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Geriatric Palliative Medicine Adam Herman, MD Assistant Professor Division of Geriatric Medicine and Gerontology Wesley Woods Health Center

Geriatric Palliative Medicine Adam Herman, MD Assistant Professor Division of Geriatric Medicine and Gerontology Wesley Woods Health Center

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Geriatric Palliative Medicine

Adam Herman, MD

Assistant Professor

Division of Geriatric Medicine and Gerontology

Wesley Woods Health Center

Palliative Medicine Case

Mrs. F. was an 87 year-old widow living in the home of one of her daughters. She required 24-hour supervision because of moderately advanced dementia of the Alzheimer’s type.

Palliative Medicine Case

Her daughter, age 65, herself widowed and medically frail because of congestive heart failure, was struggling physically, emotionally, and financially to provide care for her mother.

A rapid decline in Mrs. F’s mental status and increase in agitation precipitated a hospitalization, during which she was diagnosed with breast cancer that had spread to the spine.

Palliative Medicine Case

After a 3-day stay in the acute hospital, Mrs. F. was transferred to a local nursing home for “terminal care”.

Palliative Medicine Case

It took several days for her daughter to convince the nursing home staff and physician (none of whom had cared for Mrs. F. previously) that her mother’s agitation represented pain.

Opioids were prescribed, but caused Mrs. F. to become sedated, nauseated and severely constipated.

Palliative Medicine Case

Still lethargic and nauseated after one week in the nursing home, Mrs. F. vomited, aspirated, and went into acute respiratory distress.

The staff called 911, and Mrs. F. was transported back to the hospital where she was intubated and admitted to the ICU.

Palliative Medicine Case

Upon arrival at the hospital Mrs. F.’s daughter was extremely distressed to see her mother on a respirator, and requested she be removed from it.

Palliative Medicine Case

After several hours of discussion, Mrs. F. was placed on a morphine drip and removed from the respirator.

She died 6 hours later.

What is Palliative Medicine?

DEATH and DYINGDEATH and DYING(just like hospice)(just like hospice)

PAIN MANAGEMENTPAIN MANAGEMENT

ADVANCE ADVANCE DIRECTIVESDIRECTIVES

DEPRESSIONDEPRESSIONBREATHLESSNESSBREATHLESSNESS

NAUSEA AND NAUSEA AND VOMITTINGVOMITTING

ANOREXIAANOREXIA

FATIGUEFATIGUE

HOME CARE/HOME CARE/HOUSECALLSHOUSECALLS

ETHICSETHICS

CANCERCANCER

ANXIETYANXIETY

WITHDRAWAL WITHDRAWAL OF CAREOF CARE

DIFFICULT DIFFICULT FAMILIESFAMILIES

PHYSICIAN PHYSICIAN BURNOUTBURNOUT

MORPHINEMORPHINE

SUBSTANCE SUBSTANCE ABUSEABUSELIABILITYLIABILITY

HIVHIV

SHARING SHARING INFORMATIONINFORMATION

SPIRITUALITYSPIRITUALITY

GIVING UPGIVING UP

PATIENT PATIENT SATISFACTIONSATISFACTION

DELAYED DELAYED DISCHARGEDISCHARGE

DEADEA CURECURE

QUALITY OF QUALITY OF LIFELIFETUBE FEEDSTUBE FEEDS

What is Palliative Medicine?…an approach that improves the quality of life of patients and their families facing the problems associated with life threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.

http://www.who.int/cancer/palliative/definition/en/

What is Palliative Medicine? provides relief from pain and other distressing symptoms; affirms life and regards dying as a normal process; intends neither to hasten or postpone death; integrates the psychological and spiritual aspects of patient care; offers a support system to help patients live as actively as

possible until death; offers a support system to help the family cope during the

patients illness and in their own bereavement; uses a team approach to address the needs of patients and their

families, including bereavement counselling, if indicated; will enhance quality of life, and may also positively influence the

course of illness; is applicable early in the course of illness, in conjunction with

other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.

http://www.who.int/cancer/palliative/definition/en/

Model of Modern Palliative Medicine

Life Prolonging TherapyLife Prolonging Therapy

Palliative CarePalliative Care Medicare Hospice Medicare Hospice BenefitBenefit

Diagnosis of Serious Illness

Death

www.capc.org

Disease Progression

The Role of Hospice/EOL Care Hospice: insurance sponsored program

that cares for people at the end of life 1974: Connecticut Hospice opens, funded

by NCI—primarily serves cancer patient 1982: Medicare hospice benefit enacted

Hospice: Necessary but not sufficient (only 25% of potential enrollees)

Why?

Life Threatening Illness in Young Adults Often a single disease process (trauma,

cancer) Few or no comorbidities Tolerate therapy well Spouse/partner likely to be healthy, and

provide care Fairly rapid (and predictable) decline

before death

Life Threatening Illness in Older Adults Difficult to recognize 80% of deaths occur

in those >65 Illness and death in

the older population is different

Comorbidities increase complexity

Emergence of Geriatrics

Geriatrics is different Geriatrics addresses the care of those

who have had multiple chronic diseases, often for many decades, and require multiple medications to remain functional and well

All clinicians will be caring for these patients

Demographic Changes

2003 Chartbook on Trends in the Health of Americans, http://www.cdc.gov/nchs/data/hus/hus03cht.pdf

Demographic Changes

2003 Chartbook on Trends in the Health of Americans, http://www.cdc.gov/nchs/data/hus/hus03cht.pdf

The Cure-Care Dichotomy: The Traditional Model

Life Prolonging Care

“Dying”

Palliative/

Hospice

Care

Disease Progression

D

E

A

T

H

www.capc.org

Diagnosis of Serious Illness

Defining “Dying”

Is there a clear distinction between two states?

Four different trajectories of illness prior to death among older adults have been identified by clinicians, and supported by data.

Trajectories of Dying

Lunney et al. reviewed physician Medicare claims in the year before death.

They divided 7,258 decedents into 4 previously described conceptual categories

Do these groupings classify decedents?

Lunney JR, et al. JAGS. 2002;50:1108-1112

Trajectories of Dying

Lunney JR, et al. JAGS. 2002;50:1108-1112

Acute illness

CHF, COPD

Cancer

Alz, CVA, PD, hip fx,

incont, PNA,

dehydration, syncope

Trajectories of Dying

Sudden Death

Terminal Illness

Organ Failure

Frailty

Percent 7 22 16 47

Mean Age 73 77 80 83

% Nursing Home

12 24 42 52

% Hospice Care

2 46 8 8

% Died in Hospital

1 27 47 39

Lunney JR, et al. JAGS. 2002;50:1108-1112

Opportunities for Improvement: Hospital-Based CareSUPPORT Trial: 4-year study in 5 major teaching

hospitals; 9105 patients with life-threatening illness

The SUPPORT Principal Investigators. JAMA. 1995;274:1591-1598

47% of MDs knew their patients wanted DNR 46% were ventilated within 3d of death 38% of those who died spent ≥ 10d in ICU 50% of those who died were in moderate-

severe pain ≥ half time within 3d of death

Opportunities for Improvement: Long-Term CareSites of Death US Georgia

Hospital 49.2 55.2

NH 23.7 15.9

Home 23.2 20.5

Site of terminal care is projected to change NH population projected growth from 2.5 to

3.4 million by 2020 1 in 2 adults is likely to die in NH in 2020

Brock DB, Foley DJ. Hospice J. 1998;13:49–60.http://www.chcr.brown.edu/dying/FACTSONDYING.HTM

Opportunities for Improvement: Long-Term Care

http://www.chcr.brown.edu/dying/FACTSONDYING.HTM

Cancer: 52.8%

Terminally ill: 39.3%

Nationally: 41.6%

Opportunities for Improvement: Long-Term Care

http://www.chcr.brown.edu/dying/FACTSONDYING.HTM

Nationally: 45.4% Terminally ill: 23.4%

Report Card: Access to Palliative careHospital Group GA Region National

Mid/large 38%(28/74) 41% 53%

For Profit 0%(0/15) 18% 20%

Non-Profit 47%(16/34) 54% 61%

Public 42%(8/19) 35% 41%

Community provider

14%(1/7) 17% 29%

Large 80%(16/20 65% 75%

Mid 22%(12/54) 32% 45%

Small 17%(5/29) 13% 20%

www.CAPC.org

How Georgia Compares…

Nationally: C grade Georgia: D grade

Percentage of mid-size and large hospitals with a palliative care program (50+ beds)

www.CAPC.org

Questions?

Special thanks to Laurent Adler, MD the original creator of these slides. (updates and edit have been added)