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finolatrust 20
08 THE NEWSLETTER www.finolatrust.co.uk
12/08
The 2008 Christmas Card
FINOLA is commissioned toproduce Christmas Cards
Finola and herfamily wish you a very Happy &Healthy Christmas.May 2009 be kind to us all in thesetimes of greatuncertainty.
This year with the help and kindness of Finola’s art teacher fromBraidburn School, Mrs M Nelson, Finola has shown great talent with her art. At Finola’s Gathering held at Glenbervie House Hotelon 4 April 2008, through auctioning of 5 of her paintingsplus sales of cards she raised in her own right £1200approx for the Finola Trust Education Fund. We still haveA5 cards with envelopes and A6 postcards should anyonewish to reorder!
w w w. f i n o l a t r u s t . co . u k FINOLA’S FUTURE
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FINOLA HAS BEEN COMMISSIONED TOPRODUCE TWO 2008 CHRISTMAS CARDS
FINOLA BECOMES MORE INDEPENDENT &MAKES REALLY IMPORTANT DECISIONS
St John’s Church, Princes Street Edinburgh
A very big thank you to the MinistryTeam from St John’s Church forsupporting Finola & a special thankyou goes to Rev Dr John Armesfrom Finola and her family.
This year has seen great leaps and bounds with Finola maturing and making somevery important decisions that are going to affect her future years.
HEALTH - we started the year with Finola having to consider whether shewould like to have major surgery on her spine and having two rods inserted from neckto pelvis to help the scoliosis in her back. This procedure although 20 more timesmore major than her pelvic surgery (2001) would have helped prevent the spine fromcontinuing to curve as currently one of Finola’s lower ribs is practically touching herpelvis. Obviously there are huge implications for both having the surgery but also nothaving the surgery. After much soul searching & identifying the pros and cons fromboth Finola and the families point of view, Finola’s own decision was that she wouldprefer not to have it – “even if it means that I am not here for so long” says Finola.
We would like to say a very big thank you to Mr Tsikoros & to Mr Robb for theirpatience and kindness.
We truly hope that the unknown future of her back will be kind to Finola.
EDUCATION – Finola visited PORTLAND COLLEGE, Nr Nottingham(www.portland.ac.uk) in early November this year for her Sunday – Wednesdayassessment. A HUGE STEP for Finola as no one knew her within the college but shedid ever so well. WELL DONE FINOLA! We heard on 21.11.08 that the college areable to offer Finola a place at a cost of £75,000 approx per annum.
Finola informed them during her visit that she would very much like to attend thecollege starting from next year! This they have confirmed they could do but obviouslyit would be dependent on funding.
This therefore brings forward the requirement of funds by a year. Currently theFinola Education Trust has fundraised approximately £25,000 since last November.
A VERY VERY BIG THANK YOU TO EVERYONE WHO HAS SUPPORTED FINOLAWHETHER BY TAKING PART IN A FUNDRAISING ACTIVITY OR BY DONATINGHOWEVER LARGE OR SMALL.
THANK YOU THANK YOU THANK YOU!
TIME Recruitment Services Ltd support Finola(www.timerecruitment.co.uk)
A huge thank you to Caroline and Ian Burns for commissioning Finola to do their companyChristmas card this year and for utilising one of her cards as their company birthday card.Thank you so much.
45490TIME RE
Finola gifts her work to Rev Dr John Armes, Rector, St John’s Church
St John’s Church, Princes Street banner withChristmas service times & Finola’s painting
TIME Recruitment Christmas card designed by Finola Forman
finola news 2008:Layout 1 17/12/08 18:08 Page 2
Currently we have been advised that:
EDUCATION (Edinburgh) may possibly be able to give £15,000SOCIAL WORK (Edinburgh) may possibly be able to give £17,000 maxTHE FINOLA TRUST EDUCATION FUND £25,000 approx
Sub total £57,000CURRENT SHORTFALL £18,000 for 1st
year of college
WHAT ARE WE GONG TO DO?Well mummy hasn’t started approaching Trusts/ Charities for possible grantsso a meeting is arranged early January with Careers Scotland to start lookingat organisations that might be able to help. A very big thank you goes toNorma Fairlea and Rosie Barclay from Finola and her mummy for all theirhelp to date.
We will lobby MSPs and MPs – this will be a huge task if it is to be doneproperly. If anyone knows of help out there to do this effectively please get intouch with us at [email protected]
FUNDRAISE – we will continue with fundraising activities into 2009 andbeyond! Details of current activities are detailed later on in this newsletter.
We are under no illusion that this will not be easy owing to current worldfinancial markets and there are so many worthy causes out there, but if youare able to help or know of anyone that can – we would be truly grateful.
£18,000, I believe, IS achievable for next summer... Mummy is not thinkingabout the following year needing a further £40,000 - £45,000 approx and theyear after £40,000 - £45,000 approx as mummy’s belief is BITE SIZED CHUNKSshould be looked at and concentrated on…
LET’S GO FOR IT - NOT ONLY TO PROVIDE FINOLA WITH A FUTURE BUT ALSO HIGHLIGHT THE CURRENT SITUATION OF COMPLEX NEEDS FURTHER EDUCATION IN SCOTLAND FOR OTHERS LIKE HER.
Well where do I start? So very many kind people have helped Finola’s causethis year and given so much kindness, support and fun!
I am not in a position to be able to give definite details about some of thefundraising activities totals as we have not had all the money in yet. Please ifyou have participated in an event & have outstanding income please could youforward it to us so that we can let everyone know the totals? Thank you verymuch. I am therefore going to provide details for events that have beenfinalised but obviously our heartfelt thanks goes out to everyone who hasshown support.
If I miss anyone out by accident please accept our sincere apologies..
CRAMMOND – MUSSLEBURGH HALF MARATHON 9.3.08Robert Bain raised £440
FINOLA’S GATHERING 4.4.08A HUGE thank you to Steven McLeod & to everyone who supported us –including the Events Company & Gary James. Not forgetting the auctioneersextraordinaire! Patrick Walker & Campbell McLelland A massive £15,830 was raisedAfter all costs The Education Fund received £10,827
STAFF CHARITY NIGHT - HALLOWEEN PARTY AT THE BEARDMORE HOTELA huge thank you goes to Nada Kadhim & all the staff who raised £300 for the Finola Trust Education Fund. Huge thank you to the Golden JubileeNational Hospital & the Beardmore Hotel, Glasgow for the 31.10.08.
CHAMELEON CHALLENGE 2008This was set up by Colin McDermott of Chameleon Print Solutions. It was a series of challenges that were completed in whole by Colin himself andaccompanied by friends, colleagues & family.
Total funds raised currently unknown … however there will be a FINOLA’S CASINO NIGHT (DATE TO BE KNOWN) – APRIL 2009 TO BE HELD IN CARNEGIE CENTRE, DUNFERMLINEwhere total income will be announced.Email us at [email protected] if you would like to come
FUNDS FOR COLLEGE 2008 FUNDRAISING ACTIVIES
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THE CHAMELEON CHALLENGES 2008 INCLUDED...
BUPA EDINBURGH GREAT RUN 10K - 4th MAYBIG THANK YOU to the team Jane, Mike, Judy, Colin, Mummy, Suzie, Julie & GP (back row)Finola & Michelle (front row)
Special thank you goes to David Hart and his team from NOVA Internationalfor supporting us & helping raise Finola's profile and being such stars ever since!
PEDAL FOR SCOTLAND - 14th September 2008What a challenge this was! So much for the flat roads and a family day out! However what a day... not to be forgotten in a hurry forme anyway!
The team was fantastic - we were joined by LEITH FMand many friends old and new...
HUGE THANK YOU to - Colin, Inga, Mike, Jane,Susan, Murray Leith FM whobroadcasted whilst on route! -Ricky & Davie early morningbreakfast presenters, Alan,Graham, Paul, Andrew,Cormac, Patrick, Finola'sfather - Callum, Tessa,Stephen, Angela, Mark, Mike,Scott & Andrew & last but notquite least mummy!
FUNDS BANKED to date forthis event - £4690.10
DUNFERMLINE HALF MARATHON - 11 May 2008FUNDS BANKED to date for this event - £486.52Big thank you to Colin, Mike, Jane & Ben
EAST KILBRIDE HALF MARATHON - 22 June 2008Big thank you to Colin, Jane & Ben
GREAT NORTHERN RUN - 5th October 2008The sole runner - Colin McDermottHuge thank you.
GLASGOW HALF MARATHON FRESHNLO GREAT SCOTTISH RUN & GLASGOW 10km FRESHNLO GREAT SCOTTISH RUN7 September 2008Big thank you to Colin, Jane & Ben for running the Half Marathon & to Robin,Cameron, Colin & Nicky for the 10km run. A special thank you goes to Robinbut also to Nicky and very special big thank you goes to Cameron & Colin who joined us with just 1 days notice!FUNDS BANKED to date for 10km - £703.40
The finish! Victoria Park, Leith
Leith FM join us with a live phone in. Davie & Ricky Leith FMpresenters join the team. Big thank you to Dode Muir also aLeith FM presenter who kindly drove his van on the day
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OTHER FUNDRAISINGACTIVITIES THIS YEAR 2008
Leith FM did a roadshow for Finola on 13 September 2008even though Ricky was not well & it was his birthday!Thank you very much Ricky & Carly... & Becky who came to help.FUNDS BANKED - £79.66
AMAIU DANTZA TALDEA give us twowonderful nights of TRADITIONALBASQUE COUNTRY DANCINGBIG thank you to Suzie & Julie forarranging this but also to Terry & Alison Magill for providing us with a venue in Portobello, but most of all to the 21 dance troupeFUNDS BANKED - £328.37
BAXTERS LOCH LOMOND RACE 5 October 2008Bill Chambers from Wyeth Pharmaceuticals puts on his running shoes for Finola, & completed the race in just 3hrs 47 mins! Very well done Bill
Thank you so much to Bill and his colleagues fromWyeth who supported his sponsorship, and to all hisfriends and family. A special thank you goes to Wyeth who donated £300.FUNDS BANKED - £1314.00
A YOGA NIDRA WORKSHOP FOR FINOLA 8 November 2008Big thank you to Aileen Orr who in the past was Finola's weekly masseuse.
Bill’s made it!
PA EXCHANGE - PAX IN THE CITY 11 November 2008Mummy took THE FINOLA TRUST to Pax in the City exhibition at the GeorgeHotel, Edinburgh to showcase the cause. Although not a fundraiser as such itwas all worth while when 3 separate mothers came to me during the course ofthe night & just hugged me. Each one close to tears as they too have complexneeds children. The message from them all was "Very well done & thank you for highlighting the problems that we face.Hopefully someone will listen".
DONATIONS TO THE FINOLA TRUST EDUCATION FUNDThis year we have seen great kindness.
Total received - £5975 of which
WL GORE ASSOCIATES LTD Donated £1700 in June this year thanks to their ‘Making Dreams to a Reality’.A big thank you goes to family member Nicky Smith who presented Finola’s case to the company & colleagues who then asked to vote fro their preferred ‘Dream to Reality’.
ANONYMOUS DONATION OF £1000Received via Bobath Scotland in Glasgow. All we know is that a very kind man donated this to Finola’s Education Trust. If you ‘the giver’ get to read this newsletter - A VERY BIG THANK YOU FROM FINOLA & HER FAMILY!
6th & 9th August Dalriada Hotel, Portobello
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WHAT NEXT?CHARITY BALLFRIDAY 30th JANUARY 2009EDINBURGH SHERATON HOTEL
Hosted by the Institute of Travel Management
Funds being raised for FINOLA TRUST EDUCATION FUND & KIDNEY KIDS SCOTLAND
TICKET PRICE - £50 PER PERSONinclusive of pre dinner drinks, three course meal, wine (half bottle per person),liquers & coffee.
For tickets contact Patricia Halloran, ITM Regional chair quoting Finola TrustE: [email protected] T: 0131 200 5278
PEDAL FOR SCOTLAND 2009Date is currently unknown however once details are available we will let youknow. Would you like to join the team?Let us know by emailing [email protected]
FINOLA'S CASINO NIGHTCome & have some fun and at the same time help Finola.Details to follow once availableTiming - April 2009 Venue: Dunfermline
FINOLA'S NIGHT SUPPORTEDBY LEITH FMDetails to follow once availableTiming - April 2009 Venue: Leith Dockers Club
If you would like to help in anyway please let us know. A huge thank you as always to you all.
RAISING FUNDS TO ENABLE FINOLA TO ATTEND PORTLAND COLLEGE - www.portland.ac.uk
TO MAXIMISE THE ABILITY & MINIMISE THE EFFECTS OF DISABILITY BYATTENDING A TRULY INDEPENDENT LIVING COURSE IN A SAFE,THERAPEUTIC, STIMULATING ENVIRONMENT
Please help us to not only help Finola but raising the profile for all the children that are currently being 'hidden'. Thank you so much.
2009
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FINOLA’S FUTURE
BUPA GREAT EDINBURGH RUN (10km)Sunday 3rd MAY 2009
Come & join Finola's team.... Mummy & Finola are already booked up!To join book with the organisers athttp://entry.greatrun.org
& don't forget to tell us you are running [email protected] so we can know you arerunning fro the Finolan Trust Team. We will beagain looking for fit young men to push Finola.
Visit Finola’s website to get find out morewww.finolatrust.co.uk
Contact us at [email protected]
GP and Finola at the finishing line
WHAT NEXT?
2008 Bupa Edinburgh Great Run, the teams start
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