London Connect Public Event - Summary Report

7/29/2019 London Connect Public Event - Summary Report

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Summary Report

A ree interactive andinspiring day exploring

how online personal recordsenable person-centredhealth and social care

Saturday 19th January 2013

11am - 3pm

Wellcome Collection

Franks and Steel Room

Wellcome Collection

183 Euston Road NW1 2BE

Facilitated by


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Imagine a future where patients have

access to all of their own health

information online, so they can make

informed decisions about their owncare, and where patient records dont

just include the professionals notes,

but the patients too.

London Connect, a partnership between the

Mayor o London, NHS London and London

Councils, hosted an all day drop-in event on the

19 January 2013 at the Wellcome Collection to

explore this vision or the uture and to increase

peoples awareness o access to their health andcare records. Raising awareness o the agenda

is a crucial component to the wider ambition o

encouraging patients to take action to become

more actively engaged in their health through

greater access to good quality personalised health

and social care inormation.

The Connect Event aimed to generate excitement

and energy about the possibilities that having

access to health inormation online can provide

or the public now and in the uture. It oered

opportunities or participants to explore not just

what online records access would be like or look

like, but what it would eel like or them. The eventsought to help participants to recognise how

their lives could be dierent in a culture where

accessing their own records is the norm and how

it could acilitate greater management over their

health and well-being.

Promoting patient pull

A wide audience was encouraged to attend the

event, including those who may not traditionally be

involved in their local health community in order to

spark pull or access to records. The event was

actively promoted through a variety o channels,

including via a Twitter campaign, myhealthlondon,

e-Health Insider, NHS Trust Patient Advice and

Liaison Services (PALS) and patient and public

involvement groups, GP Patient and Participation

Groups (PPGs) and through non-traditional health

event promotion routes such as TimeOut London

and the Londonist.

The Connect Event was acilitated by the

Innovation Unit and was delivered by members

o London Connects Community o Practice

including patients, health and social care

proessionals and technology entrepreneurs. Over

the course o the our hour event, 70 people took

part.


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Innovative methods

In addition to communicating to the public in new

ways, the event included a variety o dierent

innovative methods to engage participants inthese complex concepts o how they can take

greater control over their health and well-being.

A key goal was to inspire participants about

the possibilities, inorming them about what

is currently available in London and helping to

identiy and discuss any concerns. The variety o

methods enabled participants to engage with the

topic in ways that were relevant.

Participatory theatre

Participatory theatre was used during the

Connect Event to acilitate a dialogue between

the audience and actors about how it could eel

to access and interact with online health records.

The play took part in three acts, each act based on

a specifc health or social care scenario in which

online access to records could be used.

The scenarios were based on the myhealthlocker

personal health record aimed at supporting mental

health service users, acilitated by the South

London and Maudsley NHS Foundation Trust. This

participatory theatre took the audience through

scenarios, starting in a GPs surgery with an initial

prognosis o a mental health condition, moving

to a patients home, and ending in a hospital or

an appointment with a psychiatrist. The audience

was encouraged to engage in dialogue with the

characters and ask questions about the scenarios.

Some o the key insights came rom GPs in the

audience who were able to critique the doctor-

patient interactions and expressed anxiety about

the proposed shit in the role o the GP, rom

diagnostician and solution-provider to a motivator

and enabler o electronic sel-management.

Traditional GP consultations were too short and

introducing this new way o working seemed

threatening to good practice.

What the audience ound useul was the ability to

experience in a simple and practical way what an

online personal health record does and how it is

used. For many it seemed to liberate them to ask

questions and really interrogate the website and

the assumptions behind it. This was also useul

or David Newton, who role played the clinician

in some o the scenarios and who also project

manages myhealthlocker, to gain eedback and

help to develop the system urther.

My technology corner

A custom-built dashboard, which provided

participants with a view o 20 dierent

applications (including health trackers,

appointment and drug management diaries, and

allergy managers), allowed participants to explorethe dierent acilities that could be available to

support them with greater sel-management o

their health and well-being. Participants were

encouraged to create their own dashboards,

identiying the applications which they elt would

beneft them the most.

Design table

The design table provided participants with anopportunity to view dierent examples o online

records and e-health innovations rom around

the world, and to explore user-riendly design

concepts o what online records could look like.

Participants were encouraged to draw their own

ideal o an online health record.

Video corner and ideas cards

Participants were actively encouraged to sharetheir thoughts, hopes and concerns about this

agenda in dierent ways, including through


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Absolutely. I

ask my surgeryvery regularly

when I am going

to have one.

Would you usean online health

record i it was

available?

Most popular applications

The 5 most popular applications collected through

the dashboard were the ollowing:

Drug Management

Appointment manager

Health tracker

Wellbeing tracker

Food tracker

Being able to book

appointments and

transact business

with my surgery

online

An application that allows people to track

their prescriptions and order renewals.

Including a calendar through which people

could track the drugs they have taken or

need to take.

An application that allows people to manage

their appointments. Including a diary/calendar

into which people can add appointments andwhich will provide reminders/updates.

An application that allows people to track

inormation about their physical health, such

as blood pressure, BMI, Lipids, Kidneys and

vital signs. Symptoms can be visualised over

time in the orm o a graph.

An application that allows people to monitor

moods, depression, addiction, and other well-being indicators.

An application that allows people to keep

track o their ood habits and how many

calories they have consumed.

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5General interest

Participants were excited about using online health

records and showed a great interest.

KEY FINDINGS

participation in a video interview and noting

thoughts on ideas cards that were scattered

throughout the room.

Real-life examples

Real-lie demonstrations o online health records

currently being used were available throughout

the day or participants to urther understand

how they are currently being used in health

organisations across London.

Thanks to the energy and enthusiasm o the

public, the day was a great success. Not only did

it engage a new group o people in the online

records agenda, but it generated a large amount o

intelligence about how people would like to engage

with their health and social care inormation.


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Easy access to inormation

The real advantages are being a better inormed

patient, not having to chase up things when I

want to fnd something out. Just having it there

whenever I need to look at it.

Personal inormation security

There was a concern about how sae it is to have

personal inormation online and who can access

this inormation.

Proessionals need reassurance

They are worried that I am not going to

understand things and I am going to be there all

the time asking them questions.

Theres a lot o personal

inormation there and I think

like anything theres a security

element to it, issues about how

sae that inormation is, how

useul it is, who is looking at it.

They (doctors) are worried

that its going to increase

their workload and we have to

fnd ways o reassuring them

that this in the long run willprobably reduce their work

load. Or theyll have the same

workload but theyll have better

outcomes.


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Patient engagement

Theres some evidence rom some GPs who

have given people access to their records in

South London showing that over time, people had

better outcomes, used better medication and they

decreased the time they spent in surgeries.

Bigger studies in the States show that people

have more contact with the surgery once they are

given access to a record.

But what they havent done

yet is looked at whether having

more engagement with the

surgery is a bad thing, or

whether you get better engaged

patients who manage their

health better

When you go and see a doctor

you only get a very small slot.

Online records could help yougo to the appointment already

prepared with questions,

knowing what to say.

I work with the patients program but

the reason I got involved is because

o mistreatment by the NHS o my

own medical history. I was given

a wrong diagnosis because notes

got lost. So I am a real avocate o

patient empowerment and patient

involvement.


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Booking appointments

There was a great deal o interest in how

transactional services, like booking appointments

online, could help patients get access to

appointments when they want.

Booking a doctors appointment today:

It actually came up in the play. Somebody said on

a Sunday, well i you can make an appointment

or Monday morning Ill come with you. The act

o the matter is that i you have a complicated

history and want to see a GP that knows your

medical history and knows you, then you dont get

an appointment or 3 weeks.

rustrating and

time wasting

Booking a doctors appointment

tomorrow:

Especially people with multiple long termconditions, i you are keeping a diary online you

could even save yoursel a GPs appointment by

phoning the receptionist and saying: I am eeling

a bit x-y-z, could you get the doctor to look at my

diary and then see i I need to come in or not. It

can potentially save everyone an appointment.

ast and riendly

quick and easy


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The uture... in 20 years time

I think in 20 years time my childrens generation,

who get all their inormation and do all their

transactions online, will look back and think o a

very primitive time when people still used paper

and didnt have the same inormation as their

clinicians and how strange that must have been.Theres so many possibilities

when it comes to online patient

health


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There are peopleout there trying toput my dreams intopractice

Documents

London Connect Public Event - Summary Report