JournalBCPA

BRITISH CARDIAC PATIENTS ASSOCIATION

Issue 209August / September 2016

The official journal of the

www.BCPA.euadmin@BCPA.euTHE

PATIENT AND CARERS

INDEPENDENT VOICE

From me to youChairman’s Report 2015-16Ricky’s QuickiesRecipesTry something new - Cory BeecherCoenzyme Q10 groundbreaking new researchNews from around the areasDates for your diariesMembership- How to join

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BCPA Journal Issue 209

National Helpline – 01223 846845Do you have concerns or worries that you would like to talk to someone about?Our telephone helpline, as part of our national support services, normally operates 9.00am to 7.00pm Monday to Saturday. If you get no reply please leave your name and number, and we shall attend to your call as soon as possible.All the people who answer our helplines have been patients or carers so are likely to understand your concerns because they have been there.

The Journal is the bimonthly magazine of theBRITISH CARDIAC PATIENTS ASSOCIATIONalso known as BCPA. Registered Charity 289190

President: Professor John Wallwork CBE DL FMedSci; Vice-Presidents: Alan Bowcher DMS FFA, Derek Holley OBE, FCA

Executive OfficersChairman: & Journal Editor: Keith Jackson

Vice-Chairman: Dr Richard Maddison Tel: 01234 212293 Treasurer: Derek Holley

BCPA Head Office: 15 Abbey Road, Bingham, Notts NG13 8EE Tel: 01949 837070Email: admin@BCPA.eu Website: www.BCPA.eu

Opinions expressed in the Journal are not necessarily those of the Editor or the BCPA. No item may be reproduced without consent.

Advertisements must conform to the British Code of Advertising Practice. Publication does not indicate endorsement by the BCPA. © Copyright 2016 BCPA and/or the authors

Designed, printed and mailed by Core Publications Limited - mail@corepublicationslimited.co.uk

Contents Co-ordinatorsCambridge: Tony Ward 01223 860329Halton: Betty Rogers 07710 485727Lincoln: Bill Lawton, Chairman & acting Co-ordinator 01522 703026Peterborough: Gordon Wakefield 01733 577629South East London & Kent: Chris Howell 01689 821413Staffordshire: Eddie Coxon 01782 416143Warrington: Dennis Atkinson 01925 824856Wirral: Barrie Harding 0151 608 6212Wrexham: Alan Ellis 01978 352862

ContactsBedford: contact BCPA Head Office 01949 837070Belfast: John Hamill 028 9081 3649Cannock Area: Brian Nicholls 01922 412753Chester: contact BCPA Head Office 01949 837070Cornwall: John Genower 01209 215220East Suffolk: contact BCPA Head Office 01949 837070Hull & East Riding: Stephen Hackett 01482 561710Huntingdon: Mike Simpson 07840 755513Llandudno: Joan Owen 01492 876926North Staffordshire Implantable Cardioverter Defibrillator ICD Group: James Lyons 01782 852509Oxfordshire: Chris Gould 01491 872454Swindon: Jim Harris 01793 534130Worthing and the Martlets: George Beer 01903 824373West Suffolk & South West Norfolk: contact BCPA Head Office 01949 837070

Affiliated GroupsChelmsford & District Cardiac Support: Malcolm Gibson 01621 893064Chester Heart Support: Peter Diamond 01244 851441Croydon Heart Support: Ken Morcombe 020 8657 2511King of Hearts, Redbridge, Essex: Tony Roth 020 8252 0877Southend Take Heart: George Turner 01702 421522Wolverhampton Coronary Aftercare Support: Ken Timmis 01902 755695

Cover photo: LLanberis Denorwig Slate Quarry Museum taken by Janet Jackson

DonationsMemorial donation of £242 in memory of Philip Wood of Penkridge acknowledging the wonderful work of the Association on behalf of cardiac patients.

2 Co-Ordinators, Contacts and Affiliated Groups3 From Me to You - Keith Jackson4 Chairman’s Report 2015-166 Ricky’s Quickies - Dr Richard Maddison7 Recipes7 Try something new- Corey Beecher9 Coenzyme Q10 Groundbreaking new research10 News from around the areas14 Dates for your diaries15 Membership - How to join

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From me to youKeith Jackson, National Chairman

BCPA Weekend A full report and photographs from the 2016 BCPA Weekend appears further into the Journal. An excellent weekend was

enjoyed by all of those attending as all can see by turning to page 8.Trustees and Executive The 2016 AGM saw a number of changes to the Trustees of the Association. The complete list of Trustees and members of the Executive are as follows.Chairman: Keith JacksonVice-Chairman: Richard MaddisonTreasurer: Derek HolleyTrustees and members of the Executive:Andy SteelBetty RogersEddie CoxonMargaret RimmerMary LythSally-Ann DouglassTony Ward

BCPA Weekend 2017This is to take place during the weekend of the 12th -14th May 2017 at the Woodland Grange Hotel Leamington Spa Warwickshire. May we invite you to book the date now with further details to appear in the Journal from December onward.Grand Draw 2016It is only once a year that the whole Association joins together in a fund raising activity. Fund raising within the Association is an expression of thanks by patients, carers and others for the help and support they have received both medically and from the Association. It is the one opportunity for all members and friends to play a collective role. Enclosed with this Journal are ten Grand Draw £1.00 tickets (two books of five)The proceeds from the draw are for our Norma Jackson General Hospital Fund from which grants are made towards the purchase of hospital equipment. During the past year we have been able to provide a wide range of equipment and patient amenities to cardiac centres around the country. This is your opportunity to share in this very worthwhile activity. We are only able to present items for the benefit of other cardiac patients with the support you give to the Grand Draw.2015-16 has been an exceptional year with the fund making grants of £12,500 toward items used in the support of cardiac patients. This represents three years of the funds income.

It is only with your support that this valuable contribution in support of other patients can continue.We are all aware how much more difficult it is becoming to sell raffle tickets and how many organisations are competing for donations in this way. However, do please make every possible effort to support the work of the Association and heart patients countrywide by this one annual event. Please return your counterfoils and monies direct to me. My address is on the return slips.MembershipA big thank you to all of you who have made your annual membership renewal, we do very much value your support. This issue of the Journal does not go to those annual members who have either overlooked the need to renew or chosen not to continue in membership. To assist any of those known to you may I invite you to ask if they have received this August issue. If not then a gentle reminder may be of help to both that person and the Association.An Invitation.The BCPA Journal is your Journal. It is the main means of communication with Association members and as Journal Editor, I do my utmost to keep members informed on cardiac care issues. In addition items of more general information are published as they become availableIn addition it is always pleasing to receive items for inclusion into the Journal from members and others who may be reading this copy. If anyone has items which they would like to see included or ideas and suggestions for future material may I provide an invitation to you all to contact me. Either send me items, or ring me to discuss future possibilities. I would love to hear from you, my number is 01949 837070.Awareness of Area Group EventsAs we move into the summer season Area Groups up and down the country have a number of activities planned – including attendance at village fetes, disability awareness days and other events.May I urge you all, member and readers of the journal alike, that if you are near to an event please go along and have a look. Perhaps take the opportunity to make yourself known and join in with the occasion. You will be assured of a warm welcome.BCPA Weekend and Annual General Meeting 2016Members and friends of the Association gathered at the Eastwood Hall Hotel, Eastwood, Nottingham on the weekend of the 13-15th May to renew friendships and to attend the Annual General Meeting. Alongside the time spent meeting up, renewing friendships and chatting time was available to visit attractions in and around Nottinghamshire and Derbyshire.

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Prior to the AGM everyone listened to a most interesting talk given by Rasmus Hendriksen from Pharma Nord UK. His talk centered around the use of Coenzyme Q10 as a dietary supplement. (please see the article in the October 2015 journal). Many questions were answered by Rasmus from those interested in trying the product, those already making use and others that were considering doing so. Please see further item on page 9.At the AGM members received the Chairman’s Report, presentation of the Accounts, notice of appointment of new Association Treasurer, confirmation of the re-election of Keith Jackson as Association Chairman and two new trustees Mrs Betty Rogers and Mrs Margaret Rimmer. Saturday evening all members enjoyed the Annual Gala dinner after which Eddie Coxon and Keith Jackson provided the evenings entertainment. Thus bringing to the end another full weekend for the Association. Anyone wishing to see a copy of the Annual Accounts is invited to apply for a copy. The Chairman’s Annual Report was given as followsChairman’s Report 2015-16One cannot deny that 2015/16 has been a challenging year for the Association. Challenging both to the Association generally and to myself in aiming to continue to head up the Association. It started off by Janet, on arriving at the Dunchurch Park Hotel, making it quite clear to me that, on this occasion she had not seen the hotel, and had she done so it would not have been the venue for the 2015 AGM. This was largely due to the hotel being split into two parts. Accommodation and meeting rooms in two separate buildings. Never the less she then got on and looked after everyone as only Janet could.Janet’s tragic passing in July has had a huge impact on both myself and the Association. I failed to fully appreciate how bigger part she played. Her love and care for individuals showed itself in so may ways. I have said so many times in recent months she was much more of a people person than I will ever be. Attendees at these weekends and at Area Groups know how true that is. Also always on hand to look after the phone and so may other things when I was away from home and in doing so many other things for the Association.I know how much I could not find the motivation and did not want to carry on in giving so much time and commitment to the Association. Things were neglected and allowed to slide.Totally differently, the issue over the past few months has been to the loss of the internet. We do not know how many internet enquiries or web site searches we have lost. Let me explain as it is a lesson being learnt not only by the BCPA but also by other organisations.When, in the early days of the BCPA and the BCPA .co. uk web address was set up, I and other Trustees of the Association were not aware that it had been registered in the name of, and was owned by, an individual. (The son of an Area Group Co-ordinator). When, some two years ago, we become aware of this we set about trying to correct it and get the ownership transferred into the name of the Association.

Regrettably that person had emigrated and we were unable to establish contact. No contact, or contract, and the service provider discontinued the service. The first we knew of the service going down was a call saying “We cannot get access to the web.” We are doing all that we can to correct this and I will ask Andy to explain more to you in the open meeting.With the temporary loss of the internet and website, in recent months the journal has been the only mass outreach. I am extremely grateful to Debbie and Chris at Core for the support they have been giving me in ensuring this and putting the Journal together. Please remember that it is your Journal and that your contributions are both valuable and essential. Fewer area groups requiring space in the Journal gives more opportunity to those groups that remain active.Articles and information from other members and supporters is equally important.The good news is that we have a slightly higher membership than at this time last year. Particularly due to the increase in membership within the more active area groups. Also the retention rate amongst annual members showed an increase last year. I really do hope that we see a similar situation over then next few months. August is the crucial month in this so we have a little time to wait.This time last year we were saying welcome to Beryl Williams as the new Association Treasurer and thanking Derek Holley for his twenty years in that position. Regrettably, and so soon, that has to change again. I will say more about that when we come to that item on the agenda.As you are aware the Association operates two sums of money in designated and restricted funds The Papworth hospital Fund and the Norma Jackson General Hospital Fund The Papworth Hospital account currently has a value of £4,483Association membership has always predominantly Papworth recognising that the BCPA started within Papworth Hospital. One has to say that in recent times, since most of the hospital visiting is no longer undertaken by BCPA the percentage of new memberships coming from Papworth is decreasing. Your trustees this morning agreed on an approach to be made to our members with a Papworth connection inviting them to contribute toward a gift commemorating the hospitals re-location. The relocation has been forty years under discussion and will now come t fruition in the spring of 2018.Funding for the Norman Jackson Fund comes from the Annual Grand Draw, the tickets that go out with the August journal. For some years the balances on this fund have been growing with little call being made for items of hospital equipment to be purchased. This is not what one wishes to see. The funds are there to be used to benefit patients rather than sitting in the bank. This year things have changed and I am pleased to report that calls on the fund have increased. In this financial year we have made grants to the sum of £12,429. This still leaves a balance in the fund of £34,210 It is good to see the monies being channelled into patient benefit.Last year I talked about six benefits to be gained from the Association; members and non members alike. I do not intend to go back over the six (you can read them in the

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minutes of last year’s meeting), however they do remain just as valid. Looking at the six yes it is regrettable about the current loss of the website. Conversely the upturn has been the increased purchases of equipment.The helpline continues to provide a valuable service with an increased level of activity. So often individuals are calling not with some highly technical request for information in helping to understand their condition or what a consultant has said to them (unless it is a plea for someone to talk to them in language they can understand) but just to benefit from being able to talk through their situation away from the medical profession.Often simply to have a listening ear is all that is being sought. The most common ending being “Thank you for listening. I feel so much better for having been able to talk to someone.” Does that not make all that we do so worthwhile.Thank you for all that you do both in your local areas and as trustees. Thank you particularly for the support you have given to me during this difficult period.

BCPA website www.BCPA.euOwing to circumstances beyond the control of the BCPA the Association is no longer able to access BCPA.co.uk This goes back to the way in which the website was originally created. This situation is most unfortunate as the co.uk reference is known far and wide by individuals, hospitals, libraries, etc. If you are a member that has been trying to make contact via BCPA.co.uk then please accept our apologies.www.BCPA.eu has now been registered to the Association and is up and running. Please use the www.bcpa.eu to access the website and admin@bcpa.eu for emails.Not all members have access to the web, an increasing number now do. If you are one of that growing number and have not yet looked what is contained on our website may I urge you to do so.Amongst a growing range of information you will find the following:

• A membership application/renewal form should you wish to use it

• Past copies of the Journal• Newsletters from some of the BCPSA Area

Groups• Travel and other insurances• General health information• Information fact sheets on a range of heart

issues and an extensive Glossary.Our website continues to attract attention. Why not become one of that growing number of people using this source.

Beryl Williams - Association Treasurer.

The Association is saddened to report the passing on the 17th May of Beryl Williams.Beryl had only been Association Treasurer for one year, a position she had been delighted to take up following her retirement. A delightful lady, Beryl is a real loss to the Association. Our condolences were expressed to John and his family and our thoughts continue to be with them.

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Ricky’s QuickiesDr Richard Maddison

Blood-Pressure and Cholesterol Lowering in People without Cardiovascular Disease

Previous trials have shown that the use of statins to lower cholesterol reduces the risk of cardiovascular events among people without cardiovascular disease. Those trials involved persons with elevated lipid levels or inflammatory markers and involved mainly white people. It is unclear whether the benefits of statins can be extended to an intermediate-risk, ethnically diverse population without cardiovascular disease.1

Elevated blood pressure and elevated low-density lipoprotein (LDL) cholesterol increase the risk of cardiovascular disease. Lowering both should reduce the risk of cardiovascular events substantially.2

TrialIn the 2-by-2 factorial trial, the researchers randomly assigned 12,705 participants in 21 countries who did not have cardiovascular disease and were at intermediate risk to receive rosuvastatin at a dose of 10 mg per day or placebo. The first coprimary outcome was the composite of death from cardiovascular causes, nonfatal myocardial infarction, or nonfatal stroke, and the second coprimary outcome additionally included revascularization, heart failure, and resuscitated cardiac arrest. The median follow-up was 5.6 years.1

ResultsThe overall mean low-density lipoprotein cholesterol level was 26.5% lower in the rosuvastatin group than in the placebo group.1

The first coprimary outcome occurred in 235 participants (3.7%) in the rosuvastatin group and in 304 participants (4.8%) in the placebo group, with probability P=<0.002.1

The results for the second coprimary outcome were consistent with the results for the first (occurring in 277 participants (4.4%) in the rosuvastatin group and in 363 participants (5.7%) in the placebo group, P<0.001.1

The results were also consistent in subgroups defined according to cardiovascular risk at baseline, lipid level, C-reactive protein level, blood pressure, and race or ethnic group. In the rosuvastatin group, there was no excess of diabetes or cancers, but there was an excess of cataract surgery (in 3.8% of the participants, v. 3.1% in the placebo group; P=0.02) and muscle symptoms (in 5.8% of the participants, v. 4.7% in the placebo group; P=0.005).1

[I have not given the detailed results2 for the second conclusion below, which is based on the same trial.]

ConclusionTreatment with rosuvastatin at a dose of 10 mg per day resulted in a significantly lower risk of cardiovascular events than placebo in an intermediate-risk, ethnically diverse population without cardiovascular disease.1

The combination of rosuvastatin (10 mg per day), candesartan (16 mg per day), and hydrochlorothiazide (12.5 mg per day) was associated with a significantly lower rate of cardiovascular events than dual placebo among persons at intermediate risk who did not have cardiovascular disease.2

Source1 N Engl J Med 2016; 374:2021-2031 May 26, 2016 DOI: 10.1056/NEJMoa1600176

2 N Engl J Med 2016; 374:2032-2043 May 26, 2016 DOI: 10.1056/NEJMoa1600177

CABG v. PCIIn patients with coronary artery disease, what coexisting conditions are associated with a benefit of coronary-artery bypass grafting (CABG) over percutaneous coronary intervention (PCI)?

Appropriate selection of patients for CABG is critical to ensure good outcomes. The evaluation of patients for CABG relies on a systematic assessment of the characteristics and coronary anatomy known to be associated with a survival benefit from CABG as compared with medical therapy or PCI.3

There is increasing evidence that treatment decisions for patients with complex coronary artery disease are best made through a process of shared decision-making that includes the patient, the patient’s family, an interventional cardiologist, a cardiac surgeon, and ideally, the patient’s general cardiologist or primary care physician.3

Risk factorsStroke remains the most serious complication of CABG,

occurring in 1 to 2% of patients in the perioperative period. Notable risk factors for stroke include a history of neurologic events, advanced age, peripheral or cerebrovascular disease, and diabetes.3

Aortic atherosclerosis is also a major risk factor for stroke after CABG because of the necessary manipulation or clamping of the ascending thoracic aorta. The use of a single aortic cross-clamp and epiaortic ultrasonography [an echo scan of the aorta] during CABG have been associated with a reduction in the risk of stroke over the past decade.3

Patients with multi-vessel coronary artery disease and diabetes have an increased cardiovascular risk as compared with those without diabetes, and they have a survival benefit from CABG as compared with PCI. Patients with left ventricular dysfunction or mitral-valve disease also have an increased cardiovascular risk and have a survival benefit from CABG.3

Recent findingsRecent trials and observational studies have updated previous

work by including higher-risk patients and reflecting changes in practice.3

The most important was the SYNTAX study, which randomly assigned 1800 patients with either three-vessel or left main coronary artery disease to CABG or PCI. Evaluation of each participant included determination of the SYNTAX score (a measure of the extent and complexity of coronary artery disease) and the anticipated complexity of PCI. SYNTAX scores are used to classify the complexity of coronary artery disease as low (≤22), intermediate (23 to 32), or high (≥33).3

Overall, patients with three-vessel disease in the SYNTAX trial had better survival with CABG than with PCI, P=0/006. 3

In patients with the least complex three-vessel disease (SYNTAX score ≤22), PCI was not inferior to CABG. 3

In patients with more complex disease (SYNTAX score ≥23), CABG was superior to PCI. Further details are given in 3.

The evidence in favour of CABG is almost entirely based on studies of patients with stable ischemic heart disease. Nevertheless, the recommendations for CABG are commonly extended to include patients with acute coronary syndromes, including unstable angina and stable non-ST-segment elevation myocardial infarction.3

Source3 NEJM Resident e-Bulletin 19 May 2016 online

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The following BCPA Journal recipes are reproduced from earlier issues in memory of the late Janet Jackson Is it good or bad to try

something new? There is not a correct or incorrect answer to this, only opinion?For many years I was reluctant to try something new as I would be concerned about the outcomes and how they would affect me. This applied even to my exercise. I would think of new exercise regimes I would like to try and before long convince myself that these other forms were for others and not for me. What I was doing was good enough. Out of the future stepped a challenge for me. In order to complete this challenge I had more than one hurdle to overcome. It was a physical challenge for me, kayaking along the Thames. After agreeing to participate in this challenge I needed training. It would be a journey which was to take me in many different directions. Firstly there was the usual fears of how to stay upright and balanced. Once these were over, things eased a lot. When the training had been completed and the day of the event arrived, I was full of different fears? Fears of letting people down? Fears of not making it through? All were nonsense, as the team I had around me were skilled in all the right areas. Nothing could stop us. Success was ours and we did exactly what we set out to achieve.Where though does this bring us to in relation to Cardiac Recovery and ongoing exercise? Trying something new may bring up unwanted fears, anxiety and worry. However, once these have been hit head on the results can be totally transforming and not always with the reasons you may think of.Mentally I learnt a lot from this physical experience. My tendency is to overthink things. Thinking deeper about what may happen? What could stop me? Where I could be undone? See my life unfolding in front of me?None of this was to become true? They were only thoughts. That’s how I saw them on the day, just as thoughts? Not truths or facts, thoughts.Once down to the event allowing me to be relaxed and go with the flow was the safest option. It freed me up to begin to enjoy the activity.Trying something for you, some new way of exercising. It may be a more relaxing type of activity. Yoga, Pilates, Mindfulness all growing in popularity. It may be weight training, working in the gym. Add this to the regular routine you have for walking, or your normal exercise. Take the time to react to the changes that may be taking place for you and compare if you feel better. Knowing yourself is the key issue as you can move forwards from where you start.Embrace the change and search for something new, begin it and let us know how the changes worked out for you?

Try something new - Corey Beecher

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BCPA Weekend and Annual General Meeting 2016

Eastwood Hall Hotel Nottingham

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Ground-breaking new research for cardiology patients -

A natural supplement helps heart failure patients survive

Patients with chronic heart failure are 43% less likely to die of their disease if they take a daily supplement of coenzyme Q10, according to the recent clinical study, Q-Symbio. Improved survival rates, better cardiac function and reduced hospital admissions are some of the benefits of treating chronic heart failure patients with the natural compound coenzyme Q10 (Q10). In the recent Q-SYMBIO clinical study, 420 patients with chronic heart failure received either a placebo or 3 x 100mg Bio-Quinone Active Q10 capsules per day for two years. The results, which were published in the esteemed Journal of the American College of Cardiology, show supplementation with Bio-Quinone Q10, as well as the standard regime of heart drugs, reduced all-cause mortality by 43% and led to a similar reduction of major adverse cardiac events (MACE). Q10 and heart healthCoenzyme Q10 (Q10) is an essential coenzyme that ignites the energy of all cells in the body, it is a vitamin-like substance that many of us aren’t aware of and yet it is responsible for 95% of our daily energy output! Q10 is required by the body for the normal functioning of all tissues and those with the highest energy requirements (heart and muscles) are particularly reliant on an adequate supply, it is also important as a cell membrane protecting antioxidant. Again this is of particular importance in heart tissue, where cardiac cells are exposed to high levels of potentially damaging free radicals. The heart is especially reliant on maintaining adequate tissue levels of Q10 for normal functioning, and patients with heart disorders such as heart failure invariably have depleted levels of Q10.

Why is Q10 supplementation important? Although some Q10 is obtained from a normal diet, most is synthesised within the body. As people age, the capacity of the body to produce Q10 decreases after the age of 25.

The Gold standard for researchAs well as the Q-Symbio study Bio-Quinone Active Q10 has been the subject of 90 clinical studies including the innovative KISEL-10 trial, relating to the treatment and prevention of cardiovascular disease. In the KISEL-10 study, 440 individuals aged 70-88 years, received either a placebo or 200mg of Bio-Quinone Active Q10 and 200mcg of Pharma Nord’s SelenoPrecise daily for five years. Supplementation with this specific Q10 and selenium improved heart health and reduced the risk of cardiac related mortality by more than 50%. In addition NT-proBNP, a marker for heart trouble, increased in the placebo group by over 20% in 48months but remained unchanged in the treatment group.

Supporting research suggests that between the ages of 20-80 years old Q10 levels within the heart drop by 60%. Natural levels of Q10 are also depleted by intense exercise, illness and certain types of prescription medicines such as statins, as a result many people choose to use a Q10 supplement. Reasons to supplement with Q10 include:1. Q10 is an essential part of cell and organ function

therefore it controls the ageing process, the performance of the heart muscle, fertility, skin integrity, healing processes and more.

2. Unlike the temporary “kick” you get from caffeine or sugar, Q10 gives your body’s own energy production a lift at a cellular level.

3. Energy production is important to maintain a healthy blood pressure, an effective immune system and a well-functioning heart, as well as supporting muscle strength as we age.

4. The heart is the hardest working muscle in your body and therefore requires the most energy. A drop in Q10 levels impairs heart power, but a supplement can help to reverse the process.

5. Q10 is a scientifically documented treatment in: chronic heart failure, hypertension, chronic fatigue syndrome, mitochondrial disorders and preventing the side effects of cholesterol-lowering statins.

The importance of Q10 qualityFor the impact of Q10 to be felt, the quality of the supplement is fundamental and not all supplements are the same. Recently, there has been a lot of confusion with poor quality Q10 supplements being sold so it is important to chose a supplement with science to support it.It is also critical when taking a Q10 supplement to ensure it has clinical trials showing that it is safe to use when taken in conjunction with other heart medications, which is proven for the Bio-Quinone formulation in the KIESL-10 and Q-Symbio trials.CoQ10 bioavailability is paramount: to be effective for heart function, the supplement must be effectively absorbed. The formulation of the raw Q10 material is highly important to ensure bioavailability. The molecules are assembled in large orange crystals which cannot be absorbed by the intestine in this form and do not dissolve in water and only slightly in oil. Bio-Quinone Active Q10 is produced using a patented process to completely disperse CoQ10 crystals in a carrier oil. This is one of the primary reasons for the superior bioavailability of Bio-Quinone Active Q10 Gold and why it is the official reference product of the International Coenzyme Q10 Association.

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News from around the areasLocal news from some of our Groups

Dates for your diary are on page 14 and the list of co-ordinators and contacts is on page 2

Cambridge - Tony Ward 01223 860329Email: tandcw@btinternet.com

“I had open heart surgery in 1955”Joan Freeman, from Pwllheli in Wales was born with a hole in her heart and finds that Q10 helps to relieve tiredness and breathlessness.“I was just the second person to have open heart surgery in 1955. I was told to live a normal but somewhat quieter life and not to have children. Now I am 70 and have three children (including twins!) and 8 grandchildren! In 1985 I found out that I had another hole in my heart and my aortic valve was leaking. Once again I underwent surgery. However there were lots of difficulties and I was really quite ill throughout 1985. In 1986 I was re-admitted for my third heart operation. I still continued to live an active life until 2009 when I began to experience breathlessness and became really tired. A consultant conference revealed that I was too complicated and there was not one surgeon willing to even consider further surgery. “On my way home from hospital I went to visit some friends. They called Pharma Nord who recommended coenzyme Q10. I took the box to show the heart specialist and he simply said ‘go for it if you think it will help!’ At the point of taking these capsules I found walking very tiring and I became breathless very easily. Everything was an effort.

Special offer for BCPA members*20% off Bio-Quinone Q10 Active Q10 GoldVisit www.multivits.co.uk and add Bio-Quinone Q10 Active Gold to your basket and enter code: BCPA20 at the checkout or call us on 01670 534 900 and quote the above code Pharma Nord’s Bio-Quinone Q10 is the official reference product (gold standard) of international coenzyme Q10 research and has been used in more than 90 clinical studies. Pharma Nord’s Q10 supplements are oil-based and formulated so they can be best absorbed by your body. 99% of consumers would recommend it**. For more information visit www.q10.co.uk*Ts and C’s apply: noT in ConjunCTion wiTh any oTher offer. **Taken from a Consumer survey wiTh 4041 parTiCipanTs, ConduCTed deCember 2015

Joan Freeman

At the time of writing I have reflected on where the time has gone, what has happened and what is to come. My thoughts were that the weather has been unseasonal

and then that it has not been an altogether good year for me, Doug and Barbara Mottram with numerous visits to Doctors surgeries and hospitals. My apologies for the inactivity. So here goes let’s try to report on some of the happenings.The National AGM weekend was held in the hotel at Eastwood where we were met with the news that Mrs Beryl Williams, who only about a year ago was appointed Treasurer, was taken seriously ill. We learnt since that she has passed away. Derek Holly has once more stepped into the breach.Keith Jackson has been returned for another three years as the National BCPA Chairman.Another sad loss has been Mrs. Jean Garner, one time Mayoress of Cambridge and wife of Maurice Garner past

I have been taking Q10 since March 2009. In just a week, I could feel that Q10 was already turning my life around. “Pharma Nord’s Q10 has been like a miracle working supplement for me. I am convinced Q10 should be on prescription and have told my doctor so! Why should people who live in permanent heart failure feel they are under a constant cloud of breathlessness and as if everything was too much like hard work when there is Q10?”

Cambridge group Coordinator. Our condolences go out to all these partners and families.We understand that some inconveniences may have been caused because of temporary loss of BCPA Internet and website. This because the service provider discontinued service, in the past it had been registered by an individual who it had not been able to contact.Nearer to home we are still having problems with finding a suitable room to hire at regular times, but Doug Mottram has been arranging an outing to see the popular Cromer End of Pier Show. This took place in early August.Another successful event that proved to be so successful last year will be held on the 4th September from 12.30 p.m. onwards. Doug and Barbara Mottram have again kindly agreed to it being held in their garden. Details and further information will be forthcoming and also a programme.In the meantime enjoy your holidays and may the sun shine on you all.Best regardsTony Ward

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Halton - Betty Rogers07710 485727

Some members from Halton Group attended the national AGM in May. They had an enjoyable weekend. The hotel,

the Eastwood Hall, was lovely and it was good to meet old friends from other area groups. On Saturday morning we had a trip to Denby Pottery, one of the staff at the hotel had told us “you won’t come away from there without buying something” and she was quite right! On Saturday evening we enjoyed a gala dinner and entertainment provided by Eddie, Maureen and Keith. Before we left we decided to have a brief visit to Sherwood Forest which we also enjoyed. We would like to thank Keith and everyone involved in organising the weekend.

Some of Elaine Orr’s friends released a balloon in her memory during a day trip to Llandudno. Elaine loved visiting Llandudno and I am sure she would have appreciated this gesture.Joan Gough delivered a presentation in early May. Her

last presentation was about the history of Runcorn and, as requested, she based this one on the Transporter Bridge which opened in 1905 and

closed in 1961 with the opening of the Runcorn/Widnes Bridge (later renamed the Silver Jubilee Bridge). She showed us some interesting photos and told us lots of facts about the Transporter Bridge. Many of the members had interesting stories of their own to tell about this landmark. We would like to thank Joan for such an interesting afternoon.We had a quiz in early June. Everyone said they enjoyed it and it made a nice change for us all to sit together. Gary Rimmer compiled the quiz so we would like to thank him for that. Some members had suggested that we hold a bring and buy sale. We have decided to hold one every other month and the money raised will go to a charity. The bring and buy sale in June raised £74 which will be donated to a charity nominated by Margaret Hughes. The charity is the Candice Colley Foundation which supports patients suffering from Leukaemia. Margaret’s daughter, Cheryl, and her sister, Carol, made some lovely items which were also sold. Members can suggest charities for the proceeds to go to from future sales, please let Betty know if you would like to suggest a charity. Thank you to everyone for bringing items in and, as usual, showing your support.In the next journal I will be able to tell you about our day out in Llandudno, we will be having lunch at The Imperial Hotel as usual and then we will have some free time to look around. We are also looking forward to our day out with the Staffordshire Group in July and I will be able to tell you about that in the next journal too.

We meet every Thursday at Grangeway Community Centre from 1pm to 3pm for various activities such as line dancing and gentle exercise (or just come along for a chat). Please ring Betty on the above number for more details.DATES FOR YOUR DIARYEvery Thur 1-3pm Grangeway Community Centre, Runcorn for various activities

Betty, Connie, Peggy and Margaret release a balloon in memory of Elaine

Joan's presentation about The Transporter

Lincoln - Bill LawtonChairman & acting Co-ordinator 01522 703026

We are pleased to report on our regular meetings held at the Methodist Chapel, North Hykeham.

On Tuesday 17th May 2016 we were pleased to welcome a return visit of the entertainers ‘The Two of Us’ featuring Brian and Sheila Woodhouse. The members had a most enjoyable afternoon of laughter, songs and ballads from the 50’s – it certainly brought back memories of a golden age of the Beatles, Carpenters and many more. A session of the well known quiz game “Mr & Mrs” rounded off the party. In thanking the duo of Brian and Sheila the Chairman congratulated them on the large amount of money they have raised with their concerts for ‘BLESMA’ and ‘Help the Heroes’- members gave £64.00 towards their good work.On Tuesday 14th June 2016 we were delighted to welcome a presentation by Karen Crow, City of Lincoln Town Crier. A most entertaining speaker with her experience in the official office she holds, working in unison with the long history of pageantry that Lincoln has always enjoyed. The committee had been trying to get Karen along for some time and were pleased that at last she was able to fit the group into her very busy schedule.Tuesday 12th July 2016 we were entertained to a Special Presentation by Jezz. A well known local artist featuring Rock, Pop, Swing and Ballads – music from the 50’s onwards. We enjoyed a great afternoon of music. This meeting was to celebrate the 10th Anniversary of the formation of the Lincoln BCPA Group.Future MeetingsFor meetings between now and December please contact Bill Lawton (01522 703026) for detailsWednesday 14th December 2016 Tradtional Christmas Dinner in the Neilsen Suite at The Olde Bell, Markham Moor, Retford, Notts 10 years – A Time to RememberWe can look back with satisfaction and pleasure at the progress of the British Cardiac Patients Association (Lincoln) Group. From humble beginnings came a flourishing social friendship to support victims of myocardial infarctions (heart attack) and all the drama that one gets that influences family life beyond that which one could imagine.

Brian and Sheila Woodhouse

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BCPA Journal Issue 209

South East London & Kent - Chris Howell 01689 821413

Brian Bigger and Keith Atherton were fortunately available and put the show on the road, both experienced committee men and well able to understand the problems associated with cardiovascular surgery. A number of members were elected to the committee, With Keith as Coordinator and Brian as Secretary meetings were held monthly at the Ruston Bucyrus Social Club on Newark Road, Lincoln. Our first trip was to Cusworth Hall, Doncaster followed by a boat trip on the River Don to Coninsborough with afternoon tea – the boat was not very comfortable – not enough to eat, enjoyable scenery but not really our first taste of what it takes to make a success with future trips in view.Unfortunately Brian Bigger became ill and in spite of a brave attempt to carry on called upon Bill Lawton to what was a temporary acting coordinator – it turned out to be an open ended term of office that continues today.Other the years the group have taken trips to the Cotswolds, Northumberland Hadrians Wall, Snowdonia, Yorkshire Moors and South, Lake district, Derbyshire Dales (Pennine Way), and South Wales Brecon Beacons to name a few. Theatre trips have proved very popular and have always been fully booked.In the early days five mile walks on the first Sunday in the month and swimming at Wragby and later at the Leisure Centre at the Bentley Hotel, Lincoln proved very popular. These were, and continue to be, subsidised by various organisations so that all the members had access to our rehabilitation programme. As the committee members get older they have to make allowances for members like themselves in planning the programme., The Christmas Dinner these past years

has been held at The Olde Bell, Markham Moor, Retford. A five star hotel – they have done the group proud. As for day trips the group can ride, have an excellent lunch and enjoy the countryside at its best amidst a

friendly group of peopleWhat more could one want?...the answer is many more years!!

For Your InformationSwimming at WragbyThe swimming programme is sponsored by “02” and costs £1.00 per person. Facilities include the water at a constant 30°c, fully trained lifeguard, hoist to assist swimmers in and out of the water, defibrillator plus first aid kit. Please check with your GP to ensure that you are able to participate safely. If any members wish to join in with swimming please contact Jean Parker (01522) 525705 who will make you very welcome and provide the latest opening times. Concession members can partake in any senior sessions during the week.Monday 10:30am -11:30 am (Note revised timings)Wednesday 10.30am to 11.30am

Bentley Hotel Leisure Centre LincolnSponsored by Waitrose Ltd customer support, Lincoln Co-operative Ltd and Royal Air Force Cranwell - negotiated by the committee for Health and Fitness programme. The facilities are excellent. Members using the Leisure Centre are requested to pay £40.00 per quarter. Facilities are available 7 am to 5 pm Monday to Friday.Two fully trained and medically qualified lifeguards are on duty at all times – defibrillator now in place. Please do not begin a programme unless you have your doctor’s permission.New members – Allow 2 months before requesting to join. Only limited numbers - if it is over subscribed names will be put on a waiting list.To register please contact Eileen Newman (01522) 694165Members support for this facility is vital if we are to continue financing it with the help from our sponsors.

Bentley Hotel Lincoln

Peterborough - Gordon Wakefield 01733 577629

Our third Thursday in the month lunches continue and we would be delighted for you to join us at the Cherry Tree.For further details please give me, Gordon, a call on the above number. We will guarantee you a warm welcome and a good meal.

After one of the warmest weekends we have had this year, members visited Highgate Cemetery on Monday 9th May.

The Cemetery is divided into two parts East and West, entry to the West side is by guided tour. The East side you pay an entrance fee of £4.00 per person, pick up your map and wonder to your hearts content.The four of us our met at Charing Cross Station, London, took the Northern Line to Archway, and pick up the bus for two stops only (but it is up hill) to Waterlow Park stop. We walked through the lovely Waterlow Park, unfortunately the Café we had planned to visit for coffee and lunch was closed due to a power failure. Waterlow Park is well kept, plenty of places to sit and watch the world go by. Highgate Cemetery was opened in 1839, the East side was opened in 1860 and run by a private company. In the 1970’s it was no longer profitable and decline set in, as in many cemeteries around the country, nature took over. The Friends of Highgate Cemetery Trust, took over to rescue the Cemetery and reopened it to the public. You can see the excellent work being carried out by the Trust. The map shows the paths around the Cemetery, also indicate names of grave of well known people buried there.

Continued from page 11

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We found the grave of Karl Marx and many others.Seeing that the Café in Waterlow Park was closed, lunch and drinks were needed. Just outside Waterlow Park we found The Old Crown, on Highgate Hill. We were warmly welcomed by the owner, who served the drinks and prepared our food. We walked down the hill to Archway station and made our way home – arriving just in time

for the heavy rain promised.After the problems with the booking at the Toby Carvery (when they did not have the bookings for us), we visited again on 17th May. There was no ice cream available as they were having a new machine installed the following day. This could have been the reason for a near empty Carvery than ever before, but we enjoyed the hot food and drinks.At the meal, Shirley Brooks handed over the U3A Bridge Club collection container, the sum donated was £152.00. Once again our thanks to Shirley, Paul, Ray, Stella and Vera.On 6th June another warm sunny day, members visited Kenwood House, Hampstead Heath, London. The six of us met at London Charing Cross and look the tube of Archway Station and bus up the hill to the House. The house is run by English Heritage, entrance free, dogs allowed in the grounds.Kenwood House was probably first built in the early 17th Century. It was transformed between 1764 and 1779 by Robert Adam into a neoclassical villa for William Murray, 1st Earl of Mansfield. Kenwood House is now home to the 1st Earl of Iveagh’s collection of Old Master and British paintings.

There is a lovely park area and lake, used by the locals and schools.We caught a bus back down the hill to the Old Crown on Highgate Hill (yes we ate their last time) we were again warmly welcomed and the food was excellent. We caught the bus down the hill to Archway Station and made our way home.We will be meeting at the Toby Carvery, Bromley Common on 8th November table is booked for 7.30pm.

Kenwood House

Grave of Karl Marx

Please let me know if you will not be attending.The next meeting at the Victory Social Club is Quiz Night on 21st October.Foot Note from Ray Howell to Jason Walker (pages 8/9 June Issue 208)I thoroughly enjoyed your article and share your views towards authority. I asked some months ago in a previous article relating to how long people have had their artificial valve replacements. Although the response was not great I did manage to get a few names from people that have exceeded their valves life expectancy. Two have exceeded 40 years with others at 33 years, 32 years, 29 years, 24 years and 22 years. With myself 18 years.So its good news all round.

Staffordshire - Eddie Coxon 01782 416143

On Friday 13th May Eddie, Maureen, Malcolm and Mary went to Nottingham for the National AGM of the Association, which was held at Eastwood Hall Hotel. We had a lovely weekend meeting up with

old and new friends. There was a most interesting talk about Q10 with a question and answer session after the meeting. This was the second visit to Eastwood Hall Hotel having enjoyed our visit there two years ago.We are looking forward to the Halton Area Group coming down and visiting the Apendale Mining Museum and train. Those who wish to do so will have the opportunity to go “down the mine”.Back in January we presented an ECG machine to the SHINE unit at the Royal Stoke University hospital . This is the third machine of this type that we have supplied to the hospital since we became aware that many wards were sharing one. Hopefully by supplying these extra units

patients will benefit from quicker examination times.The picture shows members of staff from the Shine Unit, Dr Barker, Sue Anderson, Shirley Dunn, Nicky Cotton and Leslie Sprason, Eddie Coxon (Stafford coordinator) along with a local family..

On 28th June one of our new members, Barry Hulse, gave us an interesting talk about his career in the music industry. He worked for Philips records for 14 years and travelled up and down the country promoting records that were recently released and arranging personal appearances by the singers. During this time he met with many recording artists and told us some stories about how some became good friends, meeting with them when "off duty".He brought with him many items from his collection including photographs of him with famous singers and albums that were signed by the artists. We had a great evening and could have listened to him for much longer had time permitted.

Barry Hulse

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BCPA Journal Issue 209

Cambridge Sun 4 Sept Garden Party at the home of Barbara and Doug MottramContact Tony Ward 01223 860329 for further details and other meeting dates

Chelmsford and District CardiacSupport Group

Fri 19 AugFri 16 SeptFri 21 OctFri 18 Nov

The Gardens of the Italian LakesTripe and TrottersA year in the Wildlife on the Suffolk Heritage CoastThe Great Wall of ChinaAll 8:00pm at Broomfield Village Hall

Halton Thursdays

Tue 26 Aug

Every Thu 1:00 - 3:00pm at The Grangeway Community Centre, Runcorn, for line dancing and gentle T’ai ChiVisit to Staffs Area Group - Apedale mining Heritage Centre

Havering Hearties 2nd Thursdays 7:30pm At The Royal British Legion Club premises, Western Road, Romford, Essex

King of HeartsRedbridge, Essex

2nd Wednesdays 7:30pm

The Aldborough Room, Fulwell Cross Library, High Street, Barkingside IG 2EAFor details contact Tony Roth 020 8252 0877

Lincoln Wed 4 Dec Christmas dinner at the Olde Bell, Markham Moor For meetings before this please ring 01522 703026Monthly meetings at the methodist Chapel, North Hykeham

Peterborough 3rd Thu 12:00 for 12:30pm

Lunches on the 3rd Thursday of each month excluding December at the Cherry Tree Public House, Oundle Road for details contact Gordon to attend

SE London & Kent

Thurs 11 AugTue 16 AugMon 26 SeptFri 21 OctTue 8 NovFri 2 Dec

Visit to Fulham PalaceMeal at the Toby Carvery Bromley CommonVisit to Museum of FreemasonryQuiz NightMeal at the Toby Carvery Bromley CommonChristmas LunchMeetings at the Victory Social Club, Kechill Gardens, HayesMeals at the Toby Carvery Bromley Common are at 7:00 for 7:30pm

Staffs & District Tue 30 AugTue 27 SeptTue 25 OctTue 29 NovTue 6 DecTue 13 Dec

Pie and Pea Supper and Irish BingoAlan Eaton giving a talk on The Post Office / MailBeetle Drive with Jeff PorterVisit to Emma Bridgewater Factory, Litchfield Street Hanley 10:00amChristmas Lunch at The Grange HotelCarol Service

Meetings 7:30 for 8:00pm Thistleberry Hotel, Newcastle, StaffsTake HeartSouthend

2nd Thursdays 8:00pm At Eastwood Community Centre, Western Approaches, Leigh-On-Sea

Warrington Please contact Dennis Atkinson 01925 824856 for meeting detailsWirral Please contact Barrie harding 0151 6086212Wrexham 3rd Tuesdays 7:00pm At Association of Voluntary Organisations, AVOW, Egerton Street, Wrexham

Dates for your diaries

Warrington - Dennis Atkinson01925 824856

We have little to report but are pleased to be able to share this photo of a recent presentation of 10 DVD Players.Alison says they are invaluable in relieving boredom when patients begin to feel better but are still bedridden, and sends her sincere gratitude.

Barbara and Dennis Atkinson of the Warrington Group presenting the Coronary Care Ward manager Alison Williams with 10 DVD Players for patient use during their stay on the ward.

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Membership and aimsWhatever your interest it may be that becoming a member is something you have never considered.Are you reading this Journal as someone who is not a member of the Association? If so, we are pleased to count you as a valuable part of our readership.However, might you take a few moments to consider making use of the application form to join the Association. It may be that you are a heart patient, a relative or carer of someone with a heart condition, or indeed someone taking a general interest in the Association and the support we are able to offer. Whatever your interest it may be that becoming a member is something you have never considered. May we invite you to consider it now. We would be delighted to hear from you.We partly rely on donations to help us support cardiac patients and their families or carers. We aim to provide advice, information and support to help anyone who has had a heart condition, and aim to help reduce or prevent heart-related troubles.

Your generosity could help us to help others to live a fuller and healthier life.If you do not have a group near you and would be willing to help start one in your area, please contact our Head Office for an informal discussion.If you have any questions that we can help you with please write them on a separate sheet of paper and we will do our best to help you.

Address BCPA, 15 Abbey Road, Bingham, NottsNG13 8EE

Telephone 01949 837070Email admin@bcpa.euWebsite www.BCPA.euRegistered Charity

289190

Subscription enquiries telephone: 01949 837070

Membership £10 per annum

Joint Membership £15 per annum

Overseas subscriptions £10 per annum

New Member Renewal

Membership application or renewalPlease send this application to : BCPA, 15 Abbey Road, Bingham, Notts NG13 8EE

If you wish to make a donation, please add the amount to your membership, or send it with your name and address and a signed copy of the Gift Aid wording if appropriate to the Head Office address. Donations will be acknowledged.Amount of donation £ ..........If over £50, may we also put it in the BCPA Journal? Yes/NoIf you would like your donation to go to your local group, giveName of Group ........................................Please make cheques payable to : BCPA (The British Cardiac Patients Association)If you are paying income or capital gains tax at the standard rate or above, you should make the following declaration.

I want the BCPA to treat all donations I make in this tax year and all donations I make from the date of this declaration until I notify you otherwise as Gift Aid donations.I understand that I must pay an amount of UK income tax and/or capital gains tax at least equal to the tax the BCPA reclaims on my donations in each tax year.

Yes, Gift Aid No

1. You can cancel this declaration at any time by notifying the BCPA.

2. If your circumstances change and you no longer pay income or capital gains tax equal to the tax that the BCPA reclaims, you should cancel your declaration.

3. If you pay tax at the higher rate you can claim further tax relief in your self-assessment tax return.

4. If you are unsure if your donations qualify for Gift Aid tax relief, ask the BCPA or refer to help sheet IR65 on the HMRC website www.hmrc.gov.uk/charities

Signed ............................................................ ...................................

Mr/Mrs/Ms ................ Date of Birth ................................................

Forename(s) ......................................................................................

Surname ............................................................................................

Address .............................................................................................

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Telephone . .........................................................................................

Email . ................................................................................................

Joint member’s name . .......................................................................

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Date ........................................

Type(s) of treatment(s), date(s) & hospital(s) ...................................

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Is there anything you would like to help with or information about?

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BCPA Journal Issue 209BCPA Journal Issue 203

Thinking of getting away from it all this Summer?

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