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MS Rock Stars, Running to End Multiple Sclerosis
For Angie Ramage, the P.F. Change Rock ’n’ Roll Marathon in January is a chance to show how far she’s come. “The marathon is on the
exact day of the sixth anniversary of my diagnosis,” she said. “Never in a million years did I think as I sat in that hospital bed unable to
walk that I would be participating in a half marathon six years later.”
Her husband Darrin was diagnosed with MS in 1994. He will be participating in the marathon in a different way. “I am great at running,
but my running is different: I am good at running my mouth,” Darrin notes. So, he will be working as a spokesperson at the National MS
Society booth at the event expo. He wants to help create awareness about MS and to inspire the participants.
Darrin met Angie in 1999. They dated for a while before he had the courage to tell her that he was living with MS. She was shocked, but
supportive and they were eventually married in 2002. Shortly after the birth of their son, Stone, Angie starting having serious medical
issues. Then she was diagnosed with MS. Angie remembers, “I went from being a caregiver to being a person with MS and Darrin went
from a person with MS to a caregiver.”
They decided to take on the disease head on and not let it stop them from living their lives to the fullest. They became actively involved
with the Arizona Chapter of the National MS Society. To help increase the amount of support for young adults living with MS, they helped
start and continue to lead a group specifically for young adults. “Our mission is to inspire and lead by example. You may have MS—but it
is not the end. You can still live a normal life,” they reflect. Angie and Darrin had a second child Ashlyn, now three, and they work
relentlessly to raise awareness and money to help end MS. “My biggest concern is that my kids might get MS. I don’t want to see that
happen, I want to see an end to this disease,” Angie says.
Fundraising Story – Social and Traditional Media
Rock Stars, Running to End Multiple Sclerosis (story continued)
The Ramages decided to participate in the Rock ’n’ Roll Marathon for several reasons. Angie is turning 40 in 2013 and wants to hike the
Grand Canyon. She says running in the Rock ’n’ Roll is a great opportunity for training. They also love the fact that the National MS
Society is the charity of choice for the Marathon. Angie is a member of the MS Rockstars, a prestigious running and fundraising team
that participates in the marathon. Each team member raises a minimum of $1,750 for MS, and gets a personalized 12-week training
program and VIP treatment on race day. Even their son Stone is participating. He is training for the Kids Rock Marathon the day before
the race.
The P.F. Chang’s Rock ’n’ Roll Arizona Marathon and 1/2 Marathon takes place January 15, 2012. More than 30,000 runners are
expected for the annual mash-up of entertainment and fitness, with live bands rocking stages along each mile of the 26.2- and 13.1-
mile courses. Join Angie and Darrin and the MS Rockstars and run for a great cause while enjoying the ultimate VIP experience in
Arizona. To sign up, call 1-800-344-4867 or visit www.MSrockstars.com.
Kevan Brininger, Ready for The Challenge—of the P.F. Chang Rock ’n’ Roll Marathon and life with Multiple Sclerosis
Kevan Brininger was diagnosed with MS in June 2011 at the age of 38. He will be participating, along with his 18 year old son Derrick,
in the P.F. Chang’s Rock ’n’ Roll Arizona Marathon and 1/2 Marathon in January. He says “Some people have said that I can’t or should
not do this marathon. I take that as a personal challenge to prove to myself that I can. I will not be doing this race in a $4000
specialized racing wheelchair, I will be doing it in a standard wheelchair. I want to show that even though I am in this situation, I can still
challenge myself and enjoy almost all of the normal activities that I used to.” Kevan and Derrick will be participating in the half
marathon split in the Rock’n’Roll event.
Kevan has been battling MS symptoms for over 16 years. “My MS originally presented itself with some vision loss in the right eye while I
was serving in the United States Marine Corps. Over the years it has slowly progressed and I now only have central vision in the left,” he
said. “Then in June, I began having problems with my right leg and arm. I went to therapy and my right arm has almost completely
returned to normal. However, in November, I had an episode that affected me from the waist down. I continue to go to physical and
occupational therapy to strengthen my core and upper body along with trying to keep my legs as flexible as I can. I now rely on my
wheelchair for movement.”
Fundraising Story
Kevan Brininger, Ready for The Challenge—of the P.F. Chang Rock ’n’ Roll Marathon and life with Multiple Sclerosis (CONTINUED)
Kevan has been a cyclist for most of his life—. “since I taught myself to ride a bike (without training wheels) at age 3,” he says. “I have
ridden every kind of bike there is--from riding 150 miles a day on a road bike, to downhill riding on a mountain bike, to also doing
everything you can think of on a BMX bike. I look at this wheelchair as a new form of bicycle that I am on all the time. I want to see how
far I can push this chair and myself.” Kevan is a member of MS Rockstars, a prestigious running and fundraising team that participates
in the marathon. Each team member raises a minimum of $1,750 for MS, and gets a personalized 12-week training program and VIP
treatment on race day. Kevan is working hard to raise money for the National MS Society through the event and he says “no donation is
too small and any donation will help make it possible to one day have a world free of MS. “
The P.F. Chang’s Rock ’n’ Roll Arizona Marathon and 1/2 Marathon takes place January 15, 2012. More than 30,000 runners are
expected for the annual mash-up of entertainment and fitness, with live bands rocking stages along each mile of the 26.2- and 13.1-
mile courses. Join Kevan and the MS Rockstars and run for a great cause while enjoying the ultimate VIP experience in Arizona. To sign
up, call 1-800-344-4867 or visit www.MSrockstars.com.
nWhite, an MS Rock Star: Running for those who can’t
Megan White loves running and has been participating in marathons around the country since she was 19. But her life changed in 2006
when she was diagnosed with multiple sclerosis at age 38. The diagnosis did not stop her. In fact, she became more determined to start
running again. In 2009, less than three years after being diagnosed, she registered for the P.F. Chang’s Rock ’n’ Roll Marathon and has
not missed a year since. “I have always had the ability to run and I am blessed that I still can. I now run for those who can’t and to
demonstrate that life with MS isn't over, just different,” Megan said.
Megan is thrilled that the National MS Society is the charity of choice for the P.F. Chang’s Rock ’n’ Roll Marathon this year. She noted
that “Raising funds for MS is crucial. It helps researchers make strides towards a world free of MS and the money raised also helps fund
local programs for people living with MS.” Megan is a member of the MS Rockstars, a prestigious running and fundraising team that
participates in the marathon. Each team member raises a minimum of $1,750 for MS, and gets a personalized 12-week training
program and VIP treatment on race day.
Fundraising Story
Megan White, an MS Rock Star: Running for those who can’t (CONTINUED)
Megan, along with her four children and granddaughter, is a big fan of the P.F. Chang’s Rock ’n’ Roll Marathon. She loves everything
about it—the bands, the people cheering on the sidelines and the fun at the finish line. She describes herself as a running billboard for
MS. You might see her wearing tights, National MS Society branded gear, and an orange tutu at the event this year!
A creative fundraiser, Megan also raises money for MS through her connections with corporate sponsors, from neighborhood bunko
(dice) parties, by selling MS ribbons, and by asking friends and family for support. Even her nine-year-old daughter Abby helps mom
raise money for MS. “She makes and sells orange ribbons and she is always getting her Girl Scout troop involved with the National MS
Society. She will be helping me when I go into her school with a demonstration that helps kids understand what happens when a parent
can’t walk or needs help with balance along with many other symptoms. She is in charge of getting her school to raise money one
classroom at a time. She did her math and if every student did at least $1 they would have raised about $1,000. She is a go getter, so
we will see,” Megan says.
Megan describes herself as an “encourager” inspiring others to take action. She notes, “Everyone with MS has their own marathon—for
some it might be just getting out of bed in the morning.” She is actively involved in the Society’s Arizona Chapter, speaking publicly at
and participating in a variety of Society events and programs and services for people living with MS.
The P.F. Chang’s Rock ’n’ Roll Arizona Marathon and 1/2 Marathon takes place January 15, 2012. More than 30,000 runners are
expected for the annual mash-up of entertainment and fitness, with live bands rocking stages along each mile of the 26.2 and 13.1 mile
courses. Join Megan and the MS Rockstars and run for a great cause while enjoying the ultimate VIP experience in Arizona. To sign up
call 1-800-344-4867 or visit www.MSrockstars.com
Copy to describe a sculpture that was created for the MS home office lobby. The copy was used to create plague near the sculpture.
The Path to the Cure by artist Ira D. Sherman
This sculpture recognizes the Society’s Circle of Distinction members. Each member has generously given $1 million or more to moves us closer to a
world free of MS.
A primary component of the sculpture is a figure with symbols of a wheelchair and crutch. Once the door engraved with the names of Circle of
Distinction members is pushed, a path toward the cure for MS is set in motion. The figure moves away from the wheelchair and crutch, representing
a separation from the encumbrances of MS.
A ribbon of stainless steel represents both the disease of multiple sclerosis and the path to the cure. The path commences with a large ‘M’ and ‘S’
made of metal. As you follow the path away from the starting point and advancing ever farther along the path to a cure, the ribbon of stainless steel
begins disintegrating. The metal ‘M’ and ‘S’ symbols become smaller ridges of metal and the end of the path to a cure is pure light – a
representation of a world free of MS.
The Path to a Cure is a conceptual sculpture designed to move and convey the movement toward a cure, while underscoring the beautiful spirit of a
person living with MS. The metals used in the sculpture represent individual beauty, while the path to the cure for MS is represented by elegant light.
This sculpture not only represents a path to a word free of MS, but invites you to participate in moving along that path by engaging with the
sculpture. You are also invited to help advance toward a world free of MS through your continued support and volunteer leadership.