12
Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Embed Size (px)

Citation preview

Page 1: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa UomoThe European Prostate Cancer

Coalition

Jean Moreau & Louis Denis

OECI Workshop, Avignon, 14.03.08

Page 2: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo: Founding 2002

• Launched in Rome 2002 by Prof. U. Veronesi with support European School of Oncology & Oncologic Centre Antwerp.

• Statutes (analogy Europa Donna) represent a federation of patient led independent NGO associations. Start 12 countries now 21 European countries represented.

Europa Uomo, 2008

Page 3: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Mission according to Statutes

Europa Uomo, 2008

The Coalition wants to mobilize the support and solidarity of men towards better public and professional education, early detection and optimal physical and psychological treatment of prostate diseases and prostate cancer in particular, to raise public awareness and promote research on all aspects of these diseases.

•Keywords: Awareness, education, peer support, partnership, research

Page 4: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo Structure - NGO• General Assembly:

Executive Committee

Steering Committee

Strategic Committee

Scientific Committee• Task Force Committees:

Membership

Website

European Passport

Europa Uomo, 2008

Page 5: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo: Membership Rules

1. Patient led legal association.

2. Activities in aspects of prostate diseases.

3. Recognition of the 10 point Manifesto

Europa Uomo, 2008

Page 6: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Manifesto Europa Uomo

1. Promote quality of life for prostate cancer patients and their families.

5. To campaign for provision of and access to optimal treatment.

10.Promote advancement of prostate cancer research.

See flyer 2008 - Europa Uomo, 2008

Page 7: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Strategy Europa Uomo 2008

1. Find objective, updated information on prostate diseases and general oncology from partnership with professional organisations.

EAU, EONS, ESMO, ECCO (OECI)2. Distribute this information through

communication and education in a professional frame.

ESO, Cancerworld3. Unite with patient organisations to obtain

unisono advocacy.

ECPC, Europa Donna, EPPOSIEuropa Uomo, 2008

Page 8: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Focus Europa Uomo 2008

1. Develop individualized prostate cancer treatment based on optimal medical treatment and holistic patient care.

2. Help reduce overtreatment of prostate cancer.

Europa Uomo, 2008

Page 9: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo Ongoing Projects

1. Expansion Membership Europe

2. Partnership EAU, ESMO, ECCO

3. Support ECPC, Europa Donna

4. FP7 Europe: PROCABIO – PRIAS

5. Global development WWPCC

6. European Prostate Passport

Europa Uomo, 2008

Page 10: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Expansion Membership Europa Uomo

1. New members Romania, Cyprus, Lithuania (Slovenia, Bulgaria).

2. Search for equality and optimal available treatment in Europe without financial and other barriers.

3. Register and promote RCT and innovative treatment/medication.

Europa Uomo, 2008

Page 11: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Collaborating Partnership

1. Eurocan+Plus: Survivorship, Quality of Life

2. ESMO: Cancer Patients Working Group

3. EAU: Key Points 2007-2008

4. PROCABIO – PRIAS (ERSPC)

5. WWPCC (UICC World Cancer Congress)

Europa Uomo, 2008

Page 12: Europa Uomo The European Prostate Cancer Coalition Jean Moreau & Louis Denis OECI Workshop, Avignon, 14.03.08

Europa Uomo Initiatives

1. European Prostate Passport

2. Membership Prostate Symposia

3. Publications with IPHC ‘Woman’s Guide to her Man’s Prostate’

4. Global networking WWPCC, Izmir 2015

Europa Uomo, 2008