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Congratulations to the runners from Cradick Retail Agents in Tunbridge Wells - Alex Standen, Hanna Wright and Matt Ritson who completed the Tunbridge Wells ½ Marathon on Sunday 19 February. They were blessed with perfect weather for the event and completed it in very good time. Having had an aneurysm himself in 2010, Alex is well aware of the impact brain injury so wanted to support the work we do. The team raised over £600 which is a fantastic achievement. The following week Tom Fleming and Nick Maxwell ran the Brighton ½ Marathon on Sunday 26 February. The Mayor of THE NEWSLETTER OF HEADWAY EAST SUSSEX ISSUE: SPRING 2017 Thank You and Well Done To Our Marathon Runners! Headway East Sussex supports people living with Brain Injury and their families across East Sussex, Brighton and Hove and the West Sussex border. Heads Up Spring 2017 Heads Up Hailsham Support Group Health and Wellbeing Celebrating Book Week Inside this Spring Issue: 4 7 11 Brighton, Cllr. Pete West joined the crowds who turned out to support the runners. As one of his nominated charities our runners joined Cllr. West in a photoshoot before the event. Tom and Nick both achieved the amazing time of 1 hour 42 minutes to complete the run and have raised over £1000. (continued on page 3) Headway East Sussex Rebuilding lives after brain injury

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Page 1: Headway · Headway East Sussex Rebuilding lives after brain injury Welcome to the spring edition of the Headway East Sussex newsletter and with our new name it certainly brings a

Congratulations to the runners from Cradick Retail Agents in Tunbridge Wells - Alex Standen, Hanna Wright and Matt Ritson who completed the Tunbridge Wells ½ Marathon on Sunday 19 February. They were blessed with perfect weather for the event and completed it in very good time. Having had an aneurysm himself in 2010, Alex is well aware of the impact brain injury so wanted to support the work we do. The team raised over £600 which is a fantastic achievement. The following week Tom Fleming and Nick Maxwell ran the Brighton ½ Marathon on Sunday 26 February. The Mayor of

THE NEWSLETTER OF HEADWAY EAST SUSSEX

ISSUE: SPRING 2017

Thank You and Well Done To Our Marathon Runners!

Headway East Sussex supports people living with Brain Injury and their families across East Sussex, Brighton and Hove and the West Sussex border.

Heads Up Spring 2017

Heads Up

Hailsham Support Group

Health and Wellbeing

Celebrating Book Week

Inside this Spring Issue:

4 7 11

Brighton, Cllr. Pete West joined the crowds who turned out to support the runners. As one of his nominated charities our runners joined Cllr. West in a photoshoot before the event. Tom and Nick both achieved the amazing time of 1 hour 42 minutes to complete the run and have raised over £1000. (continued on page 3)

HeadwayEast SussexRebuilding lives after brain injury

Page 2: Headway · Headway East Sussex Rebuilding lives after brain injury Welcome to the spring edition of the Headway East Sussex newsletter and with our new name it certainly brings a

HeadwayEast SussexRebuilding lives after brain injury

Welcome to the spring edition of the Headway East Sussex newsletter and with our new name it certainly brings a greater sense to the community in which we provide services for our clients. You’ll notice a bit of a ‘re-vamp’ of the newsletter to bring it in line with all our marketing and promotional material - we hope you like the new look! As an organisation we are still facing a lot of financial challenges and are working with the team to look at how we provide our services so we can offer greater flexibility and bring more people in from the local community. Our new Health and Wellbeing Membership is part of that - read on for more details! (Page 4) As with many voluntary sector organisations, Headway East Sussex has been affected by the statutory funding cuts, the increased challenges of fundraising and the impact of rising costs. Therefore in order to release funds to continue our vital work the trustees and the management team are exploring

Heads Up Spring 2017

Message from Jon, Chairman and Michele, CEO

Contents

2

Marathon Runners

Tough Mudders

Health and Wellbeing Service and Gym Upgrade

Celebrating Christmas 2016!

Comings and Goings

Beyond Brain Injury Conference

Thank You To Our Fundraisers and Supporters

Spotlight on Our Outreach Service

Action for Brain Injury

Hats for Headway

Farewell to Hailsham Support Group

Celebrating Our Volunteers

Supporting Carers

Dates For Your Diary

1-3

3

4

4

5-6

6

7-8

9

10

10

11

11

11

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options for the Newick site so we can continue to operate from Headway House. We are committed to maintaining all the services we provide to support people with brain injury and their families, including the full range of activities on offer at our day service. We will continue to make good use of the wonderful facilities at Newick for fundraising activities to ensure that we sustain the charity for future. Following our rebranding last November we’ve been doing a lot of work with our external marketing advisor to position HES at the forefront of social media outlets and you will have noticed a significant increase in our presence on platforms such as ‘Facebook’ and ‘Twitter’. You can now find us on Instagram too! We continue to receive great feedback from partners in the NHS and Adult Social Care which, especially following our brain injury conference at the Amex stadium in February (page 9), has helped us to further promote all the great work that our staff do both at the centre and in the community. We would like to thank the staff for continuing to work with the trustees and management team to provide suggestions as to what we can do differently to

reduce costs whilst ensuring that high quality services and client safety remain a key focus for the organisation. As always the support of our volunteers and client family members is greatly appreciated as it enables HES to continue to deliver a high standard of services to clients. Jon Moffat, Chair and Michele Fleming, CEO If you would like further information about our plans please contact Michele on 01825 724323 or email [email protected].

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Marathon Runners (continued)

Heads Up Spring 2017

... We had 2 more runners at The Brighton Full Marathon on 9 April. Paul Hills ran his 5th marathon (4th for us) and Lauren Williams also ran for us this year. Despite the weather being exceptionally warm for April (which was lovely for the supporters but less enjoyable for the runners!) Phil completed the marathon in 5 hours and Lauren completed it in 4 hours and 42 minutes - an amazing triumph for both of them! Lauren chose to run for us because of the support and help we gave her friend Jadie who suffered a serious head injury in 2005 from a car accident and still requires full time care. She has an amazing family who have had to come to terms with her injury and have devoted their lives to support her. Lauren says that without

Headway this journey would have been so much harder. Lauren also ran the Brighton Marathon in memory of Jadie’s sister Vicky who sadly passed away in 2013. Lauren has raised over £1,300 and Paul has raised over £500, adding to the amazing sum of over £5000 that he has raised for us from previous marathons. We are so grateful to all our runners for the tremendous effort they put in, not just on the day but during the preceding months of arduous training. All the funds raised will go towards the running costs of our gym and Health and Wellbeing services enabling us to help more local people living with brain injury in their recovery and rehabilitation.

Tough MuddersMatt Stephens and 12 others are running in the Tough Mudder on 7 May as Adam Cattell explains:- “On 7 May 2017 the 13 of us (who are all in some way linked to the Finance Planning Group - www.financeplanning.co.uk) will be participating in the rather ridiculous Tough Mudder! For those of you unaware, a Tough Mudder is a 12 mile cross country run interspersed with 20 different obstacles. These obstacles include having to swim through an ice lake, climb a near vertical slippery slope and - my personal favourite - walk through some suspended bare wires that have an electrical current passing through them.

Why are we doing this I hear you ask? Partly, because Matt Stephens came up with the stupid idea and then a chain reaction of bribery, blackmail and bullying was entered into by each of us to make the next person do it, but mainly because it will hopefully convince you people to dig deep and give as generously as you can to a charity that works tirelessly to support an often overlooked issue. ‘Headway’s mission is to promote understanding of all aspects of brain injury and to provide information, support and services to people with a brain injury, their families and carers. Treating people with respect and empathy, they provide choice

and opportunity and empower people to achieve optimum independence, interaction and social inclusion’.” Matt, Adam and the team have already raised an amazing £1405. We wish them all the luck in the world and will be rooting!

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Heads Up Spring 20174

Our new Health and Wellbeing Service and Gym Upgrade!We’re very pleased and excited to announce the arrival of our new Technogym and Concept II equipment at the centre! Our new equipment will complement our existing Technogym products and provide a good balance of therapy and regular gym equipment. Our upgrade includes: - Technogym treadmill with a lower step up for easier walk-on access as well as additional supportive standing equipment either side. Technogym recline bike which clients will be able to walk into without the need to lift their leg over the main frame. Additional foot straps will provide full support for clients who are stepping up from our Thera-

trainer or just need a little more support. Technogym hand bike which will be inclusive for everyone as there is a seat for ambulant clients and a ramp for wheelchair users. The handles can be moved in a variety of directions to engage different muscles. Concept II E series rower with an attachable seat for those who require a little back support when rowing. Combined with all our current gym equipment (cross trainer, standard stationary bike, radiant weights centre, Thera-trainer, parallel bars, plinth and free weights) we are able to offer a very comprehensive gym service. We also have a range of small

gym accessories including mats, Pilates balls, agility ladders, steppers, resistance bands, boxing pads/gloves and upper limb equipment for task related exercise so we can tailor gym programmes to individual need. With our new Health and Wellbeing membership you can have unlimited access to the group gym sessions, Pilates, Yoga or Tai Chi for just £30 for 4 weeks. This is open to carers as well as those living with a brain injury. If you would like to learn more about our Health and Wellbeing membership or to sign up please contact Claire Benson on 01825 724323 or email [email protected]

It already seems a long time ago but Christmas 2016 was celebrated at Headway with the usual events - Christmas

craft making, a Carol Concert and Christmas lunch which was served on 4 days so everyone had a chance to enjoy it (Michele

had 3!). Our thanks go to Sheila Williams, our temporary cook for those delicious Christmas lunches with all the trimmings!

Celebrating Christmas 2016!

Join our Health and Wellbeing Club!

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Heads Up Spring 2017 5

It’s been a very busy few months with new staff joining the team. Demand for the outreach service

has grown so we have recruited additional staff and have been fortunate to have had high calibre

applicants for all our vacancies. We’re delighted to welcome the following new staff:-

Comings and GoingsWelcome to our new staff!

Tania Swancott, CookTania joined the team at the beginning of January. After our previous cook, Kate left us we had a period where we trialled a daily sandwich run to the local bakers. However, many of the clients said they missed the option of a cooked lunch so we decided to recruit a replacement cook. Tania comes with a wide and varied experience having run a pub for a

year and worked at Chailey Heritage for 12 years. Tania already knew about Headway from a former neighbour who is one of the team and had heard very good things about us so was delighted when the opportunity to work for us arose! She says she “loves it!” and has particularly enjoyed the lovely comments she has had from the clients about the lunches.

Sue started with us on 13th March and is a full-time outreach support worker. Sue has welcomed the role with great enthusiasm and is covering our Wealden based clients as well as mid Sussex and The Havens area. Sue is settling in well and brings a wide experience which she can use to support our outreach

clients. She has already received some excellent feedback from the clients she is working with and has supported our fundraising by joining The Mayor of Brighton’s sponsored walk. Sue says she is “honoured to be working with such a marvellous team – they are all very helpful and caring”.

Sue White, Outreach Support Worker

“Before applying for the post I did some research about the charity and found that they were having a coffee morning at the village hall on 4 March so I went along. I met some of the staff including Jane Goodey who had retired and come along to support the event. I had a lovely long chat with Jane who had worked for Headway for 15 years. She gave me a wonderful insight into Headway’s philosophy and

how much she had enjoyed working there. This fitted with me as I believe that whatever the situation anything is possible as long as everyone involved has an understanding of individual needs. Everyone is different! I see the coordinator role as a chance to make a difference in people’s lives, I like to be part of a team working together for the greater good of the clients.”

Rowena Toop, Outreach Coordinator

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Heads Up Spring 20176

Laura Randall, Advice and Support Services Coordinator has left us to fulfil an ambition of travelling around Europe with her husband, and Kate Roberts, Outreach Support Worker is leaving to follow her long-term plan

to move to Cornwall where she will be spending much of her spare time surfing! Laura and Kate have been very valued members of the team and have both have gone the extra mile to support the work we do. With their cheerful outlook and

warm and friendly personalities they will be greatly missed by clients, families and staff alike. We wish them well with their new ventures and we’re delighted that they have asked to be kept updated with all the Headway news.

FarewellsAs well as welcoming our new staff we have also said some goodbyes: -

We will be saying au-revior to Georgina Baker, Outreach Manager at the end of May as she will be taking maternity leave ready

for the birth of her second son – a baby brother for Dominic. We hope all goes smoothly and that Georgina and Dan enjoy the new

addition to their family. We look forward to welcoming Georgina back next February!

Beyond Brain Injury ConferenceOn 9 February we held our 4th annual conference Beyond Brain Injury at the Amex Stadium in Brighton in partnership with ASB Aspire. The conference raised awareness of the issues faced by people with a brain injury, and their families and carers with a focus on some of the common but often overlooked effects of brain injury, such as fatigue, dizziness and changes to personality, and the impact that these can have. Experts from across the country shared their knowledge with over 200 delegates. The programme included: - The Vestibular Consequences of Traumatic Brain Injury, Dr Surenthiran Consultant Neuro-otologist, Medway NHS Trust Understanding and Managing Persistent Fatigue after Brain Injury, Donna Malley, Occupational Therapy Clinical Specialist, The Oliver Zangwill Centre

Advances in the Clinical Neuropsychiatry of Traumatic Brain Injury, Dr Michael Dilley, Consultant Neuropsychiatrist in Neurorehabilitation, Wolfson Neurorehabilitation Services Post Traumatic Growth, Dr Trevor Powell, Consultant Clinical Neuropsychologist, Berkshire Healthcare NHS Foundation Trust Brain Injury and Homelessness, Dr Ivan Pitman, Consultant Clinical Neuropsychologist, The Brain Injury Rehabilitation Trust Vocational rehabilitation, Dr Andy Tyerman, Consultant Clinical Neuropsychologist and Head of Service, The Camborne Centre The future of Brain injury Rehabilitation, Professor Derick Wade, Faculty of Health & Life Sciences, Oxford Brookes University

However, the overwhelming message of the day came from Catherine Train, a local young person who suffered serious injuries after a car accident 6 years ago in which she lost her father. Catherine’s point was clear “There is life after brain injury” which is, of course, a message that everyone at Headway East Sussex all shares. The conference raised £4000 which will help us to sustain our valuable Advice and Support Service providing telephone support, advice and information, evening support groups, and our counselling service. We are extremely grateful to our sponsors and everyone involved in making this conference such a great success. We’re already planning our 2018 conference! A short video from the conference can be found on our website: www.headwayeastsussex.org.uk.

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Heads Up Spring 2017 7

Thank You to Our Fundraisers and SupportersArt for Headway: Maureen Welfare and The Lindfield Artists, our regular supporters, have had a further extension on the gallery at The Orchards shopping mall in Haywards Heath. The artists donate a percentage of their profit to Headway East Sussex and have already raised over £2,000 which is tremendous! We are very grateful to them for their support. The Gallery which opened in August 2016 brings together some of the areas most talented artists. The exhibition has attracted more than

3,000 people and over 100 pieces of work have been sold including a stunning horse head made from ivy and drift wood. Maureen says she and the other artists are all very excited about this opportunity to help Headway with much-needed funds. We are very grateful for their continued support. The money raised will go towards the purchase of wheelchair-friendly garden furniture so everyone can enjoy the beautiful gardens at Headway House in the summer - we’re very much looking forward to its arrival!

Sharon Vos-Arnold: Thank you to Sharon who donated to us in lieu of Christmas cards to help us continue with our advice and support service.

Book Week Celebration: To mark the end of National Book week we held an event at Newick Village Hall on Saturday 4 March. We were joined by the villagers for some story reading for the children, craft stalls and sale of new and second-hand books. Refreshments were enjoyed in ‘Alice

in Wonderland Mad Hatter Tea Party’ style! Once again we are very grateful to everyone who supported the event and special thanks go to Ingrid Giovino and her mum Hazel for their delicious homemade cakes which were very popular!

Sharpthorne Choral Society: We’re very grateful to our volunteer Michele Jacques who is a member of The Sharpthorne Choral Society and nominated us to be the beneficiary for their Christmas Carol concerts. We were delighted to receive a generous donation of £2,021.

Caroline Whiteman: Huge thanks to Caroline and her family for their generous donation of £1,000.

Metrail Construction Ltd.: Thank you to Martyn and Nadia Sherwood, directors of Metrail for generously sponsoring our Spring Raffle. We are also very grateful to The Worshipful Company of Founders for their kind donation

of a case of wine, to East Sussex National Golf Resort for donating a round of Golf and to The Ashdown Park Hotel for a discounted voucher for afternoon tea which were all raffle prizes. The raffle raised nearly £500.

Plumpton Festival: Thank you to Steve Hayman and the organisers and supporters of the Plumpton Beer and Blues Festival which raised £100.

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8 Heads Up Spring 2017

Time2Give chose Headway East Sussex as one of their charities to benefit from their Gala Ball and Time Auction event on 6 April at the Grand Hotel in Brighton which Michele and Fiona attended. The organisation forges connections between business and charities and as a result of the adoption, we will gain new volunteers. The gala Ball is held in conjunction with The Brighton Chamber of Commerce, Community Works and Giving Times and is sponsored by Chariot House, Griffin Smith, Farrington Webb and The Better Half. It was developed to show that donating time is every bit as useful as money for charitable

causes, and the idea is catching on! Organisations or individuals can bid for opportunities to give back something to their local community. During the auction people made bids amounting to over 600 hours of their time. The hours will be shared between the nominated charities - so we’re hoping for lots of new and energetic volunteers!

We were delighted to be the top beneficiary for the local Tesco Groundworks Bags of Help Initiative which secured a grant of £12,000 raised from the 5p bag levy for green space and environmental projects. By voting for us, Tesco shoppers have helped fund a wheelchair accessible path across our field to the woodland and pond area. This means more people can benefit from

this lovely scenic and therapeutic environment where we hope to encourage birds and other wildlife. We are very grateful to Len Bailey for the donation of water plants for the pond and we’re hoping to secure a further grant to plant more trees and shrubs including a sensory area for those with visual impairment. Please join us for Afternoon Tea on Sunday 4 June for the grand opening of the new path.

Well done to Yvonne Summers, Sue White and Anastasia Manning who joined the Mayor of Brighton Cllr. Pete West on his 18.2 mile walk on Sunday 20 April. They walked the boundary of the city to create a new, official designated pathway. Yvonne and Anastasia completed the walk but Sue sustained a painful knee injury but nonetheless managed 10 miles. They have raised over £825 - a tremendous achievement!

Tesco Bags of Help

Time2Give Gala Ball

Well done Yvonne, Sue and Anastasia

As always we are very grateful to all our fundraisers for their generosity and support

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Heads Up Spring 2017 9

Following our Care Quality Commission inspection of the Outreach Service on 16 January we were delighted to receive a very positive report and were rated as “GOOD” in all 5 areas covered by the inspection (see below). We had some lovely feedback as you can see from the quotes below:- 1. Is the service safe? “People had individualised risk assessments in place that gave guidance to staff on keeping them safe” 2. Is the service effective? “Staff were knowledgeable about people’s support needs and received the training necessary to meet those needs” 3. Is the service caring? “Staff knew people well and had

good relationships with them. People were treated with respect and dignity. Staff demonstrated empathy and were kind, caring and supportive. People were supported to express their views and be actively involved in making decisions about their care.” 4. Is the service responsive? “People received support which was personalised to reflect their needs, wishes and aspirations. Care records showed that a detailed assessment had taken place and that people were involved in the initial drawing up of their care plan” 5. Is the service well-led? “Quality assurance systems were in place and the organisation was continuously looking at

ways to improve processes. The registered manager (Georgina Baker) provided effective leadership to staff” Our thanks go to all the outreach team and their clients, especially those who were interviewed for the inspection. Particular thanks go to Georgina Baker, outreach manager for her work in running the service along with Tracey Jerrey, outreach coordinator. Georgina also put in a lot of work to prepare for the inspection and on the day itself which is much appreciated.

Spotlight on our Outreach ServiceCQC Inspection - We’ve passed!

The CQC inspection results were backed up by our own internal satisfaction survey which was completed earlier this year. When asked which words would best describe the outreach service and the support workers, over 75% of clients ticked the following:-

…and over 50% described the service as: - 64% of respondents felt empowered to make choices

and decisions all the time whilst a further 18% felt empowered for most of the time. 80% felt listened to by their support worker, 100% felt the service was flexible and tailored to their needs and 90% felt they were involved in deciding on and planning their goals for outreach.

Outreach Satisfaction Survey

Friendly Respectful Supporting

Understanding Accepting Professional

Empowering Positive

Funny

Appropriate On time

Motivating

Stimulating Inspiring

Warm-hearted

Caring Empathetic

Again, we have some excellent feedback on the service:-

“J. has nothing but praise for the support workers he has had, looks forward to their visits, and

are a large part of his life. He is a much more positive person

because of them.”

“This service has given me great confidence to get over

things I used to worry about a lot such as shopping, crowds, managing speech with others

and other things. It has improved my family life and

now I really know I can make a few decisions on my own - it

takes time but it is worth it.”

“They help tremendously – someone to talk to,

make me laugh”

“Headway is a great support to me, thank you”

“My outreach worker is very friendly and supportive to all

family members including pets. It is a pleasure to see my support worker each week and help me

achieve tasks I would not be able to do without support.”

We are currently providing over 200 hours per week of outreach to people across East Sussex, Brighton and Hove and the West Sussex borders.

Page 10: Headway · Headway East Sussex Rebuilding lives after brain injury Welcome to the spring edition of the Headway East Sussex newsletter and with our new name it certainly brings a

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Action For Brain Injury

Heads Up Spring 2017

This year’s national Action for Brain Injury Week is 8-14 May and the campaign for 2017, ‘A New Me’ puts brain injury survivors, carers and families right at its heart - inviting them to share how brain injury has impacted on their lives. ‘A New Me’ will provide a platform for people to creatively share their experiences in order to challenge misperceptions of brain injury while demonstrating the value of having access to the right help, at the right time,

such as the support provided by Headway groups and branches. We know that brain injury is often misunderstood and those whose effects are largely hidden can struggle to get the help and support they need. Headway UK has been inviting brain injury survivors and families to complete a survey and/or submit personal accounts and creative works that demonstrate the life-changing impact of brain injury and our clients have contributed to this. HWUK has

received a wealth of powerful personal testimonies which, combined with the results of the survey, paint a picture of how brain injury can change lives. This information will be released after ABI week.

Hats for Headway!As always ABI week will culminate in a ‘Hats for Headway’ day on Friday 12 May and this year we are teaming up with The Stroke Association to promote awareness of brain injury, including stroke. This month is the Stroke Association’s ‘Make May Purple’ month so we will be wearing purple on 12 May as well as donning a silly hat! The Stroke Association are coming to Headway House during the afternoon to provide free blood pressure checks to anyone who wants one – clients, families, staff, volunteers, as well as people from the village. The Year 6 children from the

local primary school will also be joining us to learn about the importance of blood pressure and how to look after yourself. The Fire Brigade will be in attendance talking to the children about road safety in preparation for ‘Walk to School’ week which is the following week. Alongside all this there will be teas and coffee on sale and the ever-popular cake stall! (donation of cakes will be gratefully received). In addition to the understanding the importance blood pressure awareness and stroke prevention we hope our visitors will join the ‘Hats for Headway’ fun and sport a silly hat for the

afternoon! As you can see from the photographs we had some excellent exhibits last year! We’re setting up a ‘hat campaign’ on JustGiving with a text number to donate a £1 so please go to the JustGiving site, join in and nominate a friend, colleague or family member. It’s a fun and easy way to increase awareness of brain injury, promote Headway East Sussex and help raise much-needed funds!

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Heads Up Spring 2017 11

On Wednesday 15 March Lisa Wickham, Advice and Support Services Manager and Georgina Baker, Outreach Manager joined the members of the Hailsham Support Group for a fish and chip supper to mark the closure of the group. The Hailsham Support Group was set up in November 2013 in response to demand and

has made an excellent contribution to supporting local residents with brain injury and their families. However, several of the group have moved away and some attend the Eastbourne meetings so the need for the group has now passed. Our thanks go to Julie who has

been a regular attender with her husband Clive and daughter Amy. Julie arranged the bookings of Diplocks Hall where the group met and always ensured everything was ready for the meeting. Also an amazing baker, Julie’s regular contributions of delicious cakes and bread pudding were always a firm favourite!

Farewell to Hailsham Support Group

Celebrating Our VolunteersOur volunteers make such a difference to the service we are able to offer at the centre by supporting staff or leading sessions and we are very grateful to them for regularly giving up their time. National Volunteers’ Week is 1-7 June and it’s our chance to say ‘thank-you’ to our volunteers and celebrate the difference they make. Organised by the NCVO (National Council for

Voluntary Organisations) Volunteers Week is an annual campaign with events taking place all over the country - and we’re getting involved too! We’re hoping our volunteers will join us at our afternoon tea event on Sunday 4 June where we will be serving cream tea in the garden as well as opening the new footpath to the wood. Fingers crossed for plenty of sunshine!

Supporting CarersMarch ‘Invitation to Share’ Carers Coffee Morning - Lost connections In her book ‘Ambiguous Loss’, the author Pauline Boss explores the experience of grief, focussing on the effects of trauma, such as brain injury, on family relationships. At our Carer’s Coffee Morning in March Laura Randall, Advice and Support Services Coordinator, shared several paragraphs that prompted discussion on how carers’ lives have been affected by brain injury. Carers discussed the conflict between living with a brain injury survivor who has changed, often dramatically, since his/her brain injury in personality or ability, yet still resembles the person familiar and close from the past. They also

explored changes in their own identity. With ‘Ambiguous Loss’ it is not only the relationship with the survivor that changes but also our relationship with ourselves. Aspirations from the past have been compromised in so many ways. The group considered how brain injury has transformed the individual into a different person and how living with the uncertainty means everyone has to learn to continuously adapt. Carer’s Pampering Morning A pampering morning for our female carers is planned for Saturday 17 June at Headway House in Newick. Please come along and be nurtured by registered complementary therapists. This is a respite opportunity where you can enjoy

being surrounded by the beautiful Sussex countryside at Headway House. ‘Munchies and Movies’ will be provided for the cared-for person by arrangement. Limited places are available. For further information and to reserve a place, please contact Trudy Mayes on 01825 724323 or email [email protected]

Please note this replaces the Cream Tea listed on the annual programme for the afternoon of Thursday 8 June. Instead, do come to the opening of the new path to the pond at Headway House on Sunday 4 June and enjoy a Cream Tea with us then.

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Heads Up Spring 201712

Dates for your diary

Thank you for your sponsorship! We are very grateful to ASB Aspire who are generouslysponsoring all our newsletters again this year.

Our newsletter is emailed out to over 500 people butmany more like to receive a hard copy - so we are verypleased to be able to have it professionally printed.

ASB Aspire LLP is the specialist claimant division ofASB Law based in Crawley and Maidstone. For more information please visit their website:www.asb-law.com

Evening Support GroupsHeadway East Sussex support group meetings provide everyone with the opportunity to meet other people in similar situations and to exchange information and support from facilitators, speakers and each other in a relaxed and informal setting. Meetings are attended by brain

injury survivors, partners, relatives, parents, carers and friends – in other words anyone affected by brain injury or interested in the field. Our Brighton Support Group is facilitated by Sam Shephard and the Eastbourne one is run by Arlette Foster. You can just drop

into either support group where Sam and Arlette will be pleased to welcome you or for more information please contact the Advice and Support Services team on 01825 724323 or [email protected]. The dates for the remaining 2017 meetings are given below.

Headway East SussexHeadway HouseJackies LaneNewickEast SussexBN8 4QX

Tel: 01825 724323www.headwayeastsussex.org.uk

Editor: Michele FlemingDesign: Ellie Fleming

Registered Charity No: 1084715

Make a Donation:Address:

Online:

It’s easy to donate to Headway East Sussex using our JustGiving page.Thank you for your support.

Trustee Board Meetings The Trustee Board meets on alternate months usually on the 4th Wednesday of the month. The remaining 2017 dates are as follows: - 24 May, 26 July, 27 September, 22 November.

The AGM will take place immediately after the November meeting. If you would like to raise any issues or feed information back to the Trustee Board please contact Michele Fleming, CEO: [email protected].

Headway East Sussex@HeadwayESussex

EASTBOURNE SUPPORT GROUP HAS MOVED We are back at the former ESDA building, now owned by Age UK. The room is being redecorated with upgraded facilities and better outdoor lighting which will be a real bonus later in the year when the nights draw in!

EASTBOURNE Age UK1 Faraday CloseEastbourne BN22 9BH1st Wed: 7:30pm - 9:30pm

BRIGHTON Dorset Gardens Methodist Church Dorset Gardens, Off St James Street Kemptown, Brighton BN2 1RL 3rd Wed 7:00pm - 9:00pm

3 May 7 Jun

5 Jul 2 Aug

6 Sep 4 Oct

1 Nov 6 Dec

17 May 21 Jun

19 Jul 16 Aug

20 Sep 18 Oct

15 Nov 20 Dec

Events – Details to follow but please note in your diaries and give us your support! 8-14 May: Action for Brain Injury Week 12 May: Hats for Headway and JustGiving campaign, Stroke Association Blood Pressure checks at Headway House 4 June: Opening of the new woodland path and Afternoon Tea on the lawn at Headway House 17 June: Newick Food Festival on the Village Green

24 June: Stix Drummers Festival at Shinewater Park in Eastbourne 9 July: Newick Cricket Club vs. Piers Morgan Cricket Match 23 September: ‘Alice through the Looking Glass’ Autumn Fair