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Epilepsy Knowledge and Attitudes January Omnibus A Presentation Prepared For January 2013 By MG/KP S13-001

Epilepsy Ireland - Attitudes and Knowledge Survey

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A survey of Irish people's awareness and knowledge in relation to epilepsy. Survey conducted in January 2013.

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Page 1: Epilepsy Ireland - Attitudes and Knowledge Survey

Epilepsy Knowledge and Attitudes

January Omnibus

A Presentation Prepared For

January 2013

By

MG/KP

S13-001

Page 2: Epilepsy Ireland - Attitudes and Knowledge Survey

2

A number of questions were placed on the Amárach Research

January omnibus. The omnibus survey is a syndicated survey

whereby clients can include questions within the survey.

A total sample of 1001 was achieved with quotas set on gender,

age, social class and region to achieve a sample aligned with

national population. Due to the high proliferation of the internet

among the Irish population, the Amárach Research omnibus is

completed fully online.

Interviewing fieldwork dates were January 14th – 18th.

Research Methodology

Page 3: Epilepsy Ireland - Attitudes and Knowledge Survey

MAIN FINDINGS

Page 4: Epilepsy Ireland - Attitudes and Knowledge Survey

4

Understanding of Epilepsy

Q. Do you know of anyone who has epilepsy?

Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

%

39% 45%

16%

Yes

Don’t know

%

No

46

44

46

51

39

47

44

50

43

43

44

(Base: 1,001)

People who know somebody with EpilepsyKnows somebody with Epilepsy

(N=454)

Almost half (45%) of the Irish

population know someone

who has epilepsy

Page 5: Epilepsy Ireland - Attitudes and Knowledge Survey

5

Understanding of Epilepsy

Q. Has anyone ever had a seizure in your presence?

%

45%

38%

17%

Yes

Don’t know

%

No

(Base: 1,001)

Those who have witnesses a seizureWitnessed an epileptic seizure

(N=382)

Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

42

35

35

39

36

38

41

39

42

36

34

60

21

Those who know someone

with epilepsy are significantly

more likely to witness an

epileptic seizure

Page 6: Epilepsy Ireland - Attitudes and Knowledge Survey

6

Understanding of Epilepsy

Q. Would you know what to do if someone was having a seizure in your presence?

%

38% 43%

19%

Yes

Don’t know

%

No

(Base: 1,001)

Those who know what to do if

someone is having a seizure

Knowing what to do when

someone has a seizure

(N=429)

Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

46

40

39

45

41

40

47

45

43

40

43

62

29

Those who know someone

with epilepsy are likely to

have a better understanding

of what they should do if

someone has a seizure

Page 7: Epilepsy Ireland - Attitudes and Knowledge Survey

7

Understanding of Epilepsy

Q. Would you employ a person with epilepsy?

%

19%

63%

18%

Yes

Don’t know

%

No

(Base: 1,001)

Those who would not employ

someone who had EpilepsyEmploy someone with Epilepsy

(N=189)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

18

20

16

21

21

18

18

19

17

22

17

10

25

Those who know someone

with epilepsy are likely to

have a greater understanding

and are therefore more likely

to employ someone with

epilepsy.

Page 8: Epilepsy Ireland - Attitudes and Knowledge Survey

8

Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – Epilepsy is a contagious condition?

%

86%

7%7% Yes

Don’t know

%

No

(Base: 1,001)

Those who know Epilepsy is

not Contagious

Epilepsy is Contagious

True/False?

(N=68)

80

92

83

76

88

91

94

80

86

89

92

85

91

It is surprising to note that

7% of people think that

epilepsy is contagious whilst

a further 7% are unsure,

potentially leading to

discrimination and exclusion

Page 9: Epilepsy Ireland - Attitudes and Knowledge Survey

9

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – the majority of

people with epilepsy must avoid flashing or flickering lights?

%

12%

71%

16%

Yes

Don’t know

%

No

(Base: 1,001)

Those who believe people with

Epilepsy must avoid flashing lights

People with Epilepsy must

avoid flashing lights

(N=711)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

70

72

70

65

73

70

76

70

66

77

79

71

72

It is believed by over 70% of

people that the majority of

people who have epilepsy

must avoid flashing/flickering

lights

Page 10: Epilepsy Ireland - Attitudes and Knowledge Survey

10

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – Almost all

seizures involve falling to the ground followed by jerking movements.

%

38% 43%

19%

Yes

Don’t know

%

No

(Base: 1,001)

Those who believe that all seizures

involve convulsions on the ground

Almost all seizures involve falling

to the ground & jerking movements

(N=430)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

43

43

41

45

44

40

44

43

43

42

43

43

45

There is confusion among

respondents on the effects of a

epileptic seizure. The data

indicates that almost half (43%)

believe that almost all seizures

involve falling on the ground in

convulsions.

Page 11: Epilepsy Ireland - Attitudes and Knowledge Survey

11

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – not all seizures

require immediate medical intervention?

%

24%

56%

20%

Yes

Don’t know

%

No

(Base: 1,001)

Those who say that not all seizures

require medical attention

Not all Seizures require

medical attention

(N=559)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

55

56

38

48

59

63

64

46

56

61

62

62

55

Younger cohorts are significantly

more likely to believe that all

seizures require medical

attention. People who know PWE

are more likely to say they don’t

require medical attention

Page 12: Epilepsy Ireland - Attitudes and Knowledge Survey

12

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – having epilepsy

negatively affects a persons intelligence?

%

83%

5%12%

YesDon’t know

%No

(Base: 1,001)

Those who believe that Epilepsy

does not affect intelligence

Epilepsy negatively

effect intelligence

(N=827)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

78

87

74

78

84

88

88

78

84

85

85

85

82

17% of the population think,

or are unsure as to whether

people with epilepsy are less

intelligent as a result of their

condition

Page 13: Epilepsy Ireland - Attitudes and Knowledge Survey

13

Understanding of Epilepsy

Q. Answer true, false or don’t know to the following statements – there is a social

stigma attached to those who have epilepsy?

%

50%23%

27%

No

Don’t know

%

Yes

(Base: 1,001)

Those who feel there is a stigma

attached to Epilepsy

There is a social stigma attached

to those with Epilepsy

(N=499)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

55

45

46

48

53

49

52

52

46

48

55

59

45

50% of respondents believe

that a negative stigma is

attached to those who have

epilepsy. This instance is

highest in respondents who

know someone with epilepsy

Page 14: Epilepsy Ireland - Attitudes and Knowledge Survey

14

Understanding of Epilepsy

Q. What actions would you take if you witnessed someone have a seizure? Place

something in their mouth to prevent them swallowing their tongue.

%

31%

51%

19%

Yes

Don’t know

%

No

(Base: 1,001)

Those who would place something in mouth

Would you prevent someone from swallowing tongue during a seizure by placing something in their mouth

(N=508)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

56

45

42

52

47

46

61

56

48

50

48

49

56

Over half (51%) of

respondents would place

something in a persons

mouth to prevent them from

swallowing their tongue if

they were having a seizure

Page 15: Epilepsy Ireland - Attitudes and Knowledge Survey

15

Understanding of Epilepsy

Q. What actions would you take if you witnessed someone have a seizure?

Shorten the seizure by throwing water on the persons face.

%

74%

7%19%

Yes

Don’t know

%

No

(Base: 1,001)

Those who would not throw Those who would not throw water on their face

Throwing water on their face Throwing water on their face will shorten the seizure

(N=743)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

66

82

66

68

74

83

80

66

69

79

88

75

75

If someone was having a

seizure, it is unlikely that that

people would throw water on

their face in an effort to stop

the seizure

Page 16: Epilepsy Ireland - Attitudes and Knowledge Survey

16

Understanding of Epilepsy

Q. What actions would you take if you witnessed someone have a seizure? Stop

the seizure by restraining the persons movements.

%

59%

18%

21%

Yes

Don’t know

%

No

(Base: 1,001)

Those who would not Those who would not restrict their movements

Restraining the movements Restraining the movements will stop the seizure

(N=594)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

56

63

50

59

56

64

65

53

57

62

68

63

57

Almost 1 in 5 (18%)

respondents would restrain a

person’s movements if they

were having a seizure

believing that it will help stop

the seizure

Page 17: Epilepsy Ireland - Attitudes and Knowledge Survey

17

Understanding of Epilepsy

Q. What actions would you take if you witnessed someone have a seizure? Stay

with the person until the seizure is over.

%

3%

90%

7%

Yes

Don’t know

%

No

(Base: 1,001)

Those who are most likely to stay with Those who are most likely to stay with the person until the seizure is over

Stay with the person Stay with the person until the seizure is over

(N=594)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

87

92

82

87

90

93

95

87

89

92

92

91

91

It is shocking to note that

10% of respondents stated

that they wouldn’t / would be

unsure if they would stay

with a person until the

seizure was over

Page 18: Epilepsy Ireland - Attitudes and Knowledge Survey

18

Understanding of Epilepsy

Q. What actions would you take if you witnessed someone have a seizure?

Automatically call an ambulance.

%

25%

59%

17%

Yes

Don’t know

%

No

(Base: 1,001)

Those who would call an ambulanceCall an ambulance

(N=586)Gender

– Male

– Female

Age

– 15-24

– 25-34

– 35-44

– 45-54

– 55+

Region

– Dublin

– Rest of Leinster

– Munster

– Connaught

Know someone with Epilepsy

Yes

No

59

58

61

62

63

52

55

65

57

54

58

55

62

6 in 10 (59%) respondents

would call an ambulance if

they witnessed somebody

having an epileptic seizure

Page 19: Epilepsy Ireland - Attitudes and Knowledge Survey
Page 20: Epilepsy Ireland - Attitudes and Knowledge Survey