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Community Outreach & Health Literacy
Michelle Tropper, MPHNYU Cancer Institute
Tisch Hospital• 24.2% of population served is foreign-
born
Bellevue Hospital• Nation’s oldest and NYC largest public
hospital • Over 70% of patients are foreign-born• Majority of patients uninsured and publicly
insured
Woodhull Hospital• Primary safety net provider for North
Brooklyn• 49% of the population is uninsured
•Numerous Community Health Centers
•Languages spoken: Spanish, Mandarin Cantonese, Bengali, Polish, Japanese, French, Italian, Russian, Haitian Creole, and Urdu
NYU CANCER INSTITUTE POPULATION
NYC Community Health Profiles, 2006
NYU LANGONE MEDICAL CENTER HEALTH LITERACY COUNCIL
• Coordinates health literacy & plain language initiatives throughout the medical center
• Collaborative council that helps coordinate the creation, revision and translation of
documents, instructions and literature for patients, families, visitors & employees
including:
• Patient education
•Consent forms
•Wayfinding
•Notices
• Signage
•Multi-disciplinary membership
COMMUNITY OUTREACH & EDUCATION PROGRAMMISSION & GOALS
• The mission of the Community Outreach and Education program is to connect the local, national and international communities to NYU Cancer Institute by raising awareness, educating and improving access to evidence-based patient care and research.
•We fulfill our mission and the mission of the Cancer Institute by continually striving to reach the following goals:
• increase the presence of the Cancer Institute
• enhance oncology services for all communities
• promote prevention and early detection of cancer
• develop and promote education and support programs
• promote the findings of translational research
PLAIN LANGUAGE CONSULTATION
RECURRING COMMUNITY OUTREACH EVENTS
January/FebruaryUpdates From San Antonio Breast Cancer Symposium
JuneFaces of Cancer (survivorship event)
MarchColorectal Cancer Awareness Lunchtime SeminarHead and Neck Cancer Screening
SeptemberProstate Cancer Awareness ProgramWomen of Color Conference (began in 2010)
AprilSkin Cancer Awareness Lunchtime Seminar
OctoberBreast Cancer Awareness Program
MaySkin Cancer ScreeningPancreatic Cancer Awareness Lunchtime Seminar
NovemberLung Cancer AwarenessLunchtime Seminar
Monthly:Spanish, English, Chinese Support Groups @ BellevueProstate Cancer Education Series (Man to Man ACS)
Unique Programs to Address Disparities & Barriers
Overarching Strategies Cancer Prevention & Early Detection
Cancer Care & Clinical Trials
Improving Cancer Survivorship
• Bilingual staff & navigators• Interpreting systems• Language-specific
educational programs & materials
• AMBER- Arab American Breast Cancer Education and Referral program • Health Literacy Prevalence Assessment
• Enable access to free community screenings & care
• Build community relationships
• Patient navigation to services & clinical trials
• Lifestyle Counseling and Patient Navigation on Blood Pressure Control and Colorectal Cancer Screening in Black Men
• Community-based Approaches to Colorectal Cancer Prevention in Black Men
• Integrated Breast Cancer Care for Medically Underserved Multi-Ethnic Women
• Family Caregivers Strengths and Skills in Managing Older Cancer Patients Symptoms
• Enable access to treatment and participation in studies tailored to needs of patients
• Patient navigation to services & clinical trials
• A faculty which closely matches the populations served
• Optimally Informed Consent to Therapy and/or Participation in Clinical Research at Bellevue Hospital Center
• Multi-Center Study of Concurrent Paclitaxel & Radiation: Correlation of Tumor Profiles with Pathological Response
• Problem-solving training for Family Caregivers to Korean American Older Cancer Survivors
• Lymphedema Assistance Program at NYU
OVERCOMING DISPARITIES & BARRIERS
HEALTH LITERACY PREVALENCE ASSESSMENT
• Assess prevalence of low health literacy amongst cancer patients and caregivers at NYU
Cancer Institute locations.
• Inform further assessment of the current standard for patient education materials.
• Assess the need for patient navigators to help communicate the importance of follow-up
and to reinforce messages about healthy behaviors.
• Potential to seek funding as a collaborative learning project for implementing systems
change that addresses patient education.
•Conduct assessment as pilot project at NYU Cancer Institute.
• Share findings with Collaborative and explore opportunities for implementation of
systems changes in member organizations.