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Built On Leadership, Vision, And Commitment To Find A Cure Chiari & Syringomyelia Foundation 2011 awareness research education

Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

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Page 1: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Built On Leadership, Vision, And

Commitment To Find A Cure

Chiari & Syringomyelia Foundation 2011

awareness

research

education

Page 2: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Our Mission To advance knowledge through research and to educate the medical, allied sciences,

and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

The Chiari & Syringomyelia Foundation, Inc. is a national a 501(c)(3) organization committed to disseminating accurate and current information about treatments

for and best practices surrounding the management of Chiari malformation (CM), syringomyelia (SM) and related CSF (cerebrospinal fluid) disorders.

Many recognized world-class physicians, scientists and professionals agreed to

collaborate and form a superior Medical Research Board. The trusted and dedicated members of our Board of Directors and Board of Trustees include

community and business leaders, educators, legal experts, families, and patients, who have been advocates in the CM, SM and related disorders communities for years. They have the skills and passion to create, fund, and direct programs and

research that will change the lives of over one million families affected by CM, SM and related disorders.

29 Crest Loop, Staten Island, New York 10312 718-966-2593

Page 3: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Paul J. Farrell Chairman and Founding Member

James E. Feisthamel Director

Joe Fitzpatrick Vice Chairman and Founding Member

Steve Kragrud

Treasurer

Lory Watson Director and Founding Member

Michael N. Mikula, Board of Trustees Chairman

Simon J. Archibald, PhD

Robert Tyre Jones IV, Psy.D.

Edwin B. Jordan

Douglas E. Kindlon

Richard E. Kuntz, MD

Sean Lilienfeld, MD

Lady Trish Malloch-Brown

Robert E. Rumphrey

Dorothy Poppe Executive Director

Andrea Grosz Marketing & Development Director

Cathy Poznik Chapter Coordinator

Board of Directors

Board of Trustees – Bobby Jones Society

Staff

Page 4: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Allison Ashley-Koch, PhD - Duke University Medical Center

Ulrich Batzdorf, MD - David Geffen School Of Medicine At UCLA

Edward C. Benzel, MD - The Cleveland Clinic Foundation

Paolo Bolognese, MD - The Chiari Institute

Richard G. Ellenbogen, MD - University Of Washington

Clair Francomano, MD - Greater Baltimore Medical Center

David Frim, MD - University Of Chicago Medical Center

John D. Heiss, MD - National Institutes Of Health

Fraser C. Henderson, MD - Doctors Community Hospital

Bermans Iskandar, MD - University Of Wisconsin Hospital

Roger W. Kula, MD - The Chiari Institute

Francis Loth, PhD - University Of Akron

Dominic J. Marino, DVM, DACVS - Long Island Veterinary Specialists

John Oro, MD - Neurosurgery Center Of Colorado

Harold Rekate, MD - The Chiari Institute

Marcus Stoodley, MD - Macquarie University

Timothy M. George, MD - Dell Children’s Medical Center Of Central Texas

Barth A. Green, MD - The Miami Project To Cure Paralysis, University Of Miami School Of Medicine

Victor Haughton, MD - University Of Wisconsin

Arnold Menezes, MD - University Of Iowa College Of Medicine

Miseo Nishikawa, MD - The Chiari Institute

Scientific, Educational & Advisory Board

Senior Advisory Board

Page 5: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

As a new year begins, we can reflect on the extraordinary accomplishments

achieved in 2011 by the Chiari & Syringomyelia Foundation. Thanks to you and your generous gifts, CSF attained many of the short term goals we set for 2011, and we have laid the groundwork for many new and exciting long term projects. I’d like to update you on the progress we made in 2011, as we look forward to an exciting and productive 2012. Regarding our fundraising efforts, we have exceeded our expectations with several new events that have supplemented our annual signature events. These events provide us with the needed revenue to continue on to our goals, even in these difficult economic times. Your continued generosity and support inspires and drives us to reach our ultimate goal, to find the cure for Chiari malformation (CM), syringomyelia (SM), and related disorders. Our fourth annual Charity Ball, held on March 5, in Staten Island, New York, was a huge success, on February 12, our annual CSF Valentine’s Day Dinner Dance was held in Utica, NY and on August 27, the annual Ride for the Cure was held in Rome, NY. We also introduced two new events this year. On September 17, our first Dinner Dance for a Cure was held in Twinsburg, OH, and on October 15, our first Taste for a Cure was held in Barrington Hills, IL at the Barrington Hills Country Club. The Dinner Dance for a Cure was attended by over 200 people and raised over $27,000. Scientific Education & Advisory Board (SEA Board) Chairman Dr. Edward C. Benzel and member Dr. Frank Loth were in attendance, along with speakers from the CSF physician lecture series - Dr. Mark Luciano and Dr. Violette Recinos. The Taste for a Cure featured wine tasting and gourmet food selections, was attended by 200 guests, and raised almost $150,000. We also recently completed our most prestigious event, the second annual Night of Light Children’s Gala, held on November 12 at the James Burden Mansion in New York City. This magical evening was a huge success, and featured a distinguished group of honorees - U.S. Senator Lindsey Graham, Lord Nicholas, 14th Lord Fairfax of Cameron, and Ms. Edie Laquer, as well as world-class physicians who treat Chiari and syringomyelia, and 100 philanthropic guests from around the world. Lord Mark Malloch-Brown gave an impassioned keynote speech about how Chiari malformation affects an entire family. Last year, the money raised by this event was earmarked to help direct a research project, which will look into the connection between Chiari malformation and the Autism Spectrum of Disease. This year, we raised over $500,000 from the Night of Lights Children’s Gala, in part due to a generous gift from Dr. Steven Victor, Chairman of Intellicell Biosciences. This will help us fund the establishment of a National CM and SM Patient Registry, which will track the identification and diagnoses of people with these disorders, monitor their health, and set priorities for health care. In 2011, CSF funded three meetings within the medical & scientific community. Current clinical studies have suggested that there exist specific relationships between Chiari and co-morbid disorders that would affect the surgical approach to Chiari. A CSF Colloquium in Washington, DC on October 1 focused on hypermobility connective tissue disorders and Chiari in an effort to expand the current knowledge about the co-morbid disorders that are associated with it. The meeting was recorded and will be available on our website shortly.

Letter from the Chairman

Page 6: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

In an effort to “think outside the box”, twenty-five engineering and scientific speakers from around the world traveled to Switzerland this past July for a CSF sponsored international Hydrodynamics Symposium. The goal was to think about these disorders from a physiology perspective rather than just a clinical perspective. The Symposium was co-chaired by SEA Board member Dr. Frank Loth, and funded by CSF through a generous grant from the Monkton Institute. Plans are already in progress for the 2nd CSF International Hydrodynamics Symposium to be held in 2013. The third meeting was in preparation for our grant announcement. CSF is proud to announce that we have released a call for research grant applications. There will be five $10,000 trainee grant awards and one $50,000 Bobby Jones Research Scholarship. It will be a very exciting year in research. Finally, the Bobby Jones Classic for CSF has been re-scheduled for May 14, 2012, at the East Lake Golf Club in Atlanta, GA. This tournament is only made possible with the blessing of the Jones family - in particular Board of Trustees member Bob Jones IV, grandson of the legendary golfer. We have enlisted the services of IMG to plan and run the Classic, and professional golfer Jay Haas has been signed to headline the event. 2011 was a very productive year, as we continue to build a solid foundation and set our course for the future. Join the CSF community and stay up-to-date on upcoming news and events with periodic email updates. Just visit our website at www.CSFinfo.org, click on Contact Us on the left side of the site, update all of your information, and we will add you to our email contact list. Please consider making a tax deductible contribution to CSF by donating online. Just click the Donate Online button and fill out the form. If you prefer to mail your gift, please send to: Chiari & Syringomyelia Foundation, 69-39 Yellowstone Blvd. #216, Forest Hills, NY 11375 Thank you so much for your support of CSF! Paul J. Farrell Chairman and Founding Member

Letter from the Chairman (continued)

Page 7: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

2011 Calendar of Events

Carolinas Chapter Education and Awareness Meeting

January 5, 2011 - Durham, NC

Greater Metropolitan Washington Area Chapter

Education and Awareness Meeting

April 20, 2011 - Lanham, MD

Northwest Regional Chapter Education and Awareness

Meeting

Carolinas Chapter Education and Awareness Meeting

January 12, 2011 - Seattle, WA May 20, 2011 - Durham, NC

Greater Metropolitan Washington Area Chapter

Education and Awareness Meeting

Cleveland Chapter Education and Awareness

Meeting

January 18, 2011 - Lanham, Maryland June 29, 2011 - Cleveland, Ohio

Cleveland Chapter Education and Awareness Meeting

January 27, 2011 - Cleveland, OH

CSF Hydrodynamics Symposium July 8, 2011 – Zurich, Switzerland

Valentine's Day Gala Greater Metropolitan Washington Area Chapter

February 12, 2011 - New York Mills, NY Education and Awareness Meeting

July 20, 2011 - Lanham, MD

Johns Hopkins Webinar with Dr. George Jallo

February 15, 2011 – Online

6th Annual Benefit and 5th Annual Motorcycle Ride

to Help Find a Cure for Chiari Malformation and

Greater Metropolitan Washington Area Chapter Syringomyelia

Support Group Meeting August 27, 2011 - Rome, NY

February 22, 2011 - Lanham, MD

Carolinas Chapter Support Group Meeting

Dinner Dance for a Cure - Twinsburg

September 17, 2011 - Twinsburg, OH

March 4, 2011 - Greensboro, NC

Carolinas Chapter Education and Awareness Meeting

4th Annual Charity Ball October 7, 2011 - Durham, NC

March 5, 2011 - Staten Island, NY

Taste for a Cure, A Wine & Dine Extravaganza

Round Table Pizza Takeover

March 23, 2011 - Tacoma, WA

October 15, 2011 - Barrington Hills, IL

Greater Metropolitan Washington Area Chapter

CSF "Think Tank" Meeting Education and Awareness Meeting

April 9, 2011 - Denver, CO October 19, 2011 - Lanham, MD

CSF Night of Light Children's Gala

November 12, 2011 - New York, NY

For more information about upcoming events, visit the Events page of our website

www.CSFinfo.org

Page 8: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Research. Education, and Awareness

Awareness With the CSF Education and Awareness Program, our goal is to reach beyond the current CSF

membership to raise awareness and educate as many people as possible. This program engages physicians and lay people in a regional area. CSF hosts a meet and greet, followed by an educational

medical lecture with Q & A from the audience. These lectures are videotapes and posted on our website to share the information to families and physicians around the world. There is no charge or

fee to view the lectures at the meeting or on the web.

Education CSF is committed to providing current and accurate medical information to educate patients and

their families. All educational material on our website is written by medical professionals and reviewed by our Scientific Educational & Advisory Board Executive Committee before publication. The material is designed to help individuals understand the disorders and treatments in order to

make knowledgeable decisions in their care. The Executive Committee of the Scientific Educational & Advisory Board solicits the assistance of other experts in the field to regularly update the basic

CM/SM topics on our website, including the leading clinical, radiological, therapeutic, and socioeconomic issues.

CSF website: more information about Chiari malformation and syringomyelia, including one page

fact sheets to download and print; free access to our educational lecture series, located under Physician Lecture Videos; and news on what CSF is doing to advocate for families affected by Chiari

malformation and syringomyelia.

Research CSF National Patient Registry Project: Chiari malformation (CM), syringomyelia (SM) and related disorders (RD) affect millions of people worldwide. Starting on the path to improved care can be a daunting task. An important early step is to establish a national patient registry, an invaluable tool

for improving the lives of people with CM/SM/RD.

CSF Ehlers-Danlos Syndrome Colloquium: CSF sponsored the Ehlers-Danlos Syndrom Colloquium which was held on October 1-2, 2011 at the Cosmos Club in Washington DC. Video of the Colloqium

can be seen on our website.

The CSF Project to Analyze the Prevalence of Chiari Malformation Within the ASD Population: There appears to be an underserved population of children and adults with Chiari malformation and

autism – the size of which is yet to be determined. Recent data suggests that a greater than expected overlap of findings in children diagnosed with Chiari Malformation and those diagnosed

with Autism Spectrum of Disease (ASD).

CSF Hydrodynamics Symposium: On July 8 and 9, 2011, CSF proudly sponsored the first CSF Hydrodynamics Symposium in Zurich, Switzerland, thanks to a very generous grant from the

Monkton Institute and Ms. Candida Lancaster.

Page 9: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Dairy Queen Night

CSF and Member Fundraising Events

CSF Night of Light Children's Gala

November 12, 2011 - New York, NY

4th Annual Charity Ball

March 5, 2011 - Staten Island, NY

Round Table Pizza Takeover

Member Fundraiser

March 23, 2011 - Tacoma, WA

Rite-Aid Cleveland Half Marathon Member Fundraiser

May 15, 2011 - Cleveland, OH

Dairy Queen Night May 25, 2011 - Twinsburg, OH

Dinner Dance for a Cure - Twinsburg

September 17, 2011 - Twinsburg, OH

Night of Light Children’s Gala November 12, 2011 – New York, NY

Page 10: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,
Page 11: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,
Page 12: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Support and Revenue

Contributions, Gifts and Grants $ 57,365

Program Service Revenue $ 43,383

Membership Dues $ 0

Net Income from Special Events $257,602

Other Income - Interest, Stock, Refund & Depreciation $380,151

Total Support and Revenue $738,501

Expenses

Program $252,303

Administration $ 55,157

Fundraising $ 80,266

Total Expenses $387,726

Net Income $350,775

2011 Summary of Activities

Page 13: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Bobby Jones Society ($25,000 and above)

Doctors Community Hospital

Dominic J. Marino, DVM, Dip. ACVS, Dip. ACCT, CCRP

Michael and Denise Mikula

Dr. Steven Victor

Platinum ($10,000 - $24,999)

The Farrell Law Firm, P.C.

Lord and Lady Mark & Trish Malloch-Brown

Richard Tripodi and Jane McKinney

Edward Reilly

Jerome Rich

Gold ($5,000 - $9,999)

Denise Aversano

Blue Cross Blue Shield of Illinois Leo and Debbie Deiger

Five Star Sheets, LLC Robert and Mary Foreman

Goldman Sachs Gives

Wendy Greenseich

Dr. and Mrs. Fraser Henderson

Peter Jacobsen Sports

Robert and Janet Janess

Douglas and Karen Kindlon

Robert and Toni Rumphrey

CSF Utica Chapter

Silver ($1,000 - $4,999)

Aetna Foundation, Inc Joseph and Brenda Fitzpatrick

Anonymous Five Star Transportation Dr. Ulrich Batzdorf Forest Resources, LLC Dr. and Mrs. Edward Benzel Tom & Jerrice Fritzlen

Blistex, Inc. Fuchs & Roselli LTD Mr. and Mrs. Greg Brebach Larry and Elizabeth Griffin

George and Ellen Brereton Icochea Rick and Monica Guarnaccia

Carlos and Jennifer Cabrera Integra Foundation Inc. Beverly Cass Dr. David Jones

Codman Burt Jordan

Gene & Bonnie Downey Jordan Family Foundation John and Jodi Eastman Keybank National Association

Edward Reilly and Susan Worth Myles Koby

Jim and Bunny Ehlert Adam and Margaret Korn

Dr. & Mrs. Richard Ellenbogen Peter Krug

Paul and Patricia Farrell Paul and Kim Lee

Dr. and Mrs. Timothy Farrell Dr. and Mrs. Mark Luciano

Page 14: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Silver ($1,000 - $4,999) M. V. Mayo Charitable Foundation Mr. and Mrs. Michael Schneider

Dr. & Mrs. Alexander and Thais Mark Eileen Shields-West

Jim Mattiola Raymond and Kathleen Skinner

Medtronic Inc. David and Courtney Smith

Members Give Richard & Mary Smith

Michael and PattiAnn Miles Brian Stitle

Herbert and Patrice Miller Krish Suthanthiran

Mr. and Mrs. John Newman Keith Tamayo

The Lois & Richard Nicotra Foundation The Chiari Institute

North Shore LIJ Health System The Roberts Family Foundation NYSCOPBA NYSCOPBA Triangle Dies & Supplies, Inc. Dr. John & Suzanne Oro' Truist Comprehensive Distribution Mr. and Mrs. Ellis Parker Bruce and Sandra Tully

Police Surgeons Benevolent Assc United Way of King County

Porter Wright Morris & Arthur LLP Valentine's Day Dinner Dance

Prudential Foundation Match Andrew and Stephanie Van Eekeren

Reuter-Stokes John and Marie Vitale

Keith Rich Wall Street Recycling

Richmond County Savings Foundation Kenneth Wallach

Paul Ross Bret Warren

Timothy and Kristin Routhieaux Doug Wertheimer

Joseph Salvani Richard and Amy Wickstrom

Andrew & Sharon Schaefer Zimmer Inc. Jim and Kim Schiffman

Bronze ($500 - $999) George and Karen Amann Chuck Erickson

Frank Arlia, Jr. Kevin & Joanne Farrell

Rocco and Ginamarie Armocida John Farrell

Briguitte Barrera Jean Paul Fekete

John Barrera Kris Ferdig

Mary Bevard Denise Gebhardt

Ann Bilderback Jim and Mary Gibson

Stephen and Denise Bongiorno JFS Investments Inc. Anthony and Nancy Bowe Jeff and Patty Kosty

David & Leigh Anne Buchanan Paulette & Claude Kranik

Kerrie Chalker Joshua Lachowicz

Anthony Chimino Dr. & Mrs. Vic LaGinestra

Delores Cleary Thomas Hayes and Claudia Langman

Susan Cobb Timothy and Lisa Larocca

Convent of the Sacred Heart Lawrence and Nancy LaShomb

Cook Jordan and Jane Franklin Ben Liskey

Carole Corcoran Nigel and Ghislaine Longton

Eric Fox and Charlotte Crane Mack Goldner Memorial Foundation R. Crusoe & Son William and Diane Malone

Matthew Dingens Dr. Raymond Mascolo

Daniel and Judith Dolan Chris Maul

Douglas Dragon Michael and Jeanne Mayor

The Equity Engineering Group, Inc. Jennifer McCarthy

Page 15: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Bronze ($500 - $999) Steve Merson Paula Rosa

Andrew Merson Gail and Larry Rose

Dr. Scott Moroff Joel & Debra Rossi

Dr. & Mrs. Daniel Mulholland Mark and Laura Ruane

National Philanthropic Trust Dan Santa Maria

Philip and Marney Naughten Kraig and Shelley Shipley

Mark Norcross Erin Smith

New York State Correctional Officers & Police Benevolent Association, Inc.

United Way Greater Cleveland Diana Ware

James and Cathy Poznik William and Martha Webb

Ken & Jeanne Radigan Greg and Sara Werner

Alan and Donna Rahman Michael Wieczorek

David and Regina Rath Gerard and Jennifer Wondrasek

Mike and Donna Rigert

Friends ($499 and below) John and Margaret Aceto Liz Benedetto Scott Burke

Marianna Affatato Kim Berlin Charles and Rebecca Burmaster

Nackley Agency Edward & Delores Bertha C. B. Distribution LLC Kevin & Christina Ahlers Larry and Cathy Berthold Andrew Canfora

Michael Aiello Mitchell Biederman Mario and Luisa Caponi

Lana Akopyan Laura Billings Jean Mary Cardwell

Thomas and Jeani Allaway Stuart and Bette Bilton Jay Carman

Nancy Allen Chris and Anna Bilton Robert Carson

Diana Alviggi Jennifer & Robert Bimberg Julie & Lon Carter

Thomas J. and Barbara J. Amato Karen Bither Geraldine and John Carter

Dawn Amato-Rudolph Laurence Blauvelt Christopher and Susan Cascino

Mike & Donna Ambrose Elizabeth Bloch Gary and Camille Caulkins

United Way of Massachusetts Bay And Merrimack Valley

Cindy Bojalad Joe & Dawn Bokar

Andy & Jackie Chenkus Eric and Elizabeth Chernik

Roy and Susan Anderson Paolo & Allison Bolognese & Bloom Suzanne Chisum

Steve Andreakos Jeff Bond Jeffrey and Mary Chrow

Dave & Carrie Andrews Bonnie Heneson Communications George and Maria Chubbuck

All Saints' Anglican Church Carmen Bossone Mikyung Chung

Anonymous Jim & Marie Bova Stephanie Church

Donald Applegate Mark and Mary Beth Bowman Richard and Cheryl Church

Dave and Sue Arch Scott and Mary Boyer Heather Ciaglia

David Arko Adam Brady Joseph & Janet Ciccolini

Christina Askins Walter & Maureen Brennan Julie Malanoski & William Cleary

Jodie Barbera Heinz and Ellen Brisske James Cleary

Violet Barbosa Mary Frances Broda Jennifer Cleary

Rich & Barbara Bard Peter & Jennifer Brown Robert & Shirley Cleaver

Matt & Susan Bard Paul and Barbara Bruzzano Phil & Kelly Clunn

Barry Family Thomas and Stephanie Buck Valerie Colaric

Paul Barta Don & Wendy Buck John and Mary Conroy

Olivia Baumgartner Thomas and Jill Buckeye Appliance Dealers Cooperative

Katherine Beckman David Buckley Piave & Anna Corradi

Ruth Bedford Jay and Mary Pat Bugos Marel Corredor-Hyland

Gaspare Benanti Todd and Karyn Bundrant Jelsia and Anthony Cortese

Page 16: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Friends ($499 and below) Michael and Kelly Coy P. J. Farrell Dave and Rita Grube

Susan Coyne Frank Farrell Jeff and Janet Gugliotta

Alice R. Cranston Francis and Eileen Farrell Nicole Guzziardi

Patrick Czar Peter Farrell Donna Hall

Twinsburg Dairy Queen Utica Gas & Electric Fed. Credit Union Stewart and Gina Hamlin

Mark and Natalie Daniels Joan Feisthamel Howard and Mary Ann Hammill

Automatic Data Processing James and Mary Ellen Feisthamel Hanover Park Animal Care Center Megan Daugherty Marybeth Fell Sue & Robert Hanson

Jennifer Davis Mark and Carylee Fili Doug and Stacy Harding

Marvin & Tammy Davis Brent and Angela Fiorucci Christine Harman

Thomas and Joan Davis Paul and Lauren Fischer Susie Harris

Cindy Delgros Orris Mission Fish Dennis & Carrie Hartnett

Bill and Donna Delisio Elaine Fitzpatrick Julie Havrilla

Sal DeMatteo Gerald and Mary Anne Fitzpatrick Dr. and Mrs. Jimmie Haynes

Laura Anne Demkoski Brian Fitzpatrick Carl & Kim Hegrat

Donald & Marie DeRoia Charity Fondevilla Robert & Judith Heller

Genevieve Desroches Louis D. Fontana Hennessy & Roach, P.C. Mark and Cynthia Detrempe Gary & Meda Forgotson Wilmer & Donna Henninger

Gregory and Tina DiCillo BP Foundation, Inc Ann Henwood

Michael & Elaine DiCillo Blair and Sheryl Frankenberg Barbara Hertzen

Mike and Deb DiCillo Ray and Nicole Franze Marianne Elizabeth Herzke

Michael and Patti DiCillo Jennifer Freeman Roseanne Hetterscheidt

David and Terri Dieter Brian and Jennifer Fregeolle Mr. and Mrs. Thomas Hills

Karen DiMarsico Joseph Funaro Paul and Barbara Hills

Dinner Dance for a Cure Joseph and Jill Gaba Hilton Garden Inn Twinsburg Antonio DiPrima Ralph Galdorisi Richard and Heather Hoffman, Jr.

Heidi Diven Marion Galla Brian and Amy Hogan

Edward Adam Dolan John and Kathy Gallagher Christopher and Tanja Holecek

Joseph J. Donzelli Mr. and Mrs. Alan Gameron Adam Holtz

Clear Fold Door Inc. Emile and Kim Gantous Roger and Nadeane Hruby

Virginia Dressler Suzanne Gaumond Chad Hull

Christopher du P. Roosevelt Marge Gergye iGive.com iGive.com

Karen Duff John Gerrnroth Clinton Tractor & Implement Co.

Brian & Donna Duffy Brian & Patty Gerzeny Brian and Tracy Janess

Elaina Durso Al & Laura Giammaria Rich & Joan Janosko

Nancy Eannace Laurel Gibson Torben Jensen

Simon and Tania Edwards Dave and Virginia Glantz Jeff and Julie Jessup

Keith and Sue Ehrichs Robert and Carol Glaser Jewish Federation of Met. Chicago Bruce and Mary Elderkin Deborah and E. Richard Goddard Lauren Johnson

Apec Engineering Melissa Good Paul Johnson

Sharper Image Engravers Matt & Kristy Goodman Mary Ann & Jeffrey Johnson & Crane

Tom Erny Bryant and Suzanne Gourdie Robert & Cenellia Jones

Captain & Mrs. Paul Esposito GPO Federal Credit Union Brian and Julie Jones

John Esposito Stephen and Sharon Grabek William and Diana Joyce

Andre and Tracy Esposito Richard and Linda Green Joyce B. Von Bothmer Revocable Trust Paul Ettorre Scott and Colleen Gregerson James and Maureen Juhas

Richard & Angela Evans Robert Griffith Anthony and Stacy Jurist

Joe and Mary Fadule/Lonzetta John and Alice Grochowski K & J Charitable Gift Fund P. J. Farrell Andrea and Ken Grosz Kate Kamish

Page 17: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Friends ($499 and below) Dean and Tracy Karambelas Sobia Mags Patrick Mirville

Amy Karides Rick & Tina Magyar Scott & Donna Moegling

John and Jeanette Kartley John & Cheryl Magyari Maureen & Michael Mohlenkamp

Gregg & Donna Kaufman Paul & Kelly Maione Margaret Monahan

Kristine Keegan Ed & Judith Majher David Mondi

Richard and Josephine Keller Lisa Malek Teresa Montemurro

Peter & Cynthia Kern Ralph Mancini Dr. Cathe Montesano

David and Sherri Ketchesin Robert & Cindy Mannella Michael Mooney

George and Susan Ketigian Frank & Angela Marano Mooney & Thomas, PC Mike & May Khoncarly Randy March Thomas and Joanne Morelli

Mike & Katie King Deanna Marman Mark and Brenda Morrison

Mark and Cindy Knapp Adam and Tiffany Marshall Stan and Candace Morse

T.J. Knaus James & Theresa Martin Stefan & Chris Morton Effross

Robert & Mindy Knisely Linda and Felix Martino Nancy Moszczynski

Thomas B. and Rosemary Kraft Alberta Martorella Ed and Rosanne Motto/Fitzpatrick

Matthew and Kaia Kraus Vinnie and Francine Marzano Peter Mulhausen

David and Stacey Krause Frank and Ruthie Marzullo Richard & Hortense Mullan

Karyn Kreps-Frisina Eileen and James Maslowski Carol Murphy

Walter and Camille Kresa Brian Mattison Linda Naple

Christopher and Dana Kula Jeff and Christine Mattson Sue Nellis

Elizabeth Kula Mayo Fdn for Medical Ed. & Research David and Carol Nelson

Dr. and Mrs. Roger Kula Raymond & Kathleen McAleer John and Jacquelyn Nelson

Gerald and Joan Kyle Patrick McAleer Steven & Lynn Nemec

L. K. Comstock & Company George McArdle Network for Good Christopher Landon Gavin and Nancy McCarty Lois and Richard Nicotra

John and Rosaria Lanza J. Gordon McComb Mr. and Mrs. Niezyniecki

Sheena Anne LaShomb Mark and Gerry McConnell Timothy and Courtney Nisbet

Robert and Noreen Lassandrello Jessica McCullough Robert and Kelly O'Donnell

Chuck & Jennifer Lazaro Art and Mary McCullough Bill and Amy O'Donnell

LCM Management Inc. Rick & Sharon McDermott United Way of New York City

Patricia Lenihan Michael & Patrizia McElroy McElroy Donna & Paul O'Leary

Al & Lisa Leondarides Michael & Linda McGrath Forrest Olson

Tina Lepore Mr. and Mrs. Garrett McGuinness Martin and Janet Oosterbaan

Elizabeth Lesley Elizabeth McKnight Ben and Dolores Orlowski

Michelle Lewis Anthony McMahon Steven and Toni Osseck

Dave & Gigi Lewis Mr. and Mrs. Jack McTague Mr. and Mrs. Douglas Owens

Jeff & Bonnie Lindbloom Brian and Edie McTernan Glen & Glor Pagano

Ambuvet LLC Beverly Meadows Joann Palmer

Barry and Vicki Long Joanne Menefee Anthony Papa

Michael Long Chuck & Sue Menge Joyce Paradise

Arthur and Linda Loomis Noah and Lesli Menikoff Jim and Linda Parck

Frank & Dorothy Loth Andrew & Kathryn Middleton Gilbert & Dawn Pariente

Dr. Catherine Loughin Stephen and Paula Midlik Ralph Parisi

David Luber Shane and Betty Mikula Lillian Parotta

Regis and Rebecca Luther John and Jo Ann Miller Robert Pecor

Stephen & Dorothy Macanga Jonathan and Dianna Miller Karen Peebles

Richard and Jean Maddrell Kevin and Teresa Milosevich John and Karyn Pendergast

Craig and Tamra Madison Phil & Maria Minick Melin Perez Torres

Susan Perry

Page 18: Chiari & Syringomyelia Foundation research 2011 · To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation,

Friends ($499 and below) Allan & Kathy Pestotnik Nina/Michelle Salon, Inc. The Greenbrier America's Resort

Dr. Bruce & Mrs. Susan Peterson Mark Sanders Anita Thomas

Michael and Kathe Pianella Brittney Sapolich Theodore and Danielle Thome

Tom & Liese Piazza Tom and Carol Sarsfield Dan Thompson

Mike & Mary Pickett Sam Scaffide Thornton Family Dave and Nancy Pierce Jim and Mary Schmidt Mr. and Mrs. Kevin Tolan

Marie Piller Richard Schmidt Sandra Tomaino

Mark and Jennifer Pinto and Hunter Paul and Janet Schneider Joseph and Cynthia Tomaro

James and Tina Ploss Dan Schultz Barbara Tombow

Traci Poole Richard J. Schutter TrueBlue Inc. Brad & Kara Poole Joanne Schwartz Cory Truitt

Dorothy Poppe Christine Scott Bill & Nina Tscherne

George Poppe, Jr. Leslie and Teresa Scott Nicholas and Eftihia Tsengas

David & Julie Post Russell and Tracy Scurto John & Teresa Turcanik

Fred & Diana Prince Colin and Karen Serkes Mr. and Mrs. Bruce Turtell

Kathi Procop & Gene Esser Debra Jane Setnick Utica Valley Electric Supply Co., Inc.

Proventur International Suzanne Shafer Dr. and Mrs. Van Dam

Richard Pucci Steve & Jennifer Shebeck Robert Verdi

Alan and Linda Pulaski Donald and Cheryle Sholey Donna Vitagliano

Eric and Hilary Pysnik Alan Siegel Nick and Diane Vittoria

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