Home Ventilation Record · ventilator – wasted gas Leak Trigger When the ventilator follows the effort of the attached human to breathe – in or out. Trigger Breath stacking A

Home Ventilation Record

Please insert extra sheets as necessary Page 1

Welcome to your Parent held record for families with children at Home on

Ventilation. This portable folder has been designed to:

aid communication between you and all the people involved in your child’s

care.

help different health care professionals to communicate important

information to each other.

Please bring it along to hospital appointments and admissions, in fact, for any

contact with professionals, be it your community nurse, O.T, doctor or social worker,

show them the record.

Information in this record will help you to bring anyone involved up to date with

your child’s condition: their current treatment and equipment settings. It will be

especially useful to introduce new staff to your child and for any team-members who

haven’t been around for a while. Similarly, at clinic appointments, it may save time

by summarising your child’s condition so that you won’t need to repeat yourself too

much.

Using the timeline you can record major events or changes in your child’s

treatment or ventilator settings. Instead of recording every appointment, it will

notify professionals of key changes in your child’s care, which may affect their

management if they are admitted to hospital.

The record is designed to be carried around daily so try to keep it lightweight. Please

customise it to your requirements. As it is a summary of the most recent events,

then older pages can be removed from the file as they become outdated and

replaced.

We hope you find the record useful.

We welcome ideas about how to improve it; contact . . .





This is all about . . .

Child’s name

Date of birth

NHS Number

Family address

Parent or Carer names

Telephone

Mobile

Insert a photo of your child

here if you wish



Summary of Medical Background:

Your doctor will summarise your child’s medical condition here.

Date:- Completed by:-



Current Medications:

Date Name Route Dose Freq



Other important information about our child

Feeding: - if your child is NG fed then include information about their

daily regime. Also include any extra important information.

Communication:- Does your child have any special communication

issues or needs that staff should be aware of? Make of note of these here.





Important people working with us:- Remember to include your

community nurse, consultant paediatrician, physiotherapist, occupational

therapist, speech and language therapist, play therapist, social worker,

CARIN4 families support worker, as well as any other important people.

Name

Professional role

Phone number

Email address

Date of first contact

Frequency of contact

Name

Professional role

Phone number

Email address



Name

Professional role

Phone number

Email address





Important people working with us ctd

Name

Professional role

Phone number

Email address



Name

Professional role

Phone number

Email address



Name

Professional role

Phone number

Email address





Timeline

This section helps keep all of the team up to date with your child’s

condition in a concise and easy to read way. Use it to record any

important changes in your child’s medical condition or treatment. e.g. any

significant hospital admissions or changes in ventilator settings or

medications. It can be filled in by yourself or a member of the team.

Date What happened or changed? Sign date

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Date What happened or changed? Sign date

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Personal Resuscitation Plan (PRP)

IMPORTANT This document is a summary only, please refer to

the detailed PRP held in the patient notes or on NOTIS.

Resuscitation Plan

3.1.In the event of a sudden collapse with respiratory and or cardiac arrest:

Symptoms/signs to expect

Carefully and clearly delete all options not needed and complete boxes as needed:

1. Comfort & support child and family

2. Suction upper airway 3. Oxygen for comfort face mask/nasal cannulae 4. Airway management including oral/nasopharyngeal airway if it helps 5. Mouth to mouth / bag & mask ventilation whilst heart beat present

trial of five inflation breaths

6. Endotracheal tube & ventilate 7. External cardiac compressions/defibrillation/adrenaline 8. Advanced life support including inotropic drugs and iv access

3.2. This child is at risk of generalised tonic clonic seizures:

Rescue anticonvulsant medication is:-

Date of implementation:- Implemented by:-



Appointments:-This page will help you to keep track of all upcoming appointments with the professionals involved in your child’s care. Date Time Where? With who? Extra info



Parent Communication Page Record any questions you have for the health care team so that you can ask them next time you’re in contact with them. Date Question

For

Date Question

For

Date Question

For

Date Question

For

Date Question

For



Communication for the Team

Date Information

............................................................................................................................................................................................................................................................................................................................................... Signed as seen………………………………………………………

Info for…

Date Information

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Info for…

Date Information

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Info for…

Date Information

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Info for…

Date Information

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Info for…



Communication ffrroomm the Team

Date Response

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Date Response

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Date Response

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Date Response

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Date Response

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Ventilator Settings

Name Order code Supplier



Ventilator settings



Circuits set up





Physiotherapy – Cough Assist

Your cough assist machine is:- ……………………………………………..

Date implemented:-..................................

Implemented by: -....................................

Mode

Insufflation Pressure

Exsufflation Pressure

Inspiratory time

Pause

Expiratory Time

Inspiratory Repeat

(clearway) / number of

“coughs” (Emerson)

Cycle repeat



Extra Notes



Chest Clearance Programme

Normal Daily Programme (when well)

How often…………………………………………………………......................................

Nebulisers pre-physio……………………………………………..................................

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Positioning……………………………………………………….......................................

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Techniques…………………………………………………………....................................

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Suction……………………………………………………………….....................................

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When unwell (increased secretions/signs of worsening

respiratory status) – see detailed chest physiotherapy programme

Date implemented: - Implemented by:-





Extra Notes



Contacts page

Who to call when?

Flow diagram idea of choices depending on pt condition etc.

For information on ventilator equipment/spare parts call...

If your child needs medical assistance call....



GLOSSARY OF TERMS – ADD YOUR OWN AS YOU BUST OPEN THE JARGON ! Term Abbrev Meaning Commonly

Non-invasive

ventilation

NIV Breathing support via a mask Mask

ventilation

Invasive

ventilation

IV Breathing support via a

tracheostomy

Trachy

ventilation

Tracheostomy Trachy Surgical airway through the neck Trachy

Bilevel ventilation BiPAP Two levels of pressure to support

breathing

BiPAP

Continuous

positive airway

pressure

CPAP Single level of pressure to support

breathing

CPAP

Inspiratory

positive airway

pressure

IPAP Top (peak) pressure given by

machine for breathing in

Top

pressure

Expiratory positive

airway pressure

EPAP Bottom pressure (valley) pressure

given by machine for breathing out

Bottom

pressure

High flow alarm Machine alarm when flow from

machine increases above normal,

usually as a result of air leak from

mask

Leak alarm

Low flow alarm Machine alarm when flow from

machine reduces below normal,

usually as a result of a kink/blockage

Blockage

alarm

Leak Escape of airflow generated by the

ventilator – wasted gas

Leak

Trigger When the ventilator follows the

effort of the attached human to

breathe – in or out.

Trigger

Breath stacking A technique of breathing when

several breaths are held in on top of

each other then released to improve

cough.

Stacking

Cough assist A machine designed to help clear

secretions away from the lungs.

Clearway

Emerson



Pressure support

ventilation

PSV The ventilator is set to deliver

breathing assistance triggered by the

patient, achieving a target pressure.

Pressure

controlled

ventilation

PCV The ventilator is set to deliver

breathing assistance irrespective of

the patients breathing effort. Target:

a given pressure.

Volume controlled

ventilation

VCV The ventilator is set to deliver

breathing assistance, aiming to

achieve a target volume.



Please take a minute to give some feedback about the parent

held record .This will allow us to make improvements to it in

the future.

Was there anything you particularly liked about the record? Specifically

any sections you found most useful?

Was there any section that you disliked or did not use? Why was this?

Is there anything else you would like to see in the record?

Any other comments?

Documents

Home Ventilation Record · ventilator – wasted gas Leak Trigger When the ventilator follows the effort of the attached human to breathe – in or out. Trigger Breath stacking A