Caring for people with bleeding disorders in developing countriesone at a time

July 2019

Welcome!

I am so excited to share this edition of Save One Life's OneVoice! Iam on my way to Africa and will be joining Laurie Kelley and theKilimanjaro climbers on a visit with our Kenyan program partners.There is still time for you to support one of our climbers on thisamazing journey. Please consider donating now and check out thearticle below.

I will also be traveling to Tanzania and Uganda on this journey andupdating our Facebook and Instagram throughout the trip. Make sure to follow us and seehow your support is changing lives!

We are also extremely excited to share a new video with you that highlights Save OneLife's mission over the last 18 years. Thanks to Believe Limited for creating such anawesome video representing what we do!

Please enjoy this edition of OneVoice and thank you for your support!

Chris BombardierExecutive Director

Watch our new video!

Chris Seistrup Wins the Tour Divide!

Chris Seistrup celebrates his v ictory in Antelope Wells, New Mexico! (Photo: Tomas Jonsson)

Chris Siestrup made history becoming the first person with hemophilia to not onlycomplete the Tour Divide but also WIN the race! Chris competed with over 140participants over the 2,745 miles long course. He fought through snow, rain and howlingwind to complete the ride in 15 days, 11 hours and 24 minutes.

We couldn't be more impressed with Chris's amazing accomplishment and his dedicationto carry on Barry Haarde's legacy of riding for Save One Life. His efforts, in addition tothe community ride in Ipswich, MA on June 23, helped Save One Life exceed ourfundraising goal of $25,000. Overall, Wheels for the World: Lost on the Tour Dividehelped us bringin $32,587!

Thank you to everyone that contributed to this event and our amazing sponsors forhelping make this happen! To learn more about Chris's historic ride, click the link belowto read our interview with him.

Interview with Chris

Kilimanjaro Team Heads to Africa!Laurie Kelley and a team of climbers are headed to Tanzania to climb Mt. Kilimanjaro, thehighest peak in Africa! For Laurie, this will be her third time!

First stop will be Kenya to meet with the Jose Memorial Haemophilia Society, a Save OneLife program partner. They will travel around Nairobi, visiting families that are being

helped by Save One Life programs, and see first-hand how difficult it is to live in adeveloping country with a bleeding disorder.

After visiting Kenya, the team will head to Kilimanjaro to undertake the huge challenge ofclimbing to an elevation of 19,340 feet over 6 days! Each climber must raise $10,000 forSave One Life programs. Please help support these climbers and their amazing efforts byclicking the link below and donating to a team member!

Support Our Climbers!

Save One Life will be honored with the Global Impact Award at National HemophiliaFoundation’s Red Tie Soiree!

NHF’s Red Tie Soiree is a yearly celebration of the champions of the bleeding disorderscommunity. The Global Impact Award recognizes Save One Life providing financialassistance to families in 13 developing countries and donating life-saving factor to over 78developing countries.

Follow this link if you would like to purchase tickets, an ad or make a donation in honor ofSave One Life.

Join The New England HemophiliaAssociation (NEHA) and Save One

Life for a hike on August 17!

Climb with us at the same time Laurie Kelley and her intrepidgroup of climbers tackle Kilimanjaro! Join NEHA and SaveOne Life for the first Backpacks and Bleeders hike in theNortheast.

Backpacks and Bleeders was created by Save One Life'sexecutive director, Chris Bombardier, in 2013 with theColorado Chapter of National Hemophilia Foundation topromote outdoor activity in the bleeding disorder community.

We are excited to introduce this program to the NEHAcommunity. Come and get a taste of what the Kilimanjaroclimbers are experiencing with a fun and family-friendly hikeup West Rattlesnake Mountain in New Hampshire on August17. Chris Bombardier will be there to share his experiences andknowledge about being outdoors with a bleeding disorder.

We hope to see you!

Details and Registration Info

Latest news from Save One Life'sprogram office

Welcome NewSponsors

Jennifer Brockway -PeirceYaa Bruce

Kendall FitzpatrickHem ophilia of South

CarolinaWalid Kobisi

Julia LowtherNatalie Ly nch

Guadalupe Hay es-MotaJenifer RoseAlicia Unger

Leonard ValentinoVanessa ValerioSharon Wagner

Cindy Walter

SponsorsAdding

Beneficiaries

Leslie JacobsenDebbie De La Riv a

Capcon Foundation III/Jon Freem an

A Child toSponsor

Project SHARE 2019 factor donations to date (IU):Jan: 1,062,025Feb: 845,646March: 547,423April: 730,263May: 577,327June: 244,819July: 740,093

Year total: Over 4.5 million IU of factor to 24 countries

Scholarships averaging $808:Honduras - Bachelor in Foreign LanguagesUganda - Bachelor of Pharmacy

Micro-Enterprise Grants(generously supported by Roche and Genentech)averaging $924:

Pakistan - for a woman to start a small scale groceryIndia - to buy a generator for TV repair business out ofhis homeIndia - to buy a Xerox machine to start a copy centerbusinessIndia - to buy a welding machine to expand an existinghome business with his fatherIndia - for a down payment on a rickshawM and J, Dominican Republic - to open a grocery store

A sponsorship is just$35 a month!

Please sponsorJeaneu Rey from The

Philippines

Jeaneu Rey lov es todance!Som etim es he isn't abledue to his knee joint beingsignificantly im paired.His fam ily can't affordtreatm ent orphy siotherapy for hisknee. His bleeds areusually treated with coldcom presses andsom etim es painm edication.

When this sev en y ear oldgrows up he wants tobecom e a nurse becausehe is so inspired by thenurses who care for himin the treatm ent center.

Please considersponsoring this y oungboy and help him getaccess to proper care.

Thanks to Our Recent Donors

Mission SupportRobert BrownPatsy Carm an

Mary Dav idson for Micah MuzikaKaren Grev att

Chris Ground in honor of Stev e ScharzGuadalupe Hay es-Mota

Stacey Jansen in honor of Max Lev yMarelle Roodhuijzen-Hart and the Dutch 7 th

grade European School, Luxem bourgGreg Vennem ann

Micro-EnterpriseGrant Program

Scholarship ProgramCamp Fund

Michael Wegner to all 3 !

Kilimanjaro Challenge 2019

Joel and Judy Adelm anJulie Aguirre

JB AshtinJoy ce Beare

Kristen BedoreJanet Bernard

BHI Energy and Power Serv icesCatherine and Alan Bom bardier

Jam es BoothKonstantin Borushko

Laurie BristolNeil Brooks

Deanna MankinsJoseph MarkowitzMichael MarroccoJean McCaslin

William McCom bMandy McCullough

Jean McFarlaneJohn McGarityBev erly McKee

Sean McParlandMaureen McQueen

Jim Melanson

Gardenia Broom anRobert Brown

Rose and Jan BultPaul Burnette

Raewy n Cam pbellDaini Carlson

Jane Cav anaugh Sm ithDaniel and Mary Chadd

Wendie and Richard ChaddMarlette Cisneros-MillerWilliam and Em ily Cobb

Eddie Cordov aStephanie Dansker

Chris Dav ezacErin Dav is

Danielle DayAnastacia Dev ries

Jim DowneyKristina Drew

Christina DustinKaren Easton

My ka and Charley EngelRita Epstein

Kerri EricksonMark Feitner

Michelle FerrisFFF Enterprises

Candy FinleyKendall Fitzpatrick

William Christopher FordJanice Forsstrom

Dav id FrankSusan Freudenberg

Johanna GarciaJordan Glicksm an

Bill and Chris GoldthorpTina GoodwinCorey GriffinLinda Hagen

Jonathan HahnElizabeth Halliburton

Wendy Ham iltonRachel HancockKim berly Harris

Ken HatfieldSusan HatcherBrook Hem ping

Marianna HerreraNeil HightowerPatricia HoganKelli HolbrookJane Holcom b

Ron Holm esKathie Hurst-Brown

Hy brid Adv ertising & MarketingMark Johns

Storm y and Craig JohnsonMary Kam plain

Bruce KardonSam m y Khalili

Theresa KingJam ie Kiser

Joy KishAngela Knoll

Bev erly Ann and Jay LabeMatthew and Chastity LaBeff

Alex LangeAndrew LaRocco

Rick LeasureJam ie Lem m ensDaniel Leonard

Susan LerchSandra Lewis

Jennifer MieleMadison Moat

Tiffany and Rich Mogav eroBrittany Morgan

Linda MorrowPolina MorrowJam es Morrow

Deb MurphyGreg Neier

Derek and Krisdee NelsonNeuwirth Law Office

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Jam es OrtJam es Palm er

Alicia PanicucciDelisha ParkerMerie Parker

Glenn ParkhurstJenneffer and Shannon Peterkin

Julie Pev etoBeatrice and Glenn PierceCarl and Jo Ann Pilarski

Linda PriceJessica ProcoposJoseph PuglieseTeri Rem illardGerlanda Rey es

John RhodesMaureen Rhowm ine

Karen RianoDillon Risk

Rickard RobbinsKasey RobertsDiane Roberts

Mary Rose RogowskiLisa Rose

Char Rugh-Kam aNeal and Cindy Salloway

Marily n Sam psonKen Schafenberg

Kathleen SchneiderSusan SchwarzRobin Shannon

Silicon Valley DirectCher Sim on

Michelle SipulaGrady Sm ith

Lindsay Sm ithJim Sm otherm anFrances SpencerKathry n StattonJessie Steem an

Karim Suazo-FloresRoy Swartz

Way ne TalleurAnn-Grete TanMary Tarv inIv ette Tay lor

Aren TungMara Ty ler

Leonard ValentinoMichelle Valenzuela

Jennifer VanderwarkerJustin Veloz

Stev en VercelliDarren VerdoornRogerio Viv aldi

Scott WareAlexis Wegner

Calv in WeiAbbey WexlerKaren Winnett

William LewisLisa Litchfield

Stephen Richard Lov atoJulia Lowther

Natalie WoodMona Wy borny

Paul Wy nnCarol Youm ans

Wheels for the World: Lost on the Tour Divide

Rorie AndersonKristin Anderson

Anony m ousGrant BelshamWendy Billock

BioMarin Pharm aceutical Inc.BioMatrix Health Group

Bobbie BollingerGuillerm o Cam pillo

Jason ClarkMeagan Coom er

Jeff CoryCVS Health/CVS Specialty

Debbie de la Riv aJohn Dem arcoScott Dunham

Hay ley Fernandez de Cordov aCarl Gable

Kris HasbrouckRobert Hehlen

High Gear Bike Shop LLC

George and Janice HollandChris Hosking

Craig and Judith KiggensLawrence Kosakowski

Janice LaddNeil LindgrenStephen Long

Mark LoweGenny MooreMike Munroe

Derek and Krisdee NelsonDeborah Pendleton-Maurice

Allison PohlThom as Seibert

Kim SeistrupDinah Stecki

Francis and Judy StewardAnn-Grete Tan Scott Thom pson

UniQure Inc.Karen Warrick

Barry WeintraubJason Wolf

If you like our mission, please donate today.Every dollar counts!

2019 Corporate Sponsors

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Your Save One Life Team

Chris BombardierExecutive Director

Jenn Brockway-PeirceProgram Manager

Kristy BurnsFinance and Operations

Manager

Heather KleeSponsorship Manager

Jodi WeeksDevelopment Manager

Marelle HartEuropean Liason

Usha ParthasarathyIndia Coordinator

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