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Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary4
Reflections• Our vision: we will work together to improve the
health of our nation by creating a bi-directional exchange of health information between public health and healthcare
• While the group identified many challenges, there was overall optimism that the vision can be accomplished
• This is not a technical challenge, it is a matter of governance, will, and resources
• The process will move forward with active, timely and broad stakeholder engagement
• Our governance body will include representatives from public health, providers, and vendors. It will be enhanced and refined as we move forward
• The first phase, testing implementation, will be complete by July 1, 2017 with a range of jurisdictions, vendors and delivery systems
• Both the governance and technical solution will be built to evolve
• Definitive commitments were made by participants that will move the ball forward
• We will start with notifiable disease data
• Our work will build on work already done by others
• We have a high level work plan to guide our efforts
• This is an historic convening of all three stakeholder groups that will result in a sustained effort over time
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
Statement of Purpose Key stakeholders in the digital health care and public health community came together for a 2-day immersive experience to collaborate on a vision for digital health data exchange and a proof-of-concept for Electronic Case Reporting to improve the health, well-being and security of the nation.
Envisioning the Bridge
Welcome and set the stage
Build a shared understanding around the facts and constraints
Shape an understanding through 3 user stories
Laying a Foundation for Success – eCR Proof of Concept
Affirm for the need and purpose of an eCR proof of concept by further defining the proof of concept
Further define the proof of concept approach
Charting the Path Forward
Create the notional timeline
Reflections
Select a tool and closing thoughts
ACT I
ACT II
ACT III
AGENDA
LAB PARTICIPANTS
Participant Organization Participant Organization
Chris Alban Epic John Lumpkin RWJF
Scott Becker APHL Bill Mac Kenzie CDC
Jason Bonander CDC Tushar Malhotra eClinicals Works
Geoff Caplea AllScripts Lori Melichar RWJF
Brian Carter Cerner Sharon Moffatt ASTHO
Benson Chang Deloitte Patrick O'Carroll OASH
Jim Daniel ONC Richard Paskach HealthPartners
Art Davidson NACCHO Dan Pollock CDC
Jim Doyle Epic Indu Ramachandran Kaiser
Brian Edlin CDC Dave Ross PHII
Jeff Engel CSTE Mark Rupp Nebraska Medical Center
David Friedman Deloitte Vivian Singletary PHII
Kirsten Hagemann Cerner John Stinn Deloitte
Hilary Heishman RWJF Ben Stratton Deloitte
Steve Hinrichs APHL Kathy Turner CSTE
Michael Iademarco CDC Jagan Vaithilingam eClinical Works
Kevin Isbell Kaiser Joe Wall Meditech
Jim Jellison PHII Andy Wiesenthal Deloitte
Andrew Karson Partners Larry Wolk ASTHO
5
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
ACT IAct I Envisioning the BridgeJohn Lumpkin from the Robert Wood Johnson Foundation kicked off the Lab by introducing the eCR vision. All participants were then asked to demonstrate their alignment to the vision and execution thereof by positioning themselves on the spectrum between “storm clouds” and “sunny skies.” While the majority of participants landed on “sunny skies” for both, several shared realistic skepticism and concerns with the group.
6
That we work together to improve the health of our nation for creating bi-directional exchange of health information between public health and healthcare.
An interview with John Lumpkin
Data can be a liability; requires
security and adds risk of
litigation
Variation drives up cost, drives up
risk and compromises quality for all
parties.
CDC does not have direct control over
state/local jurisdictions and does
not get the data directly.
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
ACT IAct I Envisioning the BridgeTo continue building a shared understanding, participants were asked to explore constraints and considerations through the eyes of each stakeholder group. They then used three different case studies as a means to understand current pain points and articulate future aspirations.
7
Multiple competing
priorities. Hitch our wagon to
Zika!
Articulate the fiscal
opportunities in changing care systems
Emerging Acute• Trust, education,
collaboration, and partnership
• Does not end with report, i.e. after providers report event, they receive real time information that is useful to them, for example: a picture of what is going on in the jurisdiction or information telling them if this is part of something bigger
Chronic• Establish a purpose
indicators data sources triggers
• Passive data collection• Understand intervention
options and tailor stakeholders, data, flows, trigger
• Automation lowers risk and failures
• Systemized• Flexible• Sensitive to
workflow• If/Then/Else
Architecture• Existing pipeline• Triggers &
standards exist for pulling data out of EAR
• Public Health can consume & act on data electronically
* For complete exercise outputs, see Appendix.
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
In the afternoon of Day 1, participants began to define critical success factors for the eCR proof of concept (POC). Participants agreed that, in order to be successful…..
ACT IIAct II Laying a Foundation for Success – eCR Proof of Concept
8
An eCR proof-of-concept will:Allow as many groups as possible to “see” themselves in it; i.e. it will include meaningful diversity, such as geography, technological capabilities, urban vs rural, resourcing levels and jurisdictional model (city/county/state)
Include multiple vendors
Include multiple types of care systems
Prove that we can send and receive data
Test automatic trigger codes (not updates)
Prove that we can partner
Include content and formatting of case reports that is standardized, automated, passive, accurate,
useful and timely, and evaluate conformance in measurable ways to each of those parameters
Demonstrate that we won’t lose the ability to share information beyond notifiable requirements
Be sustainable
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
ACT IIAct II Laying a Foundation for Success – eCR Proof of Concept
9
To close out Day 1, and kick off Day 2, participants discussed and defined the fundamental requirements for the POC governance structure, roles and responsibilities/operating model and core technical approach.
* For complete exercise outputs, see Appendix.
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
In the final module, participants identified critical milestones and dependencies that will guide the eCR POC implementation effort between today and January 1, 2018.
ACT IIIAct III Charting the Path Forward
10
IMMEDIATELY Q3 2016 Q4 2016 Q1 & Q2 2017 Q3 & Q4 2017
It could be even more urgent
Broad stakeholder engagement for all of the above
HL7 eCR Implementation guide publishedCDC, CSTE
Current pilot lessons learned gathered and analyzed to inform POC
Council votes on eCR policy statementCSTE
Launch recruitment of participants for the POCCDC
Review & analysis of current PH Governance Group ASHTO
Secretariat and neutral convener formedPHII, RWJF
Funding Plan identified for POC
Funding proposal (RFP, response, implementation)
Review and analysis of current pilot. Get in part from vendors, providers, PH
CSTE
Draft press release
First trigger codesCDC, APHL, CSTE
PH Informatics Conference8/24/16
Document eCR business requestsCERN, PHII, CSTE
Establish tech WGCDC, APHL, Epic
Define communications planCDC, PHII, ASTHO
RCKMS on AIMSCSTE, CDC, APHL
POC sites & participants selected
Establish tech working group & requirements group
Governance body defined and recruitedRWJF, CDC, PHII, EHRA, ASTHO
Define measurable metrics for success CPC, CSTE, ASTHO, HPartners, Epic
Privacy & Security Policy
Data use agreement –POC definedASTHO
Develop eCR readiness toolkit for PH agenciesCSTE
POC startedCSTE, ASTHO
POC tech solutions defined
PH expansion plan beyond POC identifiedASTHO
Report on measurable success metrics
What have we learned that may refine standards
External Communications happeningPHII
POC eval completeCTSE & ASTHO
PH Agencies report readiness
Sustainability plan and scalability planASTHO
Recruit next implementation sitesCSTE
Governance Entity launchedCDC, EHRA,, ASTHO
Define messaging
8/1
January 2018
CSTE, CDC, ECW, APHL, EHRA, Epic,
Cern, meditect, AllScripts, HPartners
CSTE, Epic, AllScripts,Partners, Health Partners,
NPAL/UNMC,
Challenges and Opportunities
Building the Bridge: The Digital Intersection of Healthcare and Public Health Lab | Executive Summary
To close the Lab, participants were asked to work within their stakeholder group to select a tool from the tool box that represented the role they will play in ongoing planning, implementation and maintenance efforts for the initial eCR POC. Further, many participants offered specific commitments* to support and contribute to the effort.
ACT IIIAct III Charting the Path Forward
11
*In many cases, these commitments were pending approval from their organization’s leadership.
Public HealthWe will measure
what we do
VendorsTest connections,
technical “how do we make things work?”
ProvidersWe are on the front lines, measuring the impact, efficiency,
etc.
Appendix
City Hall Gallery WalkNot-for-profit systems have community benefit requirement
Not-for-profit systems have community benefit requirement
There is a lot of information gathered by software
Data can be a liability:• Requires security• Chance of
litigation, e.g. Apple v FBI
How will we leverage Community Board Assessment Regulations (?)
How to quantify the Return on Investment for public health reporting
Stewards of the patient/doctor relationship
City Hall Gallery Walk
Most conditions are vastly underreported
Multiple, competing priorities. Hitch our wagon to Zika!
“Golden Rule” Centers - plural
National healthcare surveys
Epidemiologists want to inform the public – they are the bosses
City Hall Gallery Walk
Example of cooperation? Do exist (sic)
Does the vendor community speak with one voice?
Vendors have a lot of specific regulations to comply with
Spend time on low value activities
Public health doesn’t know how to engage vendors
Managing a product means vendors cannot afford to satisfy all requests
AND providers have implementation cycles
City Hall Gallery Walk
Workforce developments and evolution
How does the next generation of MDs, RNs and public health want to do business?
Articulate the fiscal opportunities in changing care system
Public Comments – What does success look like?
* Synthesized on Slide 17
Public Comments – What does success look like?
* Synthesized on Slide 17
User Stories – Emerging Conditions
User Story #1: Public Health Surveillance of Currently Non-Reportable Conditions, like Elizabethkingia
Today: Outbreaks of emerging diseases occur and cases of novel manifestations of common diseases occur. Some public health jurisdictions are mandated to monitor the new disease as a reportable condition, and want the disease to be electronically reportable. Public Health Agencies are unable to monitor and provide accurate guidance on outbreaks and physicians do not have a sufficiently broad view of the events to identify anomalous events until they are full blown epidemics.
User Stories – Emerging Conditions
User Stories – Emerging Conditions
User Stories – Emerging Conditions
User Stories – Emerging Conditions
User Stories – Acute Illness
User Story #2: Electronic Case Reporting of Standard Reportable Events, like influenza
Today: A patient comes into the physician’s office in <Local Jurisdiction> with certain symptoms. The physician decides on a diagnosis. According to applicable regulations, the event is reportable. The physician is aware that the case is reportable, but lacks the form and the time. The physician instructs his staff to report it, but they also lack the form and the time. The case is not reported.
User Stories – Acute Illness
User Stories – Acute Illness
User Stories – Acute Illness
User Stories – Acute Illness
User Stories – Chronic Diseases
User Story #3: Public Health Surveillance of Chronic Diseases, like diabetes
Today: A public health diabetes control officer is monitoring all of the diabetics in their jurisdiction. They would like to know when the patients become insulin dependent. Currently there is no straightforward way to do this in the current environment. They make an arrangement with the office nurse of a busy practice to periodically report how many patients have had new insulin prescriptions.
User Stories – Chronic Diseases
User Stories – Chronic Diseases
User Stories – Chronic Diseases
User Stories – Chronic Diseases
Core Technical Approach
Core Technical Approach
Core Technical Approach
Governance
Governance
Roles & Responsibilities
Roles & Responsibilities
Roles & Responsibilities
eCR POC Definition
Your Greenhouse Facilitation Team44
Sarah Minor-MassyChristine Nelson
Leigh OteyJeanne StrepackiSaagar Thakkar
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