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LGBT Data Collection OverviewMay 10, 2016
Scout, Ph.D.Director, LGBT HealthLink at CenterLink
Amy V. Lukowski, Psy.D.Clinical Director
National Jewish Health
2011
WWW.LGBTCENTERS.ORG2
2011
WWW.LGBTCENTERS.ORG3
Option 1: Single measure sexual identityonly
2011
WWW.LGBTCENTERS.ORG4
Option 1: Single measure sexual identityonly
2011
WWW.LGBTCENTERS.ORG5
Option 1: Single measure sexual identityonly
2011
WWW.LGBTCENTERS.ORG6
Transgender, transsexual, or gender variant
Option 1: Single measure sexual identityonly
2012
WWW.LGBTCENTERS.ORG7
Transgender, transsexual, or gender variant
Eliminated after 1st year
Option 1: Single measure sexual identityonly
2012
WWW.LGBTCENTERS.ORG8
Option 2: Single Yes/No LGBT measure
2012
WWW.LGBTCENTERS.ORG9
“… this grouping of four statuses is commonly used in current American discourse, and as a result has important cultural and political significance.”
Option 2: Single Yes/No LGBT measure
2014
WWW.LGBTCENTERS.ORG10
Option 3:2+ measuresLGB + (1 or 2-step T)
2014
WWW.LGBTCENTERS.ORG11
Option 3:2+ measuresLGB + (1 or 2-step T)
3 recommendations for T data collection
Overview
WWW.LGBTCENTERS.ORG12
Option 1: Single measure sexual identity
T data missing
On NHIS + spreading across HHS
Overview
WWW.LGBTCENTERS.ORG13
Option 2Single Yes/No LGBT measure
On NHIS + spreading across HHS
On largest sampleGallup n=120k
T data missing T dataNo breakout options
Option 1: Single measure sexual identity
Overview
WWW.LGBTCENTERS.ORG14
Single measure sexual identity
Option 32+ measures:LGB + (1 or 2-step T)
On NHIS On CDC HIV Case Reporting + MA BRFSS
T data missing T dataBreakoutMore landscape
T dataNo breakout options
Option 1Single measure sexual identity
Option 2Single Yes/No LGBT measure
On largest sampleGallup n=120k
Bonus one to watch
WWW.LGBTCENTERS.ORG15
Bonus one to watch
WWW.LGBTCENTERS.ORG16
Past testing problems raised concerns about this construct. Thus Williams Institute does not recommend it & it’s only “one to watch”.
2014
WWW.LGBTCENTERS.ORG17
The mysterious case of the vanishing bisexuals on NHIS.
SIDEBAR 1
2014
WWW.LGBTCENTERS.ORG18
Vanishing bisexuals found!National Adult Tobacco Survey used same measure as NHIS but conducted survey by phone v. in person. Voila! Bisexuals reappeared.
SIDEBAR 1
2012
WWW.LGBTCENTERS.ORG19
LGBT tobacco use reported. 50% higher smoking rates.
SIDEBAR 2
The mysterious case of the vanishing transgender people on NATS
2015
WWW.LGBTCENTERS.ORG20
LGB only tobacco use reported. 50% higher smoking rates.
SIDEBAR 2
Vanishing transgender people stayed lost!
Or…
WWW.LGBTCENTERS.ORG21
In use by 15 state quit linesField tested 33k times
T dataBreakoutLess landscape
Option 4LGBT Identity + probe
2008
WWW.LGBTCENTERS.ORG22
Testing commissioned by Blue Cross Blue Shield of Minnesota, for use in two applications: state tobacco quitline and state surveillance instruments.
Option 4:LGBT Identity + probe
2014
WWW.LGBTCENTERS.ORG23
• 4 days training all tobacco quitline counselors• They had administered the existing LGBT
measure 100k times• Feedback about how the current measure was
cumbersome – especially for people who were upset by being asked
Option 4:LGBT Identity + probe
2014
WWW.LGBTCENTERS.ORG24
• 4 days training all tobacco quitline counselors• They had administered the existing LGBT
measure 100k times• Feedback about how the current measure was
cumbersome – especially for people who were upset by being asked
National Jewish offered free field testing for an enhanced LGBT measure.
Option 4:LGBT Identity + probe
2014
WWW.LGBTCENTERS.ORG25
• Webinar presenting the enhanced measure• Solicited feedback from participants• Allowed feedback from others over next 3 weeks• Solicited additional feedback from gender
identity survey experts• Modified measure as a result
Option 4:LGBT Identity + probe
2014
WWW.LGBTCENTERS.ORG26
Option 4:LGBT Identity + probe
2016
WWW.LGBTCENTERS.ORG27
Testing results• 33k administrations• 5% yield• The measure was gauged to be easier to
administer by 79% of intake staff• Easier to answer for LGBT respondents by
74% of intake staff, and • Less disruptive to people uncomfortable with
the topic by 74% of intake staff
Option 4:LGBT Identity + probe
2016
WWW.LGBTCENTERS.ORG28
Testing results• 33k administrations• 5% yield• The measure was gauged to be easier to
administer by 79% of intake staff• Easier for answer for LGBT respondents by
74% of intake staff, and • Less disruptive to people uncomfortable with
the topic by 74% of intake staffSuccess
Option 4:LGBT Identity + probe
Overview
WWW.LGBTCENTERS.ORG29
Single measure sexual identity
Option 32+ measures:LGB + (1 or 2-step T)
On NHIS On CDC HIV Case Reporting + MA BRFSS
T data missing T dataBreakoutMore landscape
T dataNo breakout options
Option 1Single measure sexual identity
Option 2Single Yes/No LGBT measure
On largest sampleGallup n=120k
Used by 11 state quitlinesField tested 33k times
T dataBreakoutLess landscape
Option 4LGBT Identity + probe
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