Community Research Advisors Group

to the

Tuberculosis Trials Consortium

May 16, 2013Atlanta, GA

Francis A, CRAG member, Site 39Mike Frick, CRAG coordinator;

Treatment Action Group

Membership UpdateCRAG Member Site location (number)

Barbara Seaworth San Antonio, USA (63)

Cynthia Lee New York City, USA (24)

Debra Shelly Houston, USA (62)

Dorothy Namutamba* Kampala, Uganda (30)

Ezio Tavora Rio de Janeiro, Brazil (29)

Francis Apina Kisumu, Kenya (39)

Laia Ruiz Mingote* Barcelona, Spain (31)

Carmen Contreras Lima, Peru (38)

Natalie Skipper Nashville, USA (70)

Nomampondo Barnabas Soweto, South Africa (34)

Taharqa Elnour Cape Town, South Africa (33)

*CRAG co-chair

CRAG Working Group Participation• CRAG members continue to participate in many working groups and protocol development teams:

• Other working groups should contact CRAG at key milestones in process for feedback

• 2 new Community Advisory Boards (CABs) formed • Uganda • Peru

• Co-authored Lancet Infectious Diseases publication on community engagement in TB research • “Engaging communities in TB Research,” Lancet ID (2013)

• World TB Day activities and advocacy • South Texas World TB Day walk / run • Congressional meetings in Washington, D.C. • Awareness raising through social media (diamundialtb.org)

CRAG Member Achievements since October 2012

CRAG Achievements: Media

“TB’s global resurgence amplifies US risk” Dec 18, 2012

“TB, a neglected disease in Uganda” May 15, 2013

CRAG Achievements: conference submissions

1. CRAG submitted an abstract on M&E for community engagement in TB research to the

2. Dorothy Namutamba also submitted an abstracts to the Union Conference

3. Barbara Seaworth will present on abstract at the NTCA annual meeting

Ongoing CRAG activities• Finalizing an M&E framework for CRAG member activities• Support from Lakshmy Menon, CDC Field Services and

Evaluation Branch

• Measures CRAG impact across multiple levels: • TBTC • Communities• Trial sites • Policymakers • CRAG members

• Measures CRAG impact in multiple domains: • knowledge• attitudes• practices

Ongoing CRAG Activities

1. Advocating for increased access to sutezolid and rifapentine for TB programs and research consortia

2. Advocating for increased funding and political will for TB research - Translated Treatment Action Group TB R&D Funding

Report into Spanish

Upcoming CRAG Activities

1. Supporting Good Participatory Practice guidelines adoption in TB drug trials

- Workshop on community engagement at Union conference

- NIH R21 Grant on GPP

2. Consulting on S29x informed consent evaluation survey

3. Increasing CRAG involvement in reviewing early drafts of protocols

4. Increasing CRAG involvement in disseminating research findings to study participants