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A survey of Irish people's awareness and knowledge in relation to epilepsy. Survey conducted in January 2013.
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Epilepsy Knowledge and Attitudes
January Omnibus
A Presentation Prepared For
January 2013
By
MG/KP
S13-001
2
A number of questions were placed on the Amárach Research
January omnibus. The omnibus survey is a syndicated survey
whereby clients can include questions within the survey.
A total sample of 1001 was achieved with quotas set on gender,
age, social class and region to achieve a sample aligned with
national population. Due to the high proliferation of the internet
among the Irish population, the Amárach Research omnibus is
completed fully online.
Interviewing fieldwork dates were January 14th – 18th.
Research Methodology
MAIN FINDINGS
4
Understanding of Epilepsy
Q. Do you know of anyone who has epilepsy?
Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
%
39% 45%
16%
Yes
Don’t know
%
No
46
44
46
51
39
47
44
50
43
43
44
(Base: 1,001)
People who know somebody with EpilepsyKnows somebody with Epilepsy
(N=454)
Almost half (45%) of the Irish
population know someone
who has epilepsy
5
Understanding of Epilepsy
Q. Has anyone ever had a seizure in your presence?
%
45%
38%
17%
Yes
Don’t know
%
No
(Base: 1,001)
Those who have witnesses a seizureWitnessed an epileptic seizure
(N=382)
Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
42
35
35
39
36
38
41
39
42
36
34
60
21
Those who know someone
with epilepsy are significantly
more likely to witness an
epileptic seizure
6
Understanding of Epilepsy
Q. Would you know what to do if someone was having a seizure in your presence?
%
38% 43%
19%
Yes
Don’t know
%
No
(Base: 1,001)
Those who know what to do if
someone is having a seizure
Knowing what to do when
someone has a seizure
(N=429)
Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
46
40
39
45
41
40
47
45
43
40
43
62
29
Those who know someone
with epilepsy are likely to
have a better understanding
of what they should do if
someone has a seizure
7
Understanding of Epilepsy
Q. Would you employ a person with epilepsy?
%
19%
63%
18%
Yes
Don’t know
%
No
(Base: 1,001)
Those who would not employ
someone who had EpilepsyEmploy someone with Epilepsy
(N=189)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
18
20
16
21
21
18
18
19
17
22
17
10
25
Those who know someone
with epilepsy are likely to
have a greater understanding
and are therefore more likely
to employ someone with
epilepsy.
8
Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – Epilepsy is a contagious condition?
%
86%
7%7% Yes
Don’t know
%
No
(Base: 1,001)
Those who know Epilepsy is
not Contagious
Epilepsy is Contagious
True/False?
(N=68)
80
92
83
76
88
91
94
80
86
89
92
85
91
It is surprising to note that
7% of people think that
epilepsy is contagious whilst
a further 7% are unsure,
potentially leading to
discrimination and exclusion
9
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – the majority of
people with epilepsy must avoid flashing or flickering lights?
%
12%
71%
16%
Yes
Don’t know
%
No
(Base: 1,001)
Those who believe people with
Epilepsy must avoid flashing lights
People with Epilepsy must
avoid flashing lights
(N=711)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
70
72
70
65
73
70
76
70
66
77
79
71
72
It is believed by over 70% of
people that the majority of
people who have epilepsy
must avoid flashing/flickering
lights
10
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – Almost all
seizures involve falling to the ground followed by jerking movements.
%
38% 43%
19%
Yes
Don’t know
%
No
(Base: 1,001)
Those who believe that all seizures
involve convulsions on the ground
Almost all seizures involve falling
to the ground & jerking movements
(N=430)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
43
43
41
45
44
40
44
43
43
42
43
43
45
There is confusion among
respondents on the effects of a
epileptic seizure. The data
indicates that almost half (43%)
believe that almost all seizures
involve falling on the ground in
convulsions.
11
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – not all seizures
require immediate medical intervention?
%
24%
56%
20%
Yes
Don’t know
%
No
(Base: 1,001)
Those who say that not all seizures
require medical attention
Not all Seizures require
medical attention
(N=559)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
55
56
38
48
59
63
64
46
56
61
62
62
55
Younger cohorts are significantly
more likely to believe that all
seizures require medical
attention. People who know PWE
are more likely to say they don’t
require medical attention
12
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – having epilepsy
negatively affects a persons intelligence?
%
83%
5%12%
YesDon’t know
%No
(Base: 1,001)
Those who believe that Epilepsy
does not affect intelligence
Epilepsy negatively
effect intelligence
(N=827)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
78
87
74
78
84
88
88
78
84
85
85
85
82
17% of the population think,
or are unsure as to whether
people with epilepsy are less
intelligent as a result of their
condition
13
Understanding of Epilepsy
Q. Answer true, false or don’t know to the following statements – there is a social
stigma attached to those who have epilepsy?
%
50%23%
27%
No
Don’t know
%
Yes
(Base: 1,001)
Those who feel there is a stigma
attached to Epilepsy
There is a social stigma attached
to those with Epilepsy
(N=499)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
55
45
46
48
53
49
52
52
46
48
55
59
45
50% of respondents believe
that a negative stigma is
attached to those who have
epilepsy. This instance is
highest in respondents who
know someone with epilepsy
14
Understanding of Epilepsy
Q. What actions would you take if you witnessed someone have a seizure? Place
something in their mouth to prevent them swallowing their tongue.
%
31%
51%
19%
Yes
Don’t know
%
No
(Base: 1,001)
Those who would place something in mouth
Would you prevent someone from swallowing tongue during a seizure by placing something in their mouth
(N=508)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
56
45
42
52
47
46
61
56
48
50
48
49
56
Over half (51%) of
respondents would place
something in a persons
mouth to prevent them from
swallowing their tongue if
they were having a seizure
15
Understanding of Epilepsy
Q. What actions would you take if you witnessed someone have a seizure?
Shorten the seizure by throwing water on the persons face.
%
74%
7%19%
Yes
Don’t know
%
No
(Base: 1,001)
Those who would not throw Those who would not throw water on their face
Throwing water on their face Throwing water on their face will shorten the seizure
(N=743)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
66
82
66
68
74
83
80
66
69
79
88
75
75
If someone was having a
seizure, it is unlikely that that
people would throw water on
their face in an effort to stop
the seizure
16
Understanding of Epilepsy
Q. What actions would you take if you witnessed someone have a seizure? Stop
the seizure by restraining the persons movements.
%
59%
18%
21%
Yes
Don’t know
%
No
(Base: 1,001)
Those who would not Those who would not restrict their movements
Restraining the movements Restraining the movements will stop the seizure
(N=594)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
56
63
50
59
56
64
65
53
57
62
68
63
57
Almost 1 in 5 (18%)
respondents would restrain a
person’s movements if they
were having a seizure
believing that it will help stop
the seizure
17
Understanding of Epilepsy
Q. What actions would you take if you witnessed someone have a seizure? Stay
with the person until the seizure is over.
%
3%
90%
7%
Yes
Don’t know
%
No
(Base: 1,001)
Those who are most likely to stay with Those who are most likely to stay with the person until the seizure is over
Stay with the person Stay with the person until the seizure is over
(N=594)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
87
92
82
87
90
93
95
87
89
92
92
91
91
It is shocking to note that
10% of respondents stated
that they wouldn’t / would be
unsure if they would stay
with a person until the
seizure was over
18
Understanding of Epilepsy
Q. What actions would you take if you witnessed someone have a seizure?
Automatically call an ambulance.
%
25%
59%
17%
Yes
Don’t know
%
No
(Base: 1,001)
Those who would call an ambulanceCall an ambulance
(N=586)Gender
– Male
– Female
Age
– 15-24
– 25-34
– 35-44
– 45-54
– 55+
Region
– Dublin
– Rest of Leinster
– Munster
– Connaught
Know someone with Epilepsy
Yes
No
59
58
61
62
63
52
55
65
57
54
58
55
62
6 in 10 (59%) respondents
would call an ambulance if
they witnessed somebody
having an epileptic seizure