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… because safeguarding children is everyone’s responsibility
Enfield CDOP
Learning Event November 5th 2015
Twitter @EnfieldSCB
#EnfieldCDOP
www.slido.com
#EnfieldCDOP Wifi – LBE Guest
Username – CDOP05
Password: USKG7084
… because safeguarding children is everyone’s responsibility
Geraldine Gavin
Enfield Safeguarding Children
Board Independent Chair
… because safeguarding children is everyone’s responsibility
Interact We are using sli.do at today’s conference
Take out your smart phones and connect to the internet:
Open a web browser
Go to www.slido.com and enter the event code
#EnfieldCDOP
Easily summit your questions and express your opinion by
voting on live polls.
You can also use Twitter…
Twitter @EnfieldSCB
#EnfieldCDOP
… because safeguarding children is everyone’s responsibility
Child Death Overview Panel
Dr. Allison Duggal
Consultant in Public Health & Chair of CDOP
Christina Keating Designated Nurse for
Safeguarding Children
Grant Landon
ESCB Business Manager
… because safeguarding children is everyone’s responsibility
Background • England was the first country to have
national procedures for review of all child
deaths.
• Response to Inquiry into death of Victoria
Climbie and the Every Child Matters Green
Paper, 2003.
• Introduced in Working Together to Safeguard
Children, 2006 and repeated in revisions up
to March 2015
… because safeguarding children is everyone’s responsibility
Background
• Children Act 2004 & Working Together 2006
– Creation of Local Safeguarding Children Boards
(LSCBs) by 2006
– LSCBs to review all child deaths in their area
– LSCBs convene a CDOP for this purpose
• Coroner’s Rules 1984 amendment in July 2008
– Duty to notify deaths to LSCB
– Power to provide information about deaths to LSCB
… because safeguarding children is everyone’s responsibility
Background
• Children and Young Persons Act 2008
– Registrars given duty to inform LSCB of death
certificate information
– Registrar General given duty to inform Secretary
of State of all child deaths whether here or abroad
• These powers allow for flow of information
but their use depends on interpretation
… because safeguarding children is everyone’s responsibility
Exercise
Consider the questions on your
tables. Discuss with others on
your table and be prepared to
feedback your responses
… because safeguarding children is everyone’s responsibility
Questions 1. What constitutes a child death that would be
considered by CDOP?
2. How do you notify CDOP of a child death? Consider
Who? Why? What? When?
3. What is the difference between an expected and
unexpected death?
4. What is a Rapid Response Meeting? What is its
purpose? Who should attend?
5. What is the Child Death Overview Panel? What is its
purpose? What should attend?
… because safeguarding children is everyone’s responsibility
Why review all deaths?
• Evidence based interventions to prevent child deaths
• Public health information about patterns of child death
• Interagency working to safeguard children and promote their welfare
• Statutory requirement, moral imperative and public expectation to promote learning and transparency
… because safeguarding children is everyone’s responsibility
Enfield CDOP
• Sub-committee of ESCB
• Operating 7yrs
• Received 241 notifications to date
• Reviewed total of 222 deaths
• Deaths of all children under 18yrs resident in Enfield reviewed –
includes >23/40 gestation
• Determines any modifiable factors in prevention of death
• Bereavement support needs for family & professionals
• Standardised national dataset
… because safeguarding children is everyone’s responsibility
CDOP
Multidisciplinary panel • Chair – Public Health Consultant
• Health
• Paediatrics, Neonates, General Practice, Mental
Health, Safeguarding, Nursing and Midwifery,
Health Visiting
• Social care – Children’s Social Care & Safeguarding
Board
• London Ambulance Service
• Police - CAIT
• Education
… because safeguarding children is everyone’s responsibility
CDOP
Core Functions • Prevent future deaths
• Identify risks and trends associated with child
death
• Timely, accurate cause of death reporting
• Ensure rapid response for unexpected deaths
• Liaise with agencies about preventable factors
and lessons learned
• Bereavement Support
… because safeguarding children is everyone’s responsibility
CDOP
Core Functions • Advise ESCB re training/resources for interagency
working
• Exchange of information with Police and Coroner
• Advise ESCB regarding s47 or SCR processes
• Collate and submit minimum datasets
• Locally implement regional/national initiatives
• Interface with Serious Case Review Subcommittee
… because safeguarding children is everyone’s responsibility
CDOP Procedure • Notification of death to SPOC
• Notification protocol – multi-agency Form A
• Request for information via Form B
• Unexpected deaths managed through Rapid
Response Meeting
• Expected deaths discussed at quarterly CDOP
meetings
• Deaths classified and modifiable factors determined.
• Form C Analysis prepared by CDOP coordinator post
case reviews
• Publication in anonymised form annually
… because safeguarding children is everyone’s responsibility
Rapid Response
• Subcommittee of CDOP which considers all
unexpected child deaths i.e. not expected within
previous 24hrs or unanticipated collapse leading to death
• Functions
– Enquire into reasons and circumstances of death
– Identify and safeguard other children in the home
– Understand and challenge organisation’s roles
– Bereavement support for family & professionals
– Collect standardised data set and report to CDOP
… because safeguarding children is everyone’s responsibility
Rapid Response
Procedure • Notification of death to SPOC
• Notification of death to local agencies by protocol
• Request for information from agencies- Form B
• Decision taken by Designated Paediatrician for Child
Death to call a Rapid Response meeting – usually
within 5 working days of notification.
• Submission of information about child and family held
by agencies to SPOC and CDOP
• Coroner investigates death and post mortem carried
out as appropriate
… because safeguarding children is everyone’s responsibility
Rapid Response
Procedure • Meeting chaired by Designated Paediatrician for Child Death
• Professionals meet to share information and discuss post
mortem preliminary results if available
• Whole life history of child and family considered
• Areas of risk/concern identified and recommendations made
• Minutes circulated and further information gathered
• Second meeting may be called to discuss final post mortem
results
• Findings submitted to CDOP for classification.
• Referral for SCR made to SCR Subcommittee where needed
… because safeguarding children is everyone’s responsibility
CDOP Statistics
Number of Deaths 2014-5
• There were 17 deaths reviewed between 1 April 2014
and 31 March 2015
• 3 deaths were found to have modifiable factors
• There were no SUDIs
• No deaths were referred to Serious Case Review
… because safeguarding children is everyone’s responsibility
CDOP Statistics
Gender Category of Death
Male
Female
information notavailable
Trauma and otherexternal factors
Malignancy
Acute medical orsurgical condition
Chronic medicalcondition
Chromosomal,genetic andcongenital anomalies
Perinatal/neonatalevent
Infection
… because safeguarding children is everyone’s responsibility
CDOP Statistics
Age at Death 2014-5
Time Taken from Death to
Panel Discussion
0-27 days
28-364 days
1-4 years
5-9 years
10-14 years
15-17 years
>4 years
Between 3 and 4years
Between 2 and 3years
Between 1 and 2years
Within one year
… because safeguarding children is everyone’s responsibility
“…..Every family has the right to have their child’s
death properly investigated. Families desperately
want to know what happened, how the events
could have occurred, what the cause of death was,
and whether it could have been prevented. This is
important in terms of grieving”.
Baroness Helena Kennedy QC, 2007.
… because safeguarding children is everyone’s responsibility
Useful Contacts
Enfield Single Point of Contact – Jean Rogers beh-tr.enf-pct-
[email protected] 020 8702 5600
Enfield CDOP Coordinator – Aileen Ingram [email protected] or
[email protected] 020 8379 3012
Bliss - www.bliss.og.uk
Child Bereavement UK-www.childbereavement.org.uk
Child Death Helpline - www.childdeathhelpline.org.uk
Lullaby Trust - www.lullabytrust.org.uk
Sands - www.uk-sands.org.uk
Winston’s Wish - www.winstonswish.org.uk
Grief Encounter - www.griefencounter.org.uk
… because safeguarding children is everyone’s responsibility
ESCB Contacts
• Website - www.enfieldlscb.org
- lots of useful information for
professionals and families
• Twitter @EnfieldSCB
• Facebook - Enfield LSCB
… because safeguarding children is everyone’s responsibility
Infant deaths in Enfield with
a focus on SUDIs
Dr Justin Daniels
CDOP paediatrician, Enfield
November 2015
… because safeguarding children is everyone’s responsibility
CDOP process
• Introduced 2008
• Operated in shadow form from 2007
• Rapid reviews for unexpected deaths
… because safeguarding children is everyone’s responsibility
Data
• Looked at year 2008-9 to 2014-15
• 230 deaths 0-18
• 153 of these were under the age of 1
… because safeguarding children is everyone’s responsibility
Deaths per year
0
10
20
30
40
50
60
70
80
2008-9 2009-10 2010-11 2011-12 2012-13 2013-14 2014-15
under 1s
all
… because safeguarding children is everyone’s responsibility
Deaths per year
• Change in coroners ruling
• Follows expected trend
• CMR 29/100,000 in 1983,10/100,000
2013
… because safeguarding children is everyone’s responsibility
What did babies die of cause of deaths in under 1s
73
18
59 9 9
1611
1 2
0
10
20
30
40
50
60
70
80
prem
gene
tic /
cong
enita
l abn
orm
ality
met
abol
ic
infe
ctio
n
uncla
ssifi
ed
card
iac
sudi
perin
atal
traum
a
mal
igna
ncy
… because safeguarding children is everyone’s responsibility
Comparative data
• On average there are just under 5,000
deliveries a year in Enfield.
• ONS data in brackets for 2012 and 2013
• This gives us:
• An infant mortality rate of 4/1,000 (3.8)
• A SUDI rate of 0.4/1,000 (0.3 )
• A childhood mortality rate of 0.13/1,000
(0.15)
… because safeguarding children is everyone’s responsibility
SUDIs
• 16 in total
• No clear pattern over time
• mean age 195 days
• 2 ex prems
• If excluded – 75 days
… because safeguarding children is everyone’s responsibility
Risk Factors • DH / NICE advice
• In a cot
• On back (not side or front)
• Feet to end
• Don’t bed share if premature, LBW, alcohol, smoker, drugs, tired
• Same room for first 6 months
• Never sleep on a sofa or chair with or without parent
• Don’t overheat
… because safeguarding children is everyone’s responsibility
Risk Factors • 4 placed prone / side
– 1 reflux advice
– 1 found prone ? How placed
• 5 bed sharing with risk factors
– 2 prem
– 3 alcohol
– 1 smoking
– 2 probable drug usage
… because safeguarding children is everyone’s responsibility
Risk Factors
• 3 sofa or chair sharing
– 1 with smoking and probable drug usage
• 2 were premature and found correctly
placed – both older with severe health
problems
… because safeguarding children is everyone’s responsibility
Risk Factors
• 14 out of 16 had very clear risk factors
• Remaining two unclear history – one
multiple risk factors
… because safeguarding children is everyone’s responsibility
Risk Factors
• Almost all babies had risk factors – not
surprising
• Does this mean that almost all
preventable?