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9/13/2017
1
Creating a Life Enhancement Environment
for the Older Adults with Dementia
Kathryn Kilpatrick M.A. CCC/SLP
Speech-Language Pathologist
Geriatric Life Enhancement Consultant
Memory Fitness Specialist
COMMUNICATION CONNECTION
www.connectionsincommunication.com
Copyright 2017 Communication Connection 1
Communicate and Connect
“It is one of the most beautiful compensations of life that no man can sincerely try to help another without
helping himself.” Ralph Waldo Emerson
It is a privilege to walk their journey with them.
Offers us opportunities to enhance the quality of each of their days.
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Bill of Rights
To be treated as an adult, not like a child
To have expresses feelings taken seriously
To be free from psychotropic medications if possible
To be cared for people who are well trained
To live in a safe, structured, and predictable environment
To enjoy meaningful activities
David Troxel and Virginia Bell
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Often……
When there is a decline in - cognitive functioning
- communication skills
- mobility
- and safety
ACTIVITY PARTICIPATION BEGINS TO DECLINE
If a person cannot initiate or modify an activity, there is likely to be
- less overall interest
- less involvement
- increased confusion
- increased withdrawal
- less visitors
- more sleeping
- more sundowning
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Need to Assess Care Partners
Equally important are members of support system
including family, friends and professionals providing care
o Availability
o Personality and attitude
o Relationship
o Cognitive status, hearing, vision
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Life Enhancement Focus Can lead to
Increased awareness of care partners through education
Decreased difficult behaviors
Increased interactions
Potentially more positive health outcomes
Increased family and care partner participation
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CONSIDER
Things that Make a Person Unique www.advancecareplan.com
__ History
__ Habits
__ Preferences
__ Routines
__ Lifestyle
__ Values
* Eat/ wear/ spare time
* People/settings enjoyed
* Makes you smile
* Annoys you
* How practice your religion/spirituality
* How want let go of life
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What if your care partner….. had information and “clues” to deal with issues that
made you unhappy.
could save time, money, energy and effort trying to obtain information (if you were unable to provide it)
could share what is important to you with others as you walk your journey as life circumstances change.
would know how to best communicated with you if you had hearing, vision, speech, memory and/or cognitive deficits.
knew your story for conversational purposes
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Know their Story Education
Occupation(s)
Interests
Values
Fears
Family background
Personality and attitudes
Health history
Overall financial options
Family dynamics
Long term planning – (estate, legal, living will etc.)
Appropriate and reasonable options
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Sample from Lynn’s Story (Home Care) 7:30 AM without the Lifestyle Care Plan Taken to kitchen for breakfast. Given a cup of tea with sweet and low, served with egg
beaters and dry toast due to MD order low cholesterol diet. Difficulty feeding herself so caregiver tries to feed her and she resists.
7:30 AM with the LCP Served several cups of Irish tea with 5 tsp. sugar in each one. Lynn and the caregiver
read the newspaper together.
Noon without the LCP
The caregiver gets Lynn out of bed and takes her to the kitchen for lunch. She puts Lynn in front of TV so they can watch soap opera. Lynn falls asleep.
Noon with the LCP
Lynn and the caregiver go out for lunch then stop by the United Way office. Lynn was a volunteer there for 3 decades and is missed by all. With the help of her caregiver she is able to help out with some small projects.
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Dependence It is not necessarily a need for assistance
It is a loss of choice on how you are assisted
It is about showing them a new way
Creating a lifestyle care plan proactively can help to provide a life enhancement experience www.lifestylecareplan.com
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GERIATRIC LIFE ENHANCEMENT
Meets the physical, emotional, intellectual and spiritual needs
Builds on their strengths and interests
Transforms days from mere existence into more enjoyment
Promotes meaningful and memorable exchanges
May engage older adults who may otherwise be removed from activities
Provides the opportunity for each person to participate, elevating the level of
interactions
Involves interaction of family, friends and care partners
Elevates the value we place on the older adult
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GLOBAL DETERIORATION SCALE
Stage 1 - No problems
Stage 2 - Normal Aging Word finding, slower to learn and process information
Stage 3 - Mild Cognitive Impairment Not dementia – may progress
Stage 4 - Mild to Moderate Impairment – Dementia
Able to learn
Stage 5 - Moderate/Marked Dementia Supervision needed
Stage 6/7 - Severe stages
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NEED EDUCATION - KEY ISSUES
Major impact on quality of life
Swallowing
Avoid certain foods
Aspiration Pneumonia
Often were many signs prior to diagnosis
Nutrition
Why? Education and resources
Hydration
Forget or poor choices
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RESEARCH - HEARING LOSS * Number of people with hearing loss in USA doubled past 30 years
3% to 5% adults have hearing loss
40% those over 65 have problem with hearing
25% those over 85 deaf at least in 1 ear
Only 25-29% those over 70 years of age use a hearing aid
Dr. Lin regarding hearing loss and memory
May increase cognitive deficits and may contribute to dementia
24% more likely than those with normal hearing to see a faster decline in memory and thinking skills
Reasons not totally determined however
More isolation, straining to decode, cognitive overload
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HEARING AND THE 21ST CENTURY Hearing Assessment
Medical follow-up – wax in ears
Payment concerns and options
Good candidate
Hearing aids Why not wear? Likely misplace?
Listening devices – keep one in your office to try
Technology issues Answering machines
Cell phones vs smart phones
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HEARING TIPS Pronounce words carefully and eliminate background noises can be
helpful.
Many have difficulty with higher - pitched voices. S Z CH SH TH F V harder to be understood
Slow rate and face the person
Present shorter, less complex messages
Shorter pieces of information
GET THEIR ATTENTION FIRST
Written words or spelling a few letters aloud MORE DETAILS
Visit Kathryn’s Eldercare blogs on website
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Radio Shack
Stereo Amplified Listener
RADIO SHACK Catalog number 33010973 Band Equalizer
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GERIATRIC LIFE ENHANCEMENT
Honors the older adult’s life story
and meets them where they are in their journey
EDUCATION AND SHARING can help to
elevate the quality of ALL those walking
the journey with an older adult
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MOST COMMON AGE-RELATED
VISION LOSS Macular Degeneration – central vision loss
Dry most common
Letters may appear to be missing
Glaucoma
May not be aware - gradual changes
Impacts driving or missing a step
Cataracts
Hazy vision, trouble distinguish colors
Increased sensitivity to light
Print fades in later stages and hard to read
Diabetic Retinopathy
Hemorrhages in retina
Blurred vision, difficulty reading
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VISION TIPS
Assess the busyness of information you create Enlarge information Shorter stories Guide card Right/left neglect strategies
Line on the neglected side when reading Often need more light Avoid information on blue or green background Reduce the glare Simplify activities
Help with organization so not visually complex
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Marcel Proust
The real voyage of discovery
lies not in seeking
new landscapes
but in having new eyes.
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COMMUNICATION TIPS Get their attention before you start speaking
Make sure you face the person. Many people ask
questions with their back to the person.
If they are seated or in bed, try to get get down to their
eye level.
Slow down the rate of your presentation and make sure
you continue to do so while talking. Speakers have a
tendency to pick up the rate as conversation progresses.
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COMMUNICATION TIPS Simplify the complexity of the information whenever
possible, but keep it on an adult level.
Repeat any details that are more complicated and try to present them in shorter segments.
Look for any non-verbal cues from the listener that they are missing some of the information. Do not assume that they processed what you are saying.
Point to something that will help you clarify the information or use meaningful gestures.
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MAKING A PLAN** Needs that you identify
Current plan
Resources
Family programs/education
How to share the information
Who can you partner with?
Activities and modification
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Creating Time Well Spent* What appeals to them?
What disinterests them?
Which technique helps?
What frustrates or agitates?
What has changed?
What do family and caregivers show interest in?
How does the “family” stay connected?
What can you share with others?
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Why Modify
Hearing Loss
Reduced vision
Forgetfulness
Memory Loss
Poor attention
Confusion
Agitation
Withdrawal
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Components of Life Enhancement Meets them where they are
o Creating a culture of compassion
o Valuing the person
o Learning their story
o Honoring their journey
o Promoting communication/connection
o Enhancing the quality of their days
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WHY Focus on Life Enhancement? Can lead to
Decreased difficult behaviors
Improved attitude
More participation
Positive health outcome
Increased family participation
Boost in care partner/staff engagement
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Keys to Activity Participation Maximize their highest
quality of life
Need to match skills, abilities, needs, lifestyle and preferences
Adapt to facilitate participation
Incorporate skills from former work, religious activities and recreational interests
Relevant activities that amount to something
o Have variety
o Not childish
o Require thinking
Focus on
o Dignity
o Positive self image
o Independence
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Tips for Planning Success
Utilize their strengths
Accommodate their weakness
Often need help initiating and repeated cues
Activities are everywhere
Identify the triggers – pacing, distractions?
Share what works with others
Reminiscence
Humor, positive attitude
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Enhancing Conversation
Photos and memorabilia
Short stories
Religious materials
Hobbies
Food
Humor
Celebrations
Pets
Nature
Drives
Word games
Jigsaw puzzles
Crafts
Weather
Drives
Children
Music
Sports
Technology
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Walking Their Journey
Information available and can be confusing to families
Need develop programs that reach out to provide helpful information specific to quality of life
Caregiver education and conversation groups to provide recommendations and resources Safety concerns
Home modification
Communication strategies
Handling difficult behaviors
Risk factors
Activity modification
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SOME OF THE BASICS Be present
Assess your energy level
Notice your attitude
What are the little things you can do?
What has special meaning to you? To your loved one?
How can you bring others more reluctant into the circle?
“It is not how much we do, but how much love we put in the doing.
It is not how much we give, but how much love we put in the giving.”
Mother Teresa
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Additional Resources Blogs on Elder Care Concerns
http://www.connectionsincommunication.com/index.php/kathryns-
blogs/eldercare-link
Lifestyle Care Plan
www.lifestylecareplan.com
Products – view sample pages
http://www.connectionsincommunication.com/index.php/products
Webinars, interviews, podcasts, newsletters
http://www.connectionsincommunication.com/index.php/resources
Blogs - Memory Fitness Matters
http://www.connectionsincommunication.com/index.php/kathryns-
blogs/memory-fitness
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