Living Storybook Storybook The living storybook is the unfolding story of community working together

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Text of Living Storybook Storybook The living storybook is the unfolding story of community working together

  • L iv ing Stor ybook

  • L iv ing Stor ybook The living storybook is the unfolding story of community working together to design a model of well-being focused on wrap around care services in the city of New Haven. ‘Living’ in that it is being written as the change occurs. And, a ‘storybook’ in that we emphasize the value of stories to, “entertain, teach, pass on wisdom, record history, represent beliefs, explore new ideas, share experiences, build community, express creativity, and heal”1. The living storybook is a record of the change towards a healthier community as it occurs. This includes steps taken, questions that have been asked, questions to be asked, sticky problems, and successes along the way. Vignettes that evoke the human spirit of those in the community are scattered throughout to ground the project in our common goal of supporting individuals with multiple chronic illnesses to thrive. In the photographs, we see our neighbor and partners in the project. All involved are co-authors, and thus, the living storybook represents the collective voice of individuals, organizations, and the community. Each major step we take is captured in its own chapter and all subsequent chapters will build upon what has previously been written. In this way, the living storybook creates linkages that reveal co-creation, knowledge sharing, transparency, and accountability.

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    M Y S O U L H O N O R S YO U R S O U L . I H O N O R

    T H E L I G H T, L O V E , T R U T H , B E A U T Y A N D P E A C E

    W I T H I N YO U , B E C A U S E I T I S A L S O W I T H I N

    M E . I N S H A R I N G T H E S E T H I N G S W E A R E

    U N I T E D , W E A R E T H E S A M E , W E A R E O N E .

    - H i n d u g r e e t i n g

  • L E E WAY | L I V I N G S TO RY B O O K | 6 - 2 8 - 1 6 3

    Contents 0 5 I N T R O D U C T I O N

    1 1 W H Y H E R E ? W H Y N O W ?

    1 7 P R O J E C T P H A S E S

    2 3 V I S I O N I N G & I M P L E M E N T A T I O N

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    T H E S E C R E T O F C H A N G E I S TO F O C U S

    A L L O F YO U R E N E R G Y, N OT O N F I G H T I N G

    T H E O L D , B U T O N B U I L D I N G T H E N E W

    - S o c r a t e s

  • L E E WAY | L I V I N G S TO RY B O O K | 6 - 2 8 - 1 6 5

    In t roduct ion

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    * Name and identifying information has been changed to maintain anonymity

    I TA K E 1 3 P R E S C R I P T I O N S E V E R Y D AY F O R P S Y C H E A N D

    B L O O D P R E S S U R E . I U S E D TO H A V E H E PAT I T I S C . I T W A S C U R E D

    B U T L A S T Y E A R I TO O K A P I L L T H AT C O S T $ 1 0 0 0 S O I T C O S T

    $ 1 8 0 , 0 0 0 O V E R S I X M O N T H S . A N D W I T H O U T I N S U R A N C E , I

    D O N ’ T K N O W W H AT I W O U L D H A V E D O N E . I T C A M E TO M Y

    L I V E R TO T H E P O I N T T H AT I H A D S TA G E F O U R S C L E R O S E S A N D

    T H AT ’ S S O M E T H I N G T H AT I T H I N K A B O U T E V E R Y D AY.

    I G E T TO T H E P O I N T W H E R E I ’ M S I C K O F B E I N G O N A L L T H E S E

    M E D S , E S P E C I A L LY T H E P S Y C H M E D S B E C A U S E S O M E T I M E S T H E Y

    M A K E M E A Z O M B I E . I N T H E PA S T, I ’ V E H A D T I M E S W H E N I S AY,

    “ I ’ M F I N E N O W A N D I D O N ’ T N E E D T H E S E . ” A N D I T H R O W T H E M

    A L L A W AY. A N D T H E N I H A V E A P R O B L E M . M Y F A M I LY J U S T

    L O O K S AT T H E C A L E N D A R A N D S AY S , “ W I T H I N T H R E E M O N T H S

    S O M E T H I N G I S G O I N G TO H A P P E N B E C A U S E I G E T V E R Y M A N I C

    TO W H E R E I H A L L U C I N AT E A N D S TAY I N B E D F O R A W E E K .

    M Y K I D S , I H A V E T W O K I D S , 1 3 A N D 1 4 , T H E Y ’ R E M Y W H O L E

    L I F E . T H AT ’ S M Y M A I N F O C U S I N M Y L I F E . M Y F A M I LY I S V E R Y

    I M P O R TA N T T O M E N O W B E C A U S E F O R A L O N G T I M E T H E Y

    D I D N ’ T W A N T TO K N O W M Y N A M E B E C A U S E O F T H E W AY I

    U S E D TO L I V E . S O M Y F A M I LY ’ S V E R Y I M P O R TA N T A N D I V A L U E

    I T A L OT. I F I ’ M A C T I N G W E I R D O R S O M E T H I N G , T H E Y ’ L L S AY,

    “ W H AT ’ S T H E M AT T E R ? ” “ A R E YO U O K AY ? ” I T F E E L S G O O D T O

    H AV E T R U S T B A C K . T H E Y T R U S T M E N O W.

    Ky le *

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    individuals to successfully return to the community by extending multidisciplinary care management services. The goal is to decrease hospital discharges to nursing facilities by 1.5% and to contribute to the statewide goal of transitioning 8,000 people from nursing facilities to the community by 2020. As the first step in achieving this goal, we ask the community to dream with a question, “What could the time between medical interventions look like so that it is filled with: a supportive, reliable, and loving social network; healthy options that support the mind, body, and spirit to thrive; and, a safe place to call home?” To achieve this dream, together we will increase choice, include a person-centered approach, and expand the existing continuum of long-term care services and supports.

    Vision With stakeholders at all levels and through all stages of the project we aim to develop Places of Dynamic Services that encourage healthy living through promoting personal growth and fostering security. The grand vision is then to design and build a Place of Well-Being that serves as a one-stop shop for individuals with multiple chronic illnesses. As we know, navigating the medical system can be trying, difficult, and confusing. This is true for any one of us and is particularly magnified for individuals who also live with mental illness, substance abuse issues, or a lack of knowledge on how to advocate for themselves.

    Imagine a Place of Well-Being where individuals are welcomed with peace, calm, and belonging and are provided access to all required long term care services and supports offered in the community under one roof.

    I N T R O D U C T I O N

    How do we support individuals to thrive and flourish in community?

    Big Question By asking this question, we seek to understand how we may align our work with existing city efforts— such as the City Transformation Plan, Healthier Greater New Haven Partnership, and CARE—and state efforts—including Money Follows the Person, Community First Choice, and No Wrong Door—to support an individual’s capacity to thrive and flourish within the City of New Haven. To thrive means to live within an optimal range of human functioning, one that simultaneously connotes goodness, generativity, growth, and resilience2. The core elements of well- being that support thriving include: psychological (agency, satisfaction, self-respect, and capabilities); physical (nourishment, shelter, health care, clothing, and mobility); and, social (participating in the community, being accepted in public, and helping others) 3.

    Strength of Leeway To contribute to this dream, Leeway and multiple stakeholders are working together to co-create a Community Living Model that will provide wrap around services and supports to individuals living with multiple chronic illnesses. Leeway is respected as a pioneer in the city. The nursing home is spoken of in high regards for its accomplished history of serving people with multiple chronic illnesses. The strengths and skills it takes to do so, while adapting to an ever- changing state of healthcare and reimbursement, is noteworthy. Because of these strengths, Leeway has been awarded a diversification grant funded by the Connecticut Department of Social Services (DSS). Leeway’s mission has heretofore been dedicated to caring for those with HIV. As Leeway diversifies its services, the organization will move beyond caring for an individual with any one disease. Leeway’s raison d’être establishes the soul of this project.

    Goal The project emphasizes personal empowerment, through health literacy and coaching, to prepare

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    What could the time between medical interventions look like so that it is filled with: a supportive, reliable, and loving social network; healthy options that support the mind, body, and spirit to thrive; and, a safe place to call home?

    Strengths Based Approach This project assumes a positive view and lens through which to look at existing strengths in the community. The premise is that together we can travel much further by building on our collective strengths than we can by trying to shrink our gaps. To support this view, we are using an Appreciative Inquiry methodology. ‘To appreciate’ is to recognize the full worth of something or someone and ‘to inquire’ is to explore and discover through questions, knowing that we find answers to the questions we ask. Appreciative Inquiry is strengths- based, artful in its search, collaborative in every aspect, inclusive, and generative. The methodology moves through four phases from discovery to dream to design and then destiny. We will carry Appreciative Inquiry through