13
The mission of the Depression and Bipolar Support Alliance (DBSA) is to improve the lives of people living with mood disorders. Mental Health Reform: The Patient Voice is Heard 4 Five Key Concepts for Family and Friends Mental Health Reform in Recent Years 5 2004 Year in Review 4 11 Chapter Leadership Awards Fall 2005 INSIDE The President's New Freedom Commission has brought about a shift in the mental health care model. Because of this report, lawmakers, policy makers and health care providers must place patients in the center of care. Mental health treatment is to be directed toward meeting the expressed needs and desires of patients. At long last, what we have been practicing and advocating is becoming widely accepted. The tide is starting to turn – people who can make changes are listening. Although we have much more to accomplish as consumer and family advocates, we now have something to celebrate. At DBSA, we have always known that the only way people with depression or bipolar disorder can become truly well is to be active partners with their health care providers in treatment. Today, produc- tive communication and wellness alliances have gained recognition. Patient- and family-centered communication are on their way to becoming the norm, not the exception. We might not see the results of mental health reform at our next doctor visits. Lasting change will not happen overnight, but it is happening. National insurance parity laws (equal coverage for mental and other physical illnesses) have not been passed, but statewide parity has been passed or mandated in many states. Mental health advocates are working with U.S. policy- makers to analyze, review and recommend ways to change our current sys- tem. They are also working to improve access to care for peo- ple who receive Medicare or Medicaid. Our cause has the attention of more government and legislative officials than ever before. As long as we stay informed and keep working for change, we can look forward to seeing real results in the future. “It is time to put some action into the ‘Action Agenda,’” said Congressman Patrick Kennedy (D-RI). “With the Administration’s release of its Action Agenda and the Campaign for Mental Health Reform’s leadership, I hope we will finally begin to see a level of attention [that matches] the magnitude of the problem.” Newsletter of the Depression and Bipolar Support Alliance MISSION "The best way [for consumers] to assist the Campaign in achieving these important reforms in America's mental health system is by staying in close touch with the organizations [like DBSA] that came together to establish the Campaign . This collective action will get results." Campaign for Mental Health Reform Director Charles S. Konigsberg How will the new Medicare changes affect you? Find out online! www. DBSAlliance.org Recovery is about individuals taking control of their own lives and not having others determine their care or treatment. The concept has evolved to mean the process by which an individual comes to terms with [an] illness and learns to cope. Recovery does not imply a cure but a life long journey and process. A. Kathryn Power, M.Ed., Director, Center for Mental Health Services continued on page 4 continued on page 4 www.mentalhealthcommission.gov Be an Advocate! Stay in touch with your members of Congress using DBSA’s Advocacy Center at DBSAlliance.org/Advocacy/Capwiz.html.

Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

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Page 1: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

I N S I D E

The mission of the

Depression and Bipolar

Support Alliance (DBSA)

is to improve the

lives of people living with

mood disorders.

Mental Health Reform: The Patient Voice is Heard4

Five Key Conceptsfor Family and

Friends

Mental HealthReform in Recent

Years

52004

Year in Review

4

11Chapter Leadership

Awards

F a l l 2 0 0 5

I N S I D E

The President's New Freedom Commission hasbrought about a shift in the mental health care

model. Becauseof this report,lawmakers,policy makersand health careproviders mustplace patients inthe center ofcare. Mentalhealth treatmentis to be directedtoward meetingthe expressedneeds anddesires ofpatients.

At long last, whatwe have beenpracticing andadvocating isbecoming widelyaccepted. Thetide is starting toturn – people who

can make changes are listening. Although we havemuch more to accom plish as consumer and familyadvocates, we now have something to celebrate.

At DBSA, we have always known that the only waypeople with depression or bipolar disorder canbecome truly well is to be active partners with theirhealth care providers in treatment. Today, produc -tive communication and wellness alliances have

gained recognition. Patient- and family-centeredcommuni cation are on their way to becoming thenorm, not the exception.

We might not see the results of mental health reformat our next doctor visits. Lasting change will nothappen overnight, but it is happening. Nationalinsur ance parity laws (equal coverage for mental

and otherphysicalillnesses) havenot been passed,but state wideparity has beenpassed ormandated inmany states.Mental healthadvocates areworking withU.S. policy -makers toanalyze, reviewand recommendways to changeour current sys -tem. They arealso working toimprove accessto care for peo -ple who receiveMedi care orMedi caid. Our

cause has the attention of more govern ment andleg islative officials than ever before. As long as westay informed and keep working for change, we canlook forward to seeing real results in the future.

“It is time to put some action into the ‘ActionAgenda,’” said Congressman Patrick Kennedy (D-RI). “With the Administration’s release of itsAction Agenda and the Campaign for Mental HealthReform’s leadership, I hope we will finally begin tosee a level of attention [that matches] the magnitudeof the problem.”

Newsletter of the

Depression and Bipolar Support Alliance

M I S S I O N

"The best way [for

consumers] to assist the

Campaign in achieving

these important reforms

in America's mental

health system is by

staying in close touch

with the organizations

[like DBSA] that came

together to establish

the Campaign . This

collective action will

get results."

Campaign for MentalHealth Reform DirectorCharles S. Konigsberg

How will the newMedicare changes

affect you?

Find out online!www.

DBSAlliance.org

Recovery is about

individuals taking control

of their own lives and

not having others

determine their care or

treatment. The concept

has evolved to mean the

process by which an

individual comes to

terms with [an] illness

and learns to cope.

Recovery does not imply

a cure but a life long

journey and process.

A. Kathryn Power, M.Ed., Director, Center for

Mental Health Services

continued on page 4continued on page 4www.mentalhealthcommission.gov

Be an Advocate!Stay in touch with your members of Congress

using DBSA’s Advocacy Center atDBSAlliance.org/Advocacy/Capwiz.html.

Page 2: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

2

President’s Outlook

D B S A N e w s

Recovery from depression and bipolardisorder is an ongoing process. Recov-ery is not just freedom from symptoms, but the ability to live a full life and beactive in our communities. Relief fromsymptoms is important, but we need to create goals that go far beyond this relief to full recovery and return to the liveswe were meant to live.

When DBSA was founded 20 years ago, treatment of mooddisorders focused primarily on education and getting rid ofsymptoms. Things have come a long way since 1985. Theidea of full recovery is new, but DBSA is here to guide youthrough it. We are here to provide knowledge, empowerment,and hope.

Your road to recovery must begin with knowledge. Have youfound out everything you can about your illness? Do youknow how to get a correct diagnosis and choose a treatmentoption with your health care provider? Is your health careprovider aware of your needs? Do your family and friendsknow the best ways to help you? Do you have a plan of actionto use when you feel your symptoms becoming worse?

DBSA can help by providing you with facts that are easilyunderstood and tools that empower you in your treatment.The more you know about your illness, the better equippedyou are to cope with the symptoms. Never forget that you areliving your own unique life and you play the Number One roleto ensure you live the best life possible.

DBSA also knows that peer support is essential to mentalhealth. Putting together an effective peer support networkmight not always be easy, but I urge everyone to keepworking at it. Peer support has a positive effect that cannotcome from any chemical, therapy, magazine, or textbook. It’sthat unique feeling that comes over you when you realize -someone understands! Someone knows what it’s like to havean illness that often puts your moods out of your control ordrives you toward self-destructive behavior.

DBSA exists to help you in any way we can to live a full andfulfilling life. No matter how hopeless your illness may makeyou feel, never forget that you are not alone. By being a partof DBSA you are a part of something important. Those whohave been there can help you get through your mostchallenging times, and when you share your experienceswith others, you can help them, too. None of us needs to be alone. And who knows more about living with depressionand bipolar disorder than others who have been there? We are an alliance for hope, help, and support.

2 Fall 2005DBSA Outreach

I remember my first visit to my local DBSA chapter inPortland, Maine. I was quite intrigued by the conceptof peer support. I asked myself, “What do they dohere? Do they really help? Who goes to thesemeetings anyway? What if I’m one of those people?”

As I entered the room, I pondered for a moment,“One of what people?” Maybe these people had had problems with treatment similar to mine, and just needed to find a place where they felt at home and were treated with respect. Then I wondered, howcould there be this many people who had issues with treatment?Wasn’t it just me who questioned the types of treatment available, whoques tioned every move my doctors made and asked them to explaintheir thoughts in detail so I could understand and believe them?

I put on a name tag and sat down. I didn’t see anyone I knew, or that I remembered ever meeting. My thoughts were racing so fast I had to remind myself to slow down, get a hold of myself. “Just try to fit inand don’t make any waves like you usually do,” I told myself.

An elderly man up front introduced himself as John, and continued tospeak about our topic for the evening, cognitive behavioral therapy(CBT). I was glad I knew something about that topic. But should Iopen my mouth and risk looking like an idiot or sit quietly and listen?The majority of the time, I have a hard time sitting and listeningwithout giving my opinions or ideas.

John continued describing CBT and how it could help people changepoor automatic thoughts. I could feel that this man really wasconcerned about everyone’s problems and how they were feeling. I hadn’t seen anyone who expressed this level of awareness with theconsumer. He seemed to know how the people in the room felt, and conveyed this by the way he talked and listened.

The meeting split into groups and I watched as John listened to eachperson who spoke with complete attention, then responded with amouthful of ideas that made me think, “Wow, this guy is bursting withwisdom!” At one point he mentioned he had been living with bipolardisorder for 30 years, and knew what living with this disorder was like.This floored me – I had never seen anyone providing help who hadthe same issues as the people they were helping.

“What a concept!” I thought. The method of healing offered by DBSAwas unique and exciting to me. I felt right at home in the meeting fromday one, and I couldn’t wait to get home and tell my wife all about my experience. I suspect the medical model of recovery from bipolardisorder could be very much improved by listening, hearing, under -standing, and most of all, relating to one another’s problems so wedon’t feel all alone in the treatment process. From my first day atDBSA Portland, I knew without a doubt that I’d be back.

Jeffrey Irving,Portland,Maine

Lydia Lewis

www.peersupport.org www.DBSAlliance.org/info/findsupport.html

Page 3: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

Fall 2005DBSA Outreach 3

DBSA2 0 0 5 Board of Directors

EXECUTIVE COMMITTEE

ChairMiriam Johnson-Hoyte, J.D.Oak Park, IL

Vice ChairStephen Propst, M.B.A.Atlanta, GA

SecretaryLarry FricksAtlanta, GA

TreasurerAlan ZaisRockford, IL

Chair, Scientific Advisory BoardEllen Frank, Ph.D.Pittsburgh, PA

MEMBERS AT LARGE

Cynthia FordToledo, OH

Randy Revelle, J.D.Seattle, WA

DIRECTORS

Peter C. AshendenAlbany, NY

Judith A. Cook, Ph.D.Chicago, IL

Cheryl Gidley, M.B.A.Tower Lakes, IL

J. Maurits Hudig, LL.M., M.B.A.Montclair, NJ

Polly D. SherardBethesda, MD

James C. SwinneyGrapevine, TX

PRESIDENT

Lydia LewisChicago, Illinois

All of us at DBSA are so heartenedto see the reforms described inthis issue’s cover article. At last,the voice of the patient is not onlybeing heard, but being activelysought out by professionals andpolicy makers! This is a new erafor mental health care.

Illnesses of the brain affect ill -nesses of the body, and vice

versa. Because the brain and its functions are so integral to our overall health, all health careproviders, not just mental health care providers,need to understand the complex interactionbetween physical and mental illnesses. Depressionand bipolar disorder are the most prevalentillnesses co-occurring with physical disorders.

Even with more informed professionals, what canwe do to make our own care the best it can be? We can ask that we have input into our own treat -ment. We can encourage loved ones to take anactive role in treatment. We can get familiar with thesymptoms of depression and bipolar disorder, andlet others know that these are real illnesses, notcharacter weaknesses.

We also need each other, which is why our AnnualConfer ences have been such exciting andimportant events. This year each Conferenceincluded a Ceremony of Hope, an inspiring andmoving presentation that celebrated our hope for abrighter tomorrow and let us reflect on those wehave lost and the goals we still need to achieve.

Our Conferences this year brought so much hope,knowl edge and inspiration to so many. People saidthat the feeling of being in a room with hundreds of

Le

tte

rfro

m th

e Chair

MiriamJohnson-Hoyte, Esq.

people who understood their experience waspower ful and life-changing. Conferences have ledto formation of numerous DBSA chapters andcountless friendships.

If you weren’t able to attend our Conferences thisyear, DBSA offers many additional opportunities forfellowship. Visit our Online Chat Room or MessageBoards on DBSAlliance.org at any time and you arelikely to find something you need. Attend a supportgroup and you might be surprised how much reliefand comfort you get from talking to others whounderstand.

DBSA is special for many reasons. One reason is that we are patient-run and patient-directed. Our chapters are led by people with experience –not necessarily in science – but in living withdepression or bipolar disorder. Many of our supportgroup leaders have lived with their illness fordecades, and remember a time when treatmentchoices were limited and stigma about mooddisorders seemed insurmountable. Things are notperfect today, but the work of DBSA and ourchapters has helped reduce stigma and increasetreatment options. Many of us endured setbacksand challenges on the way to stability, and many ofus still do. But we persevered, reached out toothers and worked for change.

My sincere congratulations to our Chapter ServiceAwardees, and my deepest thanks to our ChapterProfessional Advisor Awardees, along with all of ourhard-working Chapters and Chapter ProfessionalAdvisors. Each of you has helped this organizationtouch more lives than we will ever be able to count,and save more lives than we will ever know.

We’ve been there, we understand and we can help.

Miriam Johnson-Hoyte, Esq., Chair of the DBSANominating Committee, requests candidates forthe 2006 DBSA Board of Directors. Nominationswill be considered for Board positions thatbecome vacant after Dec 31, 2005. In addition,nominations are sought for the offices of Presi -dent, Vice President, Secretary and Treasurer.Candidates for these executive positions must becurrently serving on the Board of Directors.

The Committee is seeking candidates fromdiverse backgrounds for five Director positions.

Each candidate must agree to serve a three-yearterm and be willing to fulfill the responsibilities ofBoard service.

Any DBSA supporter can nominate a candidate orhimself/herself by submitting a nomination form.To receive a form and description of Board/Officerduties and responsibilities, contact Ariel Brennerat (312) 988-1173 or (800) 826-3632, or downloada form at www.DBSAlliance.org. Forms must bepostmarked by November 30, 2005.

Call for Nominations

Page 4: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

4 Fall 2005DBSA Outreach

Educating yourself is extremely important when someone you careabout is diagnosed with a mood disorder. Family members andfriends should know the symptoms of mania and depression, andwhich symptoms their loved one finds most troublesome. There arealso five key concepts that can help family members understandtheir loved ones.

1. No one ever chooses to have symptoms ofdepression. Depressive symptoms are part of a medicalillness. They are not an attempt to manipulate others or escaperesponsibility. Treat your family member with depressivesymptoms the same way you would treat one with a physicalinjury – help when you are needed. Know that your loved one’ssymptoms may prevent him or her from showing appreciationfor your help.

1b. …but some individuals with bipolar disordersometimes do choose to have hypomania. Hypomania can be a pleasurable state for many people,especially compared to depression, and it is tempting for manypeople to allow their hypomanic symptoms to escalate. Be aware that impaired judgment is a feature of mania, andyour loved one may not have insight into what is happening.Know that communication will be more difficult and it is helpfulfor you to stay as calm as possible.

Scientific Advisory Board UpdateFive Key Concepts for Families and Friends

Ellen Frank, Ph.D.SAB Chair

2. Communicating your concerns and desires through“I messages” is more likely to be effective thanusing blaming “you messages.” Speaking about thethings you need or want is more likely to get results than tellingyour loved one what he or she is doing wrong. For example, “Ineed to have some quiet time,” rather than “You’re talking toomuch,” or “I’m concerned about you,” instead of “You’re actingcrazy.”

3. Most individuals with mood disorders benefit fromregular routines that lead to adequate (but not toomuch) sleep. Regularizing your loved one’s (and possibly the entire family’s) daily rhythms and routines may be difficult at first, but the long-term rewards are worth it.

4. Being an effective support to someone with a mooddisorder is very challenging. You may feel helpless,overwhelmed, confused, hurt, angry, frustrated, guilty, ashamedor resentful. All of these feelings are normal.

5. Because it can be so challenging, you, too, needsupport. DBSA support groups can provide this support.Many chapters offer family and friends’ groups, and many lovedones have taken leadership roles in these groups. Being withother family members who have been there not only providesperspective and relief, but it can be an excellent source ofadvice for keeping a family healthy.

Mental Health Reformcontinued from page 1

200020012002

1999Mental Health Reform Efforts A Brief Synopsis of Recent Years

� U.S. Surgeon General David Satcher, M.D., Ph.D., issues a Call to Action on SuicidePrevention

� First White House Conference on Mental Health

� Dr. Satcher releases Mental Health: A Report of the Surgeon General, informing us that,“future care systems and quality tools will need to reflect person-centered values.”

� Annapolis Coalition on Behavioral Workforce Education holds first meeting to define goalsfor a new patient-focused generation of mental health professionals.

� New Freedom Initiative is launched by President Bush and New Freedom Commission isformed. In its Interim Report, the Commission affirmed that “Americans deserve a healthcare system that treats their mental illnesses with the same urgency as it treatstheir medical illnesses. In an ideal system, all individuals would receive prompt,high quality, effective care with the same priority, regardless of diagnosis.”

For more information, visit: www.mhreform.orgwww.annapoliscoalition.orgwww.mentalhealthcommission.govwww.DBSAlliance.org

We may not realize it, but everyone’sparticipation in DBSA activities makes adifference. As we all keep working togethertoward common goals of individual andsystem-wide wellness and stability, we willbe part of the solution.

Campaign for Mental Health Reform DirectorCharles Konigsberg recommends, “Thebest way [for consumers] to assist theCampaign in achieving these importantreforms in America’s mental health systemis by staying in close touch with the organ -izations [like DBSA] that came together toestablish the Campaign … This collectiveaction will get results.”

chart continues on page 9

Page 5: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

D e p r e s s i o n a n d B i p o l a r S u p p o r t A l l i a n c e2004 Annual Report

DBSA’s mission

To improve the lives of people living with mood disorders.

How we met our mission in 2004

Helping peoplesuccessfully managetheir disease

At DBSA, we know that where disease manage ment is concerned,knowledge is power and an essential part of recovery is sharingexperience and hope with peers who have been there.

� DBSA’s Mind, Body, Spirit Conference in Pittsburgh broughttogether hundreds of individuals for fellowship and learning.

� With the help of the Center for Mental Health Services, SubstanceAbuse and Mental Health Services Administration, DBSA imple -mented our Peer-to-Peer Center. We conducted several trainingses sions for Certified Peer Specialists across the country, toassist people with self-determination, self-management andsupport system develop ment.

� Our Just Diagnosed... What Now? brochure, a shortened versionof 2002’s successful kits, was reprinted and distributed tothousands of professionals and patients.

Improving recognition, early detectionand diagnosis of mood disorders astreatable medical illnesses.

DBSA’s message of hope was heard or seen over 700 million timesthrough print and broadcast media. DBSA also reached out to com -munities across the country with a variety of programs and events.

� Sleepless in America focused on a common mood disordersymptom: insomnia. Thousands of Sleep Kits, including sleep tipsand mood disorder information, were requested each month andhelped many people learn about mood disorders for the first time.

� Men and Depression targeted colleges and universities withpublic service announcements and brochures to help youngmen identify symptoms of depression and let them know the realsign of strength is seeking help.

� DBSA took two educational programs on the road, Ask theDoctors and Detour to Wellness. Ask the Doctors featured a panelof expert clinicians addressing common consumer questions,while Detour featured informative and inspirational speakersincluding author Lizzie Simon.

� Are You Sure it’s Depression?, educated professionals aboutbipolar II disorder and offered new hope to people facingtreatment challenges.

1

We’ve been there. We can help.

UnderstandingHospitalization forMental Health

Are You Sure it’s Depression?A Guide for Physicians

We’ve been there. We can help.

continued on page 6

Page 6: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

Advancing research toimprove mood disordertreatment options

DBSA has worked to ensure that the patient is atthe center of national research agendas.

� Our organization served on numerous researchadvisory boards, conducted national consumerand family surveys, and provided essentialpatient perspectives through publication inscientific journals and speeches to researchers,clinicians and policy makers.

� DBSA presented the annual Klerman Awards torecognize outstanding researchers in the field ofmood disorders and encourage future research.

� DBSA submitted written testimony to the FDAstating the need for more research on the issue ofprescribing SSRIs to children and adolescents.

� DBSA President Lydia Lewis joined the AcademicConsortium of National Mental Health Organi-zations and met with Congress to encourageincreased funding for mental health research atthe National Institutes of Health.

Increasing acceptance andunderstanding of mooddisorders so that the rights of people with mood disordersare protected

DBSAlliance.org kept readers current on eventsand active in legislation. Endorsed bills included

� The Positive Aging Act

� Medicare Mental Health Copayment Equity Act

� Medicare Mental Health Modernization Act

� Youth Suicide Early Intervention and PreventionExpansion Act of 2004

� Keeping Families Together

� The Senator Paul Wellstone Mental HealthEquitable Treatment Act

In the fall of 2004, we applauded when The Men -tally Ill Offender Treatment and Crime ReductionAct, with the goal of reducing the number ofindividuals with mental disorders in prisons, andthe Garrett Lee Smith Memorial Act, which supportsearly intervention and suicide prevention, weresigned into law.

All of us at DBSA express our sincere gratitude toeach of our chapters and supporters. With your help,we can continue to provide help, hope and supportto the millions of patients, families and professionalsliving and coping with depression and bipolardisorder.

2004 Board of Directors

Executive Committee

William AshdownDBSA ChairMood Disorders Society of

Canada, SecretaryManitoba, Canada

James C. SwinneyDBSA Vice ChairSwinney Consultants, PresidentGrapevine, TX

Polly D. SherardDBSA SecretaryWJLA-TV WashingtonMarketing Executive Washington, DC

Susan Silverman, M.B.A.DBSA TreasurerHighland Park, IL

Ellen Frank, Ph.D.DBSA SAB ChairProfessor of Psychiatry and

PsychologyUniversity of Pittsburgh Medical

CenterWestern Psychiatric Institute and

Clinic

Larry FricksMember-at-LargeDirector, State Office of Consumer

RelationsAtlanta, GA

Cheryl Gidley, M.B.A.Member-at-LargeKatten Muchin Zavis RosenmanChief Marketing OfficerTower Lakes, IL

Lydia LewisDBSA PresidentChicago, IL

DirectorsDaniel J. Conti, Ph.D.Bank OneSenior VP, Employee Assistance

ProviderChicago, IL

Cynthia FordFirst Lady of Toledo, OH

J. Maurits Hudig, LL.M., M.B.A.Montclair, NJ

Miriam Johnson-Hoyte, J.D.Oak Park, IL

Stephen Propst, M.B.A.Atlanta, GA

Randy Revelle, J.D.Washington State Hospital

AssociationVice PresidentSeattle, WA

Dorene Sherman, M.A.DBSA Ohio Toledo. OH

� DBSA’s specialized online training for chaptershelped chapter leaders offer the best possiblehelp to their communities.

� DBSAlliance.org continued to grow, offeringonline chats with Scientific Advisory Boardmembers, weekly online support groups and adatabase of frequently asked questions aboutmood disorders.

Working with people withmood disorders, families andhealth care professionals toimprove care

� DBSA began a Hospitalization Education andOutreach program, to help chapters reach out to their local inpatient facilities and the families of people receiving inpatient treatment.DBSAlliance.org also added a section to educatepeople about voluntary and involuntary hospitali-zation, advance direc tives and patient rights.

� DBSA helped raise awareness about veterans’struggles with mental health by participating inthe Veterans’ Administration Committee onVeterans with Serious Mental Illness.

� DBSA kept constituents informed throughout thecontroversy surrounding Selective SerotoninReuptake Inhibitor (SSRI) antidepressantsprescribed to those under 18. DBSA alsotestified on Capitol Hill regarding the importanceof informed families and supervised treatment.

� DBSA began working on the steering committeeof the Annapolis Coalition, helping to reframemedical education and increase patient focusand empathy among health care professionals.

Expanding the ability ofpeople to receive treatment

� DBSA’s 800 number helped hundreds ofthousands of people find the resources theyneeded.

� DBSAlliance.org helped people learn aboutfinding a mental health professional with patient-to-patient recommendations, referral servicelistings and ideas on reducing treatment costs.

� DBSA educated patients and families on formingcollaborative partnerships with health careproviders to receive the best treatment possible.

� DBSAlliance.org provided a Legislative ActionCenter with step-by-step instructions on advocat -ing with policymakers for laws that make bettermental health care accessible to more people.

6 Fall 2005DBSA Outreach

D B S A 2 0 0 4 Y e a r i n R e v i e wWilliamAshdown

Lydia Lewis

continued from page 5

Page 7: Mental Health Reform: The Patient Voice is Heard L... · Montclair, NJ Polly D. Sherard Bethesda, MD James C. Swinney Grapevine, TX PRESIDENT Lydia Lewis Chicago, Illinois All of

Fall 2005DBSA Outreach 7

DBSA ended the fiscal year of 2004 with asurplus. It was a great accomplishment tokeep expenses as conservative as possiblewithout affecting the high quality of servicethat DBSA provides to over four millionindividuals and families living withdepression or bipolar disorder.

The auditor’s report stated that DBSAcontinues to be in compliance with GAAPand Sarbanes Oxley Act. We are proud toreport that 85 cents of every dollar is spenton programs and services and only 15cents of every dollar is spent on fundraisingand administration.

DBSA continues to use donations wiselyand prudently while offering the majority ofour programs, products and services at nocharge to all who ask for help.

2004 Audited Financial StatementsBalance Sheet

Assets 2004 2003Cash and cash equivalents 576,144 104,859Investments 446,657 418,099Accounts receivable 8,573 36,435Contributions receivable 100,000 462,768Other 22,329 50,858Property and equipment 38,825 62,372

Total Assets 1,192,528 1,135,391

Liabilities and Net AssetsCapital lease obligations 10,258 14,276Accounts payable and accrued expenses 46,560 138,946Accrued liabilitites-payroll, rent 64,853 44,079

Total Liabilities 121,671 197,301Net AssetsUnrestricted 856,933 816,070Temporarily restricted 213,924 122,020

Total Net Assets 1,070,857 938,090Total Liabilities and Net Assets 1,192,528 1,135,391

Statement of ActivitiesRevenues, Gains and Other SupportContributions 2,852,868 2,732,378Other 160,192 229,250

Total Income 3,013,060 2,961,628ExpensesProgram services 2,430,875 2,889,690Supporting services

Management and general 258,786 184,837Fundraising 190,632 196,509

Total Expenses 2,880,293 3,271,036

Change in net assets 132,767 -309,408Net Assets

Beginning of the year 938,090 1,247,498End of year 1,070,857 938,090

2004 Functional ExpensesHow each dollar was spent

Fundraising 6%Administration 9%

Chapters 11%

Education and

Services 74%

More than 20 years ago, Jan Fawcett, MD,assisted a group of people with mooddisorders who were helping each other toimprove their lives. In 1985, this groupincorporated as the National Depressiveand Manic-Depressive Association, now theDepression and Bipolar Support Alliance. Inthe beginning, the future of the organizationwas unknown. It was peers helping peers,hopeful that they could make a difference.

A lot has changed in those 20 years! DBSAis now the nation’s leading patient-directedorganization focused on mood disorders.We have more than 400 chapters and morethan 1,000 support groups across thecountry. More than four million peoplecontact us each year looking for supportand information on depression and bipolar

disorder. And, our goals for the future areclear – improving recognition, early detec -tion and diagnosis of mood disorders,helping people successfully manage theirdisease, expanding the ability of people toreceive treatment and advancing researchto improve mood disorder treatment options.

While we cannot reach all of these goalstomorrow, this month or even this year, withyour help they can be reached. Pleaseconsider joining a key group of supportersworking to ensure that our goals become ourrealities by including DBSA in your plans forthe future. The Dr. Jan Fawcett HeritageSociety was established to recognize andhonor those generous donors who haveincluded DBSA in their estate plans.

The most common way of including DBSAin your estate plans is to designate us as arecipient in your will. A will should be donein consultation with an attorney and a taxadvisor who can help you prepare adocument that is legally sound andprovides the maximum tax benefits.

Other planned gifts include donations ofstock, life income gifts and gifts of retirementplans. If you would like to learn more aboutthese or other types of planned gifts, pleaseconsult with your attorney and tax advisor.

If you have already planned a gift to DBSAor would like to include DBSA in your estateplans, please contact us at (800) 826-3632to find out how you can become a memberof the Dr. Jan Fawcett Heritage Society.

P l a n n i n g f o r t h e f u t u r e – T h e D r . J a n F a w c e t t H e r i t a g e S o c i e t yHelp us reach our long-term goals by planning for DBSA’s future today

D B S A 2 0 0 4 Y e a r i n R e v i e w

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8 Fall 2005DBSA Outreach

LEADERSHIP CIRCLE ($150,000 AND ABOVE)Abbott LaboratoriesAstraZenecaPharmaceuticals

Bristol-Myers SquibbCompany

U.S. Dept. of Health &Human Services,Substance Abuse &Mental Health ServicesAdministration (SAMHSA),Center for Mental HealthServices (CMHS)

Eli Lilly and CompanyGlaxoSmithKlineJanssen PharmaceuticaProducts

Pfizer IncWyeth Pharmaceuticals

FOUNDERS CLUB ($10,000–149,999)Carole B. & Kenneth J.Boudreaux Foundation

MedEd Resource GroupMerck & Co., Inc.Edward M. Scolnick, M.D.

ADVOCATE COUNCIL ($5,000–9,999)Anonymous (1)Cyberonics, Inc.Forest LaboratoriesMilliken FoundationNeuronetics, Inc.The Henry FoundationUniversity of PittsburghMedical Center

Mr. & Mrs. Jerry Wagner

PLATINUM ($1,000–4,999)Anonymous (2)Mr. Orrin AddisThe American Gift FundMichael & Angela BermanPhilanthropic Fund

Bloomingdale'sMrs. Alisa BoonsoponThe Earl & MargeryChapman Foundation

Mr. & Mrs. Norman CutlerEllen Frank, Ph.D.Mr. Larry FricksMs. Cheryl GidleyMr. David GraberRobert M. Hirschfeld, M.D.Mr. Robert H. HowlandJ. Walter Thompson

Kay Redfield Jamison, Ph.D.Jewish HealthcareFoundation of Pittsburgh

Wayne Katon, M.D.Landmann Family Fund,Upper Valley CommunityFoundation

Livingston CollegeGoverning Association

J. J. Mann, M.D.MicrosoftMr. & Mrs. James MooreThe Brian D. NelsonMemorial CharitableFoundation

Charles B. Nemeroff, M.D.,Ph.D

Edward Nunes, M.D.Nutrition 21Ms. Marilyn PearsonMs. Susan Penry-WilliamPfizer FoundationPsychiatric AnnalsMr. & Mrs. Mark RothA. John Rush, M.D.Gary Sachs, M.D.Mr. Robert C. SchwartzMs. Marylou SeloStaunton Farm FoundationJohn S. Tamerin, M.D.Mr. Brad ThompsonUniversity of the Sciences inPhiladelphia

Ms. Caroline P. Young

GOLD ($500–999)Anonymous (1)Mr. & Mrs. John C.Anderson

Mrs. Ruth BermantMr. & Mrs. Joel BernsteinMr. Plus BishopMs. Marcia BoehmMr. Stephen BrannanMr. & Mrs. Geoffrey BrooksDavid L. Dunner, M.D.EnvirolracMr. Thomas FarrellGuerrera Family FoundationMr. Emerson R. HallHewitt Associates, LLCMr. Don HoffmeyerDr. Annette HollanderMr. Kevin HopperHorizon Steel CompanyMr. Craig Houghton & Ms.Karen Kister

Ms. Nancy Kitchell

Mr. Dan MunsterMr. & Mrs. Oliver NeuseCharles O'Brien, M.D.Mr. Donald PrichardChelsey Rasmussen, M.D.Mr. Randy RevelleMs. Susan SilvermanGregory Simon, M.D.Ms. Karleen TalbottMs. Kimberly TaylorMs. Patricia ThomassonMs. Courtenay R. Wood

SILVER ($150–499)Anonymous (6)Mr. Gerald AbelowMr. John AcuffMr. & Mrs. John AdamiakMr. Elijah AlperMr. Arthur O. AnselmoMr. Mayer ArnowitzMrs. Marcia L. BaileyMr. & Mrs. John BairdMr. Richard BarbarinoMs. Susan BardinMr. Clay BartholowMs. Susan BergerMr. Dave BergesonBP MagazineMs. Karen T. BrandvoldGabrielle A. Carlson, M.D.Linda L. Carpenter, M.D.Mr. Jason CiagloMs. Kelley ClinkMs. Patricia CollinsMrs. Yolanda CortezMr. Tim CosletMr. Raymond CracchioloMs. Rita M. CroniseMrs. Rhonda CrowCurrent PsychiatryAnthony M. D'Agostino, M.D.Mr. & Mrs. EdwardDavidson

Ms. Catherine DeleskyMr. Charles DonovanMs. Madeline ElmerMs. Yvonne EmusMs. Kristina Erhart-UrselMr. James EversoleMs. Karen FallahiMr. David FamigliettiMs. Victoria FarrarMs. Teresa Fe' DurantMs. Paula Fenster MarkowitzMr. Antonio FerreDr. Thomas FitzgeraldMs. Mary FogleDr. & Mrs. David S. FoxMs. Judith FoyerMr. & Mrs. Hubert FrankFriends & Family of BillMcVittie

Mr. & Mrs. Jerry FulenwiderAlan J. Gelenberg, M.D.Mrs. Janelle GentryMrs. Marsha GiffordMr. Earnie GilesWilliam Gilmer, M.D.

Jack M. Gorman, M.D.Mr. Richard GranJohn F. Greden, M.D.Mrs. Cherry GreenJamie Grossman SilverMr. Robert HarrisMs. Lonnie HazlittMr. David HeardMs. Betty HeberlingMr. Roger HelfrichMr. Herbert HickmanMs. Jo HillMr. Mark HinschHonda of AmericaInnovative MedicalEducation

Insect Sufers-Past & PresentDr. Marieta JamsekMr. Gary W. JenningsIrving S. Johnson, Ph.D.Ms. Michelle KatzMr. Jack KnoxMr. Steven KnutsonMrs. Debra LameeMs. Paulette LaneMr. Gary LeboMr. Stanley LermanMs. Lydia LewisMr. & Mrs. Benson LittmanMs. Elaine LongerMr. & Mrs. John LoweMs. Martha W. LowranceMaimonides Medical CenterMrs. Amy MacraeMr. & Mrs. Tom MannMr. & Mrs. D. E. MastersonMr. & Mrs. Matthew MattsonMs. Susan McKaganMs. Kathy McMahonMr. John McNamaraDr. & Mrs. Jack McWattersGwendolyn Mercer, M.D.Dr. & Mrs. Roger E. MeyerMrs. Rill MitchellMr. Joe MooreMs. Pamela MooreMr. & Mrs. John MoranMr. Michael MrazekMr. Scott MurrayMrs. Susan MurrayJoyce Myers, M.D.Mr. David NathanMs. Joanne E. NaugleNorthrop Grumman AGS & BMS

Ms. Victoria NoseckMr. Arnold C. NovakMs. Marcia OberMs. Janet OlsenMr. John PattonMs. Renee PauleyPavemover GroupPhi Mu Class of 1964Mrs. Anna C. PorterProfessional Books, Inc.Mr. David RadcliffeMr. Gary RadoMrs. Betty V. RauheMs. Constance Rebar

Ms. Diana RichMrs. Meghan RiordanMs. Deborah RothmanMs. Margaret RoweLouis Rozek FamilyHarvey L. Ruben, M.D.Mr. Rudy M. RugglesMrs. Clairepatrese SamsMilligan

Mr. Michael SchiffMr. Mark SchulteMr. Peter SchwartzMs. Polly D. SherardMs. April H. SmithMr. & Mrs. Ron SmithMrs. Barbara SnyderMr. Richard SoardMs. Ann E. Spehar & Mr. Rick D. Gillespie

Ms. Deborah StallardMs. Twyla SteinbergerMr. & Mrs. Howie SteinholtzCol. & Mrs. Ron StephenMs. Laura Stoughton, M.A.Mr. Richard J. StuderMr. Gary SwirczynskiMrs. Margaret C. TaylorMr. & Mrs. James ThierThompson & KnightFoundation

Cora Tompkins, M.D.Mr. Peter TsacoyeanesMs. Helen TufaroScott R. Turkin, M.D.University InvestorsMr. Robert J. Van ZileMr. Reed VanceMrs. Joan VanderslootVerizon FoundationMs. Danielle VojeMr. John E. Wade, IIMrs. Patricia WestfieldMrs. Beverly WhiteMs. Rose WinegardnerMr. & Mrs. Tim WinterMrs. Connie Yanicka

DONATED SERVICESEdward Nunes, M.D.Mr. Stephen Propst, M.B.A.

MATCHING GIFTCOMPANIESAbbott LaboratoriesAON FoundationChevronTexacoEli Lilly and CompanyFoundation

Fannie Mae FoundationGlaxoSmithKlineJP Morgan Charitable TrustMerck & Co. Inc.MicrosoftPepsiCo FoundationPfizer FoundationThe Duke EnergyFoundation

TransWestern PublishingVerizon Foundation

S p e c i a l T h a n k s t o o u r D o n o r s

In DBSA's Annual Report, we celebrate thoseindividuals, organizations, founda tions, andcorporations that demonstrated their commitment"to improve the lives of people living with mooddisorders" by gener ously supporting our 2004programs. These inspirational gifts were crucial to providing life-saving services to more than fourmillion people. Thank you!

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Fall 2005DBSA Outreach 9

people who have completed the seminars have gone on to becomeleaders in our chapter.

Today New Directions Delaware holds two support groups (about 30participants) and one educational speaker group (about 150 partici-pants) each month. We invite outside speakers to educate us abouta variety of topics from suicide prevention to vocational rehabilitation.We have a mailing list of more than 2,600 people and organizations.

Our Road to Recovery includes Nine Steps.1. Take control of your life.2. Find a good psychiatrist.3. Take the right medication.4. Utilize all workable therapies.5. Educate yourself about your illness and your medication.6. Learn to prevent full-blown episodes of depression and mania.7. Join a support group.8. Stay active and involved at work and other meaningful activities.9. Reach out to help others.

During the fourteen years of New Directions Delaware’s existence,our chapter and I have received awards for outstanding volunteerparticipation including the Go On And Live (GOAL)/Points of LightFoundation award and a citation from the governor of Delaware.

Our support groups teach that, through understanding andmanaging our illness, joining together and learning that we are notalone, we can find New Directions toward health and happiness.

Miles Bart DBSA New Directions Delaware

I grew up in Manhattan and graduated from NYU with anengineering degree. By 1964, I was married with three sons, workingas a project manager, and having severe mood symptoms mydoctor couldn’t explain.

I had months of severe depression followed by months of manichighs, and I couldn’t work during either of them. I was put on amood stabilizer but was unable to achieve stability. My marriageended in 1970. I moved to several different states in search ofemployment.

Throughout the 70s and 80s, I was often suicidally depressed. I washospitalized and had electroconvulsive therapy, but the depressionskept returning. In the winter of 1990, in the midst of another suicidaldepression, I prayed and made a promise to spend the rest of mylife helping people if I could find some relief.

My therapist suggested a support group, so I attended the nearestDBSA group, New Directions in Abington, Pennsylvania. It madesuch a difference that I decided to start a new support group closerto home with two new friends I had made. There were six people atour first meeting, which was held at a local church.

I attended my first Annual Conference of what was then NationalDMDA in 1993, where I met Mary Ellen Copeland, MS, MA, a mentalhealth educator and developer of the Wellness Recovery Action Plan(WRAP). I used what I learned from her books to start a 12-weekseminar to teach consumers and families how to understand andmanage their illness. We hold several seminars each year, and many

2003

2005

Mental Health Reform Efforts A Brief Synopsis of Recent Years continued from page 4

� President’s New Freedom Commission on Mental Health releases Final Report: Achieving the Promise: Transforming Mental Health Care in America,which confirmed that, “Recovery is possible; promoting recovery (not just symptom relief) should be a driving goal of a transformedsystem; and care should be consumer and family driven.”

� Annapolis Coalition on Behavioral Workforce Education releases Best Practices in Behavioral Health Workforce Education and Training, recommendingthat, “consumers and family members should be engaged as teachers of the workforce; consumers and families should be empowered ascaregivers and educators; and care should be safe, person-centered, effective, efficient, equitable and timely.”

� Substance Abuse and Mental Health Services Administration publishes Transforming Mental Health Care in America: The Federal Action Agenda: FirstSteps, recommending that reformers, “focus on the desired outcomes of mental health care, which are to attain each individual’s maximumlevel of employment, self-care, interpersonal relationships and community participation.”

� Campaign for Mental Health Reform (CMHR), a coalition of 16 national mental health advocacy organizations including DBSA, releases EmergencyResponse: A Roadmap for Federal Action on America’s Mental Health Crisis, entreating America’s government to, “prevent the negativeconsequences of mental disorders by getting the right services to the right people at the right time; and promote independence byincreasing employment, eliminating disincentives for economic self-sufficiency and ending homelessness.”

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10 Fall 2005DBSA Outreach

New ChaptersC h a p t e r H i g h l i g h t s

advisor, a cognitive therapist, a nutritionist,a psychiatrist, a kinesiologist (movement/muscle specialist) and an expert on helpingpersons with disabilities find employment.

The Berwyn chapter has increased itsmonthly educational speakers this pastyear and hosted 23 different educationalpresentations, including topics such as:recovery, anger management, conflictmanagement skills, assertiveness, selfinjury, leisure and fitness, and others.

For information: DBSA Finger Lakes,Lola Mitchell, Ed.D., (607) 733-1145,[email protected]; DBSA Berwyn, L.J. McGill Haviland, (708) 795-1387,[email protected]

DBSA Chapters Touched by Hurricanes

Honoring Facilitators, A Chapter’s “Heart and Soul”DBSA Greater Houston (TX) demonstratedthe importance of saying “thank you” recent -ly. Earlier this year the chapter held its firstever “Heart and Soul Luncheon” to honorthe volunteers that facilitate the chapter’ssupport groups. The facilitators were treatedto a lunch out on the town with members ofthe chapter’s Board of Directors, and werepresented a black leather portfolio as a giftrecognizing their hard work. The chapteralso presented four “Big Heart” awards totheir most outstanding facilitators.

For information: DBSA Houston, (713) 812-1235, [email protected].

“Small” Chapters – Big Achievements –Beyond Support GroupsAt the core of DBSA chapters is the sup -port group; over 1,000 peer-led, self-helpsupport groups are hosted by DBSA chap -ters across the United States and abroad.

DBSA is more than just support groupsthough, and many chapters, even “smallchapters” (those with fewer than 50 parti -cipants and with annual budgets smallerthan $500), are providing services beyondpeer support. These are only a few exam -ples of the countless ways DBSA chapterswith limited resources maximize their impact.

DBSA Milwaukee Southside (WI), a chapterformed last year has held leadershiptraining sessions, represented DBSA atmental health resource fairs, and held asuccessful public education session in July

One year ago DBSA chapters in Florida were pooling resources and people-power tosupport the victims of hurricanes that swept through Florida. Now, in the face of the GulfCoast hurricanes, DBSA chapters and participants are again struggling with thedevastation of terrible storms. Six different DBSA chapters are located within 200 miles ofwhere the storms touched land. DBSA’s national office has had countless calls fromconstituents all over the country with warm wishes and questions of concern. As thewater recedes, and the region fights its way back to normalcy, DBSA’s network of caringchapter participants send their warm wishes for comfort and safety to all those directlyand indirectly affected by this disaster. DBSA will be working through local chapters toprovide support, help and hope to people in areas suffering from the aftereffects of thehurricanes. .

Call (800) 826-3632 or visit DBSA’s web site for group contact information.

U.S.� DBSA Fort Smith (AR)

� DBSA Hot Springs (AR)

� DBSA NW Arkansas (AR)

� DBSA Sun Valley Community Church (AZ)

� DBSA Yuma (AZ)

� DBSA Chico (CA)

� DBSA Oroville (CA)

� DBSA Palomar (CA)

� DBSA West Slope (CO)

� DBSA St. Petersburg (FL)

� DBSA Fairfield (IA)

� DBSA Kosciusko County (IN)

� DBSA Southern Indiana (IN)

� DBSA Hastings (MI)

� DBSA Livingston County (MI)

� DBSA Petersburg (MI)

� DBSA Greater Brookside (MO)

� DBSA Flathead Area (MT)

� DBSA Las Cruces (NM)

� DBSA West Chester (PA)

� DBSA Williamsport (PA)

� DBSA San Juan (PR)

� DBSA Jackson (TN)

� DBSA Acton – Granbury (TX)

� DBSA Amistad (TX)

� DBSA Christian Community of SanAntonio (TX)

� DBSA Navarro County (TX)

� DBSA Southeast San Antonio FamilyChristian (TX)

� DBSA Chesterfield (VA)

� DBSA Portsmouth (VA)

� DBSA Walla Walla (WA)

� DBSA Fond du Lac (WI)

titled “Joanne Unveiled: A PsychospiritualJourney to Wellness.”

DBSA Bergen County (NJ) has launched a website, provided 24 scholarships to itsparticipants for the DBSA “Road toRecovery” Conference, started a chapterlibrary, and is planning an art therapy projectall with the help of a local corporate donor.

Even the simplest efforts beyond peersupport groups are worth celebrating.Barbara Danaher of DBSA NorthwestConnecticut provides a welcome gift toevery chapter participant - Barbara makesa colorful needlepoint nametag for everyone of them. “This labor of dedication andlove is very much appreciated by all,” saysDoyle Finan, Co-Chairman of the chapter.

For information: DBSA MilwaukeeSouth side, Roseann Schmidt, (414) 964-2586, [email protected]; DBSABergen County, Cecily Buck, (973) 423-4394, [email protected]; DBSANorthwest Connecticut, Doyle Finan, (860)567-8928; Palmer Marrin, (860) 567-5454.

Many Perspectives on WellnessDBSA Finger Lakes (NY) and DBSA Berwyn(IL) have provided their chapter communi-ties with many diverse expert perspectiveson how best to treat depression and bipolardisorder over the past year. Many DBSAchapters provide educational speakers, butthese two chapters represent the effort bylocal DBSA leaders to give the full pictureof the countless wellness strategies andtreatments for these illnesses.

The Finger Lakes chapter hosted speakersin the past year including their professional

www.DBSAlliance.org/HurricaneRelief.html

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11Fall 2005DBSA Outreach

DBSA’s Chapter ProfessionalAdvisor Service Awards Frederick Jacobsen, M.D., M.P.H.,D.F.A.P.A. DBSA Capital Area, Washington, D.C.

Dr. Jacobsen has been DBSA CapitalArea’s professional advisor since 1987.Early in the group’s existence, he helpedestablish the chapter’s monthly speakerprogram, and more recently he has led theway in securing the meeting space at alocal university which is easily accessibleby both car and public transportation. Herecommends DBSA support groups to hismany patients and fellow professionals

Every year, Dr. Jacobsen gives an updatefor chapter members and the generalpublic about depression and bipolar dis -order research and advances in treatment.These timely, insightful, accessible andhumorous talks are followed by extendedquestion and discussion periods.

Dr. Jacobsen’s medical research studieshave led the way in finding treatmentsolutions for people with difficult-to-treatmood disorders. He is willing to seekunconventional solutions for unusualsymptoms and helps all the people hetreats work toward complete wellness.

Because of Dr. Jacobsen’s efforts, people in the DC area have better access to up-to-date information about depression andbipolar disorder. His exemplary profes sionalassistance to DBSA Capital Area has em -pow ered and improved the lives of count -less people and families affected by mooddisorders.

Mark S. Bauer, M.D.DBSA East Bay – Rhode Island and SouthernMassachusetts

Dr. Bauer has been instrumental in buildingthe new DBSA East Bay chapter by fosteringactive participation and leadership. Thechapter began about one year ago whenDr. Bauer brought a group of people withmood disorders together to collaborate onresearch into peer-led illness self-management.

Throughout his research career, Dr. Bauerhas always sought the patient perspective.He is respectful and mindful of people’sneeds and interested in the experiences ofthe people he treats. As professor ofPsychiatry and Human Behavior at BrownUniversity, he is teaching the next generationof psychiatrists the importance of including

DBSA New Directions DelawareDBSA New Directions Delaware wasfounded over 10 years ago and hasgrown to provide eight monthly supportgroups to hundreds of people, familiesand friends in the four state area includ -ing Delaware, Pennsylvania, Marylandand New Jersey. At each support group,insights, successes, hopes, active listen -ing, confidentiality and the importance ofhelping others are emphasized.

DBSA New Directions exemplifies fellow -ship with a variety of community events.The chapter holds monthly speaker meet -ings and an annual memorial event featu -ring leading mental health profession alssuch as Kay Jamison, Ph.D., and DavidBurns, M.D. A 12-week Depression Semi -nar based on Mary Ellen Copeland’s Well -ness Recovery Action Plan is offeredtwice a year for a nominal fee. The chap -ter also offers Facilitator Training and a sixweek meditation program. An extensivelibrary of written information and videotapes, many from previous Speaker Meet -ings, is maintained by chapter members.

Fundraising is also important to DBSANew Directions. Participants work toobtain in-kind donations from areamerchants, including a billboardadvertising the chapter and directingpeople to the web site, NewDirectionsDelaware.org.

A person attending a New Directionsmeeting for the first time will meet peopleof all ages from all walks of life, mostlikely, several with whom they sharethings in common. Many participants de -velop new self-esteem and confidence,as well as lasting friendships andrenewed hope and optimism.

DBSA Grand Haven Odyssey,Michigan DBSA Grand Haven Odyssey waslaunched in 2002 by a crew of threeprofessional advisors and twoconsumers. The chapter’s theme,“Odyssey,” was chosen to represent thequest for individual and group wellness.Group facilitators and advisors meetregularly and refer to themselves as“tankers,” since they form a think tank forthe chapter’s publicity, presentations andcommunity outreach. The chapter creditsits numerous advisors with being “anunending source of spiritual, emotionaland financial assistance andencouragement.”

The chapter has maintained a vitalspace in its community by listing with astatewide assistance line, “Dial 211”;participating in health fairs; distributingevent press releases to localnewspapers, radio and TV; designingand distributing eye-catching eventflyers; and participating in awarenessevents such as the Mental Health Walk.

In addition to regular support groups,DBSA Grand Haven holds quarterlyspeaker meetings that are open to thepublic. Topics have included SubstanceAbuse and Mental Health; Using ourStrengths to Manage our Moods; andFrom Depression to Empowerment.

DBSA Grand Haven also supports DBSAat the national level, buying DBSAmerchandise, recommending treatmentfacilities on DBSAlliance.org,participating in the DBSA Chapters’National Case Studies competition, andgenerating enthusiastic support for theRoad to Recovery Conferences.

2005 Chapter Leadership Awards

DBSA New Directions Delaware secured anin-kind donation to advertise their chapteron a major highway.

DBSA Grand Haven’s Linda, Joanie andHelen at the Whole Health Fair.

DBSA’s Chapter ProfessionalAdvisor Service Awards Frederick Jacobsen, M.D., M.P.H.,D.F.A.P.A. DBSA Capital Area, Washington, D.C.

Dr. Jacobsen has been DBSA CapitalArea’s professional advisor since 1987.Early in the group’s existence, he helpedestablish the chapter’s monthly speakerprogram, and more recently he has led theway in securing the meeting space at alocal university which is easily accessibleby both car and public transportation. Herecommends DBSA support groups to hismany patients and fellow professionals.

Dr. Jacobsen’s medical research studieshave led the way in finding treatmentsolutions for people with difficult-to-treatmood disorders. He is willing to seekunconventional solutions for unusualsymptoms and helps all the people hetreats work toward complete wellness.

Because of Dr. Jacobsen’s efforts, people in the DC area have better access to up-to-date information about depression andbipolar disorder. His exemplary profes sionalassistance to DBSA Capital Area has em -pow ered and improved the lives of count -less people and families affected by mooddisorders.

Mark S. Bauer, M.D.DBSA East Bay – Rhode Island and SouthernMassachusetts

Dr. Bauer has been instrumental in buildingthe new DBSA East Bay chapter by fosteringactive participation and leadership. Thechapter began about one year ago whenDr. Bauer brought a group of people withmood disorders together to collaborate onresearch into peer-led illness self-management.

Throughout his research career, Dr. Bauerhas always sought the patient perspective.He is respectful and mindful of people’sneeds and interested in the experiences ofthe people he treats. As professor ofPsychiatry and Human Behavior at BrownUniversity, he is teaching the next generationof psychiatrists the importance of includingpatient and family perspectives in treatment.

The belief that patients are their own bestexperts is essential to Dr. Bauer’s research,teaching and practice. Members of hischapter credit him with their thrivingexistence and commend him for committinghimself to grassroots activism.

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Non-Profit Organization

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P A I D

Chicago, IL

Permit No. 8331

DBSA Outreach is a quarterlypublication serving supporters andconstituents of the organization.

DBSA does not endorse or recommendthe use of any specific treatment or

medication. For advice about specifictreatments or medications, patients should

consult their health care providers.

Editor: Laura Hoofnagle

DBSA730 N. Franklin Street, Suite 501Chicago, IL USA 60610-7224 (800) 826-3632Fax (312) 642-7243www.DBSAlliance.org

Support DBSA!Just your gift alone will make adifference. Your gift alone will

change a life. It may even saveone. Contribute to DBSA by using this form, calling us at

(800) 826-3632 or visiting oursecure website at

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any questions, please call (800) 826-3632 or (312) 642-0049.

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©2005 DBSA. All rights reserved.Statements of fact or opinion are the

responsi bility of the authors and do notnecessarily imply an opinion of DBSA

or its officers or supporters.

DBSA acknowledges Its 2005

Leadership Circle; organizations

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Yes, I want to make a difference. Enclosed is my gift of: �� $500 Gold �� $150 Silver �� $50 Bronze �� $20 Member �� Other $ ____________

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Please send this form and payment, using the envelope in the center of Outreach, to: DBSA, 730 N. Franklin St., Suite 501, Chicago, IL 60610-7224 USA.Credit card payments may be faxed to (312) 642-7243.

DBSA is a not-for-profit, 501(c)(3)Illinois corporation. All gifts aredeductible based on federal IRSregulations. Please consult yourtax advisor for details. All infor -mation is held in strict confidenceand will never be shared withother organizations. Please callthe DBSA office with any ques -tions. Thank you for your gift!

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Fall 2005DBSA Outreach13

Overrun from Year in Review