Managed Knowledge Networks for Cancer,

Coronary Heart Disease and Mental Health in the

West of ScotlandAnnette Thain

MKN Project Managerannette.thain@nes.scot.nhs.uk

9th June 2004

Outline

• Libraries in the NHS• Recent changes in the NHS and the

effect on libraries• MKN Project

– Portals– Mapping – Networks

• Potential for co-operation

Beatson Oncology Centre Library

• Clinical queries• Current awareness services• Clinical Librarian service to multi-

professional teams• Research support• Education and CPD• Patient Information• Website

NHS Organisational changes

• Organisation of healthcare delivery– Partnership working with NHS, social

care and voluntary sector– Primary care led NHS– Managed Clinical Networks– Multi-professional team working

• Patient journey model• Provision of patient information

IT Developments

• Improved access to IT within NHS settings

• NHS Scotland e-Library http://www.elib.scot.nhs.uk

• Electronic access to national and local subscription resources

• Single Athens login to access services and subscription resources from any computer

Managed Knowledge Networks project

• Response to changing pattern of healthcare delivery eg MCNs

• Development of subject portals• Mapping of services in the west• Development of networks to meet

the changing needs

Cancer

Knowledge portals within the NHS Scotland e-Library

Coronary Heart Disease

Mental Health

Mapping services: gathering the information

• NHS libraries and knowledge services

• Local authorities and social care information services

• Public libraries• HE/FE libraries• Voluntary groups and charities

I am well I have a problem

Symptoms/SignsExaminations

Diagnosis

Treatment/Procedure

Chronic illness/

Rehabilitation

Well again

InformationHealth improvementHealthier lifestyleRecognition of symptoms

SourcesNHS HI material/campaign/awarenessVoluntary sector/charitiesPrimary care/clinicsPublic libraries

InformationNHS Leaflets & consent formsPatient information material for charitiesSupport groups /friendsPractical information

SourcesClinicsNHS 24InternetCharitiesPublic librariesCommunity pharmacistsLA/Social work

OutcomeReinforces verbal informationResearch shows that the right information at the right time reduces anxietyBetter understanding, with this comes better coping and adherence to medication regimesIncrease patient informed consent

Patient Journey and sources of information

Health queries in public libraries

• Drug information• Background to recently diagnosed

conditions for themselves or a family member

• Local services and support groups• In depth queries often involving

rare conditions

Mars

Cancer information services

Cancer information services in the West of Scotland

• Cancer Managed Clinical Networks are well established

• Lack of coordinated support for the multi-professional teams in the networks

• Need to improve equity of access to knowledge services

• Role of the knowledge portal for cancer

Mental Health information services

Mental Health Information

• Partnerships between NHS, local authorities and voluntary sector

• Emphasis on service information• Difficulty in identifying and sharing

best practice• MKN portal first attempts to

address the above

Lanarkshire information services

Mapping of services

• Complexity of the provision of information• Maps as a useful tool• Maps as an aid to planning • Patient journey and the role of information• Advantages of better understanding of the

needs of the users• Concept mapping tool

http://cmap.coginst.uwf.edu/samples/index.html

Directory of libraries and information providersincluding NHS, social care, voluntary sector, public libraries

Managed Knowledge Networks

• Support to ensure the portals are useful and meet user needs

• Services to better support the MCNs• Support for the sustainability of the

portal• Evaluation of websites• Increase our understand of user

needs

Knowledge Exchanges

• Virtual workspace– Upload documents, protocols etc– Organisational knowledge – minutes, reports etc– Sharing best practice

• Specific subject or geographic focus• Provide a useful tool for the MCNs and the

developing Community Health Partnerships• Sharing of tacit knowledge and expertise• Communication via a discussion forum

Discussion Forums

Knowledge Exchange Service

Communities of Practice

• Cut across boundaries• Cut across traditional hierarchies• Have a defined task or function• Be flexible to evolve• Managed by the members• Willingness to invest time and

effort

Examples of NHS and Public Library Co-operation in the

west• North Lanarkshire Health Information Points• East Renfrewshire Health Information

worker• Renfrewshire – Renfrew public library and

Macmillan Cancer Relief• D & G training GP surgery staff• Sandyford Initiative, Glasgow• Access Glasgow Health• Training A & C community NHS staff in a

public library computer cluster

Networks of libraries

• SHINE• GHI (Glasgow Health Information)• ALF (Ayrshire Libraries Forum)• Grampian Information• ?

NHS and Public Libraries

• Signposting: services and support• Health information to the public

– IT training– Support from the NHS libraries for

complex queries

• Training - Rural and Community staff• Awareness of services available to

NHS staff and partners

Contacts

We are very interested in examples of co-operation or suggestions for any aspect of the project.

please contact:

Annette Thain Project Manager NHS Education for Scotland 0141 223 1553 annette.thain@nes.scot.nhs.uk