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INTRODUCTION
This presentation is made up of three elements:
What was available to survivors before the Clubhouse
What the Clubhouse is/does How people’s lives are improved by
participating in the Clubhouse
Brain injury
Hospital
Rehabilitation Services
???
What Happened to My Life? The survivor has very structured, intensive
care, then services end. The survivor sometimes experiences this as an abrupt ending to their recovery.
There is often intensive support from family and friends, but the survivor can return to the role of child in the family, impeding moving on to next steps.
The survivor can lose important markers of identity – worker, friend, partner, parent.
Eventually, the role of “patient” also ends, leaving another hole in the survivor’s identity. Progress can slow, and the survivor can become isolated.
SupportiveServices for
TBI Survivors
RehabilitationHospitals
TBI Counciland
TBI Fund
PrivateRehabilitation
Services
WesternState
Hospital
BIAWA
TBISupportGroups
SocialServices
not geared forTBI Survivors
SeattleBrainWorks
ResourceManagement
Services
EmploymentServices
Not Gearedfor TBI
Survivors
TBIResource
Line
How Seattle BrainWorks Began
Advocacy addressing the gap in community-based services for TBI survivors
TBI Clubhouse pilot contract was awarded to PROVAIL in November, 2009
Seattle BrainWorks opened March 1, 2010.
THE CLUBHOUSE MODEL
Based on a model started in 1948 for people with psychiatric disabilities
Follows International Brain Injury Clubhouse Association (IBICA) Standards- Member-driven- Productivity focus- Breaking down tasks into manageable parts
Only 16 IBICA brain injury clubhouses in the world
SCHEDULE
9:00am – 3:00pm, Tuesday-Friday Each member commits to a
schedule to participate in the Clubhouse
Structured, day-long, work-related activities — the Clubhouse is a member-driven place of work
GOAL-SETTING WITH INDIVIDUALIZED SERVICE PLANS
Initial assessment Individualized Service Plan (ISP) that
can include family, friends, and service providers
Goal-setting around increasing productivity and work skills, home and community support, and socialization
Ongoing progress check-ins
KITCHEN UNIT
BUSINESS UNIT
LUNCH AND SOCIAL ACTIVITIES
ADVOCACY AND TUESDAY WEEKLY MEETING
Supporting SHB 1614 at the State Capitol in 2011Supporting SHB 1614 at the State Capitol in 2011 Tuesday Weekly MeetingTuesday Weekly Meeting
WHO MEMBERS ARE
Gender 70% male 30% female
o Age 18-24 – 10% 25-44 – 38%
45-64 – 49% 65+ – 3%
Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.
WHO MEMBERS ARE
Ethnicity 84% White5% Mixed or more than one identified2.6% Hispanic2.6% Asian2.6% Filipino
EducationGrade School – 2.5%High School Graduation or GED – 22.5%Some College – 5%Technical Training – 27.5%Associates Degree – 10%Bachelors Degree – 17.5%Masters Degree – 7.5%Doctorate or Professional Degree – 2.5%
Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members with 2 members not indicating their ethnicity or education.
TYPE OF BRAIN INJURY
Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.
PHYSICAL/COMMUNICATION CHALLENGES
Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.
THINKING/BEHAVIORAL CHALLENGES
Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.
PARTICIPATION
Demographic data collected by self/caregiver report upon member ’s entry to program and member satisfaction survey- sample size 26 members.
CHALLENGES
Funding Difficulty for TBI survivors to break
out of isolation and seek support Emotional dysregulation sometimes
makes for challenging group dynamics
Groups, bright lights, and noise can be overstimulating for survivors
THINKING AND SOCIALIZATION SKILLS
SUCCESSES
Our members are making progress!
More time spent in the program, reducing isolation: Members now spend 93% more hours at the Clubhouse than
they did 1 year ago. A year ago, we had an average of 6.5 members per day; now see
an average of 11 per day.
Being involved: 58% surveyed feel “very much so” or “completely” involved in decision-making at the Clubhouse. Another 26% feel “somewhat involved.”
Social skills: 50% surveyed feel that the program has helped them “a lot” in increasing socialization skills, (interacting with peers, making friends).
Thinking skills: 42% surveyed fell that the program has helped them “a lot” in increasing skills in thinking (attention, problem-solving).
SUPPORT
The TBI Community has supported the Clubhouse Strong, dedicated Advisory Board Generous, growing donor support Collaboration with BIAWA and others in brain
injury community Mentoring from IBICA Clubhouse network and
local Clubhouse supporting people in recovery from mental health issues
A committed, supportive home at PROVAIL
TELL ME ABOUT THE STAFF!
Erin Rants, Program Director – Background in direct service with families experiencing homelessness. Has a sibling with a TBI. Master of Social Work from University of Washington.
Jamie Johnson, Floor Coordinator – Completed nine-month internship in TBI Clubhouse in Virginia. Bachelor of Arts in Social Work from Christopher Newport University in Newport News, Virginia.
Website: Website: seattlebrainworks.orgseattlebrainworks.org
Contact: Erin RantsContact: Erin Rants(206) 826-1072(206) [email protected]@provail.org