LET’S TALK ABOUT PATIENTS ON

WAITING LISTS FOR KIDNEYS …100,000 NEED THEM EVERY YEAR

JOHN RATHNAM

VISION ENTERPRISES, LLC

HOW MANY WILL RECEIVE KIDNEYS?

• IN S. CALIFORNIA 1 OUT OF 10 ON WAIT LIST!

• WHAT HAPPENS TO THE REST?

• HALF OF THE PATIENTS DO NOT QUALIFY FOR A KIDNEY AFTER 18 MONTHS.

WHAT DO WE TELL THE PATIENTS?

• GET ON THE WAITING LIST.

• THE WORKUP WILL TAKE 4 MONTHS.

• THE WAIT TIME IS 8 YEARS.

• GO ON DIALYSIS.

• GET A LIVING DONOR.

WHAT IS THE REALITY?

• CHANCE OF GETTING A CADAVER KIDNEY IS 10%.

• CHANCE OF GETTING A LIVING DONOR KIDNEY IS 3% IN SOUTHERN

CALIFORNIA.

• HALF OF THE PATIENTS WILL NOT QUALIFY, BECAUSE OF THEIR HEALTH, TO GET

A KIDNEY IN 18 MONTHS.

• MORE PATIENTS NEED KIDNEYS NOW AND FEWER KIDNEYS ARE AVAILABLE.

WHAT IS THE SOLUTION?P.E.F.F.

• PROACTIVE EDUCATION FOR FAMILY & FRIENDS.

WHAT, WHEN & HOW TO P.E.F.F.

• LET’S ANSWER WHAT?

• EDUCATING FAMILY & FRIENDS OF PATIENT.

• THE OVERALL NEED FOR KIDNEYS TODAY.

• WHY KIDNEYS FAIL?

• OPTIONS FOR TREATMENT-INCLUDING DIALYSIS OR TRANSPLANT.

• TRANSPLANT OUTCOMES ARE BETTER.

• SHORTAGE OF CADAVER KIDNEYS.

WHEN TO START EDUCATING?

• INITIAL EDUCATION AT ORIENTATION.

• MAKE PATIENT AWARE OF THE NEED FOR LIVING DONORS.

• HAVE PATIENT, CAREGIVER OR ADVOCATE IDENTIFY FAMILY MEMBERS & FRIENDS.

HOW TO EDUCATE FAMILY & FRIENDS?

• HAVE CAREGIVER/ADVOCATE INVITE FAMILY & FRIENDS TO THEIR HOME FOR A MEETING.

• MEETING TO BE A SOCIAL OCCASION WITH FOOD OR SNACKS IN THE EVENING OR WEEKEND.

• A TRAINED PRESENTER/EDUCATOR TO MAKE PRESENTATION HIGHLIGHTING THE NEED.

• HAVE A DONOR & RECIPIENT ATTEND.

• EMPHASIZE THAT DONORS DO NOT HAVE TO BE A MATCH.

HOW TO EDUCATE FAMILY & FRIENDS?

• EXPLAIN PAIRED MATCHING & CHAIN PROCEDURES.

• PRESENT APPROVED PRINTED BROCHURES.

• COLLECT FOLLOW UP INFORMATION FROM INTERESTED DONORS.

• DO NOT PREQUALIFY DONORS AT THIS MEETING.

• FOLLOW UP WITH INTERESTED DONORS.

• SCHEDULE APPROPRIATE TESTS.

WHEN YOU FIND WILLING DONORS?• EXPLAIN HOW IMPORTANT THEIR ROLE IS IN DONATING A KIDNEY AND

SAVING A LIFE. MAYBE NOT JUST FOR THEIR LOVED ONE BUT TO SOMEONE

UNKNOWN.

• THEY ARE “ANGELS”, AS ONE COORDINATOR PUT IT.

• ALLEVIATE THEIR CONCERNS ABOUT COST.

• TREAT THE DONOR AND RECIPIENT AS YOUR ONLY PATIENTS.