CPABC Roundtable Winter 2008

  • Upload
    cpabc

  • View
    217

  • Download
    0

Embed Size (px)

Citation preview

  • 7/28/2019 CPABC Roundtable Winter 2008

    1/8

    C e r e b r a l P a l s y A s s o c i a t i o n o f B r i t i s h C o l u m b i a w i n t e r 2 0 0

    the

    ts January in Prince George. Today, a winter

    storm blew through the city with winds gusting

    at 120 km/hour. Fallen trees have caused

    power outages throughout most of the day. Itsnow 6:00pm, and B.C. Hydro estimates that it

    will take at least 8 24 hours to restore power

    o the city. The temperature outside is -15

    Celsius. The roads are icy and have become

    mpassible and transit has shutdown. Home

    support workers are unable to reach their

    clients.

    This scenario was presented at a workshop, on

    February 20, 2008, hosted by the Emergency

    Planning for People with Disabilities Commit-

    ee. This workshop was held at the WoskCenter for Dialogue in Vancouver and was the

    second of three organized by this committee to

    ook at emergency planning for people with

    disabilities.

    How prepared are you? How would you

    better prepare the people in the following

    scenarios? Pick one or more and email

    [email protected] with your

    response(s). The best of these will be printed in

    he next edition of The Roundtable.

    Mary recently started a chemotherapy regime

    of four very powerful antiretroviral drugs. At

    present, she does not exhibit any signs of an

    opportunistic infection (Acquired Immune

    Deficiency Syndrome or AIDS). Mary has a

    dependent, nursing child. As breastfeeding

    would infect her child, Mary uses formula. She

    lives on her own in an apartment and is not

    prepared for any kind of an emergency.

    James is completely paralyzed below the neck

    area. He can only breathe on his own for about

    two hours without a ventilator. He is mobile

    only when he able to use his electric wheel-

    chair, which he operates by puffing and sippingthrough a straw. He lives on his own in an

    apartment, and shares his attendant with

    others in the building who have disabilities.

    James can call his attendant to help him with

    his care by using a special telephone that dials

    when he operates with a head (pillow) switch.

    The attendant is able to come within a half an

    hour period. He manages all his care and is very

    independent. In terms of emergency prepared-

    ness, James has an emergency kit and supplies

    for 72 hours. The building has an evacua

    plan in place in case of fire, but does not h

    emergency plans for any other kind of disas

    Beth, a 35 year old woman with cerebral pa

    has lived a fairly sheltered life. She lives a

    and is unable to walk. Beth uses a po

    wheelchair; however is not yet confid

    maneuvering in crowds and tight spaces.

    receives daily home care and uses a cath

    and leg bag. Beth also has some hearing

    and uses a hearing aid. She relies heavily on

    support of her parents, who live in the s

    apartment building. During the emerge

    Beth has become separated from her parand is in a state of panic worrying about w

    they are. Beth was not prepared in any wa

    this emergency. What could she have done

    How could Mary, James and Beth been m

    prepared for this emergency?

    Please Send in your responses to our e

    [email protected] or mail to 8

    409 Granville Street, Vancouver, BC V6C 1T

    By Jonn Olldym, Board Membery Jonn Olldym, Board Member

    Please recycle this Roundtable by passing it along to someone else!

    Cerebral Palsy week in Canada

    2nd to 8th.Please send clippings of newslettarticles about this week to the of

  • 7/28/2019 CPABC Roundtable Winter 2008

    2/8

    Do you want some positive bedtime reading for

    your young ones at home? Check out these fournew titles in our book lending library:

    A Frog ThingFrog ThingByEric DrachmanFrank was a frog and he wanted to fly eventhough flying wasnt a frog thing to do. Themessage of this book is to do well at the thingsyou can do, and not to be sad over things thatarent possible. As an added bonus this bookcomes with a CD of the storycomplete with soundaffects! Ages 4 and up

    GruntruntByJohn RichardsonTeased byhis older siblings about his appearanceand tinysqueal, a little piggyfinds acceptancewith an equally odd-looking companion whoteaches him to celebrate his differences andrecognize that others will appreciate his unique-ness, too. Ages 5 and up

    The MagicallyMysterious Adventures of Noellehe MagicallyMysterious Adventures of Noelethe Bulldoghe BulldogByGloria EstefanThis beautifully written and illustrated bookteaches children the important lesson thateveryone has a special gift and fits into the worldsomewhere. A CD with Noelles Song, BeenWishin is included with this book. Ages 7 and up

    Rolling Along The Storyof Taylor and His Wheelolling Along The Storyof Tayor and Hs Whee-chairhairByJamee Riggio HeelanTaylor has cerebral palsywhich his twin brother

    does not. This triumphant storyoffers a valuablelook at both adjusting to a wheelchair and facingphysical limitations with boundless energyanddetermination. Ages 6 and up

    Books are mailed out on a two week loan basis.To see a full listing of books available see ourwebsite at www.bccerebralpalsy.com, or phoneus at (604) 408-9484, toll free 1-800-663-0004to discuss your needs.

    New Childrens Books!

    CPABC news

    On January15, 2008, Tammyand I met with the

    #4 Girl Guide Troop, Vancouver. We met atGeneral Gordon ElementarySchool in Kitsilano,where the Guides and their leaders invited us totalk about disabilityissues.

    I reallyenjoydoing these kinds of educationalpresentations, as theygive me an opportunitytoshow off some of myskills as a PADS AssistanceDog and also give our audience a glimpse of howa person with a disabilitylives. I amcertainlythemost interesting example of Tammys adaptiveequipment!

    Tammystarts byintroducing herself, her personalassistant and me I sit prettyuntil its mytimeto shine - and then she shares some of her experi-ences about what it is like to live with a disability.I like it when she tells the funnystories. She alsotalks to the kids about how important it is to seethe person with a disabilityas a PERSON first andto be aware first of common humanity, and thethings shared bypeople everywhere. She talksabout differences too, but shows disabilityas yetanother aspect of diversity.

    Then she educates the children about cerebralpalsy, and the some of the challenges it can bring.She demonstrates this byshowing how she usesher adapted cup holder and camera tripod toenjoyher favorite activities of drinking a cup of hotchocolate at Starbucks and photography. Thenits mytime to shine. I demonstrate how I amused as an adaptive tool to assist Tammyretrievean itemfromthe floor and help her take off hersweater. The kids are always so amazed. Afterthis demonstration, Tammygives the audiencethe opportunityto experience what it might be

    like to live with a disability through empathybuilding exercises. She gives the children ovenmitts to wear which restricts their abilityto usetheir hands and fingers and then has themdo anactivity that requires finger dexterity such aswriting, buttoning up their jacket, or operatingtheir Ipod within a time limit. After this activity,

    Tammy asks questions about the task andwhether they found it easyor hard. She alsogenerates discussion around other ways in whichwe adapt and performactivities in our dailylives

    and in what ways we can support people disabilities at school and in the community. Fi

    Tammygives the children an opportunitytoquestions about the presentation. The kids wto know about me and the PADS programasas more questions about Tammyand her exences living with cp. It is always so much Next month we are doing presentationLangleyand Delta.

    VANCOUVER GIRL GUIDE #4TROOP PRESENTATION

    WoofWoof Woof

    WoofWoofWoof Woof

    WoofWoof Woof

    winter 2Cerebral Palsy Association of British Columbiathe

    Submitted byBreeze

    The Cerebral PalsyAssociation of BC proudlyeight bursaries of $1,000 each, to anyestudent 18 years and older, with CP, thplanning to attend an institution of higher leain the following year.Please advise anystudents, with Cerebral Palthe availabilityof these funds and note that ea student has been awarded monies throughfund before, theyare still eligible to apply.

    You may check the criteria by viwww.bccerebralpalsy.com/services.htmApplications must be postmarked no later

    June 13th, 2008.Students need to submit a cover letter alongtheir required documents including name, addphone number and email address (if avail

    You maymail, fax or email your applicatioCPABC attention BursaryCommittee.Contact Feri at 604.408.9484 if you havequestions.

    Cerebral Palsy Association of BTanabe Bursary

    page 2

  • 7/28/2019 CPABC Roundtable Winter 2008

    3/8

    Wheelchair SportsGo for it!

    SNIFFIN FOR SANTA

    page 3

    On January10th, 2008, Tammyvan der Kampparticipated in a roundtable forumon aging witha disability, hosted by the British ColumbiaParaplegic Association. The discussion was thebrainchild of the Canadian Centre on DisabilityStudies, in partnership with advisorycommitteesfromhere in BC, as well as Manitoba and NovaScotia.

    The purpose of this research project is to look atthe needs, gaps, and good practice models incare-giving and supports, transportation, and

    housing for people with disabilities as theyage.

    It is this kind of research that will eventuallyleadto new models of service delivery, communitydesign, and supports.Some important questions were addressed bythegroup:

    1. What makes a communitydesirable to live andgrow older in?2. What distinguishing factors, if any, separate adisability independent living model of supports

    froma seniors health care model?3. Do the relevant agencies and support servicesfromthe two sectors (aging and disability) actuallycommunicate with each other?

    These are just a few of the issues aired at thismeeting. For more information, visit the projectwebsite at www.agingwithdisabilities.com

    AGING WITH A DISABILITY:

    A DISCUSSION

    It was an early start for us November 25,2007. That Sundaymorning dawned clear

    and cold, perfect weather for Rogers Santa

    Clause Parade through Downtown Vancou-

    ver.

    I knew something was up when Tammy(my

    handler) dressed me in a goofyred and green

    cape festooned with jingle bells, over my

    usual PADS working vest. Mynerves jangled

    with everyjingling step we took to the Sky

    Train Station. The trains were crammed to

    overflowing with humans of everydescription,which made it much more difficult to keep my

    mind on mywork.

    So manymen! So manychildren! So many

    people noticing how adorable I was in my

    Christmas finery! It was hard to focus, but I

    did my best. I was, after all, not only

    representing PADS in the parade, but also

    setting an example for all the PADS freshman

    puppies who were also in attendance

    It was a c-c-c-cold morning! I could tell

    Tammywas c-c-c-cold, too, because she was

    grumpy, and wouldnt let me warmher up

    with a mylap hug. We had to wait for a long

    time outdoors, along with manyother parade

    entries you cant just start a mile-long march

    all at once, especiallywhen some entries have

    four feet, some two, some are cars, some

    trucks, and others wheelchairs!

    The Parade was kick started froma Stanley

    Park tour trolleybyVancouver Mayor Sam

    Sullivan.

    Bythe time our little entourage finallyggoing, the air was full of frenzied excitemen

    I could smell it everywhere, along with ho

    and dog poop, of course.

    We followed bagpipes, high-school ban

    some great big horses, lots of acrobats a

    floats, and some veryserious police dogs. T

    was a Christmas Parade and in the spirit

    giving, spectators donated $7,500.00 cash

    special stations set up along the route, a

    6,800 kilograms of food was collected. W

    marched past three hundred thousand peowho were clearlyexcited and happyto see

    but I could sense theywere anticipat

    something even bigger.

    As we turned the final corner, I looked beh

    me and saw him, the Great Man Himself,

    all his fat red and white glory Santa Clau

    And I was glad Id been a good dog all yea

    From the desk of Breeze, PADS Assistance Dog

    Congratulations to Taewon Kook of Burnaby, winneStarbucks gift card! Thank you to all of you who took thefill out our fall newsletter survey. Your comments arewelcome byphone at 604-408-9484 (Toll Free 1-800004) or email [email protected].

    StarbucksDraw Winner 2008

    The CPABC has started a grant to help differ thecosts of an individual, or familymembers seekingthe benefits of Conductive Education. Non-profitsand Associations offering Conductive Educationcan also access the grant. The fund for the grantis small right now but with the help of membersand interested parties, it can grow to helpfamilies' access this much sought after specializedphysical therapy. Please contact Feri for moreinformation.

    Conductive Education Fund

    CPABC new

  • 7/28/2019 CPABC Roundtable Winter 2008

    4/8

    the

    page 4

    winter 2Cerebral Palsy Association of British Columbia

    parents

    First Tuesdayof the Month 7:00-8:30 pm

    Parents of students with special needs in

    the Vancouver School System

    Guest speakers will be brought in each

    month to address topics such as: Special

    education technology, how to access

    funding or find good summer programs

    Limited childcare provided

    Contact Pat Neuman at 604-713-5213 or

    [email protected]

    When:hen:For:or:

    Agenda:genda:

    hildcare:

    ocations:

    New Online CoursesWills, Trusts and Estateslls, Trusts and EstatesLearn everything you need to know about how to

    set up your will, including the different types of

    trusts you may want to include to leave an

    inheritance for your child with a disability. You will

    also learn about the new Registered Disability

    Savings Plan. Course offered everyother month

    starting in March 2008. Course takes 3-5 hours

    to complete.

    Home is Where the Heart isome is Where the Heart isExplore the different home options available for

    your relative with a disability. This course comes

    with a downloadable practical guide and lots of

    inspiring ideas. First course will be offered in May

    2008. For more information about these courses

    call the PLAN office at 604-439-9566 or email

    [email protected].

    Swings for Special Play NeedsLow Cost Delivery to Your Door

    Swing Platformwing PlatformLets people of all sizes swingwithout leaving the customsupport of their wheelchairs

    Vertical Swing Seatertical Swing SeatSecurely cradles the unsteadyswinger-features adjustableupper torso support. Can bemounted indoors or out.

    Hammock Swing Seatammock Swing SeatGently holds children and adultsup to 250 lbs. Heights andangles can all be adjusted tosuite individual positioning needs.

    For more information and current prices,contact The DragonflyToyCompanyat1-800-308-2208 or www.dragonflytoys.com.Mailing address - 291 Yale Ave., Winnipeg, Manitoba, R3M 0L4

    New ParentDiscussion Group

    Vancouver School District

    Accessible Play UnitsInternational Play Co. is a local manufacturer(based in Langley) of indoor and outdoor playequipment. Their product does allow for disabledaccess, however, because all the units arecommercial grade prices start around $8000.Check out some of their designs atwww.iplayco.comand then give thema call at604-882-1188 to see what sort of pricing you arelooking at. According to the email we received,theyare open to selling to individual homeowners.

  • 7/28/2019 CPABC Roundtable Winter 2008

    5/8page 5

    You are Invited!ou are Invited!

    Easter Seal Campsaster Seal Camps

    Surrey

    Adapted Swimmingdapted Swimmng One-to-one supportprovided. Children will be taught the Red Cr

    Programand progress at an individual rate.

    Programs at -SurreySport & Leisure Complex a

    Newton Wave Pool

    Adapted Fitnessdapted Fitness Programis designed for yoand adults with special needs who requ

    assistance in learning and applying the princip

    of weight training. If one- to one -suppor

    required, caregivers are asked to attend.

    Programs at Guildford Recreation Centre

    Newton Wave Pool Weight Room

    Adapted Dancedapted Dance This fun course introduces kto creative movements through acting, sing

    and of course lots of dancing.

    Programs at: Newton Recreation Centre

    To find out when registration for all of th

    programs begins call 604-501-510004-501-5100

    Mark you Calendars for Upcoming Camp Open

    Houses

    Ever wondered what it would be like to send yourchild to an Easter Seal Camp? Go and find out.

    Open Houses:pen Houses:Aug. 10th, Sat., 11 am 3 pmug. 10th, Sat., 11 am 3 pmCamp Winfield 21 kms outside Kelowna at

    1790 Davidson Road

    Get in touch with nature at this peaceful 25 acre

    site featuring 60 foot evergreens and an open

    plateau.

    July12th, Sat., 11am 3 pmuly12th, Sat., 11am 3 pmCamp Squamish 45 kms north of Vancouver at

    the foot of Mount Garibaldi and the mouth of the

    Squamish River at 41015 Government Road

    This 33 acre site features endless grass fields and

    forested nature trails. Ahhhh.breathe in that

    fresh air..

    July13th, Sat., 11am 3 pmuly13th, Sat., 11am 3 pmCamp Shawnigan 35 kms north of Victoria at

    2180 East Shawnigan Lake Road - lakefront

    property, rolling hills and beautifullykept gardens.

    What more could you ask for?

    Camps are operated bythe BC Lions Societyandoffer fun activities in a safe environment for

    children and youth. For more information call The

    BC Lions Societyat

    1-800-818-4483.-800-818-4483.

    Summer is just around the corner and that mea

    camping! The BC Lions Societyoperates th

    Easter Seal camps located throughout BC children and youth. Registration is on a first-co

    first-serve basis so dont delay! Applications w

    be available on Monday, April 7th and med

    forms at the beginning of March. Camps run fro

    June 20th to Aug. 17th. For further informat

    and camp dates go to www.lionsbc.ca or call t

    BC Lions Societyat 1-800-818-4483.

    ndoor Funor 2 to 7 Year Oldsdsupplies:Cheap shaving creamor hand lotion

    A cookie tray

    Towel to wipe off hands

    et Up:

    Squirt creamor lotion onto trayand swish it

    round to cover tray

    uggestions for Play:stions for Play:Be an artist! Draw pictures or make designs in

    the cream.

    Make trails through the creamwith a toycar.

    Fun!Polish your fingernails or toenails with the

    lotion.

    Swimming,wimming,Fitnessitnessand Dance!nd Dance!

    childre

    Summer Fun!ummer Fun!Squamish, Winfield & Shawniganquamsh, Wnfield & Shawnigan

    MessingMessingAroundround

    Adapted fromCreative PlayActivities for

    hildren with Disabilities byMorris & Schultz

  • 7/28/2019 CPABC Roundtable Winter 2008

    6/8

    Victoria

    Are you interested in sculpture, woodwork,painting, jewelryetc.? If so, the Vancouver IslandSocietyof Disabled Artists might be right up youralley. The societywas founded in 1996 and isocated at 4114 Shelbourne St. They offersupport, direction and training to persons withdisabilities who wish to become professionalartists. Part of their mission also includes introduc-ng disabled children and newlyinjured to a user-friendlyart studio. Sound interesting? Visit thesocietys website at www.visoda.org or phone250-472-2917 for more information.

    Victoria

    This suite was built solelyfor guests in a wheel-chair. Every square foot was designed withaccessibility in mind. The full size kitchen hasowered counters and a roll-under sink and cooktop. Bathroomfeatures wheel in shower, raisedtoilet seat and appropriate grab bars. Enjoyacemented private patio complete with seatingarea and BBQ. High, low season, familyandgroup rates available. For more information go towww.accessvictoria.com or phone1-888-593-4247 or 250-744-0046 or email

    [email protected]

    Ready for a Holiday?

    AreYouArtisticallyInclined?

    page 6

    winter 20Cerebral Palsy Association of British Columbia

    Pottery, Cooking,Swimming & Socializing!

    NanaimoNanaimo Recreation Centers motto, everyoneactive, everyday, certainlyrings true where staffhave worked veryhard to develop programs forthose with special needs. Cooking classes arewheelchair accessible and the pottery lessonshave been designed specificallywith special needsparticipants in mind. If you like swimming whynot join an aqua therapyclass? All movementswill be adapted to fit yourour needs. Talk aboutcustomer service! Harwood ActivityCentre andNanaimo Aquatic Centre both offer a social clubfor teens and adults with physical and develop-mental disabilities. This social meeting place givesparticipants a chance to meet new friends andplan fun activities for the month. Pick up aNanaimo Leisure Guideanaimo Lesure Guide or phone the SpecialNeeds Coordinator at 756-5200 for moreinformation. To see a full listing of excitingprograms available, Google Nanaimo LeisureNanaimo LesureGuideuide and go to Special Needs. Here you willfind something for all ages, interests and abilities.Care aides are welcome; if you dont have one,

    Centres will do their best to assist you in locatingone. So what are you waiting for? Get out andget involved!

    Vernon

    Who:ho: Ages 16 29Why:hy: To meet others, to be encouraged and

    supported, to build your skills and to

    share with others

    Time:me: Mondayafternoons 3:30pm 5:30pmPlace:lace: Vernon DisabilityResource Centre

    3402 27th Ave., Suite 107

    Info:nfo: phone [email protected]

    Peer Support Group forYouth with Disablilities Victoria

    Are you interested in the creation of a support group for youth/adults, cerebral palsy, in the Victoria area? Iplease add your name to the contact li

    [email protected] phone Wen250-595-0044. If there is enough interest sha group maybe able to get up and running.

    Peer Support Group

    regional

    MarcharchApril 5 or 26pril 5 or 26

    MayayMay16 -18ay16 -18June 12-14une 12-14

    Juneune

    North Vancouver & Abbotsfo

    Nanaimo

    Victoria & Kamloops

    Prince George

    (At the familyFocus Conferen

    Surrey

    Cranbrook

    UpcomingBC WorkshopThe FamilySupport Institute will be conductSafeguards and QualityService Workshopworkshop will help families identifywhat wfor the individual family and how to assist/provide for their child. It will also ex

    whysafeguards are important and what cadone to improve existing safeguards. tentative dates and locations are as follows:

    For more information contact the FamilySuInstitute at 604-777-9100 oremail [email protected]

  • 7/28/2019 CPABC Roundtable Winter 2008

    7/8

    I relish the new found freedomgiven me bymynew power wheelchair; as far as I amconcernedthis is one of the best decisions that I have evermade. For much of mylife I had relied primarilyupon elbow crutches as mywayof getting aroundin the world. Mycrutches have always served mewell - still, bycomparison the range of myworldwas limited to onlyas far as myarms could takeme, or as a non- driver to where ever I could get aride.

    As I entered middle age, discomfort from anoveruse injuryin the shoulders and chronic lowerback pain became the normas did fatigue born ofa constant battle with the taxis to get fromhometo Skytrain. The less than two block ride wasfurther than I could walk but not a lucrativeenough business opportunityfor manyof the taxidrivers. I was often left standing for long periodswaiting for someone who was willing to pick me

    up. Faced with the inabilityto get to Skytrain Isuddenlyasked myself: What are you doing?!!Whydon't you get a power wheelchair? If youcould find one that you can get on the bus, youwon't have to depend on anyone to get toSkytrain! You might even save some physicalenergy.

    Iasked mydoctor to refer me to G. F. Strong forassistance in selecting a chair. Mypast experienceworking with a therapist in the communityhadbeen that theyhad little knowledge of CP and I did

    not want mydexterityconcerns dismissed simplybecause myhands do not visiblyshake. I workedwith a therapist and a representative froma localmedical supplycompanyto select a chair thatincluded the abilityto programthe controls withan anti-tremor command. This simple adjustmentalleviated previously experienced difficultiesdriving a power wheelchair in a straight line! Themid-wheel drive chair that I chose also offers methe abilityto board the bus forward and then turnmychair around in the designated wheelchairspot. This eliminates the challenge of

    ByLouise Gaudry

    GrabPower!!!!

    having to back around the coin box and into thedesignated spot. This had made using a scooteron the bus impossible for me.

    As soon as I began using mynew chair for mycommute to work, I noticed an immediate changein myenergylevel. Regular passengers on theroute even pointed out that I sometimes wasawake for the ride; whereas previouslyI alwaysfell asleep the second I sat down. Until I experi-enced what it was like not to be continuouslyphysicallytired I had no idea just how exhausted Iwas. Also new to me was the realization of howmuch mybodypain actuallycontributed to myfatigue - a once constant throb in myshoulders isnow gone and although not perfect; myback pain

    is much improved.

    I haven't abandoned walking. I cherish this ability.I still walk around myapartment, balancing bybrushing myhand against the wall, and walkoutside with mycrutches with much more energy.

    I amnow a firmbeliever that people should use allequipment available to themto enhance theirabilityto participate in life. I don't think you haveto wait for pain to give the license, or to put itanother way: If you want to cross a river you could

    swimbut whywouldnt you to use a boat?

    Note: Employment Program for Persons withDisability(EPPD) will consider funding equipmentfor those not on PWD, needing equipment inorder to pursue educational/vocational goals or tosecure employment. In the greater Vancouverarea the EPPD programis administered bythreegroups: Theo BC-Vancouver-(604)872-0770,Neil Squire Society-Burnaby-(604)437-9363 and

    Triumph Vocational Services-Surrey-(604)587-0770

    This book is for you.This book means so much to me. I knowstories I feel them. The Emotional Strugglebeen a dreamof mine and has been nearlyyears in the making. It started with a yewriting everydaytrying to perfect what was gto be a chance to inspire people to help

    understand that no matter how bad life can times, there is always a wayout. Life canbetter, but in order to get better, in order to the past behind, you have to fight. You hahold your head high and know that therepurpose for breathing at this verymoment.Mybook has been published byAuthorhouseand has received a five star reviewAmazon.com. Myhope is that your heart wmoved in such a waythat you decide to readEmotional Struggle. Copies can be orderewww.authorhouse.com/BookStore/ItemDeta

    ookid~47454.aspx or borrowed from CPlibrary.

    Sincerely,Brandon Ryan

    Feed Back on Brandons Lettereed Back on Brandons LetterPlease email any questions, thoughtscomments you may have for [email protected] phone Wend604-408-9484. We will forward themontoand print some of your questions and Brandanswers in our next issue of The Roundtable.

    general intere

    Myname is Brandon Ryan and I amtwenty-tyears old. I was born with Cerebral Palsy. I amauthor of a book called, The Emotional StruIt is a book about myjourneyliving with CPtrying to find common ground among peershope in the darkest times of mylife. I have through it all. I have had a rhiztotomyand terelease surgery. Both of my hips have operated on. I have had bones cut and placmyfeet so myarches would have support.I typed, The Emotional Struggle, with myleft hsolelyusing the first finger. This is myattemreach out and inspire those who are hurtingfilled with lifes most difficult and gut wrenc

    questions. This book is myhonest attemptconfession a huge confession, requiringrelease of everything that has been lodged ichambers of mysoul. I have broken the lockshave kept mydeepest thoughts stored away

    The Emotional Strug

    page 7

  • 7/28/2019 CPABC Roundtable Winter 2008

    8/8

    the

    page 8

    Cerebral PalsyAssociation of British Col

    801-409 Granville St.

    Vancouver, BC V6C 1T2

    Phone: 604.408.9484

    Toll-Free (EnquiryCP): 1.800.663.0004

    Fax: 604.408.9489

    Email: [email protected]

    Office Hrs: 9 AM to 5PM, Mondayto T

    the

    winterCerebral Palsy Association of British Columbia

    Membership fee: $20or whatever you can afford.

    Donation: I would like to make a donation to

    support the services and programs of the

    Cerebral Palsy Association of BC. Income taxreceipts are only issued for donations of $10 or

    more, unless requested.

    $100 $75 $50 $25

    My choice:

    Method of Payment: I have enclosed a

    cheque payable to the CPABC or:

    Visa #

    Expiry Date

    Name on Card

    Todays Date

    Signature

    Please mail to:

    Cerebral Palsy Association of BC

    801-409 Granville Street

    Vancouver, BC V6C 1T2Charitable Registration Business Number 10690 4204 RR0001

    Nowmore than ever before

    your membershipwill help to

    Realize equalityRealize equalityin a diverse society!n a diverse society!Become a member today!

    CPABC Board Members

    CPABC Staff

    CRAIG LANGSTONTRISHMCKAYJONN OLLDYM

    DON RENAUDESTHERJ. LEETONY KRUSE

    KENT LOFTSGARD

    LIZCALDERLESEBLTERREANEDERRICK

    PresidentVicePresidentTreasurer

    FERI DEHDAR

    TAMMY VAN DERKAMP

    WENDY HAWRYZKI

    Director ofPrograms &Administration

    Family&IndividualSupport Worker

    AdministrativeAssistant

    HaHa

    What did the tie sayto the hat?hat did the tie sayto the hat?You go on ahead and Ill hangaround.

    When cant astronauts land onhen cant astronauts land onthe moon?he moon?When its full.

    What did one wall saytohat did one wall saytoanother wall?nother wall?Meet you at the corner.

    What did the envelope saytohat did the enveope saytothe stamp?he stamp?Sick with me and we will goplaces.

    Whydo cows never have anyhydo cows never have anymoney?oney?Because farmers milk themdry!

    Why I would liketo be on a Farm

    Thank you Cathyfor your contribution thank you Cathy for your contribution toMember to Member Section on this moember to Member Section on this motopic HolidayDestinations.opic Holiday Destinations.

    I love animals. Goats can scare me buthem. Chickens might scare me but them. Id like to be out in the field, waEd take care of them. I would just likein open clean air not a whole lot of paround. Maybe I will feel like I amtakinof the animals and that would make mgood. Animals would not argue or talkto me or tell me what to do. Theywome be ME and FREE! I would like tbluebell flowers, one red rose plant, atree and zucchini, tomato plant and an

    tree, pear tree, onion plants and herbbasil, oregano, chives, tarragon, cilantrparsley; however, this is not reality; thethis is somewhat difficult for me to wwant to believe it, I want to see it but it wtake a miracle.

    CPABC encourages all members to their personal experiences, ques

    and concerns. Please email [email protected]

    ByCathyGrantSecretary