Mary Frances Oneha, APRN, PhD August 22, 2013 Tools for Building Infrastructure at Health Centers for Research

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Mary Frances Oneha, APRN, PhDAugust 22, 2013Tools for Building Infrastructure at Health Centers for Research

Why Build Infrastructure?Its all about the dataImproving the health of communities is critical

The InvestmentHe Alo a He Alo(Face to Face)

Burgess P. (1993) He Alo a He Alo. In He Alo a He Alo Face to Face, Hawaiian Voices on Sovereignty. The American Friends Service CommitteeStages of Research DevelopmentCollaborating with external entities to recruit research participants Establishing formal partnerships with other organizations and institutions to conduct research Creating a research department to generate own research proposals

Shared CommitmentBelieveBehave BecomeBelong

Building Blocks for a Research InfrastructureSelecting and Establishing Partnerships to gain:A different perspectiveExpertise in a particular areaAccess to resourcesCommon vision to facilitating a healthy and sustainable future for communitiesA MOU or MOA helps to formalize the relationship

Policies and Procedures to Conducting ResearchOverall policy to conducting research at your CHCDetailed operating proceduresFinancial ResourcesEquitable partnerships

Human ResourcesInvestment of staff time (new or re-allocated)Research Coordinator (administrative functions)

Hard InfrastructureSpaceEquipment; Secure data storageSoftware; Library databases; etc.

Building Blocks for a Research InfrastructureChallenges and Solutions To Building a Research InfrastructureInfrastructureHuman ResourcesParticipant RecruitmentStaying Committed

Infrastructure ChallengeSolutionCompeting space needsNot just physical space, but consider secure data storage needs when initiating proposal.Lack of adequate communication toolsTechnological resources need to be anticipated, budgeted, and used.Lack of analytical softwareAcademic PI purchased quantitative software for the CHCTransition from paper to EMRAllow time if research is in the middle of transition or wait until transition is completed.Human ResourcesChallengeSolutionLack of dedicated finance resourcesEnsure timely and dedicated finance resources for processing invoices, incentives, unanticipated adjustments to staff time, etc.High staff turnoverDeveloped mobile research orientation and project training programStaff overloadThorough assessment of workload, training, and skill if using existing staff vs. hiring new or temporary staff.

Participant RecruitmentChallengeSolutionSustaining engagement over multiple data collection pointsMore frequent contact leading up to data collection point.Determining appropriate over-sampling numbersUnderstand the social context of the population (mobile population w/ frequent address changes)Staying CommittedChallengeSolutionDissemination and translationState expectation when proposal is presented to CHC.Shovel-ready projectsClearly state need to partner in development of idea have the resources available to do this.Cultural considerations and integrationInterpretation & translation is not enough; offer cultural consultationInfrastructure to support data requestsDevelop data request form that provides the limits to requesting data.ReferencesOneha MF, Dodgson JE. Lessons learned: Refining the research infrastructure at community health centers. Progress in Community Health Partnerships Research Education and Action. Accepted for publication January 6, 2013.Oneha MF, Proser M, Chang Weir R. Community health centers: Why engage in research and how to get started. 2012. NACHC.Shoultz J, Oneha MF, Magnussen L, Hla MM, Brees-Saunders Z, Dela Cruz M, & Douglas M. Finding solutions to challenges faced in community-based participatory research between academic and community organizations. Journal of Interprofessional Care. 2006; 20(2): 133-144.Oneha MF & Beckham S. Re-examining community based research protocols. Pacific Public Health 2. Pacific Health Dialog: Journal of Community Health and Clinical Medicine for the Pacific, 2004; 11(1): 102-106.

MahaloNational Institute of Nursing Research (Grant #7R21 NR 010218) Community Health Applied Research Network (CHARN) (Grant #UB2HA20232) DHHS HRSA HIV/AIDS Bureau.