28
Commissioning Diabetes End of Life Care Services Supporting, Improving, Caring June 2011

Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

  • Upload
    others

  • View
    3

  • Download
    0

Embed Size (px)

Citation preview

Page 1: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

CommissioningDiabetes End of Life

Care Services

Supporting, Improving, Caring

June 2011

Page 2: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

NHS Diabetes information Reader Box

Review Date 2013

Commissioning Diabetes and End of Life Care Services

NHS Diabetes would like to thank the following for their advice and contribution to the development ofthis commissioning guide:

Anita Hayes End of Life Care Team, Department of Health

Charles Daniels Consultant in Palliative Care, North West London Hospitals NHS Trust

And to Thoreya Swage who wrote this publication.

Page 3: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

3

Page

Commissioning for Diabetes and End of Life Care Services 5

Features of Diabetes and End of Life Care Services 6

Diabetes and End of Life Care Services Intervention Map 8

Contracting Framework for Diabetes and End of Life Care Services 11

Standard Service Specification Template for Diabetes and End of Life Care Services 24

Contents

Page 4: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services
Page 5: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

5

Commissioning for DiabetesEnd of Life Care services

1 Commissioning Diabetes Without Walls , 2011, http://www.diabetes.nhs.uk/commissioning_resource/

The NHS Diabetes commissioning approach helps to deliver high quality integrated care through a three-stepprocess that ensures key elements needed to build an excellent diabetes service are in place. The approach issupported by a wide range of proven tools, resources and examples of shared learning.

Step 1 – involves understanding the local diabetespopulation health needs by developing a local HealthNeeds Assessment and setting up a steering groupwith key stakeholder involvement including a leadclinician, lead commissioner, lead diabetes nurse andlead service user

Step 2 – involves the development of a servicespecification to describe the model of care to becommissioned. This becomes the document onwhich tenders may be issued.

Step 3 – involves monitoring the delivery of theservice specification by the provider and evaluatingthe performance of the service. Input from thesteering group with service user representation willbe an important mechanism for monitoring theservice as well as patient surveys.

This commissioning guide has been developed byNHS Diabetes with key stakeholders including clinicaland social services professionals and patient groupsrepresented by Diabetes UK.

It is not designed to replace the Standard NHSContracts as many of the legal and contractualrequirements have already been identified in this setof documents. Rather, it is intended to form the basisof a discussion or development of diabetes End ofLife Care services between commissioners andproviders from which a contract for services can thenbe agreed.

This commissioning guide consists of:

• A description of the key features of good diabetesEnd of Life Care

• A high level intervention map. This interventionmap describes the key high level actions orinterventions (both clinical and administrative)diabetes End of Life Care services shouldundertake in order to provide the most efficientand effective care, from admission to discharge (ordeath) from the service.

It is not intended to be a care pathway or clinicalprotocol, rather it describes how a true ‘diabeteswithout walls’1 service should operate going acrossthe current sectors of health care.

The intervention map may describe current servicemodels or it may describe what should ideally beprovided by diabetes End of Life Care services.

• A diabetes End of Life Care contracting frameworkthat brings together all the key standards of qualityand policy relating to diabetes and End of Life Care

• A template service specification for diabetes End ofLife Care services that forms part of schedule 2part 1 / Module B, Section 1, of the Standard NHSContract covering the key headings required of aspecification. It is recommended that thecommissioner checks which mandatory headingsare required for each type of care as specified bythe Standard NHS Contracts.

For further detail on how to approach thecommissioning of diabetes services please seehttp://www.diabetes.nhs.uk/commissioning_resource

Step 2

Step 3

• Understanding your diabetes population health needs

• Implementing improved services and evaluation

• Understanding what you need to commission for an integrated service

Step 1

Page 6: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

6

A high quality diabetes End of Life Care (EoLC)service should:

• ensure that all individuals approaching the endof life and their carers should:

o have their physical, emotional, social andspiritual needs and preferences assessed byprofessionals who have appropriate expertise

o have a care plan for their diabetes and endof life care

o have their needs, preferences and care planreviewed as their condition changes

o carers have access to bereavement support

o know that there are systems in place toensure that information about their needsand preferences can be accessed by allrelevant health and social care staff 24 hours7 days per week

o maintain dignity and respect for theindividual

• ensure that there is optimal delivery of careacross all relevant services in all settings

• ensure that there is good quality care in the lastdays of life

• ensure there is effective and timely verificationand certification of death and care after death

• ensure that there are equalities in access to andprovision of end of life care services

• demonstrate a clear and effective pathway ofcare which ensures how diabetic, renal, cardiac,stroke or care of the elderly services will identifypatients approaching the end of their life and

utilise all relevant support and coordinate careprovided by generic and specialist staff to deliverhigh quality EOLC.

o Such best practice consists of

■ Anticipatory Care planning

■ Use of the GP supportive or palliativeCare Register

■ Use of tools for delivery of high classEOLC eg Liverpool care of the dyingpathway, Gold Standards Framework,preferred priorities of care tools

■ Effective Standards for Out of Hoursprimary care services (eg Harmonistandards)

In addition the service should:

• be developed in a co-ordinated way, taking fullaccount of the responsibilities of other agenciesin providing comprehensive care ensuring peopleare at the centre of decisions about their careand support - ‘no decision about me withoutme’i

• be commissioned jointly by health and socialcare based on a joint health needs assessmentwhich meets the specific needs of the localpopulation, using a holistic approach asdescribed by the generic long term conditionsmodelii

• provide effective and safe care to people withdiabetes in a range of settings including thepatient’s home, in accordance with the NICEQuality Standards for Diabetesiii

Features of high quality DiabetesEnd of Life Care Services

i Available on the DH website athttp://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_117353

ii Available on the DH website at http://www.dh.gov.uk/en/Healthcare/Longtermconditions/DH_120915

iii Quality Standards: Diabetes in adults, http://www.nice.org.uk/guidance/qualitystandards/qualitystandards.jsp

Page 7: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

7

iv Available on the DH website athttp://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_122944

v Emotional and Psychological Support and Care in Diabetes, Joint Diabetes UK and NHS Diabetes Emotional and PsychologicalSupport Working Group, 2010 http://www.diabetes.nhs.uk/our_work_areas/emotional_and_psychological/

vi http://www.diabetes.nhs.uk/commissioning_resource/

vii See York and Humber integrated IT system at http://www.diabetes.nhs.uk/ year_of_care/it/

viii European Diabetes Working Party for Older People. Clinical Guidelines for Type 2 Diabetes Mellitus. Available on:www.instituteofdiabetes.org

• deliver the outcomes for diabetes as determinedby the NHS Outcomes Frameworkiv

• assess and manage the emotional, psychologicaland mental wellbeing of the patientv

• take into account all diverse and personal needswith respect to access to care

• ensure that services are responsive andaccessible to people with Learning Disabilitiesvi

• ensure that the family/carers of people withdiabetes have access to psychological support

• have effective clinical networks with clear clinicalleadership across the boundaries of care whichclearly identify the role and responsibilities ofeach member of the diabetes healthcare team

• ensure that there are a wide range of optionsavailable to people with diabetes to support selfmanagement and individual preferences

• ensure coordination of services provided byhealth, social care and the voluntary sectors

• provide patient/carer/family education ondiabetes not only at diagnosis but also duringcontinuing management at every stage of care

• provide education on diabetes management toother staff and organisations that supportpeople with diabetes

• have a capable and effective workforce that hasthe appropriate training and updating and

where the staff have the skills and competenciesin the management of people with diabetes

• provide multidisciplinary care that manages thetransition between adult and older peoples’services

• have integrated information systems that recordindividual needs including emotional, social,educational, economic and biomedicalinformation which permit multidisciplinary careacross service boundaries and support careplanningvii

• produce information on the outcomes ofdiabetes care including contributing to nationaldata collections and auditsviii

• have adequate governance arrangements, e.g.local mortality and morbidity meetings ondiabetes care to learn from errors and improvepatient safety

• take account of patient experience, in thedevelopment and monitoring of service delivery

• actively monitor the uptake of services,responding to non-attenders and monitoringcomplaints and untoward incidents

Page 8: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

NH

S D

iab

etes

Dia

bet

es E

nd

of

Life

Car

e

Hea

lth

Nee

ds

Ass

essm

ent

-te

rmin

al p

hase

of

com

plic

atio

ns o

f di

abet

es, e

.g. R

enal

fa

ilure

-in

divi

dual

with

di

abet

es w

ho h

as

adva

nced

incu

rabl

e ill

ness

, e.g

. can

cer

-re

cogn

ition

by

indi

vidu

al

with

adv

ance

d in

cura

ble

illne

ss

- re

cogn

ition

by

heal

th a

nd

soci

al c

are

team

look

ing

afte

r in

divi

dual

with

ad

vanc

ed in

cura

ble

illne

ss

-ch

ange

in s

ocia

l ci

rcum

stan

ces

Fast

Tra

ck f

or

con

tin

uin

gh

ealt

h c

are

nee

ded

?

Yes No

Ass

essm

ent

for

pre

ferr

ed

pla

ce o

f ca

re

Tran

sfer

to

p

refe

rred

p

lace

of

care

E.g.

-re

mai

n at

hom

e-

hosp

ice

etc

Co

nd

itio

nd

eter

iora

tin

gan

d p

oss

ibly

ente

rin

g d

yin

gp

has

e

Yes

Go

to

p

age

10

No

Go

to

Pag

e 9

‘Cau

se f

or

con

cern

’re

gis

ters

fo

r ad

van

ced

kid

ney

d

isea

se

Rec

og

nit

ion

of

trig

ger

s fo

r En

d o

f Li

fe C

are

dis

cuss

ion

(G

old

St

and

ard

s Pr

og

no

stic

In

dic

ato

r)

Diabetes End of Life Care Servicesintervention Map

8

Page 9: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

9

NH

S D

iab

etes

Dia

bet

es E

nd

of

Life

Car

e

E.g.

-si

ngle

as

sess

men

t pr

oces

s

-co

mm

on

asse

ssm

ent

fram

ewor

k

-re

view

of

diab

etes

car

e pl

an

-ac

cord

ing

to

agre

ed p

roto

cols

Fro

m

pag

e 8

-ac

cord

ing

to a

gree

d pr

otoc

ols

-op

tion

of

adva

nce

care

pl

anni

ng, e

.g.

Pref

erre

d pr

iorit

ies

of c

are

-op

tion

of

appo

intin

g La

stin

g Po

wer

of

Att

orne

y

- cl

arity

on

resu

scita

tion

-sp

iritu

al c

are

-si

ngle

poi

nt o

f ac

cess

for

Eo

LC

-di

abet

es c

are

team

/ car

e co

-or

dina

tor

info

rmed

Co

nti

nu

ing

ca

re f

or

dia

bet

es/

com

plic

atio

ns

Co

-ord

inat

ion

o

f Eo

LC

serv

ices

Dat

e o

f ca

re

pla

n r

evie

w

agre

ed

info

rmat

ion

on

-24

hou

r te

leph

one

help

line

-ra

pid

resp

onse

co

mm

unity

nurs

ing

care

-sp

ecia

list

palli

ativ

e ca

re

Car

e p

lan

nin

g

revi

ew

-ac

cord

ing

to

agre

ed p

roto

cols

-co

mm

unic

atio

n w

ith d

iabe

tes

care

tea

m

Rev

iew

of

care

r’s

nee

ds

-ac

cord

ing

to

agre

ed p

roto

cols

-co

mm

unic

atio

n w

ith d

iabe

tes

care

te

am

Co

nd

itio

n

det

erio

rati

ng

an

d p

oss

ibly

en

teri

ng

dyi

ng

p

ase

YesNo

Go

to

p

age

10

Full

asse

ssm

ent

of

nee

ds

Ass

essm

ent

of

care

r’s

nee

ds

Op

en

dis

cuss

ion

w

ith

in

div

idu

alan

d c

arer

o

n t

he

app

roac

h

to E

nd

of

Life

Car

e p

lan

ag

reed

id

enti

fyin

g

pre

ferr

ed

pri

ori

ties

fo

r ca

re (

typ

e an

d lo

cati

on

o

f Eo

LC)

End

of

Life

C

are

co-

ord

inat

ion

p

roce

ss

iden

tifi

ed

-lin

k w

ith

diab

etes

ca

re p

lan

Page 10: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

10

NH

S D

iab

etes

Dia

bet

es E

nd

of

Life

Car

eC

are

in t

he

last

day

s o

f lif

e

Fro

m

pag

es 8

an

d 9

Rev

iew

of

nee

ds

and

p

refe

ren

ces

for

pla

ce o

f d

eath

-re

cogn

ition

of

wis

hes

rega

rdin

g re

susc

itatio

n

-sp

iritu

al c

are

-in

form

atio

n on

ou

t of

hou

rs

palli

ativ

e ca

re

serv

ices

-in

form

atio

n to

di

abet

es c

are

team

Tran

sfer

to

p

refe

rred

p

lace

of

dea

th,

as a

gre

ed w

ith

in

div

idu

al/

care

r

Ap

pro

pri

ate

EoLC

as

per

in

div

idu

al’s

w

ish

es

-co

mfo

rt m

easu

res,

e.

g. P

allia

tive

dial

ysis

fo

r ad

vanc

ed k

idne

y di

seas

e

-an

ticip

ator

y pr

escr

ibin

g of

m

edic

ines

, for

sy

mpt

om c

ontr

ol

-di

scon

tinua

tion

of

inap

prop

riate

in

terv

entio

ns, e

.g.

DN

AR,

dia

bete

s m

edic

atio

n

-ps

ycho

logi

cal c

are

-sp

iritu

al c

are

-ca

re o

f th

e fa

mil y

Ind

ivid

ual

die

sTi

mel

y ve

rifi

cati

on

of

dea

th

-ac

cord

ing

to

agre

ed p

roto

cols

-in

form

atio

n to

ca

rer

-su

ppor

t to

car

er

-in

form

atio

n to

pr

imar

y ca

re t

eam

/di

abet

es t

eam

Cer

tifi

cati

on

o

f d

eath

-ac

cord

ing

to

agre

ed p

roto

cols

-in

form

atio

n to

ca

rer

-su

ppor

t to

car

er

-re

ferr

al t

o co

rone

r ac

cord

ing

to a

gree

d pr

otoc

ols,

if

requ

ired

Emo

tio

nal

an

d

pra

ctic

alb

erea

vem

ent

sup

po

rt t

o

care

r an

d

fam

ily

-ac

cord

ing

to

agre

ed

prot

ocol

s

Dis

char

ge

fro

m

the

serv

ice

Page 11: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

11

IntroductionThis contracting framework sets out what is requiredof clinically safe and effective services that areproviding End of Life Care for people with diabetes.The framework is designed to be read in conjunctionwith the Diabetes End of Life Care servicesintervention map, which describes the interventionsand actions required along the patient pathway aswell as entry and exit points and the standard servicespecification template for Diabetes End of Life Careservices.

The framework brings together the key quality areasand standards that have been identified by NHSDiabetes, Diabetes UK, the Royal Colleges and otherrelated organisations. This framework supports theNational End of Life Care Strategy1 and Informationto commissioners2 on commissioning these services.

The principles that establish a safepathway for patient care Establishing the principles that underpin the systemsand processes of pathways for patient care leads tomore efficient patient throughput and can reducerisk of fragmentation of care and serious untowardincidents. The principles operate at four layers withina patient pathway:

• Commissioning• Clinical Case Direction or the overall Care Plan (i.e.

the management of an individual patient)• Provision of the clinical service or process• Organisational platform on which the clinical

service or process sits (the provider organisation)

A straightforward or simple pathway is one in whichthe overall management including both Clinical CaseDirection and the delivery of the clinical processesconventionally sits within one organisation. However,with a more complex pathway, there is a danger thatfracturing the overall management pathway intocomponents carried out by different clinical teamsand organisations will require duplication of effortleading to inefficiency and increased risk at handoverpoints.This can be managed by establishing cleargovernance arrangements for all the layers in thepathway.

In addition, Commissioning Bodies must balance thebenefits of fracturing the pathway against increasedcomplexity and ensure that the increased risks aremitigated.

The governance arrangements required for all threelayers and the commissioner responsibilities areshown below:

Contracting Framework for DiabetesEnd of Life Care Services

Page 12: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

12

In essence, at each level, there are governancearrangements to ensure sound and safe systems ofdelivery of patient care with clear lines ofaccountability between each level.

Diabetes end of life careThe key principles of good diabetes end of life careservices is to provide a high quality service that isreliable in terms of delivery and timely access forpatients requiring that care.

Diabetes end of life care services are provided by anumber of different teams in the primary,community and acute setting. It is essential thatthere is co-ordination of care of the patientsthrough the care planning process and that theindividual’s GP/consultant diabetologist andspecialist palliative care professionals retain jointclinical accountability and responsibility for overallpatient care and overall responsibility for themanagement of side effects. Each professional is,however, responsible for their own actions.

As with other diabetes services, the managementof individuals with diabetes who require end oflife care should include an assessment of theirphysical, emotional and psychological well-being,together with timely access to appropriatepsychological and biological/psychiatricinterventions3. In addition, support for carers andfamilies, the provision of timely information andaccess to spiritual care services are essentialcomponents of care for people nearing the end oflife1.

The services themselves will also have clinicaloversight and accountability for governancepurposes.

This contracting framework describes the care tobe provided for:

i) individuals with diabetes who have advanced,incurable illness,

ii) individuals who are in the terminal phases ofthe complications of diabetes, e.g. advancedrenal disease, heart failure or stroke

This Contracting Framework should also be read inconjunction with the diabetes commissioningguides for diagnosis and continuing care, olderpeople and the complications of diabetes (diabetesand kidney care, and cardiovascular complicationsof diabetes) follow the principles for the effectivecommissioning of services for people with LearningDisabilities4.

Ensuring qualityCommissioning Bodies should ensure that thediabetes and End of Life Care servicescommissioned are of the highest quality. There may, in addition, be some organisations thatwish to offer their services, but do not have ahistory of providing such care.

i) for provider organisations already involved in thedelivery of diabetes and End of Life Care services,there should be retrospective evidence of systemsbeing in place, implemented and working.

ii) for organisations new to the arena thecommissioner should reassure itself that theprovider has the organisational attributes,governance arrangements, systems andprocesses set up to provide the platform for safeand effective delivery of diabetes and End of LifeCare services to be provided.

This framework describes what theCommissioning Body needs to ensure ispresent or addressed in its discussions withthe provider organisation.

Under the ‘elements’ column there are crossreferences to the Standard NHS Contract forCommunity Services – bilateral (main clauses andschedules)5. (The cross references also apply to theclauses and schedules in the Standard NHS Contractfor Acute Services).This is to assist commissionersand providers in having an overview of how theelements link to the Standard NHS Contract. Some of the areas are open to interpretation andconsequently the references are not exhaustive.

Page 13: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

13

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Gov

erna

nce

Lead

ersh

ip

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

11,1

6,19

,33,

48,4

9,51

,53,

60

Mod

ule

D: S

ched

ules

:6

,15

Cla

rity

of th

e or

gani

satio

n’s

purp

ose

with

exp

licit

com

mitm

ent

to p

rovi

ding

hig

h qu

ality

ser

vice

s

A c

ultu

re th

at d

emon

stra

tes

anop

en le

arni

ng e

thos

An

orga

nisa

tion

that

is le

gal a

ndet

hica

l in

all i

ts a

ctiv

ities

Prov

ider

mus

t hav

e or

gani

satio

nal s

truc

ture

that

pro

vide

s le

ader

ship

for a

ll pr

ofes

sions

and

disc

iplin

es

In p

artic

ular

, the

re m

ust b

e a

corp

orat

ecl

inic

al d

irect

or w

ith th

e re

spon

sibili

ty a

ndac

coun

tabi

lity

for t

he c

linic

al s

ervi

ce

Ther

e m

ust b

e a

lear

ning

fram

ewor

k in

the

orga

nisa

tion

Ther

e sh

ould

be

a de

signa

ted

clin

ical

dire

ctor

with

resp

onsib

ility

and

acco

unta

bilit

y fo

r the

dia

bete

s en

d of

life

car

e se

rvic

es

Gov

erna

nce

Inte

grat

ed G

over

nanc

e

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

11,1

9,27

,48,

49,

51,5

3,54

,56,

60

Mod

ule

D:

Sche

dule

s:

6,12

,15

An

orga

nisa

tion

that

is g

uide

d by

the

prin

cipl

es o

f goo

d go

vern

ance

:

- cla

rity

of p

urpo

se- p

artic

ipat

ion

and

enga

gem

ent

- rul

e of

law

- tra

nspa

renc

y- r

espo

nsiv

enes

s- e

quity

and

incl

usiv

enes

s- e

ffec

tiven

ess

and

effic

ienc

y- a

ccou

ntab

ility

An

orga

nisa

tion

that

acc

epts

resp

onsib

ility

and

acc

ount

abili

tyfo

r all

its a

ctio

ns

Cle

ar o

rgan

isatio

nal a

nd i

nteg

rate

dgo

vern

ance

sys

tem

s an

d st

ruct

ures

in p

lace

with

cle

ar li

nes

of a

ccou

ntab

ility

and

resp

onsi

bilit

ies

for a

ll fu

nctio

ns. T

his

incl

udes

inte

rfac

es a

nd tr

ansi

tions

bet

wee

n se

rvic

es

Qua

lity

Gov

erna

nce

in th

e N

HS.

A g

uide

for p

rovi

der b

oard

s6

Gov

erna

nce

Clin

ical

Gov

erna

nce

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

B:Se

ctio

ns:

1 (p

art 2

), 3,

4

Mod

ule

C:

4,4A

,6,9

,10,

12,1

4,15

,16,

17,1

9,21

,26

27,2

9,31

,32,

33,

48,4

9,51

,53,

54

Expl

icit

com

mitm

ent t

o qu

ality

and

patie

nt s

afet

y

Patie

nt fo

cuse

d w

ith re

spec

t for

the

pers

onal

wish

es o

f pat

ient

s in

all a

spec

ts o

f the

ir ca

re

A c

omm

itmen

t to

inno

vatio

n an

dco

ntin

uous

impr

ovem

ent

Clin

ical

Gov

erna

nce

syst

ems

and

polic

ies

shou

ld b

e in

pla

ce a

nd in

tegr

ated

into

orga

nisa

tiona

l gov

erna

nce

with

cle

ar li

nes

ofac

coun

tabi

lity

and

resp

onsi

bilit

y fo

r all

clin

ical

gove

rnan

ce fu

nctio

ns

e.g.

• C

linic

al A

udit

• C

linic

al R

isk

Man

agem

ent

• U

ntow

ard

Inci

dent

Rep

ortin

g•

Infe

ctio

n C

ontr

ol•

Med

icin

es M

anag

emen

t•

Info

rmed

Con

sent

• R

aisin

g C

once

rns

All

sub-

cont

ract

ors

mus

t mee

t gov

erna

nce

and

lead

ersh

ipar

rang

emen

ts o

f the

mai

n pr

ovid

er o

rgan

isatio

n

Com

miss

ione

r, pr

ovid

er a

nd/o

r NH

S Li

tigat

ion

Aut

horit

y m

ust

revi

ew th

e C

linic

al N

eglig

ence

Sch

eme

for T

rust

s ar

rang

emen

ts /o

rot

her o

rgan

isatio

nal /

pro

fess

iona

l ind

emni

ty a

rran

gem

ents

The

serv

ice

shou

ld h

ave

in p

lace

writ

ten

prot

ocol

s an

d pr

oced

ures

defin

ing

clea

r lin

es o

f acc

ount

abili

ty a

nd re

spon

sibili

ty.

The

serv

ice

is re

quire

d to

com

ply

with

gui

delin

es, p

ublic

hea

lthgu

idan

ce a

nd a

ppra

isals

publ

ished

by

the

Nat

iona

l Ins

titut

e fo

rH

ealth

and

Clin

ical

Exc

elle

nce

that

are

rele

vant

to th

e ca

repr

ovid

ed b

y th

e se

rvic

e 7

Page 14: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

14

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Gov

erna

nce

Mod

ule

D:

Sche

dule

s:

3,6,

10,1

1,15

,17

• S

taff

Dev

elop

men

t•

Com

plai

nts

Man

agem

ent

• P

atie

nt a

nd P

ublic

Invo

lvem

ent

• P

atie

nt d

igni

ty a

nd re

spec

t •

Equ

ality

and

div

ersi

ty•

Intr

oduc

ing

new

tech

nolo

gies

and

trea

tmen

ts•

An

exte

rnal

ly a

ccre

dite

d Q

ualit

y A

ssur

ance

syst

em a

nd in

tern

al e

rror

repo

rtin

gin

volv

ing

all s

taff

gro

ups.

CG

sys

tem

s sh

ould

hav

e cl

ear a

ndde

mon

stra

ble

links

to o

ther

NH

S sy

stem

sw

ith c

olla

bora

tive

CG

act

iviti

es a

nd s

harin

gof

exp

erie

nce

and

lear

ning

Prov

ider

sho

uld

prod

uce

annu

al C

linic

alG

over

nanc

e re

port

s as

par

t of N

HS

CG

repo

rtin

g sy

stem

Prov

ider

s ar

e re

quire

d to

agr

eeC

omm

issio

ning

for Q

ualit

y an

d In

nova

tion

sche

mes

(CQ

UIN

) for

dia

bete

s ca

re, e

.g.

mod

el C

QU

IN s

chem

e pr

opos

ed b

y th

e N

HS

Inst

itute

for I

nnov

atio

n an

d Im

prov

emen

t 11

In a

dditi

on, t

he s

ervi

ce is

requ

ired

to c

ompl

y w

ith th

e fo

llow

ing:

i.

Gui

danc

e pu

blish

ed b

y N

ICE

• Im

prov

ing

supp

ortiv

e an

d pa

lliat

ive

care

for a

dults

with

can

cer

8

• M

edic

ines

adh

eren

ce: i

nvol

ving

pat

ient

s in

dec

ision

s ab

out

pres

crib

ed m

edic

ines

and

sup

port

ing

adhe

renc

e 9

ii. G

uida

nce

publ

ished

by

the

Dep

artm

ent o

f Hea

lth a

nd M

arie

Cur

ie P

allia

tive

Car

e In

stitu

te

• G

uide

lines

for L

iver

pool

Car

e Pa

thw

ay D

rug

Pres

crib

ing

inA

dvan

ced

Chr

onic

Kid

ney

Dise

ase

10

Clin

ical

qua

lity

Qua

lity

assu

ranc

e

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

4,12

,16,

17,1

8,19

, 20,

21,3

1,32

,33,

54

Mod

ule

D:

Sche

dule

s:

2,3

,6,1

0,11

Mod

ule

E:

3,4

Und

erst

andi

ng th

e co

ncep

t of

clin

ical

qua

lity

Has

con

cern

for q

ualit

y w

hile

wor

king

eff

icie

ntly

An

unde

rsta

ndin

g of

the

use

ofau

dit,

patie

nt a

nd s

taff

feed

back

to im

prov

e qu

ality

An

orga

nisa

tion

that

pro

vide

scl

arity

of o

bjec

tives

and

pro

mot

esre

flect

ive

prac

tice

to im

prov

equ

ality

of p

atie

nt c

are

Qua

lity

assu

ranc

e sy

stem

s m

ust b

e in

pla

cean

d ap

prov

ed b

y co

mm

issio

ning

bod

y w

ithre

gula

r rep

ortin

g of

out

com

es

Prov

ider

s ar

e re

quire

d to

pub

lish

qual

ityac

coun

ts fo

r the

pub

lic re

port

ing

of q

ualit

yin

clud

ing

safe

ty, e

xper

ienc

e an

d ou

tcom

es

Prov

ider

s sh

ould

par

ticip

ate

in n

atio

nal a

udit

prog

ram

mes

Dia

bete

s se

rvic

es m

ust c

ompl

y w

ith th

e pe

rfor

man

ce m

easu

res

requ

ired

of N

HS

serv

ices

, i.e

mee

ting:

12

• R

efer

ral t

o Tr

eatm

ent w

aits

(95t

h pe

rcen

tile

mea

sure

s)

• A

&E

Qua

lity

Indi

cato

rs

The

Prov

ider

is re

quire

d to

mee

t the

qua

lity

mar

kers

and

mea

sure

s fo

r End

of L

ife C

are

13

The

Prov

ider

is re

quire

d to

par

ticip

ate

in a

gree

d au

dits

e.g

.:

• N

atio

nal C

are

of th

e D

ying

aud

it 14

• V

iew

s of

Info

rmal

Car

ers

– Ev

alua

tion

of S

ervi

ces

15

• D

iabe

tes

E 16

Page 15: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

15

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Wor

kfor

ce/ s

taff

Clin

ical

sta

ff a

ttrib

utes

criti

cal t

o sa

fety

and

qual

ity o

f int

erve

ntio

ns

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

11,1

6,19

,26,

33,4

8,56

Mod

ule

D:

Sche

dule

s:10

The

prov

ider

org

anisa

tion

has

syst

ems

and

proc

edur

es in

pla

ce to

assu

re th

e co

mm

issio

ner t

hat t

heir

clin

ical

team

has

the

nece

ssar

yqu

alifi

catio

ns, s

kills

, kno

wle

dge

and

expe

rienc

e to

del

iver

the

serv

ice

Staf

f are

com

pete

nt a

nd fi

t for

pur

pose

Prov

ider

to s

atisf

y co

mm

issio

ner t

hat a

ll st

aff

have

cur

rent

app

raisa

l, cl

eara

nces

and

regi

stra

tion

chec

ks a

nd h

ave

dem

onst

rate

dco

mpe

tenc

e in

all

proc

edur

es re

leva

nt to

path

way

.

The

Pro

vide

r to

satis

fy c

omm

issio

ner t

hat t

hey

can

recr

uit (

orpr

ocur

e) a

nd re

tain

a c

ompe

tent

clin

ical

team

to d

eliv

er th

ese

rvic

e

The

staf

f pro

vidi

ng d

iabe

tes

end

of li

fe c

are

serv

ices

in a

llor

gani

satio

ns, e

.g. m

edic

al p

ract

ition

ers,

nur

ses,

alli

ed h

ealth

prof

essio

nals,

pha

rmac

ists,

soc

ial c

are

staf

f, ch

apla

ins,

mor

tuar

yan

d am

bula

nce

staf

f etc

mus

t hol

d th

e re

leva

nt re

gist

ratio

n w

ithth

eir p

rofe

ssio

nal b

odie

s, w

here

app

ropr

iate

. The

y m

ust a

lso h

ave

appr

opria

te le

vel o

f pos

tgra

duat

e tr

aini

ng

The

wor

kfor

ce g

roup

s ar

e 1 :

Gro

up A

– s

taff

wor

king

in s

peci

alist

pal

liativ

e ca

re w

ho s

pend

mos

t of t

heir

wor

king

live

s de

alin

g w

ith e

nd o

f life

car

e.

This

grou

p sh

ould

hav

e sp

ecia

list t

rain

ing

in e

nd o

f life

car

ein

clud

ing

com

mun

icat

ion

skill

s, a

sses

smen

t, ad

vanc

e ca

repl

anni

ng a

nd s

ympt

om m

anag

emen

t

Gro

up B

: e.g

. sta

ff w

orki

ng in

dia

bete

s ca

re w

ho fr

eque

ntly

dea

lw

ith e

nd o

f life

car

e as

par

t of t

heir

role

. Thi

s gr

oup

shou

ld h

ave

spec

ialis

t tra

inin

g in

end

of l

ife c

are

incl

udin

g co

mm

unic

atio

nsk

ills,

ass

essm

ent,

adva

nce

care

pla

nnin

g an

d sy

mpt

omm

anag

emen

t. Sp

ecifi

cally

this

grou

p sh

ould

hav

e th

e sk

ills

to d

eal

with

the

‘trig

ger’

disc

ussio

ns a

t the

sta

rt o

f the

pat

hway

and

cont

inui

ng c

are

Gro

up C

: e.g

. sta

ff w

orki

ng in

dia

bete

s ca

re w

ho d

eal

infr

eque

ntly

with

end

of l

ife c

are.

This

grou

p sh

ould

hav

e a

basic

gro

undi

ng in

the

prin

cipl

es a

ndpr

actic

e of

end

of l

ife c

are

and

know

whe

n to

refe

r or s

eek

expe

rtad

vice

All

heal

thca

re p

rofe

ssio

nals

invo

lved

in d

eliv

erin

g di

abet

es e

nd o

flif

e ca

re a

re re

quire

d to

hav

e th

e re

leva

nt c

ompe

tenc

ies

17

Ther

e sh

ould

be

trai

ning

on

deat

h ce

rtifi

catio

n fo

r jun

ior d

octo

rsin

trai

ning

1 .

All

heal

th a

nd s

ocia

l car

e pr

ofes

siona

ls sh

ould

hav

e co

reco

mpe

tenc

ies

in s

pirit

ual,

cultu

ral a

nd re

ligio

us c

are

1

Page 16: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

16

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Wor

kfor

ce/ s

taff

Clin

ical

sta

ffco

mpe

tenc

ies

in u

se o

feq

uipm

ent

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

5, 1

1, 1

6, 1

7, 1

9, 2

6,33

,48

The

prov

ider

org

anisa

tion

has

syst

ems

in p

lace

to a

ssur

e th

eco

mm

issio

ner t

hat t

heir

clin

ical

team

are

com

pete

nt to

use

all

equi

pmen

t nee

ded

to d

eliv

er th

ese

rvic

e

Prov

ider

to s

atisf

y th

e co

mm

issio

ner t

hat a

llst

aff h

ave

had

docu

men

ted

com

pete

nce

asse

ssm

ent r

elat

ive

to a

ll eq

uipm

ent u

sed

inco

ntra

ct.

All

heal

thca

re p

rofe

ssio

nals

invo

lved

in d

eliv

erin

g di

abet

es a

nden

d of

life

car

e ar

e re

quire

d to

hav

e th

e re

leva

nt c

ompe

tenc

ies

inus

ing

appr

opria

te e

quip

men

t e.g

. blo

od g

luco

se a

nd k

eton

em

onito

rs, i

nsul

in d

eliv

ery

devi

ces

incl

udin

g in

sulin

pum

ps

Clin

ical

qua

lity

Wor

kfor

ce /

staf

f

Dev

elop

men

t

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

11,1

6,19

,48

The

prov

ider

org

anisa

tion

has

syst

ems

in p

lace

to a

ssur

e th

eco

mm

issio

ner t

hat t

heir

clin

ical

team

is fo

rmal

ly in

duct

ed a

ndre

ceiv

es o

ngoi

ng a

ssis

tanc

e to

deve

lop

thei

r ski

lls, k

now

ledg

e an

dex

perie

nce

to e

nsur

e th

at th

ey a

real

way

s fu

lly u

pdat

ed

Prov

ider

to s

atis

fy c

omm

issi

oner

of t

heir

com

mitm

ent t

o in

duct

ion

and

CPD

rele

vant

to ro

les

Prov

ider

to s

atisf

y th

e co

mm

issio

ner o

f the

irco

mm

itmen

t to

trai

n st

aff t

o m

eet f

utur

ese

rvic

e ne

eds

All

Hea

lth C

are

prof

essio

nals

shou

ld h

ave

suff

icie

nt s

tudy

leav

eal

loca

tion

(tim

e an

d fin

ance

) to

enab

le th

em to

dev

elop

ski

llsap

prop

riate

ly

Info

rmat

ion

to s

uppo

rt h

ealth

and

soc

ial c

are

prof

essio

nals

onen

d of

life

car

e ca

n be

foun

d at

ww

w.e

ndof

lifec

aref

orad

ults

.nhs

.uk

Clin

ical

qua

lity

Regi

stra

tion

and

licen

sing

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

t for

Com

mun

ity S

ervi

ces

Mod

ule

B:

Sect

ions

:3,

5

Mod

ule

C:

4,4A

,5,9

,10,

11,1

2,14

,15,

1617

,18,

19,2

1,26

,27,

29,3

3,34

,35,

36,3

8, 4

0,43

,48,

49,5

2, 5

3,54

,56,

60

Mod

ule

D:

Sche

dule

s:

6,10

,11,

12,1

5

Com

preh

ensiv

e un

ders

tand

ing

and

com

mitm

ent t

o im

plem

entin

gna

tiona

l sta

ndar

ds

Com

plia

nce

with

Car

e Q

ualit

y C

omm

issi

onre

quire

men

ts fo

r reg

istra

tion

for p

rimar

y an

dse

cond

ary

care

Com

plia

nce

with

the

follo

win

g N

atio

nal S

ervi

ce F

ram

ewor

ks a

ndSt

rate

gies

, whe

re a

pplic

able

:

• L

ong

Term

Con

ditio

ns N

SF 18

• R

enal

NSF

19

• N

atio

nal E

nd o

f Life

Car

e St

rate

gy 1

• E

nd o

f Life

Car

e in

Adv

ance

d K

idne

y D

iseas

e 20

Com

plia

nce

with

Car

e Q

ualit

y C

omm

issio

n Re

view

s

Page 17: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

17

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Patie

nt p

athw

ay

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

B:Se

ctio

ns:

1 Mod

ule

C:

4,4A

,9,1

0,12

,14,

15,

16,1

7,18

,19,

20,2

1,27

,29,

31,

33,3

4,35

,36,

38,4

0,52

,54

Mod

ule

D:

Sche

dule

s:

2,3,

4, 9

,11,

17

Mod

ule

E:5

Resp

onsi

vene

ss a

nd p

artic

ipat

ive

appr

oach

to in

clud

ing

patie

nts’

view

s ab

out t

heir

care

in th

ede

sign

of c

are

path

way

s

Col

labo

ratio

n w

ith o

ther

orga

nisa

tions

invo

lved

in th

epa

tient

pat

hway

to p

rovi

de a

seam

less

pat

hway

of c

are

All

poss

ible

ent

ry a

nd e

xit p

oint

s m

ust b

ede

fined

with

com

preh

ensiv

e pa

tient

path

way

s th

at fa

cilit

ate

smoo

th p

assa

ge a

ndef

fect

ive,

eff

icie

nt c

are

for p

atie

nts

All

inte

rfac

es in

the

path

way

mus

t be

defin

ed s

o th

at c

ontin

uity

of c

linic

al c

are

isen

sure

d w

ith n

o fr

actu

ring

of th

e pa

thw

ay

Ther

e m

ust b

e sp

ecifi

catio

n of

cle

ar ti

mel

ines

and

aler

t mec

hani

sms

for p

oten

tial b

reac

hes

Ther

e sh

ould

be

audi

t of p

athw

ay to

ens

ure

that

sta

ndar

ds a

re m

et

Ther

e m

ust b

e ex

plic

it sp

ecifi

catio

n of

prov

ider

and

com

miss

ione

r res

pons

ibili

ties

for t

he w

hole

pat

ient

epi

sode

from

regi

stra

tion

to c

are

afte

r dea

th

Acc

ount

abili

ties

shou

ld b

e ag

reed

and

docu

men

ted

by a

ll st

akeh

olde

rs

Ther

e ar

e a

num

ber o

f ser

vice

s su

ppor

ting

patie

nts

with

dia

bete

s w

ho re

quire

End

of

Life

car

e an

d th

ere

mus

t be

clea

r sub

cont

ract

s st

atin

g th

e re

ferr

al c

riter

ia a

ndac

cess

to th

ese

supp

ortin

g se

rvic

es.

The

path

way

sho

uld

follo

w th

e pr

inci

ples

iden

tifie

d by

the

Nat

iona

l End

of L

ife C

are

Stra

tegy

1

i. di

scus

sions

as

the

end

of li

fe a

ppro

ache

sii.

ass

essm

ent,

care

pla

nnin

g an

d re

view

iii. c

o-or

dina

tion

of in

divi

dual

pat

ient

car

eiv.

del

iver

y of

hig

h qu

ality

ser

vice

s in

diff

eren

t set

tings

v. c

are

in th

e la

st d

ays

of li

fevi

. car

e af

ter d

eath

End

of L

ife C

are

disc

ussio

ns:

This

incl

udes

:

• e

arly

iden

tific

atio

n of

a p

atie

nt w

ho m

ay b

e ap

proa

chin

g th

een

d of

life

• re

cogn

ition

of t

rigge

rs fo

r end

of l

ife c

are

disc

ussio

n (G

old

Stan

dard

s Pr

ogno

stic

Indi

cato

r)24

Ass

essm

ent,

care

pla

nnin

g an

d re

view

:Th

is in

clud

es:

• fa

st tr

ack

asse

ssm

ent f

or p

refe

rred

pla

ce o

f car

e if

the

patie

nt’s

cond

ition

is d

eter

iora

ting

rapi

dly

• F

ull a

sses

smen

t of n

eeds

of t

he p

atie

nt a

nd th

eir c

arer

, e.g

.sin

gle

asse

ssm

ent p

roce

ss o

r com

mon

ass

essm

ent f

ram

ewor

k•

Agr

eem

ent o

f a c

are

plan

that

iden

tifie

s th

e pr

efer

red

prio

ritie

sfo

r car

e (ty

pe a

nd lo

catio

n of

end

of l

ife c

are)

• C

o-or

dina

ting

the

End

of L

ife C

are

plan

to th

e di

abet

es c

are

plan

, as

appr

opria

te

• T

here

sho

uld

be ‘d

o no

t att

empt

resu

scita

tion’

pol

icie

s th

at a

re

Clin

ical

qua

lity

Out

com

es

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

B:Se

ctio

n:1

(par

t 3),3

Mod

ule

C:

4A,1

4,

Mod

ule

D:

Sche

dule

11

Com

preh

ensiv

e un

ders

tand

ing

and

com

mitm

ent t

o de

liver

ing

and

impr

ovin

g ou

tcom

es o

f car

e

Com

plia

nce

with

the

NH

S O

utco

mes

Fram

ewor

k21C

ompl

ianc

e w

ith th

e Q

ualit

y St

anda

rds

for D

iabe

tes

22

Com

plia

nce

with

the

Qua

lity

Stan

dard

s fo

r End

of L

ife C

are

23

Page 18: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

18

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Patie

nt p

athw

ayA

t ent

ry to

pat

hway

:

The

Com

miss

ione

r sho

uld

assu

re th

emse

lves

that

the

prov

ider

has

sys

tem

s an

d pr

oces

ses

in p

lace

to

i) re

gist

er p

atie

nts

ii) c

olle

ct re

leva

nt c

linic

al a

ndad

min

istra

tive

data

iii) m

anag

e th

e ap

poin

tmen

t pro

cess

,(re

appo

intm

ent a

nd D

NA

pro

cess

, if

appr

opria

te)

iv) p

rovi

de in

form

atio

n to

pat

ient

sv)

und

erta

ke in

itial

ass

essm

ent i

n th

eap

prop

riate

loca

tion

At p

oint

of i

nter

vent

ion:

The

Com

miss

ione

r sho

uld

assu

re th

emse

lves

that

the

prov

ider

has

sys

tem

s an

d pr

oces

ses

in p

lace

to e

nsur

e th

at:

i) th

e in

terv

entio

n is

cond

ucte

d sa

fely

and

in a

ccor

danc

e w

ith a

ccep

ted

qual

ityst

anda

rds

and

good

clin

ical

pra

ctic

e.ii)

the

patie

nt re

ceiv

es a

ppro

pria

te c

are

durin

g th

e in

terv

entio

n(s)

, inc

ludi

ng o

ntr

eatm

ent r

evie

w a

nd s

uppo

rt, i

nac

cord

ance

with

bes

t clin

ical

pra

ctic

eiii

) whe

re c

linic

al e

mer

genc

ies

orco

mpl

icat

ions

do

occu

r the

y ar

em

anag

ed in

acc

orda

nce

with

bes

tcl

inic

al p

ract

ice

iv) t

he in

terv

entio

n is

carr

ied

out i

n a

faci

lity

whi

ch p

rovi

des

a sa

feen

viro

nmen

t of c

are

and

min

imis

es ri

skto

pat

ient

s, s

taff

and

visi

tors

v) th

e in

terv

entio

n is

unde

rtak

en b

y st

aff

with

the

nece

ssar

y qu

alifi

catio

ns, s

kills

,ex

perie

nce

and

com

pete

nce

vi) T

here

are

arr

ange

men

ts fo

r the

man

agem

ent o

f out

of h

ours

car

eac

cord

ing

to b

est c

linic

al p

ract

ice

cons

isten

t with

oth

er lo

cal p

rovi

ders

in th

e lo

calit

y

Co-

ordi

natio

n an

d de

liver

y of

pat

ient

car

e:Th

is in

clud

es:

• Id

entif

icat

ion

of a

co-

ordi

nato

r for

the

end

of li

fe c

are

• C

omm

unic

atio

n w

ith th

e di

abet

es c

are

team

• In

form

atio

n on

o 24

hou

r tel

epho

ne h

elpl

ines

o ra

pid

resp

onse

com

mun

ity n

ursin

g ca

reo

Spec

ialis

t pal

liativ

e ca

re•

Con

tinui

ng c

are

of th

e pa

tient

by

the

diab

etes

team

, as

appr

opria

te

Car

e in

the

last

day

s of

life

:Th

is in

clud

es:

• R

ecog

nitio

n th

at th

e pa

tient

’s c

ondi

tion

is de

terio

ratin

g•

The

re s

houl

d be

pro

toco

ls in

pla

ce to

reco

gnise

pat

ient

s w

hoar

e ap

proa

chin

g th

e en

d of

life

, or w

ho a

re a

t sub

stan

tial r

iskof

dyi

ng o

n ad

miss

ion

to h

ospi

tal

• R

evie

w o

f ne

eds

and

pref

eren

ces

for p

lace

of d

eath

• T

here

sho

uld

be h

ando

ver a

nd c

omm

unic

atio

n pr

otoc

ols

inpl

ace

to e

nsur

e th

at o

ut o

f hou

rs p

rovi

ders

who

rece

ive

calls

from

pat

ient

s ap

proa

chin

g th

e en

d of

life

imm

edia

tely

iden

tify

and

tran

sfer

thes

e ca

lls to

an

appr

opria

te c

linic

ian

who

is a

war

eof

the

back

grou

nd to

the

call,

the

patie

nt’s

wish

es a

nd if

poss

ible

Adv

ance

Car

e Pl

anni

ng. T

here

may

be

a de

dica

ted

tele

phon

e lin

e•

The

re s

houl

d al

so b

e tim

ely

acce

ss to

equ

ipm

ent,

e.g.

syr

inge

driv

er, m

edic

atio

n et

c du

ring

wor

king

and

out

of h

ours

• T

rans

fer t

o th

e pl

ace

of d

eath

, if r

equi

red,

as

agre

ed w

ith th

epa

tient

/car

er•

App

ropr

iate

end

of l

ife c

are

as p

er th

e pa

tient

’s w

ishes

Car

e af

ter d

eath

:Th

is in

clud

es:

• T

here

sho

uld

be p

olic

ies

in p

lace

to e

nsur

e th

e tim

ely

verif

icat

ion

of d

eath

. Thi

s m

ay in

clud

e ve

rific

atio

n by

nur

ses

• C

ertif

icat

ion

of d

eath

(ref

eren

ce s

houl

d be

mad

e to

dia

bete

s as

a ca

use

of d

eath

)•

Em

otio

nal a

nd p

ract

ical

ber

eave

men

t sup

port

to c

arer

and

fam

ily

Page 19: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

19

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Patie

nt p

athw

ayA

t exi

t fro

m p

athw

ay:

The

Com

miss

ione

r sho

uld

assu

re th

emse

lves

that

pro

vide

r has

sys

tem

s an

d pr

oces

ses,

whi

ch a

re a

gree

d w

ith a

ll pa

rtie

s an

dne

twor

ks, i

n pl

ace

to:

i) pr

ovid

e tim

ely

feed

back

to th

e re

ferr

erre

: End

of L

ife c

are

and

care

aft

er d

eath

• T

here

sho

uld

be p

olic

ies

in p

lace

to e

nsur

e th

e se

nsiti

veha

ndlin

g of

the

dece

ased

and

rela

tives

acc

ordi

ng to

thei

rcu

ltura

l and

spi

ritua

l wish

es•

The

re s

houl

d be

pro

toco

ls in

pla

ce to

ens

ure

the

corr

ect

iden

tific

atio

n of

the

dece

ased

and

that

per

sona

l pos

sess

ions

are

hand

led

in a

saf

e an

d se

nsiti

ve w

ay

Patie

nts

and

thei

r fam

ilies

/car

ers

may

nee

d to

acc

ess

a co

mpl

exco

mbi

natio

n of

diff

eren

t ser

vice

s as

par

t of t

heir

palli

ativ

e ca

re a

sfo

llow

s 1 :

• P

rimar

y ca

re•

Dist

rict n

ursin

g ca

re•

Per

sona

l soc

ial c

are

• P

sych

olog

ical

sup

port

Acu

te m

edic

al c

are

• S

peci

alist

pal

liativ

e ca

re•

Out

of h

ours

car

e•

Am

bula

nce/

tran

spor

t•

Info

rmat

ion

serv

ices

• R

espi

te c

are

• S

peec

h an

d la

ngua

ge th

erap

y•

Equ

ipm

ent

• O

ccup

atio

nal t

hera

py•

Phy

sioth

erap

y•

Day

car

e•

Pha

rmac

y•

Fin

anci

al a

dvic

e•

Die

tetic

adv

ice

• C

arer

sup

port

• S

pirit

ual c

are

• C

omm

unity

and

vol

unta

ry s

ecto

r sup

port

• In

terp

rete

r ser

vice

s•

Wel

fare

sup

port

• E

mpl

oym

ent s

uppo

rt•

Ber

eave

men

t cou

nsel

ling

Patie

nts

and

thei

r fam

ilies

/car

ers

shou

ld h

ave

info

rmat

ion

on th

era

nge

of s

ervi

ces

avai

labl

e fo

r End

of L

ife c

are,

e.g

. a d

irect

ory

oflo

cal s

ervi

ces

Prov

ider

s ar

e re

quire

d to

take

not

e of

the

resu

lts o

f the

Nat

iona

lSu

rvey

of P

eopl

e w

ith D

iabe

tes

25

Page 20: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

20

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Clin

ical

qua

lity

Esta

tes

and

equi

pmen

t

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

5, 3

3,56

Mod

ule

D:

Sche

dule

s:2,

3,4

,6,1

1,17

Und

erst

andi

ng o

f bui

ldin

gre

gula

tions

Acc

ess

to a

dvic

e on

“fit

-for

-pu

rpos

e” e

quip

men

t and

faci

litie

s

Com

miss

ione

rs m

ust a

ssur

e th

emse

lves

that

patie

nt c

are

is de

liver

ed in

app

ropr

iate

ly b

uilt

and

equi

pped

faci

litie

s w

hich

mee

t rel

evan

tH

TMs

and

Build

ing

Not

es, a

nd, w

here

appr

opria

te, a

re re

gist

ered

and

are

saf

e an

dcl

ean.

Equi

pmen

t mus

t be

fit fo

r pur

pose

Com

mitm

ent t

o ef

ficie

nt u

se a

nd s

atisf

acto

rym

aint

enan

ce o

f equ

ipm

ent

Any

bui

ldin

gs in

whi

ch c

are

is pr

ovid

ed a

nd m

ortu

ary

faci

litie

ssh

ould

be

of a

hig

h st

anda

rd a

nd s

houl

d m

eet t

he n

eeds

of

rela

tives

and

car

ers,

incl

udin

g th

ose

who

wish

to v

iew

the

body

afte

r dea

th 1

Clin

ical

qua

lity

Kno

wle

dge

and

unde

rsta

ndin

g of

hea

lthan

d sa

fety

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

4A,5

,11,

17,1

9, 5

4, 5

6,60

Und

erst

andi

ng o

f clin

ical

acco

unta

bilit

ies

of h

ealth

and

safe

ty p

olic

ies

H&

S st

rate

gy a

nd p

olic

ies

in p

lace

and

impl

emen

ted

with

aw

aren

ess

thro

ugho

ut th

eor

gani

satio

n

Acc

essi

bilit

y to

exe

cutiv

e re

spon

sibl

e fo

r H&

Sfo

r qui

cker

, firs

t con

tact

ser

vice

s

Hea

lth a

nd s

afet

y po

licie

s as

per

pro

vide

r agr

eem

ent w

ithco

mm

issio

ners

Clin

ical

qua

lity

Clin

ical

em

erge

ncy

situa

tions

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

C:

6,11

,12,

14,1

5,18

,20

,32,

32,

42,

54

Mod

ule

D:

Sche

dule

s:

2, 3

, 4, 6

, 9,1

1

Abi

lity

to n

egot

iate

and

agr

eear

rang

emen

ts w

ith a

ppro

pria

tepe

rson

nel a

nd o

rgan

isatio

ns to

prov

ide

effe

ctiv

ely

for e

mer

genc

ysit

uatio

ns

The

Com

mis

sion

ers

shou

ld s

atis

fy th

emse

lves

that

pro

vide

r has

sys

tem

s, p

roce

sses

and

com

pete

nt p

erso

nnel

are

in p

lace

and

impl

emen

ted

to e

nsur

e th

at a

ll cl

inic

alem

erge

ncie

s an

d co

mpl

icat

ions

are

han

dled

in a

ccor

danc

e w

ith b

est p

ract

ice

Ther

e sh

ould

be

prot

ocol

s in

pla

ce to

reco

gnise

pat

ient

s w

ho a

reap

proa

chin

g th

e en

d of

life

, or w

ho a

re a

t sub

stan

tial r

isk o

fdy

ing

on a

dmiss

ion

to h

ospi

tal 1

Ther

e sh

ould

be

prot

ocol

s in

pla

ce to

ens

ure

that

out

of h

ours

prov

ider

s w

ho re

ceiv

e ca

lls fr

om p

atie

nts

appr

oach

ing

the

end

oflif

e tr

ansf

er im

med

iate

ly id

entif

y an

d tr

ansf

er th

ese

calls

to a

nap

prop

riate

clin

icia

n/or

ther

e m

ay b

e a

dedi

cate

d te

leph

one

line

(see

abo

ve) 1

Page 21: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

21

TOPI

CEL

EMEN

TSC

HA

RA

CTE

RIS

TIC

S, S

KIL

LSA

ND

BEH

AV

IOU

RS

OU

TPU

TSD

IAB

ETES

SER

VIC

ES S

PEC

IFIC

OU

TPU

TS/C

OM

MEN

TS

Dat

a an

din

form

atio

nm

anag

emen

t

Stra

tegy

and

pol

icie

s

Cro

ss re

fere

nces

to th

eSt

anda

rd N

HS

Con

trac

tfo

r Com

mun

ity S

ervi

ces

Mod

ule

B:Se

ctio

ns:

5 Mod

ule

C:

9,17

,18,

19,

21,2

3,24

,27,

29, 3

2,33

,54,

56,

60

Stra

tegy

and

pol

icy

deve

lopm

ent

skill

s

The

abili

ty to

ana

lyse

dat

a an

dha

ve a

cces

s to

info

rmat

ion

that

can

pred

ict t

rend

s an

d th

at c

ould

iden

tify

prob

lem

s

The

abili

ty to

cap

ture

evi

denc

eba

sed

prac

tice

from

R&

D N

atio

nal

Serv

ice

Fram

ewor

ks, N

ICE

guid

ance

The

abili

ty to

use

dat

a an

din

form

atio

n ap

prop

riate

ly to

impr

ove

patie

nt c

are

Tran

spar

ency

and

obj

ectiv

ity

The

Prov

ider

sho

uld

have

an

expl

icit

data

and

info

rmat

ion

stra

tegy

in p

lace

that

cov

ers

• T

ypes

of d

ata

• Q

ualit

y of

dat

a•

Dat

a pr

otec

tion

and

conf

iden

tialit

y•

Acc

essi

bilit

y•

Tra

nspa

renc

y•

Ana

lysis

of d

ata

and

info

rmat

ion

• U

se o

f dat

a an

d in

form

atio

n•

Diss

emin

atio

n of

dat

a an

d in

form

atio

n•

Ris

ks•

Sha

ring

of d

ata

and

com

patib

ility

of I

Tac

ross

diff

eren

t pro

vide

rs w

ith re

spec

t to

care

of p

atie

nts

acro

ss a

pat

hway

This

info

rmat

ion

shou

ld b

e in

clud

ed in

the

Dat

a Q

ualit

y Im

prov

emen

t Pla

n

Ther

e sh

ould

be

polic

ies

in p

lace

that

incl

ude:

• C

onfid

entia

lity

Cod

e of

Pra

ctic

e•

Dat

a Pr

otec

tion

• F

reed

om o

f Inf

orm

atio

n•

Hea

lth R

ecor

ds•

Info

rmat

ion

Gov

erna

nce

Man

agem

ent

• In

form

atio

n Q

ualit

y A

ssur

ance

• In

form

atio

n Se

curit

y

Ther

e m

ust b

e a

nam

ed in

divi

dual

who

is th

eC

aldi

cott

Gua

rdia

n

The

Prov

ider

is re

quire

d to

hav

e in

form

atio

n sy

stem

s th

at re

cord

indi

vidu

al n

eeds

incl

udin

g em

otio

nal,

soci

al, e

duca

tiona

l,ec

onom

ic a

nd b

iom

edic

al in

form

atio

n w

hich

per

mit

mul

tidisc

iplin

ary

care

acr

oss

serv

ice

boun

darie

s an

d su

ppor

t car

epl

anni

ng fo

r bot

h di

abet

es a

nd E

nd o

f Life

car

e1, 2

6

The

prov

ider

mus

t ens

ure

that

robu

st s

yste

ms

are

in p

lace

for

chap

lain

s w

ho re

ques

t acc

ess

to p

atie

nt in

form

atio

n to

hav

eob

tain

ed p

rior p

atie

nt c

onse

nt1

The

Prov

ider

is re

quire

d to

con

trib

ute

to/s

uppo

rt lo

calit

y w

ide

regi

ster

s on

peo

ple

with

dia

bete

s w

ho a

re in

rece

ipt o

f End

of L

ifeca

re

The

Prov

ider

mus

t obt

ain

the

patie

nt’s

con

sent

prio

r to

plac

ing

anin

divi

dual

on

an E

nd o

f Life

Car

e re

gist

er

The

Prov

ider

is re

quire

d to

use

the

follo

win

g fo

r the

col

lect

ion

and

prod

uctio

n of

dat

a, w

here

app

ropr

iate

:

• N

HS

Out

com

es F

ram

ewor

k 21

• N

atio

nal D

iabe

tes

Info

rmat

ion

Serv

ice

27

• D

iabe

tes

E 16

• Q

ualit

y an

d O

utco

mes

Fra

mew

ork28

• M

yoca

rdia

l Isc

haem

ia A

udit

Proj

ect29

• H

ospi

tal E

piso

de S

tatis

tics30

• P

atie

nt E

xper

ienc

e 31

• P

atie

nt S

atisf

actio

n 24

Page 22: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

22

Source documentsCommissioners and providers should takeresponsibility for making references to the latestversion of the various documents and guidance.

1. National End of Life Care Strategy - promoting

high quality care for all adults at the end of life,

July 2008, http://www.dh.gov.uk/en/Publications

andstatistics/Publications/PublicationsPolicyAndGui

dance/DH_086277

2. Information for commissioning end of life care,

National End of Life Care Programme, 2008,

http://www.endoflifecare.nhs.uk/eolc/files/NHS-

EoLC_Info_for_Commissioning_EoLC_Dec2008.pdf

3. Emotional and Psychological Support and Care in

Diabetes, Joint Diabetes UK and NHS Diabetes

Emotional and Psychological Support Working

Group, to be published early 2010

4. The NHS Diabetes Commissioning Guides are

available on the NHS Diabetes website at

http://www.diabetes.nhs.uk/commissioning_resource/

5. Standard NHS Contracts

http://www.dh.gov.uk/en/Publicationsandstatistics/

Publications/PublicationsPolicyAndGuidance/DH_1

24324

6. National Quality Board, Quality Governance in the

NHS, 2011 http://www.dh.gov.uk/prod_consum_dh/

groups/dh_digitalassets/documents/digitalasset/dh_1

25239.pdf

7. NICE Diabetes guidance,

http://guidance.nice.org.uk/Topic/EndocrineNutritiona

lMetabolic/Diabetes

8. NICE, Improving supportive and palliative care for

adults with cancer,

http://guidance.nice.org.uk/CSGSP, 2004

9. NICE, Medicines adherence: involving patients in

decisions about prescribed medicines and supporting

adherence, Jan 2009,

http://guidance.nice.org.uk/CG76

10. Department of Health and Marie Curie Palliative

Care Institute, Guidelines for LCP Drug Prescribing

in Advanced Chronic Kidney Disease, 2008,

http://www.dh.gov.uk/prod_consum_dh/groups/dh_

digitalassets/documents/digitalasset/dh_085997.pdf

11. NHS Institute for Innovation and Improvement,

model CQUIN scheme: inpatient care for people

with diabetes, 2009

12. Department of Health, The Operating Framework

for the NHS in England 2011/12, 2010,

http://www.dh.gov.uk/en/Publicationsandstatistics/P

ublications/PublicationsPolicyAndGuidance/DH_122

738

13. End of Life Care Strategy, quality markers and

measures for end of life care, 2009,

http://www.dh.gov.uk/prod_consum_dh/groups/dh_

digitalassets/documents/digitalasset/dh_101684.pdf

14. The Marie Curie Palliative Care Institute Liverpool,

Royal College of Physicians and Clinical

Effectiveness and Evaluations Unit, National Care of

the Dying Audit, 2006/07,

http://www.rcplondon.ac.uk/clinical-

standards/ceeu/Documents/NCDAH-Generic-

Report.pdf

15. Views of Informal Carers – Evaluation of Services

(VOICES)

16. DiabetesE - https://www.diabetese.net/

17. National End of Life Care Programme, Skills for

Health, Skills for Care, Department of Health, Core

competences for end of life care. Training for health

and social care staff, 2009,

http://www.endoflifecare.nhs.uk/eolc/files/NHS-

EoLC_Core_competences-Guide-Jul2009.pdf

18. Department of Health, The National Service

Framework for Long Term Conditions, March 2005

http://www.dh.gov.uk/en/Publicationsandstatistics/P

ublications/PublicationsPolicyAndGuidance/DH_410

5361

19. Department of Health, The National Service

Framework for Renal Services, January 2004

http://www.dh.gov.uk/en/Healthcare/Renal/DH_410

2636

20. End of Life Care for Advanced Kidney Disease, A

framework for implementation, 2009,

http://www.endoflifecare.nhs.uk/eolc/files/NHS-

EoLC_Advanced_Kidney_Disease_Framework-

Jun2009.pdf

Page 23: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

23

21. Department of Health, The NHS Outcomes

Framework 2011/12, December 2010

http://www.dh.gov.uk/en/Publicationsandstatistics

/Publications/PublicationsPolicyAndGuidance/DH_

122944

22. NICE, Quality Standards: Diabetes in adults, March

2011, http://www.nice.org.uk/guidance/

qualitystandards/qualitystandards.jsp

23. NICE, End of life care Quality Standard (in

development) due Nov 2011

http://www.nice.org.uk/guidance/qualitystandards/i

ndevelopment/endoflifecare.jsp

24. Gold Standards Framework,

http://www.goldstandardsframework.nhs.uk/

25. Healthcare Commission, National Survey of People

with Diabetes, 2006,

www.cqc.org.uk/usingcareservices/healthcare/patien

tsurveys/servicesforpeoplewithdiabetes.cfm

26. York and Humber integrated IT system

http://www.diabetes.nhs.uk/

27. National Diabetes Information Service,

www.diabetes-ndis.org

28. Quality and Outcomes Framework,

http://www.nice.org.uk/aboutnice/qof/qof.jsp

29. Myocardial Ischaemia Audit Project (MINAP)

www.rcplondon.ac.uk/CLINICAL-

STANDARDS/ORGANISATION/PARTNERSHIP/Pages/

MINAP-.aspx

30. Hospital Episode Statistics, www.ic.nhs.uk/statistics-

and-data-collections/hospital-care/hospital-activity-

hospital-episode-statistics--hes

31. The King’s Fund, The point of care. Measures of

patients’ experience in hospital: purpose, methods

and uses. July 2009

Page 24: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

24

This specification forms Schedule 2, Part 1, orsection 1 (module B) ‘The Services - ServiceSpecifications’ of the Standard NHS Contractsa

Service specifications are developed in partnershipbetween commissioners and provider agencies andare based on agreed evidence-based care andtreatment models. Specifications should be opento scrutiny and available to all service users/carersas a statement of standards that the user/carer canexpect to receive.

The following documentation, developed bythe Diabetes Commissioning Advisory Group,provides further detail/guidance to supportthe development of this specification:

• The diabetes End of Life Care intervention map

• The contracting framework for diabetes End ofLife Care services

This specification template assumes that theservices are compliant with the contractingframework for diabetes End of Life Care services.

This template also provides examples of whatcommissioners may wish to consider whendeveloping their own service specifications.

Description of diabetes End of LifeCare services: End of Life care is the support provided for anindividual when they have advanced, incurableillness, e.g. cancer, until they die. This care ismarked at the beginning of this phase in life by acomprehensive assessment of supportive andpalliative care needs of the individual concernedand their family. The support includes themanagement of pain and other symptoms,provision of psychological, social, spiritual andpractical help as well as support to the carersduring the illness and into their bereavement.

Individuals with diabetes may require end of lifecare for the complications of the condition, e.g.renal failure, heart disease, strokes etc.

The final specification should take intoaccount:

• national, network and local guidance andstandards for diabetes End of Life Careservices.

• local needs.

This specification is supported by other relatedwork in diabetes commissioning such as:

• the web-based Diabetes Community HealthProfiles (Yorkshire and Humber Public HealthObservatory)

• the web-based Health Needs Assessment Tool(National Diabetes Information Service).

These provide comprehensive information forneeds assessment, planning and monitoring ofdiabetes services.

Introduction• A general overview of the services identifying

why the services are needed, includingbackground to the services and why they arebeing developed or in place.

• A statement on how the services relate to eachother within the whole system should beincluded describing the keystakeholders/relationships which influence theservices, e.g. multi-disciplinary team etc. This should describe the diabetic services and theirinteractions, as well as the specialist palliativecare services and then the relationship betweenthe services

• Any relevant diabetes and supportive andpalliative care clinical networks and screeningprogrammes applicable to the services

Standard Service SpecificationTemplate for Diabetes End of LifeCare Services

a Standard NHS Contracts http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_124324

Page 25: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

25

• Details of all interdependencies or sub-contractors for any part of the service and anoutline of the purpose of the contract should bestated, including arrangements for clinicalaccountability and responsibility, as appropriate

Purpose, Role and Clientele1. A clear statement on the primary purpose of the

services and details of what will be provided andfor whom:

• Who the services are for (e.g. individuals withdiabetes who require end of life care, i.e. arecognition by the patient and/or professionalteam that palliative care is required).

• What the services aim to achieve

• The objectives of the services

• The desired outcomes and how these aremonitored and measured

Scope of the Services2. What do the services do? This section will focus

on the types of high level therapeuticinterventions that are required for the types ofneed the services will respond to.

• How the services responds to age, culture,disability, and gender sensitive issues

• Assessment – details of what it is and co-morbidity assessment and referrals to allrelevant services/care

• Service planning – High level view of what theservices are and how they are used; howpatients enter the pathway/journey; what arethe stages undertaken and follow up care. Theaims of service planning are to:

o Develop, manage and reviewinterventions along the patient journey

o Ensure access to other services/care, asappropriate

o Ensure that care planning is undertakenby the diabetes multi-disciplinary team(as defined locally) with a clear care co-ordination function between hospitaland community diabetes, primary careand specialist palliative care services

• Holistic review of individuals who havediabetes using the principles of an integratedcare model for people with long term

conditions that is patient-centred, includingself care and self management, clinicaltreatment, facilitating independence,psychological support and other social careissues

• Risk assessment procedures

• Detail of evidence base of the services – i.e.the contracting framework for diabetes end oflife care, guidance produced by the RoyalCollege of Physicians, Diabetes UK, etc

• The scope of the services should reflect thekey actions and co-ordination of care mappedout on the intervention map

Service Delivery3. Patient Journey/pathway

Flow diagram of the patient pathway showingaccess and exit/transfer points – see the diabetesend of life care intervention map as a startingpoint

4. Treatment protocols/interventionsInclude all individual treatment protocols inplace within the services or planned to be used

5. This will include a breakdown of how thepatient will receive the services and from whom.It should be a clear statement of staffqualifications/experience and/or training (ifappropriate) and clinical or managerialsupervision arrangements. It should specify, asappropriate:

• Geographic coverage/boundaries – i.e. theservices should be available for all individualsof all ages groups who live in the clinicalcommissioning group area

• Hours of operation including, week-end, bankholiday and on-call arrangements

• Minimum level of experience andqualifications of staff (i.e. doctors –diabetologists and GPs, Nursing staff –diabetes nurse specialists, district, practicenurses etc, other allied health professionals,e.g. podiatrists, dietitians, optometrists,pharmacists etc and other support andadministrative staff). Each palliative careservice should comply with the Standardscontained in the NICE Guidance on SupportiveAnd Palliative Care (2004).

Page 26: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

26

• Confirmation of the arrangements to identifythe Care Co-ordinator for each patient withdiabetes at the end of life (i.e. who holds theresponsibility and role). Alternatively, a keyworker should be identified in each team toensure close liaison and working relationshipsbetween them.

• Staff induction and developmental training.There should be a minimum level of trainingfor diabetic staff according to those specifiedcore competencies in the National End of LifeStrategy and agreed core competencies forthe Specialist Palliative Care Team in Diabetesmanagement

6. Equipment.

• Upgrade and maintenance of relevantequipment and facilities

• Technical specifications, e.g. specification forinsulin or subcutaneous end of life care pumpsaccording to agreed or national criteria

Identification, Referral andAcceptance criteria7. This should make clear how patients will be

identified, assessed (if appropriate) andaccepted to the services.

• Acceptance should be based on types of needand/or patient.

• This should include a fast tracking facility forpatients who require continuing healthcarewhose condition is deteriorating rapidly andwho may be entering a terminal phase.

8. How should patients be referred?

• Who is acceptable for referral and from where

• Details of evaluation process - Are there clearexclusion criteria or set alternatives to theservice? How might a patient be transferred?

• Response time detail and how are patientsprioritised

Discharge/Service Complete9. The intention of this section is to make clear

when a patient and their carer/family no longerrequire the diabetes and end of life careservices.

• State how the service determines that apatient and their carer/family may improve soas to no longer require end of life care

• What procedures are followed up after thedeath of an individual who has used thediabetes and end of life service?

• State the services offered in bereavement care

Quality Standards10. The service is required to deliver care according

to the standards for clinical practice set by theNational Institute for Health and ClinicalExcellenceb

11. As a minimum, the Provider is required toagree a local Commissioning for Quality andInnovation scheme for services for people withdiabetes. (Insert details of the CQUIN Schemeagreed)

12. The service is required to deliver the outcomesfor diabetes as determined by the NHSOutcomes Frameworkc

Activity and PerformanceManagement13.This must include performance indicators,

thresholds, methods of measurement andconsequences of breach of contract. These willbe set and agreed prior to the signing of theoverall agreement.

14. Activity plans – Where appropriate, identify theanticipated level of activity the service maydeliver; provide details of any activity measuresand their description /method of collection,targets, thresholds and consequences ofvariances above or below target.

b http://www.nice.org.uk/guidance/qualitystandards/qualitystandards.jsp

c http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_122944

Page 27: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

27

Continual Service Improvement15. As part of the monitoring and evaluation

procedures, the service will identify a methodof agreeing measurements for continuousimprovement of the service being offered andwork to ensure unmet need is both identifiedand brought to the attention of thecommissioner.

16. ReviewThis section should set out a review date and amechanism for review.

The review should include both thespecifications for continuing fitness forpurpose and the providers’ delivery against thespecification.

This should set out the process by which thisreview will be conducted.

This should also identify how complianceagainst the specification will be monitored inyear.

17. Agreed byThis should set out who agrees/accepts thespecification on behalf of all parties.

This should include the diabetes providers,commissioner and network

Page 28: Commissioning Guide Diabetes End of Life Care Services · This commissioning guide has been developed by NHS Diabetes with key stakeholders including clinical and social services

Further copies of this publication can be ordered from Prontaprint, by emailing [email protected] or tel: 0116 275 3333, quoting DIABETES 119

www.diabetes.nhs.uk