LEAN on Us Webinar with Autism NOW May 3, 2011

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    Safety Concerns for Families

    and Individuals with ASD

    Autism Now

    and

    L.E.A.N. On Us

    May 3rd, 2011

    Webinar

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    Safety Concerns for Familiesand Individuals with ASD

    Our Host ~ Andrew Gammicchia

    As the President of L.E.A.N. On Us,

    a police officer with 25 years

    experience in the field, and mostimportantly the father of a nineteen

    year old young man with ASD,Andrew has a unique insight. Hisexperiences have allowed him to

    see both sides of the coin in theareas of appropriate preparedness

    and response to individuals

    with a disability.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 2

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    Safety Concerns for Familiesand Individuals with ASD

    L.E.A.N. On Us was foundedin 2001 as a volunteer

    organization of first

    responders who havechildren living with

    disabilities. The mission ofthe organization is to

    educate, collaborate, andprovide information andresources to allow for safercommunities for all of us.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 3

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    Safety Concerns for Familiesand Individuals with ASD

    Why we need to collaborate to ensure individuals withASD are safe and have resources:

    A study on child abuse and autism (Mandell, 2005) found that

    caregivers reported that 18.5% of children with autism had

    been physically abused and 16.6% had been sexually abused.

    Individuals with autism are generally taught compliance from avery young age, making them easy targets for criminals(Petersilia, 2001). Also more likely targets for bullying.

    Individuals with autism have difficulty picking up social cues(social referencing) and understanding other individualsthoughts and intentions (Wetherby and Prizant, 2001), makingthem vulnerable to a range of crimes from fraud and theft tomore violent crimes.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 4

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    Safety Concerns for Familiesand Individuals with ASD

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 5

    A daunting task that we have to begin

    somewhere. When approaching safety it is

    often best to look at what we may do each

    and everyday to keep ourselves safe:

    Wear a seat belt in cars and planes

    Place our children in car seats

    Lock our doors and windows

    Set our house alarms

    Wear bike helmets when we ride Use caution around strangers

    Be aware of our surroundings

    Carry identification

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    Safety Concerns for Familiesand Individuals with ASD

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 6

    In comparison we then can look at

    what, if anything, we need to

    consider to make a day that much

    safer for individuals living with ASD.

    The challenge may come howeverbecause there are no cookie cutter

    answers for everyone. Each

    individual has differing needs and

    may need more assistance or betterprecautions. But building an initial

    solid foundation for overall safety is

    key for anyone.

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    Safety Concerns for Familiesand Individuals with ASD

    Starting with safety for infantsand children, we can look to

    resources to preventaccidental injury. A topic that

    been a concern for manyyears in the ASD community is

    wandering. However sincewe do not have actual data to

    show if children with ASD

    wander more than thosewithout, these sites provide a

    foundation for overallchild safety.

    Safe Kids USA

    www.safekids.org(Site has a new video series for

    children with disabilities)

    The National Center forMissing and Exploited

    Children

    www.missingkids.comThis site features excellent resources

    for all age groups and interactive

    materials and many free

    resources.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 7

    http://www.safekids.org/http://www.missingkids.com/http://www.missingkids.com/http://www.safekids.org/
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    Safety Concerns for Familiesand Individuals with ASD

    After establishing that initial foundation for safe home andcommunity environments, these sites can assist

    families with material specific to individuals with ASD:

    Autism Now Safety Information

    http://autismnow.org/in-the-community/safety/

    The Autism Society Safe & Sound Campaign

    www.autism-society.org

    The Autism Safety Project www.autismsafetyproject.org

    AWAARE Collaboration www.awaare.org

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 8

    http://autismnow.org/in-the-community/safety/http://www.autism-society.org/http://www.autismsafetyproject.org/http://www.autismsafetyproject.org/http://www.autismsafetyproject.org/http://www.awaare.org/http://www.awaare.org/http://www.autismsafetyproject.org/http://www.autismsafetyproject.org/http://www.autismsafetyproject.org/http://www.autism-society.org/http://www.autism-society.org/http://www.autism-society.org/http://autismnow.org/in-the-community/safety/http://autismnow.org/in-the-community/safety/http://autismnow.org/in-the-community/safety/http://autismnow.org/in-the-community/safety/http://autismnow.org/in-the-community/safety/
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    Safety Concerns for Familiesand Individuals with ASD

    L.E.A.N. On Us also has a variety of free items toassist with providing a path to a safer communityfor individuals with ASD atwww.leanonus.org :

    Safety Identification cards 911 Registry Form Example

    Law Enforcement Pocket Cards

    Article - Protecting Loved Ones with Autism

    Article - Safety for Persons with Autism

    Series of six fact sheets and two brochures forvictims of crime with ASD

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 9

    http://www.leanonus.org/http://www.leanonus.org/
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    Safety Concerns for Familiesand Individuals with ASD

    Five* Suggestions: Things You Can Do to Make YourCommunity Safer For Your Child and All

    Individuals with Autism (Recapping some info)

    1. Obtain a personal ID card for your child from the Secretaryof State office so that if you child goes missing officers willhave a photo on file and information to use across thecountry. Ensure if you child carries the ID, that you keepthe ID number available also.

    2. Read the article Safety for Persons with Autism which hasbeen provided and is also available, along with anadditional series of articles that were featured in the ASAAdvocate entitled Protecting Your Loved One with

    Autism, atwww.leanonus.org.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 10

    http://www.leanonus.org/http://www.leanonus.org/
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    Safety Issues for Familiesand Individuals with ASD

    c. Provide them with a copy of the resource list forresponding to individuals with disabilities and a copy ofthe information sheet about Serving Victims of Crime

    with Autism. Both are provided today. Ask them if they

    provide any training that is specific to ASD or disabilities

    in general.

    d. Ask what alert system they use if an individual withautism goes missing. If they dont have a specific alert,

    ask them if they would consider using the Silver AlertSystem model.

    e. Print some law enforcement pocket cards for them onidentification and response tips from the L.E.A.N. On Uswebsite atwww.leanonus.org. These can be printed outon business cards.

    May 3rd, 2011 L.E.A.N. On Uswww.leanonus.org 13

    http://www.leanonus.org/http://www.leanonus.org/
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    Safety Issues for Familiesand Individuals with ASD

    May 3rd, 2011

    L.E.A.N. On Us

    www.leanonus.org 14

    In 2007 L.E.A.N. On Us Executive Director Carolyn

    Gammicchia and Catriona Johnson, collaborated

    on the Crime Victims with Autism Assistance,

    Education, and Training Program. The project,

    funded by the Department of Justice Office for

    Victims of Crime, developed a series of fact sheets

    and brochures to assist crime victim assistance

    professionals, families, and individuals with

    autism. An eight hour training is also available.

    A 2007 project survey of individuals with autism

    and others revealed that 35% of individuals with

    ASD have been the victim of a crime.

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    Safety Issues for Familiesand Individuals with ASD

    These materials are the first of a series of publications designedto improve services to crime victims with autism and can bedownloaded without cost from the L.EAN. On Us website at

    www.leanonus.org .

    If You Are A Victim Of Crime

    Autism Information for Crime Victim Service Professionals

    May 3rd, 2011

    L.E.A.N. On Us

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    http://www.leanonus.org/http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/paramedic-lwa-press-rev.pdf?docID=9801http://www.autism-society.org/site/DocServer/domestic-abuse-lwa.pdf?docID=9722http://www.autism-society.org/site/DocServer/legal-lwa.pdf?docID=9741http://www.autism-society.org/site/DocServer/counsel-lwa.pdf?docID=9721http://www.autism-society.org/site/DocServer/lwa-1st-responders.pdf?DocID=9742http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.autism-society.org/site/DocServer/self-victim.pdf?docID=9745http://www.leanonus.org/
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    Autism Informed Response VideoSouth Carolina Autism Society

    www.scautism.org

    The A.I.R. Program was developed to assist LawEnforcement in providing appropriate services to

    individuals with ASD. This eight minute video is awonderful resource, though the language use is a

    little dates, we feel the information and seeingindividuals on varying degrees of the spectrum

    will assist first responders.

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    Safety Issues for Familiesand Individuals with ASD

    An additional resource for victims of crime withdisabilities is SafePlace. They offer an extensiveseries of trainings for individuals with disabilities

    for prevention and safety. www.safeplace.org

    They also have an excellent bookletKid and Teen Safe: An Abuse Prevention

    Program for Youth with Disabilities that can be

    downloaded free:http://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-

    full.pdf

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    http://www.safeplace.org/http://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-full.pdfhttp://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-full.pdfhttp://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-full.pdfhttp://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-full.pdfhttp://www.vawnet.org/Assoc_Files_VAWnet/NRC_KTSafe-full.pdfhttp://www.safeplace.org/
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    Safety Issues for Familiesand Individuals with ASD

    Lastly wed like to offer some resources for

    emergency preparedness for natural disasters.With recent weather difficulties across the country

    this has been a concern for many families.

    This booklet is available at:

    www.fema.gov

    http://www.redcross.org also has abooklet Disaster Preparedness for

    People with Disabilities that can be

    downloaded free.

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    http://www.fema.gov/http://www.redcross.org/http://www.redcross.org/http://www.fema.gov/
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    In closing wed like to thank you for

    attending todays webinar. We do hope

    that these resources will provide a

    foundation for a path to safercommunities for individuals living with

    autism spectrum disorder.

    Please feel free to contact us via the

    comment section on our website and alsovisit our Facebook page which we update

    with information and resources daily.