MISSION How a young mum won’t let MS hold her backpg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
MS QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse. I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice. MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.Just before Sophia’s fifth birthday (she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure. I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it could worsen. Maybe through diligent management, it won’t. I am praying that it won’t.When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
LIFEQueensland
THIS ISSUECEO’s Desk 2
Brissie to the Bay 3
Introducing Facebook 4
Portrait of Posterity 5
Work of Aart 6
Lynette Walks Again 7
Events 8
An 11 year old’s idea... 9
MS Readathon 10
Volume 3 Spring Edition, September 2008
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONSIn depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLDSpring 2010
Kate finds her dream job
FOR THE CAUSEMeet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009MS Life MS Australia – QLDSpring 2011
BREAKTHROUGH MS RESEARCHScientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBSGilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACKWe celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALEMeet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
LIFEQUEENSLAND
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLDSummer 2011
COMEBACK KIDGeoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MSTABLET TALKA look at new oral treatments for MS that offer more options
LET’S CRUISEHelen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALKOver 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MS Life MS Australia – QLD
A GLOBAL MOVEMENT P3How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15MS Research Australia provides you with the latest updates on MS research
MS Life MS Australia – QLDWinter 2011
EMPLOYMENT AND MSSee how Queensland took part in World MS Day celebrations this year
Employment Power
MS AWARENESS WEEKRead about the lip smacking campaign that had everyone talking about MS
MS AND SESPwMS Josie Montano helps during Queensland’s floods and cyclones
VIRAL MS CAMPAIGNLearn what Mayor of Ipswich Paul Pisasale feels about employment and MS
LIFEQUEENSLAND
Autumn Edition 2009
Giving life back
Lisa & Sandy tell... “We Have MS,
Services to support you & taking control
The official launch
Jonathan Loraine and Bruce Milligan
MS Australia – QLDAutumn 2011
WORLD MS DAYHow you can help the global campaign on employment and MS
Australian of the Year
GET PHYSICALThe link between exercise and quality of life for people with MS
BRISSIE TO THE BAYBrisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSEA new era of respite care in an idyllic setting on the Gold Coast
MSLIFE.AUTUMN 2012
LOUISA ON A MISSION How a young mum won’t let MS hold her backpg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
MS AWARENESS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse. I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice. MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.Just before Sophia’s fifth birthday (she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure. I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it could worsen. Maybe through diligent management, it won’t. I am praying that it won’t.When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
LIFEQueensland
THIS ISSUECEO’s Desk 2
Brissie to the Bay 3
Introducing Facebook 4
Portrait of Posterity 5
Work of Aart 6
Lynette Walks Again 7
Events 8
An 11 year old’s idea... 9
MS Readathon 10
Ambassadors Needed 11
Volume 3 Spring Edition, September 2008
LIFESpring Edition 2009
Giving life back
MS CLINIC CONVERSATIONSIn depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLDSpring 2010
CCSVI DEBATEWhy MS organisations are proceeding with caution on new treatments
Kate finds her dream job
GIVING LIFE BACKThe ambitious program to provide integrated and dignified care
FOR THE CAUSEMeet the Queenslanders supporting MS research and regional services
PwMSQ
A new framework to expand and strengthen the MS support group network
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Australia – QLD
BREAKTHROUGH MS RESEARCHScientists have identified the major common genetic variants that contribute to the cause of MS
MS gene discovery
ORAL TREATMENT JOINS PBSGilenya® is the first oral treatment for relapsing remitting MS to become available on the PBS
TREVOR FARRELL: GIVING LIFE BACKWe celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALEMeet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Multiple Sclerosis Society of Queensland286 Gladstone Road Dutton Park QLD 4102Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412
Phone: 07 3840 0888Fax: 07 3840 0813Email: [email protected]/qld
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLDSummer 2011
COMEBACK KIDGeoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MSTABLET TALKA look at new oral treatments for MS that offer more options
LET’S CRUISEHelen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALKOver 1300 people take a stroll through Brisbane to raise money for MS
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
MS Life MS Australia – QLD
A GLOBAL MOVEMENT P3How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15MS Research Australia provides you with the latest updates on MS research
MS Life MS Australia – QLDWinter 2011
EMPLOYMENT AND MSSee how Queensland took part in World MS Day celebrations this year
Employment Power
MS AWARENESS WEEKRead about the lip smacking campaign that had everyone talking about MS
MS AND SESPwMS Josie Montano helps during Queensland’s floods and cyclones
VIRAL MS CAMPAIGNLearn what Mayor of Ipswich Paul Pisasale feels about employment and MS
LIFEQUEENSLAND
Autumn Edition 2009
Giving life back
. “We Have MS,
Jonathan Loraine and Bruce Milligan
WORLD MS DAYHow you can help the global campaign on employment and MS
GET PHYSICALThe link between exercise and quality of life for people with MS
BRISSIE TO THE BAYBrisbane’s biggest charity ride celebrates 20 years and its biggest ever event
McKINNON HOUSE
Coast
LIFE.AUTUMN 2012
pg. 8 Nominate your MS Hero
pg. 8 Working with MS Workshops
pg. 12 One man’s struggle against the odds
pg. 15 Living Positively with MS
QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS
“MS has been very challenging. Not one to do things by halves, I will set off hiking the snowfields in NZ, snorkelling with sharks and turtles in Port Douglas, and cruising the Coast on a Harley…as a passenger.Then without announcement, I can be back as the resident celebrity in hospital learning to walk again.I have managed this condition through positive thinking, meditation, pilates, swimming, diet and an amazing amount of love and friendship. I had been totally drug free for 7 years opting for natural therapies. However after much resistance, in 2001, I went on injection treatment which can lessen the severity of relapse. I was totally needle phobic and now I inject myself daily: I am up to about 2000 injections so far! I have learnt to walk from scratch about 16 times and have been blind twice. MS has been a gift to me as it has given me a sense of urgency about life, encouraging me not to procrastinate about what I would like to do one day. I definitely do not want pity…there are many people
who are worse off. I love my life and I look forward to everything that life offers.I look at MS as a rewarding challenge and not a disability. It is an acceptance of whatever cards are dealt to you in this life. It is your choice on how you are going to manage that hand. I guess I look at life through different eyes these days and tend to live in the moment.Just before Sophia’s fifth birthday (she is 10 now), my Mum asked her what her three birthday wishes were. She stated that she “would LOVE a violin, a poodle puppy…but most of all Grandma I would love a cure for MS and that Mummy’s legs would work properly again”. She received the violin and recently Millie the poochon puppy, and is still waiting for the gift of a cure. I am 41 now, lived with MS for over 12 years and I am aware of the realities of this condition, understanding that the time may come when it could worsen. Maybe through diligent management, it won’t. I am praying that it won’t.When life hands you a bag of lemons – you simply go make lemonade!”
LIFE Queensland
Sharon and Sophia Ball with their puppy Millie
LIFEQueensland
THIS ISSUECEO’s Desk 2
Brissie to the Bay 3
Volume 3 Spring Edition, September 2008
New Record for brissie to the bay3800 CYCLIST PEDAL FOR A CURE!
Multiple Sclerosis Society of Queensland ABN 56 731 473 412
Jenni Ambassador, National Panel Horse Judge and person with MS
LIFEQUEENSLAND
Spring Edition 2009
Giving life back
MS CLINIC CONVERSATIONSIn depth answers to the most frequently asked MS questions
2nd Annual MS National Advocates Conference Storming Parliament House for MS
MS Life MS Australia – QLDSpring 2010
Kate finds her GIVING LIFE BACKThe ambitious program to provide integrated and dignified care
FOR THE CAUSE
regional services
Questions about MS?
Life at Annerley....COMPLETED!Giving back independence and dignity
We’ve got the answers you’re looking for
QUEENSLAND
us together!BOB AND KAREN’S LOVE STORY
MS brought
Summer Edition 2009
MS Australia – QLD
MS gene discovery
TREVOR FARRELL: GIVING LIFE BACKWe celebrate the end of an era as Executive Director Trevor Farrell prepares to retire after nearly 30 years
Q&A WITH MAYOR PAUL PISASALEMeet one of the most inspiring people living with MS in Queensland, Mayor of Ipswich Paul Pisasale
Locked Bag 370 Coorparoo DC QLD 4151ABN 56 731 473 412 Email: [email protected]/qld
CEO’s Desk 2Life Options 3Ian’s Story 4In Memory of John 5Reading for the Family 6Storming Parliament 8Events 9Research Breakthrough 10MS Book Reviews 12
LIFE AT ANNERLEY...MS SOCIETY OF QLD PURCHASES PARTIALLY COMPLETED TOWN HOUSES AS PART OF LIFE OPTIONS
Summer edition2009
MS Life MS Australia – QLDSummer 2011
COMEBACK KIDGeoff Huegill lends his support to MS, fresh from taking gold in Delhi
Lisa’s story of motherhood and MSTABLET TALKA look at new oral treatments for MS that offer more options
LET’S CRUISEHelen Emery takes on the high seas in style with husband Graham
MOONLIGHT WALKOver 1300 people take a stroll through Brisbane to raise money for MS
A YEAR OF EMPLOYMENT AND MSWHAT A YEAR IT HAS BEEN FOR MS WORLDWIDE
MCKINNON HOUSE FOR RESPITE p.6
PREPARING FOR THE SUMMER HEAT p.7
LEIZA’S STORYp.3
LIFEQUEENSLAND
Winter Edition 2009
Giving life back
Educate, Motivate & Advocate
Our New MS Ambassadors
Vitamin Dare you getting enough?
OUR PATRON Her Excellency Ms Penelope Wensley AO
The First OfficialWorld MS Day
A GLOBAL MOVEMENT P3How the world united with a common goal: to raise awareness of MS
Winter 2010
Debbie strives
despite MSCOOLING REBATE P5State Government introduces a new electricity rebate for low-income Queenslanders with multiple sclerosis
FEATURE STORY P10Debbie Smart was diagnosed with MS, but it didn’t stop her from moving to Africa to help vulnerable children
RESEARCH NEWS P15MS Research Australia provides you with the latest updates on MS research
MS Life MS Australia – QLDWinter 2011
EMPLOYMENT AND MSSee how Queensland took part in World MS Day celebrations this year
Employment Power
MS AWARENESS WEEKRead about the lip smacking campaign that had everyone talking about MS
MS AND SESPwMS Josie Montano helps during Queensland’s floods and cyclones
VIRAL MS CAMPAIGNLearn what Mayor of Ipswich Paul Pisasale feels about employment and MS
MEMBERSHIP: JOIN US TODAY
MS1192_MembershipDLJul13_Art01_sd.indd 17/07/13 3:39 PMPictured: 2013 Young Person of the Year Hannah Boag
WoRLD MS DAY NEARLY hERE
Our Wellness Wednesday programs, held at the Dutton Park Physiotherapy Department, encourage our clients to experience a variety of exercise programs, providing them with the confidence to self-manage their exercises on completion of the program in transitioning to groups offering similar programs in their local communities.
The Wellness Wednesday program was introduced in 2013 featuring an eight week Feldenkrais course. This initial program proved to be extremely successful, and was followed earlier this year with a Heartmoves for MS ten week course. This course was also extremely successful and was fully booked in advance.
The Wellness Wednesdays programs are designed to provide clients with beneficial, safe, fun, new exercise experiences in a positive and friendly social environment and to motivate them to say, “yes, I am going to explore exercise options in my community.”
To register your interest in future Wellness Wednesday programs for 2014, please contact our Physiotherapy Department Receptionist and Administrative Assistant Linda Wilson-Marks on 07 3840 0841.
Our Wellness Wednesday programs, held at the Dutton
wellnesswednesdays
MS
LIFE
– A
UTU
MN
201
4
7
NEWWORKSHOPSWORKSHOPS
MSAvAILABLE IN QUEENSLAND DURING 2014
READY PROGRAMIpswich (7 week program), commencing 1 May 2014
Program description:
READY (Resilience for Adults Every Day) is a group-based program developed by the University of Queensland that aims to help you build skills in managing the challenges of everyday life and living with MS. Participants in previous courses have experienced reductions in stress, and improvements in their ability to cope with difficult situations and difficult emotions. MS Queensland will be offering the program free of charge for clients living with MS in the Ipswich region.
FATIGUE SELF-MANAGEMENT WORKSHOPS Upcoming workshops (April – June): Townsville, Kingaroy, Gold coast, Logan, Brisbane South
Program description:
Fatigue is one of the most common symptoms experienced by people living with MS. This workshop provides an opportunity to share experiences and explore strategies to assist in managing MS fatigue. The morning is interactive in a group environment. Participants will meet others living with MS and discuss research based strategies to assist with day-to-day living.
WORKING WITH MS WORKSHOPS Upcoming workshops (April – June): Brisbane West, Toowoomba
Program description:
This workshop provides people with MS to make informed decisions about employment and planning for the future. It best suits those currently employed, seeking employment or people who have recently left their place of employment due to MS related issues. Topics include: the pros and cons of disclosure, workplace rights and responsibilities, support services, superannuation and insurance.
FOR MORE INFORMATION ON PLANNED WORKSHOPS
FOR 2014, CALL OUR INFOLINE ON 1800 177 591
OR VISIT OUR WEBSITE WWW.MSQLD.oRG.AU
MS LIFE – AU
TUM
N 2014
8
cELEBRATING
YEARSELEBRATING20
DID YoU KNoW oUR INfoLINE WAS INTRoDUcED 20 YEARS AGo?
In 1994, MS Queensland first introduced our 1800 phone service to provide information and support to people living with MS. Our InfoLine is a point of contact where anyone can access up-to-date, useful information on MS. Callers can conveniently find answers in one place; whether you are newly diagnosed with MS, a carer, family member, or someone from the public with an interest in the condition. During 2012–13, our Information and Resources Coordinators answered over 2,400 enquiries from the community. We also distributed over 17,000 resources on MS-related information, and facilitated more than 19,800 electronic downloads from our online resource centre at www.msqld.org.au
Today, our InfoLine is run by both Nicky Atkinson and Rachel Blom and we thank these ladies for their commitment to helping the MS community.
If you have an MS-related question or would like information on our services, you can contact our InfoLine on 1800 177 951 between 8:30am and 4:30pm, Monday to Friday.
“Well, Vernon. You are too sick to do the last couple of tests we wanted to do, but we are fairly confident that you have MS so the best thing to do is to go home and get on with your life.”
So spoke my neurologist in 1989. The advice to go home and get on with life was, as it turned out, excellent. The problem was that I did not know anything about MS and what it meant for my future. Fortunately, the Sister on duty suggested I make contact with MS Queensland, and that advice stuck in my brain.
From 1989 to 1995 I worked as a teacher until the impact of fatigue took its toll and I decided I needed to look at other employment opportunities. After about five years working in a call centre my productivity declined and I was unable to complete work as fast as what was required. The manager of the call centre became aware of my diagnosis and created a suitable position for me which was also of significant benefit to the company.
Unfortunately, my time in the call centre came to an end when jobs were moved around and so I had to be retired on medical grounds (I was over 55).
Was I on the scrap heap? The thought did not even enter my head.
Another aspect of my life saw my move from Adelaide to Cairns and me doing whatever I could with the Cairns Choral Society, the Trinity Beach Lions Club (TBLAMS), a church and the MS community there. In 2009, I made a presentation as the guest speaker to my Lions Club. Most of the membership did not know that I had any medical problem at all and were blown away by what I had to say. Since that time, the TBLAMS Gym Team has been created and members of the Trinity Beach Lions Club have taken the lead in bringing a very successful MS Swimathon to Cairns. Perhaps most importantly, the Lions Club instigated an exercise program at the local PCYC gym for people living with MS, which has shown itself to be an excellent, beneficial program.
Over the years I have been a public face for MS; for the campaign offering electricity subsidies to people who have a medical condition requiring air conditioning, for the MS Swimathon, and more recently, for a change to the way funding for the Cairns Base Hospital is provided – specifically with respect to the appointment of more than one neurologist for the area. I have made contact with local politicians and am able to speak to all of them with ease, at both federal and state levels.
One might say that I enjoy my life and it is of benefit to my community. I believe I have so much left to do and will keep
doing it until I am incapable of finding a way to get it done. I expect that will be in many years’ time.”
Vernon has recently moved to South Australia. We thank him for his invaluable support and dedication to the North Queensland MS community.
HOW VERNON LIvES PoSITIvELY WITh MS
MS
LIFE
– A
UTU
MN
201
4
9
SOUTH WEST QUEENSLAND CLIENT SURVEY SUCCESS
Towards the end of 2013 our South West Queensland Regional Service Coordinator, Janice Wheeler, surveyed more than 200 clients from the Ipswich and Toowoomba regions to gain feedback on their specific MS needs. The feedback helped us plan information workshops and sessions for the coming year. The survey showed people with MS were most interested in:• informationsessionscoveringexerciseandphysiotherapy,
cognition and memory, fatigue, depression and continence; and
• coffeeandchatsessionswithotherpeoplelivingwithMSinthe area.
Based on the feedback, workshops in Ipswich and Toowoomba were planned for the next 12 months. To date MS Queensland has partnered with other organisations in delivering:• acontinenceinformationsession• anexerciseandphysicalactivityworkshop;and• thefirstcoffeeandchatsessioninSpringfieldLakes.
In 2014 we will be delivering another round of workshops including:• afatigueself-managementcourseforToowoomba• asecondinformationsessiononcontinence• anEmploymentandMSworkshop;and• theReadyresilienceprogramintheIpswicharea.
The success of these client surveys have proven invaluable for MS Queensland. Not only have our Services team gained knowledge of the interests and concerns of our clients in the South West Queensland region, it’s also provided us with the opportunity to plan and deliver the relevant workshops and support networks for our MS community in 2014.
These surveys have now been distributed in three regions throughout the State. If the opportunity arises in your region make sure you take every opportunity to have your say. This will greatly assist us in delivering the most relevant services to your MS community.
hAvE ThEIR SAY
oUR
cLIENTS
TRISh fRoM TooWooMBA
Trish Schultz was diagnosed with MS in 2000, and lives on a farm property in Pittsworth with her husband Garry. Although she lives in the country (a 40 minute drive outside of Toowoomba), Trish has been extensively involved with her local support group for more than a decade. She has held the role of Treasurer for a number of years and is now the President of the Toowoomba MS Support Group.
Despite the travel time, and with the encouragement from her Regional Service Coordinator (RSC), Trish and her daughter Marjorie (who also lives with MS) have participated in number of MS Queensland facilitated workshops.
In 2012, Marjorie attended one of our fatigue self-management courses and found the workshop highly beneficial in terms of assisting her to manage her MS-related fatigue and day-to-day living, so much so that she encouraged her mother to attend one of our workshops. Having been diagnosed with MS 13 years ago, Trish was unsure of how our chronic disease management workshop could benefit her. “I now understand how important it is for people with MS to keep up with the latest treatments and strategies available to help manage the disease, no matter how long ago they were diagnosed.”
Today, Trish says “knowing that Janice (my RSC) is available anytime to talk to me about my MS and advise me on what help is available, is invaluable to me and my family.”
For more information on our range of services and how we can help you manage your MS, please contact our InfoLine on 1800 177 591 or visit our website www.msqld.org.au
MS LIFE – AU
TUM
N 2014
10
JUST LIKE NO TWO PEOPLE LIVING WITH MS ARE THE SAME, NO TWO SUPPORT GROUPS ARE THE SAME.
While each Support Group may function in their own unique way, the spirit of fun, friendship (and coffee) is what continues to bring each MS Queensland Support Group together.
Some of our Support Groups have been officially running for over 30 years – and some for just over a year. No matter how long a Support Group has been gathering, all groups across Queensland certainly welcome new members.
At the inaugural People with MS Support Group Forum in November last year, representatives from each Support Group in Queensland
came together to share information about why their group exists. When the initial MS Support Group was initiated by Ann Langley and her group of supporters, little did they know the foundation they created at MS Queensland, together with the connections, would span decades and evolve from providing support to fostering lifelong friendships.
On our website www.msqld.org.au you will find a list of Support Groups. Some refer to themselves as an informal social group, while others offer a peer support and social group with a structured agenda and a host of various guest speakers invited throughout the year. Fundamentally, they all exist to meet for a coffee and a chat and for support, whether they are the person living with MS, a carer, or family member.
Last year the People with MS Support Group Forum, Support Group members spoke about what they’ve taken from their group since joining. Comments included: ‘life-long friendships have been made,’ ‘met so many great people,’ ‘great encouragement they get from one another,’ ‘share in the benefits of exercise,’ ‘our goal is to bring people out of isolation,’ and ‘MS doesn’t have to be about the disease.’
If there is a Support Group in your area it’s certainly worth a visit, and if not, perhaps you can consider starting your own – it only takes one person and a little bit of passion and determination. For more information contact our InfoLine on 1800 177 591 or visit www.msqld.org.au
SUPPORTThE RoLE of
MS
LIFE
– A
UTU
MN
201
4
11
QUEENSLANDRESEARchERSfIND PoTENTIAL TREATMENT foR PRoGRESSIvE MS
FEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORYFEATURE STORY
Photo courtesy of Lite n’ Easy
MS LIFE – AU
TUM
N 2014
12
ABOUT THE RESEARCH
The study, led by Professor Michael Pender from The University of Queensland, used a new, drug-free treatment process that could potentially treat progressive MS and other chronic autoimmune diseases in the future.
To test his theory, Professor Pender and collaborators from the QIMR Berghofer Medical Research Institute, The University of Queensland School of Medicine and The Royal Brisbane and Women’s Hospital administered a six week treatment course to wheelchair-bound Queensland dad, Gary Allen. Gary began to experience significant clinical improvements in his MS symptoms within two weeks and is still seeing the benefits one year on.
The treatment, developed at QIMR Berghofer Medical Research Institute by Professor Rajiv Khanna, involves collecting a person’s immune cells – known as T cells – from the patient’s blood, growing them in a laboratory along with an EBV vaccine and then transferring the cells back to the patient by intravenous infusion. The treatment does not require the use of any drugs. Professor Khanna has successfully led clinical trials to establish the safety of the treatment in other diseases.
This experimental therapy targeting EBV, had no negative effects on Gary and within weeks he experienced a significant reduction in fatigue and painful spasms, an improvement in thinking, memory, attention and hand function, and increased productivity at work. There was also reduced disease activity on his MRI brain scan. At his latest follow-up, Gary also had improvement in the movement of his legs.
Professor Pender’s research has already received significant international and national media coverage
including Channel 7, The Australian, The Courier Mail, The Medical Observer and ABC Radio National – now all available on our website www.msqld.org.au
*In clinical trials, a single reported case such as this, even if it appears to be beneficial to the person treated, does not indicate that the outcome can be generalised. Further controlled trials are needed involving larger numbers of patients before a conclusion can be drawn about the efficacy of the treatment.
IT HAPPENED IN OUR VERY OWN BACKYARD AND IT’S ALREADY RECEIVED INTERNATIONAL MEDIA ATTENTION. IN FEBRUARY THIS YEAR, THE InTERnATIOnAL JOuRnAL OF MuLTIPLE SCLEROSIS PUBLISHED PROFESSOR MICHAEL PENDER’S RESEARCH SUGGESTING THAT CONTROLLING INFECTION WITH THE EPSTEIN-BARR VIRUS (EBV) – THE MOST COMMON CAUSE OF GLANDULAR FEVER – MAY BE BENEFICIAL IN TREATING SECONDARY PROGRESSIVE MS.
QUEENSLAND RESEARCHERS FIND POTENTIAL TREATMENT FOR PROGRESSIVE MS
MS
LIFE
– A
UTU
MN
201
4
13
FEATURE STORY
MEET PROFESSOR PENDER
The man who led this research is Professor Michael Pender, Director of the Multiple Sclerosis Research Centre at The University of Queensland.
Professor Pender spent 33 years researching MS and the last 12 years exploring the role of EBV in the development of MS. The latest research of Professor Pender and his team could possibly lay the foundation for the prevention and effective treatment of MS.
His interest in the human brain began at a young age when one of his uncles gave him a book about the nervous system. From Grade 8 Professor Pender studied intensely about science biology, and at the age of just 14 on a visit to the Brisbane Museum with his father, he saw a brain in a bottle and instinctively knew that he would study the human brain for the rest of his life.
But his research interest into MS didn’t begin until his fourth year at University in the pathology museum where he saw the brain of a person with MS. “I could see the pink-grey sharply defined demyelinated areas of the brain. After my university studies I knew I wanted to specialise in neurology and to do research.”
Whilst training in neurology, Professor Pender met his wife Philippa at St Vincent’s Hospital in Sydney. They had their first daughter Katie and moved to London to further Professor Pender’s research into MS. Here, he and his new family arrived with no income and a 10 day old baby; it was a risk, but it was the leading hospital to begin research in neurology.
“There were a lot of barriers but I was very determined and persistent. The most important lesson I learnt there was it is absolutely fundamental to always have a hypothesis. Here, I learnt to think scientifically.”
As you can see Professor Pender is very passionate about his work and his mission to help prevent and treat MS. In his own words he said, “I don’t believe in chance – every important decision I’ve made on this theory, and throughout my 33 years researching MS, I have always prayed for the guidance and strength I need. Then opportunities come along.”
MORE INFORMATION?
We’ll be keeping the MS community informed on any major developments into Adoptive Immunotherapy for Progressive MS via our website and e-newsletter MS Insight. To register for updates please visit our website www.msqld.org.au
MS LIFE – AU
TUM
N 2014
14
...SUMMED UP IN ONE WORD, GARY PERSONIFIES RESILIENCE.
MEET GARY ALLEN
Gary Allen, a 43 year old father and husband from Samford, is the patient who recently received Professor Pender’s experimental treatment to halt the progress of MS.
In 1994, Gary started experiencing what he knows now were MS symptoms. His balance was affected, along with pins and needles and weakness in his legs.
It wasn’t until 2000 when Gary underwent an MRI, that he received his diagnosis of MS. He initially lost touch with MS Queensland and our services, having moved through the stages of denial and trying to keep himself extremely busy in his job at Queensland University of Technology (in 2003 he moved to working for Griffith University).
Becoming wholly reliant on a wheelchair in 2007, Gary has continued to work as a Policy Officer for Griffith University but has reduced his ‘in office’ hours over the years. In 2011 Griffith University was awarded an MS Heroes award for their support of Gary through implementing work-from-home arrangements, modifying his duties, purchasing special equipment and making various workplace modifications. These have all had a
positive influence on Gary’s sense of self-worth and his ability to stay working in an industry he loves.
Summed up in one word, Gary personifies resilience. Despite being wheelchair bound, Gary hasn’t let the many challenges presented by MS rule his life and when he was asked by Professor Pender to trial the new EBV treatment he knew he had to say ‘yes.’
His wife Renay and 10 year old son, Connar have also enjoyed the improvements seen in Gary from his recent treatment; allowing them to recently take their first family holiday in ten years.
In Gary’s words, “no one would choose to be diagnosed with a chronic medical condition or relish the prospect of living with an illness with an uncertain prognosis. One of the hardest parts of a MS journey is the uncertainty – no one can show you a chart and say, “you are here, and in ten years you’ll be there.“
QUEENSLAND RESEARCHERS FIND POTENTIAL TREATMENT FOR PROGRESSIVE MS
Photo courtesy of The Courier-Mail
MS
LIFE
– A
UTU
MN
201
4
15
NEAR YOU
1616
coMMUNITY fUNDRAISING oPPoRTUNITIES
Throughout 2013 we had a range of amazing fundraisers out there in the community raising awareness and funds for MS Queensland. People from all walks of life; those living with MS, affected by MS or simply wanting to help a worthy cause. They all share the same passion and drive to empower and educate people about MS.
Now we’re looking for more wonderful people across Queensland to join us in the fight against MS. Fundraising can be easy and you can tailor it to suit your own interests, commitments and strengths. Almost anything can be turned into a fundraiser:• loveachallenge?Runamarathon,beanironman,trek
a mountain, cycle through the states – we can help you setup your own personal online fundraising page to collect donations;
• youcaneventakefundraisingtoworkwithyouby
Autumn brings with it a wave of MS Swimathons in North Queensland. With swims taking place in Rockhampton on Saturday 10 May, Mackay on Sunday 18 May and Townsville on Sunday 1 June, there are plenty of opportunities for keen swimmers in North Queensland to dive into a pool and swim your heart out to raise funds to support people living with MS.
We’ll be hosting a total of seven swims this year and aim to raise over $300,000 which will go directly towards support services for those Queenslanders living with MS and their families. If you or anyone you know is keen to participate in any of our MS Swimathons across the state, jump online and register yourself, register a team or sponsor someone you know who is swimming. To find a location near you, visit www.MSswimathon.com.au
INTO AN MSSWIMATHON
DIVE
hosting a ‘Dress in Red’ MS morning tea, BBQ or Friday social drinks. Ask your employer to gift-match the donations made by staff;
• makeyourbirthday,wedding,oranniversaryevenmore special by asking your guests to make a gift donation to provide support to MS Queensland; or
• holdacakebakesale,makeaquilttoraffle,collectgoldcoin donations, or ask MS to be the charity of choice at your community club, bowls club or sports club.
For more information on how to become a community fundraiser contact Julie Hanlon, our Fundraising Coordinator on 07 3840 0887 or email [email protected]
Autumn brings with it a wave of MS Swimathons in North
MS LIFE – AU
TUM
N 2014
16
We’re excited to announce the 2014 MS Moonlight Walk will be held on friday 17 october this year! Put the date in your diary and get prepared for a fantastic moonlight
walk around the Brisbane River.
Last year’s walk was a huge success, raising over $500,000 to support people living with MS. We now need your support to help make this year’s
walk bigger than ever. For more information visit www.MoonlightWalk.com.au
The Enerflex MS Brissie to the Bay bike ride has been part of the Brisbane cycling scene for over two decades and is loved for its fun and friendly atmosphere. On Sunday 22 June nearly 6,000 riders will be slipping into their lycra to take part in the annual ride to fight MS.
Now in its 24th year, the ride has definitely come a long way since its humble beginnings, when it attracted a modest 80 riders back in 1980. Not only is the ride a fun day out on the bike, our amazing riders also raise money to help better the lives of all Queenslanders living with MS.
This year to celebrate how far we’ve come, we’re aiming to break more fundraising records and raise a sensational $1.5 million for people living with MS. But we can’t do this without your help! You can join in the challenge by riding one of four exciting distances. There is the family friendly 10km course around the Brisbane Riverside, the scenic 25km ride to Balmoral, the classic 50km to Wynnum or the challenging 100km course to Wellington Point.
Register today and take advantage of discounted entry at www.BrissietotheBay.com.au
✔ support cardiovascular functions ✔ warm legs with less or no pain✔ ease spasms increase mobility
MOTOmed Passive/active exercise. Assist in your own rehab.
Ideas move more
PHONE 1800 994 408www.abilityinmotion.com.au [email protected]
SErvO POwEr ASSiST Up to 55km range, SWL 150kg, 2 programmes – 10 levels, airport mode, no stud axles, includes remote.
ENERfLEX
to the
Sunday 22 June nearly 6,000 riders will be slipping into their lycra to take part in the annual ride to fight MS.
Now in its 24th year, the ride has definitely come a long way since its humble beginnings, when it attracted a
to Bay
ENERfLEX
to to Bay BayBrissie
SAVE THE DATE
MS MOONLIGHT WALK
MS
LIFE
– A
UTU
MN
201
4
17
‘LIvING PoSITIvELY WITh MS’ WITh MAYoR PAUL PISASALE
LIVING POSITIVELY WITH MS IS A LIFELONG MANTRA FOR MANY PEOPLE LIVING WITH MS. LIKE EVERYTHING, THESE POWERFUL WORDS MEAN DIFFERENT THINGS TO DIFFERENT PEOPLE.
For some it may mean adopting a healthier lifestyle, for others it may mean learning more about MS through reading MS Life. We all have different types of MS, we’re all different ages, and we’ve all been living with MS for different lengths of time.
A few years ago, our wonderful MS Ambassador Mayor Paul Pisasale spoke of how he lives positively with MS and how this lifestyle mantra has assisted him. Mayor Pisasale then called for the MS community to share how they live positively with MS.
It has been a delight to welcome stories sharing how people across Queensland from different backgrounds, lifestyles and ages live positively with MS.
This year we’d love to hear from you and allow others to share how you live positively with MS. All contributors will be invited to share afternoon tea with Mayor Pisasale and all other story contributors, and one lucky selected person will be sharing lunch with Mayor Pisasale and MS Queensland Advocacy Manager Natalie Walsh.
In 500 words or less, we would love to hear your Living Positively with MS story. Please send your Living Positively with MS story by Friday 11 April to our Advocacy Manager Natalie Walsh at [email protected] or call 07 3840 0823 if you have any queries.
STORY
C
M
Y
CM
MY
CY
CMY
K
2014 0213 MS Queensland CAPS OL.pdf 1 14/02/2014 5:01:21 PM
ShARE YoURXx
2013 Living Positively winner Emily Foster and Mayor Pisasale
MS LIFE – AU
TUM
N 2014
18
IF YOU LIVE WITH MS, YOU SHOULDN’T UNDERESTIMATE THE IMPACT SELF-ADVOCACY
CAN HAVE ON YOUR WELL-BEING, SELF-CONFIDENCE
AND PRIDE.
SELFADVOCACY
Ronda Bennett was diagnosed with MS in 2001 and over the years has experienced a gradual loss of mobility in her legs, as well as a visual impairment. She now lives in our primary care facility Granston Lodge and remains engaged with her local community, taking regular outings into the community.
Recently, while trying to manoeuvre her mobility scooter along the crossing of Annerley and Park Roads at Dutton Park, Ronda was becoming increasingly conscious of the concerning and unavoidable blind spots.
Ronda and her Vision Australia Orientation Mobility Specialist, Christa, decided to contact the local council and request for improvements to be made to the busy intersection.
Two council representatives visited Ronda, and accompanied her and
Christa as they demonstrated the danger of crossing the intersection at Park Road. Christa also supplied the two council representatives with special glasses that replicated a visual impairment – demonstrating what it feels like to cross the road for Ronda on a daily basis.
As a result, the local council have promised Ronda that they will address the issues at the Park Road-Annerley Road intersection, and plan to redesign the entire intersection within 18 months. Not only have they committed to making this crossing safer, but within one day, they had also lengthened the amount of time that lights stay red at the Peter Doherty Street-Annerley Road crossing (outside Granston Lodge) so that Ronda can safely cross the road before the light turns green for oncoming traffic.
Like Ronda, you too can bring about change in your community.
For more information, please contact our Advocacy Manager Natalie Walsh on 07 3840 0823 or [email protected]
Ronda at the Park Road lights
Ronda at the Park Road lights
ThE RoAD To SUccESS
MS
LIFE
– A
UTU
MN
201
4
19
A DAY IN ThE LIFE OF GLENN
As Glenn fatigues easily, he takes the opportunity after meditation sessions to have an afternoon rest. An independent living assistant helps Glenn move out of his chair and into bed, and he takes this time to recharge before Skyping his son Liam who lives in Scotland.
After Skyping with his son and catching up on all his goss, Glenn goes downstairs to prepare dinner in his kitchen.
As it’s a Saturday night, Glenn often enjoys going to see a movie at the cinemas. One of the independent living assistants accompanies him.
After a long day, it’s time for bed!
Not only does Glenn have a great relationship with his mother and cousin who visit a few times a week, but he’s also lucky to have an amazing support network of lifelong friends who participate in a number of fundraising and social events with him. Twenty five years ago, Glenn studied a Bachelor of IT at university. Today, ten of his university friends and their partners continue to keep in close contact – often catching up for lunch about once a month – and each year they participate in the annual MS Moonlight Walk to support Glenn (pictured below).
To find out more about accommodation and respite services please call our InfoLine on 1800 177 591.
GLENN WAS DIAGNOSED WITH MS IN 2005, AT 35, AND OVER THE YEARS HAS ExPERIENCED A GRADUAL LOSS OF MOBILITY IN HIS LEGS. HIS EYESIGHT HAS ALSO BEEN AFFECTED, AND HE SUFFERS FROM FATIGUE AND HAND TREMORS.
Glenn now lives at our community based accommodation facility Annerley Apartments, and maintains an active lifestyle. Annerley Apartments is a community-based living model of four modern townhouses that caters for up to eight people living with MS requiring 24-hour care. Annerley Apartments encourages independence and community involvement.
We spent a day with Glenn recently to see what a ‘day in the life’ of our Annerley residents looks like.
SATURDAYS
Glenn is an early riser and is usually up and ready for the day by 7am. An independent living assistant assists Glenn with moving from his bed into his wheelchair, having a shower, and going downstairs to his kitchen for breakfast.
After breakfast, Glenn’s mum Sue and cousin Jodie arrive. Jodie and Glenn are close in age, and being an only child, Glenn has grown up with Jodie as a sister figure so they have a special relationship. They’ll often pop down to the local pub for lunch and a beer, or head to the Westfield Carindale shopping centre.
Glenn and his family aim to be home by 2:00pm so that he can participate in Fran’s weekly meditation session. Every Saturday, residents at Annerley Apartments enjoy a 30 minute meditation session run by our independent living assistant Fran. These sessions have helped some of the Annerley residents achieve some movement in limbs that were thought to be immobile.
MS Moonlight Walk to support Glenn (pictured below).
To find out more about accommodation and respite 1800 177 591.
Glenn with his Mum, Sue
MS LIFE – AU
TUM
N 2014
20
ADVOCACY WITh NATALIE
Keep updated on news regarding the NDIS on our website or contact Natalie Walsh 07 3840 0823 or email [email protected]
“WE ALL HAVE THE POWER TO CONTRIBUTE AND INFLUENCE POLICY WITH OUR STORIES IN OUR LOCAL COMMUNITY.
This year means it’s only two and half years before the National Disability Insurance Scheme (NDIS) begins to roll out in Queensland – with full completion of the rollout in 2019.
Keeping pace with the plentiful amount of information regarding the NDIS and how it will affect everyone’s day-to-day life requires everyone to use this preparation time to get the most out of working with the new NDIS.
The Queensland Government recently released the Queensland Disability Plan 2014–2019, to assist Queenslanders for the transition to the NDIS outlining the Government’s proposed actions over the next five years. Visit www.communities.qld.gov.au for more information. This is a positive move, however even though the time seems some distance away before there is an NDIS in Queensland, people need to begin to think about how they will work with their individual plan and the NDIS.
We’ve been sharing information about the fundamentals of the NDIS, about choice and control, working with your goals and ambitions, about people having a good life; it’s not just about services and support but things that support you to have an inclusive life.
At a recent NDIS conference, a 27 year old lady who is the founder and managing director of her own company specialising in web and graphic design who has been self-managing her support, was asked how long it had taken her to get to where she is (e.g. happily self-managing her support). Her answer was “all my life.”
We now have time to do the thinking, to do the pre-planning. Your chosen supports and services need to provide the foundation for you having your best life. MS Queensland is working to share your collective voice and raise issues that affect the lives of people living with MS. This information is then shared by meeting with sector partners and government regarding issues that are of concern to all of us. It’s important that local information is shared throughout Queensland so please get in contact with your member of Government: local, state or federal to share information about the issues that affect you. If you’d like to discuss any issues regarding Advocacy and MS please contact our Advocacy Manager Natalie Walsh on 07 3840 0823 or [email protected]
Natalie Advocacy Manager
DID YOU KNOW
ThAT WE SUPPoRT PhYSIoThERAPY
UNISTUDENTS
MS QUEENSLAND is a training partner with Bond University, the University of Queensland, and
for the first time, the Australian Catholic University for their physiotherapy students in 2014.
We provide an opportunity for four students each year to meet people living with MS
and learn about assessment techniques and treatment options.
We look forward to up-skilling these students for their future work with people with
neurological conditions.
MS
LIFE
– A
UTU
MN
201
4
21
QUESTIONS WITh TIM
If you have an MS-related question to ask our Manager of Specialist Education Tim, that can be answered in the next MS Life, please email Tim at [email protected] before 14 April 2014.
ABOUT VITAMIN DOne of the most common questions I get is about Vitamin D. Unless you have been living under a rock, I’m sure you’ve all come across it in all forms of the news over the last 18 months too. So in 500 words or less here is what we know (and don’t know) about Vitamin D and MS.
Vitamin D is a steroid hormone that is predominantly produced in the body when the skin is exposed to the ultraviolet rays in sunlight – we get a very small amount from food. Vitamin D is required for optimal bone health, and vitamin D deficiency can lead to osteoporosis and influence neuromuscular function (strength and balance).
The possible role of Vitamin D in MS is the focus of much debate. There is evidence that low levels of Vitamin D are associated with an increased risk of getting MS. In established MS, low levels of Vitamin D have been associated with relapses and increased disability.
HOW MUCH VITAMIN D – AND WHERE DO WE GET IT?The recommended minimum Vitamin D level is 50nmol/L (in your blood), but recent research suggests there may be additional benefit in maintaining Vitamin D levels of 75nmol/L or higher. To check your own Vitamin D levels, you should ask your GP for a blood test. They can then advise you on whether you need to increase your Vitamin D levels. It is very important to find out where your levels are – not just if they are ‘normal’ or low.
Theoretically, there are three ways to increase Vitamin D levels:1. take Vitamin D supplements (easiest);2. increase your exposure to sunlight – follow
the Queensland Cancer Council’s sun-safe recommendations; and
3. increase your intake of foods containing Vitamin D (very hard to do!).
I GET LOTS OF SUN BUT MY VITAMIN D IS STILL LOW!Some people simply don’t metabolise the ultraviolet B (UVB) rays into the usable hormone as efficiently as others. The easiest thing to do is to have your levels checked. They may be okay in summer but low in winter.
Skin colour does influence the amount of sun exposure you need to produce Vitamin D, as does weight – the darker your skin or if you are overweight or obese, you need more time in the sunlight. It will probably surprise most that even in Queensland there are periods in winter where the sun is not strong enough for the skin to produce sufficient Vitamin D.
IF I TAKE A SUPPLEMENT – HOW MUCH DO I TAKE?Unfortunately, we just don’t know. Again talk to your GP or neurologist. There are a lot of research projects currently going on around the world to try and give us a better answer than this. Vitamin D is sold in International Units (IU) – capsules or tablets generally have 1000IU. Some people may only need to take one a day – others if very low in Vitamin D may need to take 4-5 a day until their levels come up and then reduce how much they are taking. Again, your GP can help keep an eye on your blood levels.
MORE INFORMATION?MS Queensland has a number of resources from different sources available to you, call our InfoLine on 1800 177 591 or visit www.msqld.org.au
Tim MS Nurse Practitioner Manager Specialist Education
ABOUTVITAMIN DDDD
MS LIFE – AU
TUM
N 2014
22
If you have any questions about our support groups and how we can assist you, please contact me at [email protected]
For more information about any of these resources, or to have a copy of these mailed or emailed to you, please email us at [email protected] or phone our InfoLine on 1800 177 591.
MS RESoURcES
MS SUPPORT GRoUPS UPDATE
In the 1970’s the average time of an MS diagnosis from first symptoms was seven years. Today, this process still takes time however modern technology has somewhat streamlined this process (e.g. with the introduction of MRIs).
The diagnosis process is one of the three most common questions that our InfoLine receives. Here are four useful resources to assist you in understanding the diagnosis process of MS.
IS IT MS?This edition looks at the process of diagnosing MS, and the uncertainties people with MS and their healthcare professionals face throughout the MS disease process.www.msqld.org.au/msresources/information-on-ms
THE ROAD FROM SYMPTOMS AND SIGNS TO CERTAINTYA conversation with a neurologist and MS researcher Dr. John Corboy about how we understand and diagnose MS today.www.mscenter.org/images/stories/PDf/Informs/InforMS2011winterlowes.pdf
MRI: MAKING MS VISIBLEThis issue looks at MRIs generally, and from the points of view of a neurologist, a radiologist and a person who has MS.http://catalog.proemags.com/publication/8537eeeb#/8537eeeb/6
INFORMATION, TECHNOLOGY AND MSThis resource focuses on information: where to find it, how to use it to be empowered, how it connects people and how it should be assessed.www.msif.org/about-us/communicating-ms/ms-in-focus-magazine/information-technolgy-and-ms.aspx
DIAGNoSING MS
ISThis edition looks at the process of diagnosing MS, and the uncertainties people with MS and their healthcare professionals face throughout the MS disease process.www.msqld.org.au/msresources/information-on-ms
TANDA conversation with a neurologist and MS researcher Dr. John Corboy about how we understand and diagnose MS today.www.mscenter.org/images/stories/PD
MRI: MThis issue looks at MRIs generally, and from the points of view of a neurologist, a radiologist and a person who has MS.http://catalog.proemags.com/publication/8537eeeb#/8537eeeb/6
INFORMATIONANDThis resource focuses on information: where to find it, how to use it to be empowered, how it connects people and how it should be assessed.www.msif.org/about-us/communicating-
As predicted, the year is off to a great start with Support Groups meeting together after a well-earned break keeping out of the heat.
We’re looking forward to inviting more people interested in joining Support Groups and also hearing from people who wish to start a new Support Group. As mentioned in ‘The role of Support Groups’ article on page 11, there are many ways people choose to have their Support Group function, but the value of each and every one cannot be underestimated for the friendships and support that is provided – and I have certainly had the pleasure of experiencing that first hand!
The MS International Federation (MSIF) have made this year’s World MS Day theme ‘Access’ focusing on the many ways that access can affect people’s lives living with MS; including physical access, access to public transport, access to gaining employment, access to medication and the same social and economic opportunities as everyone else.
I am encouraged by the Support Groups that have shown interest in contacting their member of Government – local, state or federal to join their Support Group during May, MS Awareness Month. I know Natalie Walsh, MS Queensland’s Advocacy Manager would be happy to assist with any queries you may have.
Finally, our fantastic MS fundraising events have already begun with at least nine events happening around Queensland this year. We know some amazing fundraisers and more MS champions who will bring with them hard work and dedication and we will all share in the total success of what is achieved from their participation. Keep up to date with the events happening near you at www.msqld.org.au
MS
LIFE
– A
UTU
MN
201
4
23
Unless otherwise stated, the views expressed in MS Life and submitted photography are those of individual authors and MS Clients, and not of MS Queensland. MS Queensland does not expect or invite any person to act or rely on any information, statement or opinion in MS Life, and readers should make and rely on their own inquiries, and obtain professional advice, before making any decisions or giving any advice arising out of any such information, statement or opinion. Neither MS Queensland nor any of its employees, agents or contributors shall be liable for any errors or omissions in any material in MS Life, and in no event will MS Queensland or any of its employees, agents or contributors be liable for any loss or damage arising from reliance on any information, statement or opinion in MS Life. Apart from any use permitted under the copyright act, no material in MS Life may be reproduced or communicated to the public in whole or in part without written permission from MS Queensland or the relevant copyright owner. © 2014 Advertising Disclaimer: Advertisements are provided to assist consumers to locate and purchase suitable products and services. MS Queensland does not endorse any one product or service over another, nor do we receive any commission on sale of items. Consumers are encouraged to discuss the options for purchase with the particular supplier as MS Queensland is not liable in the event the product is not satisfactory.
22 JUNE
www.BrissietotheBay.com.au
MS Enerflex Brissie to the Bay bike ride
5–30 APRIL
www.msqld.org.au
MS Heroes Awards judging period
1–31 MAY
www.KissGoodbyetoMS.org
MS Awareness Month
6 APRIL
www.MSswimathon.com.au
MS Swimathon Cairns
for more information contact the MS Queensland Events Team on 07 3840 0828 or email [email protected]
1 JUNE
www.MSswimathon.com.au
MS Swimathon Townsville
NOVEMBER
www.MSswimathon.com.au
MS Swimathon Jindalee
10 MAY
www.MSswimathon.com.au
MS Swimathon Rockhampton
17 OCTOBER
www.MoonlightWalk.com.au
MS Moonlight Walk
18 May
www.MSswimathon.com.au
MS Swimathon Mackay
28 MAY
30 MAY 2012
www.WorldMSDay.org
World MS Day: themed “Access”
NOVEMBER
www.MSswimathon.com.au
MS Swimathon Toowoomba
