Facilitating Service User Involvement

Facilitating Service User Facilitating Service User InvolvementInvolvement

in an Assessment & Treatment Unitin an Assessment & Treatment Unit

Parkside Lodge is a 12 bedded acute admission Parkside Lodge is a 12 bedded acute admission service providing highest quality MDT care to service providing highest quality MDT care to people with a LD, specialist focus psychiatry of people with a LD, specialist focus psychiatry of learning disability.learning disability.

The inpatient service operates a locked door The inpatient service operates a locked door policy and service users are admitted under policy and service users are admitted under sections of the Mental Health Act.sections of the Mental Health Act.

Pre-requisite of service is to provide specialist or Pre-requisite of service is to provide specialist or intensive inpatient assessment and treatmentintensive inpatient assessment and treatment

What Does It Mean?What Does It Mean?

““I can tell you what I can tell you what I want”I want”

- Inpatient at Parkside - Inpatient at Parkside Lodge, Sept 2008Lodge, Sept 2008

““Learning Disability Nursing is a person Learning Disability Nursing is a person centred profession with the primary aim of centred profession with the primary aim of supporting the well being and social supporting the well being and social inclusion of people with learning disabilities inclusion of people with learning disabilities through improving or maintaining physical through improving or maintaining physical and mental health”and mental health”

Good Practice in Learning Disability Nursing DOH (Dec 2007)Good Practice in Learning Disability Nursing DOH (Dec 2007)

PRACTICEPRACTICEInpatient 1Inpatient 1

Self Advocacy FocusSelf Advocacy FocusDischarge PlanningDischarge Planning

Wrote his own weekly MDT reportWrote his own weekly MDT report Wrote his own leave programme weekly Wrote his own leave programme weekly

following MDT / outcomesfollowing MDT / outcomes Wrote his own discharge planning with Wrote his own discharge planning with

nursing staffnursing staff

Treatment PlanTreatment Plan4 week timetable to support programme as agreed at professionals Meeting 10 October 20084 week timetable to support programme as agreed at professionals Meeting 10 October 2008

Week OneWeek One

Primary Nurse to Primary Nurse to evaluate after evaluate after week onweek on

4 visits with UBU staff on unit4 visits with UBU staff on unit

Set clear boundariesSet clear boundaries

1:1 session with Clinical Psychologist1:1 session with Clinical Psychologist

2 visits with community nurse on unit2 visits with community nurse on unit

1 visit to grandma’s with unit staff1 visit to grandma’s with unit staff

1 hour visits to grandma’s daily1 hour visits to grandma’s daily

Primary nurse and inpatient to set details of next weekPrimary nurse and inpatient to set details of next week

Week TwoWeek Two

Primary Nurse to Primary Nurse to evaluate after evaluate after week twoweek two

Carry on with contact as above in week 1 plusCarry on with contact as above in week 1 plus

1 visit to Peel Mills with staff from Parkside Lodge1 visit to Peel Mills with staff from Parkside Lodge


Week ThreeWeek Three

Primary Nurse to Primary Nurse to evaluate after evaluate after week threeweek three

Carry on with contactsCarry on with contacts

2 visits to Peel Mills2 visits to Peel Mills

UBU staff / community nurse to spend time on the unit with inpatient as planned with UBU staff / community nurse to spend time on the unit with inpatient as planned with less support from unit staffless support from unit staff


Week FourWeek Four

Primary Nurse to Primary Nurse to evaluate after evaluate after week fourweek four

Carry on contact as week 3Carry on contact as week 3

2 visits to Peel Mills but extend time there2 visits to Peel Mills but extend time there

Primary Nurse and inpatient to set details of next weekPrimary Nurse and inpatient to set details of next week

Wee

kly

MD

T R

epor

tW

eekl

y M

DT

Rep

ort

Section 17 Leave

Section 17 Leave


Self Advocacy FocusSelf Advocacy FocusClinical Assessment & Core Pathway PlanningClinical Assessment & Core Pathway Planning

Wrote in a daily diaryWrote in a daily diary Met with nursing clinicians and discussed Met with nursing clinicians and discussed

contentcontent Actioned planned what she wanted to Actioned planned what she wanted to

happen nexthappen next Wrote up own report for MDTWrote up own report for MDT

Weekly TimetableWeekly TimetableDAYDAY DATEDATE WHAT I WOULD LIKE TO DOWHAT I WOULD LIKE TO DO

MONDAYMONDAY Go to shops to buy a card making kitGo to shops to buy a card making kit

Make cards for friends and familyMake cards for friends and family

TUESDAYTUESDAY 11am – 4pm11am – 4pm Meet with mum and advocate and go and see flat, return at Meet with mum and advocate and go and see flat, return at 4pm4pm

WEDNESDAYWEDNESDAY 2 – 3pm2 – 3pm

PMPM

Ventures cooking sessionVentures cooking session

Go and buy a top up card for phoneGo and buy a top up card for phone

THURSDAYTHURSDAY AMAM

PMPM

Psychology session at 12.30pmPsychology session at 12.30pm

Get a take-away for tea / supperGet a take-away for tea / supper

FRIDAYFRIDAY Enquire about swimming lessons at the local swimming Enquire about swimming lessons at the local swimming baths baths

Get ingredients and make own mealsGet ingredients and make own meals

SATURDAYSATURDAY AMAM

PMPM

Access the local community to buy some shoesAccess the local community to buy some shoes

SUNDAYSUNDAY Go for walkGo for walk

MD

T M

eeting

MD

T M

eeting


Recovery & RehabilitationRecovery & RehabilitationRe-lapse PreventionRe-lapse Prevention

Weekly activity planningWeekly activity planning Social skill developmentSocial skill development Self esteem / confidence buildingSelf esteem / confidence building Exposure to interactions with others Exposure to interactions with others

outside hospital settingsoutside hospital settings

Weekly TimetableWeekly Timetable

DAYDAY DATEDATE WHAT I WOULD LIKE TO DOWHAT I WOULD LIKE TO DO

MONDAYMONDAY Go out for lunch (picnic in park, weather pending)Go out for lunch (picnic in park, weather pending)

TUESDAYTUESDAY Go bowlingGo bowling

WEDNESDAYWEDNESDAY 2 – 3pm2 – 3pm

6.30 – 8pm6.30 – 8pm

Ventures cooking sessionVentures cooking session

Dance class – Northern School of DanceDance class – Northern School of Dance

THURSDAYTHURSDAY Go to the shops in local community and buy a CDGo to the shops in local community and buy a CD

FRIDAYFRIDAY Go for a walk around Roundhay ParkGo for a walk around Roundhay Park

SATURDAYSATURDAY AMAM

PMPM

Prepare for visit from parents, buy a cake and ingredients for Prepare for visit from parents, buy a cake and ingredients for teatea

Cook own team on ward using bought ingredientCook own team on ward using bought ingredient

SUNDAYSUNDAY Go to the picturesGo to the pictures

Weekly TimetableWeekly Timetable

DAYDAY DATEDATE WHAT I WOULD LIKE TO DOWHAT I WOULD LIKE TO DO

MONDAYMONDAY 15/915/9 Go to the shops to buy a CDGo to the shops to buy a CD

TUESDAYTUESDAY 16/916/9 Get out to buy a Chinese for teaGet out to buy a Chinese for tea

WEDNESDAYWEDNESDAY 17/917/9 Cooking with VenturesCooking with Ventures

THURSDAYTHURSDAY 18/918/9 Go to the shops to buy a CDGo to the shops to buy a CD

FRIDAYFRIDAY 19/919/9 Go to the cinemaGo to the cinema

SATURDAYSATURDAY 20/920/9 Buy ingredients and cook on the unitBuy ingredients and cook on the unit

SUNDAYSUNDAY 21/921/9 Go out to buy a Chinese for teaGo out to buy a Chinese for tea

0

5

10

15

20

25

Month

No. of T

imes T

echniq

ue U

sed

PRN

INA

Restraint

Seclusion


Self Advocacy FocusSelf Advocacy FocusFuture PlanningFuture Planning

CPA involvement / participationCPA involvement / participation Service user involvement representativeService user involvement representative Service user CPA focus group Service user CPA focus group

representativerepresentative Developed his own websiteDeveloped his own website

Person Centred ApproachPerson Centred ApproachSecuring future placementSecuring future placement

Where would I like to live?Where would I like to live?I would like to stay in Leeds. I would like to stay in Leeds.

I would like to remain living in Leeds city itselfI would like to remain living in Leeds city itself

What kind of place would I like to live in?What kind of place would I like to live in?Ideally I would like to live in a flat.Ideally I would like to live in a flat.

I would also like to live in a residential home with other people.I would also like to live in a residential home with other people.

Who would I like to live with?Who would I like to live with?I don’t mind living with other people.I don’t mind living with other people.

I would like to live with people my own age.I would like to live with people my own age.

I don’t mind living with men or women.I don’t mind living with men or women.

Person Centred ApproachPerson Centred ApproachSecuring future placementSecuring future placement

What kind of support would I need?What kind of support would I need?I would like staff support every day. I would like to know that people I would like staff support every day. I would like to know that people would be checking on me daily and giving me support in my daily would be checking on me daily and giving me support in my daily living. I would like help in managing my medication and to help living. I would like help in managing my medication and to help complete my daily chores. I would need help to do my shopping and complete my daily chores. I would need help to do my shopping and manage my finance. I would also like help in accessing and manage my finance. I would also like help in accessing and maintaining day services.maintaining day services.

Where would I NOT like to live.Where would I NOT like to live.I do not want to live in Wakefield. Other places I do not want to move I do not want to live in Wakefield. Other places I do not want to move to are; Scotland, London, Birmingham and Chesterto are; Scotland, London, Birmingham and Chester

Any Other ConsiderationsAny Other ConsiderationsI don’t want to live too far away from my father who lives in Leeds.I don’t want to live too far away from my father who lives in Leeds.

Weekly PlannerWeekly PlannerDayDay MorningMorning AfternoonAfternoon EveningEvening

MondayMonday 10-12noon10-12noon

Art ClassArt Class

13-15.0013-15.00

PhotographyPhotography

TuesdayTuesday 10-12noon10-12noon

GymGym

13-16.0013-16.00

GardeningGardening

19-20.0019-20.00

Gateway ClubGateway Club

WednesdayWednesday 09-17.0009-17.00

Hollybush Farm Conservation WorkHollybush Farm Conservation Work

ThursdayThursday 10-12noon10-12noon

Confidence buildingConfidence building

13-19.0013-19.00

GymGym

FridayFriday 13-15.0013-15.00

ArtArt

SaturdaySaturday 10-16.0010-16.00

Activity of choiceActivity of choice

SundaySunday 13-19.0013-19.00

Cook on unitCook on unit

To add any other activity he wishes to do in the blank slotsTo add any other activity he wishes to do in the blank slots


Treatment Pathway Involvement Treatment Pathway Involvement andand

Discharge PlanningDischarge Planning

Self recording of progress of own treatment planSelf recording of progress of own treatment plan Use of individualised language components to Use of individualised language components to

promote communicationpromote communication Utilisation of interests / hobbies to promote Utilisation of interests / hobbies to promote

involvement in identifying and planning future involvement in identifying and planning future placementplacement

Activity Plan for week commencing Activity Plan for week commencing Monday 7 June 2010Monday 7 June 2010

Day of the Day of the weekweek Planned ActivitiesPlanned Activities

Monday 7Monday 7 13.30 – Going out with Ventures to do the shopping13.30 – Going out with Ventures to do the shopping

18.30 – Going out to do the forgotten shopping again18.30 – Going out to do the forgotten shopping again

Tuesday 8Tuesday 8 13.30 – Going out to do the shopping to buy all the very nice new favourite things 13.30 – Going out to do the shopping to buy all the very nice new favourite things altogether todayaltogether today

Wednesday 9Wednesday 9 13.30 – Doing maths / jigsaw / wordsearch puzzles13.30 – Doing maths / jigsaw / wordsearch puzzles

18.00 – Family are coming to visit her18.00 – Family are coming to visit her

Thursday 10Thursday 10 13.30 – Going out with Ventures 13.30 – Going out with Ventures

17.00 – 18.00 – To gather together plates / cutlery for evening meal and then washing 17.00 – 18.00 – To gather together plates / cutlery for evening meal and then washing the evening meal potsthe evening meal pots

Friday 11Friday 11 13.30 – Going out with Ventures to do work13.30 – Going out with Ventures to do work

Saturday 12Saturday 12 10.30 – You will definitely need to go out to the mela with Claire to have all the Asian 10.30 – You will definitely need to go out to the mela with Claire to have all the Asian food and enjoy the tastefood and enjoy the taste

19.00 – To write her plan for next wee19.00 – To write her plan for next wee

Sunday 13Sunday 13 Relaxing day on the unitRelaxing day on the unit

12.00 – To gather together plates / cutlery for lunch and then wash the lunchtime pots12.00 – To gather together plates / cutlery for lunch and then wash the lunchtime pots

15.00 – Family are coming to visit her15.00 – Family are coming to visit her

Patient 5 Weight Monitoring 9 June 2009 – 25 May 2010Patient 5 Weight Monitoring 9 June 2009 – 25 May 2010

50

52

54

56

58

60

62

64

0 5 10 15 20 25 30 35 40 45 50 55

Weeks

Wei

ght K

G

Patient 5Patient 5

Patient 5’s move from hospital to her new homePatient 5’s move from hospital to her new home

Patient 5’s new home must allow her to do the activities she likes to do. Patient 5’s new home must allow her to do the activities she likes to do.

Staff at Staff at patientpatient 5’s new home can help her do her morning routine and 5’s new home can help her do her morning routine and follow her timetable like she has here at Parkside Lodgefollow her timetable like she has here at Parkside Lodge

What activities does she like to do?What activities does she like to do?

WW AA SS HH II NN GG UU PP TTAA CC LL EE AA NN II NN GG CC

MM EE ZZ EE GG FF AA RR EE GG

SS AA ZZ PP OO PP EE WW GG NN

JJ SS TT KK PP AA RR NN JJ II

II KK EE HH DD CC II QQ OO PP

GG LL RR CC SS TT SS AA II PP

SS AA KK DD II MM TT MM DD OO

AA WW LL RR LL FF AA GG SS HH

WW HH WW QQ BB AA TT HH XX SS

WASHING UP WRITING BATH JIGSAW CLEANINGSHOPPING READ MATHS WALKS

Staff at her home will also be able to look at new activities and different places to visit. Patient 5 likes to write lists of the things she has seen when she has been out.

Patient 5Patient 5

To make sure we get it right, she needs to write a list of all the things she To make sure we get it right, she needs to write a list of all the things she would like in her new home and the things she would like to take. She would like in her new home and the things she would like to take. She already has typed a list saying she would like a pink carpet, pink already has typed a list saying she would like a pink carpet, pink curtains, pink door, is this still right?curtains, pink door, is this still right?

Write a list ………………..Write a list ………………..

1.1. 7.7.2.2. 8.8.3.3. 9.9.4.4. 10.10.5.5. 11.11.6.6. 12.12.

Documents

Facilitating Service User Involvement