ECPC Annual Congress 2019

European Cancer Patient Coalition www.ecpc.org [email protected]

Twitter: @cancereu Facebook: @ECPCfb + 32 (0) 2 721 41 14

ECPC Annual Congress 2019

Renaissance Hotel, Brussels, 7-8 June 2019



Foreword Dear Members, Dear Friends, We are pleased to welcome you to the 14th ECPC Annual Congress and Annual General Meeting. We are the largest European cancer patients’ umbrella organisation and as such we pride ourselves on being the voice of cancer patients in Europe. Working together with over 400 members covering all 28 EU member states and many other non-European countries our mission is to empower and inform citizens affected by cancer. The annual congress is our most important event of the year. This is when we can not only provide a thorough update of our activities but when we can listen to our valued Members regarding their needs and challenges and learn from them through the study of best practice. It is also an opportunity to deliver inspiring presentations from key figures working in Oncopolicy, Capacity Building and Research. Enabling us to explore how we can create synergies between partners in all sectors and industries in the shared goal of supporting those who are in the fight against cancer and related issues in our society. This year we present to you three main events over the three days: the pre-congress Workshops, the Congress and the Annual General Meeting. Each addressing and exploring numerous topics presented by those actively working in these fields. The workshops are a unique opportunity to explore specific areas of interest allowing the participants to shape the content and conclusions with those leading the conversations, while the Congress will present to you a broad and insightful vision of cancer related issues. It is key for us to foresee future developments and respond with innovative new approaches and strategic thinking in order to provide the best results for all. Finally, the Annual General Meeting will be the moment to get practical and make decisions that will shape future activities and work plans as we welcome new Board Members and staff. We also recognise the importance of enabling moments where members and ECPC staff can take the time to make new connections and share their stories and experiences with one another. This is where new friendships and partnerships can be forged, encouraging the spread of knowledge and practice to maximise impact. Finally, we would like to thank you for your presence and contributions, and we hope that you find the programme informative and inspiring. We believe that what we do makes a difference, and this is an opportunity to celebrate the achievements of the past year and to share new ideas in paving the way towards a better future!

Francesco de Lorenzo ECPC President



ECPC Annual Congress 2019

AGENDA

Friday, 7th June

09:30 – Registration

Pre-congress Workshops & Events

10:00– 13:00 Social Disparities in Cancer (ROOM: Luxembourg)

10:30 – 13:00 Urological Cancers (ROOM: Warsaw)

10:00 – 13:00 Rare Cancers (ROOM: Copenhagen/Essen)

13:00 - 14:30 Lunch and Registration (ROOM: Foyer 1)

14:30 – 15:00 Opening Session moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

Chaired by ECPC President, Francesco de Lorenzo

Welcome word by Member of the European Parliament Lieve Wierinck

15:00 – 15:30 European Commission Proposal on Health Technology Assessment Cooperation and Patient Involvement in HTA

Flora Giorgio, Head of Sector HTA, DG SANTE, European Commission

15:30 – 16:00 Coffee break and group photo

16:00 – 16:30 Work-Life Balance Directive and European Pillar of Social Rights, from regulation to implementation

Efi Anastasiou, European Commission, DG EMPL

16:30 – 17:00 The era of new advanced cancer diagnostics

Marc van den Bulcke, Head of Service, Cancer Centre, Sciensano

17:00 – 17:30 Closing of the day

19:00 - 22:00 Dinner (ROOM: Ball Room 1 + 2)

Saturday, 8th June

09:00 - 09:30 (ROOM: Foyer 1)

09:30 - 09:40 Introduction to the programme of the day moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

09:40 – 10:15 ECPC's highlights and achievements of the past year

ECPC President, Francesco de Lorenzo

http://www.ecpc.org/about-us/annual-general-meetings/ac-2019#link_tab



10:15 - 11:00 Social Disparities & Work-Life Balance Directive moderated by Tamsin Rose

Chaired by: Kathi Apostolidis, ECPC Vice-President and Francoise Meunier, FEAM Vice-President

• Europe of Social Disparities

Antonella Cardone, ECPC Director

Roberto De Miro, Chair of the ECPC Legal Network for Cancer Patients

• Embracing Carers

Mihaela Militaru, Senior Director, EU Patient Advocacy, Merck Group

11:00 - 11:30 Coffee Break (ROOM: Foyer 1)

11:30 - 13:00 Digital Health moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

Chaired by Ken Matris, ECPC Board Member

eSMART

Roma Maguire, Professor of Digital Health and Care, University of Strathclyde

Introduction to Digital Health

Kathi Apostolidis, ECPC Vice-President

13:00 - 14:30 Lunch buffet (ROOM:Lisbon/Madrid/Essen/Copenhagen/Warsaw)

14:30 - 15:30 Personalised medicine moderated by Tamsin Rose

(ROOM: Ball Room 1 + 2)

Chaired by Matti Järvinen, ECPC Board Member

European Liquid Biopsy Academy

Danijela Koppers-Lalic, VU Medical Center, Cancer Center Amsterdam

What is biobanking and why it matters to cancer patients? Diagnostics, genomics and personalized medicine

Francesco Florindi, Strategy and Partnership Manager, BBMRI-ERIC

15:30 - 16:00 Coffee break

16:00 – 16:30 HTA Educational module

Alex Filicevas, Head of EU Affairs, ECPC

16:30 – 17:00 Malnutrition and Cancer

Isabelle Manneh, Head of Health & Research Programmes, ECPC

17:00 - 17:30 Mindfulness-based cognitive therapy

19:15 - 23:00 Dinner (ROOM: Ball Room 1 + 2)



ECPC Workshop on Social Disparities in Cancer

Legal Network for Cancer Patients Friday 7 June 2019, 9:30 – 13:00

Room: Luxembourg / The Hague

Chairs: Francesco de Lorenzo, ECPC President

Roberto de Miro, FAVO; ECPC Legal Network for Cancer Patients Chair Overview: To build a better picture of social disparities in cancer across Europe, ECPC Legal Network for Cancer Patients undertook a survey in 2018/2019. We will present the preliminary findings during this workshop and work together to create a better picture of social disparities that exist in Europe and how to address them. Together, we will discuss concrete examples of best and worst practices in different countries and draft recommendations for policies to address these social disparities. We aim to create a clearer link between cancer carers, survivors and patients’ rights and social and employment rights. We will also discuss the occupational cancer risks, with an example of Non -Melanoma Skin Cancer (NMSC) ahead of the launch of the Global NMSC Awareness Day on June 13 th. Agenda: 9:30 – 10:00 Registration, networking breakfast

10:00 – 10:10 Welcome and Introductions

Francesco de Lorenzo, ECPC & Roberto de Miro, FAVO

10:10 – 11:30 Social Disparities in Europe

Policy Updates - Alex Filicevas, ECPC & Francoise Meunier, FEAM

ECPC Survey Preliminary Results - Antonella Cardone, ECPC & Roberto de Miro, FAVO

Carers: key challenges and actions/recommendations – Claire Champeix, Eurocarers

Patients: key challenges and actions/recommendations – Kathi Apostolidis, ECPC Vice President

11:30 – 12:00 Open Discussion

12:00 – 12:10 Stretch Break

12:10 – 12:45 Occupational Cancer Risks: Non-Melanoma Skin Cancer

Addressing challenges related to occupational cancers at EU level

Antonella Cardone, Director & Alex Filicevas, Head of EU Affairs, ECPC

Local activation to raise awareness on occupational skin cancer

Osvaldo Correia, President & João Maia Silva of the Associação Portuguesa de Cancro Cutâneo / Portuguese

Skin Cancer Association (APCC) (TBC)

12:45 – 13:00 Open Discussion; Conclusions and next steps

Francesco de Lorenzo, ECPC President & Roberto de Miro, FAVO

13:00 – 14:30 Lunch

Room: Lisbon / Madrid



ECPC Working Group On Rare Cancers Meeting Friday 7 June 2019, 9:30 – 13:00

Room: Copenhagen/Essen

Agenda:

9:30 – 10:00 Registration

10:00 – 10:15 Opening Message

Welcome Speech and Introductions Jana Pelouchova, ECPC General Secretary and Laura D'Avanzo, WGRC Co-Chairs

Mary Skehan, WGRC Co-Chair Maude Andersson, ECPC Board Member Matti Järvinen, ECPC Board Member Isabelle Manneh, ECPC Head of Health & Research programmes

10:15 – 10:35 JARC Overview- Recommendations: Epidemiology perspective

Dr. Annalisa Trama, Insituto Italiano Dei Tumouri

10:35 – 10:55 JARC Overview- Recommendations: Policy perspective Dr. Josep Maria Borras, Catalonian Institute of Oncology

10:55 – 11:15 JARC Overview- Recommendations: Patient perspective

Isabelle Manneh, RPh, MPH, European Cancer Patient Coalition 11:15 – 11:45 WGRC Member Contributions 11:45 – 12:05 JARC Overview- Communication: Reaching out Nationally in MS

Evangelia Legaki, University of Athens 12:05 – 12:25 Q&As

12:25 – 12:45 Conclusions and closing of the session

Jana Pelouchova, ECPC General Secretary and WGRC Chair

13:00 – 14:30 Lunch Room: Lisbon/Madrid



ECPC Working Group On Urological Cancer Meeting

Friday 7 June 2019, 9:30 – 13:00

ROOM: Warsaw

Chair: Ken Mastris, Tackle Prostate Cancer UK, ECPC Board Member Overview: To better represent the bladder cancer patient community, ECPC counts on the expertise and collaboration of bladder cancer patient organisations all over Europe. The Working Group on Urological Cancer will share best practices related to prostate cancer, kidney cancer, and bladder cancer. The aim is to build the capacity of European prostate-, kidney- and bladder cancer patients advocacy to support their members and advocate for better care. Agenda: 9:30 – 10:30 Registration, networking breakfast

10:30 – 10:45 Welcome and Introductions

Ken Mastris, ECPC Board Member

10:45 – 11:00 Setting the scene

Hein Van Poppel, European Association of Urology

11:00 – 11:30 Prostate Cancer: main challenges and opportunities

André Deschamps, Europa Uomo

11:30 – 12:00 Kidney Cancer: main challenges and opportunities

Berit Eberhardt, International Kidney Cancer Coalition

12:00 – 12:30 Bladder Cancer: main challenges and opportunities

Susan Mullerworth, Fight Bladder Cancer UK

12:30 – 12:45 Bladder Cancer Campaign in Greece

Maria Theodoridou, ELLOK Board Member

12:45 – 13:00 Close of the meeting

Ken Mastris, ECPC Board Member

13:00 – 14:30 Lunch

Room: Lisbon/Madrid



ECPC Annual Congress Speakers

ANDRE DESCHAMPS

André studied first as a chemical engineer and in later years, MBA. He took several management positions in manufacturing companies (mainly automotive components) in Europe and the United states. As an experienced manager, he is driven by the quality of work and the right balance between economic and human factors. With his wife, Lut, co-owner of our own consultancy company, specialising in sustainable manufacturing and chain of custody programs, more than 1500 companies have made use of our experience. At the age of 51, he was diagnosed prostate cancer and had a radical prostatectomy. Since that time, he developed an interest in the way cancer patients are treated by medical staff, their quality of live and prostate cancer treatments. In 2011, he joined “Wij ook” Belgium and in August 2013 he was elected Chairman. In June 2014, he was elected as board member of Europa UOMO, the Voice of Men with Prostate Cancer in Europe. He served as a board member and treasurer and was elected Chairman in June 2018.

BERIT EBERHARDT

Berit is a volunteer of the non-profit patient advocacy organisation, Uronauten e.V. and board member of the International Kidney Cancer Coalition (IKCC). She has many years of experience as a kidney cancer patient advocate. Before engaging as an advocate, she studied economics and worked as project manager in a global IT section of the chemical industry. In 2009, her significant other was diagnosed with kidney cancer. She learned about the disease, its treatment and the needs of patients and caregivers in the same situation. The disease and his death had a tremendous impact. The rollercoaster of diagnosis, treatment, hope, fear and finally his death propelled Berit’s interest in kidney cancer. She started a patient support group in her hometown and later became Manager in an organisation for patients with rarer solid tumors. Since 2010, Berit has also been involved with the International Kidney Cancer Coalition. Berit belongs to the board of directors as patient organisation and medical liaison.



DANIKELA KOPPERS-LALIC

Danijela, PhD, is an Assistant Professor at the Neuro-oncology Research Group lead by prof. Wurdinger at VUmc Cancer Center in Amsterdam. Danijela’s research team focuses on small non-coding RNAs as cancer messengers, cancer-regulated RNA modifications, biomarker discovery, and diagnostic utility of liquid biopsies. She completed her PhD in immunology and virology at Leiden University, Medical Faculty (the Netherlands) and a postdoc at Cambridge University (the UK) on Herpesviruses. Next to her academic work, Danijela is also Head of diagnostic research and co-founder of ExBiome BV. She is recipient of several research and grant awards from Dutch Cancer Research Foundation, Dutch Technology Research & Development, and Life Science Centre Amsterdam Award. Together with prof. Wurdinger she is currently coordinating the first European Liquid Biopsy Academy (ELBA) project with the focus on training and education of 15 Early Stage Researchers in skills and in-depth knowledge of diagnostic applications of liquid biopsies, including the development of blood-based diagnostic tools for cancer. The ELBA consortium is funded by EU - Marie Sklodowska-Curie Action, Innovative Training Networks (ITN) program.

EFI ANASTASIOU

Efi is a policy officer in the Social Investment Strategy Unit of DG Employment, Social Affairs and Inclusion, specifically involved in the implementation of the work-life balance initiative and the coordination of migration policy in the DG. She previously worked on the country desk for Greece in DG EMPL where she was programme manager of European Social Fund co-financed operational programmes. She completed a Bachelor in Law at the University of Manchester and a Masters in Law from University College London.



FLORA GIOGRIO

Flora is a pharmacist by training. She is heading the team of Health Technology Assessment at the European Commission in DG Health (SANTE), Unit "Medical products: quality, safety and innovation". The team is responsible for the Legislative Proposal on HTA, it is providing the Secretariat to the HTA Network, set up by Article 15 of the Directive 2011/24/EU on "the application of patients' rights in cross-border healthcare", and oversees the activities of the Joint Action EUnetHTA. Flora joined the European Commission in 2006 in DG Information Society and Media (Now DG CNECT) and worked as policy and project officer in the ICT for Health Unit. Within the Unit she coordinated the policy activities, including relations with Member States representatives and stakeholders, the implementation of the Competitiveness and Innovation Programme and the European Innovation Partnership on Active and Healthy Ageing. She also managed several EU funded projects in the area of pharmaceuticals, patient safety and Electronic Health records. Flora Joint DG SANTE in 2012.

HENDRIK VAN POPPEL

MD, PhD, graduated in General Surgery in 1980, in Urology in 1983, did his postgraduate training in London, Barcelona, Copenhagen, Mainz and Rotterdam and in 1988 received his PhD in Medical Sciences. He became a Fellow of the European Board of Urology (FEBU) in 1992, full Professor of Urology in 1993, and chair of the Department of Urology in Leuven in 2002. He described the original technique for prepubic urethrectomy percutaneous gastrostomy, lumbal splenectomy during orthotopic kidney transplantation, and of the Leuven “N”pouch for bladder substitution. He was co-founder and chairman of the European Study Group on Sexual and Urological Disorders in Multiple Sclerosis (SUDIMS) between 1991 and 1995, Treasurer of the EORTC Genito-Urinary Group between 1997 and 2011, Board Member of the EORTC between 2004 and 2008, and President of the Belgian Association of Urology 2009 – 2010. For 8 years he was Director of the European School of Urology (ESU) and became EAU Adjunct Secretary General, responsible for Education, in 2012. He is a member of the AUA, the SIU, the DGU and the AAGUS and Chairman of the Scientific Committee of Europa Uomo, Faculty Member of the European Society of Medical Oncology (ESMO) and Board Member of ECCO. He is reviewer for 30 urological and uro-oncological journals as well as editorial Board Member of numerous publications. In 1999 he received the Folke Edsmyr Award in Stockholm.



JOSEP BORRAS

Josep has worked in two areas of interest: firstly, in the planning and evaluation of the cancer control activities at regional, national and international level; and secondly, in research. With regard to cancer control planning and management, he served as director and CEO of a Comprehensive Cancer Centre for 10 years, and since 2006, he has been the director of the Catalonian Cancer Control Plan. He led the quality assessment of colorectal cancer care at regional level—work that is now extending to all relevant tumours with complex cancer surgery involved a treatment. He also contributed to the EURECCA project, which published the European consensus paper on rectal cancer diagnosis and treatment. This project expanded in order to undertake a full European analysis of the comparative quality of cancer care for the main tumour sites. Additionally, he is a member of the technical group in charge of developing the recommendations of the International Consortium for Health Outcomes Measurement (ICHM) on colorectal cancer. As the scientific coordinator of the Spanish Cancer Strategy, he has been leading the consultation to evaluate the resources, quality indicators and working procedures needed for a high-quality cancer department, both for adult and paediatric patients, published by the Spanish Ministry of Health.

EVANGELIA LEGAKI

Evangelia is currently a post doc researcher in the Laboratory of Biology,

Medical School, National and Kapodistrian University of Athens,

Greece. She received her PhD from the First Department of Surgery,

Vascular Unit, University of Athens, supported by the Hellenic

Foundation for Research and Innovation (HFRI) and the General

Secretariat for Research and Technology (GSRT), under the HFRI PhD

Fellowship grant (GA. 14493). She received a master's degree in

Environmental health from the same University, supported by The

Hellenic State Scholarships Foundation. She received her bachelor’s

degree in biology, from the Department of Biology of the University of

Patras. She participated in Joint Action Rare Cancer- WP2 and WP7

deliverables. She has also gained experience working on molecular

diagnostics and has participated in various scientific publications and

international conferences.



MICHAELA MILITARU

Michaela is the Senior Director, EU Patient Advocacy and Strategic

Partnerships, Oncology. She joined Merck in 2016 as Senior Director for

EU Patient Advocacy and Strategic Partnerships, Oncology. She was

previously a patient advocate, leading the biggest cancer patient

umbrella organisation, the European Cancer Patient Coalition for three

years. Before joining the world of patient advocacy, Mihaela had worked

in public affairs for 12 years – first in the Romanian Parliament and

subsequently in the European Parliament. Mihaela has volunteered for

10+ years with paediatric oncology patient organisations.

ROBERTO DE MITO D’AJETA

Roberto, JD, SD was awarded a Law Degree magna cum laude in 1989 having specialised in Roman and Comparative Law. As a Teacher of Law and Economics he was admitted to the Bar in 1993, and at the High Courts in 2006, focusing on Civil litigation, Law drafting, Family, Privacy, Bioethics, Wills, Patients' Rights, Labour Law, Property, Mortgages and Contracts. As a carer for a family member, he had the opportunity to concentrate on the psychosocial needs of cancer and other disability patients, to revenue existing laws on the matter and even to participate to legal drafting of Labour reforms by the Italian Government. He is a former member of the Working Group on the Rights of Cancer Patients of the European Cancer League who drafted the 2002 Oslo Declaration on the subject. In 2005 he took part in the Second Congress of Cancer Patients Organisations from Central and Eastern Europe for the adoption of the Warsaw Declaration. He also acts as Counsel to the Italian Association of Cancer Patients (AIMaC) and of the Italian Federation of Volunteer-based Cancer Organisations (FAVO) which is representative of over 500 associations. In addition, he is a lecturer and author of publications on: Personal Injury, Biosamples and Informed Consent.



Susan, Assoc CIPD, DipC, (Inst NH) Certificate in CBT, was diagnosed with Stage 3 High Grade Bladder Cancer in November 2017. She is a Human Resources Manager, CIPD qualified and a Counsellor with a Diploma in Counselling and Cognitive Behavioral Therapy (CBT). Prior to diagnosis Susan had not heard of Bladder Cancer despite a lifetime of associations with other cancers. Susan describes herself as a natural carer and probably a challenging patient. After opting for a life changing surgery namely a Radical Cystectomy, Susan connected with the Fight Bladder Cancer Charity where she met their Founder, Andrew Winterbottom. Andrew, also a board member of ECPC has been a voice for bladder cancer and mentor to Susan. Susan’s mission is to continue raising awareness of bladder cancer and continue with Andrew’s vision and his Step Forward Campaign.

Tamsin is a facilitator, sense-maker and storyteller. Drawing on a background in political science, journalism and communication, she helps audiences to understand complex issues. Pulling together strands from different speakers, she weaves a compelling narrative for the audiences. After reporting for Radio Maximum, Moscow she worked in the Press section of the EU Delegation in Moscow. Tamsin managed a multi-million Euro programme that twinned cities in Europe with their counterparts in the former Soviet countries. From 2002 until 2005 she was the Secretary-General of the European Public Health alliance. An independent consultant since 2006, Tamsin has worked for foundations, NGOs and EU institutions on a range of projects from strengthening human rights to scaling up e-health activities. A strong advocate, she has a particular interest in helping organisations to achieve positive change. Tamsin is a senior fellow at Brussels based think tank, Friends of Europe.

TAMSIN ROSE

SUSAN MULLERWORTH



Maria is member of the Board of Directors of the Hellenic Cancer Federation (ELL.O.K.) and Deputy Chair of “ΕΥ ΖΩ - Living Well with Cancer”, a non-profit organisation supporting patients suffering from neoplastic disease in Heraklion, Crete. Maria is an Electrical Engineer of the Aristotle University of Thessaloniki, Greece and holds a M.A.Sc. in Computer Science from the University of Toronto, Canada. Since 1986 she has been working as a Research and Development Engineer at the Institute of Computer Science of the Foundation for Research and Technology - Hellas. Her experience with cancer started with her mother's ovarian cancer in 2006 and continued with her father’s NHL in 2009 and her own breast cancer in 2012. These were the decisive factors to get her actively involved with “ΕΥ ΖΩ - Living Well with Cancer” and ELL.O.K. and share her experience both as a patient and caregiver in order to help families of cancer patients but also to get help herself.

Annalise, MD, has a PhD in Public Health and a master’s in health services/system research. She is the Medical Director at Fondazione IRCCS Instituto Nazionale dei Tumori, Milan conducting research activities on rare cancers including descriptive epidemiology of rare cancers, definition of criteria for centres of expertise on rare cancers, study on the patterns of care of rare cancers, evaluation of prognostic factors in mesothelioma long-term survivors, coordination with scientific societies, patients associations, and relevant international projects on cancers as well as research activities on children and on adolescence. She previously worked at the Italian National Institute of Health – National Centre for Rare Diseases Rome, Italy as well as United Nation Programme on HIV and AIDS (UNAIDS), Kenya. OSEP BORRAS

MARIA THRODORIDOU

ANNALISE TRAMA



Françoise Meunier served as EORTC Director General from 1991 through 2015 and oversaw the growth of the EORTC into an international world-class cancer clinical research infrastructure. Upon stepping down as Director General in 2015, she remained active until November 9, 2018 as EORTC Director of Special Projects where she was a driving force behind activities such as EORTC cancer survivorship initiatives. She also provided her valuable experience to fundraising projects. She is a member of the Belgian Royal Academy of Medicine since 2006. In 2007, she was conferred the title of Baroness by His Majesty, The King Albert II of Belgium. She received in 2009, the Pezcoller Foundation award as a recognition for her contribution to oncology. Since 2011, she is a Fellow of the European Academy of Cancer Sciences, a board member of “Centre Scientifique de Monaco” since 2014 and since 2015, she is Vice-President of FEAM (Federation of European Academies of Medicine) and has been board member of Alliance for Biomedical Research in Europe from 2015 to 2018. In July 2015, she was admitted to the degree of Doctor of Medical Science (Honoris Causa) by the Queen’s University of Belfast, Northern Ireland, UK. Finally, since 2017, she is member of the Scientific Panel for Health (SPH) of the European Commission. OSEP BORRAS

FRANCOISE MEUNIER



Participants

Family Name Name Organisation Family Name Name Organisation

Abela Parnis Geitrude Breast Care Support Group Europa Donna Malta

Karampatzak

Marisa

SYNEXIZO - Association Of Cancer Patients And Friends Of Evros Prefecture

Aijal Elroy HungerNdThirst Foundation

Katsaraki Afroditi Dimitra

LEAGUE OF NEOPLASIA PATIENTS, FRIENDS AND FAMILIES, "WE ARE TOGETHER"

Ambroziewicz Beata Polish Cancer Patient Coalition

Khor Sarah Boehringer Ingelheim

Andreescu Luminita-Mihaela

Anvolt Kocic Maja LIPA

Arapis Georgios

FEDERATION OF CANCER PATIENTS OF Greece

Kokkinopoulos Pantelis SYLLOGOS SYKAFIAR ARGOLIDAS

Argyri Iris-Eirini

HELLENIC ASSOCIATION OF WOMEN WITH BREAST CANCER

Konstantinidou Despoina

NPO "KARKINAKI"

Aslan Emirhan Hikmet Onkoloji Hastaları Yardımlaşma ve Sevgi Derneği

Kostrová Marta

Alliance of Women with Breast Cancer

Aura-Cristina Cimpu Asociatia Romana de Oncologie Sfanta Ana

Krukowska - Van Handenhove

Beyzanur Hope and Life Association

Babamova Mirjana

HEMA-Association for support of patients with hematological diseses

Kuznecova Galina

Cancer Patient Advocacy Center

Balogh István Lajos Children Cancer Foundation

Kuznecovs

Sergejs

APSCO - Romanian Association for Services and Communication in Oncology

Baloghné Judit Szűcs Children Cancer Foundation

Lászlo Csaba

Degin

APSCO - Romanian Association for Services and Communication in Oncology

Batsouka

Stamatia Club Ca of Chios Lazic Nika Everything for her

Beherendt

Mark Andre EAU Patient Information

Le Roy

Lia

Werkgroep Hersentumoren vzw (Study Group Brain Tumours)

Bertin Louis European Commission

Legaki Evangelia

National & Kapodistrian University of Athens, Medical School



Biurrun Martinez Maria Concepcion

FECMA (SPANISH FEDERATION OF BREAST CANCER)

Lippuner Max Europa Uomo Schweiz

Boronat Jimenez

Carmen

GRUP AGATA Associacio Catalana de Dones Afectades de Cancer de Mama

Lodewijk Jan Denis Oncologic Center Antwerp

Bubiłek Szymon Andrzej Sarcoma Patients Association

Magkafas Panagiotis GROUP OF VOLUNTEERS AGAINST CANCER "AGALIAZO" ACHAIA

Bujan Alin Association of Cancer Patients

Makaroff Lydia Fight Bladder Cancer

Burianová Jelena Mamma HELP Martin Sara BMS

Caldwell James Northern Ireland Rare Disease Partnership

Mateescu Anka Romanian Leukemia Association

Calin Adrian Romanian Cancer Society

Meunier Francoise Federation of European Academies of Medicine

Cambier Ariane Les Amis de l'Institut Bordet

Miceli Elena MNI - Medical Nutrition International Industry

Carta Anna European Society for Medical Oncology

Michou Theodosia

SYNEXIZO - Association Of Cancer Patients And Friends Of Evros Prefecture

Comanescu Ioana Alina Health for the Community

Minin Alexey AROBO Triedinstvo

Conge Min AbbVie Miqueu Patrick Institut Jules Bordet - Les Amis de Bordet

Corbeaux Tatiana Roche Mirecki Tomasz Fundacja Carita im. Wiesławy Adamiec

Cretu Paraschiva Georgeta

Asociația Bolnavilor de Cancer și Hepatita Giurgiu

Morris Miryah BMS

Culescu Maria M.A.M.E. Association

Moss Mark Arthur DiCe EuropaColon

Cunsolo Romina Vivere senza stomaco si può

Mullerworth Susan Flight Bladder Cancer UK

De Miro Roberto FAVO Moss Barbara Anne DiCE EuropaColon

Dedeó Anikó Mallow Flower Foundation

Karpouzas Georgios CANCER PATIENT ASSOCIATION OF GIANNITSA

Delgado Carners

Mariella Josefina

Swedish Brain Tumor Association West

Nagy-Tóth Ildikó Mallow Flower Foundation

Despa Lucian Andrei Myeloma Euronet Romania

Nanavaty Aneri The Health Policy Partnership

Dinopoulou Foteini Association of Cancer Patients in Kozani

Nicolaides Constantine Cyprus Association of Cancer Patients and Friends



Dourcy-Belle-Rose

Brigitte Wij Ook Belgium Philippou Nicolas The Cyprus Association of Cancer Patients and Friends

Drummond Frances East Galway & Midlands Cancer Support

Nielsen Mai A. G. Kraeftforeningen Tidslerne

Dumitrescu Ioan Centre Medical D Éxcellence

Nteliopoulou Eleni Hellenic Cancer Federation

Dumitrescu Maria Centre Medical d’ Exellence

Pandria Maria PA.S.S.M.O - Hellenic Bone Marrow Transplanted Patients Association

Dumitru Roxana PAVEL Pandria Athina PASMMO

Elmes Sheila

ISGOPPI (Irish Society of Gynaecological Oncology Public and Patient Group

Papi Ginevra Association of European Cancer Leagues

Fakas Konstantinos Mazi Gia zoi Pellanda Jandl Nadia Valentina

MSD International GmbH

Fonrobert Piotr Patients with GIST Aid Association

Porrey Mary Thyroid Cancer Alliance

Fotou Panagiotis ASSOCIATION OF VOLYNTEERS AGAINST CANCER

Rangelov Simeon NGO VIOM

Frenzel Christian Lilly Røtterud Ranveig Johanne

The Norwegian Bladder Cancer Society

Funk Cirefice Lori Beth Association Les Zuros

Rozványi Balázs Hungarian League Against Cancer

Geenen Franciscus Schildklier Organisatie Nederland

Rudziński Tadeusz Gladiator Association

Georgosopoulou Eirini

ORGANISATION FROM PARENTS OF CHILDREN AND ADULTS WITH CANCER AND FRIENDS OF THEM MAZI SOY

Sarafidou Evgenia

SYLLOGOS KARKINOPATHON N.DRAMAS

Giampoura Anna Amke Karkinaki Sarbu Daciana Octavia

European Parliament

Gissin Shay Israel Cancer Association

Saridaki Valentina SOCIETY OF CANCER-PATIENTS OF MACEDONIAN-THRACE

Gissin

Maydad israel cancer org. Saridakis Ioannis SOCIETY OF CANCER-PATIENTS OF MACEONIA-THRACE

Grammatoglou Zoi KEFI Sava Claudia ROMANIAN CANCER SOCIETY

Grigoriadou Sofia Cancer Patients Eordaia

Scassellati Sforzolini

Francesca Incisive Health

Haifer Mihaela ABC SUCEAVA Severinac Mihael Firefly association



Hanna Sabrina The Cancer Collaborative

Sheth Sapna CODE - IQVIA

Helbrink Dorthe Tidslerne Silenzi Simone

Gruppo di discussione (e azione) "Italy - Glioblastoma Multiforme - cancro al cervello"

Hendrix Erwin Neovida Silyanovska Mariya NGO VIOM

Hernandez Angelica Roche Chile Sira Soumano Simasoh-Nani International

Iacovlev Anna M.A.M.E. Association

Smith Richard Stephen

Cancer Support France

Ilieva Reneta Bulgarian Association for Patients' Defense

Smith Jacqueline Ann

Cancer Support France

Ilieva Anna Bulgarian Association for Patients' Defense

Solovyeva Anna

Russian Association of ontological patients “ ZDRAVSTVUY”

Iordache Andreea-Daniela

Amuradia Association Romania

Stewig Blair EuropaColon Poland

Irimia Cezar Federation of Cancer Patients Associations

Stokic Filip ILCO Serbia

Irina Borovova

Russian Association of oncological patients "ZDRAVSTVUY!""

Strömsholm Eva-Maria Association Of Cancerpatients In Finland

Jensen Rachel Jeanette Zozula

LEO Pharma A/S Swiderski Jan Ipsen

Jerica Zupan European Commission Joint Research Centre

Świerzewski Rafal FOUNDATION FOR PATIENTS WITH RARE DISEASES "COCARDA"

Kammi Anastasia Mykonos Cancer Assosiation

Toth Isaszegi Sandor NALOR

Kapetanakis Georgios

CANCER PATIENTS ASSOCIATION OF PIERIA "SAINT EKATERINI"

Trigonaki Iordana syllogos karkin EDESSAS

Karampatzaki Marisa

SYNEXIZO - Association of Cancer Patients And Friends Of Evros Prefecture

Troina Maria Troina Vivere senza stomaco si può

Katsaraki Afroditi Dimitra

LEAGUE OF NEOPLASIA PATIENTS, FRIENDS AND FAMILIES, "WE ARE TOGETHER"

Truskolaska Agnieszka Let's Win Health Foundation (Fundacja Wygrajmy Zdrowie)

Khor Sarah Boehringer Ingelheim

Van Der Wal Tom Stichting Diagnose Kanker (SDK)

Kocic Maja LIPA Van Der Wal- de Vries

Tonia Stichting Diagnose Kanker (SDK)



Kocic Zoran Lymphoma Patient Association LYPA

van Rooijen Hendrik Patiëntenplatform Sarcomen

Kokkinopoulos Pantelis SYLLOGOS SYKAFIAR ARGOLIDAS

Varntoumian Eleonora European Oncology Nursing Society (EONS)

Konstantinidou Despoina NPO "KARKINAKI"

Varouxakis Emmanouil KARKINAKI

Kostrová Marta Alliance of Women with Breast Cancer

Włodarczyk Tadeusz Gladiator Association

Krukowska - Van Handenhove

Agnieszka Johnson&Johnson Yammine Melanie Astellas

Kuruş Beyzanur Hope and Life Association

Yfantis Theodoros Porter Novelli

Kuznecova Galina Cancer Patient Advocacy Center

Yüce Salih Youth Acumulation Association

Kuznecovs Sergejs Cancer Patient Advocacy Center

Zeta Christina CANCER PATIENTS ASSOCIATION OF PIERIA "SAINT EKATERINI"



The 2019 Annual Congress is supported by:

Documents

ECPC Annual Congress 2019