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Co designing Health and Care Services Dr. Lynne Maher Director for Innovation Honorary Associate Professor of Nursing The University of Auckland Adjunct Associate Professor School of Medicine, University of Tasmania

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Page 1: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Co designing Health and Care

Services

Dr. Lynne Maher

Director for Innovation

Honorary Associate Professor of Nursing

The University of Auckland

Adjunct Associate Professor School of Medicine, University

of Tasmania

Page 2: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Session Plan

• Add to your personal understanding of how to effectively engage and work with consumers and families to co-design health and care services.

• Add to your knowledge of a range of tools based on design methodology to deeply understand the actual lived experience of patients and families

• Show how you can systematically use a co-design process with consumers and families to achieve improvement and innovation

Page 3: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Co-Design

Co- design is an important part of a process to engagepeople; consumers, family and staff , capture their

experiences and ideas, organise the learning that it brings to create new understanding and insight from the perspective of the care journey and emotional journey,

come together in partnership to review learning and ideas, plan and implement improvements then finally; review what difference that has made.

Page 4: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Terminology

User

Patient

Consumer

Client

Family member

Carer

Partner

Page 5: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

What does it all mean?

Patient experience,

Patient centered care

Human centered design

Co-design

Co-production

Page 6: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Definitions

• Patient Experience-“The patient's thoughts and feelings of

the journey they have. These are shaped by the

interactions they have (clinical, personal and emotional)

throughout an episode or journey of care

• Patient centred care- "providing care that is respectful of

and responsive to individual patient preferences, needs,

and values and ensuring that patient values guide all

clinical decisions." The Institute of Medicine (IOM) 2001,

• Human-centered design-a creative approach to problem

solving. It's a process that starts with the people you're

designing for, includes those people and ends with new

solutions that are tailor made to suit their needs.

Page 7: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Definitions ( continued)

• Co-design- (originally co-operative design) is an

approach to design attempting to actively involve all

stakeholders (e.g. employees, partners, customers,

citizens, end users) in the design process to help

ensure the result meets their needs and is usable.

Often also called Participatory design

• Co-production-delivering public services in an equal

and reciprocal relationship between professionals,

people using services, their families and their

neighbours" (New Economics Foundation)

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8

“We need to move from

a service that does

things to and for its

patients to one where

the service works with

patients and whaanau to

supports them with their

health needs.”

What is different ?

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We think patients want this.....

Page 10: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

What Matters to Patients (Kings Fund & Kings Collage England 2011)

• Being treated as a person, not a number

• Feeling informed and being given options

• Staff who listen and spend time with me/patients

• Being involved in care and being able to ask questions

• The value of support services, for example patient and

carer support groups

• Efficient processes

(Robert, Cornwall, Brearley et al 2011)

Page 11: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

But it is really how WE all would like to be treated isn’t it?

Page 12: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Positive experience is associated with higher quality care

Hospitals with high levels of ‘patient care experience’ reported by patients provide clinical care that is higher in quality across a range of conditions

Jha A et al (2008) N Engl J Med 2008; 359:1921-1931.

Improved adherence to medications and treatments

Reduced health resource usage such as readmissions, primary care visits

Improvement in technical quality of care

Reduction in adverse events

Doyle C et al BMJ Open Jan 20, 2013

…better use of preventive services, such as screening services in diabetes, colorectal, breast and cervical cancer;

cholesterol testing and immunisation.

(Kaplan SH, Greenfield S, Ware JE. Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Med Care 1989;27(3 Suppl):S110–27).

There is a substantial amount of recent evidence that the experiences of staff are associated with the care provided to patients in the form of satisfaction, health outcomes andratings of quality of care.”

Dawson, J. (2014) Staff experience and patient outcomes: what do we know? NHS Confederation. London

Page 13: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

How might you use these methods in your practice?

• As a regular way to understand patient experiences

• In an area where you have challenges- perhaps where you know you have a number of complaints

• As part of an improvement project

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The answer is no.

Page 15: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

How do we typically design services

with patients?

• Don’t listen very much to our users and we do the

designing

• Listen to our users then go off and do the

designing

• Listen to our users and then go off with them to do

the designing (co-design)

(Professor Paul Bate 2007)

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Don’t listen much and we do the

designing……..

Design Thinking for Social Innovation

Excerpt from an article by Tim Brown & Jocelyn Wyatt

Page 17: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

How do we typically design services

with patients?

• Don’t listen very much to our users and we do the

designing

• Listen to our users then go off and do the

designing

• Listen to our users and then go off with

them to do the designing (co-design)

(Professor Paul Bate 2007)

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Start with how it feels……

Adapted from Berkun 2004 by Paul Bate 2007

Page 19: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

“In the long

history of

humankind,

those who learned

to collaborate and

improvise most

effectively have

prevailed”

Charles Darwin

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Reliability

“I was the only one who was

consistently there.

I was the only one who knew

the whole story.

I can help you provide high

quality and lower cost care.”

Ruby 84 years young……

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But I am an expert……caution

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Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim• Engage: consumers, families and staff

• Capture: consumer, family and staff experiences using a range of methods

• Understand: emotions and “touch points” along the journey of care

• Improve: work together to identify and prioritise what to improve

• Measure: check to see if experience is improving

Page 25: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Project start up

What is the problem, challenge, opportunity?

Page 26: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Some thoughts which may be challenging

• We do not know the full answer before we start. We may know our aim.

• Do not invest a lot of time and effort in a single idea early on. We want lots of ideas so that we can find the best one

• You cannot come up with new ideas or the right ideas without involving people who deliver and receive the services

Page 27: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Stop before you start…..

“When developing new products, processes or even businesses most

companies are not sufficiently rigorous in defining the problems they are attempting to

solve”Spradlin (2012) Harvard Business Review

If I had an hour to save the world, I would spend 59 minutes defining the problem and one minute finding solutions.Albert Einstein

Page 28: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Its important to look at things from multiple

perspectives

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Use multiple data sources to achieve a

complete data set

Co-design enables you to define the problem or challenge clearly from multiple perspectives including……..

Organisation

Staff and other stakeholders

Consumers/families

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Project start up

Establish good ethical principles

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Good practice/ Ethical Considerations

• Be clear that if patients choose not to participate, their decision will not affect their routine care and treatment in any way.

• If patients agree to participate, check back frequently that the patient remains comfortable with their choice.

• The improvement initiative should be designed and undertaken in a way that ensures its integrity and quality.

• All people who are involved, including staff, patients and carers, must be informed fully about the purpose, methods and intended possible uses of any information they provide.

• All participants must formally consent to the use of any information they provide, including attribution of quotations, film extracts etc.

• All people involved participate on a strictly voluntary basis, free from any coercion and able to withdraw at any time without need for explanation.

• All people involved must not be knowingly exposed to harm or distress.

• Provision must be made for responding to queries and complaints about the work.

• Privacy and confidentially must be respected as requested.

(Ethical Considerations for Experience Based Design: NHS 2007)

Page 32: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim

• Engage: consumers, families and staff

• Capture: consumer, family and staff experiences using a range of methods

• Understand: emotions and “touch points” along the journey of care

• Improve: work together to identify and prioritise what to improve

• Measure: check to see if experience is improving

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Intuitively, it is easier to see the role of patients at a micro-level in the health system – engaging and contributing to decisions about their own care, or that of loved ones – and much of the literature and policy focuses on this level (Coulter et al., 2008).

However, there is a strong case also for involvement of patients at meso and macro levels, to ensure that organisations and whole health systems are patient-centred

(cited in Lord L, Gale N, 2014 "Subjective experience or objective process", Journal of Health

Organization and Management, Vol. 28 Iss 6 pp. 714 – 730)

http://dx.doi.org/10.1108/JHOM-08-2013-0160

Levels of patient involvement

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Engaging consumers at different levels

• Programme or project governance level

• Project ‘lived experience’ level-

• Today contributing to ‘capture’ phase

• Over time through to the ‘co-design’ phase

Page 36: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Engage people recognising their strengths and

needs

Page 37: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Engaging consumers and families…

• There is no single ‘right way’. Use methods of engagement that are relevant to the patient group for example you might engage with community groups first.

Page 38: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Engaging consumers and families…

• Develop a concise narrative/ information about what you are planning to do and the role consumers can play

• Consumer/ community groups might identify consumers

• Clinical staff might identify consumers

• Identify consumers who have recently provided feedback

• Talk to consumers within your services today

………

• You do not need high numbers of people. Data saturation often happens quickly.

http://www.hqsc.govt.nz/our-programmes/consumer-engagement/publications-and-resources/publication/2162/

Page 39: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Maintaining consumer engagement

• Consumer engagement is value driven and highly personal.

• Maintaining engagement over the project duration comes

down to planning, communication and how you make

people feel about their involvement.

• Unfortunately, people are often left wondering what has

come of all the hours of work they have committed.

Page 40: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Employee resistance is the most common reason

executives cite for the failure of big organizational-change

efforts

Scott Keller and Colin Price (2011), Beyond Performance: How Great Organizations Build Ultimate Competitive Advantage

Consider Resistance

Page 41: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Consider Resistance

Page 42: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Communication- start with the why

https://www.ted.com/talks/simon_sinek_how_great_leaders_inspire_action?language=en

Why

How

What

Page 43: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

“Tell me and I will forget,

show me and I may

remember,

involve me and

I will understand.”Chinese Proverb

Alaskan wood frog can survive up to -16 degrees Celsius.

Page 44: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim

• Engage: consumers, families and staff

• Capture: consumer, family and staff

experiences using a range of methods• Understand: emotions and “touch points” along the

journey of care

• Improve: work together to identify and prioritise what to

improve

• Measure: check to see if experience is improving

Page 45: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Table discussion

• Take a sheet of flip chart paper- draw a line down the middle vertically

• Discuss on your tables the different ways you collect/gather information about patient experiences

• Make a list on the right hand

side of your flip chart paper

Page 46: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Table discussion

• What happens to the information you have listed…..who does it go to and how is it acted upon?

• Fill in the left hand side of the flip chart paper

Page 47: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Survey or Story?

Page 48: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

A quick survey…

How satisfied were you with the last meal you

had in a restaurant or cafe?

Very PoorVery Good

A B C D E

Page 49: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Satisfaction

A and E

Those who chose

Please stand up

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Satisfaction

B and D

Those who chose

Please stand up

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Satisfaction

CPlease stand up

Finally those who chose

Page 52: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Normal Distribution Curve

Most people will choose B,C & D. Fewer people will opt for the extremes

Page 53: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Tell a story…

• In pairs choose a story teller and a listener

• Story teller – tell your story of your meal in the restaurant or café (3 mins)

• Listener – record the story, note down anything you think relevant

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Feedback - tables

Discuss what was the difference between doing a survey and telling your story

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“Our analysis suggests that whilst local survey data may act as a screening tool to

identify potential problems……. they do not always provide sufficient detail of what to

do to improve that service’.

(Tsianakas et al 2012)

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Focus groups

and panels

Patient Stories

Photo booth

Complaints/compliments

Story BoardDiary

Public Meetings

Comments cards

Surveys

In depth conversations

The Health Foundation Inspiring Improvement Measuring patient experience

June 2013.

There are many ways of capturing experience

Patient experience questionnaire

ObservationShadowing

Page 57: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Take care

• Think carefully when you choose a mechanism for capturing experiences

• Think carefully when framing questions/discussion points.

• Enable people to feel safe as they take part.

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Ruth Wickens and Nick White; Capital and Coast DHB: Understanding and improving patients’ experience of the radiotherapy mask

4 in depth conversations

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Norman

“There were two things that surprised me: one was the size of it. When you think about a mask you think quite small, just covering your face, whereas the mask that was produced was a big mask that went right down covering the shoulders. The other thing was that I didn’t expect it to be attached to a horizontal position –that was a surprise. Those two things made it hard to cope with initially, from being told I needed a mask to the actual reality of what that meant.”

Ruth Wickens and Nick White; Capital and Coast DHB:

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Cheryl & Phil

“You’re in, you’re bang, you’re on the table, your mask is put on, I never had the chance to look around the room.... Your head is fighting to say I want to get out of this, I want to get away.”

“Your head is fighting to say I want to get out of this, I want to get away, being nauseated, held down, having something in your mouth – it was horrible.”

Ruth Wickens and Nick White; Capital and Coast DHB:

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Judy

“ Once again when that silence would kick in I’d be saying to myself, “What’s happening? Someone please talk to me”. It might seem a very short time to someone who’s on the other side of the wall and working on the machine, but that silence can be a very long time when you’re lying there and wondering what on earth’s going on.”

Ruth Wickens and Nick White; Capital and Coast DHB:

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Excerpt from the co-designed information film

. https://www.youtube.com/watch?v=ErKmCWGtUBw

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Observation

People do not always do what they say they do

People do not always do what they think they do

People do not always do what you think they do

People cannot always tell you what they need

Observation lets you find out what people really do and need

IDEO 2006

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Observation and listening The toilet roll holder

© NHS Institute for Innovation and Improvement 2009

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6

5

Non-compliant patient?

How can working with Very High Intensity

Users help us solve the readmission problem?

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“Insanity: doing the same thing over & over again and expecting different results.”

- Albert Einstein

Page 67: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

Agnes and Two Blue Pills

Example from Ko Awatea

20,000 bed days

campaign

Page 68: Co designing Health and Care Servicesahha.asn.au/sites/default/files/civicrm/persist... · citizens, end users) in the design process to help ensure the result meets their needs and

"There comes a point you have to stop pulling people out of the river, get upstream and find out why they're falling in."

Desmond Tutu

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Observation of flow

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Observation of flow in the ED

• He was triaged and placed in the

waiting room.

• He is patiently waiting. Doesn’t want

to make a fuss. Other people arrive.

They must be sicker as they get

rushed in

• There he sat, uncomplaining for 5

hours. No-one spoke to this man

because he was quietly, patiently,

waiting

• 5 hours in waiting room. He finally

gets a bed. His diagnosis is a

fractured NoF.

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Experience Questionnaire

This is a tool that can be used on it’s own or as a starting point for understanding which part of the pathway you might want to focus on…

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Experience questionnaire

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7

4

Using smiley faces

Example from Hilary Boyd- ADHB

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Numbers, numbers…

Breadth

De

pth

Conversation Shadowing FilmingObservation

Emotion questionnaireFocus groupsObservation

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Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim

• Engage: consumers, families and staff

• Capture: consumer, family and staff experiences using a range of methods

• Understand: emotions and “touch points” along the journey of care

• Improve: work together to identify and prioritise what to improve

• Measure: check to see if experience is improving

Measure

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Understand the experience

This part of the ebd approach is where

you really begin to understand your

service in terms of how patients,

carers and staff experience it.

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Link emotions to the point in the process where they occurred

how people feel through their journeye.g. scared

Link those emotions to thepoint in their journeye.g. finding a car park space, moving from hospital to home

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Understand the experience

Mapping the emotions (highs and lows) to the touchpoints.

Safe

Angry

Delighted

Anxious

Confused

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emotionvideo1.wmv

Shelia- video showing emotions

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Patient story and a process map…

It took ages to find a car parking space and then I found it was a 15 minute walk to the outpatients clinic. How frustrating!

The room was cluttered with out of date magazines and notices on the walls and I was already feeling really nervous

I wasn’t sure where to go – the signs were difficult to follow

Patient waits to sees consultant

Patient goes to different department for investigations (X-Ray/Pathology

Patient sees consultant

Patient arrives at clinic

Patient registers with reception

How do I find out where to go...I think I am lost. I am worried that I will be late

I seem to be waiting a long time, have I been forgotten or missed my name being called out? Feeling anxious

frustrating

nervous

unsure

Consultant was really helpful

relieved

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Patient waits to sees consultant

Patient goes to different department for investigations (X-Ray/Pathology

Patient sees consultant

Patient arrives at car park

Patient navigates to clinic

Patient arrives at clinic

Patient registers with reception

Patient navigates to department

+ve

-ve

frustrated

relieved

anxious

informed

nervous

worried

unsure

pleased

upset

It took ages to find a car parking space and then I found it was a 15 minute walk to the outpatients clinic. How frustrating!

The room was cluttered with out of date magazines and notices on the walls and I was already feeling really nervous

I wasn’t sure where to go – the signs were difficult to follow

Emotional mapping

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Patient experience of

using the call bell

Waikato Hospital NZ

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Emotion mapping and flow mapping-Christchurch New Zealand

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Intellectual Disability Team & ACI

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Northern Health map- themes for the outpatient journey

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Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim

• Engage: consumers, families and staff

• Capture: consumer, family and staff experiences

using a range of methods

• Understand: emotions and “touch points” along

the journey of care

• Improve: work together to identify and prioritise

what to improve

• Measure: check to see if experience is improving

Measure

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Co-design

Turning experience

into action

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Co-design

Co-design- (originally co-operative

design) is an approach to design

attempting to actively involve all

stakeholders (e.g. employees,

partners, customers, citizens, end

users) in the design process to help

ensure the result meets their needs

and is usable.

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What happens?

Staff, consumers, other

stakeholders come together,

review the learning, identify

themes, review and add to

the ideas, use criteria to

select some of those ideas

for early testing, form small

project teams and create a

plan for testing /

implementation.

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Planning for co- design

Things to consider:

• Can you bring a number of people together on the same date?

• Do you need to have a number of smaller gatherings?

• Do you need to have separate sessions for staff and consumers?

• Where you will hold co-design sessions

• Unique needs of people coming to the session.

• Be clear about location/directions to the venue

• Consider seating arrangements.

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Planning for co- design

Things to consider:

• Where you want to get to by the end of the session

• Availability of people to be ‘documenters’/facilitators?

• Whether you can use your experience map with themes and ideas/ or do you need to create something for the session.

• Any simple tools and techniques that you can use.

• A ‘park it’ sheet

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On the day/ at the session

Welcome/thank you, timing/agenda and housekeeping

Introductions- ice breaker- Spend 5 minutes talking to

person next to you and introduce each other to the

group.

The conversation is generally opened by examining the

results from the capture phase. The experience map is a

useful tool. People can build a little if needed. This can

be through specific table exercises or altogether.

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• Review the ideas that have already been collected and

ask for more. Table groups could take 1-2 steps in the

pathway or if a small group all could work together.

• Some ideas will link to specific parts of the process

and some may be broader. These will need

documenting.

• Ideas need to be written as a sentence rather than 1-2

words.

• Consider selecting/deselecting some ideas using

criteria.

On the day/ at the session

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Dot Voting:• Give participants a set numbers of ‘votes’ (eg sticky dots)

• Vote for ideas based on the criteria• Identify the most popular ideas

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Applying criteriaHigh

Impact

Low Impact

Easy to Accomplish

Difficult to Accomplish

96

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Applying criteriaHigh

Impact

Low Impact

Easy to Accomplish

Difficult to Accomplish

97

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Second review

Edward de Bono’s Six Thinking

Hats

Synopsis

This tool enables individuals or members of a group to explore an idea or

topic from a variety of perspectives, and in ways that may differ from their

preferred way of thinking. Edward de Bono, an expert on thinking and the

developer of the concept, suggests that by metaphorically wearing different

hats, we can direct our thinking in specific ways.

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IDEA

Data/facts

Positives

Negatives

Gut feeling

The Six Thinking Hats®

Collective decision on what happens next

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Decide on what ideas will be tested and plan

Plan

DoStudy

Act

What are we trying to accomplish?

How will we know that a change is an improvement?

What changes can we make that will result in improvement?

Model for Improvement

Improvement Guide, Langley et Al Chap 1, p.24

Re check your measures.

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Repeated Use of the PDSA Cycle

Hunches Theories

Ideas

Changes that result in Improvement

A P

S D

A P

S D

Very Small Scale Test

Follow-up Tests

Wide-Scale Tests of Change

Implementation of Change

Improvement Guide, chapter 7, p.146

102

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Co-design approach

Co-design approach includes the following stages:

• Project start up: scope, plan, aim

• Engage: consumers, families and staff

• Capture: consumer, family and staff experiences using a range of methods

• Understand: emotions and “touch points” along the journey of care

• Improve: work together to identify and prioritise what to improve

• Measure: check to see if experience is improving

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• Improve patient/family experience

• Reduction in complaints

• Increase in compliments

Other measures to consider:

• Reduction in handoffs

• Increase in attendance at clinic

• Reduction in readmissions

• Improvements to information

• Reduction in falls

• Improvements in way finding

Measures-some things to think about

What is available through the organisations data collection Systems?

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Using data from interviews, narrative

Severe nausea and vomiting in early pregnancy (SNVP) Mid Central DHB

The use of imagery- brings an understanding of the emotional feeling of this woman.

“It’s like having a hangover without the party”

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I was spewing at least 20 times a day. It made me feel

disgusting. It was like my body was shutting down. I

could feel it was giving up on me. I have been off work

for a couple of weeks. I tried prescription tablets but they

did not help at all. I tried so many other things: I’d been

to the health food shop and got health pills from them,

tried the Seaband bracelets, I tried ginger, I tried lemon, I

tried cranial massage, I tried everything. Nothing was

working.

Impactful use of ‘narrative ’

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Before and After

Before After

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After

• Post change review –conversations, survey or focus

group for example.

One women said –

“the leaflet helped such a lot, there were things that I

could try and when I was worried that they were not

working I knew exactly who to call for help- such a relief”.

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How patients felt about care-before improvements

www.wordle.net

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How patients felt about care after improvements

www.wordle.net

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Measure improvement: the

qualitative perspective

• Collect stories and pictures

• Identify themes

• Identify what has been observed- pictures and quotes will help

• Show your patient journey/emotion map/spaghetti diagram/waiting times calculation.

• Describe/show before and after – from and to

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Measuring

“what matters more than raw data is our ability to place

these facts in context and deliver them with emotional impact”

Daniel Pink –A whole new mind 2008

© NHS Institute for Innovation and Improvement 2008

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The impact of co-design

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Direct Care - Gastroenterology Patient Information

• Reduction in the amount of information

• Critical timings of preparation easier to read

• Contact phone numbers more prominent

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Co-Design- partnership and shared leadership

Mothers, maternity staff and catering contractors

• Ordered less full meals-reduce waste

• Increased snack food available focus on healthy eating

• Increased range of drinks including decaf

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Organisational Design and GovernanceWay Finding

Acronyms

• NICU, NNU to Neonatal care• AT+R Outpatients to

Rehabilitation• EPU to Early Pregnancy• Radiology to X-Ray &

Radiology

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Organisational Design and Governance

co-designing new mental health facilities

I feel like the way everyone has been listened to is creating something that will work for everyone, service users and staff.” Service User.

“The co-design process gives us confidence as designers that by bringing together all of the varying perspectives of the different reference groups at all of the stages of the design process that the result will be well informed, robust and ultimately lead to an improved outcome for all.” Klein Architects

They have been so delighted to see how their suggestions have been taken seriously and reflected in the emerging detail of the new building.” Family Advisor

Co-design is more about the designers and Users working collaboratively such that the Users are encouraged to come up with the solutions. Facilities

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• 10 members ranging from 26-86yrs old • Plus representation from localities• Provides Patient and Whaanau

Perspectives• Provide a Disability view through lived

experience• Diverse range of ethnic backgrounds• Links into over 100+ different

community groups and organizations

System / Community LevelConsumer Council

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Excellence awards judging

Project swift consumer workshop

Jammies in JuneMiddlemore Foundation

Community Representatives forum

Integrated Care workshop

Listening lab- Patient Experience week

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“Patient experience

approaches are about sharing

and understanding the

experiences of patients, carers

and staff together to design

better services.”

@LynneMaher1

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But I do not have time to work in this way….….

“We’ve the time to do the wrong thing repeatedly

but not

the right thing once”

Via Twitter @JeremyTaylorNV

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Session Plan

• Add to your personal understanding of how to effectively engage and work with consumers and families to improve health care services.

• Add to your knowledge of a range of tools based on design methodology to deeply understand the actual lived experience of patients and families

• Show how you can systematically use a co-design process with consumers and families to achieve improvement and innovation

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Suggested reading• Bate P, Robert G (2006) Experience-based design: from redesigning the system around the patient

to co-designing services with the patient. Qual Saf Health Care 15(5):307–310

• Bessant, J. Maher, L. (2009) Developing radical service innovations in healthcare – the role of design methods. International Journal of Innovation Management. Vol. 13, No 4.

• Carmen

• Davies E, Cleary D (2005) Hearing the patient’s voice? Factors affecting the use of patient survey data in quality improvement. Qual Saf Health Care 14:428–432

• Department of Health ( 2013) Report of the Mid Staffordshire Public Enquiry- available for download at www.official-documents.gov.uk and at www.midstaffspublicinquiry.com

• Dewar B, Mackay R, Smith S, Pullin S, Tocher R (2010) Use of emotional touchpoints as a method of tapping into the experience of receiving compassionate care in a hospital setting. J Res Nurs 15 (1):29–41

• Doyle C, Lennox L, Bell D. (2012) A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 2013;3:e001570. doi:10.1136/bmjopen-2012. 001570

• Drotar D. (2009) Physician behavior in the care of pediatric chronic illness: association with health outcomes and treatment adherence. J Dev Behav Pediatr 2009;30:246–54.

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Suggested reading• Flocke SA, Stange KC, Zyzanski SJ. The association of attributes of primary care with

the delivery of clinical preventive services. Med Care 1998;36:AS21–30.

• Goodrich J, Cornwell J (2008) Seeing the person in the patient. The King’s Fund, London

• Iedema R, Merrick E, Piper D, Britton K, Gray J, Verma R,Manning N (2010) Co-design as discursive practice in emergency health services: the architecture of deliberation. J Appl Behav Sci 46:73–91

• Kaplan SH, Greenfield S, Ware JE. Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Med Care 1989;27(3 Suppl):S110–27.

• Reeves et al. Facilitated patient experience feedback can improve nursing care: a pilot study for a phase III cluster randomised controlled trialBMC Health Services Research 2013, 13:259. http://www.biomedcentral.com/1472-6963/13/259

• Maben J . Adams M. Peccei R. Murrellst. & Robert G. (2012)‘Poppets and parcels’: the links between staff experience of work and acutely ill older peoples’ experience of hospital care. International Journal of Older People. Nursing 7, 83–94 doi:10.1111/j.1748-3743.2012.00326.x

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• Maher L. (2013) Smart Guide to Developing Pathways – Using patient and carer experience. NHS Networks Accessed via . http://www.networks.nhs.uk/nhs-networks/smart-guides

• Maher, L. (2011) Untapped Resource. Public Servant Journal. September 2011. • Plsek. P (2013) Lean and Innovation. The Virginia Mason Experience. CRC Press• Sequist, et al. ( 2008) Quality Monitoring of Physicians: Linking Patients’

Experiences of Care to Clinical Quality and Outcomes. J Gen Intern Med 2008;23.• Schaeper, J. Maher, L. Baxter, H. (2009) Designing from within- embedding service

design into the UK health system. Touchpoint- The Journal of Service Design. Vol. 1, No 2.

• Tsianakas, V. Robert, G. Maben, J. Richardson, A. Dale, C . Wiseman, T. ( 2011) Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer service. Support Care Cancer with open access at Springerlink.com

Suggested reading