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Literacy in Medicine and Literacy in Medicine and Education – Education – the IOM Report and the IOM Report and Beyond Beyond Lynn Nielsen, Ph.D. Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of Assistant Professor of Physiology & Director of Research Research DeBusk College of Osteopathic Medicine DeBusk College of Osteopathic Medicine

Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

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Page 1: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Mandates for Health Mandates for Health

Literacy in Medicine and Literacy in Medicine and

Education – Education –

the IOM Report and the IOM Report and

Beyond Beyond Lynn Nielsen, Ph.D.Lynn Nielsen, Ph.D.

Assistant Professor of Physiology & Director of Assistant Professor of Physiology & Director of ResearchResearch

DeBusk College of Osteopathic MedicineDeBusk College of Osteopathic Medicine

Page 2: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Health literacy is a shared Health literacy is a shared

function of social and individual function of social and individual

factorsfactors

Individuals’ health literacy skills Individuals’ health literacy skills

and capacities are mediated by and capacities are mediated by

their education, culture, and their education, culture, and

languagelanguage

Page 3: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Potential Intervention Potential Intervention PointsPoints

Page 4: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Intervention points for Intervention points for improving health improving health

literacyliteracy

Health systemsHealth systems

Social marketingSocial marketing

Education systemsEducation systems

Page 5: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

PartnershipsPartnerships

Critical to improved Critical to improved health literacyhealth literacy

Repeatedly Repeatedly mandatedmandated

RareRare

Page 6: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Obstacles to Obstacles to PartnershipPartnership

Lack of action on existing Lack of action on existing science education standardsscience education standards

Inadequate funding of Inadequate funding of recommended programsrecommended programs

Lack of awareness across fieldsLack of awareness across fields

Page 7: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Fostering PartnershipsFostering Partnerships

Partnerships wantedPartnerships wanted

Adult education Adult education programsprograms

Health systemsHealth systems

Adult learnersAdult learners

Page 8: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Engage Multiple FieldsEngage Multiple Fields

Health care services Health care services

should be developed in should be developed in

partnerships with the local partnerships with the local

community, organizations, community, organizations,

and institutionsand institutions

Page 9: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Local ResourcesLocal Resources

Health care institutionsHealth care institutions

Adult education programsAdult education programs

LibrariesLibraries

Community leadersCommunity leaders

Page 10: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Example PartnershipsExample Partnerships

Demonstration Demonstration ProjectsProjects

Develop CurriculaDevelop Curricula

Train the TrainerTrain the Trainer

Page 11: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Leadership for Leadership for Community Change Community Change Kellogg Foundation Demonstration ProjectKellogg Foundation Demonstration Project

Classroom trainingClassroom training

MentoringMentoring

NetworkingNetworking

Community-based leadersCommunity-based leaders

Local organizationsLocal organizations

Multiple sitesMultiple sites

Page 12: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Promote cross-Promote cross-discipline discipline relationshipsrelationships

Develop self-Develop self-continuing projectscontinuing projects

Take action on Take action on existing mandatesexisting mandates

Page 13: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

ReferencesReferences

11 Committee on Health Literacy, Board on Committee on Health Literacy, Board on

Neuroscience and Behavioral Health. Neuroscience and Behavioral Health. Health Health

Literacy: A Prescription to End Confusion.Literacy: A Prescription to End Confusion. L L

Nielsen-Bohlman, AM Panzer, DA Kindig, Eds. Nielsen-Bohlman, AM Panzer, DA Kindig, Eds.

Washington DC: National Academies Press, 2004. Washington DC: National Academies Press, 2004.

http://www.iom.edu/?id=32784http://www.iom.edu/?id=32784

4 4 Committee on the Future of Rural Health Care, Board Committee on the Future of Rural Health Care, Board

on Health Care Services. on Health Care Services. Quality Through Quality Through

Collaboration: The Future of Rural Health CareCollaboration: The Future of Rural Health Care. .

Washington DC: National Academies Press, 2005. Washington DC: National Academies Press, 2005.

http://www.iom.edu/?id=29734http://www.iom.edu/?id=29734

Page 14: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

A selection of articles A selection of articles

relevant to health systems relevant to health systems

and adult education and adult education

partnerships to address partnerships to address

health literacyhealth literacy

Further ReadingFurther Reading

Page 15: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Rudd RE. 2002. A maturing partnership. Rudd RE. 2002. A maturing partnership. Focus on Basics: Connecting Research and Practice.Focus on Basics: Connecting Research and Practice. 5(3). 5(3).

Rudd RE, Moeykens BA. 1999. Rudd RE, Moeykens BA. 1999. Adult educators’ perceptions of health issues and topics in adult basic Adult educators’ perceptions of health issues and topics in adult basic

education. NCSALL Report #8.education. NCSALL Report #8. Cambridge, MA: National Center for the Study of Adult Learning and Literacy. Cambridge, MA: National Center for the Study of Adult Learning and Literacy.

Pateman B, Grunbaum JA, Kann L. 1999. Voices from the field—A qualitative analysis of classroom, school, Pateman B, Grunbaum JA, Kann L. 1999. Voices from the field—A qualitative analysis of classroom, school,

district, and state health education policies and programs. district, and state health education policies and programs. Journal of School Health.Journal of School Health. 69(7): 258–263. 69(7): 258–263.

NRC (National Research Council). 1996. NRC (National Research Council). 1996. National Science Education Standards.National Science Education Standards. Washington, DC: National Washington, DC: National

Academy Press.Academy Press.

Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in

adult learning centers: Linking literacy, health care, and the community. adult learning centers: Linking literacy, health care, and the community. Journal of Community Health Journal of Community Health

Nursing.Nursing. 13(3): 149–158. 13(3): 149–158.

Morse L. 2002. Morse L. 2002. Improving Health Literacy: An Educational Response to a Public Health Problem.Improving Health Literacy: An Educational Response to a Public Health Problem. Presentation Presentation

given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002, given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002,

Washington, DCWashington, DC

Matthews TL, Sewell JC. 2002. Matthews TL, Sewell JC. 2002. State Official’s Guide to Health Literacy.State Official’s Guide to Health Literacy. Lexington, KY: The Council of State Lexington, KY: The Council of State

Governments.Governments.

Joint Committee on National Health Education Standards. 1995. Joint Committee on National Health Education Standards. 1995. National Health Education Standards: National Health Education Standards:

Achieving Health Literacy.Achieving Health Literacy. Atlanta, GA: American Cancer Society. Atlanta, GA: American Cancer Society.

Jacobson E, Degener S, Purcell-Gates V. 2003. Jacobson E, Degener S, Purcell-Gates V. 2003. Creating Authentic Materials for the Adult Literacy Classroom: Creating Authentic Materials for the Adult Literacy Classroom:

A Handbook for Practitioners.A Handbook for Practitioners. Cambridge, MA: World Education Inc. Cambridge, MA: World Education Inc.

HHS (U.S. Department of Health and Human Services). 2000. HHS (U.S. Department of Health and Human Services). 2000. Healthy People 2010: Understanding and Healthy People 2010: Understanding and

Improving Health.Improving Health. Washington, DC: U.S. Department of Health and Human Services. [Online]. Available: Washington, DC: U.S. Department of Health and Human Services. [Online]. Available:

http://www.health.gov/healthypeoplehttp://www.health.gov/healthypeople [accessed: January 15, 2003]. [accessed: January 15, 2003].

Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Oncology Nursing Oncology Nursing

Forum.Forum. 23(8): 1305–1312. 23(8): 1305–1312.

Page 16: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Members of the IOM Committee on Health LiteracyMembers of the IOM Committee on Health Literacy

Dr. Dyanne Affonso, Dr. Dyanne Affonso, Executive Administrative Specialist, Dept. of Pharmacy, University of Hawaii Hilo,Executive Administrative Specialist, Dept. of Pharmacy, University of Hawaii Hilo, 60 Nowelo St., 60 Nowelo St.,

Ste 101, Hilo, HI 96720 Ste 101, Hilo, HI 96720 [email protected]@hawaii.edu (808) 443-5900 (808) 443-5900

Dr. Eric Chudler, Dr. Eric Chudler, Eric H. Chudler, Director of Education and Outreach, Eric H. Chudler, Director of Education and Outreach,

University of Washington Engineered BiomaterialsUniversity of Washington Engineered Biomaterials (UWEB), (UWEB), Department of BioengineeringDepartment of Bioengineering, BOX 355061, , BOX 355061,

University of University of WashingtonWashingtonSeattleSeattle, WA 98195-5061 , WA 98195-5061 http://faculty.washington.edu/chudler/ehc.htmlhttp://faculty.washington.edu/chudler/ehc.html (206) 616-6899 (206) 616-6899

[email protected]@u.washington.edu

Dr. Terry Davis, Contributor, Dr. Terry Davis, Contributor, Professor of Medicine and Pediatrics , Director of Behavioral Science Section, Feist-Professor of Medicine and Pediatrics , Director of Behavioral Science Section, Feist-

Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501 Kings Highway, Shreveport, Louisiana 71130-Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501 Kings Highway, Shreveport, Louisiana 71130-

3932 3932 http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129 [email protected]@lsuhsc.edu (318) 675-5813 (318) 675-5813

Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired, Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired,

http://www.leadwithexperience.org/prize/finalists/gaston-porter.cfmhttp://www.leadwithexperience.org/prize/finalists/gaston-porter.cfm [email protected]@aol.com

Dr. David Howard, Dr. David Howard,  Assistant Professor, Department of Health Policy and Management, Rollins School of Public  Assistant Professor, Department of Health Policy and Management, Rollins School of Public

Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA

3032230322http://www.sph.emory.edu/~dhhowar/http://www.sph.emory.edu/~dhhowar/ [email protected] 404-727-3907  [email protected] 404-727-3907

Dr. David Kindig, Committee Chair, PDr. David Kindig, Committee Chair, Professor of Preventive Medicine and Director of the Wisconsin Network for rofessor of Preventive Medicine and Director of the Wisconsin Network for

Health Policy Research, Department of Preventive Medicine, 760 WARF Building, 610 N. Walnut St., Madison, Health Policy Research, Department of Preventive Medicine, 760 WARF Building, 610 N. Walnut St., Madison,

Wisconsin 53705-2397 http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm Wisconsin 53705-2397 http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm [email protected]@facstaff.wisc.edu

(608) 263-4886(608) 263-4886

Dr. Cathy Meade, Dr. Cathy Meade, Director, Education Program, Leader, Cancer, Culture, and Literacy Institute, Director, Education Program, Leader, Cancer, Culture, and Literacy Institute, Moffit Cancer Center, Moffit Cancer Center,

Univerity of South Florida, Univerity of South Florida, H. Lee Moffitt Cancer Center & Research Institute, 12902 Magnolia Drive, Tampa, FL H. Lee Moffitt Cancer Center & Research Institute, 12902 Magnolia Drive, Tampa, FL

33612 33612 [email protected]@moffitt.usf.edu (813) 745-6730 (813) 745-6730

Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of Research, DeBusk College of Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of Research, DeBusk College of

Osteopathic Medicine, Lincoln Memorial University, 6965 Cumberland Gap Parkway Harrogate, Tennessee 37752 Osteopathic Medicine, Lincoln Memorial University, 6965 Cumberland Gap Parkway Harrogate, Tennessee 37752

http://www.lmunet.edu/DCOM/faculty/nielsen.htm 423-869-7120 [email protected]://www.lmunet.edu/DCOM/faculty/nielsen.htm 423-869-7120 [email protected]

continued next pagecontinued next page

Page 17: Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of

Members of the IOM Committee on Health Literacy, continuedMembers of the IOM Committee on Health Literacy, continued

Allison Panzer, Committee Staff, University of Rochester Medical Center, Allison Panzer, Committee Staff, University of Rochester Medical Center,

[email protected][email protected]

Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med

http://med.emory.edu/faculty/profile_bio.cfm?id=846http://med.emory.edu/faculty/profile_bio.cfm?id=846 [email protected]@emory.edu (404) 778-1639 (404) 778-1639

Dr. Victoria Purcall-Gates, Dr. Victoria Purcall-Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Canada Research Chair in Early Childhood Literacy, Faculty of Education,

Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia,

Vancouver, B.C., Canada V6T 1Z4 Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/ http://educ.ubc.ca/faculty/vpurcell-gates/ [email protected] [email protected]

604.822.0105604.822.0105

Irv Rootman, Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4 Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4

http://web.uvic.ca/chpc/whoweare/team.htm [email protected] (250) 472-4102  http://web.uvic.ca/chpc/whoweare/team.htm [email protected] (250) 472-4102  

Dr. Rima Rudd, Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Senior Lecturer on Society, Human Development, and Health,

Department of Society, Human Development, and HealthDepartment of Society, Human Development, and Health, Harvard. 677 Huntington Avenue, Kresge , Harvard. 677 Huntington Avenue, Kresge

Building 7th Floor, Boston, MA 02115Building 7th Floor, Boston, MA 02115

http://www.hsph.harvard.edu/faculty/rima-rudd/index.htmlhttp://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected]@hsph.harvard.edu 617-432-3753617-432-3753

Dr. Dean Schillinger, University of California San Francisco, Dr. Dean Schillinger, University of California San Francisco, San Francisco General Hospital, 1001 Potrero San Francisco General Hospital, 1001 Potrero

Avenue, San Francisco, CA 94110, Box 1364, Bldg 10 Avenue, San Francisco, CA 94110, Box 1364, Bldg 10 http://dgim.ucsf.edu/sfgh/Faculty/schillinger.html http://dgim.ucsf.edu/sfgh/Faculty/schillinger.html

(415) 206-8940 [email protected](415) 206-8940 [email protected]

Dr. Susan Scrimshaw, Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 President, Simmons College, 300 The Fenwaym Boston, MA 02115

http://www.simmons.edu/overview/president/index.shtmlhttp://www.simmons.edu/overview/president/index.shtml [email protected] [email protected] 617-521-2070

Bill Smith, Bill Smith, Senior Scientist and Director, Social Change Group, Senior Scientist and Director, Social Change Group, Academy for Educational Development, Academy for Educational Development,

1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 http://www.aed.org/Experts/smithw.cfm http://www.aed.org/Experts/smithw.cfm

[email protected]@aed.org 202-884-8000202-884-8000

Barry Weiss, Contributor, Professor , Department of Family and Community Medicine, University of Barry Weiss, Contributor, Professor , Department of Family and Community Medicine, University of

Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017, Tucson, Arizona 85724 Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017, Tucson, Arizona 85724

http://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weisshttp://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weiss (520) 626-4555 (520) 626-4555