Developing the BCS / DH Guidance

Geraldine MynorsProject Director

HC2013 – Birmingham16 April 2013

• Context

• Project overview

• Launch of the final guidance – version 1

Topics

• Context

• Project overview

• Launch of the final guidance – version 1

Topics

Record access is high on the policy agenda

By March 2015:• Everyone who wants will have

access to their GP records online• Everyone to be able to book GP

appointments and order repeat prescriptions online

• Everyone will be able to have secure electronic communication with their GP practice

• E consultations more widely available

• All health and care settings to work towards records integration.

Enabling reviews complete

• RCGP Patient Online Roadmap published March 2013

• Caldicott Review on the balance between sharing information and protecting individuals’ confidentiality – due for publication April 2013.

Take up increasing… patchilyExamples include:• Renal Patient View•E-Red Book• Patients Know Best

pilots • Brains Trust pilot • Health Foundation

‘My Record’ Projectwww.pifonline.org.uk

With uptake comes the potential for confusion and risk

• Records being hacked and login information being ‘phished’ for

• Desire to share, but share safely• Coercion from family members and others• Requests from external agencies for

records access• Potential for inadvertent sharing

• Context

• Project overview

• Launch of the final guidance – version 1

Topics

Overview of project

• To produce comprehensive guidance on how to use shared and patient-controlled records safely and securely

• Department of Health and BCS Health • Steering Committee and Project Board• Mynors Suppiah awarded contract through

competitive selection process• Started May 2012; launched February 2013

The Journey

Idea

ProjectManager Invitation to tender

Funding approved byHM Treasury

DeadlineSelection

1st SteeringCommittee

BCS-DH Contract

Power of Information

2011 2012 2013

CopyCrystal Marked

LayoutApproved

PrintReady

LAUNCH!

The Project Team

Geraldine Mynors

Emily Newsom-Davis

Sarah Smith

Aspirations for the guidance

• Booklet and summary guide• Clear, straightforward, simple and directive• Give people skills and confidence• Focus on safe behaviour• Help people make informed choices• Relevant and personal• Pragmatic – given limitations of systems and

rapidly evolving processes

Patient Representative

Independents

Steering Committee | Project Board

Methodology | ScopingSteering Committee

• Face to Face• Online

Stakeholders

• 25 Respondents

• Low response rate from suppliers – interviews supplemented

Scope and audience

• Electronic records only (not paper)• Primary, secondary and social care• England • Adults, including nominating others to access, but

excluding vulnerable adults/children without capacity• For dissemination in both paper and web form.

Scope and audienceNot about:• ‘Selling’ benefits of record access, although

should be encouraging, reassuring, positive• ‘Sealed envelopes’ – covered by RCGP work• Complaints, or altering records• Secondary uses of data (e.g. research)• Making technology safe• Professional standards – covered in Care

Record Guarantee

X

Myths and Concerns uncovered in scoping focus groups

Everyone will have to sign up to get full access to NHS services in future.

Signing up for online access means the creation of an electronic health record.

Signing up for online access makes your electronic health record inherently less secure.

If I had access, my mum would immediately want to be able to read my record.

Methodology | User TestingOne to One Interviews

• Polished Draft

• Information Challenges

• MHRA/ EMA

Stakeholders

• Steering Committee

• Crystal mark application

• Context

• Project overview

• Launch of the final guidance – version 1

Topics

http://www.nhs.uk/records

Launch event – February 2013

Wai Keong Wong* Isabel ChevisNeil Churchill Ewan Davis* Alan Doyle Toto Gronlund*Sue Hawkswell Mike Haynes Penny Hill Peter ShortKeith Simpson Pauline Smith* Ben TothJean Waters Justin Whatling*

Marlene Winfield*

BCS Health (Chair of the Steering Group and Project Board)CEO, IHRIMCEO, Asthma UKHealth IT Consultant, BCS; Woodcote ConsultingDirector, National Information Governance BoardDirector Patient and Public Relations, DHIDManaging Director, CSE Healthcare; IntellectBCS; Independent ConsultantNIGB; Mortimore Hill Associates (Social Care)National Clinical Lead, GPs, DHID, RCGPNephrologist; Renal Patient ViewProgramme Manager, DHIDInformation Manager, National Institute for Social Care and Health Research

Patient RepresentativeSenior Director Strategic Consulting in Europe, Cerner;

Chair, BCS HealthIndependent Consultant

* Project Board Members

Thanks to our Steering Group