FUNDING SERVICES FOR DD—WILL THE SPECIAL SESSION MAKE … · 2019-11-30 · for Nonprofits, 1400 Parkmoor Ave #100, SJ Do you have a preschooler or school-aged child with a developmental

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Sept 17: Join the Big Give for Autism

On Thursday, Sept 17, Autism Society chapters across the

nation will be taking part in the Big Give for Autism, an

online day of giving. What can you do to help?

Donate here: https://autismbiggive.org/#npo/autism-society-san-francisco-bay-areaFacebook - Like, comment, and share on Facebook

Tweet! We are @sfautismsociety

Ask - Ask family, friends, and coworkers to support a

cause (SFASA) so dear to you.

(Thanks to Autism Society of Northern Virginia for the handprint art.)_________________________________________________

FUNDING SERVICES FORDD—WILL THE SPECIALSESSION MAKE IT HAPPEN?WHAT CAN WE DO?

By Connie Boyar Frenzel, VP, SFASA

Governor Brown mandated “extraordinary” specialsessions to address funding services for thedevelopmentally disabled, MediCal providerreimbursement rates, transportation and roadissues and a medley of other programs. With nocost of living raises for more than 9 years, no provider rate increases for more than 15 years,recession era cuts that were made years ago butno increase in the DD budget now, services tothe developmentally disabled continue todisappear as more providers go out of business.(read more)

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Autism Community Calendar: September2015

Thurs, Sept 10: AutismParent Support Group atStanfordTime: 7-9pm Meets 2nd Thursdays of the

month. Walk-ins welcome!Place: Psychiatry building, 401 Quarry Road,Stanford. More info here

Sat, Sept 12: “PadresUnidos Haciendo LaDiferencia” ConferencePlace: Mayfair CommunityCenterTime: 7:30AM - 3:30PM.Totally in Spanish. More infohere or call (408) 954-5952

“Fiesta Educativa is dedicated to providinginformation and Support to Latino Families who havechildren with different abilities.” Fiesta Educativapresenta su decimoquinta conferencia anual “PadresUnidos Haciendo la Diferencia” el dio 12 deSeptiembre en el centro comunitario Mayfair estaconferencia es totalmente en español.

Sat, Sept 12: Play Your Wayat San Jose Children'sDiscovery MuseumPlace: 180 Woz Way, SanJoseTime: 5:30-8:00pmCost: $20 per familyA special event for childrenwith autism and their familiesto enjoy the museum, includinga resource fair, an artist and a

lego experience. Learn MoreRegister: www.cdm.org/autism

Sat, Sept 12: AASCENDJob Club -- A NewSeries on Employmentfor Adults on theSpectrumTopic: Working with the

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Sept 2015 Bay Area Autism News: Big Give, conference update, ... http://hosted.verticalresponse.com/1407347/e89933f18a/5433650...

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October 23 Conference: RegisterToday!

Let a Thousand Flowers Bloom: The Bay AreaAdult Autism/DD Programs and HousingSummit is a full-day conference that presents amix of "showcases" in which many programs givequick overviews, and more in-depth policy andphilosophical issues facing the adult autism/DDcommunity today.

• Speakers include legislators, service providers,autism advocates, policymakers, regional centerofficials, and more.• See the tentative schedule here.• Registration is $25 here.• It will sell out, so don't procrastinate.• Real-time Spanish translation available.• The day is primarily focused on regional centerclients with autism and related disorders.• Lunch will feature more than a dozen breakoutdiscussion groups.• To defray our formidable costs, we are seekingsponsors at $500, $1,000, and $2,500. Pleasesee details here.• To join our team of amazing volunteers, justemail us at [email protected].

NO WALK-INS. PRE- REGISTRATION ISMANDATORY. THANKS!___________________________________________

What Are the Adult Program Options?You Deserve to Know

What happens when my child graduates fromschool? Is there a program for him? Can he findsupported employment? We hear these questionsall the time, and while there's no question that ouradult autism/DD care system is broken, given thestress of swelling caseloads and our electedleaders' inability to allocate adequate funding, theDDS system has many vendors currentlyproviding options, and helping care for our kidseach day. You deserve to know about all of them.

So, to improve your access to information aboutoptions in our community, we've publishedcompilations of Adult Day Programs Vendorized

Department of RehabilitationSpeaker: Teresa Woo, District Administrator for DORTime: 10am-1pmLocation: the Arc of SF, 1500 Howard St at 11th SFMore info: [email protected] www.aascend.org

Wed, Sept 16: Webinar: An Update on the ABLEAct–Where Do We Go from Here?Time: 6:30-8pmSpeaker: Attorney Stephen Dale. For any questions,please contact Ellen Hovey at [email protected] register https://attendee.gotowebinar.com/register/4191487127773650177

Wed, Sept 16: Hear Our Voices Autism LectureSeries at WingsAn opportunity to hear from those who live on thespectrum. Speakers today are Jamie and Arin.More info at wingslearningcenter.orgTime: 11-1Place: 1201 Main Street, Redwood City. Free parkingon Heller in church parking lot next to school

Thurs, Sept 17: LimitedConservatorship: ProtectingYour Loved One with aDevelopmental DisabilityTime: 6:00-8:30pmLearn how a limitedconservatorship can protectyour loved one through his orher lifetime. Presenter: Alexis

Lynch, AttorneyPlace: Support for Families, SF More info here

Friday, Sept 18: GameNight hosted by AutismSocial Connection Time: 6-9pmGet your game on! Boardgames, card games andvideo games are all

welcomed, snacks provided.Cost: $20 if registered online before 3pm that day.$25 at door.RSVP: http://www.gatepath.org/hangoutsLocation: Community Gatepath, 350 Twin DolphinDrive, Suite 123, Redwood City

Sat, Sept 19: Self-DeterminationTime: 10amPlace: Deaf Plus, 5437 Central Ave, #4 (behindHuberts Lumber), NewarkRSVP: to Irene, [email protected]: Gabriel Rogin, State Council on


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by Regional Centers:

GGRC Day Program List (Excel)GGRC Day Program List (PDF)

SARC Day Program List (Excel)SARC Day Program List (PDF)

RCEB Day Program List (Excel)RCEB Day Program List (PDF)

NBRC Day Program List (Excel)NBRC Day Program List (PDF)

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COMMENTARY from our Blog

Funding DDS Is Cheaper thanthe Alternative

"Your failure to act has alreadycost the state some $650,000 forone client in one year."

An open letter to California legislators

by Cecily Ruttenberg

For the sake of argument, let’ssay you don’t give a hootabout the developmentallydisabled. It’s a tragedy, youadmit, but ultimately it shouldbe the family’s responsibilityto provide for their loved one

just like everyone else provides for their kids.Fine. No judgment here (well maybe).

Setting morals aside, let’s talk money. TheLanterman Act is already law and requireshousing and various services for thedevelopmentally disabled from cradle to grave.From your perspective, the state has been morethan generous providing all that is does, and yousee no reason to keep adding to the pot of freemoney.

After listening to Bodi’s story, dear legislator, youwill understand why you want to increase DDSfunding, even if you feel no moral obligation.Why? Because it’s cheaper than the alternative..... (read more)

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Developmental Disabilities

Sun, Sept 20: AFBAHiking Club Stroll fromCrissy Field to FortPointSome free fun andleg-stretching for specialneeds families, a walkalong a flat and scenic

route, with a stop at beaches and the Warming Hutfor lunch. Wear layers, it gets windy!Time: 10:30am-2pm. Meet at the Beach Hut Cafe.Park at the East Beach parking. Text 408.314.1655 ifyou get lost.RSVP: [email protected]

Tues, Sept 22: Conservatorship Workshop withAttorney Stephen W. DalePresenter: Stephen Dale, attorney. Topics: What is aLimited Conservatorship?; Other Options toConsider; The Role of the Regional Center; Using theIPP Process; How to File a Conservatorship; Reviewof the Powers that Can Be Requested Time: 7-9 PMPlace: South San Francisco Municipal Service BldgWilliam Belloni Rm, 33 Arroyo Dr, South SFRegister here

Tues,Sept2219th

Annual GGRC Self-Advocacy ConferenceKeynotes: Santi Rogers, director, DDS, and JimShorter, executive director, GGRCBreakout sessions: Lanterman Coaition, HCBS,Self-Determination, Employment FirstPlace: Milton Marks Conference Center, 455 GoldenGate, SFTime: 9:30am-3:00pm. Bring a bag lunch.Preregistration is required: $6 (check made out to"SPEC") postmarked by 9/15/15, to: GGRC, ATTN:Nancy Lin, 1355 Market Street, Suite 220, SF, CA


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The Desperate Situation forService Providers

by Stephen Dale, attorney

Last Wednesday I attendedyet another set of hearings inSacramento dealing with the

desperate situation that service providers thatwork with persons with developmental disabilitiesin California. During the long line of testimony thatwe heard - Carol McKinney from Harmony Homesgave a great talk about what this lack of fundingmeans to the people her agency serves and thededicated workers that have endured thisshameful lack of commitment to the mostvulnerable citizens in our state.

To hear her testimony - go tohttps://www.youtube.com/watch?v=yQqYJHyizYs&list=PL5dEwlCC642pI7_k1vI3UVEmPqSR7eOBz... Programs are shutting down now - and as welose them - it will be almost impossible to replacethem. (Read more)________________________________________________

We Need Priority Section 8Housing Vouchers for theDevelopmentally Disabled

Dear Housing AuthorityCounty of Santa ClaraBoard and Staff:

We are extremelyalarmed to hear thatHACSC leadership is

under the erroneous and damaging impressionthat Housing Authorities lack discretion to grantpriority vouchers serving the developmentallydisabled.

Such a policy, aside from being an imperativefrom a practical and moral point of view, is plainlylegal and permissible pursuant to HUD Guidance,Notice PIH-2012-31 (HA) issued June 29, 2012,granting discretion to give priority to residentsdeemed to be at serious risk of institutionalization.Those incapacitated by developmental disabilities,including significant cognitive impairment andautism (including California DDS-eligible autism)are clearly at risk of institutionalization due to their

94103. No walk-ins.For more info: 415-503-4460.

Thurs, September 24: Extreme Parenting: Dealingwith Significant Behavior that Challenge YouTime: 9:30-11:00amPlace: Parents Helping Parents at the Sobrato Centerfor Nonprofits, 1400 Parkmoor Ave #100, SJDo you have a preschooler or school-aged child witha developmental disability or delays who exhibitsactivities and actions that challenge you, sometimesbeyond what you think you can handle? Try out thisnew group. We will meet the 4th Thursday eachmonth through May.More info: [email protected]

Fri, Sept 25: Effective Healthcare for Adults withDevelopmental Disabilities: Is California on theRight Track?Time: 8am-4pmPlace: California Endowment, 1111 BroadwayOakland, CA 94607Stakeholders will look at managed care from differentperspectives while coming up with positive solutionsto move the transition to managed care forward in away that will benefit as many people as possible.Register here

Sat, Sept 26: Sensory-Friendly Films: HotelTransylvaniaAMC theaters 10am:

Cupertino Square 14Deer Valley 16Mercado 20Van Ness 14

Sat, Sept 26: Arc/SFO One-Plane Air TravelPractice at SFOFamilies will be supported with Arc and SFO staffthrough a typical air travel experience. From ticketingto security to buckling-up on board, our team will helpyou and your family have a positive on-boardexperience without ever leaving the ground.http://readysetflyonboard926.eventbrite.com

Wed, Sept 30: MindfulnessSkills for Parents, at StanfordInstruction in mindfulnesspractices including meditation andits application for reducing stressand improving self-esteem andquality of life.Time: 7-9pm

Fee: $100 (Limited scholarships available)To register, please email Beth Archibald at


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inability to care for themselves or earn a living.

Santa Clara County’s autism population isskyrocketing. In 1990, DDS counted 147 autismclients. Today the number is about 3,200. Ouradult autism population will double in the next fiveyears and triple in the next ten. Where will thiscrush of disabled, dependent adults live? Withoutassistance from the Housing Authority there arealmost no options available to them... (read more)_________________________________________________

Our Letter to the SpecialLegislative Session onDevelopmental ServicesBudget

Dear Members of the Special Session LegislativeCommittees:

We are writing to address the elephant in theroom of today’s efforts to save California’sDevelopnental Services system from collapse: ourstate’s autism explosion. California’s population ofdependent and disabled adults with autism issoaring. The Department of DevelopmentalServices (DDS)-eligible numbers of autistic adultsage 22 and up will double over the next five years,and triple over the next ten, to 42,000 individuals.And within 20 years our state will have more than80,000 such adults with these severe forms ofautism, and in need of a wide variety of servicesand housing. That’s up from about 3,000 just 25years ago.

Our DDS system has not remotely kept pace withthe staggering scope of this epidemic of severedisability—a disability that will soon representnearly half of all DDS cases... (read more)

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The Urgent Need to Removethe Chilling Effect onDesperately NeededSpecial-Needs Housing inCalifornia

Dear Department of Health Care Services:

We are writing with an urgent request.

California’s population of dependent and disabled

[email protected] or call 650-498-7376Runs for 8 Wednesday evenings, plus Saturdayclasses, 9AM – 1PM, November 7, September 30,November 18 2015Place: 401 Quarry Road, Stanford

Tues, Oct 6: PANDH-SFHousing for theNeurodevelop-mentally DisabledTime: 6:15-8:15p.m.Place: Support forFamilies, 1663 Mission

St., #700, SFSpeaker: Heidi Cartan, of Costanoa Commons inSanta Cruz.For more information: please contact Linda Tung at415/282-7494 or [email protected] up for their email list at PANDH-SF.org------------------------------

Let us know about your events:[email protected] all event details___________________________________________

Autism Society San Francisco Bay AreaPO Box 249San Mateo, CA [email protected]

Autism Society San Francisco Bay Area is anall-volunteer, grass-roots organization of parents,family members, friends and professionals concernedabout the well-being of local autism families, with anemphasis on expanding the limited lifespan careoptions for the dramatically increasing numbers ofadults with autism.

Email Us • Website • Facebook

Donate • Volunteer

2014-15 Board of DirectorsPresident: Jill EscherVice President: Connie Boyar FrenzelSecretary: Jennifer SullivanTreasurer: Irma VelasquezAll Board Members

Copyright 2015 Autism Society San Francisco BayArea


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adults with autism is soaring. The Department ofDevelopmental Services (DDS)-eligible numbersof autistic adults age 22 and up will double overthe next five years, and triple over the next ten, to42,000 individuals. And within 20 years our statewill have more than 80,000 such adults with thesesevere forms of autism, and in need of a widevariety of supportive housing solutions. Nearly allof these people are incapable of caring forthemselves or earning a living.

But tragically, as the need and desperationmounts, some people’s reading of thewell-intended Medicaid Home and CommunityBased Services (HCBS) regulations (which areemphatically outcome-oriented and not settings-oriented) is having the completely unnecessaryeffect of quashing hope for innovation andproliferation of supported housing options in ourstate. Already regional centers are informingvendors and families of severely disabled childrenand adults that they will not support anything butgeneric, scattered-site urban housing. They claimunsubstantiated quotas limiting the number ofpeople with DD who can live together, or evenobject to minor project design or programelements, citing nothing more than a vague andunsupported fear of the “heightened scrutiny”process. This unfounded fear, which has nosupport in the actual letter or spirit of the law, ishaving the devastating effect of holding hostagehopes for expansion of special-needs housingthat address the intensive needs of California’sASD adult population even as that populationexplodes.... (read more)_______________________________________________

Of Note:

Adult, Autistic and Ignored

Opinion piece in the NYT, on the uncharteredwaters of caring for adults with autism.

Who Will Care for Autistic Adults?

Denise Resnik writes in the Arizona Republicabout the need for new housing and supports.

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Autism Society San Francisco Bay AreaP.O. Box 249San Mateo, California 94401US

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Documents

FUNDING SERVICES FOR DD—WILL THE SPECIAL SESSION MAKE … · 2019-11-30 · for Nonprofits, 1400 Parkmoor Ave #100, SJ Do you have a preschooler or school-aged child with a developmental