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Hamden Public SchoolsValarie Coppola, Coordinator Early Childhood Special
Education & Speech & Language Services
West Haven Public SchoolsBarbara Beecher RN, Preschool Special Education Nurse
Donna Kosiorowski RN, Supervisor School Health Services
Discuss the medically fragile child from Birth to Three
Discuss the medically fragile child transitioning to school
Discuss the transition process for:◦ the nurse ◦ the family ◦ the health care provider◦ Discuss challenges
Meet Joshua and Marissa.Share the joys and successes.
Transition meeting- 90 days before 3 third birthday
Special Education Services
Qualification process◦ Evaluations◦ PPT’s◦ Categorization◦ Placement
PPT Agenda
School program◦ Educational model
Home program◦ Medical model
Relationships Trust Equality Decisions Support Understanding
InternetWorkshopProfessional Journals
Support GroupsParents
ADHD Angelman Syndrome Apert Syndrome Autism Spectrum Disorder Black Fan Anemia Cancer Celiac Disease Cerebral Palsy CHARGE Syndrome Congenital Healrth Defects Cornelia DeLange
Syndrome Cystic Fibrosis Dandy Walker Syndrome
Down Syndrome Fetal AlcoholSyndrome Hyperplastic Left Heart
Syndrome Hydrocephaly Klinfelter’s Syndrome Leukemia Marfan Syndrome Muscular Dystrophy Neurofibromatosis Noonan Syndrome Osteogenesis Imperfecta Pearson’s Syndrome
IECP
COMMUNICATION
◦ Home visit◦ Preschool visit◦ Parent visit to school and class◦ Prepare administrator◦ Prepare staff◦ Teacher orients class
Past experience Administrative Parent concerns Teacher/ classroom Staff Nurse Nursing services Transportation Environmental modifications
Stays in school.”
Training school nurses◦ Hospital for Special Care◦ In child’s home◦ Health Care Providers◦ Parents
Field trips
Local Emergency Response Providers
Multiple back-up plans
Familiarize yourself with the child Attempt to meet in preschool and/ or home Be open and honest Encourage discussion with family LISTEN to family and staff Obtain medical records, orders, and plans Understand impact of chronic illness or disability:
◦ on child◦ on family
Include necessary staff in planning Include family Maintain confidentiality Provide support
How do you balance medical needs and school policy?
Start talking early.
COMMUNICATIONCOMMUNICATIONCOMMUNICATION
Have one contact person.
Collaboration among school personnel Diagnosis should not drive program or
expectations Parents need to be open and flexible Programming may be trial and error Speech, language, feeding, mobility,
treatments, socialization
Valarie Coppola 203-407-2010 [email protected]
Barbara Beecher 203-932-6457 or 203-479-3334 [email protected]
Donna Kosiorowski 203-937-4332
Medscape http://www.pubmed.gov
